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ProducedbyTheNationalRehabilitationInformationCenterAprojectfundedbyTheNationalInstituteonDisabilityandRehabilitationResearch,projectnumberED-08-CO-0095.
NIDRRProgramDirectory2008NationalInstituteonDisabilityandRehabilitationResearchProgramDirectory2008ProducedbytheNationalRehabilitationInformationCenterLandover,MDMarkX.
OdumDirectorJessicaH.
ChaikenMediaandPublicEducationManagerCatherineE.
GravesMediaSpecialistThefulltextofthispublicdomainpublicationisavailableattheNARIC'shomepageatwww.
naric.
comandinalternateformatsuponrequest.
Formoreinformation,pleasecontactusat:NARIC8201CorporateDrive,Suite600Landover,MD20785800/346-2742or301/459-5900(Voice)or301/459-5984(TTY).
ContentsIntroductioniResearchandDevelopment:Employment1HealthandFunction2TechnologyforAccessandFunction3ParticipationandCommunityLiving.
4DisabilityDemographics5KnowledgeTranslationKnowledgeTranslation.
6ADATechnicalAssistance.
7CapacityBuildingCapacityBuildingforRehabilitationResearchTraining.
8IndicesSubjectAGranteesBProjectbyStateCPrincipalInvestigators.
DProjectsbyProgramTypeEIntroduction1IntroductionThemissionofNIDRRistogeneratenewknowledgeandpromoteitseffectiveusetoimprovetheabilitiesofpeoplewithdisabilitiestoperformactivitiesoftheirchoiceinthecommunity,andalsotoexpandsociety'scapacitytoprovidefullopportunitiesandaccommodationsforitscitizenswithdisabilities.
NIDRRconductscomprehensiveandcoordinatedprogramsofresearchandrelatedactivi-tiestoassistintheachievementofthefullinclusion,socialintegration,employment,andindependentlivingofpeoplewithdisabilities.
ThiseditionoftheNIDRRProgramDirectorylistsallprojectsfundedbyNIDRRduringthe2007fiscalyear.
Thecontextualparadigmofdisabilityandrehabilitationresearch,originallydescribedinNIDRR'sLongRangePlan,1999-2003,continuestoframetheNIDRRresearchagenda.
Thisparadigmovercomesthelimitationsimposedbyamedicalmodelofdisability.
Thisparadigmofdisabilitymaintainsthat"disabilityisaproductoftheinteractionbetweencharacteristicsoftheindividual(e.
g.
,conditionsorimpairments,func-tionalstatus,orpersonalandsocialqualities)andthecharacteristicsofthenatural,built,cultural,andsocialenvironments.
"(NIDRRLong-RangePlan1999-2003.
)NIDRR'sResearchProgramUndertheLongRangePlan2005-2009,NIDRR-fundedresearchactivitiesfallwithinthreestrategicarenas:ResearchandDevelopment,CapacityBuilding,andKnowledgeTranslation.
MostNIDRRgranteesareuniversitiesororganizationsofrehabilitationorrelatedservices.
NIDRR'slargestfundingprogramsaretheRehabilitationResearchandTrainingCenters(RRTCs),theModelSystems,andRehabilitationEngineeringResearchCenters(RERCs).
NIDRRalsomakesawardsthroughotherprogrammechanisms,includingADATechnicalAssistanceProjects,AdvancedRehabilitationRe-searchTrainingProjects,DisabilityandRehabilitationResearchProjects,MaryE.
SwitzerResearchFellowships,NIDRRContracts,NIDRRScholars,andSmallBusinessInnovativeResearch.
Programdescriptionsareprovidedbelow.
ADATechnicalAssistanceProjectsNIDRRfundsanetworkofDisabilityandBusinessTechnicalAssistanceCenters(DBTACs)toprovideinformation,training,andtechnicalassistancerelatedtotheAmericanwithDisabilityAct(ADA)tobusinesses,agencies,andthepublic.
Presently,tenregionalDBTACsandoneCoordination,Outreach,andResearchCenter(CORC)arefundedunderthisprogram.
AdvancedRehabilitationResearchTrainingProjectsTheAdvancedRehabilitationResearchTraining(ARRT)Programprovidesresearchtrainingandexperienceatanadvancedleveltoindividualswithdoctorates,orsimilaradvanceddegrees,whohaveclinicalorotherrelevantexperience.
ARRTprojectstrainrehabilitationresearchers,includingresearch-erswithdisabilities,withparticularattentiontoresearchareasthatsupporttheimplementationandobjectivesoftheRehabilitationActof1973,asamended(Act),andthatimprovetheeffectivenessofservicesauthorizedundertheAct.
Introduction2Grantsaremadetoinstitutionstorecruitqualifiedpersons,andtoprovideatrainingprogramthatincludesdidacticandclassroominstruction,ismultidisciplinary,emphasizesscientificresearchmethod-ology,andmayinvolvecollaborationamonginstitutionsDisabilityandRehabilitationResearchProjectsTheDisabilityandRehabilitationResearchProjects(DRRP)programfundsprojectswithspecialemphasisonresearch,demonstration,training,dissemination,utilization,andtechnicalassistance.
Projectsmayincludecombinationsoftheseactivities.
TruetothemissionofNIDRR,theseprojectsmaydevelopmethods,procedures,andrehabilitationtechnologytoassistinachievingthefullinclu-sionandintegrationintosociety,employment,independentliving,familysupport,andeconomicandsocialself-sufficiencyofindividualswithdisabilities,especiallyindividualswiththemostsignificantdisabilities,ortoimprovetheeffectivenessofservicesauthorizedundertheRehabilitationAct.
MaryE.
SwitzerResearchFellowshipsResearchFellowships,namedforthelateMaryE.
Switzer,giveindividualresearcherstheopportunitytodevelopnewideasandgainresearchexperience.
Therearetwolevelsoffellowships:DistinguishedFellowshipsandMeritFellowships.
DistinguishedFellowshipsgotoindividualswhohavesevenormoreyearsofresearchexperienceinsubjectareas,methods,ortechniquesrelevanttorehabilitationresearchandmusthaveadoctorate,otherterminaldegree,orcomparableacademicqualifications.
MeritFellowshipsaregiventoindividualswhohaveeitheradvancedprofessionaltrainingorindepen-dentstudyexperienceinanareathatisdirectlypertinenttodisabilityandrehabilitationbutwhodonotmeetthequalificationsforDistinguished,usuallybecausetheyareinearlierstagesoftheircareers.
Fellowsworkforoneyearonanindependentresearchprojectoftheirdesign.
ModelSystemsNIDRRadministersprogramsthathavebecomeworld-renownedmodelsystemsofcareforpersonswithspinalcordinjuries,burns,andtraumaticbraininjuries.
TheModelSystemsestablishinnovativeprojectsforthedelivery,demonstration,andevaluationofcomprehensivemedical,vocational,andotherrehabilitationservices.
TheworkoftheModelSystemsbeginsatthepointofinjuryandendswithsuccessfulre-entryintofullcommunitylife.
Theseprojectscollectandcontributedataonpatientcharacteristics,diagnoses,causesofinjury,interventions,outcomes,andcoststoauniformnationaldatabase;participateincollaborativeresearchwithotherModelSystemcenters;andcoordinatere-searcheffortswithotherrelatedgrantrecipients.
In2006,NIDRRfundedacoordinatingknowledgetranslationcenterforallthreeModelSystemtypes.
NIDRRScholarsTheNIDRRScholarsProgramisdesignedtoprovideinternshipopportunitiesindisabilityandreha-bilitationresearchforundergraduatestudentswithdisabilities.
Eachyear,NIDRRprovidesfundingforthisprogramtoprojectsandcenters.
Theintentoftheprogramistoenablestudentstogainpracticalexperienceinongoingresearch,therebypreparingthemforcareersindisabilityandrehabilitationresearch.
Thedurationoftheinternshipisonesemesterandthestudentsarerequiredtowork20hoursperweek.
Introduction3NIDRRContractsThroughitscontracts,NIDRRseeksimprovedmethods,systems,products,andpracticestoaddtoitswork.
Thecontractsareforspecificactivitiesrelatedtomanagement,research,andinformationdis-semination.
RehabilitationEngineeringResearchCentersRehabilitationEngineeringResearchCenters(RERCs)conductprogramsofadvancedresearchofanengineeringortechnicalnaturedesignedtoapplyadvancedtechnology,scientificachievement,andpsychologicalandsocialknowledgetosolverehabilitationproblemsandremoveenvironmentalbarriers.
Eachcenterisaffiliatedwithoneormoreinstitutionsofhighereducationornonprofitorgani-zations.
TheRERCs'workinarehabilitationsettingprovidesanenvironmentforcooperativeresearchandthetransferofrehabilitationtechnologiesintorehabilitationpractice.
Involvedatboththeindi-vidualandsystemslevels,RERCsseektofindandevaluatethenewesttechnologies,products,andmethodsthatultimatelycanbenefittheindependenceofpersonswithdisabilitiesandtheuniversaldesignofenvironmentsforallpeopleofallages.
Thecentersalsoexchangetechnicalandengineeringinformationworldwideandimprovethedistributionoftechnologicaldevicesandequipmenttoindi-vidualswhoneedthem.
RehabilitationResearchandTrainingCentersNIDRR'sRehabilitationResearchandTrainingCenters(RRTCs)conductcoordinatedandintegratedadvancedprogramsofresearchtargetedtowardtheproductionofnewknowledge,whichmayim-proverehabilitationmethodologyandservicedeliverysystems,alleviateorstabilizedisablingcondi-tions,orpromotemaximumsocialandeconomicindependenceforpersonswithdisabilities.
Operatedincollaborationwithinstitutionsofhighereducationorprovidersofrehabilitationorotherappropriateservices,RRTCsserveascentersofnationalexcellenceinrehabilitationresearch.
Also,theyarenationalorregionalresourcesforresearchinformationforindividualswithdisabilitiesandtheparents,familymembers,guardians,advocates,orauthorizedrepresentativesoftheindividuals.
Thesecentersalsoconductrelatedtrainingprograms,includinggraduate,pre-serviceandin-servicetraining.
Thecentersalsodisseminateandpromotetheutilizationofresearchfindings.
SmallBusinessInnovationResearchSmallBusinessInnovationResearch(SBIR)grantshelpsupporttheproductionofnewassistiveandreha-bilitationtechnology.
Thistwo-phaseprogramtakesaproductfromdevelopmenttomarketreadiness.
NARICandtheNIDRRProgramDirectoryTheProgramDirectoryiscompiledbytheNationalRehabilitationInformationCenter(NARIC).
NARICfunctionsasaspecializedlibrary,providingthepublicwithinformationonandreferralservicestohelplocatedisabilityandrehabilitationresearchandservices.
Since1977,NARIChasbeentheprimarysourceofrehabilitationanddisabilityinformationgeneratedbyNIDRRfunds,withspecialpriorityservicestoNIDRRstaffandNIDRR-fundedprojectstaff.
Introduction4NARICalsoproducesREHABDATA,anindexofdisabilityandrehabilitationliteratureproducedbyNIDRRgranteesaswellascommercialpublishers.
GranteessubmitcopiesofNIDRR-supportedresearchproductstoNARICandtheyareaddedtothereferencecollectionandREHABDATAdata-base.
Informationaboutholdingsisavailableonlineathttp://www.
naric.
com.
NeitherNARICnorNIDRRassumesliabilityfortheDirectory'scontentsortheusethereof.
NARICdoesnotevaluateorcertifytheprogramsorproductsoftheorganizationslistedintheDirectory.
ThisDirectoryisnotintendedforuseasafiscaldocumenttoshowhowNIDRRfundsareallocated;itspurposeistodisplaytherangeofprogramsthatNIDRRsupports.
ThislistingiscurrentasofNovember15,2008.
Thisdirectorymayincludeprojectsthathavepassedtheindicatedextensiondate.
NARICoperatesunderU.
S.
DepartmentofEducationcontractED-08-CO-0095.
ContentsRehabilitationResearchandTrainingCenters(RRTCs)3DisabilityandRehabilitationResearchProjects.
10FieldInitiatedProjects(FIPs)16EmploymentNIDRR'semploymentresearchfocusesonthelifelongchallengestoandopportunitiespresentedbytransitionsinemploymentexperiencedbypeoplewithdisabilities.
Employmentresearchaddressesmethodstointegratetheuniqueneedsofemployersanddisabilitypopulationstoimproveemploymentoutcomesacrossthelifespan.
NIDRR'sresearchagendaintheareaofemploymentisdesignedtostrengthenthescientificbasisofdisabilityandrehabilitation-relatedresearchandpracticebyincreasingtheavailabilityofvalidatedtheories,measuresandmethodsto:(1)improvemeasurement,datasources,andestimates;and(2)enhanceidentification,evaluation,andpredictionofthefactorsthatfacilitatesuccessfullaborforceparticipationandwork-relatedtransitionsacrossthelifespan.
Thisresearchagendaisalsodesignedtostrengthenthescientificbasisofdisability-relatedemploymentpolicy,practice,andresearchbyprovidingvalidandreliableinformationandanalysesdesignedto:(1)improveunderstandingofemploymenttrends;individuallaborforceparticipation;andschool-to-worktransitions;and(2)enhanceknowledgeofthebroadersocietaldevelopmentsthataffectemploymentopportunitiesandoutcomesacrossthelifespan.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-3RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)MassachusettsRehabilitationResearchandTrainingCenterforVocationalRehabilitationResearchUniversityofMassachusettsBostonInstituteforCommunityInclusion100MorrisseyBoulevardBoston,MA02125john.
halliday@umb.
eduwww.
communityinclusion.
org/project.
phpproject_id=50PrincipalInvestigator:JohnHallidayPublicContact:617/287-4336ProjectNumber:H133B070001StartDate:October01,2007Length:60monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY07$649,999;FY08$649,999Abstract:TheRRTCforVocationalRehabilitationResearchprovidesacomprehensivedescriptionofthevocationalrehabilitation(VR)program,collectsbestpractices,andaddressestheneedforinforma-tionthatwillassistadministrators,researchers,andadvocatestomakedatadrivenpolicyandpracticedecisions.
TheRRTC(1)conductsanexhaustive,systematicresearchliteraturesearchinYear1,modeledaftertheCampbellCollaborationreviews,toprovideacomprehensiveplatformforfutureresearchactivitiesoftheRRTCandforotherresearchersandpolicy-makers;(2)collectsdescriptivedatafromawiderangeofsourcesincludingexistingadministrativedatasetsandofficialdocuments,andlaunchestheRRTCsurveyofstateagenciesforvocationalrehabilitation,mentalretardation/developmentaldisability,mentalhealth,andwelfare,andcommunityrehabilitationprovidersinYears2and3todevelopstate-by-stateprofilesofemploymentservicesandthecontextofVRservicedelivery;(3)interviewsVRdirectorsofall80VRagenciesinYears2and3tocollectdescriptiveinformationaboutkeycharacteristicsrelatedtooperationalandprogrammaticdecisions,policies,andpractices;(4)usestheDelphiMethodinYears3through5toidentify,evaluate,anddescribebestpracticesintheimplementationof(a)OrderofSelectionpoliciesandtheprioritizationofindividualswiththemostsignificantdisabilitiesforVRservices,(b)employmentservicesforindividualswithdevelopmentaldisabilities,and(c)employmentservicesforindividualswithmentalillnesses;(5)institutesatrainingandtechnicalassistanceagendathatusesCommunitiesofPracticemechanismstocreateinteractiveparticipant-drivenopportunitiesfortranslation,informationsharing,andpolicydevelopment;and(6)widelydisseminatesproducts,curricula,andknowledgethroughoutthevocationalrehabilitationsystem,employmentservicessystem,andtoawidearrayofdisabilityandadvocacyorganizations.
TheRRTCdevelopsaknowledgebaseonVRthatinformspolicyandpracticeatthefederal,state,andlocallevels,encouragesdata-baseddecision-making,resultsinthedevelopmentofaresearchbasethatfutureinvestigatorscanuseforanalyzingtheconsequencesandoutcomesofvariationsinStateVRagencies'internalarrangementsandoperations,documentsbestpracticesindetail,identifiestheirkeyfeatures,andinvestigatestheirtransferabilityintoothercontexts.
TheRRTCisapartnershipoftheInstituteforCommunityInclusionattheUniversityofMassachusettsBoston,theCenterfortheStudyandAdvancementofDisabilityPolicy,andInfoUse,awoman-ownedbusiness.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-4RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)MontanaRehabilitationResearchandTrainingCenteronDisabilityinRuralCommunitiesUniversityofMontanaTheUniversityofMontanaRuralInstitute:ACenterforExcellenceinDisabilityResearch,Education,andServices52CorbinHallMissoula,MT59812-7056rural@ruralinstitute.
umt.
edurtc.
ruralinstitute.
umt.
eduPrincipalInvestigator:TomSeekins,PhD406/243-2654PublicContact:DianaSpas888/268-2743(V);406/243-5467(V);406/243-4200(TTY);Fax:406/243-2349ProjectNumber:H133B030501StartDate:December01,2002Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY03$600,000;FY04$600,000;FY05$600,000;FY06$600,000;FY07$600,000;FY08(No-costextensionthrough11/30/2008)Abstract:TheresearchconductedbythisprojectimprovestheemploymentstatusofpeoplewithdisabilitiesintheruralUS,enhancestheirabilitytoliveindependently,andadvancesthescienceofruraldisabilitystudies.
Fourcoreareascomprise11researchprojectsinruralemploymentandeco-nomicdevelopment,ruralhealthanddisability,ruralcommunitytransportationandindependentliving,andruralpolicyfoundations.
Projectsinclude:(1)developscientificmethodstomeasurehowruralenvironmentsinfluenceanindividual'scommunityparticipation;(2)collaboratewithverysmallruralbusinessestoemploypeoplewithdisabilities;(3)improveruraltransportationoptions;and(4)createprogramstopreventorimprovesecondaryconditions.
Otherprojectsexplorewaysfornewpartners,includingfaith-basedorganizations,tobeinvolvedinimprovingruralservices.
Atrainingprogramdisseminatesresearchfindings,trainsstudents,andsparksthecreativeengagementofpolicymakersandsocialadvocates.
TheinnovativeSTATE(Same-TimeAvailabilitytoEveryone)policyrequiresthattheprojectprovidestandardprintpublicationstothegeneralpubliconlywhenatleasttwoalterna-tiveformatsarealsoavailabletoindividualswithdisabilities.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-5RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)MontanaRehabilitationResearchandTrainingCenteronDisabilityinRuralCommunitiesUniversityofMontanaTheUniversityofMontanaRuralInstitute:ACenterforExcellenceinDisabilityResearch,Education,andServices52CorbinHallMissoula,MT59812-7056rural@ruralinstitute.
umt.
edurtc.
ruralinstitute.
umt.
eduPrincipalInvestigator:TomSeekins,PhD406/243-2654PublicContact:DianaSpas888/268-2743(V);406/243-5467(V);406/243-4200(TTY);Fax:406/243-2349ProjectNumber:H133B080023StartDate:October01,2008Length:60monthsNIDRROfficer:JoyceY.
CaldwellNIDRRFunding:FY08$850,000Abstract:TheRTC:RuralatTheUniversityofMontanaconductsresearchthatadvancesthescienceofruraldisabilityandrehabilitation,improvesthehealthofruralAmericanswithdisabilities,andincreasestheiropportunitiesforemploymentandcommunityintegration.
Theresearchprogram:(1)conductsdetailedstatisticalanalysesofstateVocationalRehabilitation(VR)datatoidentifypromising,evidence-basedruralservicepractices;(2)developsandevaluatestelecommunicationsprotocolforprovidingruralVRservices;(3)conductsalongitudinalstudytodeterminewhyruralVRclientsmightexitservicesprematurely,andtoevaluateretentionstrategies;(4)evaluatesruralhealthpromotionstrategiesthatcouldleadtoimprovedemploymentoutcomes;(5)conductsarandomizedcontrolledtrialtoevaluatewaystoimproveruralconsumers'useofhealthcareservices;(6)conductsarandom-izedcontrolledtrialtoevaluateamentalhealthpeersupportmodelforruralindividualswithmobilityorsensoryimpairments;and(7)identifiesstrategiestoimproveruraltransportation.
TheRRTC'sknowledgetranslationprogramdisseminatesresearchfindingsandencouragestheuseofevidence-basedruralpracticesbypolicymakers,advocates,serviceproviders,andpersonswithdisabilities.
TheCenter'swebsiteisacentralcomponentofthisdisseminationprogramandincludesthefirstruraldisability"wiki"tobuildaruraldisabilityknowledgebase.
TheCenteralsoconductsthreefocusedtraininginitiatives:(1)promotingeconomicdevelopmentinruralsouthwestTexas;(2)facilitatinglinkagesbetweenUtahSmallBusinessDevelopmentCentersandVRservices;and(3)implementingtheLivingWellwithaDisabilityhealthpromotionprograminruralSouthCarolina.
Finally,theCenteruseswebtechnologytoconductaninnovativestate-of-the-scienceconferenceonruraldisabilityandrehabilitation.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-6RehabilitationResearchandTrainingCenters(RRTCs)1RehabilitationResearchandTrainingCenters(RRTCs)NewYorkRehabilitationResearchandTrainingCenteronEmploymentPolicyandIndividualswithDisabilitiesCornellUniversityEmploymentandDisabilityInstituteILRSchool201ILRExtensionBuildingIthaca,NY14853-3901smb23@cornell.
eduwww.
ilr.
cornell.
edu/edi/p-eprrtc.
cfmPrincipalInvestigator:SusanneBruyère,PhD;RichardBurkhauser,PhD;DavidStapleton,PhDPublicContact:SusanneBruyère,PhD607/255-9536(V);607/255-2891(TTY);Fax:607/255-2763ProjectNumber:H133B040013StartDate:December01,2004Length:60monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY04$700,000;FY05$700,000;FY06$700,000;FY07$700,000;FY08$700,000Abstract:TheultimategoaloftheEmploymentPolicyRehabilitationResearchandTrainingCenter(EP-RRTC)istoincreasetheemploymentandeconomicself-sufficiencyofpeoplewithdisabilitiesandimprovethequalityoftheirlives.
EP-RRTC'simmediatepurposeistocontributetothesuccessofthetransitionfromcaretakerpoliciestoeconomicself-sufficiencypolicies.
Theimmediatetargetpopulationconsistsofpeoplewhoinfluencedisabilitypolicy:peoplewithdisabilities;federal,state,andlocalpolicymakers,administrators,andregulators;advocates;serviceproviders;researchersandpolicyanalysts;themedia;employers,unions,insurers;andthegeneralpublic.
Theultimatetargetpopulationispeoplewithdisabilities.
Specificgoalsandobjectivesare:completionofnewresearchactivitiesthatwillgenerateknowledgeabouttheeffectsofpastdisabilitypolicyandotherfactorsoneconomicself-sufficiency,theimpactofcurrentandfutureinitiativesdesignedtopromoteeconomicself-sufficiency,and/orthelikelysuccessofnewpolicyoptions;completionof20publishablepapersandcompanionpolicybriefs;trainingofconsumersvia12ormoreWashington-basedDisabilityPolicyForums;trainingof5graduatestudents;participationinthe2008conferenceoftheInteragencySubcommitteeonEmployment;organizationanddeliveryofdisabilitypolicyresearchsessionsattheAssociationofPublicPolicyAnalysisandManagement(APPAM)fallmeetings,andtechnicalassis-tancetoconsumersonpolicyresearchandevaluationmethodsanddata.
Projectactivitiesincludewritingbriefsabouttheevaluationsofpromisingpolicyinnovations,consultingwithawidearrayofconstituentstoobtainfeedbackaboutanarrayofpolicyoptionsthatmeritfurtherconsideration,andcollaboratingwithSSAstafftodevelopstate-levelseriesonemploymentoutcomesforSocialSecurityDisabilityInsuranceandSupplementalSecurityIncomebeneficiaries.
Disseminationactivitiesinclude:organizationandparticipationinfivedisabilitypolicyresearchsessionsatthe2007fallconferenceoftheAPPAMandareceptionfordisabilityresearchers;presentationsinthe2008InteragencySubcom-mitteeonEmploymentconferenceoninteragencyemploymentresearch;anaccessiblewebsiteforthedisseminationofouroutputs(e.
g.
,policybriefs,reports,andmaterials);presentationsanddissemina-tionofoutputsatconferences;andpublicationoftheresearchpapersinpeer-reviewedjournals.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-7RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)NewYorkRehabilitationResearchandTrainingCenteronEmploymentServiceSystemsHunterCollegeofCUNYResearchFoundationofCUNY695ParkAvenueNewYork,NY10021joneill@hunter.
cuny.
eduwww.
essrtc.
orgPrincipalInvestigator:JohnO'Neill,PhDPublicContact:212/772-5188;Fax:212/650-3198ProjectNumber:H133B040014StartDate:October01,2004Length:60monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY04$699,981;FY05$699,973;FY06$699,990;FY07$849,982;FY08$699,975Abstract:ThisEmploymentServiceSystemsResearchandTrainingCenterdevelops,enhances,andutilizespartnershipstoimprovethequalityofemploymentservices,opportunities,andoutcomesforpeoplewithdisabilities.
Fiveresearchprojectshavebeendesignedtomeetthisgoalandexaminepartnershipsacrosspublicagencies,betweennot-for-profitandpublicagencies,andbetweenrehabili-tationagenciesandbusinesses.
TheConsortiaforEmploymentSuccess(CES)createsandevaluatesfullyintegrateddisabilityserviceprovidernetworksinthreelocalcommunities.
TheCESincreasesaccessforpeoplewithdisabilitiestobotheffective,comprehensiveplacementservices,andawell-managedandcentralizedemployernetworkthatwillincreaseemploymentandcareeradvancementopportunitiesforpersonswithdisabilities.
TheWorkplaceSocializationModel(WPS)supplementstheCESModelbyfocusingonjobenhancementandretention.
TheWPSaimstoextendthejobtenureofemployeeswithdisabilitiesandotherpositiveworkoutcomesincludingtheemployee'sjobsatisfac-tion,organizationalcommitment,andlevelofworkculturecompetency,aswellastheemployer'ssatisfactionwiththeemployee'sjobperformance.
Identificationof"GoodPractices"withinVocationalRehabilitation(VR)isdesignedtoidentifyavarietyofgoodpracticescurrentlybeingusedintheState-FederalVRsystemacrosstheUSthatfacilitateconsumeraccesstoservicesandenhanceemploymentoutcomes.
DesigningandTestingComprehensiveEmploymentPracticeandPolicyInitiativeswithinaVocationalRehabilitationStateAgencydevelopsandtestsamodelthatleadstoenhancedemploymentoutcomes.
Themodelincludesthe"humancapital"characteristicsofpersonswithdisabilitiesaswellaswhatVRdeliverysystemsaddtothesehumancapitalfactorstoimproveoutcomes.
AstudyofcollaborationbetweenWorkforceInvestmentAct(WIA)partnersinOne-Stopscollectsdatawithin16Iowaregionsandcorrelatesdifferentlevelsofcollaborationwithcustomersatisfactionandemploy-mentoutcomes.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-8RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)OhioRehabilitationResearchandTrainingCenteronSubstanceAbuse,Disability,andEmploymentWrightStateUniversitySchoolofMedicineSubstanceAbuseResourcesandDisabilityIssues(SARDI)3171ResearchBoulevard,Room255Kettering,OH45420mary.
mcaweeney@wright.
eduwww.
med.
wright.
edu/citar/sardi/rrtc_about.
htmlPrincipalInvestigator:DennisC.
Moore,EdDPublicContact:MaryMcAweeney937/775-1484(V/TTY);Fax:937/775-1495ProjectNumber:H133B040012StartDate:December01,2004Length:60monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY04$699,998;FY05$699,983;FY06$699,981;FY07$699,984;FY08$699,989Abstract:ThisRRTCbuildsonpreviousfindingstopositivelyimpactpersonswithdisabilitieswhoalsoexperiencesubstanceusedisorders,aswellastheserviceprovidersuponwhomtheydepend.
Thehighlyintegratedprogramofresearchaddressesthefollowinggoalsandobjectives:(1)Promotewidespreaduseofsubstanceusedisorderscreeningamongpersonswithdisabilitieswhoutilizedisabil-ity-relatedemploymentservices.
Thisisaccomplishedbydevelopingandvalidatinganewsubstanceabusescreenercalledthe"SASSI-VR".
Followingtwostagesofdevelopmentandvalidation,theSASSI-VRisevaluatedinthreevocationalrehabilitation(VR)programsonastatewidebasis.
(2)Conductarandomizedclinicaltrialofamodelofsupportedemployment,IndividualizedPlacementandSupport(IPS),totestitsefficacyamongpersonswithtraumaticbraininjuryorotherseveredis-abilitiesthatalsohaveasubstanceusedisorder.
ThetwotrialsitesareaffiliatedwithrehabilitationprogramsintheWrightStateandOhioStatemedicalschools.
UtilizationoftheIPSmodelwiththestudypopulationsholdstremendouspotentialforimpactingservicesdeliveryforconsumerswhoexperienceverylowratesofemployment.
(3)ResearchpolicyandpracticesrelativetotheirimpactonVRservicesforpersonswithadisabilityandcoexistingsubstanceabuse.
Servingasacriticalcomple-menttothefirstproject,therolesofpolicies,statutes,guidelines,andVRservicedeliverypracticeswillbeinvestigatedwithinthelargercommunityofpublicagencies.
(4)Investigatefactorsthatspecifi-callycontributetounsuccessfulcaseclosureamongconsumersofVRservices.
ThiscomponentstudiesrecentunsuccessfulclosuresandtheirVRcounselors,andthestudyhasparticularsensitivitytotheroleof"hidden"substanceabuseamongunsuccessfulclosures.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-9RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)VirginiaRehabilitationResearchandTrainingCenteronWorkplaceSupportsandJobRetentionVirginiaCommonwealthUniversity1314WestMainStreet,Box842011Richmond,VA23284-2011vbrooke@vcu.
eduwww.
worksupport.
comPrincipalInvestigator:PaulWehman,PhDPublicContact:ValerieBrooke,DirectorofTraining804/828-1851(V);804/828-2494(TTY);Fax:804/828-2193ProjectNumber:H133B040011StartDate:November01,2004Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY04$699,981;FY05$699,973;FY06$699,990;FY07$699,988;FY08$699,999Abstract:ThepurposeoftheRRTConWorkplaceSupportsandJobRetentionistostudythosesupportswhicharemosteffectiveintheworkplaceforassistingpersonswithdisabilitiestomaintainemploymentandadvancetheircareers.
Researchincludestwolong-termprospectiverandomizedexperimentalcontrolresearchprojects:(1)determiningtheefficacyofpublic/privatepartnerships,and(2)determiningtheefficacyofbusinessmentoringandcareerbasedinterventionswithcollegestudentswithdisabilities.
TheRRTCispartneredwithManpower,Inc.
,severalcommunityrehabilitationprograms,andtheVCUBusinessRoundtable.
Additionalprojectslookatdisabilitymanagementpractices,extendedemploymentsupports,jobdiscriminationinemploymentretention,benefitsplan-ningandassistance,andworkplacesupports.
ThesestudiesaredoneinconjunctionwithEqualEm-ploymentOpportunityCommission,theSocietyofHumanResourceProfessionals,andtheU.
S.
ChamberofCommerce.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-10DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsArkansasImprovetheEmploymentOutcomesfortheLowFunctioningDeaf(LFD)PopulationUniversityofArkansasCollegeofEducationandHealthProfessions26CorporateHillDriveLittleRock,AR72205dwatson@uark.
eduPrincipalInvestigator:DouglasWatson,PhDPublicContact:501/686-9691;Fax:501/686-9698ProjectNumber:H133A060044StartDate:January01,2007Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$450,000;FY07$450,000;FY08$450,000Abstract:Thisprojectconductsaprogramoftheory-drivenresearchtoimproveemploymentout-comesfortheLowFunctioningDeaf(LFD)population.
Thegoalsoftheprojectareto:(1)developanationalprofileofthestateoftheknowledgeforservicestopersonswhoareLFD;(2)developconsen-susonfunctionaldefinitionsofthetargetpopulationusingaconceptmappingapproachwithknowl-edgeableproviderswhoservethepopulation;(3)developandvalidateapsychometricallysoundtooltoassessthefunctionalcharacteristicsofpersonsidentifiedasLFDandtobeusedbypartnerstatestodevelopadescriptiveprofileofthepopulation;(4)replicateasystemslevelanalysisofservicedeliveryoptionsavailabletothetargetpopulationwithkeystatepartners;(5)assessbarriersexhibitedbyLFDandpre-employmentskillsneededtoentertheworkforce;and(6)focusonbestpracticesinjobcoach-ingtoenhanceworkplaceintegrationandjobtenure.
Thesuccessoftheresearchanddisseminationeffortsisinsuredbyinclusionoffivestaterehabilitationpartnersincludingproviders,policymakers,andadministratorsfromvocationalrehabilitation,communityserviceagencies,andschoolandcommu-nity-basedtransitionprograms.
Theprojectmakesuseoflong-establishednetworksandcollaborationwithkeyfederally-fundedpartnerstofacilitatedisseminationofresearch-basedknowledgetothefield,leadingtoimprovementsinservicesforpersonswhoareLFD.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-11DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsMississippiVocationalRehabilitation:TransitionServicesthatLeadtoCompetitiveEmploymentOutcomesforTransition-AgeIndividualswithBlindnessorOtherVisualImpairmentsMississippiStateUniversityP.
O.
Box6189MississippiState,MS39762lgoleman@colled.
msstate.
eduwww.
blind.
msstate.
eduPrincipalInvestigator:BrendaCavenaugh662/325-3728PublicContact:LyndaGoleman662/325-2001(V);662/325-8693(TTY);Fax:662/325-8989ProjectNumber:H133A070001StartDate:October01,2007Length:36monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY07$450,000;FY08$450,000Abstract:Thisprojectconductsscientificallybasedresearchontransitionservicesthatleadtocom-petitiveemploymentoutcomesfortransition-ageindividualswithblindnessorothervisualimpair-ments.
Theprojectincludesfourmajorresearchprojectsandaplanofdissemination.
Project1in-volvesconductinganintegrative(systematic)literaturereviewtoidentifyandsynthesizeresearchonservicesleadingtosuccessfulemploymentandotherpostsecondaryoutcomesforblindyouth.
Thereviewprocessisconsideredempiricalresearchandisapproachedwiththescientificrigorusedwhenconductingprimaryresearch.
Project2includesanalysisoffivenational,cross-sectional,andlongitudi-naldatasourcestoexplorerelationshipsbetweenpotentialcausesorinfluencingfactorsandpositivetransitionoutcomesofyouthwhoareblindorvisuallyimpaired.
Specializedapproachesusedinanalysisofthelongitudinaldatasourcesallowopportunityforcausalinferences.
Project3usesqualita-tiveandquantitativemethodsinthecollectionofdatafromavarietyofsources(focusgroupswithrehabilitationprofessionals,teachers,post-secondarysupportserviceproviders,SSArepresentatives,andothers;interviewswithconsumers;VRcaserecords).
Theresearchidentifiesfactorsthatimpacttheemploymentstatusoftransition-ageyouth.
Project4involvesusingknowledgegainedfromProjects1,2,and3toidentifyanddevelop,demonstrate,andevaluatetheeffectivenessoftwointer-ventions—onetargetingyouthwhoarepreparingtotransitionfromhighschooltoemploymentorcollegeandtheothertargetingyouthwhoarepreparingtotransitionfromcollegetoemployment.
Inimplementingtheplanofdissemination,avarietyofmethodshelpensurethatthequality,clarity,andaccessibilityofproductsareappropriateforthetargetpopulation.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-12DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewYorkI.
T.
WorksSyracuseUniversity900SouthCrouseAvenueCrouse-HindsHall,Suite300Syracuse,NY13224-2130pblanck@syr.
edudisability.
law.
uiowa.
eduPrincipalInvestigator:PeterD.
Blanck,PhD,JD319/335-9043PublicContact:MichaelMorris,JD;JamesSchmeling,JD315/443-9703(Blanck);202/521-2930(Morris);319/335-8459(Schmeling)ProjectNumber:H133A050031StartDate:December31,2005Length:12monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY05$299,901;FY06(No-costextensionthrough12/31/2007);FY07(No-costextensionthrough12/31/2008)Abstract:ThegoaloftheI.
T.
Worksprojectistoidentifybarrierstoandfacilitatorsofthehiring,retention,advancement,andwagesofindividualswithdisabilities.
Researchshowsthatthepercentageofworking-ageindividualswithdisabilitiesinfull-orpart-timepositionsissubstantiallylowerthanthepercentageofworking-agepeoplewithoutadisability,andthereisademandfortrainedITworkers.
IncreasingtheemploymentofindividualswithdisabilitiesinIT-relatedjobswouldincreasetheem-ploymentofindividualswithdisabilitiesoverallandreducetheshortagefortrainedITworkers.
Re-searchactivitiesforthisprojectincludeatheoreticalmodelinwhichpredictivemeasuresincludeenvironmentalfactors,organizationalfactors,attitudinalfactors,andindividualcharacteristics.
Out-comemeasuresinthemodelincludehiringrate,advancementrate,retentionrate,andwagesofindi-vidualswithdisabilities.
Trainingactivitiesallowforthedistributionoftheresearchfindingstodiversetargetaudiences,includingemployers,ITtrainersandprofessionals,personswithdisabilitiesindiverseemploymentsettings,otherresearchers,andrelevantpolicy-makers.
TargetaudiencesalsoincludeITemployers,ITtrainingcertificationbodies,humanresourcemanagers,communitycollegesanduniver-sitycontinuingeducationprograms,andCentersforIndependentLivingandotherdisability-relatedorganizations.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-13DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewYorkDemand-SideEmploymentPlacementModelsSyracuseUniversityBurtonBlattInstitute900SouthCrouseAvenueCrouse-HindsHall,Suite300Syracuse,NY13244wmyhill@syr.
edubbi-empdemand.
syr.
edu/PrincipalInvestigator:PeterD.
Blanck,PhD,JD315/443-9703PublicContact:WiliamN.
Myhill,MEd,JD315/443-1367;Fax:315/443-9725ProjectNumber:H133A060033StartDate:July01,2006Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY06$500,000;FY07$500,000;FY08$500,000Abstract:Americanswithdisabilitieshavesignificantlylowerlevelsofemploymentthantheirpeerswithoutdisabilities.
Priorstudyofemploymentratesamongpeoplewithdisabilitiesgenerallyhasreliedona"supply-side"approach,analyzinghowpersonalcharacteristicspredictemploymentandearnings.
Thesemodelshavenotsufficientlyanalyzedvariablesrelatedtoemployerdemand(andtheinteractionofemployerdemand/supplyandtheenvironment)aspredictorsofemploymentoutcomesforpeoplewithdisabilities.
Thus,thereisaneedtosystematicallyunderstanddemandcharacteristicsforqualifiedworkerswithdisabilities,particularlyasworkrequirementschangeovertime.
Thisprojectsetsoutscientificallyrigorousandevidence-basedmethodstodevelop,identify,andevaluateemploymentdemand-sidemodels.
Ittranslatesthefindingsintovalidandpracticaltoolsforlargeandsmallbusi-nessesindifferentmarketsectorstoimproveemploymentoutcomes.
Itevaluatestherelativeefficacyofthesetoolsalongsidesupply-sideresearchoutcomes.
Theprojectisanationwidecollaborationofeconomists,statisticians,andleadingexpertsinlaw,publicanddisabilitypolicy,corporateculture,appliedlifestudies,technology,andeducation,asappliedtodisabilityemploymentpolicyandlaw.
Projectleadershipincludesdisabilityscholarsfromuniversitiesaroundthecountry,withcombineddecadesofresearch,training,andknowledgedisseminationexperience.
Theprojectbuildsfreshpartnershipsamongdisabilitypolicyandlawexperts,thebusinesscommunity,researchers,andna-tionaldisabilityorganizationssuchastheNationalOrganizationonDisabilityandtheNationalCouncilonIndependentLiving.
Theprojectgeneratesnewknowledgetobetterunderstandmarket-drivenworkforcetrendsinlargeandsmallfirmsanddifferentmarketsectors,andtoinformemploymentpracticestoprepareindividualswithdisabilitiesforthepresentandfutureworkforce.
Theprojecthasasystematicplanandlogicmodelforknowledgetranslationanddisseminationaimedatprovidingemployersbestpracticeandpracticaltoolstoimproveemploymentoutcomesofpeoplewithdisabili-ties.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-14DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsTexasSEDL'sVocationalRehabilitationServiceModelsforIndividualswithAutismSpectrumDisordersSEDL4700MuellerBoulevardAustin,TX78723john.
westbrook@sedl.
orgwww.
sedl.
orgPrincipalInvestigator:JohnWestbrook,PhDPublicContact:512/476-6861;Fax:512/476-2286ProjectNumber:H133A080007StartDate:October01,2008Length:60monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY08$350,000Abstract:Forthisproject,SEDLpartnerswiththeCenterforAutismandRelatedDisabilitiesattheUniversityofCentralFlorida(UCFCARD)tocreateaknowledgetranslationinitiativetoaddressthegrowingneedforimprovementinvocationalrehabilitation(VR)andtransitionservicesforpersonswithautismspectrumdisorders(ASDs).
SEDLandUCFCARDconductamultifacetedsetofre-searchactivitiestoidentifyanddocumentVRandtransitionalbehaviormanagementpracticesthatarelinkedtoemploymentsuccessesforpeoplewithASDs,toidentifyfactorsthatarestronglypredictiveofsuchsuccess,tostudytheactivitiesandimpactofastatewideVRserviceprovidernetwork,andtodocumentexamplesofsuccessamongindividualswithASDsinlong-termemploymentplacements.
Researchactivitiesincludeconductingtwomajorsystematicreviews,implementationofarigorousprocessforidentifyingandvalidatingVRbestpractices,astudyoftheuniversity-basedstatewidenetworkofCARDcentersinFlorida,andcasestudiesofindividualswithASDsandtheirfamilies.
Additionally,thisprojectdevelopsanddisseminatesanarrayofinformationproductstoinformbothpolicyandpractice,andtosupportimplementationofbestpracticesinVRsettingsthroughouttheUSwithexistingnationalVR,serviceprovider,advocacy,andresearchnetworks.
ThisprojectisguidedbyanationaladvisorypanelcomprisedofrepresentativesfromNIDRR-fundedresearchinitiativesaddressingASDs,VRprofessionals,ASDsserviceproviders,andpeoplewithASDsand/ortheirfamilymembers.
Theprojectoutcomesincludenewknowledgeandunderstanding,andallowforon-the-groundchangeswithintheVRsystem,increasingemploymentamongpersonswithASDs.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-15DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsVirginiaVocationalRehabilitationServiceModelsforIndividualswithAutismSpectrumDisorders(VCUASCCareerLinks)VirginiaCommonwealthUniversityVCUASDCareerLinksP.
O.
Box842011Richmond,VA23298www.
worksupport.
comPrincipalInvestigator:PaulWehman,PhDPublicContact:804/828-1852(V);804/828-2494(TTY);Fax:804/828-2521ProjectNumber:H133A080027StartDate:October01,2008Length:60monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY08$350,000Abstract:VCUASDCareerLinksconductsevidence-basedresearchonvocationalrehabilitation(VR)servicemodelsforindividualswithautismspectrumdisorders(ASDs).
TheprojectisbasedatVirginiaCommonwealthUniversity(VCU)andisacollaborativeinitiativebetweenVCUandtheVirginiaDepartmentofRehabilitativeServices(DRS).
Thescopeofresearchcoversfourareas:(1)theimpactofintensive,community-basedworkexperiencesontheemploymentoutcomesofyouthwithASDs;(2)thepostsecondaryschoolparticipationandultimateemploymentofcollegestudentswithASDs;(3)theimpactofpersonaldigitalassistants(PDAs)ontheemploymentoutcomesofindividualswithASDs;and(4)alongitudinalanalysisofVRservicedeliveryandemploymentoutcomesamongDRSclientswithASDs.
WhiletheprimarytargetpopulationispersonswithASDs,thereisanempha-sisonyouthandyoungadultswhoareunemployed,under-employed,orunder-servedinpostsecondaryeducation.
Additionally,thisprojecttargetspersonsfromtraditionallyunder-representedpopulationswithdiverseracialandethnicbackgrounds.
ThisprojectworkscollaborativelywithfourlocalschooldistrictsintheRichmondareaandtheFaisonSchoolforAutismtoenrollyouthwithASDsintotheproject.
TheprojectalsoworkswithcollegesanduniversitiesthroughouttheCommon-wealthofVirginia.
Disseminationactivitiesincludewebcasts,factsheets,evidence-basedjournalarticles,andatoolkitonhowtoenhanceVRemploymentmodelsforyouthwithASDs.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-16FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NewHampshireCognitiveTrainingandSupportedEmploymentinSevereMentalIllnessDartmouthCollegePRC,105PleasantStreetConcord,NH03301-3852susan.
r.
mcgurk@dartmouth.
eduPrincipalInvestigator:SusanMcGurk,PhDPublicContact:603/271-5747;Fax:603/271-5265ProjectNumber:H133G050230StartDate:December01,2005Length:36monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY05$149,736;FY06$149,749;FY07$149,106;FY08(No-costextensionthrough11/30/2009)Abstract:Impairedcognitivefunctioningisanimportantpredictorofemploymentoutcomesinper-sonswithseverementalillness(SMI),andacommoncomplaintinconsumersparticipatinginvoca-tionalrehabilitation,includingthoseinsupportedemployment.
Thisprojectevaluatesanew,pilottestedandstandardizedintervention,the"ThinkingSkillsforWork",aprogramdesignedtohelppeoplewithSMIsucceedinsupportedemploymentprograms,includingbothgettingandkeepingjobs.
TheThinkingSkillsforWorkprogramisaimedatimprovingthecognitivefunctioningofpersonswithSMIinvolvedinsupportedemployment,andisbasedonaheuristicmodeloftheinteractionsbetweencognition,symptoms,workperformance,andvocationalservices.
Accordingtothemodel,enhancedcognitivefunctionsimprovebothworkoutcomesandtheefficiencyofvocationalservices(i.
e.
,fewersupportservicesneededperhourofconsumerwork).
TheThinkingSkillsforWorkprogramisdeliv-eredbyaspecialistwhoeducatesconsumersaboutcognitivefunctioningandwork,involvestheminathree-monthprogramofcomputerizedcognitiveskillstraining,andworksincollaborationwiththeconsumerandsupportedemploymentspecialisttoidentifyappropriatejobs,practicenewlyacquiredcognitiveskillsinwork-relatedsettings,anddevelopcompensatorystrategiesformanagingpersistentcognitiveimpairments.
NIDRRProgramDirectoryFY2008-EmploymentOutcomes1-17FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NewHampshireFifteen-yearCourseofCompetitiveEmploymentforPeoplewithSevereMentalIllnessDartmouthMedicalSchoolDepartmentofPsychiatry2WhipplePlace,Suite202Lebanon,NH03766PrincipalInvestigator:RobertE.
DrakeMD,PhDPublicContact:603/448-0263;Fax:603/448-3976ProjectNumber:H133G050181StartDate:October01,2005Length:36monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY05$149,796;FY06$149,832;FY07$149,431;FY08(No-costextensionthrough9/30/2009)Abstract:Littleisknownaboutlong-termemploymentamongpeoplewithsevereandpersistentpsychiatricillnesses,suchasschizophreniaorbipolardisorder,andvocationaldisabilities.
Twosmallpilotstudiessuggestthatalargeproportionoftheseindividuals,whenexposedtoeffectivevocationalrehabilitation(VR)andsupportedemploymentservices,doattainlong-termjobsthatareassociatedwithgreaterindependence,economicself-sufficiency,andrecovery,butaprospective,longitudinalstudyiscriticall¨yneededtoconfirmandamplifythesefindings.
Toaddressthisissue,thisstudy:(1)examinesthelongitudinalcourseofcompetitiveemployment(anycompetitivejob)andlong-termjobs(competitiveemploymentlastinggreaterthanoneyear)amongpeoplewithseverementalillnesses;(2)detailstheimpactofVRservices,supportedemployment,andotherservicesonlong-termemploy-ment;and(3)examinesthecorrelatesoflong-termemployment,includingindependence,economicself-sufficiency,qualityoflife,andotheraspectsofrecovery.
Thekeyobjectivesaretobuildatimelineofwork,earnedandotherincome,benefits,independentliving,socialfunctioning,symptomcontrol,andqualityoflifeover15yearsforeachindividualonthebasisofmultipledatasources;tolinkVRandotherservicerecordswithemploymentoutcomesbystatisticalmeansandbyself-report;andtolinkemploymentoutcomeswithothermanifestationsofrecovery,againbystatisticalmeansandbyself-report.
Theprojectusestimelinemethods,longitudinaldatamethods,andnarrativeself-reportstoconducttheseanalyses.
Theoutcomesofthestudyaretoshowthatindividualswiththemostseverepsychiatricdisabilitiesareabletoattainhighratesofcompetitiveemploymentandlong-termemploy-ment,thatVRandotherservicesarecriticaltosuccessfullong-termemployment,andthatlong-termemploymentisassociatedwithindependence,economicimprovements,qualityoflife,andrecovery.
HealthandFunctionMaximizinghealthandfunctionamongpeoplewithdisabilitiesiscriticaltotheachievementofNIDRR'smissionandtheassociatedhigher-ordergoalsofemploymentandcommunityparticipation.
Functionalabilityreflectsthecomplexinteractionbetweenindividualsandtheenvironmentsinwhichtheylive.
Accordingly,NIDRRconceptualizesandexaminesissuesofhealthandfunctionattheindividualandsystemslevels.
Individuallevelresearchfocusesonthedevelopmentandtestingofnewinterventionsthatimprovefunctionalandhealthoutcomesforindividuals.
Atthesystemslevel,NIDRR-supportedresearchfocusesontheorganization,anddeliveryofhealthcareandmedicalrehabilitationservices.
ContentsRehabilitationResearchandTrainingCenters(RRTCs)3DisabilityandRehabilitationResearchProjects15ModelSpinalCordInjurySystems50FieldInitiatedProjects(FIPs)64NIDRRProgramDirectoryFY2008-HealthandFunction2-3RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)CaliforniaRehabilitationResearchandTrainingCenterinNeuromuscularDiseases(RRTC/NMD)UniversityofCalifornia,DavisDepartmentofPhysicalMedicineandRehabilitation(TB191)SchoolofMedicineOneShieldsAvenueDavis,CA95616nmdinfo@ucdavis.
eduwww.
nmdinfo.
netPrincipalInvestigator:CraigMcDonald,MDPublicContact:SandyWalsh,CoordinatorofInformationServices530/752-3447;Fax:800/508-9656ProjectNumber:H133B031118StartDate:December01,2003Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY03$800,000;FY04$800,000;FY05$800,000;FY06$800,000;FY07$800,000;FY08(No-costextensionthrough11/30/2009)Abstract:ThepurposeoftheRehabilitationResearchandTrainingCenterinNeuromuscularDiseases(RRTC/NMD)istoenhancethehealth,function,andqualityoflivesofpersonswithneuromusculardiseases(NMD).
Thegoalsofthisprojectareto:(1)developaprogramformulticenterrehabilitationresearchinNMDthroughtheCooperativeInternationalNeuromuscularResearchGroup(CINRG);(2)conductresearchthatcontinuestoaddressrehabilitationneeds,particularlyrelatedtoexercise,nutrition,pain,secondaryconditions,andthequalityoflifeofindividualswithneuromusculardis-eases;(3)developandevaluateneworemergingtechnologiesandinterventionsthatprovidetheinformationneededtoimproveemployment,communityintegration,andqualityoflifeoutcomesforthispopulationofindividualswithdisabilities;(4)developandevaluateappropriatehealthpromotionandwellnessprogramsthatenhancetheabilityofindividualswithneuromusculardiseasetobephysi-callyactiveandparticipateinrecreationalactivities;and(5)conductacomprehensiveprogramoftraining,dissemination,utilization,andtechnicalassistanceactivitiesthatarewell-anchoredintheresearchprogramandaddresstheneedsofstakeholders.
NIDRRProgramDirectoryFY2008-HealthandFunction2-4RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)CaliforniaRehabilitationResearchandTrainingCenteronAging-RelatedChangesinImpairmentforPersonsLivingwithPhysicalDisabilitiesLosAmigosResearch&EducationInstitute,Inc.
7601EastImperialHighway800WestAnnexDowney,CA90242lcarrothers@agingwithdisability.
orgwww.
agingwithdisability.
orgPrincipalInvestigator:BryanJ.
Kemp,PhDPublicContact:LeeAnnCarrothers,PT,PhD,TrainingDirector562/401-7402;Fax:562/401-7011ProjectNumber:H133B031002StartDate:August01,2003Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY03$700,000;FY04$700,000;FY05$700,000;FY06$700,000;FY07$700,000;FY08(No-costextensionthrough7/31/2009)Abstract:ThisprojectisacombinedeffortofRanchoLosAmigosNationalRehabilitationCenterandtheUniversityofCaliforniaatIrvine,withothercollaboratorsincludingtheCenterforDisabilityintheHealthProfessionsatWesternUniversityandtwoRehabilitationEngineeringResearchCenters.
Thisprojectevolvesfromthefactthatpersonswhohaveadisabilityarenowlivingintomiddleageandlatelifeinever-increasingnumbers.
However,manyofthesepeopleappeartobeexperiencingprematureage-relatedchangesinhealthandfunctioning.
Theprojecttestsamodelforimprovedunderstandingoftheseproblemsandinterventionstohelpalleviatethem.
Personswhoareexperiencingthesekindsofproblemsandtheirfamiliesareincludedinallcenterprojects.
Thetraining,dissemination,andtechni-calassistanceactivitiesincludeclinicaltrainingofcurrentandfuturehealthproviders,currentandfutureresearchers,personswithdisabilities,theirfamilies,andpolicymakers.
Bothtraditionalmethodsofone-on-oneandgrouptrainingaswellastechnology-baseddistancetrainingtechniquesareusedtoreachnationalaudiencesandunder-servedpopulations.
NIDRRProgramDirectoryFY2008-HealthandFunction2-5RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)DistrictofColumbiaRehabilitationResearchandTrainingCenteronSpinalCordInjury:PromotingHealthandPreventingComplicationsthroughExerciseNationalRehabilitationHospital/MedStarResearchInstituteCenterforHealthandDisabilityResearch102IrvingStreet,NWWashington,DC20010matthew.
e.
kehn@medstar.
netwww.
sci-health.
orgPrincipalInvestigator:SuzanneL.
Groah,MD202/877-1196PublicContact:MatthewE.
Kehn,ProjectCoordinator202/877-1603;Fax:202/726-7521ProjectNumber:H133B031114StartDate:December01,2003Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY03$800,000;FY04$800,000;FY05$800,000;FY06$800,000;FY07$800,000;FY08(No-costextensionthrough11/30/2009)Abstract:Thisprojectsystematicallyandcomprehensivelyaddressestheroleandimpactofphysicalactivityinthepreventionofsecondaryconditionsinpeoplewithspinalcordinjury(SCI).
Initially,theprojectestablishescritical,yet-undefinedphysiologicalresponsestoexerciseinSCIandcomprehen-sivelyexaminescardiovasculardiseaseriskinindividualswithSCIapplyingacceptedguidelinesusedintheable-bodiedpopulation.
TheprojectdevelopsexerciseformatsspecificallydesignedaccordingtoseverityofSCIandchronicityofSCItoaddressthepreventionofandknowledgeregardingos-teoporosisandothersecondaryconditions.
Inaddition,theprojectdetermineswhetherregularexerciseisrelatedtofewersecondaryconditions.
TheseresearchfindingsfeedintofourtrainingactivitiesthatincludeapeermentoringprogramfornewlyinjuredpeoplewithSCI,aconsumer-driveneducationcurriculumforphysicaltherapyandmedicalstudents,astate-of-scienceandtrainingconference,andthedevelopmentofavirtualresourcenetworkonexerciseandprevention.
TheRRTCisacollabora-tiveeffortofclinicalanddisabilityresearchers,SCIconsumerorganizations,andindependentlivingadvocates.
Inadditiontoitsofferingsonwww.
sci-health.
org,theRRTCmaintainsaLiveJournalsiteatrrtc-sci.
livejournal.
com.
InadditiontootherwebcastaccessiblethroughtheMultimediapagesonthesci-health.
orgwebsite,theentireFall2006StateoftheScienceConferenceisavailableondemandatwww.
sci-health.
org/SOS/SOS.
php.
NIDRRProgramDirectoryFY2008-HealthandFunction2-6RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)IllinoisRehabilitationResearchandTrainingCenteronTechnologyPromotingIntegrationforStrokeSurvivors:OvercomingSocialBarriersRehabilitationInstituteResearchCorporation345EastSuperiorStreetChicago,IL60611ejr@northwestern.
eduwww.
rrtc-stroke.
org/PrincipalInvestigator:ElliotJ.
Roth,MD312/238-4637PublicContact:LindaLovell,ProjectCoordinator312/238-6197;Fax:312/238-6998ProjectNumber:H133B031127StartDate:October01,2003Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY03$800,000;FY04$800,000;FY05$800,000;FY06$800,000;FY07$800,000;FY08(No-costextensionthrough9/30/2009)Abstract:Thisprojectdevelopsandevaluatesasequenceofrobotictrainingandassistivedevicesthataredesignedwiththeideaofpromotingefficientfunctionintheworkplaceorathome,andwiththefurtherintentthattheyformabasisforthedevelopmentofappropriatetechnologiestoallowpeoplewithdisabilitiesreadyaccesstoexistingfacilitiesinthecommunity.
Ateachstage,theprojectengagesengineeringstudentsasameanstoprovideintensiveeffortfordevelopmentofnoveldesigns,butalsotoprovidevaluableopportunitiesfortrainingstudentsinthethemesrelatedtorecoveryoffunctionandcommunityintegrationofpeoplewithdisabilities.
Otherprojectsatthiscenterinclude:theuseofemotionallyexpressiveandnarrativewritingtofacilitatecopingandadaptationafterstroke;computer-izedtrainingforconversationalscriptsthatfacilitateaccesstothecommunityandworkforce;andaconsumer-directed,dynamicassessmentmethodologyforevaluatingcommunitylivingandworkparticipationenvironmentsandtechnologiesforusebypeoplewhohavehadastroke.
Inadditiontotheseprojects,theRRTCdevelopsandevaluatesacomprehensiveplanfortrainingdirectedtostrokesurvivorsandtheirfamilies,students,researchers,clinicians,andserviceproviders.
Theseapproachesareimplementedthroughavarietyofmechanisms,includingcontinuingeducationcourses,web-basedpresentations,andintensivetraininginourresearchfacilities.
NIDRRProgramDirectoryFY2008-HealthandFunction2-7RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)IllinoisRehabilitationResearchandTrainingCenteronEnhancingtheFunctionalandEmploymentOutcomesofIndividualsWhoExperienceaStrokeRehabilitationInstituteResearchCorporation345EastSuperiorStreetChicago,IL60611ejr@northwestern.
eduwww.
rrtc-stroke.
org/PrincipalInvestigator:ElliotJ.
Roth,MD312/238-4637PublicContact:LindaLovell,ProjectCoordinator312/238-6197;Fax:312/238-6998ProjectNumber:H133B080031StartDate:October01,2008Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY08$849,813;FY09$849,514Abstract:Asnewandbetterstroketreatmentshavebecomeavailable,thenumberofstrokesurvivorslivinginthecommunityhasincreased.
Therefore,notonlyisthereaneedforfurtherresearchonpromisingnewinterventionsthatpromotehealthandfunction,butalsoagrowingneedforinterven-tionsthatcanbedeliveredinhomeandcommunitysettings.
Thisprojectstudiesrehabilitationinterven-tionsandassessmentsfocusedonimprovedmobilityandsecondaryconditionsthathavebeendesignedwiththeintentofpromotingefficientfunctionintheworkplaceorathome.
Italsolooksatthebarriersandfacilitatorsforreturn-to-workfromtheperspectiveofstrokesurvivorswhoareseekingemploy-ment.
TheRRTCresearchprojectsinclude:(1)astudyoftheeffectivenessofstretchingashandtherapyforsub-acutehemiparesis;(2)developmentofalow-cost,non-mechanizedgaitretrainingdevice;(3)testingaself-managementapproachtocommunityliving,participation,andemployment;(4)examiningthebarriersandenablersforreturn-to-workfromtheperspectiveoftheoftheindividualwhoexperiencedthestroke;and(5)developmentofareturn-to-workvocationalassessmentusingvirtualrealitytechnology.
Forthisproject,theRehabilitationInstituteofChicagohaspartneredwithNorthwesternUniversity,theUniversityofIllinoisatChicago,WashingtonUniversityatSt.
Louis,MarquetteUniversity,andArcheworks,Inc,aswellastheNationalStrokeAssociationandtheNa-tionalAphasiaAssociation.
NIDRRProgramDirectoryFY2008-HealthandFunction2-8RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)MissouriMissouriArthritisRehabilitationResearchandTrainingCenter(MARRTC)UniversityofMissouri/ColumbiaPhysicalMedicineandRehabilitationOneHospitalDrive,DC330.
00Columbia,MO65212holtmeyerk@health.
missouri.
eduwww.
marrtc.
orgPrincipalInvestigator:JerryC.
Parker,PhDPublicContact:KimHoltmeyer573/884-1499;Fax:573/884-3020ProjectNumber:H133B031120StartDate:October01,2003Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY03$800,000;FY04$800,000;FY05$800,000;FY06$800,000;FY07$800,000;FY08(No-costextensionthrough9/30/2009)Abstract:ThepurposeoftheMissouriArthritisRehabilitationResearchandTrainingCenter(MARRTC)istoprovideleadershipatthenationallevelinsupportofthreekeyobjectives:toreducepainanddisability,toimprovephysicalfitnessandqualityoflife,andtopromoteindependentlivingandcommunityintegrationforpersonswitharthritisofallagesintheUnitedStates.
State-of-the-sciencerehabilitationresearchaddressestheneedsofpersonswitharthritisinthefollowingareas:(1)homeandcommunity-basedself-managementprograms,(2)benefitsofexerciseandphysicalfitness,and(3)technologiesavailabletothebroadpopulationsofpersonswitharthritisintheenvironmentswheretheylive,learn,work,andplay.
TheMARRTCconductstrainingandcapacity-buildingpro-gramsforcriticalstakeholderswithinthearthritisdisabilityarena,includingconsumers,familymem-bers,serviceproviders,andpolicymakers.
Additionally,theMARRTCprovidestechnicalassistanceforpersonswitharthritisandotherstakeholdersinordertopromoteutilizationofarthritis-related,disabilityresearch.
TheMARRTCalsoprovideswidespreaddisseminationofinformationalmaterialstopersonswithdisabilities,theirrepresentatives,serviceproviders,andothertargetaudiences(e.
g.
,editorsandreporters).
NIDRRProgramDirectoryFY2008-HealthandFunction2-9RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)NewYorkRehabilitationResearchandTrainingCenteronTraumaticBrainInjuryInterventionsMountSinaiSchoolofMedicineResearchandTrainingCenterOneGustaveL.
LevyPlace,Box1240NewYork,NY10029wayne.
gordon@mssm.
eduwww.
tbicentral.
orgPrincipalInvestigator:WayneA.
Gordon,PhDPublicContact:212/659-9372(V);212/241-8978(TTY);Fax:212/348-5901ProjectNumber:H133B040033StartDate:October01,2004Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY04$700,000;FY05$700,000;FY06$700,000;FY07$700,000;FY08$700,000Abstract:Theresearchprogramincludestworandomizedclinicaltrials(RCTs)andtwoprojectssupportiveofbettereverydayinterventionsandbetterresearch:ResearchStudy1(R1)isanRCTofatreatmentfordepression:cognitivebehavioraltherapy,adaptedtoaddresstheuniquecognitiveandbehavioralchallengesofpeoplewithTBIthatoftenposebarrierstotreatingdepression,amajorfactorinreducingpost-TBIqualityoflife,iscomparedtosupportivetherapy.
InR2,asecondRCT,astan-darddaytreatmentprogramiscomparedtoasimilarprogram(ExecutivePlus),augmentedwithmodulestoimproveexecutivefunctioningandattentiontraining.
R3,SupportforEvidence-BasedPractice,evaluatesallpublishedresearchonpost-TBIinterventionsandassessmentofoutcomes;itservesasanationalresourcefordisseminatingtheresults.
Italsoimplementsthreeparticipatoryactionresearch-basedanalysesofhighpriorityareas,includingmeta-analysesifappropriate.
Inaddressingimprovedoutcomemeasurement,R4focusesonthePARTinstrument,ameasureofparticipationcurrentlybeingtestedwithineightTBIModelSystems.
R4focusesoncreatingasubjectiveapproachtoserveasacomplementtothePART'scurrentfocusonobjectiveassessment.
AmajorfocusoftheRRTCisplacedoncapacitybuildingofclinicalandresearchprofessionalstoaddresstheneedforbetterday-to-dayinterventionsinthelivesofpeoplewithTBI.
Oftentheirmedicalneedsaremisread,theirbraininjurygoesunidentified,andtheyfindservicesandaccommodationsinappropriate.
Capac-itybuildingfocusesonstudentsearlyintheireducationalcareer-tohelpshapecareerchoiceandpointsofview;graduateandpost-graduatestudents;andpracticing"gatekeepers"inthecommunity,primarilypsychologistsandphysicians.
NIDRRProgramDirectoryFY2008-HealthandFunction2-10RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)OregonRehabilitationResearchandTrainingCenteronHealthandWellnessinLongTermDisabilityOregonHealthandScienceUniversityOregonInstituteonDisabilityandDevelopmentChildDevelopmentandRehabilitationCenter707SouthwestGainesP.
O.
Box574Portland,OR97207-0574rrtc@ohsu.
eduwww.
healthwellness.
orgPrincipalInvestigator:CharlesDrum,PhD503/494-8364PublicContact:SusanWingenfeld503/494-3533;Fax:503/494-6868ProjectNumber:H133B040034StartDate:October01,2004Length:60monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY04$700,000;FY05$700,000;FY06$700,000;FY07$700,000;FY08$700,000Abstract:ThevisionoftheRRTCistocontributetothereductionofhealthdisparitiesforpersonwithdisabilitiesthroughanintegratedprogramofresearch,training,technicalassistance,anddissemination.
TheCenterhasthreeinter-relatedstrandsofworktoaddressitsthreeintendedoutcomes/goals:(1)identifystrategiestoovercomebarriersthatimpedeaccesstoroutinehealthcareforindividualswithdisabilities;(2)identifyinterventionsinareassuchasexercise,nutrition,painmanagement,orcomple-mentaryandalternativetherapiesthatpromotehealthandwellnessandminimizetheoccurrenceofsecondaryconditionsforpersonswithdisabilities;and(3)developimprovedstatusmeasurementtool(s)toassesshealthandwell-beingofindividualswithdisabilitiesregardlessoffunctionalability.
Inordertoachievetheseoutcomes,theRRTCconductsacoordinatedprogramofresearchandtrainingactivitiesusingalogicmodelframework.
RRTCprojectssummarizeandvalidateexistingresearchfindingsonbarrierstohealthcareaccessaswellasrigorouslytestandcomparenewstrategiestoovercomingidentifiedbarriers.
TheRRTCalsoexaminesandevaluatesthepracticesofexemplarygenericandspecializedhealthpromotionprogramsforpeoplewithdisabilitiesinordertocreateanevidence-basedsetofevaluationandplanningcriteria.
Inaddition,theRRTCorganizesandusespanelstoassesscurrenthealthstatusmeasurementtoolsanddevelopsorrefinesmeasurestomoreaccuratelyreflectthehealthandwell-beingofpeoplelivingwithdisabilities.
Throughouttheseactivi-tiestheRRTCdisseminatesinformationalmaterialsandprovidetechnicalassistancetoindividualswithdisabilities,theirrepresentatives,providers,andotherinterestedparties.
NIDRRProgramDirectoryFY2008-HealthandFunction2-11RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)WashingtonMultipleSclerosisRehabilitationResearchandTrainingCenterUniversityofWashingtonDepartmentofRehabilitationMedicineBox356490Seattle,WA98185msrrtc@u.
washington.
eduwww.
msrrtc.
washington.
eduPrincipalInvestigator:GeorgeH.
Kraft,MD206/543-7272PublicContact:888/634-6778;206/221-5302;Fax:206/685-3244ProjectNumber:H133B031129StartDate:October01,2003Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY03$800,000;FY04$800,000;FY05$800,000;FY06$800,000;FY07$800,000;FY08(No-costextensionthrough9/30/2009)Abstract:Thiscenterconductsrehabilitationresearchthat:(1)Developsnewinterventionsandpracticesintheareasofdiseasesuppression,strengthenhancement,preservingemployment,depres-sionmanagement,andpaincontrol;(2)collectsdatafromanextensivesurveyandexplorescomplexinteractionsamongmultiplevariables,modelsfactorsthatpredictdifferinglevelsofparticipationbypeoplewithmultiplesclerosis(MS),andproposespointsofinterventionthatmodifychangesinfunc-tion;and(3)facilitatesenhancedparticipationthroughtraining,technicalassistance,anddisseminationthroughprofessionalmeetings,publications,andaState-of-the-Scienceconference.
Inaddition,aweb-basedknowledgebaseprovidestechnicalassistancetoindividualswithMSandhealthcareproviderswithrespecttocaregiverissues,financialandinsuranceplanning,self-sufficiencyandcoping,andassistivetechnology.
NIDRRProgramDirectoryFY2008-HealthandFunction2-12RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)WashingtonMultipleSclerosisRehabilitationResearchandTrainingCenterUniversityofWashingtonDepartmentofRehabilitationMedicineBox356490Seattle,WA98185msrrtc@u.
washington.
eduwww.
msrrtc.
washington.
eduPrincipalInvestigator:GeorgeH.
Kraft,MD206/543-7272PublicContact:888/634-6778;206/221-5302;Fax:206/685-3244ProjectNumber:H133B080025StartDate:October01,2008Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY08$850,000Abstract:Thisprojectconductsacomprehensiveprogramofresearchonissuescriticaltoindividualslivingwithmultiplesclerosis(MS)intheareasofoutcomesmeasurement,improvedmedicalandcommunityinterventions,andimprovedemploymentoutcomes.
TheprojectincludesthreecoordinatedcoreareasofresearchdesignedtoenhancefunctionandemploymentinindividualswithMS.
ProgramI:TheOutcomesMeasurementcoreincludesalongitudinalstudyof400peoplewithMSofsecondaryconditionssuchaspain,fatigue,depression,andcognitiveimpairmentandoutcomessuchasparticipa-tionincludingemployment.
Thisprogramusesmodernpsychometrictechniquestoevaluatemeasuresoftheseandothersecondaryconditions,developcross-walkingtablestoallowcomparisonofscoresacrossmeasures,andcomparelevelsofpain,fatigue,anddepressioninMStonormsofthegeneralpopulationandotherdisabilitygroups.
ProgramIIdevelopsimprovedmedicalorcommunityrehabili-tationinterventionsbyconductingarandomizedcontrolledtrialofindividualizedself-managementtrainingdeliveredbytelephonetoreducesecondaryconditionssuchasfatigueandpainwithagenericpsychoeducationalinterventionforcontrol.
Thisprogramevaluatestheimpactonparticipation,includ-ingemployment,inadditiontoevaluatingreductionininterferencefromsecondaryconditions.
Pro-gramIIIimprovesemploymentoutcomesofpersonswithMSbyexaminingthenationalRSA911databasetoidentifyprocessandoutcomevariablesassociatedwithsuccessfulvocationalrehabilitation(VR)closures.
QualitativeinterviewsareconductedwithfederalstateVRcounselorstounderstandtheirperspectivesonVRservicesandMS.
Longitudinaldataonemploymentisanalyzedtoevaluatechangesinemploymentstatusovertime.
Researchersconductfollow-upsurveysaboutimpactofaccommodationservicesonemploymentwith200recipientsofservicesfromMSEmploymentAssis-tanceService.
Theresultisbestpracticesandrecommendationsforimprovedemploymentservices.
NIDRRProgramDirectoryFY2008-HealthandFunction2-13RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)WashingtonRehabilitationResearchandTrainingCenteronAgingwithaPhysicalDisability:ReducingSecondaryConditionsandEnhancingHealthandParticipation,IncludingEmploymentUniversityofWashingtonDepartmentofRehabilitationMedicine1959NEPacificStreetBB-919Box356490Seattle,WA98195PrincipalInvestigator:MarkP.
Jensen,PhD206/543-3185PublicContact:Fax:206/685-3244ProjectNumber:H133B080024StartDate:October01,2008Length:60monthsNIDRROfficer:MargaretCampbell,PhDNIDRRFunding:FY08$850,000Abstract:Thegoalofthiscenteristofosterabetterunderstandingthechallengesfacedbythoseagingwithaphysicaldisability.
Theprojectfocusesonfourpopulationsofpersonswithdisabilities:personswithspinalcordinjury(SCI),multiplesclerosis(MS),post-poliosyndrome(PPS),andmusculardystrophy(MD).
Theproject:(1)enhancesunderstandingofthenaturalcourseofagingwiththesedisabilitiesthroughaseriesoflongitudinalsurveystoexaminetheeffectsofaginginthedevelopmentofsecondaryconditions;(2)developsandevaluatesmeasuresofkeyoutcomedomainsforusewithindividualsagingwithSCI,MS,PPS,andMDutilizingcross-populationandcross-measureanalysestoevaluatethepsychometricpropertiesofinstrumentsusedindisabilityresearch,aswellastodevelopbettermeasuresofdepression,fatigue,participation,andpain;(3)teststheefficacyoftwoinnovativeinterventionsthatenhancethehealthandparticipationinthesepopulations,usingremotemonitoringofactivitylevelsandapilotinterventionfeaturingremotepromptingtoenhanceself-managementofactivitypatterns;(4)enhancesunderstandingoftheexperiencesofindividualsagingwithSCI,MS,PPS,andMDintheworkplaceandwithvocationalrehabilitationandemploymentservicesthroughsecondarydataanalysisandqualitativeinterviews;and(5)disseminatesthefindingsfromtheresearchprojectsinaneffectiveandefficientmannertoindividualswithdisabilities,theirfamilymembers,andtheirhealthcareproviders.
NIDRRProgramDirectoryFY2008-HealthandFunction2-14RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)CaliforniaRehabilitationEngineeringResearchCenterforSuccessfulAgingwithDisability:OptimizingParticipationThroughTechnology(OPTT-RERC)UniversityofSouthernCaliforniaDivisionofBiokinesiologyandPhysicalTherapy1540AlcazarStreet,CHP-155LosAngeles,CA90033winstein@usc.
eduwww.
isi.
edu/research/rercPrincipalInvestigator:CaroleeJ.
Winstein,PhD,PT(USC);PhilipRequejo,PhD(RanchoLosAmigos)323/442-2903PublicContact:CaroleeJ.
Winstein,PhD,PT323/442-2903;Fax:323/442-1515ProjectNumber:H133E080024StartDate:October01,2008Length:60monthsNIDRROfficer:MargaretCampbell,PhDNIDRRFunding:FY08$950,000Abstract:Thegoalofthisprojectistoenhancethelivesofindividualsagingwithandintodisabilitythrough:(1)developmentanddeliveryofcutting-edgetechnologiesforidentification,evaluation,andrehabilitationofmotorprocessesthatfacilitateorimpedefunctionalperformance,employment,andcommunityparticipationfortheintendedbeneficiaries;(2)employmentofstateoftheartdatamanage-ment,dissemination,andperformanceevaluationtechniquestoensurethattheknowledgeandprod-uctsemergentfromtheRERCareaccessibleforallintendedbeneficiaries;(3)assemblyofamultidisciplinaryteamofexpertsinclinicalrehabilitation,engineering,andgerontology,alongwithaselectgroupoftechnologypartners,anddisabilityadvocatestoensurethatOPTT-RERC'sshort-andlong-termoutcomegoalsaresuccessfullyimplemented;and(4)alignmentoftheclinicalandtechno-logicalstrengthsofseveralareaprogramsintoanintegratedinfrastructuretoprovidetrainingopportu-nitiesforfuturerehabilitationresearchers.
TheDexterousManipulationwiththeFingertipsProjectevaluatesaclinicallyusefulmetricandrehabilitationstrategyfordynamicmultifingerdexterity(R1)and,incollaborationwiththesecondprojectarea,developsahome-usegamingsystemtopromoteretentionandimprovementofdexterousmanipulationviaimmersiontechnologies(D1).
TheVirtualReality(VR)andGamingforHome-BasedMotorAssessmentandTrainingProjectdevelopslowcost,home-basedVRtoolkits(VRT)formotorassessmentandrehabilitation(D2)andinvestigatestheefficacyoftheVRTgamesforuseinboththeclinicsettingandthehomeforindividualsagingwithandintodisability(R2).
TheOptimizingMobilityintheHomeandCommunityforManualWheel-chairUsersProjectidentifiesoptimaltransferandliftingmechanicstopreservetheshouldercomplex(R3)andusesVRTgamesfortargetedandprogressiveshoulderexercisewhilesittinginawheelchair(D3).
TheNeuromuscularElectricalStimulation(NMES)forMobilityusesimplantablewirelessmicro-stimulatorstopreventrecurrencesofdebilitatingpressureulcersinthemiddleageandolderindividualswithdisability(D4).
NIDRRProgramDirectoryFY2008-HealthandFunction2-15DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsAlabamaUniversityofAlabamaatBirmingham(UAB)TraumaticBrainInjuryModelSystem(UABTBIMS)UniversityofAlabama/BirminghamSpainRehabilitationCenterPhysicalMedicineandRehabilitation619-19thStreetSouth,SRC529Birmingham,AL35249-7330novack@uab.
eduwww.
uab.
edu/tbiPrincipalInvestigator:ThomasA.
Novack,PhDPublicContact:PamelaK.
Mott205/934-3283ProjectNumber:H133A070039StartDate:October01,2007Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY07$434,398;FY08$434,399Abstract:Thisprojectprovidesrehabilitationservicesspecificallydesignedtomeetthespecialneedsofindividualswithtraumaticbraininjury(TBI)throughamultidisciplinary,comprehensivemodelsystemwhichspanstheclinicalcontinuumfromemergencyservicesthroughrehabilitationandcom-munityre-entry.
Theprojectincludesonecollaborativeresearchmoduleandonein-houseresearchproject,aimedatimprovingthehealthandfunction,aswellasthecommunityparticipationoftheindividualswithTBI.
Thecollaborativeresearchmoduleinvolvesexaminationoftherisksandconse-quencesofweightgainafterTBI,whichhasneverbeenexploredindepth.
Thein-houseresearchprojectfocusesonanin-hometrainingprogramtoimprovevisualperceptualspeedthatcouldimpactreturntodriving.
NIDRRProgramDirectoryFY2008-HealthandFunction2-16DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsCaliforniaNorthernCaliforniaTraumaticBrainInjuryModelSystemofCareSantaClaraValleyMedicalCenter(SCVMC)RehabilitationResearchCenter751SouthBascomAvenueSanJose,CA95128jerry.
wright@hhs.
sccgov.
orgwww.
tbi-sci.
orgPrincipalInvestigator:TamaraBushnik,PhDPublicContact:408/793-6433;Fax:408/793-6434ProjectNumber:H133A070038StartDate:October07,2007Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY07$426,720;FY08$426,720Abstract:Thisprojectconductsresearchwithafocusonfatigueinindividualswithtraumaticbraininjury(TBI).
Currentstudieshaveidentifiedastrongassociationoffatiguewithsleepdisorders,depression,pain,andcognitivechallenges;theprevalenceofpituitarydysfunctionishighinthisgroupaswellbutthelevelofdysfunctionisnotproportionaltolevelsoffatigue.
Thissitespecificresearcheffortisaprospective,randomized,single-blindcrossoverstudythatevaluatestheimpactofagradu-atedphysicalactivityprogramonfatigueandrelatedfactorsofdepression,sleepquality/daytimedrowsiness,cognitivefunction,andgeneralhealthmeasures.
NIDRRProgramDirectoryFY2008-HealthandFunction2-17DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsColoradoUCHSCBurnModelSystemDataCoordinationCenter(BMS/DCC)UniversityofColoradoHealthSciencesCenterSchoolofMedicineDepartmentofPreventiveMedicineandBiometrics4200EastNinthAvenue,BoxB119Denver,CO80262erin.
delong@uchsc.
edubms-dcc.
uchsc.
eduPrincipalInvestigator:DennisC.
Lezotte,PhD303/315-6873PublicContact:ErinDelong,ProjectCoordinator303/315-0320;Fax:303/315-3183ProjectNumber:H133A070006StartDate:October01,2007Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY07$300,000;FY08$300,000Abstract:TheBurnModelSystemDataCollectionCenter(BMS/DCC)providesscientificandtechnicalsupporttotheBurnModelSystems'mission,whichis"toconductresearchthatcontributestoevidence-basedrehabilitationandclinicalinterventionsaswellasdeveloppracticeguidelinesthatimprovethelivesofindividualswithburninjuries.
"TheBMS/DCCaddressesfourimportantareasinrehabilitationresearch:projectdesignandmanagement,datamanagementandquality,scientificallyappropriateanalyticalsupport,andbroaddisseminationforlong-termimpact.
Thedatacenterstrivestoprovidequalitysupportbydevelopingintegratedinformationsystems,providingprofessionalconsulta-tion,anddesigninganddeliveringdedicatedtrainingprograms.
Theprimarygoalistoimprovethescientificrigorofclinicalandrehabilitationresearchintheareaofburninjury.
Areasofspecificcon-cerninclude:collectingmulti-sitelongitudinaloutcomesdata;coordinatingmulti-centerresearchdata;providinganalysisandoversighttoachievescientificallysoundmulti-centercollaborativeandsite-specificclinicalandrehabilitativeresearch;collaboratingwithotherNationalDataandStatisticalCenterstoexchangeideasandensurethemostefficientoperations;publishingscientificallyrigorousarticles;andcoordinatingothereffectivedisseminationstrategies.
TheBMS/DCCconsistsoftwofunctionallyindependentbutrelatedunits,adataadministrationcoreandananalyticalcore.
ThedataadministrationcorecontinuestosupportandmanagetheBMSLevel1(National)Databasewhileimplementingthenecessaryimprovementstoensurequalityandscientificallysounddataforburnresearch.
Inaddition,thedataadministrationcoreimplementsweb-baseddatacollectionandresearchsupporttoolsforcollaborativemodulesand,asneeded,assistsintheconductofthesite-specificresearchstudies.
Theanalyticalcoreprovidesstatisticalsupport(analysis,consultation,study-design,andstudyimplementation)forprojectsthatuseeitherLevel1dataordatageneratedfromcollaborativeandsite-specificresearch.
NIDRRProgramDirectoryFY2008-HealthandFunction2-18DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsColoradoCollaborativeSpinalCordInjuryModelSystemsCentersProgram:ImprovingSpinalCordInjuryRehabilitationOutcomesCraigHospital3425SouthClarksonStreetEnglewood,CO80113gale@craig-hospital.
orgwww.
craighospital.
orgPrincipalInvestigator:GaleG.
Whiteneck,PhDPublicContact:303/789-8204;Fax:303/789-8441ProjectNumber:H133A060103StartDate:October01,2006Length:60monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY06$2,200,000;FY07$900,000;FY08$900,000Abstract:Inpatientrehabilitationforspinalcordinjury(SCI),likeallofrehabilitation,hasbeenstudiedlargelyasanundifferentiatedblackbox.
Researchhasexaminedthewhole"rehabilitationpackage"buthasnotaddressedwhichspecifictherapyinterventions,medicalprocedures,patienteducation,counseling,oractivitiesareeffectivewhenofferedinvariouscombinationsorsequences,forspecifictypesofpatientsandimpairments.
Toaddressthislimitation,thisprojectusesClinicalPracticeImprovement(CPI)researchmethodologytoisolatespecificcomponentsofrehabilitationinterventions,andtodeterminehow,andtowhatdegree,eachcomponentisassociatedwithoutcomes.
Specificaimsareto:(1)identifyindividualpatientcharacteristics,includingdemographicdata,severityofspinalcordinjury,andseverityofillness(complicationsandcomorbidities),thatexplainsignificantvariationintheoutcomesofacuterehabilitationforSCI;(2)identifyspecificmedical/nursingproce-duresandtherapyinterventions,orcombinationsofproceduresandinterventionsthatareassociatedwithbetteroutcomes,controllingforpatientcharacteristics;and(3)determinewhetherspecificimpair-ment-by-treatmentinteractionsareassociatedwithbetteroutcomes.
ThisprojectisacollaborativeresearchpartnershipwithfiveotherprominentSCIrehabilitationfacilities:RehabilitationInstituteofChicago,ShepherdCenter,Mt.
SinaiMedicalCenter,NationalRehabilitationHospital,andCarolinasRehabilitation.
AlsocollaboratingistheInstituteforClinicalOutcomesResearchatInternationalSeverityInformationSystemsinSaltLakeCity,Utah,whichhasextensiveexperienceapplyingCPImethodology,andMobileDataForceinBoise,Idaho,withexpertiseinhandhelddatacapturetechnol-ogy.
NIDRRProgramDirectoryFY2008-HealthandFunction2-19DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsColoradoTheNationalDataandStatisticalCenterfortheTraumaticBrainInjuryModelSystemsCraigHospital3425SouthClarksonStreetEnglewood,CO80113charrison-felix@craighospital.
orgwww.
tbindsc.
orgPrincipalInvestigator:CynthiaHarrison-Felix,PhDPublicContact:303/789-8565;Fax:303/789-8441ProjectNumber:H133A060038StartDate:October01,2006Length:60monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY06$625,000;FY07$625,000;FY08$625,000Abstract:Byimplementingacomprehensiveandinnovativeprogramofnewdatamanagementtechnologiesandoperatingproceduresthatemulatethebestpracticesofclinicalresearchorganizationsanddatacoordinatingcenters,theNationalDataandStatisticalCenter(NDSC)increasestherigorandefficiencyofscientificeffortstolongitudinallyassesstheexperienceofindividualswithtraumaticbraininjury(TBI)andadvancesTBIrehabilitation.
TheTBIMSdatabaseandtheNDSCintroducethefollowinginnovations:astate-of-the-art,web-baseddatamanagementsystem;acomputer-assistedinterviewsystem;aStandardOperatingProceduresManual;trainingthroughquarterlyweb-basedconferences,aswellasmorefrequentin-personconferences;comprehensiveDataCollectorcertifica-tion;annualdatamonitoringvisitstoeachcenter;analysisofethnic/racialbiasinparticipantrecruit-mentandretentionandcollaborationwiththeNIDRR-fundedCenterforCapacityBuildingonMinori-tieswithDisabilitiesResearch;providingmorecomprehensivemethodologicalaswellasstatisticalconsultation;continuationoftheTBIMSsurvivalstudy;asystemforfollowingparticipantsfromdefundedcenters;andtheuseofcommonprocedures,technologies,andtrainingamongallModelSystemDataCenters.
re:NIDRRProgramDirectoryFY2008-HealthandFunction2-20DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsColoradoTheRockyMountainRegionalBrainInjurySystem(RMRBIS)CraigHospital3425SouthClarksonStreetEnglewood,CO80113charrison-felix@craighospital.
orgwww.
craighospital.
org/Research/TBIModelsystems.
aspPrincipalInvestigator:GaleG.
Whiteneck,PhD303/789-8204PublicContact:CynthiaHarrison-Felix,PhD303/789-8565;Fax:303/789-8441ProjectNumber:H133A070022StartDate:October01,2007Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY07$426,720;FY08$426,720Abstract:TheRockyMountainRegionalBrainInjurySystem(RMRBIS)conductstwositespecificresearchprojects,participatesinthreecollaborativeresearchmodules,contributestothelongitudinalTBINationalDatabase,andmaintainsaTBIModelSystemofcareandresearch.
ResearchProjectR1:Atomoxetine(Strattera)forthetreatmentofattentiondisordersinindividualswithTBIdeterminesiftheonlydrugapprovedforattentiondeficithyperactivitydisorderimprovesattention,behavioralfunctioning,anddepressioninindividualswithTBI,usingarandomizeddouble-blindplacebo-con-trolledcrossoverstudydesign.
ResearchProjectR2:AhealthandwellnessinterventionforindividualswithTBI,evaluatesaspecific,replicablesmall-groupeducationalapproachtoimprovehealth-relatedself-efficacy,healthpromotingbehaviors,andhealth-relatedqualityoflifeinindividualswithTBIusingarandomizedwaitlistcontrolgroupstudydesign.
Ifeffective,thisinterventioncouldimprovethehealthandwellnessofthemanypeoplewithsecondaryconditionsandlessthanhealthylifestylesafterTBI.
CollaborativeModule1:SexualityafterTBIexaminesthefrequency,type,andseverityofchangesinsexualfunctionassociatedwithTBI.
CollaborativeModule2:NaturalhistoryofheadacheafterTBIinvestigatesincidence,prevalence,andtypesofheadacheafterTBI.
CollaborativeModule3:EnhancingCoredatasettoexpandresearchonenvironmentalinfluencesaffectingoutcomesfromTBIevaluatesthefeasibility,reliability,andutilityofrecordinggeographicidentifiersforplaceofresidenceafterTBI.
NIDRRProgramDirectoryFY2008-HealthandFunction2-21DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsIllinoisHealthServicesResearchDRRPonMedicalRehabilitationNorthwesternUniversityRehabilitationInstituteResearchCorporationCenterforRehabilitationOutcomesResearch345EastSuperiorStreetChicago,IL60611-2654a-heinemann@northwestern.
eduwww.
ric.
org/research/outcomes/drrp.
phpPrincipalInvestigator:AllenW.
Heinemann,PhDPublicContact:312/238-2802;Fax:312/238-2383ProjectNumber:H133A030807StartDate:July01,2003Length:60monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY03$300,000;FY04$300,000;FY05$300,000;FY06$300,000;FY07$300,000;FY08(No-costextensionthrough6/30/2009)Abstract:Thisresearchaddressestheneedtoimprovethedeliveryofhealthservicestopersonswithdisabilitiesby(1)evaluatingtheimpactofMedicare'sinpatientrehabilitationfacilities'(IRF)prospec-tivepaymentsystem(PPS)onaccesstorehabilitationservicesintermsofsettings,services,andlengthofstay;and(2)identifyingtheimpactofcomorbiditiesonhowpatientsareclassifiedandreimbursedunderthenewIRFPPS.
Medicare'snewPPSforIRFmaylimiteffectiveaccesstocarebecausefacilitieswilltakefewerriskswithpatientsdeemedtobe"highcostoutliners,"hiremore"therapyextenders"ratherthanlicensedprofessionals,anddischargepatientsatahigherratetonursingfacilitiesratherthantocommunitysettings.
Thefourspecificaimsoftheresearchareto:(1)examinechangesintheorganizationofmedicalrehabilitationservicesinresponsetoprospectivepayment;(2)examinechangesinpatientaccesstomedicalrehabilitationsettingsandservicesresultingfromorganizationalresponsestothechangeinreimbursement;(3)examinetheimpactofPPS-relatedchangesinservicedeliveryonpatientoutcomes;and(4)identifytheimpactofcomorbiditiesonclassificationandreim-bursementinmedicalrehabilitationPPS.
NIDRRProgramDirectoryFY2008-HealthandFunction2-22DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsIllinoisReducingObesityandObesity-RelatedSecondaryConditionsinAdolescentswithDisabilitiesUniversityofIllinoisatChicagoDepartmentofDisabilityandHumanDevelopment1640WestRooseveltRoad,Suite712M/C626Chicago,IL60608-6904jrimmer@uic.
eduwww.
rectech.
orgPrincipalInvestigator:JamesH.
Rimmer,PhDPublicContact:312/413-9651;Fax:312/355-4058ProjectNumber:H133A060066StartDate:November01,2006Length:36monthsNIDRROfficer:MargaretCampbell,PhDNIDRRFunding:FY06$250,000;FY07$250,000;FY08$250,000Abstract:ThisprojectexaminestheantecedentsandconsequencesofobesityusingtheICFframe-workthataddressesbothpersonandenvironmentcontextualfactorsthatrelatetoobesityinadoles-centswithdisabilities;evaluatesthevalidityandutilityofanalternativeapproachforestablishingmoreaccuratecutoffpointsforoverweightandobesityinadolescentswithdisabilities;developsapilotinterventionusinganinnovativepersonalizedexerciseandnutritionprogram(PEP-for-Youth)formanagingobesityamongyouthwithphysicalanddevelopmentaldisabilities;anddevelopsmutuallybeneficialworkingpartnershipswithcommunity-basedorganizationstopromotereductionofobesityinyouthwithdisabilities.
TheresearchprojectsoperateinpartnershipwithShrinersHospitalsforChildrenandfivenationaldisabilityorganizations(EasterSeals,UnitedCerebralPalsy,SpinaBifidaAssociation,theArc,andBlazeSportsAmerica).
NIDRRProgramDirectoryFY2008-HealthandFunction2-23DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsIllinoisMidwestRegionalTraumaticBrainInjuryModelSystem:InnovativeApproachestoImproveCognition,Function,andCommunityLivingRehabilitationInstituteResearchCorporation345EastSuperiorChicago,IL60611PrincipalInvestigator:ElliotJ.
Roth,MD312/238-4637PublicContact:LindaLovell,ProjectCoordinator312/238-6197;Fax:312/238-1417ProjectNumber:H133A080045StartDate:October01,2008Length:48monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY08$418,139Abstract:TheMidwestRegionalTraumaticBrainInjuryModelSystem(MRTBIMS)accomplishesseveralimportantobjectivesinsupportofaninterdisciplinary,multidimensionalcenterfocusedonprovidingandimprovingcareforpeoplewithtraumaticbraininjury(TBI).
MRTBIMSestablishesacoordinated,multilevel,interdisciplinarysystemofcareforpeoplewithTBI,includingpre-hospital,emergency,acute,long-termacute,intensiverehabilitation,andcommunitycare.
ThiscontinuumofcareisprovidedatNorthwesternMemorialHospital,RMLSpecialtyHospital,andtheRehabilitationInstituteofChicagoanditsSystemofCare.
Dataissubmittedonatleast100TBIpatientsperyeartotheNationalTBIDatabase.
Researchplansincludeimplementationoftwosite-specificresearchprojects,whichconsistofclinicaltrialsontheeffectivenessofacupuncturetoimprovesleepinTBIpatientsandontheeffectivenessofavirtualrealityroboticsprogramtoimproveattentionandconcen-trationinTBIpatients.
TheCenterisengagedindisseminationofeducationalandothermaterialsonTBItoavarietyoftargetaudiences,includingpersonswithTBIandtheirfamilies,professionalswhocareforpatientswithTBI,andthepublic—collaboratingwiththeBrainInjuryAssociationofIllinoisandotherNIDRR-fundedcentersasappropriate.
NIDRRProgramDirectoryFY2008-HealthandFunction2-24DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsMarylandJohnsHopkinsUniversityBurnInjuryRehabilitationModelSystem(JHU-BIRMS)JohnsHopkinsSchoolofMedicineJohnsHopkinsBurnCenterAdultUnitJohnsHopkinsBayviewMedicalCenterPediatricUnitJohnsHopkinsHospital4940EasternAvenueBaltimore,MD21224smason23@jhmi.
eduwww.
hopkinsmedicine.
org/burn/research/index.
htmlwww.
hopkinsmedicine.
org/burn/research/psqscq.
pdfPrincipalInvestigator:JamesA.
Fauerbach,PhD410/550-0894PublicContact:ShawnMason,PhD410/550-9846;Fax:410/550-8161ProjectNumber:H133A070045StartDate:October01,2007Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY07$362,500;FY08$362,500Abstract:TheJohnsHopkinsUniversity-BurnInjuryModelSystem(JHU-BIMS)includesthreeprojects:twosite-specificrandomized,controlledtrials(RCT),andonemulti-sitecollaborativestudy.
Thefirstsite-specificprojectisanRCTtotesttheefficacyofaninnovative"AugmentedExerciseProgram"inenhancingrecoveryofstrengthandenduranceinthosewithgeneralizeddeconditioning.
Preliminaryresultsdemonstratethatthis12-week,36-sessionconditioningregimen,relativetobaselineandtousualcare,significantlyimprovesaerobicconditioning.
Thesecondsite-specificprojectisanRCTtotesttheeffectivenessofaninterventionentitled"Safety,Meaning,Activation,andResilienceTraining"(SMART).
SMARTisafour-sessioninterventionthataimstoreduceacutepsychologicaldistressandsleepdisturbanceandtotherebypreventchronicpsychiatricdisordersanddisability.
PilotdatashowthatSMARTeffectivelyreducespost-traumadistress,sleepdisturbance,anddepression.
Thethirdprojectisamulti-sitecollaborativemoduleentitled"Long-TermFollow-upoftheNationalDatabaseSample"thatextendsfollow-uptofiveyearspost-burn.
TheNIDRRfundedBurnModelSystemnationaldatabaseprovidesanunprecedentedopportunitytoconductaprospective,multi-sitestudytoassessthelongtermneedsofburnsurvivors.
TheJohnsHopkinsBurnCentercontinuestocontributetotheBurnModelSystemnationaldatabase,aswell.
NIDRRProgramDirectoryFY2008-HealthandFunction2-25DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsMichiganMichiganTraumaticBrainInjuryModelSystem(SEMTBIS)WayneStateUniversity5057WoodwardAvenue,Suite6402Detroit,MI48202ckoviak@dmc.
orgwww.
semtbis.
orgPrincipalInvestigator:RobinA.
Hanks,PhD313/745-9763PublicContact:CaroleKoviak,RN313/745-9737;Fax:313/745-9854ProjectNumber:H133A080044StartDate:October01,2008Length:48monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY08$438,074Abstract:SEMTBISfocusesonthefollowingmajorareas:research,education,clinicalandsystemsanalysisstudies,collectionanddisseminationofdata,andpromotionofprofessionaldevelopmentforindividualswithdisabilitiesaswellastheirfamilymembersorcaregivers.
Twostudiesaddressen-hancementofhealthandfunctionofpersonswithtraumaticbraininjury(TBI).
Projectsevaluatethepredictivevalidityofthreenewlydevelopedbrainmagneticresonanceimaging(MRI)techniqueswithrespecttofunctionalindependence,levelofdisability,andneurobehavioraloutcomesatoneandtwoyearspost-injury;andexaminethesafetyandefficacyofanantibioticmedicationthatisthoughttopositivelyinfluenceneuroplasticityintheacutestagesofrecoveryfromTBI.
SEMTBISrecruits,educates,andpromotesprofessionaldevelopmentofindividualswithdisabilitiesaswellastheirfamilymembersorcaregivers;withconsumerinvolvementintheadvisoryboardandasprojectstaff.
SEMTBIScontinuestoparticipateinclinicalandsystemsanalysisstudiesoftheTBIMSbycollectingandcontributingdatatoauniform,standardizednationaldatabaseonpatientcharacteristics,diagnoses,causesofinjury,interventions,outcomes,andcosts.
EvaluationoftheseresearchprojectsandtheoveralloperationsoftheSEMTBISemploysamultifacetedapproachofquantifiableandobjectiveprocedures.
NIDRRProgramDirectoryFY2008-HealthandFunction2-26DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsMinnesotaHealthCareCoordinationforIndividualswithPhysicalDisabilities:CriticalElementsandConsumerOutcomesUniversityofMinnesotaInstituteonCommunityIntegration111PatteeHall150PillsburyDriveSoutheastMinneapolis,MN55455-0223abery001@umn.
eduPrincipalInvestigator:BrianAbery,PhDPublicContact:612/625-5592;Fax:612/624-9344ProjectNumber:H133A080049StartDate:October01,2008Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY08$277,233Abstract:ThisprojectcreatesnewknowledgeabouthealthcarecoordinationwithinMinnesota'sSpecialNeedsBasicCare(SNBC)program.
Projectactivitiesincludeestablishingandtestinganoperationaldefinitionofhealthcarecoordinationforadultswithphysicaldisabilitiesandexaminingtheextenttowhichthevariouscomponentsofhealthcarecoordinationenhanceaccesstohealthcare,improvehealthoutcomes,andcreatecostsavings.
TheprojectusesaParticipatoryPlanningandDecisionMakingprocessandkeyinformantinterviewstoidentify,classify,andrichlydescribecaremanagementmodelsusedinSNBCaswellasthecriticalcomponentsofeffectivecarecoordination.
Cognitivetestingandreliabilityandvalidityassessmentareusedtomodifyseveralinstrumentstomeasuretheelementsofmanagedcareandmanagedcareoutcomesforpersonswithphysicaldisabili-ties.
Finally,acombinationofsurveyresearch(in-personinterviews)andanalysisofsecondarydatasets(CentersforMedicaidandMedicareutilizationinformation,andMinnesotaDepartmentofHumanServicesassessmentandutilizationdata)isusedtoexaminemanagedcareoutcomesforatotalof350individualsparticipatingintheSNBCprogram,takingintoaccountvariablessuchastypeandseverityofdisability(includingthepresenceofdualdiagnoses),urbanorrurallocation,age,andotherdemo-graphiccharacteristicsknownorhypothesizedtobeassociatedwithhealthcareaccess,outcomesandcosts.
Theimpactofcarecoordinationmodelsistestedonseveraloutcomesincludinghealthcareaccess(HealthCareQualityScale,annualDHSmandatedhealthcareaccessibilitysurveyresults),outcomes(includingbutnotlimitedtohealthcareself-direction,stress,disabilityimpact),andcosts.
Productsfromthislineofresearchincludeanoperationaldefinitionoftheelementsofcarecoordina-tion,validatedreliableinstrumentationtomeasureelementsofcarecoordination,andacademicandresearch-to-practicepublicationsdescribingtheimpactofcarecoordinationonaccesstohealthcare,healthcareoutcomes,andcost.
NIDRRProgramDirectoryFY2008-HealthandFunction2-27DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsMinnesotaMayoClinicTraumaticBrainInjuryModelSystemMayoClinicMayoClinicCollegeofMedicineMayoFoundationforMedicalEducationandResearch200FirstStreetRochester,MN55905brown.
allen@mayo.
eduwww.
mayo.
edu/model-systemPrincipalInvestigator:AllenW.
Brown,MDPublicContact:AnneMoessner507/255-3116;Fax:507/255-7696ProjectNumber:H133A070013StartDate:October01,2007Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY07$423,590;FY08$423,590Abstract:ThepurposeoftheMayoClinicTraumaticBrainInjuryModelSystem(TBIMS)istoprovidecomprehensive,integrated,team-basedrehabilitationcareandeducationtoindividualswithtraumaticbraininjury(TBI),theirfamilies,andsignificantothersalongthecontinuumofrecoveryandtofillgapsinresearchknowledgeandservicedeliverythroughclinicalresearchthatpromotesfullpersonalandsocialparticipation.
TheMayoClinicTBIMSconductsonesite-specificproject.
Thisproject,anAdvocacyTrainingClinicalTrial(ATCT),targetsthegapinknowledgeconcerningthemostefficaciousmethodofteachingeffectiveselfandsystemadvocacyskills.
ThegoaloftheATCTistoidentifyefficaciousadvocacytrainingmethodsusingarandomizedpracticalbehavioraltrialmethod-ologyinthreeMidweststates.
ObjectivesoftheATCTarethreefold:(1)developTBIspecificmea-suresofadvocacyactivity,perceivedcontrol,andselfefficacy;(2)implement,evaluate,andcontinu-ouslyimproveupontheATCT;and(3)assessthestatewideimpactoftheATCTongreatercommunities,publicpolicy,systemschange,andinthemedia.
TheATCTisdesignedtoestablishasustainableprogramofefficaciousandeffectiveadvocacytraininginthetrialcommunities,andpro-videamodelforimplementationinothercommunities.
NIDRRProgramDirectoryFY2008-HealthandFunction2-28DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewJerseyAMulticenterProspectiveRandomizedControlledTrialoftheEffectivenessofAmantadineHydrochlorideinPromotingRecoveryofFunctionFollowingSevereTraumaticBrainInjuryJFKJohnsonRehabilitationInstituteCenterforHeadInjuries2048OakTreeRoadEdison,NJ08820jgiacino@solarishs.
orgwww.
njrehab.
org/tbims/index.
asp—PrincipalInvestigator:JosephT.
Giacino,PhDPublicContact:732/205-1461;Fax:732/632-1584ProjectNumber:H133A031713StartDate:January01,2004Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY03$599,862;FY04$599,994;FY05$599,994;FY06$599,994;FY07$599,994;FY08(No-costextensionthrough12/31/2009)Abstract:Inthisstudy,eightfacilities(threeofwhicharealsoTraumaticBrainInjury[TBI]ModelSystems),joinwithaDataCoordinatingCenteratColumbiaUniversity,toconductaprospectivedoubleblindrandomizedcontrolledtrialofamantadine.
Morethan180patientswhoremaininvegeta-tivestate(VS)orminimallyconsciousstate(MCS)4-16weekspost-TBIarerandomizedinastratifiedfashionto4weeksofamantadine(200-400mg/day)vs.
placebo,followedbya2-weekwashoutperiod.
TheDisabilityRatingScaleistheprimarydependentvariablewiththeComaRecoveryScale-Revisedservingasasupplementarymeasure.
Theprojectalsoexploreswhethertreatmentresponsediffersbytimepost-injuryandbydiagnosis(i.
e.
,VSorMCS)attreatmentonset,andwhetherspecificoutcomesofimportancetocaregiversareachievedmoreoftenintheamantadinegroup.
NIDRRProgramDirectoryFY2008-HealthandFunction2-29DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewJerseyJFK-JohnsonRehabilitationInstituteTBIModelSystemJFKJohnsonRehabilitationInstitute2048OakTreeRoadEdison,NJ08820tbims@solarishs.
orgwww.
njrehab.
org/tbimsPrincipalInvestigator:KeithD.
Cicerone,PhDPublicContact:732/906-2640;Fax:732/906-9241ProjectNumber:H133A070030StartDate:October01,2007Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY07$419,921;FY08$419,921Abstract:Site-specificresearchrepresentsasustainedinvestigationofcerebralactivationinpatientswithdisordersofconsciousness(DOC):vegetativestate(VS)andminimallyconsciousstate(MCS).
Atpresent,clinicaljudgmentandexperienceguidediagnostic,prognostic,andtreatmentdecisionsforindividualswithDOC.
PriorresearchonfMRIactivationpatternssuggeststhatpatientsinMCSretaintheneuralcircuitsforreceptivelanguageandvisualprocessing.
ThisprojecttestsanovelfMRIproto-colthatisdesignedtoreliablydetectconsciousawarenessinpatientswhomaybeunabletoexecutebehavioralsignsofactivecognitiveprocessing,usingahierarchicalstimulationparadigmthatsystem-aticallyassesseslevelsofcognitiveprocessingintheauditoryandvisualsystems.
Inlightofprovoca-tivefindingssuggestingthatcognitiveprocessingmaybemaintainedinpatientswhoappeartobeunconsciousonbedsideexamination,theinvestigationisextendedtoindividualswithVSaswellasthoseinMCS.
Acollaborativemoduleextendspriorinvestigationsoftheeffectivenessofspecialized,post-acutebraininjuryrehabilitation.
Thisprojectisdrivenbythequestionofhowtocharacterizethecourseofpost-acutebraininjuryrehabilitation,anditsimpactonthelongtermoutcomesofpeoplewithbraininjuries.
AlthoughthereisincreasingevidencethatpostacutebraininjuryrehabilitationcanimprovefunctionaloutcomesafterTBI,population-basedoutcomestudieshavegenerallynotconsid-eredtheinfluenceofdifferentpathwaysofpostacuterehabilitationonoutcomesafterTBI.
Alongitudi-nal,observationalstudycharacterizespostacuterehabilitationintheTBIModelSystems,andexaminesthepathwaysofpostacuterehabilitationinrelationtocasemixvariables,patternsofserviceutilization,barrierstoservicedelivery,andparticipants'perceivedneedsandsatisfactionwithtreatment.
Thiscollaborativeprojectexaminesthecontributionofpostacuterehabilitationtofunctionalandpsychoso-cialoutcomesatoneandtwoyearsafterinjuryusingmultivariateanalysesandcausalmodeling.
NIDRRProgramDirectoryFY2008-HealthandFunction2-30DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewJerseyNorthernNewJerseyTraumaticBrainInjurySystem(NNJTBIS)KesslerMedicalRehabilitationResearchandEducationCorporation(KMRREC)1199PleasantValleyWayWestOrange,NJ07052tbi@kmrrec.
orgwww.
kmrrec.
org/nnjtbis/index.
phpPrincipalInvestigator:ElieP.
Elovic,MD973/243-6815PublicContact:973/243-2015;Fax:973/324-3536ProjectNumber:H133A070037StartDate:October01,2007Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY07$423,590;FY08$423,590Abstract:TheNorthernNewJerseyTraumaticBrainInjurySystem(NNJTBIS)conductsbothasite-specificresearchstudyandacollaborativeresearchmodule.
Theseprojects,bothrelatedtoongoingNIH-fundedstudies,contributetoevidence-basedrehabilitationinterventionsandqualityoflifemea-surementtoimprovethelivesofindividualswithTBI,asfollows:(1)Aninnovative,double-blind,randomizedcontrolledtrialofacognitiverehabilitationinterventionutilizingaprovenmethodologyshowntobeeffectivewiththemultiplesclerosispopulation;and(2)acollaborativemodulethatadapts,develops,andvalidatesaninnovativequality-of-lifeoutcomemeasurementsystemforuseinTBIinterventionresearch.
Eachoftheseprojectshasbeensubjectedtoinitialpilottestingtoassuretheapplicabilityandfeasibilityofthemethodology.
Theevaluationofthisprojectisguidedbyamultifac-etedapproach,whichusesahighlyquantifiable,objectivemeansofevaluatingprogress.
ThisissupplementedbyaCommunityAdvisoryBoard,NNJTBISSteeringCommittee,andanexternalScientificAdvisoryBoard,whichprovidesfeedbackonaquarterly,annual,andbi-annualbasis,respectively.
Inaddition,projectmanagementstaffmeetsinternallyonaregularbasistoreviewdatamanagementanddataqualityissuesandassureeffectivecommunicationwithKesslerInstituteforRehabilitation(KIR)andstafffromthetraumacenters.
Finally,theNNJTBIScoordinateswiththeNIDRR-fundedModelSystemsKnowledgeTranslationCenterattheUniversityofWashingtontoprovidescientificresultsandinformationfordisseminationtoclinicalandconsumeraudiences.
TheNNJTBISisacooperativeeffortoftheKesslerMedicalRehabilitationResearchandEducationCenter(KMRREC),KIR,andtraumacentersfromtheUniversityofMedicineandDentistryofNewJersey-TheNewJerseyMedicalSchool(UMDNJ-NJMS),HackensackUniversityHospital,MorristownMemorialHospital,andSt.
Joseph'sHospital.
NIDRRProgramDirectoryFY2008-HealthandFunction2-31DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewYorkNewYorkTraumaticBrainInjuryModelSystem(NYTBIMS)MountSinaiSchoolofMedicineDepartmentofRehabilitationMedicine;ResearchandTrainingCenterOneGustaveL.
LevyPlace,Box1240NewYork,NY10029wayne.
gordon@mssm.
eduwww.
mssm.
edu/tbicentral/nytbims/PrincipalInvestigator:WayneA.
Gordon,PhDPublicContact:212/659-9372;Fax:212/348-5901ProjectNumber:H133A070033StartDate:October01,2007Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY07$419,921;FY08$419,920Abstract:TheresearchprogramofTheNewYorkTraumaticBrainInjuryModelSystem(NYTBIMS)aimstoadvancetheunderstandingofTBIanddevelopbettermethodsoftreatingsec-ondaryconditionsofTBI,especiallyfatigue,mood,cognition,andsleepdisorders.
Researchgoalsofthisprojectareto:(1)demonstrateandevaluateamultidisciplinarysystemofcareforpersonswithTBIintheNewYorkCitymetropolitanarea,includinganumberofinnovativeclinicalprograms;(2)contributelongitudinaldatatotheNationalDatabaseoftheTBIModelSystemsprogram;and(3)conductonemoduleandtwolocalstudiesto:(a)systematicallystudysleeparchitecture,insomnia,andothertypesofsleepdisordersafterTBI,tobetterunderstandpost-TBIfatigue;and(b)evaluatetheeffectivenessofexerciseasatreatmentofpost-TBIfatigue,mood,andcognition.
Dissemination,education,andtrainingactivitiesconstitutethethirdcomponentoftheNYTBIMS,includingapolicynewsletter,expandedweb-basedinformation,journalpublications,presentationsatnationalandlocalmeetings,anewsletterforconsumers,andseveralformaleducationalandtrainingprograms,includingtrainingofphysiatricresidentsaswellasinternsandpostdoctoralresearchersinpsychology.
NIDRRProgramDirectoryFY2008-HealthandFunction2-32DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewYorkClassificationandMeasurementofMedicalRehabilitationInterventionsMountSinaiSchoolofMedicineDepartmentofRehabilitationMedicineOneGustaveLevyPlace,Box1240NewYork,NY10029-6574marcel.
dijkers@mssm.
eduPrincipalInvestigator:MarcelDijkers,PhDPublicContact:212/659-8587;Fax:212/348-5901ProjectNumber:H133A080053StartDate:October01,2008Length:60monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY08$350,000Abstract:ThedevelopmentofaRehabilitationTreatmentTaxonomy(RTT)coveringalltreatments(experience-based,medications,education,assistivedevices,etc.
)deliveredinmedicalrehabilitationisamulti-year,multidisciplinaryprocessrequiringtheinterweavingofmanydifferentconceptualandempiricalsteps,whichneedstobeguidedbyanoverallblueprinttodirectandlinkindividualefforts.
Thisprojectdevelopssuchablueprint,andperformsresearchtoexplorestrategiesandmethodsthatareneededtocreateandtestthefullRTT.
Specifically,inphase1,theprojectscrutinizesexistingtreatmentliteraturefortheoriesthatunderlietreatment;developsatheoreticalframework;specifiesperformancerequirementsandpracticalconstraintsforanRTT;andreviewsexistingad-hocclassifica-tionsforSCI,TBI,stroke,andjointreplacementrehabilitationforpracticality.
Researchersplanttopresenttheresultingblueprintforfeedbackataninterdisciplinaryconferencewithrepresentativesofallrehabilitationdisciplines,revisedasnecessaryinresponsetofeedback,and,inphase2,usedtode-veloptwopartialtaxonomies:(a)ofinterventionstoimproveambulationinpersonswithneurologicaldisorders,and(b)oftreatmentsofexecutivedysfunctionafteracquiredbraininjury.
Evaluationoftheprocessofdevelopmentandoperationalizationofthetaxonomyisusedtomodify,expand,anden-hancetheblueprint.
AsecondinterdisciplinaryconferenceisusedtopresentthemodifiedblueprinttotherehabilitationfieldandobtaininputondirectionsthefieldneedstotaketodeveloptheentireRTT.
NIDRRProgramDirectoryFY2008-HealthandFunction2-33DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNorthCarolinaCarolinasTraumaticBrainInjuryRehabilitationandResearchSystem(CTBIRRS)CarolinasHealthCareSystemCarolinasRehabilitation1100BlytheBoulevardCharlotte,NC28203fhammond@carolinas.
orgwww.
carolinasrehabilitation.
org/body.
cfmid=191PrincipalInvestigator:FloraM.
Hammond,MDPublicContact:704/355-4330;Fax:704/355-0709ProjectNumber:H133A070042StartDate:October01,2007Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY07$438,571;FY08$438,571Abstract:TheCarolinasTraumaticBrainInjuryRehabilitationandResearchSystem(CTBIRRS)isacomprehensiveservicedeliveryandresearchsystemservingindividualswithtraumaticbraininjury(TBI).
TheSystembeginswithpreventionandemergencymedicalservicesandextendsthroughintensivecare,acutecare,andcomprehensivemedicalrehabilitationtolong-termfollow-up,commu-nityreintegration,andvocationalrehabilitation.
TheresearchofthisModelSystemfocusesonthechallengingproblemofpost-traumaticirritabilityandaggressionusingacomprehensive,rigorousapproachtogenerateanddisseminatenewknowledgeonthishighimpact,pervasive,andunder-studiedproblem.
Thisapproachtounderstandingirritabilityentailstworandomized,controlledstudiesthatbuildonasolidbaseofpriorresearchbytheinvestigatorsinthisarea:(1)amulti-centermodulestudy:"AMulti-Center,Parallel-group,Randomized,Double-Blind,Placebo-ControlledTrialofAmantadineHydrochloridefortheTreatmentofChronicTBIIrritabilityandAggression:AReplica-tionStudy";and(2)alocalresearchstudy:"CarbamazepinefortheTreatmentofChronicPost-TBIIrritabilityandAggression:A42-daySingle-Site,Forced-Titration,Parallel-Group,Randomized,Double-Blind,Placebo-ControlledTrial.
"Theresearchstudiesweredevelopedwithin-depthinputfromtheTBIcommunity,withasolidplanforcontinuedinputalongthecourseoftheprojectthroughallaspectsincludingresearchimplementation,interpretationoffindings,knowledgetranslation,projectplanning,andevaluation.
Theevaluationplanisdirectlylinkedtothetargetimpacts,andprovidesalistofclearcriteriatofacilitateprojectadministration,judgesuccess,ensuredisseminationoffindings,andprovideiterativefeedback.
CTBIRRSutilizesinnovativemeansofknowledgetranslationtotargetaudiences(consumers,providers,researchers,thirdpartypayers,policymakers),includingaconsumerconference,providerskillpacksandworkshops,factsheets,tipcards,surveysofcurrentpractices,peer-reviewedpublications,scholarlypresentations,andevidence-basedreviews.
Theprojectevaluatestargetfamiliaritywiththesubjectmatterandproductusefulness.
TheCTBIRRSprojectcollaborateswiththeModelSystemKnowledgeTranslationCentertodisseminatematerialsthatintegrateprojectfindingswithinthelargerbodyofresearchonpost-TBIbehavioralmanagement.
NIDRRProgramDirectoryFY2008-HealthandFunction2-34DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNorthCarolinaTBIModelSystemCollaborativeStudyofAmantadineforPostTBIIrritabilityandAggressionCarolinasMedicalCenter1100BlytheBoulevardCharlotte,NC28232flora.
hammond@carolinashealthcare.
orgwww.
carolinasrehabilitation.
org/body.
cfmid=200PrincipalInvestigator:FloraM.
Hammond,MDPublicContact:704/355-4330;Fax:704/355-0709ProjectNumber:H133A080035StartDate:October01,2008Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY08$855,000Abstract:Thisstudyfocusesonthechallengingproblemofirritability(primaryaim)andaggression(secondaryaim)inpost-traumaticbraininjurybyusingarigorousapproachtogenerateanddissemi-natenewknowledgeonthishighimpact,pervasive,andunder-studiedproblemthataffectsapproxi-mately29-71percentofindividualswithtraumaticbraininjury(TBI).
Buildinguponpriorresearch,projectgoalsinclude:(1)assesstheeffectofamantadinefor28daysatreducingTBIirritability;(2)assesstheeffectofamantadinefor28daysatreducingTBIaggression;(3)assesstheeffectofamanta-dinefor60daysonTBIirritabilityandaggression;and(4)assesstheeffectofamantadineoncognitivefunctionfollowingTBI.
ContinuousinputfromtheTBIcommunityisincorporatedintothedevelop-mentandimplementationoftheproject,andthroughoutthecourseofthisprojectintheareasofresearchimplementation,interpretationoffindings,knowledgetranslation,projectplanning,andevaluation.
Additionally,thisprojectisacollaborativeresearchpartnershipbetweenfiveotherpromi-nentTBIresearchcenters:UniversityofWashington,TheInstituteforRehabilitationandResearch,TheOhioStateUniversity,KesslerInstituteforRehabilitation,andSpauldingRehabilitationHospital.
TheknowledgegeneratedbythisprojectbenefitsthoselivingwithTBIbyincreasingawarenessthroughtargetedproductsandtrainingwithhealthcareproviders,consumers,researchers,vocationalcounselors,independentlivingproviders,thirdpartypayers,andpolicymakers.
NIDRRProgramDirectoryFY2008-HealthandFunction2-35DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsOhioOhioRegionalTBIModelSystemOhioValleyCenterforBrainInjuryPreventionandRehabilitationDepartmentofPhysicalMedicineandRehabilitationOhioStateUniversityDoddRehabilitationHospital480MedicalCenterDriveColumbus,OH43210lamb-hart.
1@osu.
eduwww.
ohiovalley.
orgPrincipalInvestigator:JohnD.
Corrigan,PhD;JenniferBogner,PhD;614/293-3830PublicContact:GaryLamb-Hart614/293-3802;Fax:614/293-8886ProjectNumber:H133A070029StartDate:October01,2007Length:60monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY07$434,393;FY08$434,354Abstract:Thisprojectincludesonelocalresearchprojectandacollaborativeresearchmodule.
Thelocalprojectisanextensionoftwopreviousrandomizedclinicaltrialsinwhichatargetedfinancialincentivewasfoundefficaciousforengagingandretainingpersonswithtraumaticbraininjury(TBI)insubstanceabusetreatment.
ThecurrentstudyinvestigatestheefficacyofafinancialincentiveforengenderingattendanceatworkaspersonswithTBIandsubstanceusedisordersinitiateemployment.
ThecollaborativeresearchmodulereplicatesandextendsapreliminarystudyrecentlycompletedatOSU.
Thatprojectusedgeographicidentifierstocompiledataaboutthesocialandeconomiccharac-teristicsofaperson'sneighborhood.
Researchersthenexaminedthecontributionoftheseenvironmen-talfactorstooutcomesfromTBI.
Thecurrentmodulecontributestoanevaluationoftheutilityofaddingageographicidentifier,basedonaperson'sresidenceatfollow-up,totheTBIModelSystemsNationalDataset.
Withthisidentifier,futureModelSystemsresearcherscouldaccessanever-growingarrayofinformationabouttheenvironmentandlinkittoModelSystemsdataaboutanindividual'soutcome.
Disseminationeffortsinclude"SynapShots",aneducationalwebsiteproducedwiththeBrainInjuryAssociationofAmerica,andasystematicreviewofScreeningandBriefInterventionsfortheModelSystemsKnowledgeTranslationCenter.
t:NIDRRProgramDirectoryFY2008-HealthandFunction2-36DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsOhioIndividualizedPlanningfortheFirstYearFollowingAcuteRehabilitationProjectOhioStateUniversity1166DoddRehabHospital480MedicalCenterDriveColumbus,OH43210lamb-hart.
1@osu.
eduwww.
ohiovalley.
orgPrincipalInvestigator:JohnD.
Corrigan,PhDPublicContact:GaryLamb-Hart614/293-3830;Fax:614/293-4870ProjectNumber:H133A080023StartDate:October01,2008Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY08$854,780Abstract:Thisprojectisamulti-centerresearchpartnershipamongtheOhioRegionalTBIModelSystem,theInstituteforClinicalOutcomesResearchinSaltLakeCity,Utah,andtheTBIModelSystemsNationalDataandStatisticalCenterandtheRockyMountainRegionalBrainInjurySystematCraigHospitalinColorado.
ThisprojectconductsaClinicalPracticeImprovement(CPI)studyofindividualdifferencesindemographiccharacteristics,pre-morbidstatus,injury-relatedconditions,andmedicalcoursethatdifferentiallypredicttheeffectivenessofrehabilitationinterventionsonfunctionalindependence,participation,andsubjectivewell-beinguptooneyearfollowingtraumaticbraininjury(TBI).
IncorporatingdatacollectedfortheNIH-fundedCPIstudy,thisprojectfocusesonacutereha-bilitation,andontherecoveryprocessesoccurringafterdischargefromrehabilitation.
CPImethodol-ogystudiesnaturallyoccurringdifferencesintreatmentpracticesinordertoidentifyindividualdiffer-encesintreatmenteffectiveness.
Itallowsalargenumberofintervention-by-impairmentinteractionstobeexamined,whileindividualpatientdifferences,includingseverityofTBIandmedicalcomplica-tions,arecontrolled.
Dataiscollectedat11TBIrehabilitationprogramsintheUnitedStatesandCanada:OhioRegionalTBIModelSystem,CarolinasTBIMSModelSystem,NewYorkTBIMSatMt.
Sinai,NationalRehabilitationHospital,ShepherdCenter,IntermountainMedicalCenter,RushUniversityMedicalCenter,BrooksRehabilitationHospital,LomaLindaUniversityRehabilitationInstitute,MontrealRehabilitationInstitute,andtheTorontoRehabilitationInstitute.
Researchsubjectsare2,315consecutive,consentingpatientsadmittedforrehabilitationofamoderateorsevereTBI.
Interviewsoccuratthreeandsixmonthspost-dischargeandoneyearpost-injuryallowingfordetailedcharacterizationofchangeduringthefirstyearofrecovery.
NIDRRProgramDirectoryFY2008-HealthandFunction2-37DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsOregonHealthandHealthCareDisparitiesAmongIndividualswithDisabilitiesOregonHealthandScienceUniversityChildDevelopmentandRehabilitationCenterP.
O.
Box574Portland,OR97239PrincipalInvestigator:CharlesDrum,PhD503/494-8364PublicContact:SusanWingenfeld503/494-3533;Fax:503/494-6868ProjectNumber:H133A080031StartDate:October01,2008Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY08$450,000Abstract:TheHealthDisparitiesProjectgeneratesnewknowledgeabouthealthaccessandhealthoutcomes,andtranslatesanddisseminatesthefindingsforresearchers,policymakers,andothers.
Assistedbyanassemblednationalexpertpanelandotherkeyprojectstaff,theprojectdeterminesworkingdefinitions,keyquestions,andanalyticmodelsforthestudies.
Disabilityperspectivesareintegratedthroughouttheprojectprocessfromdevelopmentoftheresearchhypothesesandselectionofdesigntoanalysisofdata.
Thisprojecthasfourmajorcomponents:(1)reviewandsynthesizeexistinghealthandhealthcareaccessamongindividualswithdisabilitiesandsubgroupsofindividualswithdisabilities;(2)usetheMedicalExpenditureSurveydatatoperformtwoseriesoflogisticregressionandpathanalysismodelingstudies;thefirstseriesofstudiesdeterminesmodelsofsystemslevel,environmentallevel,andindividuallevelfactorsthatrelatetohealthcareaccessamongpersonswitharangeofdisabilities;thesecondseriesextendstheseanalysestodeterminemodelsofhealthoutcomesforpersonswitharangeofdisabilities;(3)utilizeresearchfindingsinfutureresearch,program,andpolicydevelopmentthroughproactiveandpassivedisseminationmethods;and(4)integrateprojectactivitiestoensurethefieldofhealthdisparitiesresearchadvancesbeyonddocumentationtoexplana-tion,andopportunityforresolution.
NIDRRProgramDirectoryFY2008-HealthandFunction2-38DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsPennsylvaniaTheMossTraumaticBrainInjuryModelSystemAlbertEinsteinHealthcareNetworkMossRehabilitationResearchInstitute60EastTownshipLineRoadElkinsPark,PA19027thart@einstein.
eduwww.
einstein.
edu/facilities/mossrehab/index.
htmlPrincipalInvestigator:TessaHart,PhDPublicContact:215/663-6153;Fax:215/663-6113ProjectNumber:H133A070040StartDate:October01,2007Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY07$434,399;FY08$434,399Abstract:TheMossTBIMSincludestwosite-specificresearchprojectsembeddedwithinastate-of-the-arttraumaticbraininjury(TBI)treatmentandclinicalresearchfacility.
Project1isaplacebo-controlledpilotstudyoftheeffectsofdextroamphetamine(DEX)onattention,engagementintherapy,cognitiveandmotorspeed,andotheroutcomesinsubacuteTBI.
ThisprojectalsoexaminesthepossibilitythatDEXacceleratesthepaceoffunctionalrecoveryinthesubacutephase.
Project2isacross-nationalcollaborationwithaspecialtyTBIserviceinaCopenhagenhospital,whichhasmanysimilaritiestotheMossTBIMSintermsofpatientmix,treatmentphilosophy,andculturalmilieu.
TheCopenhagenfacilityprovidessignificantlylongerand,insomerespects,moreintensiveinpatientcareandrehabilitationcomparedtoMoss(andotherUSrehabilitationfacilities),evenforpatientswithcomparableinjuryseverity.
ThisaffordsanaturalexperimentinwhichpersonswithTBItreatedatthetwofacilitiesarecomparedonarangeof6-and12-monthoutcomes,includingfunctionalstatus,emotionalwell-beingandqualityoflife,andcaregiverburden.
TheMossTBIMSalsocollaboratesinmulti-centerlongitudinaldatabaseresearchandcollaborativemoduleprojects.
Inaddition,extensiveknowledgetranslationprojectsprovideevidence-basedskillsandknowledgeenhancementforclini-ciansspecializinginTBIcareandforconsumersviacollaborationwiththeBrainInjuryAssociationofPennsylvania.
NIDRRProgramDirectoryFY2008-HealthandFunction2-39DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsTexasNorthTexasBurnRehabilitationModelSystem(NTBRMS)TheUniversityofTexasSouthwesternMedicalCenterDepartmentofPhysicalMedicineandRehabilitation5323HarryHinesBoulevardDallas,TX75390-9136radha.
holavanahalli@utsouthwestern.
eduwww.
utsouthwestern.
edu/utsw/home/research.
ntbrmsPrincipalInvestigator:KarenKowalske,MD214/648-2288PublicContact:RadhaHolavanahalli,PhD214/648-9540;214/648-3654;Fax:214/648-2005ProjectNumber:H133A070024StartDate:October01,2007Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY07$362,500;FY08$362,500Abstract:TheNorthTexasBurnRehabilitationModelSystem(NTBRMS)includesonecollaborativeresearchmoduleprojectentitled"AxillaryBurnScarContracturePreventionwithImmediatePost-OperativeCastingandSplinting",andtwositespecificresearchstudiesentitled"BiomechanicalPropertiesofBurnScar"and"EfficacyofSocialInteractionSkillsTrainingPostBurnInjury.
"Col-laborationoccursonmanylevelsattheNTBRMS.
Clinicalcollaborationisthehallmarkoftheburnteam,whichincludesindividualsfromseveralinstitutionswhoworktogetherseamlesslyaswellascollaborationwithourruralcareprovidersthroughoutreachclinics.
Researchcollaborationoccurslocallywiththesurgeonsandacademiccomputingandnationallywiththeothermodelsystems.
Theevaluationplanspecificallyfocusesontheoverallobjectivesfordemonstration,research,anddissemi-nationwithspecificquantifiabletargets,whicharereassessedquarterly.
DisseminationofNTBRMSmaterialsoccursatmanylevelsandinavarietyofformats:lecturesbykeypersonnel,publicationinpeerreviewedjournals,aquarterlynewsletter,andanaccessiblewebsiteavailableinEnglishandSpanish.
TheNTBRMScollaborateswithNIDRR-fundedModelSystemsKnowledgeTranslationCenter(MSKTC)byparticipatinginitssystematicreviewsofevidenceandfacilitatingknowledgemanagementbyidentifyingtheinformationneedsandbarriersamongthevariousstakeholdersbothatnationalandlocallevels.
NIDRRProgramDirectoryFY2008-HealthandFunction2-40DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsTexasNorthTexasTraumaticBrainInjuryModelSystem(NT-TBIMS)TheUniversityofTexasSouthwesternMedicalCenterDepartmentofNeurology5323HarryHinesBoulevardDallas,TX75390-9036caryn.
harper@utsouthwestern.
eduwww.
utsouthwestern.
edu/utsw/home/research/neurology/tbi/index.
htmlPrincipalInvestigator:RamonR.
Diaz-Arrastia,MD,PhD214/648-6409PublicContact:CarynR.
Harper,MS,ProjectManager214/648-7613;Fax:214/648-3143ProjectNumber:H133A070027StartDate:October01,2007Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY07$430,350;FY08$430,350Abstract:Thisprojectprovidescomprehensivecontinuumofcarefortraumaticbraininjury(TBI)fromthetimeofarrivalattheemergencydepartmentthroughtheintensivecareunit,inpatientandoutpatientrehabilitation,andlong-termfollow-upaftercommunityintegration.
Theprojectconductstwolocalresearchprojectsaimedatfurtheringthegoalofdevelopingnoveltherapiesandtailoringthesetherapiestoindividualpatients:(1)APhaseIIrandomized,placebo-controlledclinicaltrialtodeterminewhethertherapywithrecombinanthumangrowthhormone(rhGH)duringtheacutereha-bilitationperiodafterTBIresultsinimprovedfunctionaloutcome;and(2)anobservationalstudyusingmagneticresonanceimaging(MRI)duringtheacuterehabilitationperiodtovalidatetheuseofDiffu-sionTensorImaging(DTI)asabiomarkerofdiffuseaxonalinjury.
Additionally,theNT-TBIMSworkscollaborativelywithotherTBI-MSHealthModulemembersinamodularprojecttodevelopaBrainInjuryAssessmentScale,whichallowsreliableandvalidatedassessmentofsensorimotorimpair-mentsafterTBI.
ThegoalisthatthisscalebeasusefulintheTBIfieldastheNIHStrokeScalehasbeeninclinicaltrialsinstroke.
Finally,theNT-TBIMSprovidespatientandfamilyeducation,anddisseminationofresearchfindingstotheprofessionalcommunitybyconductingseminars,presentingtheresultsatprofessionalmeetings,andpublishinginprofessionalandlayjournalsdevotedtoTBI.
NIDRRProgramDirectoryFY2008-HealthandFunction2-41DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsTexasPediatricBurnInjuryRehabilitationModelSystemUniversityofTexasMedicalBranch815MarketStreet,Route1220Galveston,TX77550dherndon@utmb.
edu;patblakeney@earthlink.
net;Jlbailey@utmb.
eduPrincipalInvestigator:DavidHerndon,MD409/770-6731PublicContact:PatBlakeney,PhD409/770-6718or713/661-1745;409/770-6731;Fax:713/661-2871;409/770-6919ProjectNumber:H133A070026StartDate:October01,2007Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY07$362,500;FY08$362,500Abstract:Thisprogramconductsindependentandmulti-centerprojectsfocusingonevaluatingandimprovingtherehabilitationprovidedtochildrenwithburninjuries,strivingtodecreasedisabilityandimprovereintegrationintosociety.
Themodelsystemincludesonecollaborativeprojectassessingtheefficacyoflongtermuseofpropranololinthetreatmentofburninjury(inadultsandchildren)withendpointsofimprovedsurvivability,improvedcardiovascularcondition,greaterenergy,improvedmuscleendurance,improvedgrowthinchildren,anddecreasedanxiety.
Theprojectalsoincludesasite-specificstudytoimproverehabilitativeoutcomesforchildrenwithgreaterthan40percenttotalbodysurfaceareaburnedbycombiningananabolicagent(oxandrolone,Ketoconazole,orpropra-nolol)witha3-monthintensiveoutpatientrehabilitationprogram.
Thesupervisedexerciseprogramhasshowntobeeffectiveinamelioratingeffectsofthehypermetabolicresponse.
Thisprojectassessestheeffectivenessofcombiningtheanabolicagentsandtheexerciseprogramwiththeexpectationthattheeffectswillbeadditiveandwillimprovelineargrowth,bonemass,musclestrength,leanbodymass,physicalfunction,andgeneralwell-being.
Thelaststudy,alsositespecific,isacontinuationfromthepreviousfundingcycle.
ItfocusesonAcuteStressDisorder(ASD)andPostTraumaticStressDisorder(PTSD),aproblemthatimpairsthewell-beingofburnpatients.
ThestudyfollowschildrenwithASDtoaccesstherelationshipofthetwodisordersandtoelucidateahistoryofthedevelopmentofPTSD.
NIDRRProgramDirectoryFY2008-HealthandFunction2-42DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsTexasTheTexasTraumaticBrainInjuryModelSystemofTIRRTheInstituteforRehabilitationandResearch(TIRR)1333MoursundAvenueHouston,TX77030mark.
sherer@memorialhermann.
orgwww.
memorialhermann.
org/locations/TIRR_tbi.
htmlPrincipalInvestigator:MarkSherer,PhDPublicContact:713/799-7007ProjectNumber:H133A070043StartDate:October01,2007Length:60monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY07$430,350;FY08$430,350;FY09$430,350Abstract:TheTexasTBIModelSystemofTIRRconductsaprogramofresearch,disseminationactivities,andclinicalcaredesignedtoaddresssocialrelationshipsandtoimproveoutcomesforpersonswithTBI.
Researchactivitiesinclude:(1)contributionstotheTBIModelSystemsNationalDatabase,(2)acollaborative,multi-center,researchmoduleprojectonsexualityafterTBI,and(3)alocalprojectonsocialcommunicationdifficultiesafterTBI.
Acollaborativeprojectonsexualitydeterminesthefrequency,type,andseverityofchangesinsexualfunctioningafterTBI.
Aspartofthisproject,researchersconductthefirstrandomized,clinicaltrialofaninterventiontoincreasesatisfactionwithsexualfunctioningandcomfortlevelindiscussingsexualissuesforpersonswithTBIandtheirpartners.
Alocalprojectonsocialcommunicationconductsarandomizedclinicaltrialofaninterven-tiontoimprovesocialcommunicationskillsandsocialintegrationforpersonswithTBI,withthelargestsamplesizeofanysimilarstudyandoneofonlytworandomizedcontrolledtrialsconductedinthisareaforover20years.
NIDRRProgramDirectoryFY2008-HealthandFunction2-43DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsVirginiaMedicaidQualityIndicatorsforIndividualswithDisabilitiesGeorgeMasonUniversityCollegeofHealthandHumanServicesCenterfortheStudyofChronicIllnessandDisability4400UniversityDriveMS5B7Fairfax,VA22030spalsbo@gmu.
educhhs.
gmu.
edu/ccidPrincipalInvestigator:SusanE.
Palsbo,PhDPublicContact:541/505-7591;Fax:541/505-7591*51ProjectNumber:H133A040016StartDate:July01,2004Length:48monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY04$299,999;FY05$299,999;FY06$299,999;FY07$299,999;FY08(No-costextensionthrough06/30/2009)OtherFunding:FY07$367,359(CaliforniaHealthCareFoundation)Abstract:Thisprojectdevelopsandvalidateshealthservicequalityindicatorsforpeoplewithdisabili-ties.
ThetargetpopulationtobeservedispeoplewithdisabilitiesenrolledinmanagedMedicaidprograms.
Thegoalistodevelopandfieldtestqualitymeasuresforpeoplewithdisabilitiesinmanagedcareorganizations.
Thespecificaimsare:(1)Caseidentification:ImprovethecomputeralgorithmforMedicaidplanstoidentifybeneficiarieswhohavedisabilities.
(2)Plan-reportedindicators:SelectasubsetofexistingHEDISMedicaidmeasuresthatareappropriateandstatisticallymeaningfulforindicatingthequalityofcareforthepeopleidentifiedinAim#1.
(3)Consumer-reportedindicators:AssessthecontentvalidityoftheAxis-CAHPSsurvey.
(4)Developcomparativereportingtoolsofthequalityofcarebetweenandwithinhealthplans.
Thisisacombinedqualitativeandquantitativestudywiththreeinterrelatedsegments:(1)ExtendpreviousresearchonusingroutinehealthclaimsdatatoidentifybeneficiarieswhoareatriskofneedingmodifiedhelptoaccesstheirMedicaidbenefitsandservices;(2)reviewandrefinethetwomostwidelyusedMedicaidqualityindicatortools,CAHPSandHEDIS;andextendworkonrefiningtheCAHPSinstrumentforpeoplewithphysicaldisabilities;and(3)explorehowpeoplewithdisabilities,payers,andproviderscanusetheindicatorstoimprovepracticeandreportoutcomesusingcomparativereportingtools.
NIDRRProgramDirectoryFY2008-HealthandFunction2-44DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsVirginiaVirginiaCommonwealthTraumaticBrainInjuryModelSystemVirginiaCommonwealthUniversityDepartmentofPhysicalMedicineandRehabilitationBox980542Richmond,VA23298-0452jhmarwit@vcu.
eduwww.
tbi.
pmr.
vcu.
eduPrincipalInvestigator:JeffreyS.
Kreutzer,PhD804/828-9055PublicContact:JenniferMarwitz804/828-3704;Fax:804/828-2378ProjectNumber:H133A070036StartDate:October01,2007Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY07$426,720;FY08$426,720Abstract:Thisprojectutilizesrigorousscientificmethodstoexaminethebenefitsofinterventionforsurvivorsoftraumaticbraininjury(TBI)andtheirfamiliesbeforeandafterinpatientrehabilitationdischarge.
TraumaticBrainInjuryModelSystems(TBIMS)andotherresearchershaveexpendedconsiderableenergydelineatingoutcomes.
Forexample,researchershavethoroughlydocumentedproblemsafterinjury,includingmemorydisturbance,impairedself-awareness,executiveskillsdys-function,slowness,visualdysfunction,poormotorcoordination,andbehavioraldisorders.
Recentstudieshaveidentifiedahighprevalenceofdepression,withmanysurvivorsreportingfeelingsofhopelessness,diminishedself-esteem,andsocialisolation.
Braininjuryalsoaffectsthefamilysystem;familymemberscommonlydescribeemotionaldistress,lackofrespite,financialstress,andlackofcommunitysupport.
ProjectsattheModelSystemfocusonbothsurvivorsandfamilies.
Onestudyisarandomizedcontrolledtrialtoexaminetheefficacyofastructuredapproachtothetreatmentofacutecognitiveandneurobehavioralproblems.
Asecondstudyisarandomizedcontrolledtrialtoexaminethebenefitsofaninterventionprogramforfamilycrisisandsupport.
NIDRRProgramDirectoryFY2008-HealthandFunction2-45DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsWashingtonUniversityofWashingtonBurnModelSystemUniversityofWashingtonDepartmentofSurgery,DivisionofPlasticSurgeryHarborviewMedicalCenter325NinthAvenueBox359796Seattle,WA98104engrav@u.
washington.
edudepts.
washington.
edu/uwnidrr/PrincipalInvestigator:LorenH.
Engrav,MDPublicContact:206/731-3209;Fax:206/731-3656ProjectNumber:H133A020103StartDate:October01,2002Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY02$300,000;FY03$300,000;FY04$300,000;FY05$300,000;FY06$300,000;FY07(No-costextensionthrough9/30/2008);FY08(No-costextensionthrough12/31/2009)Abstract:Thismodelsystemconductsfiveresearchprojects:(1)ANewApproachtotheEtiologyofHypertrophicScarringdevelopsanincreasedunderstandingofhypertrophicscarring.
(2)EffectofVirtualRealityonActiveRange-of-MotionDuringPhysicalTherapyusesdistractionviaimmersivevirtualrealityasanadjunctivenon-pharmacologicanalgesic.
Thisstudyteststhehypothesisthatvirtualrealityallowspatientstotolerategreaterstretchingduringphysicaltherapycomparedtonodistraction,andthatinspiteofachievinggreaterrange-of-motion,patientsstillexperiencelowerpainlevelswhileinvirtualreality.
(3)DeterminationofReasonsforDistressinBurn-InjuredAdultsidentifiesreasonsbehindaburnsurvivor'sdistressatvarioustime-pointsafterhospitaldischarge.
(4)BarriersforReturntoWorkidentifiesspecificbarrierstoreturntoworkforburnsurvivors.
(5)AcuteStressDisorderAmongBurnSurvivorsevaluatestheeffectivenessofcognitive-behavioraltherapy,relativetoanon-directive,supportivetherapycontrolgroup,andanationalcomparisonsampleinreducingthepreva-lenceofposttraumaticstressdisorderdiagnosisandsymptomseverity.
Projects4and5arecollabora-tive.
Inaddition,thisprojectparticipatesinthenationaldatabase.
NIDRRProgramDirectoryFY2008-HealthandFunction2-46DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsWashingtonTheEffectofScheduledTelephoneInterventiononOutcomesAfterTraumaticBrainInjury(TBI)UniversityofWashingtonDepartmentofRehabilitationMedicineBox356490,BB-953HealthSciencesSeattle,WA98195krbell@u.
washington.
edudepts.
washington.
edu/rehab/tbiPrincipalInvestigator:KathleenR.
Bell,MDPublicContact:206/685-0935;Fax:206/685-3244ProjectNumber:H133A040004StartDate:December01,2004Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY04$600,000;FY05$600,000;FY06$600,000;FY07$600,000;FY08$600,000Abstract:Thisprojectevaluatestheeffectofscheduledtelephoneintervention(STI)onfunctionalandhealthoutcomes,atweeks1-2,4,8,and12,andmonths5,7,and9onfunctionallevel,healthandemotionalstatus,communityintegration,andperceivedqualityofwell-beingover1yearafterTBI.
Thisalow-cost,easily-implementedinterventionistrialedinthreestates.
Timelyinterventiontoiden-tifyproblemsafterTBI,toteachpatientsandtheirfamiliescopingtechniqueswithintheirowncommu-nitiesandsupporttheirindependentdecision-making,mayeffectivelydecreasetheneedforexpensiveandofteninaccessibleservicesandmayimprovethequalityoflifeforsurvivorsofTBI.
ResearchersareevaluatingtheeffectofadditionalSTIatmonths15,18,and21onthesamevariablesandemploy-mentat2yearsafterTBI.
Researchexamineswhethertheeffectsofsuchinterventionaresimilarinmultiplesitesoverawidegeographicarea.
Italsoexaminesthedifferentialimpactoftheinterventionindemographicsubgroups,withparticularattentiontominorityversusnon-minorityracialandethnicpopulations.
NIDRRProgramDirectoryFY2008-HealthandFunction2-47DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsWashingtonControlledTrialofVenlafaxineXRforDepressionAfterSCI:AMultisiteStudyUniversityofWashingtonDepartmentofRehabilitationMedicineHarborviewMedicalCenter3259thAvenueSeattle,WA98104chb@u.
washington.
edusci.
washington.
eduPrincipalInvestigator:CharlesH.
Bombardier,PhDPublicContact:206/744-3665;Fax:206/685-3244ProjectNumber:H133A060107StartDate:January01,2007Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY06$2,198,213;FY07$899,981;FY08$899,982Abstract:Thisprojectisamultisite,randomized,double-blind,placebocontrolledtrialofvenlafaxineXR(EffexorXR)in168adultswithspinalcordinjury(SCI)andmajordepressivedisorder(MDD)whoare18-65yearsoldandoneormoreyearspostinjury.
ThepurposeofthestudyistoexaminetheefficacyandtolerabilityofvenlafaxineXRasatreatmentforMDD.
Theprimaryoutcomeisthepercentofresponders(thosewhoreportatleasta50%reductionindepressionseverityfrombaselinetotheendoftreatment)inthevenlafaxineXRversusplacebocontrolgroupusingintent-to-treatanalysis.
Secondaryoutcomesincludechangesinpain,healthrelatedqualityoflife,andparticipation.
AsuccessfulclinicaltrialcouldleadtomoreaggressiveidentificationandtreatmentofMDDaswellasimprovedhealthandqualityoflifeinthisimportantpopulation.
ThisisacollaborativeprojectwiththeNorthwestRegionalModelSpinalCordInjurySystem.
NIDRRProgramDirectoryFY2008-HealthandFunction2-48DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsWashingtonUniversityofWashingtonBurnModelSystemUniversityofWashingtonDepartmentofSurgery,DivisionofPlasticSurgeryDepartmentofRehabilitationMedicineHarborviewMedicalCenter325NinthAvenueBox359796Seattle,WA98104engrav@u.
washington.
edudepts.
washington.
edu/uwnidrrPrincipalInvestigator:LorenH.
Engrav,MD;PeterC.
Esselman,MDPublicContact:206/731-3209;Fax:206/731-3656ProjectNumber:H133A070047StartDate:October01,2007Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY07$362,458;FY08$362,459Abstract:TheUniversityofWashingtonBurnModelSystemincludesonemulti-site,collaborativeproject,andtwosite-specificprojects.
Project1:PsychologicalandSocialNeedsofLongTermSurvi-vorsofMajorBurnInjuryisacollaborativestudy(leadcenterBaltimore)toidentifytheneedsofpersons5and10yearsafterinjury.
Project2(Site-Specific):ExpandedDeliveryModelforBurnRehabilitationincorporatesanovelintervention,an"expandedcareprovider",whoenablescliniciansto"reachout"toindividualswithburninjuryandforthemto"reachin"tocareproviderswhenevercareisneeded,ratherthanonarigidscheduletodetermineifthisimprovesburnrehabilitationout-comes.
Inarandomizedtrial,Group1receivesstandardoutpatientclinic-basedrehabilitation.
Group2hasanadditionalcareproviderwhousesmultiplemodalitiestomanagethemultifacetedsequelaeofthermalinjury.
OutcomesareassessedusinganindividualizedGoalAttainmentScaleandthevalidatedBurnSpecificHealthScale.
Project3(SiteSpecific):IdentificationofthePathwaystoScarringutilizesbioinformaticstoolstoidentifygeneexpressionpathwaysassociatedwithhypertrophicscarring.
Inaddition,wecontributelong-termfollow-updatatothenationaldatabasemaintainedattheUniversityofColoradoinDenver.
NIDRRProgramDirectoryFY2008-HealthandFunction2-49DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsWashingtonUniversityofWashingtonTraumaticBrainInjuryModelSystemUniversityofWashingtonDepartmentofRehabilitationMedicineBox356490,BB-953HealthSciencesSeattle,WA98195krbell@u.
washington.
edudepts.
washington.
edu/rehab/tbiPrincipalInvestigator:KathleenR.
Bell,MDPublicContact:206/685-0935;Fax:206/685-3244ProjectNumber:H133A070032StartDate:October01,2007Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY07$430,349;FY08$430,348Abstract:UniversityofWashington'sTraumaticBrainInjuryModelSystem(UWTBIMS)providesacomprehensive,integratedcontinuumofmedical,surgicalandrehabilitationservicestopersonswithacuteandchronicTBI.
Thisprojectconductstwosite-specificprojects.
Thefirstisarandomizedcontrolledinterventionstudyevaluatingtheeffectofastructured,telephone-basedmentoringprogramforcaregiversfocusingonself-managementskills.
Thisstudybuildsuponpreviousexperienceswithtelephonecounselingforbothpeoplewithtraumaticbraininjuryandmultiplesclerosis.
Thisresearchisparticularlyimportantbecausecaregiversaresocrucialtothesuccessfulrehabilitationandcommu-nityre-integrationofpersonswithTBIandtheliteratureonsuccessfulinterventionsforthispopulationissosparse.
Theuseofatelephone-basedprogramallowsresearcherstoreachthose(especiallyinruralregions)wholackreadyaccesstoknowledgeableadvice,behaviorchangesupport,andspecialtycaresufficienttomaintainthehealthoftheirsignificantotherandthemselves.
Thesecondprojectutilizesalargeandrichdatabasetopredictanumberofimportantlong-termoutcomes.
ThemodularprojectstudiesthenaturalhistoryofheadacheunderconditionsofusualcareduringthefirstyearafterTBI.
Thisprojectcharacterizesthecourseandnatureofheadache,acommonbutpoorlystudiedconsequenceofTBI.
Itexaminestheimpactofheadacheonoutcomeanditspotentialmodifiers,describespatienttreatmentpreferences,andlaysthefoundationforamulti-siteclinicaltrial.
NIDRRProgramDirectoryFY2008-HealthandFunction2-50ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsAlabamaUABModelSpinalCordInjuryCareSystemUniversityofAlabama/BirminghamSpainRehabilitationCenter619-19thStreetSouthSRC529Birmingham,AL35249-7330mott@uab.
edumain.
uab.
edu/show.
aspdurki=10712PrincipalInvestigator:AmieB.
Jackson,MD205/934-3330PublicContact:PamelaK.
Mott,Director,ResearchServices205/934-3283(V);205/934-4691(TTY);Fax:205/975-4642ProjectNumber:H133N060021StartDate:October01,2006Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY06$474,471;FY07$474,471;FY08$474,471Abstract:TheUniversityofAlabamaatBirminghamprovidesrehabilitationservicesspecificallydesignedtomeetthespecialneedsofindividualswithspinalcordinjury(SCI)throughitsmultidisciplinary,comprehensiveSpinalCordInjuryCareSystem(UAB-SCICS).
TheUAB-SCICSspanstheclinicalcontinuumfromemergencyservicesthroughrehabilitationandcommunityre-entry.
TheSystem'sresearchincludesonecollaborativeresearchmoduleandtwoin-houseresearchprojects,allofwhichultimatelyaimatimprovingthehealthandfunctionofitsconstituents.
Thecollaborativeresearchmoduleinvolvesthevalidationofanoutcomemeasureforfunctionalrecovery.
Onein-houseresearchprojectinvolvestheassessmentofthepredictivevalueofkeypartsoftheneurologicalexamforreturnofbladderfunction;thesecondisaninvestigationoftheeffectofnicotineondifferenttypesofSCIpain.
TheprojectcontinuestobenefitfromtheactiveinvolvementofpersonswithSCIinthedesignandexecutionoftheproposedactivities.
Projectresultsaredisseminatedviaavarietyofacces-sibleformatsandvenuesforbothprofessionalsandpersonswithSCIandtheirfamilies.
Adetailedplanofoperationensurestimelycompletionofprojectgoalsandtasks.
Finally,anevaluationplanhasbeendesignedtoassessthequalityandtimelinessofprojectoutcomesanddissemination,aswellasshortandlongtermimpactsofprojectactivities.
ActivitiesoftheUAB-SCICSreflectanactivepart-nershipbothwithinthecomponentsofUAB'shealthsystemandbetweenUAB,theLakeshoreFoundation,andtheBirminghamVAMedicalCenter.
TheprojectcontinuesasaparticipantindatacollectionactivitiesfortheNationalSpinalCordInjuryStatisticalCenter.
NIDRRProgramDirectoryFY2008-HealthandFunction2-51ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsColoradoTheRockyMountainRegionalSpinalInjurySystemCraigHospital3425SouthClarksonStreetEnglewood,CO80113susie@craighospital.
orgwww.
craighospital.
org/Research/SCIMain.
aspPrincipalInvestigator:DanielP.
Lammertse,MD;SusanCharlifue,PhD;303/789-8220PublicContact:SusanCharlifue,PhD303/789-8306(V);303/789-8575(TTY);Fax:303/789-8441ProjectNumber:H133N060005StartDate:October01,2006Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY06$489,000;FY07$489,000;FY08$489,000Abstract:TheRockyMountainRegionalSpinalInjurySystem(RMRSIS)goalsareto:(1)implementaprogramofresearchfocusingontheimmediateandlong-termhealth,function,andcommunityintegrationandparticipationofpeoplewithSCI;(2)improveitsexistinglifetimesystemofcareforpeoplewithSCI;and(3)continueexemplaryparticipationintheNationalSCIDatabase.
Asite-specificstudydeterminesifhighvs.
lowtidalvolumesaremoreeffectiveinachievingventilatorweaningforindividualswithhighleveltetraplegia,usingarandomizedclinicaltrialdesign.
Acollabo-rativeresearchmodulestudyinvolvesthedevelopmentofareliable,validmeasurementtooltoassesscommunityparticipation.
RMRSISincludestwoLevelItraumacenterswithspecializedacuteneurotraumacarefacilities(St.
AnthonyHospitalandSwedishMedicalCenter)andtherehabilitationandlifetimefollow-upservicesofCraigHospital.
NIDRRProgramDirectoryFY2008-HealthandFunction2-52ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsDistrictofColumbiaNationalCapitalSpinalCordInjuryModelSystemNationalRehabilitationHospitalMedStarResearchInstitute102IrvingStreet,NWWashington,DC20010www.
sci-health.
org;www.
ncscims.
orgPrincipalInvestigator:SuzanneL.
Groah,MD202/877-1196PublicContact:DonalLauderdale,MSE202/877-1425;Fax:202/726-7521ProjectNumber:H133N060028StartDate:October01,2006Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY06$449,417;FY07$449,417;FY08$449,417Abstract:TheNationalCapitalSpinalCordInjuryModelSystem(NCSCIMS)servesWashington,DCandthenation.
Byfocusingonthefrequentandcostlycomplicationofpressureulcers(PU),theNCSCIMSleveragestwouniquestrengths:anexistingRehabilitationResearchandTrainingCenteronSCIthatfocusesonreductionofsecondaryconditions,andthepopulationofWashington,DC,whichispredominantlycomposedofunderservedindividuals.
TheCenterincludestwosite-specificandonemodularprojectanddescribesasystemofcarethatmeetsSCIMSpriorities:SiteSpecificProject1isaPractice-BasedEvidence(PBE)projectspecificallyfocusedonPUpreventionforallindividualswithSCIand/ordisease(SCI/D)duringtheacuteandrehabilitativephasesofcare(toevolvetothecommunityinlaterphases).
ThePBEapproachallowsadetailedexaminationoftheeffectsofmethods,modalities,andtherapiesutilizedinrehabilitationtopreventPUs,whichareoftenbasedonevidence-basedmedicine,butinrealitymaynotbeextrapolatedtothebroaderpopulationwithSCI/D.
Inthisproject,researchersaimtoutilizeaPBEapproachtoaugmentevidence-basedpracticewhileaddressingacriticalsecondarycomplicationforindividualswithSCI.
SiteSpecificProject2isanSCINavigatorpilotprojectthatcombineselementsofPeerMentoringandPatientNavigationtodecreasetheoccurrenceofPUsoncetheindividualhasreturnedtothecommunity.
Inthisproject,anSCINavigatorassistspeoplewithnewly-acquiredSCIinthetransitionfrominpatientrehabilitationtothecommunity,withintheframeworkofan,attimes,dysfunctionalhealthcaresystem.
TheNCSCIMSworkswiththeModelSystemattheUniversityofPittsburgtoexploreAssistiveTechnologyforMobility(ATM).
Inthisproject,researchersinvestigatethedegreetowhichinadequatewheelchairtechnologyisthefactorpreventingpeoplewithSCIfromdoingmore,worktounderstandtheimpactofchangesinwheelchairreimbursement,andfullyexploretheissueofdisparityinATMprescription.
NIDRRProgramDirectoryFY2008-HealthandFunction2-53ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsGeorgiaGeorgiaRegionalSpinalCordInjuryCareSystemShepherdCenter,Inc.
CrawfordResearchInstitute2020PeachtreeRoadNorthwestAtlanta,GA30309-1465lesley_hudson@shepherd.
orgwww.
shepherd.
orgPrincipalInvestigator:DavidF.
Apple,Jr.
,MD;LesleyM.
Hudson;404/350-7353PublicContact:LesleyM.
Hudson404/350-7591;Fax:404/355-1826ProjectNumber:H133N060009StartDate:October01,2006Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$474,417;FY07$474,417;FY08$474,417Abstract:TheGeorgiaRegionalSpinalCordInjuryCareSystemadmitsapproximately200individu-alsannuallywithacuteonsetparalysissecondarytospinalcordinjury,andcollectspost-dischargedataon600individualseachyear.
ItspatientpopulationcomesprimarilyfromGeorgia,therestoftheSoutheast,andtheEasternSeaboard.
Thecontinuumofcarebeginsatinjuryandcontinuesthroughtransport,assessment,acutecare,rehabilitation,emotionaladjustment,communityreintegration,andlifetimefollow-up.
Theprojectcontinuesalongrecordofcomprehensiveandtimelycollectionofdataonsubjectswhomeettheinclusioncriteriainthreecategories:inpatienthospitalization;longitudinalcollectionat1,5,10,15,20,and25yearspost-injury;andregistry.
Inadditiontocontinuedmodelsystemresearch,theprojectconductstwositespecificresearchprojects:(1)PsychologicalStatusDuringInpatientRehabilitationandOneYearAfterOnset:Stress,Coping,andExpectationHopeforRecovery;(2)DevelopmentandValidationofaClinicalMeasureofWheelchairSeatCushionDegra-dation.
TheprojectalsomanagesacollaborativedatacollectionresearchmoduleentitledImpactofSCIonLaborMarketParticipation.
NIDRRProgramDirectoryFY2008-HealthandFunction2-54ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsIllinoisMidwestRegionalSpinalCordInjuryCareSystem(MRSCIS)RehabilitationInstituteofChicago345EastSuperiorStreet,Room1146Chicago,IL60611www.
ric.
org/research/centers/MidwestRegionalSpinalCordInjuryCareSystem/MRSCICS.
aspxPrincipalInvestigator:DavidChen,MDPublicContact:312/238-0764ProjectNumber:H133N060014StartDate:October01,2006Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY06$484,000;FY07$484,000;FY08$484,000Abstract:TheSpinalCordInjuryRehabilitationProgramattheRehabilitationInstituteofChicagoandtheAcuteSpinalCordInjuryProgramatNorthwesternMemorialHospitaldemonstratetheongo-ing,comprehensive,multidisciplinaryservicesthatareprovidedtoindividualswithspinalcordinjury(SCI)whichallowthemtooptimizetheirrehabilitationoutcomesandenhancetheirabilitytoreturntoproductive,independentlivinginthecommunity.
Inordertocontributetotheimprovementofout-comesforpersonswithSCI,theSystemconductstwosite-specificresearchprojects:(1)DevelopmentofLow-CostDevicestoIncreaseDeliveryofIntensiveTreadmillTraining,and(2)DisparitiesinAccesstoandOutcomesofRehabilitationCareforMedicareandMedicaidBeneficiarieswithSpinalCordInjury.
Inaddition,theprojectincludescollaborationononeresearchproject,AssistiveTechnol-ogyforMobility(ATM)Module.
MRSCICShasthecapacitytoenroll140individualsfromculturallydiversebackgroundswithnewspinalcordinjuriesannuallyintotheSpinalCordInjuryModelSystemsdatabase,andcollectfollow-updataonindividualsenrolledbetween1973and2000.
NIDRRProgramDirectoryFY2008-HealthandFunction2-55ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsMassachusettsTheNewEnglandRegionalSpinalCordInjuryCenterBostonUniversityMedicalCenterHospitalDepartmentofRehabilitationMedicinePrestonF-511;732HarrisonAvenuesBoston,MA02118-2393jane.
wierbicky@bmc.
orgwww.
bumc.
bu.
edu/Dept/Content.
aspxDepartmentID=91&PageID=332PrincipalInvestigator:SteveWilliams,MDPublicContact:JaneWierbickyClaudineDeJoie617/638-7316(Wierbicky);617/638-7389(DeJoie);Fax:617/638-7313ProjectNumber:H133N060024StartDate:October01,2006Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY06$464,417;FY07$464,417;FY08$464,417Abstract:TheNewEnglandRegionalSpinalCordInjuryCenter(NERSCIC),basedatBostonMedicalCenter(BMC),usesanetworkofrehabilitationhospitals,partners,andaffiliatestodeveloparegionalcapacitytodisseminatematerialsinsuchawaythattheywillbeutilizedbothbyconsumerswithSCIandtheirfamilies,andhealthcareprofessionals,withparticularattentiontominoritiesandunderservedgroups.
NERSCIC'ssite-specificresearchprojectinvolvesdesigninganimprovedout-comeinstrumentinSCIresearch.
Thisprojectappliescontemporarymeasurementmethods(CATS)toinitiateamajortransformationintheoutcomeassessmenttechnologyusedtoassessactivitylimitationfrequentlymonitoredinSCIresearch.
OncetheSCI-CAThasbeendevelopedusingdatacollectedfrontmajorfieldstudy,ademonstrationoftheSCI-CATevaluatesitsrespondentburden,acceptabilitytopatientsandclinicians,aswellasitsbreadth,precision,sensitivitytochange,andvaliditywithinpatientsandoutpatientswithSCIwhoarereceivingcarefromNERSCIC.
ComparisonsaremadebetweentheFIMandSCI-CATovera6-monthfollow-upperiod.
Additionally,thissite-specificprojectwillbeintegratedwiththeNeuroQoLcollaborativemodule,inordertoexpandandimprovebothprojectsandtoavoiddevelopingcompetingcomputeradaptivetestinginstruments.
ThisprojectisnowreferredtoastheQOL/SCI-CATCombinedProject.
Lastly,NERSCICisaparticipatingsiteintheSCICollaborativeParticipationModule,ledbyGaleWhiteneckatCraigHospital,toaddresstheimportanceofparticipationgiventhecurrentabsenceofastandardacceptablemeasureofparticipation.
ThiscollaborativeSCImoduleidentifiesthebestexistingmeasureofparticipationorcombinesthebestitemsfromexistingmeasuresofparticipationtoformanewandimprovedtoolwithbetterpsychomet-ricpropertiesvalidatedintheSCIModelSystemstoensurebroadacceptabilityinfutureSCIoutcomesresearch,andtoallowformeaningfultestingofclinicalinterventions.
NIDRRProgramDirectoryFY2008-HealthandFunction2-56ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsMichiganUniversityofMichiganModelSpinalCordInjuryCareSystemUniversityofMichiganDepartmentofPhysicalMedicineandRehabilitation300NorthIngalls,RoomNI2A09AnnArbor,MI48109-0491model.
sci@umich.
eduwww.
med.
umich.
edu/pmr/modelsci/index.
htmPrincipalInvestigator:DeniseG.
Tate,PhDPublicContact:MartinForchheimer,MPP,ProjectManager734/763-0971;Fax:734/936-5492ProjectNumber:H133N060032StartDate:October01,2006Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY06$457,417;FY07$457,417;FY08$457,417Abstract:Theoverallpurposeofthisprojectistoprovidecomprehensiverehabilitationandcommu-nityparticipationservicesandtogeneratenewknowledgethroughresearch,development,anddemon-strationdesignedtoimproveoutcomesforpersonswithspinalcordinjury(SCI).
Asite-specificre-searchstudyisconductedinpartnershipwithfacultyfromtheUniversityofMichiganDepressionCenter,DepartmentofPsychiatry,andtheMolecularandBehavioralNeurosciencesInstitute.
Thisstudyisarandomizedclinicaltrialstudydesignedtoevaluatetheefficacyofapharmacologicalagent,VenlafaxineHCIalsoknownasEffexorXR,asapreventiveagentforreducingdepressionamongpersonswithSCI.
ThisclinicaltrialaddressesamajorneedinthefieldastherearenorandomizedclinicaltrialscurrentlyavailableontheeffectivenessofantidepressantsinpersonswithSCI.
Inthisstudy,thedrug'seffectsonpainarealsoassessed.
AnoutcomeofthisstudyistheformulationofrecommendationsforantidepressantmedicationuseinSCIandimplicationsforclinicalpracticeguidelines.
Theprojectcontinuestooperateanefficientdatacollectionsystem,facilitatingresearchandcontributionstotheNationalSCIDatabase.
NIDRRProgramDirectoryFY2008-HealthandFunction2-57ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsNewJerseyNorthernNewJerseySpinalCordInjurySystemKesslerMedicalRehabilitationResearchandEducationCorporation(KMRREC)1199PleasantValleyWayWestOrange,NJ07052-1499dtulsky@kmrrec.
orgwww.
kmrrec.
org/KM/nnjscisPrincipalInvestigator:DavidS.
Tulsky,PhDPublicContact:973/243-6849;973/243-6916;Fax:973/243-3527ProjectNumber:H133N060022StartDate:October01,2006Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$457,417;FY07$457,417;FY08$457,417Abstract:TheNorthernNewJerseySpinalCordInjurySystem(NNJSCIS)providesacomprehen-sivecontinuumofstate-of-the-artcareforpersonswithspinalcordinjury(SCI)andtheirsignificantothersfromtimeofinjurythroughlong-termfollow-upinthecommunityandconductsspinalcordresearch,includingclinicalresearchandtheanalysisofstandardizeddata.
NNJSCISconductsbothasite-specificresearchstudyandacollaborativemodule.
Thesestudiescontributetoevidence-basedrehabilitationinterventionsandclinicalandpracticeguidelinesthatimprovethelivesofindividualswithSCIandconsistofthefollowing:AninnovativerehabilitationinterventionutilizingtechnologytopreventrespiratorydiseaseinpersonswithSCI,nowtheleadingcauseofdeathandthethirdleadingcauseofhospitalizationsinthispopulation;acollaborativemodulethatadapts,develops,andvalidatesaninnovativeandpromisingoutcomesystemforuseinSCIinterventionresearch;andtheNNJSCIScoordinateswiththeNIDRR-fundedModelSystemsKnowledgeTranslationCentertoprovidescien-tificresultsandinformationfordisseminationtoclinicalandconsumeraudiences.
ThisprojectisacooperativeeffortoftheKesslerMedicalRehabilitationResearchandEducationCorporation(KMRREC),theKesslerInstituteforRehabilitation(KIR),theUniversityofMedicineandDentistryofNewJersey-TheNewJerseyMedicalSchool(UMDNJ-NJMS),andUMDNJ-UniversityHospi-tal.
NIDRRProgramDirectoryFY2008-HealthandFunction2-58ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsNewYorkMountSinaiSpinalCordInjuryModelSystemMountSinaiSchoolofMedicineDepartmentofRehabilitationMedicineOneGustaveL.
LevyPlace,Box1240NewYork,NY10029-6574marcel.
dijkers@mssm.
eduwww.
mssm.
edu/rehab/spinalPrincipalInvestigator:KristianT.
Ragnarsson,MDPublicContact:MarcelDijkers,PhD212/659-8587;Fax:212/348-5901ProjectNumber:H133N060027StartDate:October01,2006Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$452,541;FY07$452,541;FY08$452,541Abstract:ThepurposeoftheMountSinaiSpinalCordInjuryModelSystem(MS-SCI-MS)isto(1)demonstrateandevaluateamultidisciplinarysystemofrehabilitationcareforpersonswithspinalcordinjury(SCI)intheNewYorkCitymetropolitanarea,includinginnovativeprogramsforcommunityintegration;(2)contributelongitudinaldatatotheSCINationalDatabase;(3)createandevaluateSCIqualityoflifeassessmentandparticipationassessmentmeasures,andcollectinformationonthelaborforceandeconomicimpactsofSCI;and(4)evaluatethetreatmentofneuropathicpainusingmodified-releasemorphine.
TherearethreemajorcomponentsoftheMS-SCI-MS:(1)comprehensiveclinicalcare,(2)research(site-specific,moduleprojectsandcontributionstothenationaldatabase);and(3)dissemination,education,andtraining.
Thecomprehensiveclinicalprogramconsistsofthefollowingcomponents:(1)TheNYCEmergencyMedicalService(NYC-EMS),whichensurestheearlyandsafeextricationofindividualswithSCIfromthesiteofinjury;(2)acutemedical/surgicalcareatElmhurstHospitalCenteroratMountSinaiHospital(MSH),bothofwhichprovidestate-of-the-artemergencyandmedical/surgicalservices;and(3)comprehensiveinpatientmedicalrehabilitationservicesonthe25-bed,CARF-accreditedSCIinpatientrehabilitationunitofMSH.
Theprogramstressesinterdisciplinarycare,andemploysaprimaryteammodeltoenhancecoordinationamongcaregivers.
TheresearchprogramofMS-SCI-MSisdesignedtoadvancetheunderstandingofSCIanditsconsequences,andtodevelopbettermethodsoftreatmentofsecondaryconditionsofSCI,espe-ciallypain.
Thesite-specificprojectstudiesmodified-releaseformulationofmorphinesulfateforneuropathicpainafterSCIthrougharandomized,double-blindcrossovertrialofmodified-releasemorphineandplaceboforpatientswithuncontrolledneuropathicpainofthreetypes.
Inaddition,threemoduleprojectsareexecutedincollaborationwithSCImodelsystemselsewhere.
Dissemination,education,andtrainingforindividualswithSCI,theirfamilies,students,andhealthprofessionals,constitutethethirdcomponentoftheMS-SCI-MS,andincludepublicationsinscientificjournals,presentationsatnationalandlocalmeetings,publicationofanewsletterforconsumers,expandedweb-basedinformation,avarietyofeducationalandtrainingprograms,includinganSCImedicinefellow-ship,andtrainingofphysicalmedicineandrehabilitationresidentsfromvariousresidencyprograms.
NIDRRProgramDirectoryFY2008-HealthandFunction2-59ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsOhioNortheastOhioRegionalSpinalCordInjurySystemMetroHealthSystemDepartmentofPhysicalMedicineandRehabilitation2500MetroHealthDriveCleveland,OH44109mroach@metrohealth.
orgrehab.
metrohealth.
org/norscisPrincipalInvestigator:GregoryA.
Nemunaitis,MD216/778-5514PublicContact:MaryJoRoach216/778-8781;Fax:216/778-8782ProjectNumber:H133N060017StartDate:October01,2006Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$449,417;FY07$449,417;FY08$449,417Abstract:TheNortheastOhioRegionalSpinalCordInjurySystem(NORSCIS)atMetroHealthRehabilitationInstituteofOhioincollaborationwithCaseWesternReserveUniversityandtheCleve-landFESCenterconductsresearchtofurtherdeveloptheeffectivenessofaninnovativeModelSpinalCordInjuryCareSystemandtodemonstratehowtheapplicationofadvancedassistivetechnologycanbenefitpersonswithdisabilities.
Efficiencyandeffectivenessofcare(andresearchpotential)areenhancedasallcomponentsofthecontinuumofcare(fromtrauma/emergencycaretoacutemedical/surgicaltreatment,inpatientandoutpatientrehabilitation,andcommunitysupportservices)areallavailableontheNORSCIScampus.
Asite-specificprojectstudiesadvancesinfunctionalelectricalstimulation(FES)technologytodocumentimprovementsinfunction,health,andwellness.
Aninnova-tivefocusontrunkmusclestimulationtargetsspecificclinicalproblems,includingseatedstabilityandmobility,reachableworkspace,andpulmonaryfunction.
AcollaborativeresearchprojectwithUPMC-SCI,isdirectedattestingandcollectingthedataneededtounderstandtheimpactofcoveragechangesandtofullyexploretheissueofdisparityinassistivetechnologyformobilityprescription.
Acollabora-tiveprojectwithCraigHospitalinvolvesthedevelopmentofareliable,validmeasurementtooltoassesscommunityparticipation.
Thegoalofthesehypothesis-drivenresearchanddemonstrationprojectsistodevelopandmeasuretheeffectivenessofnewinterventionstrategiesatboththeindi-vidualpatientlevelandoverallsystemsofcareforpersonswithspinalcordinjury.
NIDRRProgramDirectoryFY2008-HealthandFunction2-60ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsPennsylvaniaRegionalSpinalCordInjuryCenteroftheDelawareValleyThomasJeffersonUniversityRegionalSpinalCordInjuryCenteroftheDelawareValley132South10thStreet375MainBuildingPhiladelphia,PA19107-5244mary.
patrick@jefferson.
eduwww.
spinalcordcenter.
orgPrincipalInvestigator:RalphMarino,MDPublicContact:MaryPatrick215/955-6579;Fax:215/955-5152ProjectNumber:H133N060011StartDate:October01,2006Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY06$464,417;FY07$464,417;FY08$464,417Abstract:TheRegionalSpinalCordInjuryCenteroftheDelawareValley(RSCICDV)providesandevaluatesacomprehensiveprogramofcoordinatedpatientcare,education,andresearchactivitiesforindividualswhohavesustainedatraumaticspinalcordinjury(SCI).
Clinicalactivitiesaredirectedatpromotingevidence-basedpracticetoimproveoutcomesandreducemedicalcomplicationsinpersonswithSCI.
Researchactivitiesaredesignedtodevelopandvalidateupperandlowerextremityoutcomemeasuresforuseinclinicaltrials.
Specifically,RSCICDV:(1)contributestotheNationalDatabasebyenrollinganestimated50newsubjectsperyearintothedatabaseandbycollectingfollow-updataonpreviouslyenrolledsubjects;(2)conductsanon-siteresearchprojectwhosefocusistodevelopandvalidatetheCapabilitiesofArmandHandinTetraplegia(CAHT),anobjectivetestofarmandhandfunctionalcapabilitiesneededtoconductclinicaltrialsforneurologicalrecoveryinSCI;(3)participatesinacollaborativemoduleonevaluatinganautomatedphonefollow-upsystemforpeoplewithSCI;(4)participatesinacollaborativemoduleonvalidationofanoutcomemeasureformotorrecoveryinincompleteSCI;and(5)developseducationalresourcesforpatients,healthcareproviders,andre-searchers.
NIDRRProgramDirectoryFY2008-HealthandFunction2-61ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsPennsylvaniaUniversityofPittsburghModelCenteronSpinalCordInjuryUniversityofPittsburgh2310JaneStreetSuite1207Pittsburgh,PA15203greekk@upmc.
eduwww.
upmc-sci.
orgwww.
rehabmedicine.
pitt.
eduPrincipalInvestigator:MichaelL.
Boninger,MD412/365-4861PublicContact:KarenGreenwald,RN412/586-6941;Fax:412/381-3956ProjectNumber:H133N060019StartDate:October01,2006Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY06$449,417;FY07$449,417;FY08$449,417Abstract:TheUPMC-SCIcontinuesitsresearchfocusonassistivetechnology(AT)formobility.
Pilotdatacollectedduringthepreviousfundingcyclehighlighteddisparityinwheelchairprescription.
Individualsfromminoritygroupsandpeoplewithlowsocioeconomicstatusreceivedlessandlowerqualityequipment.
Sothatinterventionscanbedeveloped,theprojectcontinuesandexpandsthisresearchtodelveintothereasonsfordisparity.
Inaddition,itinvestigatestheimpactofrecentCentersforMedicareandMedicaidServices(CMS)changesforATreimbursement.
ThesechangeswilllikelyhaveacriticalimpactontheATprovidedtoindividualswithspinalcordinjury(SCI).
Finally,theprojectdevelopsatooltodeterminehowfar,howfast,andwhenpeopletravelintheirwheelchairs.
Thisdataisrelatedtothetypeofwheelchairsused,tothenumberofwheelchairfailures,andtomea-suresofparticipation.
Fromthesefindings,researchersdeterminehowthewheelchairprescribedimpactsparticipation,andifgreateruseleadstogreaterfailures.
Thisdatacanbeusedtopushforimprovementsinmanufacturingandchangesincoverage.
UPMC-SCIalsoconductsarandomized,controlledtrialtodetermineiffollowingtheConsortiumofSpinalCordInjuryMedicineGuidelinesonUpperLimbPreservationleadstodecreasedpain.
Theseguidelinesareappliedtoacutelyinjuredpatientswhoarefollowedforthefirstsixmonthsafterinjury.
Validationoftheguidelines'effective-nesshelpsassurethattheybecomethestandardofcareacrossthecountry.
SCIcareattheUniversityofPittsburghisprovidedinamultidisciplinarymannerwithahighlevelofcommunicationamongtheconstituentservices.
Theprojecthasfullyimplementedasystemofcontinuityoftreatmentthatbeginswiththeemergencyresponseatthesceneofinjuryandcontinueswithcomprehensivetreatmentandrehabilitationfrommedical/surgicaltoacutestagerehabilitationthroughutilizationofassistivetechnol-ogyservicesandvocationalrehabilitation.
UPMC-SCIcontinuestoenrollandcollectlong-termfollow-updataonSCIsubjectsfortheNationalSpinalCordInjuryStatisticalCenter.
NIDRRProgramDirectoryFY2008-HealthandFunction2-62ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsTexasTexasModelSpinalCordInjurySystemTheInstituteforRehabilitationandResearch(TIRR)1333MoursundStreetHouston,TX77030-3408dgraves@bcm.
tmc.
eduwww.
texasmscis.
orgPrincipalInvestigator:DanielGraves,PhD;WilliamDonovan,MD;713/797-5023PublicContact:DanielGraves,PhD713/797-5946(V);713/797-5790(TTY);Fax:713/797-5982ProjectNumber:H133N060003StartDate:October01,2006Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY06$464,417;FY07$464,417;FY08$464,417Abstract:TheTexasModelSpinalCordInjurySystem(TMSCIS)providesservicesalongtheentirecontinuumofcarefromemergencymedicalservicetolong-termfollow-upandmanagementofsec-ondaryconditions.
TheTMSCISincludesasite-specificresearchprojectthatisdesignedtoprovidehighlevelevidenceoftheefficacyofanoveltreatmenttopreventbladdercomplications.
Theprojectisarandomized,double-blind,placebocontrolled,parallelgroupsinvestigationoftheeffectsofBotuli-numtoxinAtreatmentofdetrusorexternalsphincterdyssynergia(DESD)duringearlyspinalcordinjury.
ManypatientswithSCIdevelopneurogenicbladderdysfunctionassociatedwithdetrusorhyperreflexiaandDESDthatcanleadtolong-termcomplicationsinupto50percentofpatients.
Thesecomplicationsincludehydronephrosis,vesicoureteralreflux,nephrolithiasis,sepsis,renalinsuffi-ciencyorfailure,andevendeath.
ThisinvestigationisintendedtodetermineifthepreventionofDESDintheearlyphaseofrecoverycanpreventsomeofthesecomplications.
Inaddition,theTMSCISincludesamoduledesignedtodevelopanoutcomemeasureoftrunkandposturalcontroltobeutilizedinactivity-basedtherapyprogramslikelocomotortraining.
Theoutcomesoflargescaleclinicaltrialsoflocomotortraininghighlighttheneedforoutcomemeasuresthataredesignedtocapturechangesbroughtaboutbytranslationalresearchthatmaynothavebeennecessaryformoretraditionaltherapyprograms.
Thisscaledevelopmentprojectincorporatesitemresponsetheorymeth-odsaswellasreliabilityandvalidityinvestigationsinaminimumoffourmodelsystems.
NIDRRProgramDirectoryFY2008-HealthandFunction2-63ModelSpinalCordInjurySystemsModelSpinalCordInjurySystemsWashingtonNorthwestRegionalSpinalCordInjurySystemUniversityofWashingtonDepartmentofRehabilitationMedicineBox356490Seattle,WA98195-6490scirehab@u.
washington.
edusci.
washington.
eduPrincipalInvestigator:CharlesH.
Bombardier,PhD206/731-3665PublicContact:CynthiaSalzman,MHA206/685-3999;Fax:206/685-3244ProjectNumber:H133N060033StartDate:October01,2006Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY06$464,417;FY07$464,417;FY08$464,417Abstract:TheUniversityofWashington'sNorthwestRegionalSpinalCordInjurySystem(NWRSCIS)servesacriticalmassofpatientswithspinalcordinjury(SCI)andhasallthenecessarydisciplinestoprovidestate-of-the-artmedical,surgical,andrehabilitationcare.
Onesite-specificprojectisarandomizedcontrolledinterventionstudyevaluatingtheeffectofproactive,structured,telephone-basedcounselingandcaremanagementonrehospitalizationrateandqualityoflifeduringthefirstyearafterdischargefromacuterehabilitation.
Thisstudybuildsuponsuccessfulexperienceswithtelephonecounselingforbothpeoplewithtraumaticbraininjuryandmultiplesclerosis.
Thisresearchisparticu-larlyimportantbecausethelifestylechangesandhealthcarebehaviorsrequiredforsuccessfullivingafterSCIaretremendouslychallenging,ratesofrehospitalizationarehigh,andmanypeople(espe-ciallyinruralregions)lackreadyaccesstoknowledgeableadvice,behaviorchangesupport,andspecialtycaresufficienttomaintaintheirhealth.
AmodularprojectstudiesthenaturalhistoryofmajordepressionunderconditionsofusualcareduringthefirstyearafterSCI.
ThisprojectestablishesreliableandvalidmeansofscreeninganddiagnosingmajordepressionsoonafterSCI.
Itexaminestheimpactofdepressiononrehabilitationefficiencyandcomparestheeffectofstandardtreatmenttoclinicalpracticeguidelinelevelcareofdepression.
Thisstudydescribesdepressiontreatmentprefer-encesamongpeoplewithSCIandlaysthefoundationforamulti-siteclinicaltrial.
TheNWRSCISalsoincludesacollaborative,multisite,randomized,double-blind,placebocontrolledtrialofvenlafaxineXR(EffexorXR)inadultswithSCIandmajordepressivedisorder(MDD).
ThepurposeofthestudyistoexaminetheefficacyandtolerabilityofvenlafaxineXRasatreatmentforMDD.
NWRSCIScontributestothenationalstatisticsdatabaseattheUniversityofAlabamaatBirmingham.
NIDRRProgramDirectoryFY2008-HealthandFunction2-64FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)AlabamaConstraint-InducedMovementTherapyModifiedforRehabilitatingArmFunctioninStrokeSurvivorswithPlegicHandsUniversityofAlabama1530ThirdAvenue,South,CPM712Birmingham,AL35294-0018guswatte@uab.
eduPrincipalInvestigator:GitendraUswatte,PhD205/975-5089PublicContact:GitendraUswatte205/934-2471;Fax:205/975-6140ProjectNumber:H133G050222StartDate:October01,2005Length:36monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY05$149,891;FY06$149,954;FY07$149,954;FY08(No-costextensionthrough9/30/2009)Abstract:Basedonpositivefindingsfromapilotstudy,thisprojectconductsarandomized,controlledclinicaltrialtorigorouslytesttheefficacyofamodificationofConstraint-InducedMovement(CI)therapyforrehabilitatingarmfunctioninchronicstrokepatientswithsevereupper-extremityimpair-ment.
CItherapyisarehabilitationmethodthathasbeenshownincontrolledstudiestoproducelargeimprovementsinreal-worldupper-extremityuseinindividualswithchronicstroke.
Upuntilnow,survivorsofstrokewithplegichandshavebeenexcludedfromCItherapyprotocols,whetheronaresearchorclinicalbasis.
Inthemodifiedtherapy,participantsreceiveCItherapy,combinedwithothertreatmentmodalities,forsixhoursperday.
Thetreatmentpackageincludestonemanagement/move-mentfacilitation,trainingofmore-impairedarmuseusingshaping,functionaltaskpractice,restraintoftheless-impairedarminthelaboratoryandathome,andapackageofbehavioralmethodsfortransfer-ringgainsfromthelaboratorytothehomesituation.
Participantsarealsointroducedtoassistiveandorthoticdevicesthatmightfacilitateuseoftheirmore-impairedarmintheirdailylife.
NIDRRProgramDirectoryFY2008-HealthandFunction2-65FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)CaliforniaANewMeasureofSubjectiveFatigueinPersonswithTraumaticBrainInjurySantaClaraValleyMedicalCenter(SCVMC)RehabilitationResearchCenter751SouthBascomAvenueSanJose,CA95128PrincipalInvestigator:TamaraBushnik,PhD408/793-6446PublicContact:JerryWright408/793-6433;Fax:408/793-6434ProjectNumber:H133G080168StartDate:October01,2008Length:36monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY08$182,918Abstract:Thisresearchprojectaddressesthelackofevidencesupportingaspecificfatiguescale,oftheover30thathavebeenusedforclinicaland/orresearchpurposes,whichispsychometricallysound,efficient,andusefulinindividualswithTBItoassesstreatmentinterventionsandthenaturalhistoryoffatiguefollowingTBI.
Theprimaryobjectiveoftheprojectistoevaluatetheinternalconsistency,concurrentvalidity,anditem/scalestructureofafatigueitempoolandtoidentifythemostpsychometri-callysoundmeasureoffatigueinindividualspost-TBI.
Toaccomplishthisgoal,SCVMChaspartneredwiththeRehabilitationInstituteofMichigan(RIM),aTBIModelSystemfrom1987-2007andacontractedcentertocontinueTBINationalDatabasefollow-up.
SCVMCandRIMhavethelargestnumberofcaseseligibleforfollow-upintheTBINationalDatabase.
Theshort-termoutcomeistoadvanceknowledgeaboutthemeasurementoffatigueinindividualswithTBIthroughcreationofapsychometricallyvalidandusefulfatigueassessmentmeasureforindividualswithTBI.
Theintermedi-ateoutcomeisthatavailabilityofthenewscalewillleadtoimprovedstudiesandtreatmentplansforindividualswithTBIwhohavefatigue.
NIDRRProgramDirectoryFY2008-HealthandFunction2-66FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)CaliforniaEvaluatingDysphagiainIndividualswithSpinalCordInjury:AssessingIncidence,AssociatedFactors,andPreventableComplicationsSantaClaraValleyMedicalCenter(SCVMC)751SouthBascomAvenueSanJose,CA95128PrincipalInvestigator:KazukoShem,MD408/885-7007PublicContact:TamaraBushnik,PhD408/793-6433;Fax:408/885-2028ProjectNumber:H133G080165StartDate:October01,2008Length:36monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY08$189,382Abstract:Dysphagiaisknowntooccurinasignificantnumberofindividualswithspinalcordinjury(SCI)presentingtoacutecareimmediatelyaftertheinjuryandtoinpatientrehabilitation.
However,theexactincidenceofdysphagiainthispopulationhasnotbeenstudiedprospectively.
Theprimaryobjectiveofthisstudyistodeterminetheincidenceofdysphagiausingbedsideswallowevaluation(BSE)andvideofluoroscopyswallowstudy(VFSS)andtodetermineassociatedriskfactorsinindi-vidualswithSCI.
ThesecondaryobjectiveistodetermineiftheBSEisaneffectivescreeningtoolascomparedwiththeVFSSforindividualswithSCIandtodeterminethesensitivityandspecificityofBSEinindividualswithSCI.
Thethirdobjectiveistodocumentthetimecoursefortheresolutionofdysphagiapost-SCI.
Toaddressthisresearchquestion,individualswithSCIwhoarepositivefordysphagiafollowingeitheraBSEorVFSSareadministeredserialBSEandVFSSuntilresolutionofdysphagiaordischargefromtherehabilitationcenter.
NIDRRProgramDirectoryFY2008-HealthandFunction2-67FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)FloridaInvestigatingtheEffectsofSnoezeleninChildrenRecoveringfromSevereBrainInjuryUniversityofMiamiMillerSchoolofMedicine1611NWTwelfthAvenue,RTC-215Miami,FL33136-1094ghotz@med.
miami.
eduPrincipalInvestigator:GillianA.
Hotz,PhDPublicContact:305/243-4004;Fax:305/243-4006ProjectNumber:H133G070119StartDate:October01,2007Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY07$197,907;FY08$196,697Abstract:ThisresearchstudyexaminesanoveltherapeuticapproachreferredtoasSnoezelenorcontrolledmultisensorytherapyforchildrenwithseveretraumaticbraininjury(TBI).
TheSnoezelenapproachisbasedonatheoreticalframeworkofusingacontrolledmultisensoryenvironmentwhichpromotesstimulationoftheprimarysenseswhichincludeauditory,visual,olfactory,tactile,andgustatorysystemswhichareimpairedintheearlystagesofrecovery.
ThereisevidencethatSnoezelenhasbeenshowntofindabalancebetweenrelaxationandactivityorchangingarousalwithintheframeworkofasafe,controlled,adaptedenvironment.
ThepurposeofthisstudyistoinvestigatetheeffectsofSnoezelentherapyonphysiological,cognitive,andbehavioralchangesinchildrenrecover-ingfromsevereTBI.
Seventy-twosubjectsfrom5-18yearsofagerecoveringfromsevereTBIarestudiedinaprospectiverandomizedcontrolledtrial.
Thetreatmentgroupthatreceivesupto20Snoezelentreatmentsessionsiscomparedtoacontrolgroupthatreceivesupto20playroomsessions,withbothgroupsreceivingastandardcomprehensiveneurorehabilitationprograminaninpatientpediatricrehabilitationunit.
Specificphysiological,cognitive,andbehavioraloutcomemeasuresarecollectedandevaluatedatbaseline,andpre-andpost-Snoezelenandplayroomtreatmentsessions.
NIDRRProgramDirectoryFY2008-HealthandFunction2-68FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)FloridaExerciseTreatmentofObesity-RelatedSecondaryConditionsinAdultswithParaplegiaUniversityofMiamiMillerSchoolofMedicine1095Northwest14th(R48)Miami,FL33136PrincipalInvestigator:MarkS.
Nash,PhD305/243-3628PublicContact:Fax:305/243-3913ProjectNumber:H133G080150StartDate:October01,2008Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$199,738Abstract:Thisprojectinvestigatestheeffectsofphysicalactivitywithorwithoutanutrientsupple-mentknowntoincreasebodyleanmassonadultswithchronicparaplegiawhoareatriskforclustersofobesityandobesity-relatedsecondarycomplications.
Qualifiedsubjectsperformsixmonthsofcircuitresistancetrainingwithhalfoftheparticipantsrandomizedtoreceiveawheyproteinsupple-mentimmediatelybeforeandimmediatelyaftereachtrainingsession.
Theimmediatepost-exerciseadministrationofwheyproteinisreportedtoincreasebodylean(muscle)mass,whoselossafterSCIisthoughttodecreasefatutilizationandhastenbodyfataccretion.
Outcomesmeasuredinclude:(1)theeffectsoftrainingandsupplementoncardiopulmonaryenduranceandstrength,aglobaldiseaseriskscore,healthrelatedqualityoflifeasassessedbytheSF-36instrumentvalidatedforuseinpersonswithSCI;and(2)participantperceptionsofexercisebenefitsstudiedbeforeandaftertrainingbyascientist-stakeholderwithSCI.
Dataexaminingthepersonalandsocietalbarrierstoexerciseparticipa-tionafterSCIiscollectedthroughaweb-basedform.
Thisprojectimprovestheunderstandingofrisksforobesityandobesity-relatedsecondarycomplications.
Theresultsareanalyzedandwillimprovetheunderstandingofrisksforobesityandobesity-relatedsecondarycomplications.
NIDRRProgramDirectoryFY2008-HealthandFunction2-69FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)GeorgiaBiopsychosocialFactorsthatPredictTBIPost-AcuteRehabilitationOutcomesShepherdCenter2020PeachtreeRoad,NWAtlanta,GA30309-1465ron_seel@shepherd.
orgPrincipalInvestigator:RonaldT.
Seel,PhDPublicContact:404/367-1240ProjectNumber:H133G070171StartDate:October01,2007Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY07$192,500;FY08$194,973Abstract:Thisprojectdevelopsmodelsusingbiopsychosocialfactorsassessedduringtheinitialdaysoftraumaticbraininjury(TBI)post-acuterehabilitationtopredictgood,fair,andpoorpost-acuterehabilitationdischargeoutcomes.
EmpiricallyderivedbiopsychosocialmodelsimproveunderstandingofTBIrecovery,identifypatientsatriskforpooroutcomes,informindividualizedtreatmentplanning,andincreasetheoverallefficiencyandefficacyofpost-acuterehabilitationservices.
Clinicalmeasuresofmotorandcognitivefunctioningareanalyzed,andfiveexperimentalmeasuresareadministeredtoassesspotentialpsychosocialandenvironmentalriskfactorsforclientswithTBI.
Theprimarygoalsaretoproduceprobabilisticandtree-basedmodelsofbiopsychosocialfactorsthatpredictgood,fair,orpoorTBIpost-acuterehabilitationoutcomeswithregardto:(1)physicalandcognitiveimprovement;(2)independentliving(nosupervisionrequired);and(3)communityparticipation.
Primarydissemina-tioneffortsincludeatleasttwopeer-reviewedmanuscriptsthatdescribepredictivemodelsforclinicaluse,anddevelopmentofanautomatedpost-acuterehabilitationadmissionassessmentprotocol,madeavailablefordownloadingfromtheShepherdCenterwebsite.
Thelong-termgoalistodesignandtestinterventionsfortreatablepredictorsofpost-acuterehabilitationoutcomesandestablishevidence-basedguidelines.
NIDRRProgramDirectoryFY2008-HealthandFunction2-70FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)GeorgiaEvaluatingtheEffectsofActivity-BasedTherapyforIndividualswithChronicSpinalCordInjuryShepherdCenter,Inc.
2020PeachtreeRoadNorthwestAtlanta,GA30309PrincipalInvestigator:MichaelL.
Jones,PhD404/350-7595PublicContact:404/350-7595;Fax:404/350-7596ProjectNumber:H133G080031StartDate:October01,2008Length:36monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY08$200,000Abstract:Thisprojectevaluatestheeffectsofanactivity-basedtherapeuticexerciseprogramforindividualswithchronicspinalcordinjury(SCI)usingBeyondTherapy—aprogramofstate-of-the-arttherapeuticexercisetechnology.
Projectgoalsinclude:(1)completingarandomized,experimental-controlgroupcomparisonexaminingtheeffectsofparticipationinactivity-basedtherapyonneurologi-calfunctioning,independenceinactivitiesofdailyliving,andcommunityparticipation;(2)conductingfurtherbetween-groupandwithin-subjectanalysestodeterminevariationsinoutcomesasafunctionoflevelofinjuryandASIAclassification;(3)identifyingfactorsassociatedwithcontinuedcompliancewithaself-directedmaintenanceprogramdesignedtosustainanygainsinneurologicalfunctioningachievedfromparticipationinactivity-basedtherapy;and(4)examiningtherelationshipbetweenlevelofcompliancewiththemaintenanceprogramandpreservationofgainsachievedovera12-monthperiod.
Researchresultsareusedtodevelopactivity-basedexercisesforindividualswithSCIthatcanbeimplementedincommunity-basedfitnesscenters.
Additionally,theprojectdevelopsatrainingandtechnicalassistanceprogramtoassistcommunityfitnesscentersinimplementingactivity-basedtherapyprograms.
NIDRRProgramDirectoryFY2008-HealthandFunction2-71FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)IllinoisEnhancedMotorRecoveryUsingSerotonergicAgentsRehabilitationInstituteofChicago345EastSuperiorStreet,Suite1406Chicago,IL60611-4496g-hornby@northwestern.
eduPrincipalInvestigator:T.
GeorgeHornby,PhD,PTPublicContact:312/238-1397ProjectNumber:H133G060124StartDate:November01,2006Length:36monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY06$142,710;FY07$146,280;FY08$145,648Abstract:Thepurposeofthisprojectistoidentifychangesinvoluntaryandreflexbehaviors,withanemphasisonwalkingability,inindividualswithstrokefollowingspecificpharmacologicalandphysi-calinterventions,withthepotentialtooptimizewalkingrecoveryduringintensiverehabilitation.
Thisprojectfocusesonimprovingindependentwalkingabilityinindividualswithchronichemiparesispost-stroke.
Asubstantialbodyofliteraturedemonstratestheeffectivenessofbody-weightsupportedtreadmilltrainingpost-stroke,althoughtheimprovementsinwalkingabilitymaybelimited.
Theproject'sgoalistoenhancethebenefitsoftrainingbyincreasingneuralexcitabilityandpotentialplasticitybyapplicationofserotonergicagents.
Theapproachhastwoobjectives:(1)demonstratethatserotonergicagentscanmodulatereflexandvoluntarymotoractivitywithacuteandchronicselectiveserotoninreuptakeinhibitorsadministration,and(2)acceleratemotorperformanceandwalkingrecov-eryusingcombinedpharmacologicalandphysicalinterventionsasopposedtoeitherinterventionalone.
NIDRRProgramDirectoryFY2008-HealthandFunction2-72FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)IllinoisRehabilitationofReachinginChronicStrokeUsinganAnti-GravityForceFieldRehabilitationInstituteResearchCorporation345EastSuperiorStreet,Room1406Chicago,IL60611r-beer@northwestern.
eduPrincipalInvestigator:RandallF.
Beer,PhD312/238-1556PublicContact:DeborahZnajda312/238-3381;Fax:312/238-2208ProjectNumber:H133G060169StartDate:November01,2006Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY06$149,926;FY07$146,179;FY08$149,917Abstract:Themajorgoalofthisprojectistodevelop,implement,andevaluateanovelrobot-mediatedtherapytoallowstrokesurvivorstoperformreachingmovementswhilegraduallyintegratingthecontrolofpostureandmovement.
Thespecificaimsofthisprojectare:(1)tocharacterizedeficitsinreachingasafunctionofmovementdirection,externalload,andlimborientationwithrespecttogravity;(2)toinvestigatepotentialmechanismsunderlyingexternalloadeffectsonreachingkinemat-ics;and(3)todemonstratetheefficacyofarobot-mediated"anti-gravity"forcefieldtorehabilitatereachinginagroupofchronicstrokesurvivorswithmoderateorsevereimpairment.
Thirtychronicstrokesurvivors,matchedforinitialimpairmentlevel,areassignedtoeitherForceFieldorFreeReach-ingprotocols.
TheForceFieldgrouptrainsmovementsontheMulti-AxialCartesian-basedArmRehabilitationMachine(MACARM).
TheMACARMisusedtoimplementanelasticvirtualtablethatprovidessubject-specificpartialsupportofthelimbagainstgravity.
TheFreeReachinggrouppracticesunassistedreachingmovements.
Bothgroupstrainthreetimesweeklyforeightweeks,withthegoalofincreasingreachingextent.
Therapeuticefficacyisdeterminedbasedonpre/postcomparisonsoftheoutcomemeasuresprovidedbyAim1andclinicalmeasuresofmotorfunction,functionalindepen-dence,andqualityoflife.
Researchersalsoevaluatethetransferoftrainingeffectstountrainedmove-mentdirections,loadconditions,orlimborientations.
NIDRRProgramDirectoryFY2008-HealthandFunction2-73FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)IllinoisAugmentingLanguageTherapyforAphasia:ARandomizedDouble-BlindPlacebo-ControlledTrialofLevodopainCombinationwithSpeech-LanguageTherapyRehabilitationInstituteResearchCorporationCenterforAphasiaResearch345EastSuperiorStreet,Room1353AChicago,IL60611lcherney@ric.
orgPrincipalInvestigator:LeoraR.
Cherney,PhDPublicContact:312/238-1117;Fax:312/238-2208ProjectNumber:H133G070074StartDate:October01,2007Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY07$199,843;FY08$199,772Abstract:Thisrandomized,double-blind,placebocontrolledclinicaltrialevaluatestheeffectofthepharmacologicagent,levodopa,incombinationwithspeech-languagetreatment,onthelanguageoutcomeofpatientswithchronic,nonfluentaphasia.
Thereispreliminaryevidencethatincreasedlevelsofdopamine,incombinationwithlanguagetreatment,mayimprovethelanguagedeficitsofaphasiafollowingstroke.
Moststudieshaveinvestigatedtheadjunctiveeffectsofbromocriptine,adopamineagonistthatactsonpost-synapticdopaminereceptors,changingthetonicstateofdopamineneurons.
However,newevidenceissuggestingthatlevodopa,aprecursortodopamine,maybepre-ferredsinceithasthepotentialtoincreasethepresynapticavailabilityofdopamine,therebyenhancingphasicdopaminesignalswhichareimportantforlearningenhancement.
Accordingly,thespecificaimsofthisclinicaltrialaretoassesswhether:(1)levodopaincombinationwithspeech-languagetherapyimproveslanguageperformance;(2)levodopaincombinationwithspeech-languagetherapyimproveslanguageperformancemorethanspeech-languagetherapyalone;and(3)improvementsinlanguageperformanceresultingfromcombinedlevodopaandspeechlanguagetherapyaremaintainedovertimetoagreaterextentthanimprovementsresultingfromspeech-languagetherapyalone.
Theintervention,whichservesasthebehavioraltreatmentplatformonwhichtoassesstheadjunctiveeffectsoflevodopa,isadministeredviacomputerandinvolvesrepeatedchoralreadingofsentences.
Subjectsreceivefivehoursofthespeech-languagetherapyinterventionweeklyplusthelevodopaorplaceboforsixweeks.
TheprimaryoutcomemeasureisthechangeintheAphasiaQuotient(AQ)scoreontheWesternAphasiaBatteryfrompre-treatmenttopost-treatment.
Otherlanguage,cognitive,andcom-municationmeasuresarecollectedpre-andpost-treatmentandatsixweeksaftercompletionoftreat-ment.
NIDRRProgramDirectoryFY2008-HealthandFunction2-74FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)IllinoisEffectivenessofaTeleconferenceFatigueManagementProgramforPeoplewithMultipleSclerosisUniversityofIllinoisatChicagoDepartmentofOccupationalTherapy1919WestTaylorStreet,MC811Chicago,IL60304marciaf@uic.
eduPrincipalInvestigator:MarciaFinlayson,PhDPublicContact:312/996-4603;Fax:312/413-0256ProjectNumber:H133G070006StartDate:October01,2007Length:36monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY07$143,836;FY08$142,688Abstract:Thisprojectteststheeffectivenessandefficacyofateleconferenceenergyconservationeducationprogramforpeoplewithmultiplesclerosis(MS).
Theprojectisguidedbyself-efficacytheoryandbuildsonexistingpilotwork.
Theprogramisdeliveredbyteleconferencebyalicensedoccupationaltherapist.
Participantsareprovidedwithatelephoneandheadset,andaprogrammanual.
Onthedesignateddays,participantscallatoll-freephonenumberandparticipateinaneducationalgroupsessionfacilitatedbythetherapist.
Atotalofsixone-hourweeklysessionsusetheprogrammaterialsdevelopedthroughthepilotstudy.
Measuresoftheprimaryandsecondaryoutcomesareadministeredoverthetelephonebyaresearchassistantbeforeandaftertheprogram,atthreemonths,andatsixmonths.
Bycollectingdataatthesepointsandhavingawait-listcontrolgroup,theprojectisabletotestwhether:(1)individualsintheimmediateinterventiongroupachievebetteroutcomesthanindividualsinthewait-listcontrolgroup;(2)theprogramleadstosignificantreductionsinfatigueimpactandfatigueseverity,andimprovedqualityoflife;and(3)improvementsintheoutcomescanbemaintainedoversixmonths.
Analysesinvolvet-testsandmixedeffectsregressionmodels.
Theprimarygoalsoftheprojectaretoreducetheimpactoffatigueonparticipants'everydaylives,reducefatigueseverity,andimprovequalityoflife.
Secondarygoalsaretoincreaseself-efficacyformanagingfatigueandincreasethenumberofenergyconservationstrategiesused.
NIDRRProgramDirectoryFY2008-HealthandFunction2-75FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MassachusettsARandomizedTrialofRealignmentTherapyforTreatmentofMedialKneeOsteoarthritisBostonUniversityClinicalEpidemiologyandResearchTrainingUnit715AlbanyStreet,RoomA203Boston,MA02118djhunter@bu.
eduPrincipalInvestigator:DavidJ.
Hunter,MD,PhDPublicContact:617/638-5180;Fax:617/638-5239ProjectNumber:H133G040201StartDate:December01,2004Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY04$150,000;FY05$150,000;FY06$150,000;FY07(No-costextensionthrough4/30/2008);FY08(No-costextensionthrough12/31/2008)Abstract:Theoverallobjectiveofthisprojectistodeterminewhethertheprovisionofrealignmenttherapyinpatientswithmedialkneeosteoarthritis(OA)relieveskneepainandimprovesfunction.
Theprojectteststhehypothesisthatcomparedtocontroltreatment,theuseofrealignmenttherapy(valguskneebrace+motioncontrolshoes+orthosis)iseffectiveinmedialkneeOA.
Thespecificaimsare:(1)Toundertakea24-weekrandomizedcrossoverclinicaltrialinpatientswithmedialkneeosteoar-thritistodeterminewhetherprovisionofrealignmenttherapyleadstolowerpainscoresandimprovedfunctionduringthetimeofthistreatmentthanduringtheuseofaplacebotreatment;(2)toperformanopenlabelfollow-upstudytotrackuseandeffectivenessoftreatment.
Thisprojectisco-fundedbyDonJoy,akneebracingcompany.
NIDRRProgramDirectoryFY2008-HealthandFunction2-76FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MichiganSensorimotorTrainingandAssessmentinAdultswithHemiplegicCerebralPalsy:TheULTrAProgramUniversityofMichiganDivisionofKinesiology401WashtenawAnnArbor,MI48109-2214shcb@umich.
eduwww.
motorcontrol.
umich.
edu/ultraPrincipalInvestigator:SusanH.
Brown,PhDPublicContact:734/763-6755;Fax:734/936-1925ProjectNumber:H133G050151StartDate:December01,2005Length:36monthsNIDRROfficer:JoyceY.
CaldwellNIDRRFunding:FY05$148,810;FY06$148,221;FY07$149,933;FY08(No-costextensionthrough11/30/2009)Abstract:Thisprojectimplementsaeight-weekupperlimbtrainingandassessmentprogram(ULTrA.
Program)foradultswithhemiplegiccerebralpalsy(CP),agrowingyetneglectedsegmentoftheCPcommunity.
Thisprogramishome-basedbutlinkedtotheresearchlaboratorythroughtheInternet.
Priortoandfollowingclinicalintervention,aquantitativeassessmentofupperlimbandhandsen-sorimotorfunctionismadeusingestablishedmotorcontroltechniques.
Eachparticipantreceivesacomputer-basedupperlimbtrainingunit,includinghighspeedInternetconnectivityandatrainingCD.
A40-minute,tailoredinterventionprogramisperformedfivedaysperweek.
Duringthreeofthesetrainingsessions,astudentcoachassistsparticipantsviawebcam.
Duringthecoachingsessions,movementtimeandgraspforcedataarerecordedanduploadedtoacentralwebsitewhichalsoservesasaresourceforconsumersandresearchersintheareaofmobilityinCPacrossthelifespan.
TraininginthisinterventionleadstoimprovedsensorimotorfunctionoftheaffectedlimbandimprovedbilateralcoordinationinadultswithhemiplegicCP.
ThisInternet-basedprogram,whichutilizesvirtualcoaches,facilitatesadherencetothetrainingprogramandthusmaximizesthebenefitoftheintervention.
NIDRRProgramDirectoryFY2008-HealthandFunction2-77FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MichiganAdaptedAssessmentofSpeedofInformationProcessinginChildrenwithCerebralPalsyUniversityofMichiganDepartmentofPhysicalMedicineandRehabilitation325EastEisenhower,Suite100AnnArbor,MI48108sethaw@umich.
eduwww.
med.
umich.
edu/pmr/acal/speed.
htmPrincipalInvestigator:SethA.
Warschausky,PhDPublicContact:734/936-7052;Fax:734/936-7048ProjectNumber:H133G070044StartDate:October01,2007Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY07$199,995;FY08$199,996Abstract:Thisprojectdevelopsanaccessibleassessmentofprocessingspeedthatallowssensitivemeasurementsofcognitivecapabilitiesinchildrenwithseveremotorandcommunicativeimpairments.
Theobjectiveistoexamineprocessingspeedinchildrenwithcerebralpalsybyutilizinginspectiontimeasameasureofspeedofvisualization.
Specificaimsare:(1)toexaminepsychometricproperties,includingreliability,concurrentvalidity,andcriterion-relatedvalidityofamodifiedinspectiontimetask,and(2)tocomparetheinspectiontimeprofileswithinandbetweengroupsusingthetraditionalandmodifiedinspectiontimetaskprocedures.
Processingspeedisassociatedwithdevelopmentofcriticalcognitivefunctionsincludingworkingmemoryandfluidintelligence,andissensitivetobraindysfunction,medicationeffects,andaging.
NIDRRProgramDirectoryFY2008-HealthandFunction2-78FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MichiganPathwaystoDepression:AnExaminationofVulnerabilityandStressinAdultswithSpinalCordInjuryUniversityofMichiganDepartmentofPhysicalMedicineandRehabilitation300NorthIngalls,RoomNI2A09AnnArbor,MI48109-0491PrincipalInvestigator:ClaireKalpakjian,PhDPublicContact:734/763-0971;Fax:734/936-5492ProjectNumber:H133G070020StartDate:October01,2007Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY07$199,999;FY08$199,913Abstract:Thisprojectpresentsandtestsamodel(PathwaystoDepressionafterSpinalCordInjury[SCI])ofvulnerabilityfactorsinteractingwithcurrentstressors(stressfullifeeventsandpoorsocialsupport)toincreaseriskofdepressionanditsadverseeffectsoncommunityparticipationinadultswithSCI.
DepressionafterSCIisoneofthemostpervasivepsychologicalconditions,occurringatratesexceedingthegeneralpopulation,andhasthepotentialtosubstantiallylimitindependence,compro-misehealthandwell-being,andincreaseriskforsuicide.
Whilemanystudiesintheextantliteraturehaveexaminedinjuryandsituationalfactorsascorrelatesofdepression,veryfewhaveexaminedothervulnerabilityfactorsthatprecedeinjuryplacingcertainindividualsathigherriskfordepressionpost-injury.
Adeeperunderstandingoffactorsthatpredisposesomeindividualstodepressionafterinjurycaninformtreatmentapproachesandimprovecommunityparticipationimpededbydepression.
Usingacrosssectionaldesignandsurveymethodology(writtenandtelephoneinterview),theprojectsurveys400individualswithSCIaboutearlylifeexperience,psychologicalandsubstanceabusehistory(priortoinjury),currentstressfullifeeventsandsocialsupport,depression,andcommunityparticipation.
DNAsamplesarealsocollectedtotestforapolymorphismoftheserotonintransporterknowntointeractwithstresstoincreaseriskofdepression.
StructuralequationmodelingisusedtotestthePathwaysmodelofvulnerabilityfactors.
NIDRRProgramDirectoryFY2008-HealthandFunction2-79FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MichiganNeuroanatomicalCorrelatesofPositivePsychologyAmongPeoplewithTraumaticBrainInjury:ABiopsychosocialModelWayneStateUniversityDepartmentofPhysicalMedicineandRehabilitation261MackAvenue,Suite546Detroit,MI48201PrincipalInvestigator:RobinA.
Hanks,PhDPublicContact:313/745-9763;Fax:313/966-7682ProjectNumber:H133G080064StartDate:October01,2008Length:36monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY08$199,078Abstract:Thisprojectinvestigatesthecomplexrelationshipsamongstrengthsofcharacter,structur-ally-imagedestimatesofwhitematterdamageinfrontalbrainregions,psychologicalresiliency,andoutcomesincludingsatisfactionwithlifeandcommunityintegrationamongpeoplewithTBI.
Addi-tionally,thisprojectinvestigatestheextenttowhichPetersonandSeligman'sCharacterStrengthsmodelofrecoveryfromphysicalillnessandtraumaholdstrueforpeoplerecoveringfromTBIduringtheacutetransitionphaseofadjustmenttodisability.
Thepsychosocial,cognitive,andphysicalcharac-teristicswhichmayinfluencetheserelationshipsarealsoexplored.
Thisprojectmeasuresthesatisfac-tionwithlife(asmeasuredbytheSatisfactionwithLifeScale)andcommunityintegration(asmea-suredbytheCommunityIntegrationMeasure).
Characterstrengthsareevaluatedviatwoself-reportscales.
Estimatesofstructuralbraindamagearegatheredviadiffusiontensorimaginginthreemainareasoftheprefrontalcortex:thedorsolateral,orbitofrontal,andventromedialcortices.
Ancillarymeasuresareincludedinthedesigninordertoelucidatetherelationshipsbetweenpositivepsychologyconstructsandimportantmediators/moderatorsofrecoveryfromTBI:neuropsychologicalstatus,perceivedsocialsupport,problem-solvingcopingstyle,positiveandnegativeaffectivity,andcomorbidphysicalillness.
NIDRRProgramDirectoryFY2008-HealthandFunction2-80FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NebraskaDevelopmentofanIntelligentlyControlledAssistiveRehabilitationElliptical(ICARE)TrainingSystemtoPromoteWalkingandFitnessinPersonswithPhysicalLimitationsMadonnaRehabilitationHospitalMovementSciencesCenterInstituteforRehabilitationScienceandEngineering5401SouthStreetLincoln,NE68506jburnfield@madonna.
orgwww.
madonna.
org/research_institute/movement_neurosciences/about_us/index.
htmlPrincipalInvestigator:JudithBurnfield,PhD,PTPublicContact:402/483-9669ProjectNumber:H133G070209StartDate:October01,2007Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY07$199,524;FY08$199,555Abstract:ThegoalofthisprojectistodevelopICARE,anIntelligentlyControlledAssistiveRehabili-tationEllipticaltrainerandtherapeuticprogramtohelpindividualswithphysicalormobilitydisabilitiesregainand/orretaintheirwalkingabilityandphysicalfitness.
Specifically,theprojectdevelops,refines,andfield-testsaprototypeICAREtrainer.
Itincludesanaffordable,intelligentcontrolsystemthatadaptsthemovementpatternoftheellipticaltrainertotheuniquephysicalassistanceneedsofindividu-alsastheyrelearntowalkandexercise.
Thespecificobjectivesofthisprojectwhichaddressthisgoalareto:(1)identifythebestcommerciallyavailableellipticaltrainertoredesignintoanICAREtrainer;(2)develop,pilottest,andrefineaprototypeICAREdeviceinacontrolled(laboratory)environmenttoimprovefunction,features,beneficialtherapeuticeffectsforwalking,andequipmentdurability;and(3)implementusageoftheICAREsysteminthreefree-livingenvironments(aninpatientrehabilitationcenter,outpatientneurologicandorthopaedicclinic,andacommunity-basedfitnessfacility)toevaluatethecapacityofthedevicetoimprovewalkingabilityandcardiovascularfunctionofpersonswithvariedgaitdysfunctionsanddevelopatherapeuticinterventionprogramusingthedevice.
NIDRRProgramDirectoryFY2008-HealthandFunction2-81FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NebraskaInvestigationoftheDynamicsofDevelopmentofSittingPosturalControlinInfantswithCerebralPalsyUniversityofNebraskaatOmahaHPERBiomechanicsLab6001DodgeStreetOmaha,NE68182-0216nstergiou@mail.
unomaha.
eduwww.
unomaha.
edu/infant/PrincipalInvestigator:NicholasStergiou,PhD;WayneA.
Stuberg,PhD,PT;ReginaT.
Harbourne,PT402/554-3247PublicContact:LisaHolst402/554-3075;Fax:402/554-3693ProjectNumber:H133G040118StartDate:December01,2004Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY04$150,000;FY05$150,000;FY06$150,000;FY07(No-costextensionthrough11/30/2008)Abstract:Theoverallgoalofthisresearchistounderstandthemechanismsunderlyingthedevelop-mentofposturalcontrolinsittingusingnewmethodology,inordertoprovideascientificbasisforevaluationandtreatmentofpostureandmovementdisordersininfantswithcerebralpalsy.
Thedevel-opmentofearlyposturecontrolremainspoorlyunderstooddespiteconsiderabletherapeuticeffort.
Infantswithcerebralpalsyshowtheirfirstdelaysintheacquisitionofsitting,withsubsequentprob-lemsdevelopingadequatepostureandmovementcontrol.
Identifyingthedelay,determiningthenatureoftheproblem,andevaluatingtheeffectivenessoftreatmentquickly,arevitalintheearlypartofaninfant'slife,sincethisisthetimeofgreatestplasticity.
Toolsfromnonlineardynamics,whichareincreasinglybeingusedtoexamineotherbiologicalrhythms,areusedinthisstudytoanalyzeposturalswayfromcenterofpressuredataduringthedevelopmentofsittingposturalcontrol.
NIDRRProgramDirectoryFY2008-HealthandFunction2-82FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NebraskaInvestigationofInterventionsforSittingPosturalControlinYoungChildrenwithModeratetoSevereCerebralPalsyUniversityofNebraskaatOmahaHPERBiomechanicsLab6001DodgeStreetOmaha,NE68162nstergiou@mail.
unomaha.
eduwww.
unomaha.
edu/biomech/PrincipalInvestigator:NicholasStergiou,PhD402/554-3247PublicContact:LisaHolst402/554-3075;Fax:402/554-3693ProjectNumber:H133G080023StartDate:October01,2008Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY08$200,000Abstract:Thisprojectidentifiesinterventionsthatimprovethequalityoflifeforchildrenwithcerebralpalsy(CP).
Thefirstinterventionfocusesonprinciplesofenhancingcomplexityinmovementvariabil-ity,whichhasbeenshowntobeeffectiveinimprovinginfantsittingposturalcontrolinpreviousresearch.
Thesecondinterventionusestheparadigmofaddingstochasticnoisetothesupportsurfacetoimproveposturalresponses,amethodusedsuccessfullyinadultswithdecreasedposturalcontrol.
Thisprojectconductsthreeexperiments:Experiment1utilizesnonlineardynamicstechniquestoquantifychangesinposturalcontrolasmeasuredbythecenterofpressuretimeseriesinsitting;Experi-ment2utilizesthesamechildrenasinExperiment1,butexaminesfunctionalchangesinarmuse,focusedattention,andplayovertimeassittingposturalcontrolimproves;Experiment3examineschangesinself-care,participation,andgrossmotorfunctiontodeterminetherelationshipbetweenchangesinposturalcontrolandparticipationwithinthechild'senvironment.
TheseexperimentsenhancetheabilitytoprovidebettermethodstotreatchildrenwithmoderatetosevereCP;andprovideabetterunderstandingofthedevelopmentofcognition,function,play,andparticipationforchildrenwithCPinrelationtoimprovedposturalcontrolsitting.
NIDRRProgramDirectoryFY2008-HealthandFunction2-83FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NewJerseyQualityofLifeinTraumaticBrainInjuryResearchandPractice:DevelopmentoftheTBI-QOLKesslerMedicalRehabilitationResearchandEducationCorporation(KMRREC)1199PleasantValleyWayWestOrange,NJ07052-1499dtulsky@kmrrec.
orgPrincipalInvestigator:DavidS.
Tulsky,PhDPublicContact:973/243-6849;973/243-6916;Fax:973/243-3527ProjectNumber:H133G070138StartDate:October01,2007Length:36monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY07$199,830;FY08$199,414Abstract:Thescarcityofqualityoflife(QOL)measurementtoolsspecifictotraumaticbraininjury(TBI)hinderstheeffortsofTBIinterventionresearchers,whosegoalistoobtainvalidandusefuldatatoevaluatenewtreatmentapproaches.
Thegoalsofthisstudyareto:(1)developaninstrumentforcomprehensivelyassessingthehealth-relatedqualityoflife(HRQOL)ofpersonswithTBI,regardlessoftheseverityoftheircondition;(2)enablecomparisonsofHRQOLinTBIwithHRQOLinotherneurologicconditionsbyintegratingthisinstrumentwiththeNeuro-QOLproject;and(3)investigateanddevelopstrategiesfordeterminingtheHRQOLofindividualswitheventhemostsevereTBI,thusensuringthattheseindividualswillberepresentedininitiativesthatusethisinstrument,ratherthanexcludedasisoftenthecaseduetothedifficultyofassessingsuchpersons.
NIDRRProgramDirectoryFY2008-HealthandFunction2-84FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)OregonDevelopmentofaCognitiveBehavioralGroupTherapyInterventionforWomenwithPhysicalActivityDisabilitieswhoExperienceDepressionOregonHealthandScienceUniversitySchoolofNursing3455SWUSVeteransRoad,SN-637Portland,OR97239-2941phillide@ohsu.
eduPrincipalInvestigator:DenaHassouneh,PhDPublicContact:503/494-2714;Fax:503/494-3878ProjectNumber:H133G070214StartDate:October01,2007Length:36monthsNIDRROfficer:JoyceY.
CaldwellNIDRRFunding:FY07$198,701;FY08$199,926Abstract:Ratesofdepressionandsuicideinwomenwithphysicaldisabilities(WPD)areuptofivetimeshigherthaninthegeneralpopulation.
Despitethisdisparity,fewinterventionstudiesthataddressthespecificneedsofthispopulationareavailable.
Thisprojectusesanexistingcognitivebehavioraltherapy(CBT)interventionthathasdemonstratedeffectivenessinreducingdepressivesymptomsinwomenwithoutdisabilitiesasastartingpointtoco-createaninterventionthataddressesthespecificneedsofWPD.
Theco-creationprocessoccursinthecontextofapartnershipbetweentheinvestiga-tors,WPDinthecommunity,andcommunity-basedorganizationsincludingOregonCentersforIndependentLiving(CILs).
Thespecificaimsofthisprojectareto:(1)DevelopacognitivebehavioralgrouptherapyinterventiontoaddressthespecificneedsofWPDwhoexperiencedepressivesymp-toms;and(2)pilot-testtheinterventiontopreliminarilyevaluateitsefficacywithatotalof90partici-pantsusingausingawaitlistcontroldesign.
PhaseIoftheprojectinvolvesdevelopmentofthecurriculumbasedonthefollowinginformationsources:fourfocusgroupsconductedwithWPD,reviewofempiricsources,communitymeetings,andfeedbackfromourcommunityadvisorsandconsultants.
PhaseIIpilot-teststheinterventionusingbothquantitativeandqualitativemethodstoassessitsefficacy.
Along-termgoaloftheproposedprojectistoincreasethecapacityofCILsandothercommunity-basedorganizationsacrossthecountrytoofferarelevant,effective,accessible,andaffordableinterventiontohelpWPDwithdepressionovercomethisdebilitatingsecondarycondition.
NIDRRProgramDirectoryFY2008-HealthandFunction2-85FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)PennsylvaniaUseofFunctionalNeuroimagingtoAssesstheStatusoftheAttentionNetworksFollowingTraumaticBrainInjuryAlbertEinsteinHealthcareNetworkMossRehabilitationResearchInstitute60EastTownshipLineRoadElkinsPark,PA19027PrincipalInvestigator:JohnWhyte,MD,PhDPublicContact:215/663-6872;Fax:215/663-6113ProjectNumber:H133G050219StartDate:October01,2005Length:36monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY05$149,975;FY06$149,996;FY07$149,952;FY08(No-costextensionthrough9/30/2009)Abstract:Traumaticbraininjury(TBI)isacommoncauseofdisability,particularlyinyoungadults.
SurvivorsofTBIfrequentlysufferfrompersistentcognitiveimpairmentsthatinterferewiththereha-bilitationprocess,aswellasreturntoschool,work,andcommunitylife.
Difficultieswithattention,includingdistractibility,difficultyconcentrating,difficultydividingattention(multi-tasking),andcognitivefatigueduringeffortfultasks,areamongthemostfrequentcomplaintsofsurvivorsofTBIandtheircaregivers.
Thisprojectstudiesthebehavioralresponseandneuralnetworkactivationpat-ternsassociatedwithperformanceofthreetasksdesignedtorelyheavilyonthethreedistinctattentionnetworks:vigilance,executive,andorienting.
ThestudycomparesuninjuredcontrolparticipantstosurvivorsofsevereTBI,withrespecttobothbehaviorandbrainactivationstudiedwithperfusion,andfastevent-relatedBOLDfunctionalmagneticresonanceimaging.
Thestudyalsocomparestheperfor-manceofTBIsurvivorsonactivedrugandplacebointwoseparatepharmacologicprobestudies,usingsingledosesofbromocriptine(aD2dopaminergicagonist)andnicotine(anicotiniccholinergicagonist),predictingdifferentpatternsofresponsestothetwoagents.
NIDRRProgramDirectoryFY2008-HealthandFunction2-86FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)PennsylvaniaZolpidemandRestorationofConsciousness:anExplorationoftheMechanismofActionAlbertEinsteinHealthcareNetworkMossRehabilitationResearchInstitute60EastTownshipLineRoadElkinsPark,PA19027PrincipalInvestigator:JohnWhyte,MD,PhDPublicContact:215/663-6872;Fax:215/663-6113ProjectNumber:H133G080066StartDate:October01,2008Length:36monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY08$199,553Abstract:Severebraindamageduetotraumaticornon-traumaticcausesfrequentlyresultsinuncon-sciousness(coma)and,inaminorityofcases,mayleadtoprolongedorpermanentdisordersofcon-sciousness(DOCs)includingthevegetativeandminimallyconsciousstates.
ThisprojectassessestheresponsesofpatientswithDOCstosingledosesofzolpidemandplaceboinadoubleblindcrossoverdesign,initiallywithstructuredcaregiverreporting.
Repeatstudieswithquantitativeassessmentbyatrainedclinicianfollowforthosewhoarebelievedtorespondtothedrug.
Thoseclassifiedasdefinitedrugresponders,alongwithamatchedsampleofnon-responders,arestudiedintensivelyinPhiladel-phiawithacombinationofstructuralandfunctionalneuroimagingandelectrophysiologicstudiesinanexploratoryfashiontodeveloppreliminaryhypothesesabouttheneuralsubstraterequiredforrespond-ingtozolpidem.
ProjectactivitiesincluderecruitingofanationalsampleofindividualswithDOCstoparticipateinaconsent-based,HIPAAcompliantresearchregistry,whichwillfacilitatethisandfuturestudies.
Thisstudyhelpstodefinethepotentialsizeofthepopulationwhomaybenefitfromzolpidemadministration,encouragesthosewhodobenefittoseekongoingclinicalmanagement,andallowsformulationofhypothesesaboutthemechanismofdrugresponsethatcanbetesteddefinitivelyinsubsequentresearch,makinguseofinterestedregistryparticipants.
NIDRRProgramDirectoryFY2008-HealthandFunction2-87FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)PennsylvaniaTreatmentComponentsandActiveIngredientsinaScheduledTelephoneInterventionforTraumaticBrainInjuryAlbertEinsteinHealthcareNetworkMossRehabilitationResearchInstitute60EastTownshipLineRoadElkinsPark,PA19027thart@einstein.
eduwww.
einstein.
edu/facilities/mossrehab/index.
htmlPrincipalInvestigator:TessaHart,PhDPublicContact:215/663-6153;Fax:215/663-6113ProjectNumber:H133G070143StartDate:October01,2007Length:36monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY07$199,880;FY08$199,844Abstract:Thisprojectstudiesthetreatmentcomponentsandactiveingredientsofaninterventionforpost-acute,moderateandseveretraumaticbraininjury(TBI)knownasScheduledTelephoneInterven-tion(STI).
TheSTIwasdesignedtohelpmeetthemultiple,evolvingneedsofpeoplewithTBIandtheirfamiliesfollowingrehabilitationhospitaldischarge,andconsistsoftelephonecallsplacedbyaspeciallytrainedcounseloratscheduled,graduallyincreasingintervals(sevencallsinthefirstyearpostTBI).
Usingatheoreticallymotivatedmodelofcandidateactiveingredientsinthreeclasses:treatmentelementscommontomanyinterpersonalinterventions(e.
g.
,therapeuticalliance),treatmentelementsrelatedtogoalself-management/executivefunctiontheories,andmodifiervariablessuchastotaldoseoftreatment,theprojectanalyzesthetreatmentcomponentsoftheSTIbycodingarchived,audiotapedtreatmentsessions(calls)from175participantsinthetreatmentarmofthemulticenterrandomizedcontrolledtrialontheSTI.
Thisproject:(1)developsanobjective,reliablescoringsystemformeasur-ingthesetreatmentcomponents;(2)characterizesrelationshipsamongpre-treatmentparticipantcharac-teristics(e.
g.
,levelofdisability)andthetreatmentcomponentsdeliveredduringaone-yearcourseofSTI;(3)examinesthelongitudinaltrendsintreatmentcomponentsduringoneyearoftreatment;and(4)estimatesthe"activity"ofvariousingredientsbyexaminingtherelationshipsamongtreatmentcomponentsandone-yearoutcomes,accountingforthedirecteffectsofbaselinestatusonbothtreat-mentprocessandoutcomes.
NIDRRProgramDirectoryFY2008-HealthandFunction2-88FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)PennsylvaniaUnderstandingtheDeterminantsofMotorAbility,Self-Care,andPlayofYoungChildrenwithCerebralPalsyDrexelUniversityPhysicalTherapyandRehabilitationSciences245North15thStreet,MailStop502Philadelphia,PA19102lisa.
chiarello@drexel.
eduPrincipalInvestigator:LisaA.
Chiarello,PT,PhDPublicContact:215/762-8805;Fax:215/762-3886ProjectNumber:H133G060254StartDate:November01,2006Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$149,981;FY07$149,927;FY08$149,359Abstract:Thespecificpurposeofthisprojectistovalidateamultivariatemodelofdeterminantsofchangeinbasicmotorabilityandengagementinself-careandplayofyoungchildrenwithcerebralpalsy.
Theobjectiveistoidentifythechildcharacteristics,familyecology,andrehabilitationandcommunityservicesthatoptimizeoutcomes.
Theprojecttargetsasubsetofchildrenwithcerebralpalsywhoasadultswillnotwalkindependentlyinthecommunityandwillrequirephysicalassistanceforself-careattimesthroughouttheday.
Informationonthefactorsthatenhanceoutcomesforthesechildrenisparticularlyneededbecausefamiliesexpendconsiderabletimeandresourcestomeettheirchildren'shealth,education,anddevelopmentneeds.
Knowledgeofdeterminantsofchildren'schangeinbasicmotorabilitiesandengagementinself-careandplaywillenablehealthcareprofessionalsandeducatorstoprovideevidence-basedinterventions,supportfamilies,andoptimizecommunityre-sources.
NIDRRProgramDirectoryFY2008-HealthandFunction2-89FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)PennsylvaniaVirtualRealityAssessmentandTreatmentofHemispatialNeglectAlbertEinsteinHealthcareNetworkMossRehabilitationResearchInstitute1200WestTaborRoad,Korman213Philadelphia,PA19141lbuxbaum@einstein.
eduPrincipalInvestigator:LaurelBuxbaum,PsyDPublicContact:215/456-5953;Fax:215/456-5926ProjectNumber:H133G060086StartDate:December01,2006Length:36monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY06$149,593;FY07$149,819;FY08$149,910Abstract:Thegoalofthisprojectistoaddresspreviouslimitationsintheassessmentandtreatmentofneglectthroughtheuseofvirtualreality(VR)technology.
Hemispatialneglect,afailuretoattendtoand/oractonobjectsonthesideofspaceoppositeabrainlesion,isacommonandpersistentconse-quenceofstroke,occurringinapproximately45percentofthenearly2millionAmericanswhohavesufferedarighthemispherecerebralvascularaccident.
Theneglectsyndromeisassociatedwithimpair-mentsinawiderangeofactivitiesofdailyliving,withsignificantconsequencesforfunctionalinde-pendence.
ThisprojectcapitalizesonanumberofVR'susefulassets,includingsimulationofthespatialandcognitivedemandsofrealworldenvironments,quantificationofaspectsofperformance,readycontroloftheexperimentaltask,andeaseofadministration.
Themajoraimsare:(1)todevelopandvalidateaVRnavigationtaskmeasuringlateralizedattention(theVRLAT),anextensionofasensitiveVRtaskdevelopedpreviously;(2)toperformclinicaltrialsassessingtheshort-termefficacyoftwoVR-basedtreatmentsforneglectthatinducedifferenttypesofmismatchbetweenproprioceptiveandvisualinformation,usingtheVRLATasoneofthemeasuresoftreatmentresponse;and(3)toperformclinicaltrailsofthetwotreatmentsfocusedongeneralizationandmaintenanceofgainswithalongercourseoftreatment.
NIDRRProgramDirectoryFY2008-HealthandFunction2-90FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)SouthCarolinaALongitudinalStudyofRiskforHospitalization,PressureUlcers,andSubsequentInjuriesAfterSpinalCordInjuryMedicalUniversityofSouthCarolinaCollegeofHealthProfessionsDepartmentofRehabilitationSciences77PresidentStreet,Suite117POBox250700Charleston,SC29425cokerj@musc.
eduwww.
musc.
edu/chp/sciorg/PrincipalInvestigator:JamesS.
Krause,PhD843/792-1337PublicContact:JenniferCoker,MPH843/792-2605;Fax:843/792-5649ProjectNumber:H133G050165StartDate:December01,2005Length:36monthsNIDRROfficer:JoyceY.
CaldwellNIDRRFunding:FY05$149,992;FY06$149,995;FY07$149,997;FY08(No-costextensionthrough11/30/2009)Abstract:Theonsetofspinalcordinjury(SCI)increasestheriskforthedevelopmentofanumberofsecondaryconditionsthatmayadverselyimpactanindividual'slifeandevenresultinearlymortality.
Thepurposeofthisprojectistoperformalongitudinalstudytoidentifyprotectiveandriskfactorsassociatedwiththeonsetofmultipletypesofadversehealtheventsamongalargesampleofindividu-alswithSCI.
In1997-8,prospectivedatawascollectedon1,391participantswhoincludedasubstan-tialnumberofwomen(n=362)andracial/ethnicminorities(n=359).
Riskandprotectivepredictorswereselectedbasedonageneralempiricalriskmodel.
Predictorvariableswerefirstmeasuredovera10-monthperiodin1997-1998,including:(a)biographicalstatus,(b)injurystatus,(c)psychologicalstatus,(d)environmentalfactors,and(e)healthbehaviors.
Severalhealthoutcomesmeasureswerealsoused.
Duringthisfollow-upstudy,theprojectadministersseveralnewpredictormeasuresalongwithmultipleoutcomemeasures,severalofwhichwerealsoadministeredduringthepreviousstudy.
Thesemeasuresfocusonadversehealtheventsincludinghospitalizations,onsetofpressureulcers,subse-quentinjuries,andtheonsetofprobablemajordepression.
Theprojectincludesstructuralequationmodelingtodevelopriskmodelsforeachoutcome.
Aconsumeradvisorycommitteemeetsbi-annuallytomakerecommendationsregardingallcomponentsoftheproject.
TheultimatestudygoalistoenhancethelivesofpeoplewithSCIbyidentifyingtheriskandprotectivefactorsassociatedwithadversehealtheventstoserveasafoundationforpreventioneffortsbyrehabilitationandpublichealthprofessionals.
Thisdirectlyempowersconsumerstoimprovetheirownhealthbybeingprovidedwithconcreteinformationandrecommendationstopromotebetterhealthandavoidpreventablesecondaryhealthcomplications.
NIDRRProgramDirectoryFY2008-HealthandFunction2-91FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)SouthCarolinaParticipation,SubjectiveWell-Being,Health,andSpinalCordInjury:A35-YearLongitudinalStudyMedicalUniversityofSouthCarolinaCollegeofHealthProfessionsDepartmentofRehabilitationSciences77PresidentStreet,Suite117POBox250700Charleston,SC29425cokerj@musc.
eduwww.
musc.
edu/chp/sciorg/PrincipalInvestigator:JamesS.
Krause,PhD843/792-1337PublicContact:JenniferCoker,MPH843/792-2605;Fax:843/792-5649ProjectNumber:H133G060126StartDate:December01,2006Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$149,954;FY07$149,987;FY08$149,946Abstract:Thepurposeofthis35-yearlongitudinalstudyistoidentifythenaturalcourseofchangesinparticipation,health,andsubjectivewell-beingamongfivecohortsofparticipantswithspinalcordinjury(SCI).
Datawerefirstcollectedin1973from256participants,78ofwhomhaveparticipatedthroughoutthestudy.
Usingarevolvingpanellongitudinaldesign,participantsarefollowedovertimewithnewparticipantsamplesaddedtocounterattrition.
Todate,therehavebeenatotalof2,208differentparticipantsoverthe6timesofmeasurement,includingnearly100whohavelived40ormoreyearswithSCI.
Thisstudyistheseventhstageofdatacollectionandaddressesnotonlythenaturalcoursethroughanalysisofbothcross-sectionalandmultiplelongitudinalelements,butalsospecialissuesincludingqualityoflifeandterminationofemployment,changeinlivingcircumstancetoamorerestrictiveenvironment,andtheroleofenvironmentalfactorsonstabilityofhealthandqualityoflife.
Therearethreeprimaryactivities:(1)finalizationofinstrumentation,basedonconsumerpanelrecommendationsandpilottesting;(2)primarydatacollection;and(3)consumerinitiateddevelopmentofrecommendationsforhealthylivingwithagingforconsumersandpolicyrecommendationsforrehabilitationprofessionsandlegislators.
NIDRRProgramDirectoryFY2008-HealthandFunction2-92FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)TexasEffectivenessofaGroupCognitive-BehavioralInterventionforDepressionafterTBIandFactorsthatAffectResponsetoTreatmentMemorialHermanTheInstituteforRehabilitationandResearch(TIRR)BrainInjuryResearchCenter2323SouthShepherd,Suite907Houston,TX77019anclark@bcm.
edu;struchen@bcm.
tmc.
eduPrincipalInvestigator:AllisonClark,PhD;MargaretStruchen,PhD;713/630-0519(Clark);713/630-0515(Struchen)PublicContact:AllisonClark,PhD713/630-0519;Fax:713/630-0529ProjectNumber:H133G070222StartDate:October01,2007Length:36monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY07$197,754;FY08$197,899Abstract:Thisprojectisdesignedtoevaluatetheeffectivenessofagroupcognitivebehavioralinter-vention(CBTgroup)fortreatingdepressivesymptomsinpersonswithtraumaticbraininjury(TBI),toassesstheimpactofcognitiveimpairmentsonanindividual'sresponsetotheCBTgroup,andtoassesstheimpactoftheCBTgrouponcommunityparticipationandsubjectivewell-beinginpersonswithTBI.
Theinitialphaseofthisstudyinvolvesutilizinginputfromconsumerandexpertadvisorstodevelopanapproachandtoadaptmaterialsforusewithpersonswithcognitiveimpairments.
Onceadapted,theinterventionispilotedwithagroupoffiveindividualswithatleastmildsymptomsofdepression.
Afterthepilotphase,arandomized,attentioncontrolledclinicaltrialfollows.
Cognitive-behavioralapproachestotreatmentofdepressionhavebeendemonstratedtohaveeffectivenessinmanypopulations,includingagrowingbodyofevidenceforeffectivenessinpersonswithothertypesofacquiredbraininjury.
Giventheinherentstructurethatsuchapproachesutilize,whichmayhelpminimizecognitivedemands,cognitivebehavioraltherapywouldappearwell-suitedtousewithpersonswithTBI.
NIDRRProgramDirectoryFY2008-HealthandFunction2-93FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)WashingtonEfficacyofPressureGarmentTherapyAfterBurnsUniversityofWashingtonHarborviewMedicalCenter,Box359796325NinthAvenueSeattle,WA98104engrav@u.
washington.
eduPrincipalInvestigator:LorenH.
Engrav,MDPublicContact:206/731-3209ProjectNumber:H133G050022StartDate:October01,2005Length:36monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY05$150,000;FY06$150,000;FY07$150,000;FY08(No-costextensionthough9/30/2009)Abstract:Thisprojectconductsarandomized,controlledtrialtodeterminetheefficacyofcustom-fitpressuregarmenttherapyinthepreventionofhypertrophicscarringinhealedburnssothatthegar-mentsmaybeprescribedbaseduponsounddataordiscontinuetheiruseinburncare.
Hypertrophicscarringisoneofthemostdevastatingoutcomesfollowingburninjury.
Pressuregarmentsarethecommontherapytominimizetheseeffects.
However,thesegarmentsareunattractive,expensive,anduncomfortable,andtheiruseneedstobevalidatedbyrigorousresearch.
NIDRRProgramDirectoryFY2008-HealthandFunction2-94FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)WashingtonTelephoneandIn-PersonCognitiveBehavioralTherapyforDepressionAfterTraumaticBrainInjuryUniversityofWashingtonDepartmentofPsychiatryandBehavioralSciencesBox3565601959NEPacificStreetSeattle,WA98195fann@u.
washington.
eduPrincipalInvestigator:JesseR.
Fann,MD,MPHPublicContact:206/685-4280;Fax:206/221-5414ProjectNumber:H133G070016StartDate:October01,2007Length:36monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY07$199,873;FY08$199,981Abstract:Thisprojectcontinuespreviouseffortstoestablishevidence-basedtreatmentsformajordepressivedisorder(MDD)inpeoplewithtraumaticbraininjury(TBI).
MDDisthemostcommonpsychiatricdisorderamongTBIsurvivorsandhaswidespreadnegativeeffectsonhealthandfunctionaloutcomesinpeoplewithTBI.
Thisthree-armedrandomizedcontrolledtrialcompares(1)in-personcognitivebehavioraltherapyfordepressionthatisadaptedforpeoplewithTBI(CBT-TBI)and(2)telephone-basedCBT-TBItoa(3)usualdepressioncarecondition(UC).
PreviousresearchfoundthatpeoplewithTBIanddepressionarehighlyinterestedinusingpsychotherapytotreatdepression.
AlthoughpsychotherapyiswidelyusedinthetreatmentofgeneralpsychologicalaspectsofTBI,solidevidencefortheefficacyofpsychotherapyforMDDinthispopulationisabsent.
WhileCBTisthemostevidence-basedpsychotherapyavailableforMDD,thusfarthereisonlyexpertopiniontoguidehowCBTshouldbeadaptedforpeoplewithTBI(i.
e.
,toaccommodatepatientswithneurocognitiveandneurobehavioralimpairments).
Therefore,thisstudyadaptsCBTspecificallyforpeoplewithTBIinathreearmtrialandmeasuresthefeasibility,acceptability,andpotentialeffectivenessofthisadaptedinterventioninbothtelephone-administeredandin-personformats,comparedwithUC.
Thelong-termgoalofthisresearchistodevelopafeasibleandeffectivemanualizedpsychotherapyinterventiontotreatmajordepressivedisorderinpersonswithTBIthatisapplicableacrossawidearrayofsettings.
NIDRRProgramDirectoryFY2008-HealthandFunction2-95FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)WisconsinAdverseOutcomesFollowingInpatientRehabilitation:TrendsandReasonsUniversityofWisconsin/MilwaukeeDepartmentofOccupationalTherapyEnderisHall963POBox413Milwaukee,WI53201johnsto@uwm.
eduPrincipalInvestigator:MarkJohnston,PhDPublicContact:414/229-3616ProjectNumber:H133G060218StartDate:November01,2006Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY06$149,129;FY07$149,772;FY08$149,888Abstract:Researchisneededtodeveloptheknowledgebaseandtoolsnecessarytoaddresstheproblemofincreasedratesofmortalityandhospitalizationfollowinginpatientrehabilitationandtoexamineexplanationsforadverseoutcomes.
Descriptiveanalysesareconductedfirsttodescribeimportanttrendsinmortalityandrehospitalizationandtoprovideabasisforfurtheranalyses.
Multi-variateriskadjustmentmodels–basedonimpairments,functionallevel,age,andotherpatientcharac-teristicsinextantdatabases–arethendevelopedtopredictadverseoutcomes.
Theseriskadjustmentmodelsprovidethenecessarybasistodistinguishtheeffectsofpatientseverityandcaseloadfromotherfactorsthataffectadverseoutcomes.
Researchersthenexamineandtesttheeffectsofimportantfacilitycharacteristicsthatmayaffectratesofadverseoutcomes.
Theprimaryoutcomestobestudiedaremortalityandrehospitalization;functionaldeclineisalsostudied,asit,too,mayindicatemedicalinstability,andallthreeoutcomesmayormaynotbepredictedandaffectedbythesamesetoffactors.
NIDRRProgramDirectoryFY2008-HealthandFunction2-96FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)WisconsinConservativeandSurgicalClubfootTreatment:Multi-CenterStudyMarquetteUniversityOrthopaedicandRehabilitationEngineeringCenterP.
O.
Box1881Milwaukee,WI53201-1881depps@mcw.
eduwww.
orec.
orgwww.
marquette.
eduPrincipalInvestigator:PeterA.
Smith,MDPublicContact:DeborahEpps,ProjectAdministrator414/288-0696;Fax:414/288-0713ProjectNumber:H133G060252StartDate:January01,2007Length:36monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY06$150,000;FY07$150,000;FY08$150,000Abstract:Thisstudyisdesignedtocomparethelonger-termeffectsoftwomethodsofclubfoottreatment:(1)theconservativePonsetitechniqueofmanipulationandcasting,and(2)progressivesurgicalrelease.
Clubfootisacongenitalfootdeformityoccurringin1in1,000births.
Itiscommonlytreatedatpediatricorthopaedichospitalsanditsincidencehasbeenconstantandnotexpectedtodecrease.
Treatmentisideallyaccomplishedearlyinlife,withinthefirstyear,andisoftensuccessfulinaccomplishingasatisfactory,plantigradefoot,whichwillfitinshoes.
Littleisknown,howeveraboutthefunctionoftreatedclubfeet.
Thisprojectinvestigatesthelonger-termoutcomeofchildrenwithtreatedclubfootdeformityusingpatient-basedoutcomes,functionalinstruments,motionanalysis,radiologicalassessment,andposturalstability.
Theobjectiveistodeterminewhetherfunctionalout-comes,posturalstability,andgaitanalysischaracterizeoverallpatientsatisfactionandmotorperfor-manceandtoquantifytheeffectsoforthopaedicinterventions.
ContentsRehabilitationEngineeringResearchCenters(RERCs)3DisabilityandRehabilitationResearchProjects29FieldInitiatedProjects(FIPs)33SmallBusinessInnovationResearch(SBIR),PhaseI.
58SmallBusinessInnovationResearch(SBIR),PhaseII72TechnologyforAccessandFunctionWithNIDRR'sresearchpriorities,technologyspansthegoalsofsustaininghealthandfunction,employment,andparticipationandcommunitylivingreflectingthecriticalcontributionsoftechnologytosuccessfuloutcomesforpersonswithdisabilitiesinalltheseareas.
Attheindividuallevel,theprimaryfocusisonassistivetechnologydevicesthatenhancethephysical,sensory,andcognitiveabilitiesofpeoplewithdisabilitiesandassisttheminparticipatingandfunctioningmoreindependentlyinthehome,atwork,inrecreationalsettings,andatculturalandcommunityevents.
Atthesystemslevel,theemphasisisonapplyingtechnologyresearchanddevelopmentinwaysthatenhancecommunityintegration,independence,productivity,competitiveness,andequalopportunitybymitigatingoreliminatingbarriersfoundinlargesocialsystemssuchaspublictransportation,telecommunications,IT,andthebuiltenvironment.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-3RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)CaliforniaRehabilitationEngineeringResearchCenter:DevelopandEvaluateTechnologyforLowVision,Blindness,andMulti-SensoryLossTheSmith-KettlewellEyeResearchInstitute2318FillmoreStreetSanFrancisco,CA94115rerc@ski.
orgwww.
ski.
org/RehabPrincipalInvestigator:JohnA.
Brabyn,PhD415/345-2110PublicContact:DeborahGilden,PhD415/345-2000;Fax:415/345-8455ProjectNumber:H133E060001StartDate:August01,2006Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY06$950,000;FY07$950,000;FY08$950,000Abstract:ThisCenterconductsaprogramofresearchanddevelopmenttoenhancetheindependenceofblind,visuallyimpaired,anddeaf-blindindividuals.
Researchincludesinvestigationofassessmentmethodstoguiderehabilitationofinfantcorticalvisualimpairment;practicalinnovationsinassessmentandinterventionsforelderswithvisualimpairments;anddevelopmentofindependentassessmentguidelinesforemergingvisualprostheses.
TheCenteralsoconductsresearchinaccesstographicalinformationforblind,visuallyimpaired,anddeaf-blindpersons,developingtoolsforrapidscreenoverview,auditoryandtactilegraphpresentation,imageclassification,andon-demandproductionoftactilestreetmaps.
Toaddresssignageandtravelinformation,theprojectisinvestigatinginformationinterfacesfortravelerswhoareblindorvisuallyimpaired,andinnovativecomputervisionmethodstofindandreadexistingprintsignsandlabels.
Toaddresstherisingbarrierstoaccessingvisualdisplaysandappliancesforemploymentanddailyliving,thereisadesignereducationcampaignanddevelop-mentofauniversaltalkingLCD/LEDdisplayreader,practicalconsumertools,andjobsiteadaptationsforemployeeswhoareblindorvisuallyimpaired.
Otherprojectsincludedevelopmentofanew-generationroboticfinger-spellinghandfordeaf-blindcommunication,andpilotinvestigationsofdifficultiesinlipreadingandsignlanguagereadingexperiencedbythosewithcombinedauditoryandvisualimpairment.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-4RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)ColoradoRehabilitationEngineeringResearchCenterfortheAdvancementofCognitiveTechnologies(RERC-ACT)UniversityofColoradoHealthSciencesCenter1245EastColfax,Suite200Denver,CO80218cathy.
bodine@uchsc.
eduwww.
rerc-act.
orgPrincipalInvestigator:CathyBodinePublicContact:303/315-1281;Fax:303/837-1208ProjectNumber:H133E040019StartDate:November01,2004Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY04$850,000;FY05$850,000;FY06$850,000;FY07$850,000;FY08$850,000Abstract:ThegoalofthisRERCistoresearch,develop,evaluate,implement,anddisseminateinnovativetechnologiesandapproachesthatwillhaveapositiveimpactonthewayinwhichindividu-alswithsignificantcognitivedisabilitiesfunctionwithintheircommunitiesandworkplace.
TheCenterincorporates:(1)aconsumer-drivenmodelforidentifyingthemostsignificantbarrierstoindependentlivingandworkforceparticipation;(2)anapproachthatisbalancedandusesbothwell-establishedandnewlyemergingtechnologiesinitsdevelopmentprojects;(3)afocusbothonfunctionallimitationsandspecificdisabilities;and(4)mutuallybeneficialpartnershipswithprivateindustryandpublicagencies.
Researchactivitiesinclude:needs,knowledge,barriers,andusesofATbypersonswithcognitivedisabilities;technologyforremotefamilysupportforpeoplewithcognitivedisabilities;influencesonATuse,non-use,andpartialandinappropriateusebypersonswithtraumaticbraininjury;ATenhance-mentofwrittenexpressionforchildrenandadults;needsassessmentforcreatingaffordable,context-awaretechnologies;andtechnologytopromotedecision-makingskillsandself-determinationforstudentswithcognitivedisabilities.
Developmentactivitiesinclude:Design,implementation,anddeploymentofcontextawaretechnologiesforpersonswithcognitivedisabilitiesresidingincommu-nitylivingenvironments;developmentofHealthQuest,anInternet-basedproductthatenablesindi-vidualswithintellectualdisabilitiestobecomeactiveparticipantsintheirownhealthcare;XMLrepositoryofcommontasks;batterylessmicropowersensorsforcontextawaretechnologies;perceptiveanimatedinterfacesforworkforcetraining;andenvironmentallyappropriatebehavioralcuesforindividualswithTBI.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-5RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)DistrictofColumbiaRehabilitationEngineeringResearchCenteronHearingEnhancementGallaudetUniversityDepartmentofHearing,Speech,andLanguageSciences800FloridaAvenue,NEWashington,DC20002matthew.
bakke@gallaudet.
eduwww.
hearingresearch.
orgPrincipalInvestigator:MatthewH.
Bakke,PhDPublicContact:202/651-5335(V/TTY);Fax:202/651-5324ProjectNumber:H133E030006StartDate:October01,2003Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY03$949,999;FY04$949,024;FY05$949,480;FY06$949,998;FY07$949,999;FY08(No-costextensionthrough9/30/2009)Abstract:ThemissionofthisRERCistobuildandtestcomponentsofanew,innovativemodelofauralrehabilitationtools,services,andtraining,inordertoimproveassessmentandfittingofhearingtechnologiesandtoincreasetheavailability,knowledge,anduseofhearingenhancementdevicesandservices.
ComponentA:(1)developsandevaluatesnewmethodsforfieldevaluationandfittingofhearingaids;(2)developsandevaluatestechniquestoenhanceauditoryself-monitoring;and(3)developsmethodsforpredictingthespeech-to-interferenceratioandintelligibilityofspeechforahearingaidwhenusedwithawirelesstelephone.
ComponentBconductsaneedsassessmentsurveyofpeoplewhousehearingtechnologiesandevaluatestheuseofBluetoothtechnologyasameansofimprovingandexpandingwirelessconnectiontoahearingaid.
ComponentCinvestigatesenviron-mentalfactorsaffectingchildren'sspeechrecognitionabilitiesinclassroomsettings.
ComponentDinvestigatestheuseofdistortionproductotoacousticemissionandreflectancefordiagnosisofhearinglossandtinnitus,andcreatesandstandardizessetsofsynthesizednonsensesyllablesforuseinhearingaidresearch.
ComponentEdevelopsanew,innovativemodelforthedeliveryofauralrehabilitationservicestoadultswithhearingloss.
InadditiontheRERCconductsaprogramoftraininganddissemi-nationthatreachesadiverseaudienceofpeople,bothconsumersandprofessionals.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-6RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)DistrictofColumbiaRehabilitationEngineeringResearchCenteronHearingEnhancementGallaudetUniversitiyDepartmentofHearing,Speech,andLanguageSciences.
800FloridaAvenue,NEWashington,DC20002www.
hearingresearch.
orgPrincipalInvestigator:JamesMahshiePublicContact:202/651-5329;Fax:202/651-5792ProjectNumber:H133E080006StartDate:October01,2008Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$949,935Abstract:Thisprojectbuildsandtestscomponentsofaninnovativemodelofauralrehabilitation(AR)tools,services,andtraininginordertoassureabettermatchbetweenhearingtechnologiesandindi-vidualsintheirnaturalenvironments.
Projectgoalsinclude:(1)improvingassessment,fitting,availabil-ity,anduseofhearingtechnologies;(2)increasingthequality,availability,andknowledgeofARservices;(3)trainingofconsumers,serviceproviders,andfutureresearchers,developers,andpractitio-ners;and(4)transferringtechnologyandknowledgetoagencies,standardsbodies,consumers,andtheprofessionswhoinfluencethecommunicativeeffectivenessofthosewhoaredeaforhardofhearing.
Additionalcomponentprojectsaredesignedtofallintofourareas:(1)ARprojectsimprovetheassess-mentandtreatmentofindividualsinneedofAR;(2)hearingtechnologyaddressesthetechnologychallengesofreal-lifeuseofassistivetechnologies,hearingaids,andcochlearimplants;(3)trainingprogramsprovidetrainingofindividualswhowillbecometherehabilitationinnovatorsofthefuture;and(4)disseminationandadvocacyprogramstransfertechnologyandknowledgetoagencies,stan-dardsbodies,consumers,andhearingprofessionals.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-7RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)GeorgiaRehabilitationEngineeringResearchCenteronWheeledMobilityGeorgiaInstituteofTechnologyCenterforAssistiveTechnologyandEnvironmentalAccess(CATEA)490TenthStreet,NWAtlanta,GA30318mobilityrerc@coa.
gatech.
edumobilityrerc.
catea.
org/PrincipalInvestigator:StephenSprigle,PhD,PTPublicContact:404/894-4960;Fax:404/894-9320ProjectNumber:H133E030035StartDate:November01,2003Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY03$949,988;FY04$949,951;FY05$949,975;FY06$949,998;FY07$949,979;FY08(No-costextensionthrough10/31/2009)Abstract:ThegoalofthisRERCistoundertakeamajorshiftinthewaywheeledmobilityisconcep-tualizedandunderstood,fromthedesignofassistivedevicesthatenablesomeindividualstoperformsomeactivities,tothedesignofabroadrangeofinterventionsthatenableasmanyindividualsaspossibletoactivelyengageandparticipateineverydaycommunitylife.
Researchactivitiesinclude:(1)UserNeedsandDesignInputusesparticipatoryfocusgroupstoidentifyneedsofwheelchairusers;(2)UserNeedsofOlderAdultsassessestheneedsofolderadultslivingathomeandinotherresidentialsettings;(3)EffectsofEnvironmentandMobilityTechnologyonParticipationandActivitymeasurestheinfluencesofenvironmentalbarriersandspecializedwheelchairtechnologyonparticipationandactivityineverydaylife;(4)EfficacyofAnimationandVisualizationTrainingusescomputersimula-tiontechniquestoinvestigatetheirefficacyinimprovingmobilitytraining;and(5)ClinicalandFunc-tionalImplicationsofSeatingStandardsandGuidelinesstudiestherelationshipbetweenstandardizedmeasuresofcushionperformanceandactualimpactonwheelchairusers.
Developmenteffortsinclude:(1)developmentandmarketingofnewmobilitydevicesincollaborationwithindustrydesignpartners;(2)developmentofawheelchairforfraileldersthatcanbeusedinanyresidentialenvironment;(3)interventionstoovercomebarrierstoparticipationincludingguidelinesandtechnologiestohelpwheelchairusersovercomeenvironmentalandtechnologicalbarriers;(4)developmentofanimationandvisualizationtrainingthroughcomputersimulationstoimprovetrainingintransfersandoutdoormobility;and(5)developmentofvalidwheelchaircushiontestmethodswhichenablesclinicianstoprescribeappropriatewheelchaircushionsbasedonpositioningandloaddistribution.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-8RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)GeorgiaRehabilitationEngineeringResearchCenterforWirelessTechnologiesGeorgiaInstituteofTechnologyVirginiaC.
CrawfordResearchInstituteShepherdCenter2020PeachtreeRoad,NWAtlanta,GA30309wirelessrerc@shepherd.
orgwww.
wirelessrerc.
orgPrincipalInvestigator:HelenaMitchell,PhD404/367-1288PublicContact:LynzeeHead404/367-1288;Fax:404/350-7596ProjectNumber:H133E060061StartDate:October01,2006Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY06$949,999;FY07$949,999;FY08$949,998Abstract:Themissionofthisprojectisto:(1)promoteequitableaccesstoanduseofwirelesstech-nologiesbypersonswithdisabilities;and(2)encourageadoptionofUniversalDesigninfuturegenera-tionsofwirelesstechnologies.
Toaccomplishtheseaims,theRERCisorganizedintothreemainprojectsections:TheResearchSectioniscomprisedoffourresearchinitiatives:FacilitatingUserCenteredResearchisdesignedtoestablisharesearchportalthatcommunicatestoindustrytheneedsofpeoplewithdisabilitiesforwirelesstechnologies.
Customer-drivenUsabilityAssessmentenhancestheusabilityoffuturegenerationsofcellphonesandotherwirelessproductsbydevelopingamethodologyforassessingtheirusabilitybyrepresentativeuserswithdisabilities.
CollaborativePolicyApproachestoPromoteEquitableAccessdevelops,implements,andevaluatesspecificpolicyinitiativesrelatedtoaccessiblewirelesstechnologiesandservices.
AdvancedAuditoryInterfacesdevelops,tests,anddisseminatesguidelinesforthedesignofadvancedauditoryinterfacesforcellphonesandotherhandheldelectronicdevices.
TheDevelopmentSectionincludesfourprojectsthatpromoteequitableaccesstoanduseofwirelesstechnologiesbypersonswithdisabilitiesthroughthedevelopmentofprototypedesigns:AlternativeInterfacescontinuesitsworkontheV2standardsforuniversalremoteconsolesandReal-timeLocation-basedInformationServicesexpandsonpreviousworkontheRERC'spersonalcaptioningsystembyaddressingtheneedsofpatronswithvisionorhearingimpair-mentsinthreedifferentvenues:exhibitspaces,airports,andhospitals.
DevelopmentofWirelessEmergencyCommunicationsandEnsuringAccesstoEmergencyAssistancebothfocusontheareaofwirelessemergencycommunicationsforpeoplewithdisabilities;developingwirelesscommunicationtechnologytobeusedbyemergencypersonneltocontactindividualswithdisabilities,andbypeoplewithdisabilitiestosignaltheneedforassistance.
TheTrainingandDisseminationSectionpromotesthesynthesisofnewknowledgeintopracticewiththeRERC'sStateoftheScienceconferenceandanumberofinitiativesdesignedtoeducateconsumers,providers,andotherprofessionals,including:universitycourses,anannualstudentdesigncompetition,conferencetutorials,andworkshops,allgearedtowardaccessandusabilityofmobilewirelesstechnologies.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-9RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)GeorgiaRehabilitationEngineeringResearchCenteronWorkplaceAccommodationsGeorgiaInstituteofTechnologyCenterforAssistiveTechnologyandEnvironmentalAccess(CATEA)490TenthStreet,NWAtlanta,GA30318workrerc@coa.
gatech.
eduwww.
workrerc.
orgPrincipalInvestigator:KarenMilchus404/894-0393PublicContact:404/894-1414;800/726-9119;Fax:404/894-9320ProjectNumber:H133E070026StartDate:October01,2007Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY07$949,999;FY08$949,999Abstract:TheWorkplaceRehabilitationEngineeringandResearchCenter(RERC)identifies,devel-opsandpromotesnewassistiveanduniversallydesignedtechnologiesthatmaximizeindependenceandparticipationofpeoplewithdisabilitiesintheworkplace.
Itfocusesontheapplicationofuniversaldesign(UD)conceptstoimprovetheutilityofworkplacetoolsanddevicesforallworkersthroughresearch,development,training,anddissemination.
ResearchactivitiesinvestigatefivetopicsidentifiedbycurrentRERCresearch:userneeds,longitudinalcost/benefitsofaccommodations,strategiesusedbyagingworkers,theimpactofpolicyonaccesstoandutilizationofaccommodations,andtheeffectofaccommodationsonemployeeparticipationintheworkplace.
Severaldevelopmentactivitiescreateandvalidatenewworkplaceassessmenttoolsforusebypractitionersandemployees.
Otherdevelop-mentactivitiesdesign,prototype,andevaluatenewworkplaceaccommodations.
Universallydesignedworkstationsandhuman-computerinterfacesarebeingdeveloped.
Inaddition,theWorkRERCdevelopstechnologyforworkerswithidentifiedandunmetaccommodationneeds,includingprompt-ingaidsforemployeeswithdevelopmentaldisabilitiesandaccommodationsforemployeeswithcommunicationdisabilities.
Finally,WorkRERCtrainingactivitiesincludebothinstructionandevalua-tionoftrainingoutcomesandwilltargetVRprofessionals,workerswithdisabilities,andstudentsinterestedindesignandengineering.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-10RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)GeorgiaRehabilitationEngineeringResearchCenterforWheeledMobilityinEverydayLifeGeorgiaInstituteofTechnologyCenterforAssistiveTechnologyandEnvironmentalAccess(CATEA)490TenthStreet,NWAtlanta,GA30318mobilityrerc@coa.
gatech.
edumobilityrerc.
catea.
org/PrincipalInvestigator:StephenSprigle,PhD,PT404/385-4302PublicContact:404/894-4960(V/TTY);Fax:404/385-9320ProjectNumber:H133E080003StartDate:October01,2008Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$949,998Abstract:Thisprojectpromotesnewwaysofconceptualizingandunderstandingwheeledmobility—focusingondevicesandinterventionsthatimpactdeviceuseandactivityperformance.
Thisapproachenablesasmanyindividualsaspossibletoactivelyparticipateineverydaylife.
Projectgoalsincludefourintegratedprogramareasinresearch,development,training,anddisseminationthatutilizeavarietyofmethodologiesandscientificapproachestakingresearchoutofthelaboratoryandputtingitintoreal-world,everydayenvironments.
Researchcentersonfouractivities:R1.
PressureUlcerPre-vention:SusceptibilityandPressureReliefEffectiveness;R2.
EffectsofMobilityDeviceandEnviron-mentalFacilitatorsonActivityandParticipation;R3.
ImprovedTrainingtoImproveFunctionwhichstudiestheeffectofimmediatevideofeedbackonacquisitionofadvancedwheelchairskills,andtheimpactofaninnovativewheelchairTaiChiprogramonhealth,activity,andparticipation;andR4.
ImprovedWheelchairPrescriptionwhichexamineseffectsofwheelchairtypeonperformanceofeldersinpublicspacesandinvestigatehowwellclinicianspredictthewheelchairuseoftheirclients.
Developmentprojectsaddressstandardsandtestmethodsandcommercialprojectsandinclude:D1.
DevelopmentofStandardsandTestMethodswhichdevelopsthreewheelchaircushionstandardsandawheelchairtestmethodtoaccuratelymeasurethemechanicaleffortrequiredtopropelmanualwheel-chairs;D2.
Inventor-DrivenProductDevelopmentthatassistsindevelopingproductsthathavebeenconceivedbysmallcompaniesandinventors;andD3.
DevelopmentofOrphanTechnologies,devel-opingdevicesthathavesmallmarketsbutserveusefulneeds.
Fourtrainingprojectsfocusonavarietyofaudiencesincluding:T1.
Evidence-BasedOnlineWheelchairSeatingandPositioningCourse;T2.
AdvancedRehabilitationResearchTraining;T3.
CreatingRehabilitationEngineeringandAssistiveTechnologyExperiences;andT4.
StateoftheScienceConference.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-11RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)IllinoisRehabilitationEngineeringResearchCenteronRecreationalTechnologiesandExercisePhysiologyBenefitingPersonswithDisabilities(RERCRecTech)UniversityofIllinoisatChicagoDepartmentofDisabilityandHumanDevelopment1640WestRooseveltRoad,Suite712Chicago,IL60608-6904jrimmer@uic.
eduwww.
rectech.
orgPrincipalInvestigator:JamesH.
Rimmer,PhDPublicContact:312/413-9651;Fax:312/355-4058ProjectNumber:H133E070029StartDate:October01,2007Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY07$950,000;FY08$950,000Abstract:Thiscenterincludesacoordinatedsetofresearch,development,capacitybuilding,anddisseminationprojectsfocusedonfacilitatingandpromotinghealthier,moreactivelifestylesforpeoplewithdisabilities.
Thekeytargetareasfortheresearchanddevelopmentprojectsareimprovingaccesstorecreationandexercisevenuesandequipment,increasingopportunitiesforparticipationbypeoplewithdisabilitiesinbeneficialexercise,usingtechnologytosupportgreateradherencetoregularexer-cise,andpromotingbetterhealthandfunctionforpeoplewithdisabilitiesthroughactivelifestyles.
TheresearchanddevelopmentagendaoftheRERCprovidesthecontextforagrowingcapacitybuildingefforttargetingnotonlythenextgenerationofleadershipinengineering,research,andclinicalpracticebutalsoinfusingrehabilitationengineeringconceptsandprinciplesintothecurriculumofrelateddisciplines.
Abroadandactivedisseminationprogrammakeseffectiveuseofanon-profitorganizationadvocatingforinclusiverecreationandexerciseopportunitiesforpeoplewithdisabilities:TheInclu-siveFitnessCoalition(IFC-www.
incfit.
org)currentlyhas53memberorganizationsrepresentingtherecreationandfitnessindustry,fitnessandexercisescienceprofessionals,researchers,disabilityorgani-zations,professionalorganizations,rehabilitationcenters,andothersunitedbyacommongoaloffurtheringinclusiveopportunitiesforpeoplewithdisabilitiestoparticipateinrecreationandexerciseintheirowncommunities.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-12RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)IllinoisRehabilitationRoboticsandTelemanipulationMachinesAssistingRecoveryfromStrokeRehabilitationEngineeringResearchCenter(MARS-RERC)RehabilitationInstituteResearchCorporation(RIRC)SensoryMotorPerformanceProgram(SMPP)andtheDepartmentofPhysicalMedicineandRehabilitationatNorthwesternUniversity345EastSuperiorStreet,ONT-924Attn:MARS-RERCResearchAdministrationChicagoChicago,IL60611-2654medevitt@ric.
org;j-patton@northwestern.
eduwww.
mars-rerc.
orgPrincipalInvestigator:W.
ZevRymer,MD,PhD312/238-3919PublicContact:JimPatton,PhD312/238-1277;Fax:312/238-7605ProjectNumber:H133E070013StartDate:October01,2007Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY07$949,775;FY08$949,779Abstract:TheRERConRehabilitationRoboticsandTelemanipulationentitled,MachinesAssistingRecoveryfromStrokeRehabilitationorMARS-RERCisamulti-institutionalcenterdesignedtoevaluatetheutilityofsimpleroboticdevicesforprovidingrehabilitationtherapyafterhemisphericstroke.
Thefocusislargelyonstroke,becausethisisthemostcommonneurologicaldisorderrequiringintensiveandprolongedrehabilitation.
ThebroadobjectiveofMARS-RERCistodevelopdevicesthatassistthetherapistinprovidingrationallybased,intensivetreatmentsthatarelongerindurationthanwithoutthem.
MARS-RERCmonitorsprogressofthestrokesurvivorsandwiththegoalofimprovingthefunctionalperformanceofstrokesurvivorssothereisagreaterlikelihoodoftheirreturntocommu-nityandtowork.
MARS-RERCishostedattheRehabilitationInstituteofChicago(RIC)andtogetherwithmulti-nationalpartnersatNorthwesternUniversity,UniversityofIllinoisatChicago,UniversityofCaliforniaatIrvine,ETHinZurich,andINAOE,Puebla,Mexico,theCenterdesignsandimplementsaprogramofresearchanddevelopment,investigatingtheuseofrobotdevicesandrelatedengineeringtechnologiesforbetterrestorationoffunctioninstrokesurvivors.
Thefocusisontheapplicationofnewapproachesthatimproverecoveryoutcomesoftheentirebodyduringeitherupperextremityreach-and-graspactivitiesorlowerbodylocomotionactivities.
MARS-RERCincludessixprogramsofstudy.
Therearethreedevelopmentprojectsthatcreate:(1)newcapabilitiesoftheLokomatwalkingrobot,(2)handtechnologiestoimprovereachingandfingerextension,and(3)atelerehabilitationprotocolusinganarmgravity-assistancedevice.
Therearealsotworesearchprojectsthatarestudying:(1)thebenefitsoferroraugmentationinrelearningafterstroke,and(2)overgroundgaitrehabilitationusingtheKineAssistrobot.
Additionally,aseparateadvancedtrainingprojectwithengineeringstudentsisdedicatedtothedesignofroboticdevicestouseinstrokerehabilitation.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-13RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)IllinoisRehabilitationEngineeringResearchCenteronProstheticsandOrthoticsNorthwesternUniversity345EastSuperiorStreet,Room1441Chicago,IL60611reiu@northwestern.
eduwww.
feinberg.
northwestern.
edu/depts/repoc/index.
htmlPrincipalInvestigator:StevenGard,PhD;StefaniaFatone,PhD,BPOPublicContact:312/238-6500;Fax:312/238-6510ProjectNumber:H133E080009StartDate:October01,2008Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$949,999Abstract:Thisprojectimprovesthequalityoflifeforpersonswhouseprosthesesandorthosesthroughcreativeapplicationsofscienceandengineeringtoprostheticsandorthotics(P&O)throughsevenresearchprojectsandfivedevelopmentprojects.
Theseprojectsenhancetheabilityofprosthesisandorthosisuserstoperformactivitiesofdailylivingandnegotiatetheirdailyenvironmentsafelyandeffectively,engageintheirchosenemployment/vocation,andimprovetheirhealththroughthesafeandeffectiveuseofP&Odevices.
Increasingunderstandingaboutthefundamentalbiomechanicsofstanding,walking,reaching,grasping,andthecorrespondingutilizationofP&OdevicesfortheseactivitiesenablebetterevaluationandimprovementuponcurrentP&Otechnologies.
Researchisbroadinscopeinvolvinglower-limbprosthetics,lower-limborthotics,upper-limbprosthetics,analysisofspinalmotionduringgaitinusersofprostheses,andutilizationofprocessandoutcomeinformationtoimproveP&Ocaredelivery.
Additionalfocusisgiventotheneedsoffarmersandrancherswithamputations.
Developmentprojectsfocusonhumanlocomotion,reaching,grasping,andmanipulation;andprovidingefficientandcost-effectiveproductionofprostheticcomponentswiththegoaltoassistP&Ocliniciansintheirdailypracticesbyprovidingthemwithnewmechanisms,evaluationanddesignstools,andinformationaboutprosthetic/orthoticusage.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-14RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)MichiganRehabilitationEngineeringResearchCenteronWheelchairTransportationSafetyUniversityofMichiganTransportationResearchInstitute2901BaxterRoadAnnArbor,MI48109-2150www.
rercwts.
orgPrincipalInvestigator:LawrenceW.
Schneider,PhD(Michigan);PatriciaKarg,MS(Pittsburgh);GinaBertocci,PhD(Louisville)PublicContact:LawrenceW.
Scheneider,PhD734/936-1103;Fax:734/647-3330ProjectNumber:H133E060064StartDate:November01,2006Length:60monthsNIDRROfficer:WilliamV.
Schutz,PhD,MSW,MPHNIDRRFunding:FY06$899,753;FY07$899,708;FY08$899,749Abstract:ResearchconductedbytheRERConWheelchairTransportationSafety(RERCWTS)advancesthesafety,usability,andindependenceofpeoplewhoremainseatedintheirwheelchairswhentravelinginmotorvehicles.
Researchanddevelopmentprojectsinvolveclosecollaborationwithmanufacturers,transitproviders,vehiclemodifiers,clinicians,andconsumerstoensurequicktransla-tionofresultsintomeaningfulsolutionsthatbenefittravelerswithmobilitydisabilities.
Projectsrangefromdevelopinginnovativesolutionsforforward-facingandrear-facingwheelchairpassengerstationsinlargeaccessibletransitvehicles,toinvestigatingissuesofschool-bustransportationforchildrenseatedinWC-19compliantandnoncompliantwheelchairs,andtoimprovingfrontal-andrear-crashprotectionforoccupantsinprivatevehicles.
Continuingresearchfrompreviousgrants,theRERCWTSextendsthein-depthinvestigationsofadverseeventsinvolvingwheelchair-seatedtravelers,butalsoconductsastudyofthetransportationexperienceofwheelchairusersinlargepublictransitve-hicles,includingtheprocessofenteringandexitingthevehicle,accessingthewheelchairstation,securingthewheelchairandrestrainingtheoccupant,andtravelingtoandfromdestinations.
Inaddi-tiontoconductingresearchanddevelopmentinsixprojectareas,RERCWTSstaffengagesininfor-mationdissemination,trainingoffutureresearchers,transferringinnovativetechnologyconceptstothemarketplace,developingandrevisingvoluntaryindustrystandards,andconveningthesecondState-of-the-ScienceWorkshoponWheelchairTransportationSafety.
TheRERCisapartnershipoftheUniver-sityofMichiganTransportationResearchInstitute,theUniversityofPittsburgh,theUniversityofLouisville,andtheUniversityofColorado.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-15RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)NewJerseyRehabilitationEngineeringResearchCenteronChildrenwithOrthopedicDisabilitiesNewJerseyInstituteofTechnology323M.
L.
KingStreetNewark,NJ07102foulds@njit.
edurerc.
njit.
edu/PrincipalInvestigator:RichardA.
Foulds,PhDPublicContact:973/596-3335ProjectNumber:H133E050011StartDate:November01,2005Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY05$949,700;FY06$949,646;FY07$949,266;FY08$949,266Abstract:Thisprojectfocusesonresearchanddevelopmentassistingchildrentoachievetheirfullpotentialasproductivecitizens.
Theworkplanincludesarosterofprojectsdesignedtoenhancethephysicalskillsofthesechildrentobesuccessfulinlearning,playing,andlivingindependently.
Thisprojectincludesthreeresearchandthreedevelopmentprojects,aswellastrainingprojectsservingtheneedsofchildren,families,students,andprofessionals.
ProjectselectionisdrivenbytheRERC'svisionofRERCsasasourceofinnovationandofnewtechnologiesdesignedtoaddresstheseriousproblemsfacedbychildrenwithdisabilities.
ThisprojectisacollaborationofNewJerseyInstituteofTechnology,theChildrens'SpecializedHospital,andRutgersUniversity,bringingtogethertwoacademicdepartmentsofbiomedicalengineeringwiththenation'slargestpediatricrehabilitationhospital.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-16RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)NewYorkRehabilitationEngineeringResearchCenteronTechnologyTransfer(T2RERC)UniversityatBuffaloTheStateUniversityofNewYorkCenterforAssistiveTechnology322KimballTowerBuffalo,NY14214-3079jimleahy@acsu.
buffalo.
edut2rerc.
buffalo.
eduPrincipalInvestigator:SteveBauer,PhD716/829-6760PublicContact:JamesLeahy716/829-3141(V);800/628-2281(TTY);Fax:716/829-2420ProjectNumber:H133E030025StartDate:October01,2003Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY03$949,999;FY04$950,000;FY05$950,000;FY06$950,000;FY07$950,000;FY08(No-costextensionthrough9/30/2009)Abstract:Theactivitiesofthisprojecttransferandcommercializenewandimprovedassistivedevices,conductresearchtoimprovetechnologytransferpractice,andsupportotherstakeholdersinvolvedinthetechnologytransferprocess.
Fourresearchprojectsinvestigateinnovativewaystofacilitateandimprovetheprocessoftechnologytransferforallstakeholders:(1)IdentifyInnovativeTechnologyTransferPracticesdrawscriticalsuccessfactorsfromexamplesofretrospectiveandprospectiveATtransfercasestudiesinvarioussectors;(2)IdentifyInnovativeTechnologyTransferPoliciestracestheoutputsandoutcomesofFederaltransferprogramssupportingATrelatedprojectsandassessestheirefficacy;(3)FacilitateATIndustryInnovationThroughFocusedMarketResearchprovidesacontextfortransferopportunitiesinvolvingtheATindustryandforpublicpolicydecisionmaking;and(4)AssesstheEfficacyofTransferredProductsdeterminestheextenttowhichproductspreviouslytrans-ferredthroughtheT2RERCimpactthefunctionalcapabilitiesofconsumers.
FourdevelopmentprojectsincreasethenumberandqualityofsuccessfultransfersfromRERCsandothersources:(1)TransferProductsThroughaSupplyPushApproachfacilitatesthemovementofneworimprovedprototypeinventionstothemarketplacethroughlicenses,sales,orentrepreneurialventures;(2)Trans-ferTechnologiesThroughaDemandPullApproachvalidatestechnologyneedswithintheATindustryandintroducesadvancedtechnologysolutionstoaddressthoseneeds;(3)ImprovetheAccessibilityofNewMainstreamProductsextendsparticipatoryresearchtointegrateconsumers'functionalrequire-mentsintothedesignofnewmainstreamproducts;and(4)FacilitateRERCTransferActivityThroughInformaticsestablishesapilotinformaticsinfrastructureandassessesitsutilityforincreasingcommuni-cation,collaboration,andtransfersbetweenRERCs.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-17RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)NewYorkRehabilitationEngineeringandResearchCenter(RERC)onUniversalDesignandtheBuiltEnvironmentatBuffaloUniversityatBuffaloTheStateUniversityofNewYorkSchoolofArchitectureandPlanning378HayesHallBuffalo,NY14214rercud@ap.
buffalo.
eduwww.
ap.
buffalo.
edu/idea/rercud.
aspPrincipalInvestigator:EdwardSteinfeld,ArchD716/829-3485PublicContact:DaniseLevine716/829-3485,ext.
329;Fax:716/829-3861ProjectNumber:H133E050004StartDate:November01,2005Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY05$949,996;FY06$949,994;FY07$949,999;FY08$949,997Abstract:TheRERConUniversalDesignandtheBuiltEnvironment(RERC-UD)isengagingthepublicandprivatesectorsacrossfourbroaddomainsofthebuiltenvironment:(1)communityinfra-structure,(2)publicbuildings,(3)housing,and(4)products.
TheRERC-UDgeneratesstrategicallyimportantresearch,development,education,anddisseminationdeliverables,toadvancethefieldsofrehabilitationengineeringandenvironmentaldesign.
TheRERC-UDdeliverablesintegrateuniversaldesignprincipleswithinthegenerallyacceptedmodels,methods,andmetricsofdesignandengineer-ingprofessionalsinthebuildingandmanufacturingindustries.
Researchprojectsdocumenttheeffi-cacyofexistinguniversallydesignedenvironments,andgeneratecriticalhumanfactorsdataessentialtoresolvingdesignandengineeringproblems.
Developmentprojectscreateevidence-basedguidelinestoimplementuniversaldesignconceptswithinthetoolsofthedesignprofessions,andformulatemethodstoevaluatetheusabilityofdesignsforpeoplewithmobility,sensory,andcognitiveimpair-ments.
Theusefulnessoftheguidelinesandevaluationmethodsaredemonstratedbyapplyingthemtothedevelopmentofinnovativeproductsandenvironmentswithindustrypartners.
Trainingactivitiesemphasizeonlinecertificateprogramsinuniversaldesignfordesignprofessionals,builders,manufac-turers,andconsumeradvocates;awebportalandsiteforstudentsandeducators;andgraduatepro-gramsthattrainresearchersinadvancedmethods.
Disseminationoutputsincludetraditionalrefereedandtradepublications,anextensivewebsitewithdownloadableinformationproductsanddesigntools,modelhomedemonstrationsinlocalcommunitiesacrossthecountry,andoutreachactivitieswithprofessional,business,andstandardsdevelopmentorganizations.
TheRERC-UD'sstate-of-the-scienceconferenceincludesstakeholdersinaplantoelevateuniversaldesigntoanintegralcomponentofthemainstreamdesignandengineeringdisciplines.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-18RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)NorthCarolinaRehabilitationEngineeringResearchCenteronCommunicationEnhancementDukeUniversityDepartmentofSurgeryDivisionofSpeechPathologyandAudiologyDukeUniversityMedicalCenter,Box3888Durham,NC27710aac-rerc@mc.
duke.
eduwww.
aac-rerc.
comPrincipalInvestigator:FrankDeRuyter,PhD919/684-6271PublicContact:KevinCaves,ME,ATP919/681-9983;Fax:919/681-9984ProjectNumber:H133E030018StartDate:November01,2003Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY03$949,977;FY04$949,973;FY05$949,974;FY06$949,976;FY07$949,974;FY08(No-costextensionthrough10/31/2009)Abstract:ThemissionofthisRERCistoassistpeoplewhouseaugmentativeandalternative(AAC)technologiesinachievingtheirgoalsacrossenvironments.
ThegoalsandobjectivesoftheRERCaretoadvanceandpromoteAACtechnologiesthroughtheoutputsandoutcomesofresearchanddevel-opmentactivitiesandtosupportindividualswhouse,manufacture,andrecommendthesetechnologiesinwaystheyvalue.
Researchprojectscoverthefollowingareas:(1)improvingAACtechnologytobettersupportsocietalroles;(2)enhancingAACaccessbyreducingcognitive/linguisticload;and(3)enhancingAACusabilityandperformance.
Projectsaddressissuesofliteracy,telework,specializedvocabulary,contextualscenesandintelligentagents,improvinginterfaceperformance,andmonitoringandsimulatingcommunicationperformance.
Developmentactivitiesinclude:(1)technologyandpolicywatch;(2)newinterfaces;and(3)reducingthecognitive/linguisticburdenonAACusers.
Activitiesaddressmonitoringemergingtechnologies,standards,andpolicies;technologiestosupplementintelli-gibilityofresidualspeech,dysarthricspeech,andgesturerecognition;braininterface;AACWebCrawling;andenhancingtheroleoflistenersinAACinteractions.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-19RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)NorthCarolinaRehabilitationEngineeringResearchCenterforCommunicationEnhancement(AAC-RERC)DukeUniversityDepartmentofSurgeryDivisionofSpeechPathologyandAudiology220WestMainStreetDurham,NC27705aac-rerc@mc.
duke.
eduwww.
aac-rerc.
comPrincipalInvestigator:FrankDeRuyter,PhD919/684-6271PublicContact:JessicaHouse919/681-9983;Fax:919/681-9984ProjectNumber:H133E080011StartDate:October01,2008Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$949,965Abstract:ThemissionoftheAAC-RERCistoassistpeoplewhouseaugmentativeandalternativecommunication(AAC)technologiesinachievingtheirgoalsacrossenvironments.
ThegoalsandobjectivesoftheAAC-RERCaretoadvanceandpromoteAACtechnologiesthroughtheoutputsandoutcomesofourresearchanddevelopmentactivities;andtosupportindividualswhouse,manufacture,andrecommendthesetechnologiesinwaystheyvalue.
Theprojectbuildsoncollaborativerelation-shipswithresearchersanddevelopersbothinandoutsideofthefieldofAACandassistivetechnol-ogy,includingDynaVoxTechnologies,theFederalLaboratoryConsortium,DepartmentofNavy,andResearchInMotion(RIM)amongothers.
Researchprojectsinclude:(1)AACtechnologiestoreducecognitive/linguisticload;(2)newinterfacestrategiesforAACtechnologies;and(3)AACtechnologiestoincreaseusability,acceptance,andlearnability.
Developmentactivitiesinclude:(1)connectingtotheworld-AACaccesstomainstreamtechnologies;(2)newinterfacestrategiesforAACtechnologies;and(3)usability,acceptance,andlearnabilityofAACtechnologies.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-20RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)OregonNationalCenterforAccessiblePublicTransportationOregonStateUniversityOwenHall220Corvallis,OR97331-2312ncat@oregonstate.
eduncat.
oregonstate.
edu/PrincipalInvestigator:KatharineHunter-Zaworski,PhDPublicContact:JulieBarlow800/916-0099;Fax:541/737-3052ProjectNumber:H133E030009StartDate:October01,2003Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY03$949,479;FY04$949,259;FY05$949,044;FY06$949,260;FY07$949,659;FY08(No-costextensionthrough9/30/2009)Abstract:ThisRERCaddressestheneedforimprovementsintheaccessibilityofpublictransporta-tion.
Thiscenterisbothimportantandtimelybecauseofmajorchangesinthetravelindustry,andtheneedtoadapttothosechangesinawaythatprovidessafeanddignifiedtravelforpersonswithdis-abilities.
ThetransportationfocusofthisRERCisinter-citytravelviaair,rail,andbus.
Air,rail,andover-the-roadbusesaccountfornearlyallinter-citypublictransportation.
Accessibilityissuesfocusonpersonswithmobility,agility,andhearingdisabilities,andaccountforalargepercentageofpersonswithdisabilities.
Twoareasofresearchareaddressed:(1)thebiomechanicsofwheelchairtransfersinconfinedspaces;and(2)theperceptions,reactions,andattitudesofsubjectstowardsexistingandproposedaccessibilitysolutions.
Thebiomechanicsstudiesincludetheuseofasophisticatedeight-cameramotionanalysissysteminconjunctionwithforceplatestodeterminethemotionsandforcesinvolvedindependentandindependenttransfersinconfinedspaces,suchasanaircraftaisle.
Thesurvey-basedstudyincludescomprehensivesurveysofgroupsthataredirectlyinvolvedwithaccessi-bilityissuesincludingtravelerswithdisabilities,non-travelerswithdisabilities,andemployeesofairlinesandairports.
Drawingonresultsoftheirresearch,theRERCfocusesonfourdevelopmenttopics:(1)vehicleboardingtechnologies;(2)realtimepassengerinformationandcommunicationssystems;(3)accessiblelavatories;and(4)passengerassistancetrainingtoolsandtechniques.
Theaccessiblelavatoryprojecthastwomaincomponents:regulationsandnewdesignsforthenextgenera-tionofaircraft.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-21RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)PennsylvaniaRehabilitationEngineeringResearchCenteronTelerehabilitationUniversityofPittsburghSchoolofHealthandRehabilitationSciencesRehabilitationScienceandTechnology2310JaneStreet,Suite1300Pittsburgh,PA15203dkeelan@pitt.
eduwww.
rerctr.
pitt.
eduPrincipalInvestigator:DavidM.
Brienza,PhD412/586-6907PublicContact:DebbyKeelan412/586-6905;Fax:412/586-6910ProjectNumber:H133E040012StartDate:December01,2004Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY04$849,890;FY05$849,930;FY06$849,922;FY07$849,991;FY08$849,984Abstract:ThevisionofthisRERCistoservepeoplewithdisabilitiesbyresearchinganddevelopingmethods,systems,andtechnologiesthatsupportremotedeliveryofrehabilitationandhomehealthcareservicesforindividualswhohavelimitedlocalaccesstocomprehensivemedicalrehabilitationoutpa-tientandcommunity-basedservices.
Researchanddevelopmentactivitiesinclude:(1)TelerehabilitationInfrastructureandArchitecture:developmentofaninformaticsinfrastructureandarchitecturethatbuildsonexistingprogramsandtechnologiesoftheUniversityofPittsburghMedicalCenter'se-HealthSystem,supportstheRERC'sresearchanddevelopmentactivities,meetsHIPAArequirements,providesatest-bedforthirdpartytelerehabilitationapplications,andcanbeusedasamodelforfuturetelerehabilitationinfrastructure;(2)TelerehabilitationClinicalAssessmentModeling:developmentofaconceptualmodelformatchingconsumerswithtelerehabilitationtechnology.
Themodelisuser-orientedanddrivenbyconsumerexperiencesregardingsatisfaction,simplicity,andreimbursabilityoftelerehabilitation;(3)TeleassessmentforthePromotionofCommunicationFunctioninChildrenwithDisabilities:developmentofaweb-basedteleassessmentinfrastructurethatlinkstherapistsandchildparticipants,allowingtherapeuticcontenttobeadaptedtothechild'sindividualprogressandabilities;(4)RemoteWheeledMobilityAssessment:determinesifindividualswithmobilityimpairmentscanobtainappropriateprescriptionsforwheeledmobilitydevicesthroughtheuseofatelerehabilitationsystembaseduponinformationandtelecommunicationstechnologies;(5)Behav-ioralMonitoringandJobCoachinginVocationalRehabilitation:researchestechnologiestoconductremotedeliveryofrehabilitationservicestoindividualswhohavelimitedaccesstorehabilitationservicesthatarenecessarytoparticipateinandachieveeducationandemploymentoutcomesintheircommunity;and(6)RemoteAccessibilityAssessmentoftheBuiltEnvironment:determinestheeffectivenessofaremoteaccessibilityassessmentsysteminevaluatingthebuiltenvironmentofwheeledmobilitydeviceusers.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-22RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)PennsylvaniaRehabilitationEngineeringResearchCenteronSpinalCordInjuryUniversityofPittsburghSchoolofHealthandRehabilitationSciencesRehabilitationScienceandTechnology2310JaneStreet,Suite1300Pittsburgh,PA15203dkeelan@pitt.
eduPrincipalInvestigator:DavidM.
Brienza,PhD412/586-6907PublicContact:DebbyKeelan412/586-6905;Fax:412/586-6910ProjectNumber:H133E070024StartDate:October01,2007Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY07$949,999;FY08$950,000Abstract:Thiscenterconductsresearch,development,andevaluationofinnovativetechnologiesandapproachesthatwillimprovethetreatment,rehabilitation,employment,andreintegrationintosocietyofpersonswithspinalcordinjury(SCI).
Researchanddevelopmentactivitiesaddresstissueintegritymanagement,upperextremitymusculoskeletalinjuryprevention,andbladderfunction.
Specificprojectsaddress:(1)thedevelopmentofcomputationalmodelsofinflammationandhealingforassess-mentofperson-specificinterventionsandforgeneraltechnology/interventionevaluationsforpressureulcerpreventionanddetection,(2)evaluationoftheeffectsofsupportsurfaceactivecoolingandlowshearfollowedbydevelopmentandevaluationofanovelseatcushionincorporatingthesefeatures,(3)thedevelopmentandevaluationoftoolsformanualwheelchairpropulsiontraining,(4)theevaluationofnovelmanualwheelchairpropulsiondevicesforpreventingshoulderinjury,(5)theevaluationofaweightshiftingapproachforpreventingpressureulcers,and(6)thedevelopmentofpreliminarycomputationalmodelsofinflammationandhealingforevaluatingbladderfunctionandmusculoskeletalinjurystatus.
TheresearchteamandcollaboratorsincludetheDepartmentofRehabilitationScienceandTechnology,theDepartmentofPhysicalMedicineandRehabilitation,theMcGowanInstituteforRegenerativeMedicine,andtheDepartmentofOccupationalTherapyattheUniversityofPittsburghplusCaseWesternReserveUniversity,NorthwesternUniversity,BaylorCollegeofMedicine,IBM,andImmunetrics.
Thetechnologytransferprogramtargetsprivateandpublicsectors.
Thetrainingandknowledgetranslationplanisequallybroadbased,targetinggraduateandundergraduatestudents,practicingclinicians,researchers,andindividualswithSCIandtheircaregivers.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-23RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)PennsylvaniaRehabilitationEngineeringResearchCenteronAccessiblePublicTransportationCarnegieMellonUniversityRoboticsInstitute5000ForbesAvenuePittsburgh,PA15213PrincipalInvestigator:AaronSteinfeld,PhDPublicContact:412/268-6346;Fax:412/268-6436ProjectNumber:H133E080019StartDate:October01,2008Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY08$948,199Abstract:Thegoalofthisprojectistoestablishaneffectiveandsustainableprocesstoaddressthehighprioritytransportationneedsofpeoplewithdisabilitiesusingenablingtechnologyanduniversaldesign.
TheRERCactivitiesrespondtothecharacterofpublictransportationanditssocietalcontext,includingitssignificantroleinemploymentandsocialparticipation.
Theapproachfocusesontranspor-tationasatravelchainwhereproblemsinearlylinkscanblockaccesstoawholesystem.
Theprojectmixalsoleveragesemerginginformationtechnologiesandaddressestheneedforconsumer-drivensolutionsthatcanberapidlyimplementedandadaptedtoawiderangeoftransportationsystems.
Researchanddevelopmentactivitiesinclude:(1)evaluateaccessibleandaffordabletoolsforempower-ingconsumersandserviceproviderstocollectandutilizeresearchdata,anexampleof"citizensci-ence";(2)provideanevidencebaseforboardinganddisembarkingpolicies,practices,andproductswithanin-depthexaminationofcriticalissuesinvehiclerampandinteriordesign;(3)createapublicwebsitewhereriderscanreportontheirexperiencesusingatransportationsystemandsoftwarethatcanassisttheminreachingtheirdestination;and(4)produceguidelines,referencedesigns,andademonstrationbuswithnewvehicleinteriorconceptsthatarereadyforcommercialization.
RERCactivitiesalsoincludeactivetraininganddisseminationofevidence-basedguidelinestostakeholders,publications,astateofthescienceconference,andcapacitybuildingforfutureresearch.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-24RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)WisconsinRehabilitationEngineeringResearchCenteronUniversalInterfaceandInformationTechnologyAccessUniversityofWisconsin/MadisonTraceResearchandDevelopmentCenter2107EngineeringCentersBuilding1550EngineeringDriveMadison,WI53706info@trace.
wisc.
edutrace.
wisc.
edu/itrercPrincipalInvestigator:GreggC.
Vanderheiden,PhD608/263-5788PublicContact:KateVanderheiden608/265-4621(V);608/263-5408(TTY);Fax:608/262-8848ProjectNumber:H133E030012StartDate:October01,2003Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY03$1,000,000;FY04$1,000,000;FY05$1,000,000;FY06$1,000,000;FY07$1,000,000;FY08(No-costextensionthrough03/31/2009)Abstract:ThefocusofthisRERCisonbothaccesstoinformation(e.
g.
,content)initsvariousforms,aswellasaccesstointerfacesusedwithincontentandbyelectronictechnologiesingeneral.
Theresearchanddevelopmentprogramiscarefullydesignedtoprovideaninterwovensetofprojectsthattogetheradvanceaccessibilityandusabilityinafashionthattakesintoaccount,andsupports,thefullrangeofaccessstrategiesusedbymanufacturersandpeoplewithdisabilities.
Thesestrategiesrangefromenhancingthedesignofmainstreamproductsthatcanbeusedbyindividualswithdifferentabilitysetstoenhancingtheabilityofuserstodealwiththeinformationandinterfacesastheyencounterthem.
Keytotheseprojectsarethedevelopmentofnewmodelsandapproachesforcharacterizationofthefunctionalrequirementsofcurrentandfutureinterfaces,andabetterunderstandingofthetype,diversity,andsimilarityoffunctionallimitationsacrossetiologiesanddisabilities.
Researchactivitiesinclude:modelgenerationandinitialpilotstudiesforthecharacterizationofinterfacerequirements(currentandemerging)andcross-disabilityuserabilities;abstractuserinterfacesandhumaninterfacesockets;emergingtechnologiesandfutureresearchneeds;andaccessiblereal-timevisualinformationpresentationinmeetingsandvirtualmeetings.
Developmentprojectsinclude:toolstofacilitatetheincorporationofcross-disabilityinterfacefeaturesinpublicinformationtechnologies;toolstofacilitateAT-ITinteroperability;server-basedand"virtualassistivetechnology";andsupportfornationalandinternationalstandardsandguidelinesefforts.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-25RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)WisconsinRehabilitationEngineeringResearchCenteronTelecommunicationAccessUniversityofWisconsin/MadisonTraceResearchandDevelopmentCenter2107EngineeringCentersBuilding1550EngineeringDriveMadison,WI53706info@trace.
wisc.
edutrace.
wisc.
edu/telrercPrincipalInvestigator:GreggC.
Vanderheiden,PhD(Trace);JudyHarkins,PhD(GallaudetUniversity)608/263-5788(Trace);202/561-5257(Gallaudet)PublicContact:KateVanderheiden608/265-4621(V);608/263-5408(TTY);Fax:608/262-8848ProjectNumber:H133E040013StartDate:October01,2004Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY04$850,000;FY05$924,988;FY06$850,000;FY07$850,000;FY08$850,000Abstract:TheprimarymissionoftheTelecommunicationsAccessRERCistoadvanceaccessibilityandusabilityinexistingandemergingtelecommunicationsproductsforpeoplewithalltypesofdis-abilities.
Telecommunicationsaccessibilityisaddressedalongallthreeofitsmajordimensions:userinterface,transmission(includingdigitization,compression,etc.
),andmodalitytranslationservices(relayservices,gateways,etc.
).
TheRERClooksatadvancesthathavebothshort-andlong-termoutcomesrelatedtoassistivetechnologies(AT),interoperability,anduniversaldesignoftelecommuni-cations.
TheRERCencompassesresearchanddevelopmentprograms,aswellastraining,technicalassistance,anddisseminationactivities.
AlargepartoftheRERC'sresearchanddevelopmentprogramisdirectlyrelatedtotherapidlyemergingVoiceoverIP(VoIP)technologiesandotherIP-basedsys-tems.
Thegoalistohelpensurethatthesenewtechnologiesareaccessibleandusablebypeoplewithhearingimpairments,blindness,andotherdisabilities.
TheresearchanddevelopmentprogramofthisRERCcoversthreeareas:(1)Developmentoftools,techniques,andperformance-basedmeasuresthatcanbeusedtoevaluatecurrentandevolvingtelecommunicationtechnologies.
IncludedinthisareaaretwoprojectstodefinetheessentialaudioandvideocharacteristicsofIPtelecommunicationneededtosupportsignlanguage,videorelayinterpreting,IPbasedspeech,andlipreading.
(2)Solvingtheproblemsfacedbyindividualsusinghearingaidsorcochlearimplantswithdigitalphones.
Threeprojectscoverbothdigitalcellularandhomecordlessphones,andarefocusedonquantifyingtheproblem,identifyingsolutions,providingtoolsthatuserscanemploytomatchappropriatehearingtechnologieswithtelecommunicationtechnologies,andhelpingtotestandvalidateinterferencestan-dards.
(3)Improvingaccesstoemergingtelecommunications-particularlydigitalandIPbasedsys-tems.
Projectsinthisareawill:(a)IdentifytechniquestoalertpeopleaboutpossibleemergenciesandtoNIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-26ensureaccessiblecommunicationinemergencyorcrisissituations;(b)seeksolutionsforthecurrentincompatibilityissuesaroundtextcommunicationsandwaystobuildthenecessarycapabilitiesintomainstreamtechnologies,toallowthemtoevolvetonewtext,speech,andvisualcommunicationtechnologies;and(c)developguidelinesandreferencematerialstohelpmainstreamtelecommunica-tionsmanufacturersbuildtheirregularproductsinawaythatallowsindividualswithvisual,hearing,physical,andcognitivedisabilitiestobeabletousethem.
ThegoalsoftheRERC'straining,technicalassistance,anddisseminationactivitiesare:Toincreasethenumberandlevelofexpertiseofpeopleworkingtomakestandardtelecommunicationsystemsandproductsaccessibleandusableforpeoplewhohavedisabilitiesorwhoareaging;tomoveideasandconceptsoutintothefieldintheformofstandardsorcommercialproducts;andtoprovideusefulinformationfromourresearchtothetelecom-municationsindustry,consumers,andpolicymakers.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-27RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)WisconsinRehabilitationEngineeringResearchCenterforUniversalInterfaceandInformationTechnologyAccessUniversityofWisconsin/MadisonTraceResearchandDevelopmentCenter1550EngineeringDrive,Room2107ECBMadison,WI53706-1609info@trace.
wisc.
edutrace.
wisc.
edu/itrercPrincipalInvestigator:GreggC.
Vanderheiden,PhD608/263-5788PublicContact:KateVanderheiden608/265-4621(V);608/263-5408(TTY);Fax:608/262-8848ProjectNumber:H133E080022StartDate:October01,2008Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$950,000Abstract:Thisprojectfocusesontheaccessibilityofinformationtechnologiesandelectronicproducts,includingthetechnologiesandproductsencounteredineducation,work,travel,andinthehomeandcommunity,bothonlineandinlife,forpersonsacrossdisabilitiestypesandsocio-economiclevels.
Thisproject'sfourgoalsfocusonthefollowing:(1)thedevelopmentofmodelsandmeasuresthatcanleadtobetterpolicyandmoreusefulinformationfordesignersinterestedincreatingproductsthatareaccessibleanduseableacrossdisabilities;(2)creatingacollaborativeefforttobuildaccessibilitydirectlyintotheInternetandaddressunderlyingissuesintheareaofassistivetechnology;(3)advanc-ingresearchonandtheuseofpersonalpluggableuserinterfacesfocusingontheireffectivenessinprovidingaccesstodifferenttypesofmainstreamtechnology(ProjectR2)andfacilitatingtheincorpo-rationofinterfacesocketsinmainstreamproducts(ProjectD2);and(4)continuingtoadvancecom-mercialpracticearoundaccessibility;thatis,takingconceptsthathaveproventobeeffectiveandmakingcommerciallyavailableproductswhichaddresstheneedsofpeoplewithdisabilities.
Eachofthesefourgoalsseekstofosterchangeinrehabilitationorcommercialpractice,sothatpeoplewithalllevelsofdisabilityandalllevelsofsocio-economicstandinghaveeffectiveaccesstobothcurrenttechnologyandtherapidlyevolvingnext-generationtechnologies.
Finally,thisprojectfocusesoncapacitybuildinginthefieldthroughtrainingandmentoringactivitiesinaffiliationwiththeBiomedi-calEngineeringandIndustrial&SystemsEngineeringdepartmentsattheUniversityofWisconsin-Madisoninadditiontootherkeystakeholdersengagedinmakinginformationtechnologymoreacces-sibleforpeoplewithdisabilities.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-28RehabilitationEngineeringResearchCenters(RERCs)RehabilitationEngineeringResearchCenters(RERCs)WisconsinRehabilitationEngineeringResearchCenteronAccessibleMedicalInstrumentationMarquetteUniversityDepartmentofBiomedicalEngineeringP.
O.
Box1881Milwaukee,WI53201jack.
winters@marquette.
eduwww.
rerc-ami.
orgPrincipalInvestigator:JackWinters,PhD;MollyFolletteStory,MS414/288-6640(Winters);707/578-6839(Story)PublicContact:JuneIsaacson-Kailes310/821-7080800/832-0524;Fax:909/469-5503ProjectNumber:H133E020729StartDate:November01,2002Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY02$901,131;FY03$899,614;FY04$899,155;FY05$899,870;FY06$899,572;FY07(No-costextensionthrough10/30/2008);FY08(No-costextensionthrough1/30/2009)Abstract:TheRERConAccessibleMedicalInstrumentation:(1)increasesknowledgeof,accessto,andutilizationofhealthcareinstrumentationandservicesbyindividualswithdisabilities;(2)increasesawarenessofandaccesstoemploymentinthehealthcareprofessionsbyindividualswithdisabilities;and(3)servesasanationalcenterofexcellenceforthisprioritytopicarea.
Specificresearchprojectsinclude:(1)needsanalysisforpeoplewithdisabilitiesasbothrecipientsandprovidersofhealthcareservices,andformanufacturersofhealthcareinstrumentation;(2)usabilityanalysestodeterminewhatmakescertainmedicalinstrumentationeitherexemplaryorproblematicyetessentialtohealthcareservicedelivery;(3)accessibilityanduniversalusabilityanalysistoidentifyclassificationandmeasure-mentapproachesthatcouldbeusedtoexploremetricsforaccessibilityofmedicalinstrumentation;and(4)policyanalysestoexplorehowmedicalpoliciesaffecthealthcareutilizationandemploymentinthehealthcareprofessionsofpersonswithdisabilities.
Specificdevelopmentprojectsinclude:(1)develop-mentoftoolsforusabilityandaccessibilityanalysis;(2)developmentofmodifiedandnewaccessiblemedicalinstrumentation;(3)monitoringof,andinvolvementindevelopmentof,emerging,accessiblehealthcaretechnologies;and(4)developmentofdesignguidelinesforaccessiblemedicalinstrumenta-tionandmodelpoliciesforhealthcareservicedelivery.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-29DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsCaliforniaFundamentalIssuesinWayfindingTechnologiesTheSmith-KettlewellEyeResearchInstitute2318FillmoreStreetSanFrancisco,CA94115rerc@ski.
orgwww.
ski.
org/Rehab/JABrabyn_lab/General/wayfinding.
htmlPrincipalInvestigator:JohnA.
Brabyn,PhD415/345-2110PublicContact:DeborahGilden,PhD415/345-2000;Fax:415/345-8455ProjectNumber:H133A060056StartDate:November01,2006Length:36monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY06$449,872;FY07$449,954;FY08$449,952Abstract:Thisprojectconductsabroadspectrumofresearchtostrengthenthefoundationsofwayfindingtechnologyforassistingblindandvisuallyimpairedindividualstotravelsafelyandinde-pendently.
Ratherthandevelopingadditionaldevices,thisprojectaddressesfundamentalquestionsinwayfindingtechnologyresearch:WhatinformationdoblindandvisuallyimpairedtravelersreallywantandneedforsafeindependenttravelWhyistheresuchanextremerangeinnavigationalfacilitywithinthevisuallyimpairedpopulationWhataretheupperlimitsoftheinformationthatcanbegainedfromtraditionalorientationandmobilitytrainingandenvironmentalcuesHowarethesubtleauditorycuesaffectedinsubpopulationswithdifferenttypesofhearinglossHowshouldwayfindingperformance,andbarrierstoit,bequantifiedsothatfutureprogresscanbemeasuredWhatistheroleofadvancetravelplanningBypursuinganswerstothesefundamentalquestionsratherthanaddingmoretechnology-drivendevicestotheexistingselection,thisresearchimprovesunderstandingabouttheefficacyandoptimalapplicationsofnavigationandtraveltechnologiesandtechniques.
Thisprovidesaresearch-basedfoundationtoinformandimprove:(1)orientationandmobilityinstructionalstrategies;(2)thedesignofnewwayfindingtechnologies;and(3)futureresearch.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-30DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNorthCarolinaConsortiumforAssistiveTechnologyOutcomesResearch(CATOR)IIDukeUniversityDivisionofSpeechPathologyandAudiologyDUMC-3888Durham,NC27710frank.
deruyter@duke.
eduwww.
AToutcomes.
comPrincipalInvestigator:FrankDeRuyter,PhDPublicContact:JessicaHouse919/681-9983(V);919/684-6626(TTY);Fax:919/681-9984ProjectNumber:H133A060062StartDate:January01,2007Length:36monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY06$449,994;FY07$449,995;FY08$449,995Abstract:TheConsortiumforAssistiveTechnologyOutcomesResearch(CATOR-II),incollabora-tionwiththeRRTConMeasuringRehabilitationOutcomesandEffectivenessandseveralotherNIDRR-fundedprograms,enhancesunderstandingoftheimpactofATonthelivesofpeoplewithdisabilitiesbyconductingaresearchprojectthatsystematicallyappliesstate-of-the-sciencemeasuresofATinterventions,outcomes,anddatacollectionsmechanisms.
Thepurposeofthisprojectistoim-provetheATfield'sabilitytomeasuretheimpactofATonthelivesofpeoplewithmobilitydisabili-ties,withthepotentialtosupplementorsupplanttheinstrumentsandtechniquesavailabletoresearch-ers,serviceproviders,andpolicymakers.
ProjectR-1producesastate-of-the-scienceinstrumentformeasuringoutcomesformobilityATdevicesbasedonapplicationsofitemresponsetheoryandcom-puteradaptivetesting.
ProjectR-2producesastate-of-the-scienceinstrumentforspecifyingandmea-suringkeyaspectsofmobilityATtreatmentinterventions,alongwithtwoconsensuallyendorsedclassificationsofmobilitydevicesandservices.
Together,theseproductsprovideafoundationtoimprovereportingofinterventionsinresearchpublicationsandassesstreatmentfidelityinAToutcomestudies.
DrawingontheadvancedmeasuresemanatingfromprojectsR-1andR-2,ProjectR-3usesanexperimentallycontrolleddesigntoexaminetheconditionsunderwhichachangeinassistancestrat-egy,inducedbyamobilityATintervention,enhancesthefunctionalperformance,well-being,anddevicesatisfactionofstrokesurvivorsanddecreasestheassistancebeingreceivedfromcohabitatingcaregivers.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-31DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsPennsylvaniaInformationTechnologyforIndependence:Community-BasedResearchUniversityofPittsburgh6026ForbesTowerPittsburgh,PA15260parmanto@pitt.
eduwww.
pitt.
edu/~curbcutPrincipalInvestigator:BambangParmanto,PhDPublicContact:412/383-6649;Fax:412/383-6655ProjectNumber:H133A021916StartDate:January01,2003Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY02$299,945;FY03$299,534;FY04$299,945;FY05$299,384;FY06$298,903;FY07(No-costextensionthrough12/31/2009);FY08(No-costextensionthrough12/31/2009)Abstract:ThisprojectexploresmethodsandtechnologiestomitigatebarrierstocomputerandInternetuseencounteredbypeoplewithvisualimpairments.
Thesebarriersincludelimitedcomputerowner-shipandInternetavailability,difficultyinobtainingandusingaccommodationsforfunctionallimita-tions(includingcostissues),psychologicalbarriersarisingfrominadequatecoachingormentoring,andthelimitedaccessibilityofmostwebsitestoindividualswithvisualimpairments.
Accessibilitycanbepromotedthroughcomputerownership,Internetavailability,assistivetechnologies,andknowledge-ably-staffedpubliccomputerstations,suchasatindependentlivingcenters.
Evaluationofthesebarri-ersandofidentifiedaccommodationstrategiesisthefirstresearchtaskofthisproject.
Precededbyfocusgroupsandawidely-disseminatedsurvey,thematchofcorrectassistivedevice(s)totheindi-vidualandappropriatecoachingandmentoringistestedatcommunity-basedcomputerlaboratories.
ThesecondresearchtaskistodevelopandevaluateanewapproachtoInternetaccessibility—aGatewayserver.
ThisGatewaytransformsthecontentsofanywebsite,whateveritslevelofaccessibil-ity,intothemostaccessibleformatforeachInternetuser,asGoogledoesforpersonaldigitalassistant(PDA)users.
TheGatewaypromotesInternetaccessibilitywithoutrequiringthatcommercialwebsitesfollowpromulgatedguidelinesorstandardsforuserswithdisabilities,somethingthatwebdevelopersoftenseemtoresist.
Additionally,thisprojectdevelopsinnovativemetricsthatenablethemostrigorousapproachtotheanalysisofInternetaccessibilityandisconductinglarge-scalestudiesofdifferenttopicalcategoriesofwebsitestomeasureprogressinaccessibilityovertimeandidentifytheimpact(s)ofnewtechnologies.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-32DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsWashingtonACCESS:AssistedCognitioninCommunity,Employment,andSupportSettingsUniversityofWashingtonCenteronHumanDevelopmentandDisabilityBox357920Seattle,WA98195pabrown@u.
washington.
educognitivetech.
washington.
eduPrincipalInvestigator:KurtJohnson,PhD206/543-3677PublicContact:PatBrown,EdD206/616-3714;Fax:206/543-4779ProjectNumber:H133A031739StartDate:October01,2003Length:60monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY03$297,127;FY04$299,171;FY05$298,764;FY06$299,949;FY07$299,964;FY08(No-costextensionthrough03/31/2009)Abstract:ProjectACCESSinvestigatestheuseofassistedcognitionasatoolforcaregiversinsup-portingindividualswithdisabilitiesinliving,working,andfullyparticipatingincommunityactivities.
Theuseofassistedcognitiondeviceshasthepotentialtoincreaseanindividual'sindependenceanddecreasetheirrelianceonthefamily/friend/caregivernetworkandcommunitysupportstaff.
DevicesindevelopmentincludetheactivitycompassandtheADLPrompter.
Theactivitycompassmeshesseveraltechnologies(PalmPilot,GPSreceiver,andwirelessmodem).
Overtime,thedevicelearnsauser'stypicaldailyroutines,monitorsforvariations,andthendecideswhetherapromptisnecessarywhenaroutineisunexpectedlychanged.
TheADLpromptermonitorsdatacollectedbysensorsembeddedinalivingorworkenvironment.
Usingartificialintelligencesoftware,thedatafromthesesensorsareinterpretedanddecisionsmadebasedupontheneedsoftheuser.
Althoughinitiallyde-signedforpeoplewithAlzheimer's,thesedeviceshaveapplicationsassupporttoolsforcaregiversandpeoplewithdisabilitiessincetheypotentiallysupport"distributedcaregiving"whereinthecaregiverorfamilymembermonitors,prompts,and/orsupportsfromadistance.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-33FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)CaliforniaAccessibleLocationInformationDeliveredviaGPSCellPhoneforPeoplewithVisualImpairmentsSenderoGroup,LLC429FStreetDavis,CA95616mikemay@senderogroup.
comwww.
wayfinding.
orgPrincipalInvestigator:MichaelMayPublicContact:530/757-6800;Fax:530/757-6830ProjectNumber:H133G060035StartDate:November01,2006Length:36monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY06$149,435;FY07$149,801;FY08$149,172Abstract:ThisprojectdevelopsanaccessibleGPScellphone,whichprovidescriticalinformationaboutbusinesses,addresses,distances,androutes,therebygreatlyaugmentingthepersonalmobilityofatravelerwhoisblindorvisuallyimpaired.
Specificactivitiesincludeintegratingtheexistingacces-sibleGPSinnovationswith"smart"cellphonetechnology.
ThemarriageofGPSandcellphonesexistsinthegeneralmarketbutitisscreen-basedwithagraphicalinterfacerenderingitcompletelyinaccessibleforblindandvisuallyimpairedindividuals.
Developinganinterfacetomeettheneedsofthenation'sblindandvisuallyimpairedtravelers,i.
e.
translatingthevisualinformationintospokentext,isacentralfocusofthisproject.
Aconsortiumofthreeorganizationswithinvestigatorsfromresearchcentersandindustrycollaborateonthisproject.
Theconsortiumsystematicallyevaluatesprojectactivities.
Disseminationviavariousavenuesincludesconferences,webcasts/onlinediscus-sions,enduserlists,variousmediaoutlets,andpresentations.
Theendresultofthisprojectistopro-videacommerciallyavailabletalkingGPScellphone.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-34FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)DelawareMultimodalAccesstoInformationGraphicsUniversityofDelawareElectricalandComputerEngineeringDepartment140EvansHallNewark,DE19716barner@ee.
udel.
eduwww.
ece.
udel.
edu/~barnerPrincipalInvestigator:KennethBarner,PhDPublicContact:302/831-6937;Fax:302/831-4316ProjectNumber:H133G080047StartDate:October01,2008Length:36monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY08$199,975Abstract:Thisprojectaddressestheaccessibilityofaspecificclassofgraphics,referredtoasinforma-tiongraphics,thatconsistofbarcharts,piecharts,linegraphs,etc.
Althoughinformationgraphicscompriseonlyasubsetofgraphics-basedinformation,theyareprevalentininformationresourcesandconstituteasetofsufficientlysimilarlycharacterizedgraphicstoenableautomatedprocessing.
Toaddresstheaccessibilityofthisclassofgraphics,thisprojectdevelopsasystemforautomaticallygeneratingmultimodalrepresentationsofinformationgraphics.
Themultimodalrepresentationsconsistofautomaticallygeneratedtactilegraphicsandautomaticallygeneratedtextualsummariesdesignedtoconveytheintendedcoremessageofthegraphic.
Thisdevelopmentisbasedonthelatestresearchintheimageprocessing,computervision,statisticalinference,naturallanguageunderstanding,process-ing,andgeneration,aswellasuniversaldesignandhumancomputerinteraction.
Themultimodalinformationgraphicsystem(MIGS)isdevelopedtoworkdirectlywithexistingtactileprintersandBraille/synthesizedspeechoutputmethods;andprovidesuserswithvisualimpairments,aswellasothersbenefitingfrommultimodaldisplays,greaterindependentaccesstotheproliferatingbodyofinformationgraphics.
Thisprojectdeterminestheoptimaltactilegraphicdesignmethodsandoptimaltext-basesummarizationapproachbasedonpreferencesofpotentialusersoftheMIGSsystem,andevaluatesMIGScomponenteffectivenessinprovidingaccesstographicalinformation.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-35FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)DistrictofColumbiaAccessibleDigitalRadioBroadcastServicesNationalPublicRadioNPRLabs635MassachusettsAvenueNWWashington,DC20001-3753mstarling@npr.
orgwww.
nprlabs.
orgPrincipalInvestigator:MikeStarlingPublicContact:202/513-2484;Fax:202/513-3024ProjectNumber:H133G060187StartDate:October01,2006Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY06$150,000;FY07$150,000;FY08$150,000OtherFunding:FY07$25,000HarrisCorporation;FY08$25,000HarrisCorporationAbstract:Inthisproject,NationalPublicRadio(NPR)anditspartnersprototype,fieldtest,andassessthemostappropriatetechnologies,servicemodels,andoperationaltechniquesintheaccessibledesignofmass-marketdigitalradioservicestobetterserveconsumerswithsensorydisabilities.
Thisworkproducesbestpracticedemonstrationsandserviceoptionswithstrongprospectsformass-marketadoptionwithindigitalradioservicesandreceivers,optionsthatmodelhowdigitalradiocanprovide:mainstreameddigitalreadingradioservices;livevideodescriptionsynchronizedtobroadcast;bufferingforrewind/replay/catch-uptoaidcomprehensibility;accessiblecontrols,displays,andmenuoptionsondigitalradioreceivers;andcaptiondisplaysofaudioondigitalradioreceiversorancillarydisplays.
Bestpracticedemonstrationsandserviceoptionsbenefitfromiterativeandcomprehensiveuserevalua-tionsledbyresearchexperts.
Furthermore,NPRanditspartnershaveextensivecollaborativerelation-shipswithintheindustrythatensurewidespreadimpactonproductsandservicesavailabletopeoplewithsensorydisabilities.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-36FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)DistrictofColumbiaAnAutomaticFittingAlgorithmforCochlearImplantGallaudetUniversityDepartmentofHearing,Speech,andLanguageSciences800FloridaAvenue,NEWashington,DC20002matthew.
bakke@gallaudet.
eduwww.
hearingresearch.
orgPrincipalInvestigator:MatthewH.
Bakke,PhDPublicContact:202/651-5335(V/TTY);Fax:202/651-5324ProjectNumber:H133G060065StartDate:October01,2006Length:36monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY06$146,562;FY07$149,533;FY08$149,895Abstract:Thepurposeofthisstudyistodesignandevaluateanautomaticcochlearimplantfittingalgorithmbasedonapairedcomparisonadaptiveapproachtoguideaudiologistsinchoosingthebestfrequencyallocationfortheindividualclient.
Frequencyallocationcanimpactspeechrecognitionabilitiesandinturncommunication.
ThisworkentailsasystematicsearchforanoptimumfrequencyallocationusingamodifiedSimplexprocedure.
Thisstudyconsistsofthreeexperiments.
Oneisthediscriminationoffrequencyanalysisbandwhereinminimallydetectabledifferencesinfrequencyshiftsalongtheelectrodearrayareidentified.
Inthesecondexperiment,subjectsarecomputer-guidedtosearchforanoptimalfrequencyallocationamongcellsinamatrix,withtheresultsfromexperimentonedefiningthecellcontent.
Thethirdexperiment,thespeechbatterytest,consistsofspeechpercep-tionexperimentswiththenewmapusingnonsensesyllable,phoneme,andsentencestimuli.
Experi-ment2andexperiment3arerecursivelyconducteduntiltheresultsconvergewithuptosixsessionspersubjectrequiredtofinishtheexperiment.
Duringthesubject'sfirstandlastvisits,he/shecompletestheCommunicationProfilefortheHearingImpaired(CPHI)andaquestionnairesimilartotheAbbre-viatedProfileofHearingAidBenefit(APHAB).
FournormalhearingnativeEnglishspeakersevalu-atetheexperimentalprocedureandthespeechprocessingalgorithm.
Fifteenpost-linguisticallydeaf-enedNucleus24cochlearimplantuserscompletethestudy.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-37FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)DistrictofColumbiaPersonalAudioInformationServiceNationalPublicRadioNPRLabs635MassachusettsAvenueNWWashington,DC20001-3753mstarling@npr.
orgwww.
nprlabs.
orgPrincipalInvestigator:MikeStarling;EllynSheffield,PhDPublicContact:202/513-2484;Fax:202/513-3024ProjectNumber:H133G070093StartDate:October01,2007Length:36monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY07$200,000;FY08$200,000Abstract:ThisprojectdefinesanddemonstratesaPersonalAudioInformationService(PAIS)-anewmainstreamsystemthatexpandsthelifelineservicescurrentlyofferedtopeoplewithvisualimpair-mentsthroughaudioinformationservices(AIS)byautomaticallyassemblingaselectionoflocallyrelevant,customizedaudiocontentfromcurrentAISbroadcasts.
ThePAISsystemcombinestheestablishedframeworkofaudioinformationserviceswiththenewprogrammingflexibilitythatisaffordedbyHDRadio(thenewFCCstandardfordigitalradiobroadcasting),creatingapowerfulon-demandradiosystemthatwillsubstantiallyimprovemediaaccessformillionsofAmericanconsumerswithprintdisabilities.
Theproject:(1)developsefficientaudiointerfacesforselecting,navigating,andlisteningtocontent;(2)developseffectivesystemsfortagging,subdividing,andcollectingtopic-basedcontent;(3)developsanddemonstratesafullscalePAISsysteminarealworldbroadcastpilot;and(4)documentsandpublishesrecommendedbestoperatingpracticesforaudioinformationserviceprovid-ersandconsumerelectronicsmanufacturerstofullydeployPAIStechnologies.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-38FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)GeorgiaInclusiveIndoorPlayGeorgiaTechResearchCorporationGeorgiaInstituteofTechnology,CollegeofArchitecture505TenthStreetAtlanta,GA30332abir.
mullick@coa.
gatech.
eduPrincipalInvestigator:AbirMullickPublicContact:404/385-7210ProjectNumber:H133G040324StartDate:December01,2004Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY04$150,000;FY05$150,000;FY06$150,000;FY07(No-costextensionthrough5/31/2008);FY08(No-costextensionthrough5/31/2009)Abstract:Thepurposeofthisprojectistoresearchindoorplayenvironments,developuniversaldesignplayguidelines,anddesignmodelsofplayenvironmentsthataresafeandaccessibletoallchildren.
Thisproject:(1)conductsbasicresearchanddevelopsuniversaldesignguidelinesforindoorplay;(2)designs,develops,andtestsmodelsofinclusiveindoorplayenvironmentsthatpromotethehighestlevelofsafety,usability,accessibility,andsocialinteraction;and(3)constructsandtestsaworkingprototypeofanindoorplayenvironmentthatdemonstrateshighestlevelofaccessforallchildren.
Itresearchesplayandtheplayenvironmentthroughliteraturereview,existingproducts,existingplayenvironments,focusgroupinterviewswithparticipants,expertconsultations,children'splaydesigns,andtestingoffull-scalesimulatedplayenvironments.
Thesecondyearofthisprojectfocusesondevelopmentofdesignconcepts,constructionofrefineddesigninfullscale,andtestingwithusers.
Thefinalyearofthisprojectisdedicatedtoprototypeconstructionandtesting.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-39FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)GeorgiaWorkplaceAccommodationWizard:AnAssessmentandAccommodationToolforEmployersGeorgiaInstituteofTechnology:CenterforAssistiveTechnologyandEnvironmentalAccess(CATEA)490TenthStreet,NWAtlanta,GA30318workrerc@coa.
gatech.
eduwww.
workrerc.
orgPrincipalInvestigator:KarenMilchus404/894-0393PublicContact:800/726-9119404/894-1414;Fax:404/894-9320ProjectNumber:H133G070063StartDate:October01,2007Length:36monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY07$196,460;FY08$199,801Abstract:ThepurposeofthisprojectistodeveloptheWorkplaceAccommodationWizardthatenableshumanresourcepersonneltoidentifyemployees'needsandsolutionsforworkplaceaccom-modations.
TheWizardincludesbothanemployer-drivenassessmenttoolandarule-basedsystemforusingtheassessmentinformationtoidentifyspecificaccommodationsfromassistivetech.
net,thenationalpublicinternetsiteonAssistiveTechnology(AT),whichcontainsinformationonover18,000ATproducts.
DevelopmentoftheWorkplaceAssessmentWizardincludes:(1)creationoftheassess-mentprotocol;(2)evaluationandrevisionoftheprotocol;(3)developmentoftheruleset;(4)develop-mentofthewebapplication;and(5)producttestingandrevisionofcontent,usability,andaccessibility.
Thisworkplace-specificassessmenttoolcombinedwithacomprehensivedatabaseofATenableshumanresourcepersonnelinavarietyofemploymentsectorstoconductaworkplaceassessment,findpotentialaccommodations,readreviewsofthoseaccommodations,andfindlinkstospecificproducts.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-40FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)IllinoisWeb-BasedTreatmentforAphasiaRehabilitationInstituteResearchCorporationCenterforAphasiaResearch345EastSuperiorStreet,Room1353AChicago,IL60611lcherney@ric.
orgPrincipalInvestigator:LeoraR.
Cherney,PhDPublicContact:312/238-1117;Fax:312/238-2208ProjectNumber:H133G060055StartDate:December01,2006Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$146,316;FY07$145,529;FY08$149,932Abstract:Thisprojectconductsarandomizedclinicaltrialtodevelopandimplementaninnovative,broadband,web-basedtreatmentprogramforindividualswithchronicaphasia,andevaluatesitsefficacyandcost-effectiveness.
Thetreatment,OralReadingforLanguageinAphasia(ORLA),isbasedonatheoreticalframeworkthatincorporatestwolinesofwork:theneuropsychologicalmodelsofreadingandobservation-execution-matching.
ThetreatmenthasbeencomputerizedandthecurrentversionofORLAusesstate-of-the-artvirtualtherapisttechnologythatallowstheindividualwithaphasiatoreadaloud,andultimatelyspeak,sentencesatthesametimeasthewordsareproducedbyaperceptive,life-like,animatedcomputeragent,usingvisiblespeech.
Inthisclinicaltrial,ORLAtreat-mentisdeliveredviatheInternetandoutcomesarecomparedtoaplacebocomputertreatment.
Twenty-fiveindividualswithchronicaphasia(atleast12monthspostonset)arerandomizedtooneoftwogroups:oralreadingtreatmentgroupandacontrolgroupinwhichsubjectsparticipateinnon-languagecomputeractivities.
Bothgroupspracticeforninehoursperweekandtreatmentcontinuesforasix-weekperiodoftime.
Languageandcommunicationskillsareevaluatedpretreatment,immedi-atelypost-treatment,andatsixweeksaftertheendoftreatmenttoassessmaintenanceeffects.
TheprimaryoutcomemeasureistheAphasiaQuotientoftheWesternAphasiaBattery.
Additionally,secondaryoutcomemeasureshavebeenselectedwithconsiderationoftheICFDH-2categoriesofbodystructure/function,activity,andparticipation,andincludeavarietyofstandardaphasiatestsaswellasqualityoflifeindices.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-41FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)IllinoisOvercomingGravityInducedArmandHandDysfunctiontoRestoreFunctionalReachingFollowingStrokeNorthwesternUniversityDepartmentofPhysicalTherapyandHumanMovementSciences645NorthMichiganAvenue,Suite1100Chicago,IL60611j-dewald@northwestern.
edudewaldlab.
com/PrincipalInvestigator:JuliusDewald,PT,PhD312/908-6788PublicContact:312/908-6788;Fax:312/908-0741ProjectNumber:H133G070089StartDate:October01,2007Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY07$195,867;FY08$194,252Abstract:Thisstudyusesa3-Dforce-controlledrobottotestwhetherelectricalstimulationofexten-sormusclescanovercometheassociatedabnormalflexoractivityoftheelbow,wrist,andfingersduringreachingunderprogressivelylargergravitationalloads.
Furthermore,ifindeedwristandfingerflexorscanbeoverpowered,thisstudydeterminesifamulti-electrodearraycanbeimplementedtoselectivelystimulatewristextensorsindependentlyoffingerextensorsduringthesamereachingconditions.
Selectivestimulation,ifsuccessful,wouldincreasethefunctionalrepertoireofthehandandenhancethequalityoflifeofstrokesurvivors.
Tosupportthefundamentalpremisethatabnormalflexoractivityexistsinindividualswithstroke,theprojectmeasurestheprogressiveincreaseinabnor-malwristandfingerflexionassociatedwithsupportingincreasingamountsoftheupperlimb'sweight.
Thisisaccomplishedbyusinga3-Dforce-controlledrobottovirtuallymanipulatetheamountofgravityexperiencedduringreachingin45chronicstrokesurvivors(aim1).
Next,theprojectquantifiestheimpactofelectricalstimulationoftheelbow,wrist,andfingerextensorsonelbow,wrist,andfingerextensionrangeofmotionwhenprogressivelyincreasingtheweightofthepareticlimbwiththerobotduringreaching(aim2).
Finally,theprojectinvestigatestheapplicationofanexistingmulti-electrodestimulationarraytodetermineifwristandfingerextensorscanbeselectivelystimulated(aim3).
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-42FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)IllinoisVideoGamingTechnologytoPromoteHealthandFitnessAmongAdolescentswithDisabilitiesUniversityofIllinoisatChicagoInstituteonDisabilityandHumanDevelopment1640WestRooseveltRoad,Suite713Chicago,IL60608PrincipalInvestigator:JenniferRowlandPublicContact:312/413-1850ProjectNumber:H133G080120StartDate:October01,2008Length:36monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY08$183,463Abstract:Thisprojectadaptsactivevideogamesforusebyyouthwithphysicaldisabilities,andassessestheirfeasibilityandeffectivenessasanexercisemodalityforincreasingenergyexpenditureandimprovingcardiorespiratoryfitness.
Thestudyisconductedinthreephases:PhaseI:AdaptationandFeasibilityTesting;PhaseII:Dose-ResponseEnergyExpenditure;andPhaseIII:CardiorespiratoryFitnessTrial.
InPhaseI,adaptationsareimplementedthatallowyouthwithdisabilitiestoplayactivevideogamesusingupperextremitymovementtoparticipateinthegames.
Theaccessibilityandsafetyoftheseadaptationsisassessedthroughpilottesting,and,ifnecessary,modificationstotheadaptedvideogamesaremadebasedonparticipantfeedbackandobservation.
ResearcherscollectexerciseintensitydataassociatedwithvariousgamesdesignedforbothEyeToy(ET)andDance,DanceRevolution(TM)(DDR)devices.
Thesedataareusedtoclassifyspecificgamesintomild,moderate,andvigorousactivity.
PhaseIIexaminesthedose-responserelationshipbetweenenergyexpenditureandexerciseintensityforbothactivevideogamesandastandardexercisemodalityforindividualswithdisabilities(armcycling).
Participantscompleteenergyexpenditureassessmentsforthreelevelsofintensity(mild,moderate,andvigorous)foreachexercisemodality(armcycling,DDR,andET).
PhaseIIIisarandomizedcontrolledtrialexaminingtheeffectsofactivevideogamescomparedtoarmcyclingandnormalactivitycontrolsinimprovingcardiorespiratoryfitnessinadolescentmanualwheelchairusers.
Participantsinbothinterventiongroupswilltakepartina10-week,3days/weekexercisetrainingprogramdesignedtoincreaseaerobiccapacity.
Primaryoutcomemeasuresincludecardiorespiratoryfitness,energyexpenditure,andsatisfactionwithphysicalactivity.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-43FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MarylandOptimizedHands-FreeSpeechRecognitionUMBCInformationSystemsDepartment1000HilltopCircleBaltimore,MD21250asears@umbc.
eduPrincipalInvestigator:AndrewSears,PhDPublicContact:410/455-3883;Fax:410/455-1531ProjectNumber:H133G050354StartDate:December01,2005Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY05$149,882;FY06$149,997;FY07$149,774;FY08(No-costextensionthrough11/30/2009)Abstract:Thegoalofthisprojectistotakethecollectedhands-freespeechrecognitionscientificknowledgeandinterfacesolutions,whichhavebeenindividuallydevelopedandproven,andincorpo-ratethoseintoacommerciallyavailableuserinterfacesoftwareproduct.
Theprojectfollowsanitera-tiveusercentereddesignprocesswhosethreemainphasescorrespondroughlytothethreeyearsoftheproject.
Inphase1,pastresearchresultsareincorporatedintoaprototypedesign,whichundergoesusabilitytestinginthelab.
Inphase2,an"alpha"versionoftheproductisplacedinasmallnumberofusers'homesand/oroffices,wheretheyusetheprototypeforuptosixmonthsandkeepadiaryoftheirexperiences.
Inphase3,a"beta"versionofthesoftwareistestedbyalargernumberofusersoveraperiodofsixmonths.
Inthistrialtheusersaresubjecttosurveysregardingease-of-use,andtheyandthedevelopersparticipateinanopenonlinediscussion/feedbackforumforusers.
Theendofphase3includesafinalrefinementoftheproductandevaluationsoftheperformanceofthenewsoftwareproduct,and(formarketingpurposes)acomparisonofperformanceofthehands-freeimplementationsofspeechrecognitionsoftwarecommerciallyavailableatthattime.
Thisprojectculminateswith"Version1.
0"whichwillbemadeavailabletothegeneralpublic.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-44FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MassachusettsAccesstoLocallyTelevisedOn-ScreenInformation:AuditoryMessagingandCaptionsDuringEmergencyBroadcastsWGBHEducationalFoundationNationalCenterforAccessibleMedia125WesternAvenueBoston,MA02134-1008access@wgbh.
orgwww.
wgbh.
org/ncamPrincipalInvestigator:GeoffFreed617/300-3700PublicContact:MaryWatkins617/300-3700;Fax:617/300-1020ProjectNumber:H133G050278StartDate:October01,2005Length:36monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY05$150,000;FY06$150,000;FY07$150,000;FY08(No-costextensionthrough9/30/2009)Abstract:Thisprojectexploresandprototypesdigitaltelevision(DTV)solutionsthatenablelocaltelevisionstationstosendmessages,warnings,andalertsthatmeetthecommunicationneedsofpeoplewithsensorydisabilities.
Specifically,NCAMresearchesanddevelopssystemsandproceduresthatenablereal-timeprocessingandconversionofon-screentextcrawlsintospeechoutput.
Utilizingoff-the-shelfspeechsynthesizers,WGBHworkswithbroadcaststationstoprototypemethodsofprocess-ingtextenteredintobroadcastgraphicssystemsintospeechoutputthatcanthenbemadeavailableviathesecondaryaudioprogram(SAP)channelorauxiliaryDTVaudiochannels.
Theprojectalsodevelopssystemsandproceduresthataddressdisplayconflictsbetweencaptionsandon-screengraph-icsbydevelopingmethodsoftaggingandprioritizingtextandgraphicsmessageswithinautomateddisplaysystems.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-45FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MassachusettsCaptioningSolutionsforHandheldMediaandMobileDevicesDevelopmentWGBHEducationalFoundationNationalCenterforAccessibleMediaOneGuestStreetBoston,MA02135access@wgbh.
orgwww.
wgbh.
org/ncamPrincipalInvestigator:GeoffFreed617/300-3700PublicContact:MaryWatkins617/300-3700;Fax:617/300-1020ProjectNumber:H133G070122StartDate:October01,2007Length:36monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY07$200,000;FY08$200,000Abstract:Thisprojectexploresbarrierstoportablemediafordeafandhard-of-hearingusersanddevelopscaptioningsolutionsthatserveasmodelsforthemobilemediaandtechnologyindustriesandforpublicpolicydevelopers.
Theprojectteamidentifies,tests,andprototypesrequiredaccessibilitychangesinmobilemediaproductiontools,formats,transportmechanisms,anddisplaytechnologies.
Prototypesmodeltechnicalsolutionsforpackaging,compression,identification,retrieval,download,processing,andportingofcaptionedvideotoportabledevices.
Prototypesalsomodelmobilecaptiondisplayoptionsandexplorecustomizationcapabilities.
Consumerswhoaredeaforhard-of-hearingparticipateinend-usertestingtoevaluatetheusabilityofprojectsolutions.
Projectdeliverablesinclude:(1)prototypesthatmodelmultiplemethodsofcreating,distributing,downloading,anddisplayingcaptionedcontentonhandhelddevices;(2)publicationofusabilityresearchonaccessibleinterfaceandcaptiondisplayoptions;and(3)comprehensivefunctionalrequirementsthatdetailproductionpro-cessesandsoftwareandhardwareenhancementsrequiredforcontentcreators,serviceproviders,andthirdpartytooldeveloperstocreateandtranscodecaptionsandcaptionfeaturesetsandcapabilitiesrequiredforopenaswellasproprietarymobilemediaformatsanddevice-specificplayerstorendercaptions.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-46FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MassachusettsCaptionAccuracyMetricsDevelopmentProjectWGBHEducationalFoundationWGBH-CarlandRuthShapiroFamilyNationalCenterforAccessibleMediaOneGuestStreetBoston,MA02135ncam@wgbh.
orgncam.
wgbh.
orgPrincipalInvestigator:MarciaBrooksPublicContact:617/300-3431;Fax:617/300-1035ProjectNumber:H133G080093StartDate:October01,2008Length:36monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY08$200,000Abstract:Thisprojectutilizeslanguage-processingtoolstodevelopanautomatedcaptionaccuracyassessmentsystemforreal-timecaptionsforlivenewsprogrammingaswellasclassroom-basedcommunicationaccessreal-timetranslation(CART)captioning.
Additionally,thisprojectresearcheswhethertext-baseddataminingandautomaticspeechrecognitiontechnologiescanproducemeaning-fuldataaboutstenocaptionaccuracythatmeetstheneedforcaptionperformancemetrics.
AdvisorsincludetheNationalInstituteofStandardsandTechnology,IBM,Nuance,theMassachusettsInstituteofTechnology,GallaudetUniversity,andtheNationalTechnicalInstitutefortheDeaf.
PrototypesarereviewedbymajorstakeholdersatTechnicalReviewMeetings.
Iterativetestsandmodificationswithinmajorstenocaptionandbroadcastoperationsfacilitiesprovidereal-worldassessmentsofthesystem'sabilitytoproducemeaningfulcaptionaccuracymetrics.
Areliableperformancemeasurementtoolthatcananalyzethequalityofreal-timecaptioning,developedwithinputfromindustryleaders,deafeducationexperts,andtheFederalNationalInstituteofStandardsandTechnology,providesCongressandtheFCCwithmuch-needed,independentlyverifieddatatoestablishcaptionaccuracyrequire-ments,andgreatlyimprovestheabilityofthetelevisioncommunitytomonitorandmaintainthequalityoflivecaptioningtheyoffertoviewerswhoaredeaforhardofhearing.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-47FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MassachusettsMinimalClassroomRequirementsforOptimalAcousticAccesstoSpeechbyChildrenwithandWithoutHearingLossClarkeSchoolfortheDeaf47RoundHillRoadNorthampton,MA01060-2199figlehart@clarkeschool.
orgPrincipalInvestigator:FrankIglehart,PhDPublicContact:413/584-3450;Fax:413/582-1187ProjectNumber:H133G060116StartDate:December01,2006Length:36monthsNIDRROfficer:JoyceY.
CaldwellNIDRRFunding:FY06$68,869;FY07$51,122;FY08$56,282Abstract:Thepurposeofthisprojectistomeasuretheeffectsofclassroomnoiseandreverberationonspeechperceptionbychildrenwithvaryingdegreesofhearinglossandofdifferentages.
Theeffectsofspeech-to-noiseratio(0dBAS/N,+10dBAS/N,and+20dBAS/N)andreverberation(RT=0.
25,0.
50and1.
0s)onsentence-levelspeechperceptionaremeasuredasfunctionsofage(5-16years)anddegreeofhearingloss(mildtoprofound).
Normativedataisalsocollected,asafunctionofage,onchildrenwithtypicalhearing.
Thisprojectaddressesseveralquestions:(1)Whatlimitsonnoiseandreverberationarerequiredforoptimalspeechperceptionbychildrenwithhearingloss(2)Cantheneedforaccesstospeechamongchildrenwithdifferentdegreesofhearinglossbemetwithasinglesetofcriteriaforclassroomacoustics(3)Towhatextentdothesecriteriavarywithageamongchil-drenwithtypicalhearingandthosewithhearinglossNIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-48FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NewJerseyImprovedWeightBearingEvaluationofKneeOsteoarthritisKesslerMedicalRehabilitationResearchandEducationCenter(KMRREC)DivisionofRehabilitationEngineering1199PleasantValleyWayWestOrange,NJ07052pbarrance@kmrrec.
orgPrincipalInvestigator:PeterBarrance,PhDPublicContact:973/324-3550;Fax:973/243-6984ProjectNumber:H133G080136StartDate:October01,2008Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$199,964Abstract:TheobjectiveofthisprojectistodeveloprefineduprightMRIimagingandcomputermodelingmethodsthatallowassessmentofpatientswithosteoarthritis(OA)duringweightbearing.
Tooptimizeavailablenon-surgicalOAtreatments,refinedimagingmethodsareneededtomeasurechangesinkneepositioningandcartilagecontactwhileweightbearing.
TheprojectbuildsonpilotworkthatdemonstratedtheabilitytoderivequantitativemeasuresofcartilagecontactpositioningfromweightbearingMRIimages.
Threespecificfocusareasfordevelopmentare:(1)todevelopamoreefficientandaccuratemethodforpositioningpatientswithsymptomatickneeOAanddeterminethelimitsofdurationforweightbearingMRIscanning;(2)toimproveandexpandmethodsformaintain-ingconsistentmeasurementreferenceframesthroughchangingpositionsandloadingconditions;and(3)toexpandcapabilitiesneededtodescribecontactareaandcartilagedepthatthecontactsites.
ResearchersvalidatethemethodologicaldevelopmentsusinglaboratoryexperimentsandastudywithOApatientswhenlateralwedgeinsolesareprescribedtorelieveloadingoftheknee'smedialcompart-ment.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-49FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NewYorkWeb-basedStudentProcessesatCommunityColleges–ToolsforEnsuringAccessibilityCornellUniversityEmploymentandDisabilityInstituteSchoolofIndustrialandLaborRelations201ILRExtensionBuildingIthaca,NY14853smb23@cornell.
eduedi.
cornell.
eduPrincipalInvestigator:SusanneBruyère,PhDPublicContact:607/255-9536(V);607/255-2891(TTY);Fax:607/255-2763ProjectNumber:H133G040255StartDate:October01,2004Length:36monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY04$150,000;FY05$150,000;FY06$150,000;FY07(No-costextensionthrough10/31/2008)Abstract:Web-basedprocesses(suchasstudentrecruitment,informationdissemination,applications,courseregistrations,andonlinecoursework)havebecomeincreasinglyimportanttothewaypost-secondaryeducationalinstitutionscommunicateandinteractwiththeirpotentialandenrolledstudentpopulations.
Thisprojectfocusesontheaccessibilityandusabilityofcommunitycollegewebsites.
Inthefirstyear,amulti-methodapproachisusedtoexaminethestateofwebaccessibilityandidentifyaccessibilitybarriersforstudentswithdisabilitiesandwaystoaddressthem.
Theresearchersconductanaccessibilityevaluationofselectedwebpages,includingtheonlineapplicationprocess,in30communitycolleges.
Asubsetofthesesitesundergofurtherusabilitytestingbyindividualswithvisualandreadingbasedlearningdisabilities.
ThefocusoftheYearTworesearchisanationalsurveyofnearly700communitycollegesregardingtheiruseofweb-based/onlinestudentrecruitment,applica-tion,andregistrationprocessesandthecolleges'awarenessofwebaccessibilityissuesandpoliciesregardingaccessibility.
AwebbasedAccessibilityToolkithasbeendeveloped(www.
webaccesstoolkit.
org)basedontheresultsofthisresearch.
Thetoolkitisdesignedtoinformcommunitycollegeadministrators,webmastersanddisabilityservicesprofessionalsandothersaboutthebarrierswebinaccessibilitycanposetostudentswithvisualandlearningdisabilities.
Itprovidesinformationonwaystoidentifyandaddressthesebarriersontheircollegewebsite.
Thetoolkitwebsitecontainsavarietyofinformationandresourcesincluding:trainingmaterials,checklistsandlinkstousefulresourcestohelpcollegesunderstand,evaluateandpromoteequalaccesstocampuswebresources.
TheprojectisacollaborativeeffortbetweenEDIandCornellUniversity'sInstituteforCommunityCollegeDevelopment(ICCD).
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-50FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NorthCarolinaMicromachinedBrailleReaderNorthCarolinaStateUniversity2410CampusShoreDrive,MRC443Raleigh,NC27695-7514PrincipalInvestigator:PaulD.
FranzonPublicContact:919/515-7351;Fax:919/515-2285ProjectNumber:H133G070135StartDate:October01,2007Length:36monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY07$199,446;FY08$199,083Abstract:Thisprojectdevelopsalow-cost,portableBrailledisplayutilizingPolyvinylideneFloride(PVDF),anelectro-activepolymer,tocreateanovel,low-power,low-voltagebistableactuator.
Thedotsinthisdisplayareproducedwithmoreforceandareeasiertoread.
ByusingPVDFandsiliconmicromachiningtechniques,thereisthepotentialforeachBraillecelltocost$5orless,ascomparedtoabout$35forthecurrentcommercialofferings.
Thisdisplayshoulduselesspower,becheapertomake,requirealoweractuationvoltage(thusreducingthesizeandcostofthecontrolelectronics),andbeeasiertoscaletomorelettersthanothercurrentprototypes.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-51FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NorthCarolinaUniversalDesignofTactileExhibitswithTouchActivatedDescriptiveAudioforAquariumsRAFModels&Displays111CascadeAvenueWinston-Salem,NC27127rafmodels@triad.
rr.
comPrincipalInvestigator:RebeccaFullerPublicContact:336/722-4250ProjectNumber:H133G060284StartDate:October01,2006Length:36monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY06$138,740;FY07$144,440;FY08$143,060Abstract:Thepurposeofthisprojectistodevelopstrategiesandtechnologiesthatenhancethelearn-ingopportunitiesataquariumsforpeoplewhoareblindorlowvision(B/LV).
TheprojectevaluatescurrentaquariumexhibitstrategiesrelatedtoaninterpretiveprogramandassessesbarriersforpeoplewhoareB/LVthatfunctionallylimittheirparticipationinthecriticallearningopportunitiesextendedtothegeneralpublic.
TheprojectidentifiesanddevelopsuniversaldesignbestpracticestrategiesandmethodologiesthatenhancesocialintegrationandaccesstoexhibitandinterpretiveinformationforpersonswhoareB/LV.
Theprojectdevelopscosteffectivetechnologiestocoupleauser-directedtactileexperiencewithaudiodescriptiveinformationforaquariumexhibits.
TheprojectemphasizesmethodologiesthatemphasizeuserinvolvementbypersonswhoareB/LVinthedesignandevaluationofprototypicaldesignsforaquariums.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-52FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)OregonAMeansofExpression:OnlineCommunicationAssessmenttoImproveOutcomesforIndividualswithSevereDisabilitiesOregonHealthandScienceUniversity707SWGainesRoad,POBox574Portland,OR97207rowlandc@ohsu.
eduwww.
communicationmatrix.
orgPrincipalInvestigator:CharityRowland,PhDPublicContact:503/494-2263;Fax:503/494-2859ProjectNumber:H133G070129StartDate:October01,2007Length:36monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY07$200,000;FY08$200,000Abstract:Thisprojectadapts,refines,evaluates,andmarketsaninnovativetechnologicalonlinetooldesignedtoprovideappropriateassessmentofcommunicationskillsforindividualswithseveredis-abilities.
Thenoveltoolharnessesthepotentialofanonlinecommunicationassessmentprotocoltoachieveimmediateandmeaningfulindividual-leveloutcomesintheformofcosteffectiveandappro-priateassessment,generationofappropriateeducationalandtherapeuticgoals,andmonitoringofprogress.
TheonlinetoolisaprototypeonlineassessmenttoolforevaluatingthecommunicationskillsofindividualsattheearlieststagesofcommunicationandisbasedonthevalidandreliableCommuni-cationMatrix.
Thenewtoolisdesignedtobeusedbycaregiversandprofessionals.
Thisprojectinvolvestheadaptation,improvement,andexpansionofthiswebsitetoincreaseitsusabilityandeducationalutility,includingalphaandbetatestingandfourmajorevaluationstudies.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-53FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)OregonSystematicStudyoftheEffectivenessofAACInterventiontoImproveConversationinIndividualswithDegenerativeLanguageDisordersOregonHealthandScienceUniversity3181SWSamJacksonParkRoadPortland,OR97239friedm@ohsu.
eduPrincipalInvestigator:MelanieFried-Oken,PhD503/494-7587PublicContact:503/494-2619ProjectNumber:H133G080162StartDate:October01,2008Length:36monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$200,000Abstract:Thisprojectcontinuespreviousresearchinalternativeandaugmentativecommunication(AAC)tooluseforadultswithprimaryprogressiveaphasia(PPA)resultingfromfrontotemporallobardementia.
Projectobjectivesinclude:(1)totesttheextenttowhichAACinterventionisassociatedwithchangesinconversationforpersonswithmoderateAlzheimer'sdiseaseandpersonswithprimaryprogressiveaphasiaundercontrolledconditions;(2)totesttheextenttowhichAACuseisassociatedwithdailyfunctionalchangesinconversationforthetwoparticipantgroupsundernaturalconditions;and(3)todescribethebehavioralandsocio-relationalcharacteristicsofcaregiver/partnersandpartici-pantswhodisplayimprovedconversationalskillswithAACtreatment.
Researchisconductedwith100adultsfromtheAlzheimer'sDiseaseResearchCentersinPortland,ORandSanFrancisco,CA.
AACdevicesarecustomizedforeachparticipantwithspecificvocabularydepictingautobiographicalmemoriesandfunctionalactivities.
Eachparticipantengagesinaspacedretrievalprimingtaskfol-lowedbyvideotapedconversationswithandwithouttheAACdeviceinsixcontrolledconversationswitharesearchassistant(Study1),andsixpracticalcontextconversationswithacaregiver(Study2).
SpontaneousAACdeviceuseinthehomeistrackedforsixmonthsfollowingStudy2conversations.
Thisprojectprovidesscientificdatathatinfluencesmanagementguidelinestoimprovedailyconversa-tionalfunctioningofpersonswithdegenerativelanguagelosssecondarytomoderateAlzheimer'sdiseaseandPPAsothattheymay:(1)expresstheirownneedsanddesires;(2)reducecaregivingcostsbyfacilitatingcommunicationbetweencaregiversandtheircharges;and(3)increasequalityoflifeforbothcaregiversandtheirchargeswithdementia.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-54FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)TennesseeAppropriateDirectionalHearingAidSwitchinginSchoolAgeChildrenVanderbiltUniversitySchoolofMedicineVanderbiltBillWilkersonCenterforOtolaryngologyandCommunicationSciences121521stAvenueSouth,Room8310Nashville,TN37232-8242todd.
a.
ricketts@vanderbilt.
eduPrincipalInvestigator:ToddA.
Ricketts,PhDPublicContact:615/936-5258;Fax:615/936-5013ProjectNumber:H133G060012StartDate:November01,2006Length:36monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY06$150,000;FY07$150,000;FY08$147,564Abstract:Somechildrenarebeingdeprivedofimportantspeechinformationasaresultofhearinglossandthehighlevelsofclassroomnoisethatarenormallypresent.
Traditionalhearingaidsareabletocounteractmanyofthedifficultiesofunderstandingspeechbuthighlevelsofclassroomambientnoiseremainasignificantproblem.
Recentdatahaveshownsignificantbenefitfromdirectionalhearingaidsforchildrenacrossawiderangeofnoisyschoolenvironments.
However,ithasalsobeenestablishedthatthedirectionalmodemaybeundesirableinotherlisteningsituations,necessitatingappropriateswitchingbetweendirectionalandomnidirectionalmicrophonemodestoensureoptimumspeechrecognition.
Unfortunately,itisnotknownhowoftenandinwhatenvironmentsthehearingaid'smicrophonemodeneedstobeswitchedatschooltomaintainoptimumspeechrecognitionandwhetherchildrencanbetrainedtoswitchappropriatelybetweendirectionalandomnidirectionalmodes.
Inlieuofappropriatemanualswitching,itisnotknownif"state-of-the-art"automaticmicrophone-switchinghearingaidswillswitchappropriatelyinmanyschoolenvironments.
An"asymmetric"fittingscheme(directionalinoneearandomnidirectionalintheother)hasbeenproposedasapossiblealternativetobothmanualandautomaticswitchinginadultlisteners.
Itisunknownwhetherthisasymmetricfittingwillbeareasonablealternativeforchildren.
Thepurposeofthisprojectistoanswerthesequestionsthroughaseriesofthreeinvestigations.
Theseinvestigationsinclude:(1)quantificationofschoolenvironmentswithregardstothemostappropriatemicrophonemode(directional,omnidirectional,either);(2)quantificationofappropriateswitchingofbothautomaticandmanualdirectionalswitchingsystemsinschoolenvironmentsasafunctionofage,and(3)quantificationofspeechrecognitionacrossarangeofschoollisteningenvironmentsforasymmetricandtraditionalsymmetricmicrophonefittings(bothautomaticandmanuallyswitched).
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-55FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)WisconsinFunctionalEffectsofBifocalUse:ImplicationsforFallingInterventionsUniversityofWisconsin/MilwaukeeRehabilitationResearchDesignandDisabilityCenterCollegeofHealthSciencesP.
O.
Box413Milwaukee,WI53201-0413PrincipalInvestigator:RogerO.
Smith,PhD;KathyRust,MS;414/229-5625PublicContact:414/229-6803(V);414/229-5628(TTY);Fax:414/229-6843ProjectNumber:H133G050340StartDate:October01,2005Length:36monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY05$149,999;FY06$149,950;FY07$149,928;FY08(No-costextensionthrough9/30/2009)Abstract:Thisprojectdirectsanintegratedsetofresearchactivitiestoaddressaseriouslyunderconsideredfactorinfallsresearch,theuseofbifocallenses.
Fallsandfall-relatedinjuryamongeldersareawidelydocumentedpublichealthproblemcausingdecreasedfunction,suffering,increasedhealthcarecosts,andevenmorbityandmortalityamongolderpersons.
Fiveprimarygoalsareidentifiedforthisstudy:1)measureoutcomesofbifocaluse;2)understandtheprocessofadaptationtonewbifocals;3)explorebrainfunctionasapotentialexplanatoryvariable;4)draftrecommendationsforclinicalpracticeanddesign,and:5)disseminatescientificpapersandpresentationstoinformresearch,devicedevelopment,andpractice.
Twostrategiestoaddressthesegoals.
For60healthyadultswithnewbifocallenses,Phase1replicatespreviouslyestablisheddependentmeasuresandaddsameasureoffunctionalmobilityinalongitudinaldesign.
Phase2employsfunctionalMRIinnewbifocalusersovertheirperiodofadaptation.
Whiletheparadigmisdesigned,specificparametersforPhase2isrevisedfromanalysisofPhase1data.
Theworkfromthisprojectisdisseminatedthroughrefereedpresenta-tionsatmajorconferencesandprofessionalpublications.
Technicalreports,asappropriate,willbepostedontheR2D2website.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-56FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)WisconsinDevelopmentofDynamicPedorthosisforImprovingClubfootCorrectionMedicalCollegeofWisconsinDepartmentofOrthopaedicSurgeryPOBox1997,SuiteC360Milwaukee,WI53201xcliu@mcw.
eduPrincipalInvestigator:Xue-ChengLiu,PhDPublicContact:414/337-7323;Fax:414/337-7337ProjectNumber:H133G060142StartDate:December01,2006Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$150,000;FY07$150,000;FY08$150,000Abstract:Thepurposeofthisdevelopmentprojectistouseadvancedtechnologiestoestablishanewprocesstodevelopacustomizeddynamicpedorthosisforchildrenwithclubfoot.
ResearchersevaluatechildrenwithandwithoutclubfoottoobtaindynamicplantarpressureusingEMEDPressureSystemandthreedimensionalgeometryfromX-rayorCTscan.
Basedonthisinformation,acomputermodelofthedynamicpedorthosisisdevelopedusingcomputer-aideddesign(CAD)andfiniteelementmodeling(FEM).
TheanalysisofFEMsimulateswalkingwithdifferentpercentageofbodyweight.
ThecustomizedCADmodelisusedtoconstructanegativemoldofthepedorthosisusingSolidFreeformFabrication,arapidprototypingtechnique.
Next,thepedorthosisisconstructedfromthenegativemold.
Eachcustomizedpedorthosisconstructedusingthisapproachwillhavedifferentmaterialinsertsasrequiredtocorrecttheabnormalplantarpressureresultingfromtheclubfootdefor-mity.
Finally,fivepatientswiththeircustomizeddynamicpedorthosisarefollowedclinicallyincludingX-ray,in-soleplantarpressuredistributionstudy,andfunctionaloutcomeanalysis.
Thisinformationisusedtoevaluatethepedorthosisforreliabilityandeffectiveness,andifneeded,usedtomodifythecurrentpedorthosis.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-57FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)WisconsinClinicalReliabilityandValidityofaFootModel:AssessingEfficacyandFunctionalOutcomewithOrthoticInterventioninChildrenwithCerebralPalsyMedicalCollegeofWisconsinDepartmentofOrthopaedicSurgeryPOBox1997,SuiteC360Milwaukee,WI53201xcliu@mcw.
eduPrincipalInvestigator:Xue-ChengLiu,PhDPublicContact:414/337-7323;Fax:414/337-7337ProjectNumber:H133G060155StartDate:January01,2007Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$150,000;FY07$150,000;FY08$150,000Abstract:Equinovalgusandequinovarusarethemostcommonfootandankleabnormalitiesreportedinchildrenwithcerebralpalsy(CP).
OrthoticinterventionisfrequentlyprescribedforchildrenwithCPtoimprovetheirstanding,walking,andeverydayfunction.
However,limitedevidenceexiststosupporttheimpactofthesedevicestopreventdeformitiesorimprovefunction.
Specifically,nolong-termfunctionaloutcomestudiessupportuseofdifferentorthosesrecommendedbyexistingfootmodels.
Thisstudyfirstvalidatesasix-segment-footmodelwithMRIdataandassessesclinicalreliabil-ityofthemodelwithphysicalexaminationandvideo-tapedobservationalgaitanalysesinchildrenwithCP.
Second,thisstudyassessestheefficacyoffourtypesoforthosesanddeterminestheirbenefitsfollowingatwoyearperiod,usingthesix-segment-footmodel,GrossMotorFunctionMeasure,andPediatricEvaluationofDisabilityInventory.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-58SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIColoradoDevelopmentandEvaluationofaLocation-BasedMultimediaSystemforProvidingAccesstoInformationinCommunitySettingsAbleLinkTechnologies,Inc.
618NorthNevadaAvenueColoradoSprings,CO80903-1158steve@ablelinktech.
comwww.
ablelinktech.
comPrincipalInvestigator:StevenE.
StockPublicContact:719/592-0347;Fax:719/592-0348ProjectNumber:H133S080044StartDate:October01,2008Length:6monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$75,000Abstract:Thisprojectdevelopsalocation-basedmethodforimprovingaccesstoinformationinthecommunity(i.
e.
:publicplacessuchasparks,zoos,busstationandstops,informationkiosks,touristattractions,andotherplacesofpublicaccommodation)thatisnotsolelyintextformat.
Thisprojectaddressestheneedforalternativeformatsbydesigning,developing,andtestingaPocketPC-basedsoftwaresystemthatusesGPSsignalstoloadanddeliverlocation-based,personalizedmultimediainformationcontenttoindividualswithintellectualandotherdisabilities.
Potentialapplicationsforpersonswithdisabilitiesincludetwoprimaryareas:(1)families,schools,agencies,andprogramsthatprovidecommunity-basedtrainingandservicestoindividualswithintellectualandotherdisabilities;and(2)placesofpublicaccommodationthatprovideinformationtothepublicabouttheirservicesorfacilitiesandhaveobligationstomakesuchinformationaccessibletopeoplewithdisabilities.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-59SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIColoradoDevelopmentandEvaluationofaUniversalDesignMultimediaApproachtoEnableAutonomousCompositionbyStudentsandAdultswithIntellectualDisabilitiesAbleLinkTechnologies,Inc.
618NorthNevadaAvenueColoradoSprings,CO80903steve@ablelinktech.
comwww.
ablelinktech.
comPrincipalInvestigator:StevenE.
StockPublicContact:719/592-0347;Fax:719/592-0348ProjectNumber:H133S080007StartDate:October01,2008Length:6monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$75,000Abstract:Theprojectaddressestheneedsofstudentsandadultswithintellectualdisabilitiesforwrittenself-expressionbydesigning,developing,andtestingauniversallydesigned,multimediacompositioningsoftwareapplication.
Thisapplicationcreatesaspecificformatforindependentexpres-sionofthoughts,ideas,experiences,knowledge,personalhistory,andothertypicalliteraryoutput.
Thesystemprovidesanautomatedinterfacetoasimplifiedprocessforrecording,saving,organizing,retrieving,anddistributinguser-authoredmultimediadocuments.
Theresultingnewtechnologypro-videsthebenefitsofindependentself-expressionandpreservationofcompositionsinmultimediadocumentsforpeerandfutureconsumption.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-60SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIColoradoEvaluationofaUniversallyDesignedMultimediaApproachtoPromoteIndependentAccesstoInstantMessagingTechnologyforIndividualswithIntellectualDisabilitiesAbleLinkTechnologies,Inc.
618NorthNevadaAvenueColoradoSprings,CO80903steve@ablelinktech.
comwww.
ablelinktech.
comPrincipalInvestigator:StevenE.
StockPublicContact:719/592-0347;Fax:719/592-0348ProjectNumber:H133S080008StartDate:October01,2008Length:6monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$75,000Abstract:Thisprojectdevelopsandevaluatesamultimediainstantmessaging(IM)system,VisualMessenger,thatisdesignedtobeusableindependentlybyindividualswithintellectualandothercognitivedisabilities.
Theprototypesoftwaresystemdevelopedinthisprojectisusedinabetween-subjectspilotstudycomparingitwithmainstreamIMapplicationstomeasureitseffectivenessintermsofindependentusability,efficacy,andpotentialforimpactingsocialisolation.
Theresultingnewtechnologytoolprovidesbenefitsintheareasofsocialconnectedness,recreation,selfesteem,andcomputerskills.
ItalsoservesasareasonableaccommodationinsituationswhereIMisarequirementofajob.
Theprimarybenefitisprovidinganindependentlyusableplatformforindividualswithintellectualdisabilitiestocommunicatewithfriendsandfamily,betheyacrosstownoracrossthecountry,inrealtime.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-61SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIColoradoMoneyCoach:AMoneyManagementSystemtoFacilitateIndependentLivingforIndividualswithIntellectualDisabilitiesAbleLinkTechnologies,Inc.
618NorthNevadaAvenueColoradoSprings,CO80903dan@ablelinktech.
comwww.
ablelinktech.
comPrincipalInvestigator:DanielK.
DaviesPublicContact:719/592-0347;Fax:719/592-0348ProjectNumber:H133S080042StartDate:October01,2008Length:6monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$75,000Abstract:Thisprojectaddressesthecriticalneedformoneymanagementskillstrainingnecessaryforindependentcommunitylivingthroughthedevelopmentofasoftwaresystem(MoneyCoach).
MoneyCoachutilizesbothhand-heldtechnologyanddesktopsoftwaretoassistindividualswithintellectualdisabilitieswithmoneymanagementandrelatedskills.
Projectgoalsinclude:(1)developingprojectrequirementsfortheMoneyCoachsystem;(2)designingandbuildingafullyfunctioningsoftwareprototype;and(3)conductingfieldassessmentstoevaluateitsutilityforimprovingindependenceandself-determinationinpersonalmoneymanagementforindividualswithintellectualdisabilities.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-62SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIColoradoPocketEmail:DevelopmentandEvaluationofanAccessiblePDA-BasedEmailProgramtoFacilitateRemoteCommunicationforIndividualswithIntellectualDisabilitiesAbleLinkTechnologies,Inc.
618NorthNevadaAvenueColoradoSprings,CO80903dan@ablelinktech.
comwww.
ablelinktech.
comPrincipalInvestigator:DanielK.
DaviesPublicContact:719/592-0347;Fax:719/592-0348ProjectNumber:H133S080014StartDate:October01,2008Length:6monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$75,000Abstract:ThisprojectevaluatesthetechnicalmeritandfeasibilityofPocketEmail,aPDA-basedaccessibleemailprogramwhichisuniversallydesignedtomeettheuniqueneedsofindividualswithintellectualdisabilitiesforcommunicatingviaemailwithfamilymembersandothercaregiverswhileincommunitysettings.
RecentPDAandwirelesstechnologydevelopments,suchasBlackberryorPocketOutlook,havepotentialtoempowerindividualswithintellectualdisabilitieswithnewremotecommunicationsupports.
PDA-basedwirelessemailtechnologyprovidesaccesstothebenefitsofremotecommunicationforindividualswithintellectualdisabilitieswhodonothaveliteracyskillsorcognitive/physicalcapacitiestousesimilarmainstreamcommunication.
Projectobjectivesinclude:(1)developingpreliminaryrequirementsforthesystem;(2)designingandbuildingasoftwareprototype;and(3)evaluatingtheindependentusabilityforindividualswithintellectualdisabilitiestosendandreceiveemailmessagesusingthistechnologythroughapilotstudy.
Theincreasedabilitytocommuni-cateprovidesanimportantlevelofassurancetocaregiversandassistsinalleviatingsomeconcernsthatincreasedindependencecanraise.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-63SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIFloridaSigningSciencePictionaryforYoungLearnerswhoareDeaforHardofHearingVcom3D,Inc.
3452LakeLyndaDrive,Suite260Orlando,FL32817jasonh@vcom3d.
comwww.
vcom3d.
comPrincipalInvestigator:JasonHurdichPublicContact:407/737-7310;Fax:407/737-6821ProjectNumber:H133S080039StartDate:October01,2008Length:6monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY08$74,973Abstract:ThisprojectdevelopsandevaluatesaprototypesigningSciencePictionary(SSP)forbothpersonalcomputerandhandheldapplications.
Themobileversionofthedictionaryprovidesmobilityandindependencethatleadstoopportunity-basedlearninginclassrooms,onfieldtrips,orwhilereadingabookanytime,anywhere.
Projectgoalsareto:(1)developproof-ofconceptsoftwarefora100-termillustratedsignlanguagedictionaryofscientifictermsforstudentsingradesK-3;(2)imple-mentandtestdifferentuserinterfacesonthePC(bothWindowsandMacintosh)andhandhelddevices;and(3)modifyanddevelopafullyfunctionalprototypeofthesoftwaretoincludeAmericanSignLanguageandSignedEnglishdefinitionsforatleast700sciencetermscoveringthemajorstandards-basedtopicsinlife,physical,andearthandspacescience.
Termsaredrawnfromtextbooksandqualityelectronicandprintresources.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-64SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIIndianaSoundCompass-AWearableSoundDirectionandMotionDetectorforPeoplewhoareDeaforHardofHearingCreateAbilityConcepts,Inc.
5610CrawfordsvilleRoad,Suite2401Indianapolis,IN46224steve@createabilityinc.
comwww.
createabilityinc.
comPrincipalInvestigator:StephenM.
SutterPublicContact:317/484-8400;Fax:317/484-8401ProjectNumber:H133S080054StartDate:October01,2008Length:6monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY08$75,000Abstract:Thisprojectresearches,develops,anddemonstratesthetechnicalmeritandfeasibilityofawearabledevicewhich(1)detectsthedirectionofasoundsourceormotion,and(2)alertstheuserviavibration,images,andcaptionstothedirectionofthissoundsourceormovementrelativetothecurrentpositionoftheindividual.
Thisprovidestheuserwithasenseofindependenceandpersonalsafetybyalleviatingconcernsastowhetherrecreational,educational,vocational,orindependentlivingsettingsmaybeadequatelyequippedtoprotectthem.
SoundCompassfunctionsindoorsoroutdoorsinenviron-mentsinvolvingpotentialinteractionwithequipment,vehicles,animals,orotherpeople.
Thedeviceisdesignedtoworkasastandaloneorinconjunctionwithothersensingsystemsandmultipurposemobiletechnology.
Specificobjectivesinclude:(1)determinationofenduserrequirements,(2)devel-opmentaprototypeoftheSoundCompassdevice,and(3)performingausabilityanalysiswithactualusers.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-65SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIMinnesotaConnectivitytoModernElectronicsfortheHearingDisabledAdvancedMedicalElectronicsCorporation6901EastFishLakeRoad,Suite190MapleGrove,MN55369ghavey@ame-corp.
comPrincipalInvestigator:GaryHaveyPublicContact:763/463-4814,x104;Fax:763/467-4817ProjectNumber:H133S080032StartDate:October01,2008Length:6monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY08$75,000Abstract:Thisprojectcreatesawirelesssolutionforinterconnectinghearingaidswithconsumerelectronicdevicesbasedonanew,ultra-low-powerradiospecificallydevelopedbyprojectpartnerIntriConCorporation(St.
Paul,MN),foruseinmicro-behind-the-ear(Micro-BTE)hearingaids.
Thesmallconsumerelectronicsadd-onmodule,withgreaterthan100-hourbatterylifefromastandardzinc-airhearingaidbattery,candirectlycommunicatewithmicro-BTEhearingaids.
Itallowsfortheuseofwirelesstechnologyandprovidesaconnectivitysolutionthathasmanyadvantagesoverothercurrentsolutions.
Theresultisamodule(audiodigitizerandtransmittermodule)compatiblewithnearlyallfuturewirelesshearingaids.
Thisnewmoduleallowshearingaiduserstoreceivehigh-qualitysounddatadirectlyfromsuchitemsascellphones,televisions,computers,digitalaudioplayers,andclassroompublicannouncementsystems.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-66SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseINewYorkKnowledgeAthletesPlatform:CapitalizingonOnlineCommunicationtoIncreaseParticipationandLearningforAllStudentsKnowledgeAthletes,Inc.
13CountrysideRoadFairport,NY14450www.
knowledgeathletes.
comPrincipalInvestigator:DaveMillerPublicContact:585/330-3051ProjectNumber:H133S080027StartDate:October01,2008Length:6monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY08$74,681Abstract:Thisprojectdevelopsweb-basededucationalsoftware(KnowledgeAthletesPlatform-orKAP)foruseininclusiveeducationsettings.
Thesoftwaresupportstheparticipationofstudentswhoaredeaf,hardofhearing,orhavedisabilitiesaffectingauditoryprocessingandexperiencedifficultyinoralcommunication.
KAPprovidesteacherswithnewopportunitiestoengagetheirclassesonlineinintellectualendeavorsandeducationallyrelevantdialogueswithouthavingtorelyonverbalcommuni-cation.
Itcapitalizesonanumberofpromisingnewtechnologiesandanapplicationpreviouslydevel-opedbyKnowledgeAthletes.
Projectobjectivesinclude:(1)developingapreliminaryprototype;(2)conductingfocusgroupsandsurveyswiththetargetedstudentpopulationandtheirteachers;and(3)carryingoutaninitialpilottestingoftheprototypetoinformcriticaldecisionsaboutthespecificfea-turesincludedinthefinalproduct.
Thedevelopmentofweb-basededucationsoftwareincreasestheparticipationofstudentswhohavetraditionallybeenleftoutofclassroomdiscussionsandinteractions;thusprovidingnewopportunitiesforlearningandacademicsuccessforstudentsandreducingthelearningachievementgapbetweenstudentswithdisabilitiesandtheirmainstreampeers.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-67SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseINewYorkCreatingAudio-TactileIllustratedDigitalTalkingBooksUsingaDigitalPen-BasedComputingPlatformTouchGraphics,Inc.
330West38thStreet,Suite1204NewYork,NY10018sl@touchgraphics.
comwww.
touchgraphics.
comPrincipalInvestigator:StevenLandau800/884-2440PublicContact:800/884-2440;Fax:646/452-4211ProjectNumber:H133S080030StartDate:October01,2008Length:6monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY08$75,000Abstract:ThisprojectexpandsuponcurrentdigitaltalkingbooktechnologyandcreatesanddeliversanIllustratedDigitalTalkingBook(IDTB),whichimprovesuponcurrenttechnologybyprovidingaccessiblegraphs,maps,diagrams,orotherimages.
Thesebooksgivereaderscontrolofaudio-basedcontentplaybackandpermitexaminationofraised-lineandtexturedimaginesinatraditionalbookformat.
Readerstouchthetipofaspecialelectronic"pen"topartsofillustrationswhenlookingatitemssuchasdiagrams,maps,tables,andgraphsandthenlistentoanaudiodescriptionofthoseitems.
Nocomputerorotherhardwaredevicesareneeded,makingthesystemportableandinexpensive.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-68SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseINewYorkDiabetesMonitoringforCognitivelyImpairedAdultsMedgraph,Inc.
53GlensideWayRochester,NY14612eds@med-graph.
comPrincipalInvestigator:EdwardSchluter585/453-9437PublicContact:Fax:585/453-9437ProjectNumber:H133S080013StartDate:October01,2008Length:6monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY08$74,980Abstract:Thisprojecthelpsadultswithcognitiveimpairments(CI),familymembers,othercaregivers,andmedicalpersonnelinmonitoringandcontrollingdiabetesinahomesetting.
Theprojecthasfourobjectives:(1)tostudyhowCIaffectstheover-allself-care,familycare,andprofessionalcareofpersonswithdiabetes;(2)toidentifyuniqueneedsofadultsages21-65withdiabeteswhohavemildtomoderateCI;(3)understandhowspecificdeficitsrelatedtoCIaffectself-monitoringofbloodglucose;and(4)toapplythesefindingstonewhardware,software,andeducationalmaterialsthatwillenablethistargetpopulationtofunctionmoreindependently.
Medgraph'sGlucoseMonitoringSystempro-videsasimpleandintuitivemonitoringandeducationsystemavailabletoindividualswithdisabilitiesanddiabeteswhoareotherwisenotserved.
Byimprovingthecollection,transmission,andvisualdisplayofvariablessuchasglucose,bloodpressure,pulse,cholesterol,andspirometerinformation,overallhealthcarecostscanbelowered,qualityoflifeenhanced,andmortalityfordiabeticsdecreased.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-69SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseINorthCarolinaASocialNetworkingSystemforParentsandProfessionalsWorkingwithChildrenwithAutismSpectrumDisordersTheSandboxLearningCompany18801NauticalDrive,Suite206Cornelius,NC28031amy.
maguire@sandbox-learning.
comPrincipalInvestigator:AmyMaguirePublicContact:800/704-7815;Fax:877/562-2923ProjectNumber:H133S080021StartDate:October01,2008Length:6monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY08$74,960Abstract:Thisprojectdevelopsasocialnetworkingsystemthat:(1)bringsrealworldskillsandsettingsintothehomeandschoolusingvideomodeling,(2)issafeandcosteffective,and(3)createsatrustednetworkforparentandprofessionalresourcesharing.
Thissocialnetworkingsystemprototypeallowsparticipantstolearnessentialsocialskillsandbeabletogeneralizethemtoothersettings,people,andmaterials;andallowsparentsandprofessionalstousethesystemtouploadvideos,scripts,anddatacollectionsheets.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-70SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIUtahUtilityArmandUpperLimbProsthesisMotionControl,Inc.
115NorthWrightBrothersDriveSaltLakeCity,UT84116harold@utaharm.
comwww.
utaharm.
comPrincipalInvestigator:HaroldSearsPublicContact:801/326-3434;Fax:801/978-0848ProjectNumber:H133S080017StartDate:October01,2008Length:6monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY08$75,000Abstract:Thisprojectdevelopsaninnovativeupperextremity(UE)prostheticsystemwhichofferssubstantialimprovementinfunctionality,ruggedness,andcomfortforpersonswithlimbdeficienciesattransradial,elbow,andtranshumerallevels.
Called"UtilityArm,"thesystemofimprovedcomponentsisdesignedtoincreaseindependenceandworkcapabilitiesforusersofarmprostheses.
ThehybridUEprostheticsystemallowstheprosthesiswearertotransitioneasilyfromelectricterminaldevicetobody-poweredterminaldevice,i.
e.
,transitionfromworktorecreation,evendry-to-wetenvironments.
Keydesignelementsinclude:(1)FiniteElementAnalysis;(2)high-strengthmoldedexoskeletonshellsfortheutilityarm;and(3)body-poweredelbowlockdesign.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-71SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIWisconsinConversationalComputerInterfaceforManagingPersonalInformation:JotChatCustomTechnologyLtd.
867WabanHillMadison,WI53711karen@customtechnologyltd.
comwww.
tridbit.
comPrincipalInvestigator:KarenBlaedowPublicContact:608/276-5516ProjectNumber:H133S080023StartDate:October01,2008Length:6monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY08$74,960Abstract:TheprojectdevelopsaconversationalpersonalinformationmanagernamedJotChatwhichallowsuserstocommunicatewithcomputersusingordinarylanguage,leveraginganaturallanguagetechnologycalledTridbittechnology.
Tridbittechnologysimplifiesaspectsofthenaturallanguageunderstandingproblemthroughitsuniqueknowledgerepresentationmodel.
JotChatusersenterandretrieveinformationinEnglish,forexample:"Art'sphonenumberis775-555-1295,""ImeetwithJimtomorrow"or"WhatgroceriesdoIneed"JotChatimprovesthelivesofindividualswithvisualandprintdisabilitieswhocannoteasilyuseconventionaluserinterfaces.
Projectobjectivesinclude:(1)theadditionof"untrainedinput"fromusersregardingpersonalinformationsuchascalendars,lists,con-tacts,andnotes;(2)improvementofvoicerecognitionaccuracythroughtheincorporationofTridbittechnologywithenhancedNuancespeechrecognitionsystemtoassessviabilityofvoiceinputoptionforJotChat;and(3)testingoflevelofcoverageachievedandmodificationasnecessaryforaccuracyandimprovementsinvoicerecognitionandoveralluserexperience.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-72SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIColoradoATLAS:AnAccessibleTesting,Learning,andAssessmentSystemforIndividualswithIntellectualDisabilitiestoFacilitateInclusionandAccesstotheGeneralCurriculumAbleLinkTechnologies,Inc.
618NorthNevadaAvenueColoradoSprings,CO80903dan@ablelinktech.
comPrincipalInvestigator:DanielK.
Davies719/592-0347PublicContact:719/592-0347;Fax:719/592-0348ProjectNumber:H133S080066StartDate:October01,2008Length:24monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY08$250,000Abstract:ThisprojectbuildsuponpreviousresearchtofullydevelopandfieldtesttheATLASsystem,aninnovativesystemthatfacilitatesaccesstotestsandsurveysforindividualswithintellectualandothercognitivedisabilities.
ATLASisaportabletestingandassessmentsystemthatcanbeusedbyteachersandevaluatorstocreateaccessible,self-pacedtestsandevaluationsforstudentsandadultswithintellectualdisabilitieswhichcanthenbecompletedbytheindividualinaself-directedmannerusingaportablecomputerdevice.
TheATLASsystempromotestheaccessofstudentswithintellectualandothercognitivedisabilitiestothegeneraleducationcurriculumbyfacilitatingtheirparticipationintestingactivitiesintheregularclassroom.
TheATLASSystemaddressestheimportanteducationalneedsofindividualswithintellectualandothercognitivedisabilitiesbyfacilitatingindependentaccesstotestsandsurveysforasignificantpopulationofAmericancitizensusingportabletechnology.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-73SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIFloridaMobileLanguageReferenceforDeafandHard-of-HearingK-12StudentsVcom3D,Inc.
3452LakeLyndaDrive,Suite260Orlando,FL32817jasonh@vcom3d.
comwww.
vcom3d.
comPrincipalInvestigator:JasonHurdichPublicContact:407/737-7310ProjectNumber:H133S070088StartDate:October01,2007Length:24monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY07$249,998;FY08$249,724Abstract:Thisprojectdevelopssoftwareforhandhelddevicesforuseinelementaryandsecondarygrades.
DuringPhaseIofthisproject,Vcom3DdevelopedandtestedaprototypeMobileLanguageReferenceforstudentsinthemiddlegradesthatincludedAmericanSignLanguageandSignedEn-glishdefinitionsselectedfromtheSigningScienceDictionary,developedbyTERCandVcom3D,aswellasexplanationsofmulti-sensewordsandEnglishidioms.
InitialtestingoftheMobileLanguageReferenceindicatedahighlevelofuseracceptanceandprovidedevidencethatthesystemcanimprovelearningoutcomes.
ForPhaseII,Vcom3DcreatesandevaluatesamobileversionoftheSigningScienceDictionarywithatleast1,300scientificterms.
Liketheoriginaldictionary,thismobileversiontargetsstudentsinthemiddlegrades.
Versionsarecreatedforhandheldmediaandmulti-functiondevices,suchastheiPod,iPhone,Blackberry,andSidekick;andtoolsandastarterkitdevelopedforteacherstocreate"personalizeddictionaries"thatcouldincludeadditionalscientificterms,idioms,multi-sensewords,andunfamiliarwordsthatwouldbenefitthestudentswithintheirowncurriculum,andcouldalsobeusedininformalsettings.
Thefeasibilityandefficacyofthesepersonalizeddictionar-iesandthetoolsusedcreatethemisevaluatedindependentlyoftheSigningScienceDictionary.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-74SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIIllinoisALow-CostPortable/WearableDeviceforIntelligentStretchingandMovementTrainingofHypertonicForearminStrokewithOutcomeEvaluationRehabTek,LLC2510WilmetteAvenueWilmette,IL60091rehabtek_bo@yahoo.
comPrincipalInvestigator:YupengRen847/024-1659PublicContact:847/024-1659;Fax:847/853-8380ProjectNumber:H133S080076StartDate:October01,2008Length:24monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY08$239,013Abstract:Thisprojectdevelopsawearable/portableroboticdevice,IntelliStretch,toperformtherapeu-ticrehabilitationofthearmwiththefollowingthreeintegratedsteps:(1)stretchingaspastic/stiffjointtoitsextremepositionunderintelligentcontroltoloosenthestiffjoint,(2)voluntarymovementtrainingusingvirtualrealitygamesinterfacedwithassistance/resistancecontrolwhenneeded,and(3)quantita-tiveoutcomeevaluation.
Thedeviceislowcostandportablesothatpatientscanusethedeviceconve-nientlyandfrequentlyinalocalclinicundermonitoringofaclinicianorathomewithinitialinstruc-tion/trainingfromaclinician.
IntelliStretchisfirstmodifiedforwearabledesigntoimproveportabilityandfunctionality.
Second,inordertomotivate/facilitatepatientsinmotor-functionrecovery,voluntarymovementtrainingbyplayingvirtualrealitygamesisadded.
Finally,theoutcomeoftherobotictreatmentisevaluatedquantitativelyintermsofthebiomechanicalandneuromuscularpropertiesofthejoint.
TheIntelliStretchdevicefacilitatesthedeliveryofhealthcareservicestoremotelocations,suchaspatients'homesandlocalclinics,and,thusenablesanincreasednumberofpatientstoreceiveeffectivetreatmentandoutcomeevaluationconvenientlywhileenjoyingthegames.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-75SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIIndianaHearingCompanion:HandheldPortableSoundIdentificationandCriticalAlertingFunctionalityforPeopleWhoAreDeaforHaveHearingLossCreateAbilityConcepts,Inc.
5610CrawfordsvilleRoad,Suite2401Indianapolis,IN46224steve@createabilityinc.
comwww.
createabilityinc.
comPrincipalInvestigator:StephenM.
Sutter317/484-8400PublicContact:317/484-8400;Fax:317/484-8401ProjectNumber:H133S080075StartDate:October01,2008Length:24monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY08$250,000Abstract:Basedonpreviousresearch,thisprojectdevelopsanddemonstratestheHearingCompanionwhich:(1)automaticallyrecognizesspecificsoundsintheenvironmentonapocket-sizeddevice;and(2)alertstheuserontheirmobiledeviceviavibration,images,andcaptionsthatidentifytheserecog-nizedsounds.
Thisefficient,wearablesystemutilizesexistinganddevelopingtechnology,improvingtheabilityofapersonwhoisdeaftofunctionmorenaturallyinaworkorschoolenvironment.
PhaseIIprojectgoalsinclude:(1)enhancetheHearingCompaniondeviceandapplication;(2)expandthenumberofmobilecommunicationdevicessupported;(3)performanextendedusabilityevaluationofthedeviceinarangeofactivitiesinvocational,public,anddailylivingscenarios;and(4)preparefortransitionintocommercialization.
Theportablehandheldsystemsignificantlyenhancestheuser'ssenseofsafety,security,andindependencebyprovidingameansofsoundrecognitionheretoforeunavail-abletotheseindividuals.
Moreover,thepersonaldevicesprovideaconvenientandpowerfultoolformobileinformationandcommunication.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-76SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIMinnesotaWirelessWristDevicetoAlerttheDeafofSoundsandEventsinTheirEnvironmentAdvancedMedicalElectronicsCorporationEngineeringAME6901EastFishLakeRoadSuite#190MapleGroveMapleGrove,MN55369gseifert@ame-corp.
comwww.
ame-corp.
comPrincipalInvestigator:GregSeifert763/463-4814PublicContact:763/463-4814,ext.
101;Fax:763/463-4817ProjectNumber:H133S080068StartDate:October01,2008Length:24monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY08$250,000Abstract:Thisprojectdevelopsawirelesssystemtoalertindividualswhoaredeaftocriticalsoundsandeventsintheirenvironment.
Thisefficient,wearablesystemutilizesexistinganddevelopingtechnology,improvingtheabilityofapersonwhoisdeaftofunctionmorenaturallyinaworkorschoolenvironment.
ThesystemusesaconsumerproductcalledaBluetoothwristwatch,whichisessentiallyawirelesswrist-worncomputerinterfaceanddisplay.
TheBluetoothwatchservesasahands-freeuniversalinterfacetoanetworkofsensorsprovidingdataaboutthesurroundingenviron-mentandasaconvenientinterfacefortextmessaging.
Thetextmessagingfeatureissignificantsincetextmessagingiscommonamongindividualswhoaredeafandhasalsoincreasedcommunicationbetweenindividualswhoaredeafandindividualswhoarehearing.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-77SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIMinnesotaPoweredMountingandPositioningSystemBlueSkyDesigns,Inc.
263727thAvenueSouth,Suite209Minneapolis,MN55406dianne@blueskydesigns.
uswww.
blueskydesigns.
usPrincipalInvestigator:DianneGoodwinPublicContact:888/724-7002;612/724-7002;Fax:612/724-7004ProjectNumber:H133S060096StartDate:October01,2006Length:24monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY06$237,212;FY07$262,786;FY08(No-costextensionthrough9/30/2009)Abstract:InthisPhaseIIproject,apoweredmountingandpositioningsystemisdevelopedandprovidesindependentaccesstocommunicationdevices,worksurfaces,books,cellphones,PDAs,food,drinks,andmoreforindividualswithsignificantlimitations.
Devicepositioningiscontrolledthroughswitches,voice,orjoystickcontrol.
Programmingisaccomplishedwithasingleswitch.
Apersonmaymovethemounttooneoffourcustomsetpositionsandmakeindependentadjustmentstoeachjoint,thetilt,andtheheight.
Forexample:tiltingorrotatingacommunicationdevicedisplaytoavoidglare.
Withapoweredpositioningsystemandtheabilitytorotatewhateverobjectismounted360degrees,differentdevices(abook,cellphone,andAACdevice)mountedonasingletraycanberotatedintoposition,allowingapersontochangeactivitiesoraccessotheritems.
Thistechnologycanbeappliedoutsidetherehabilitationfield.
Thecommercialpotentialextendstootherareas,suchasmanufacturingandassemblysettings,doctors,dentists,surgeons,hospitalbeds,photographyandlightingapplications,ergonomicworkstations,nursinghomes,schools,laboratories,andhomeenter-tainmentsystems.
Theincreasedindependencegainedhasasubstantiallypositiveimpactonaperson'sself-reliance,theirworkandschoolperformance,andtheirsenseofcontrol.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-78SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIOregonMyScrivenerInnovativeTechnologytoEnhanceFineMotorFunctionObslap,Inc.
3130SummitSkyBoulevardEugene,OR97405obslap.
research@comcast.
netPrincipalInvestigator:SusanPalsboPublicContact:541/505-7591;Fax:541/505-759,*51ProjectNumber:H133S070082StartDate:October01,2007Length:24monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY07$262,565;FY08$233,594Abstract:Thisprojectbuildsuponcurrentresearch,development,andevaluationworkforaprototypespecialeducationinterventioncalledMyScrivener.
MyScrivenerisbasedonemergingresearchdemonstratingthatcomputer-assistedmotiontrainingcanstimulatethegrowthofneuralconnections.
Thesystemusesaforce-feedbackperipheralhapticunitattachedtoapersonalcomputerfor"senseoftouch"instructioninprinting,throughrepetitive-motion,forchildrenwithfine-motorskilldeficits.
DuringPhaseII,aprototypeisbeingdevelopedandclinicaltrialsconductedtodemonstratethefeasi-bilityofvisibleimprovementinthechild'sfinemotorandhandwritingskills.
MyScrivenerisanticipatedtosignificantlyimproveproprioceptiveawarenessandhence,writing,asmeasuredbyaccuracyandspeedforchildrenwithdevelopmentcoordinationdisordersarisingfromattentiondefi-cits,autism,mildcerebralpalsy,intellectualdisabilities,orunspecifiedlearningdisabilities.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-79SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIOregonWhyGoItAloneTheUseofPublicResourcestoEnhanceComputerAccessibilityforIndividualswithIntellectualDisabilitiesLifeTechnologies,LLCP.
O.
Box11306Eugene,OR97440foxl@ohsu.
eduPrincipalInvestigator:LynnFox503/725-3188PublicContact:503/725-3188ProjectNumber:H133S070096StartDate:October01,2007Length:24monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY07$244,206;FY08$253,510Abstract:ThePersonalAccessComputerKey(PACK)isamodifiedUniversalSerialBus(USB)designedtoaccommodateadaptivesoftwareandcanbelaunchedonpubliclyaccessible,updatedcomputers.
PhaseIIofthisprojectfocusesonresearchanddesigninaddressingsecurityconcernswhichmakePACKunusableonpubliccomputers(e.
g.
publiclibrarycomputers).
Twoadditionalapplications,adesktopgameandarehabilitationhomeworkprogram,areevaluatedacrossarangeofsettingsandparticipantswithcognitiveimpairments.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-80SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIOregonTelevisionAssistedPromotion(TAP):EnhancingRehabilitationOutcomeswithFamiliarTechnologyLifeTechnologies,LLCP.
O.
Box11306Eugene,OR97440rik@coglink.
comPrincipalInvestigator:RichardLemoncello541/915-8472PublicContact:541/915-8472;Fax:541/346-5373ProjectNumber:H133S080077StartDate:October01,2008Length:24monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY08$251,000Abstract:Basedonpreviousresearch,thisproject(1)refinestheTVAssistedPrompting(TAP)systemhardwareandsoftwarewhileexpandingitsutilitytonewrehabilitationdomains;and(2)continuestoemployanincrementaldesignprocess,partneringwithpatients,careproviders,andtherapiststodesignandevaluateauser-friendlysystem.
TheTVAssistedPrompting(TAP)systemoffersasimplealternativefordeliveringhomeprogramcontentthroughapatient'sownTV,promptingandmotivatingthemtoinitiateandcompletehometherapyprograms.
Inthissecondphase,theTAPsystemisrefinedintoaflexible,lessexpensivesystemforcommercialization.
Technicalandrehabilita-tiondevelopmentexpandsuponthecurrentsystemfeaturestodevelopuser-friendlyinterfacesforcliniciansandpatientswhichfacilitatetheuseoftheTAPsysteminavarietyofrehabilitationpro-grams.
TheTAPsystembenefitstherapidlygrowingpopulationofindividualswithcognitivedisabili-tiesinneedofon-goingrehabilitationtomaximizetheirprogresspost-injury.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-81SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIPennsylvaniaUniversalAccesstoPassengerRailMarshallElevatorCompany2015MaryStreetPittsburgh,PA15203Lvanroosmalen@marshallelevator.
comwww.
marshallelevator.
comPrincipalInvestigator:LindavanRoosmalen,PhDPublicContact:RobJamison412/431-1340ProjectNumber:H133S050136StartDate:October01,2005Length:24monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY05$249,825;FY06$249,925;FY07(No-costextensionthrough9/30/2008);FY08(No-costextensionthrough9/30/2009)Abstract:Freightrailsharestraintrackswithpassengerrailcars.
Thedifferencesincarwidthresultinhorizontalgapsbetweenpassengerrailcarsandboardingplatforms.
Thisgapcreatessafetyhazardsnotonlyforwheelchairusersbutalsofortheelderly,forindividualswithvisualimpairment,andevenforotherpassengersboardingrailcars.
ThisprojectcontinuestheresearchonthePhaseIprototypeQuickRamp.
PhaseIIactivitiesoptimizeQuickRamp'sstrength,durability,anddrivemecha-nisms;andevaluatethesystemforsafetyandusability.
Thistechnologyprovidesauniversalsolutiontotherailaccessproblemandsolvesplatform-to-railcaraccessforallpotentialrailpassengersinclud-ingindividualsusingwheeledmobility,children,individualswithvisualimpairment,andtheelderly.
Additionally,iteliminatesrailpersonnelassistanceforindividualswithdisabilitiesboardingorexitingtrains,ensuringpassengerindependenceforalltrainriders.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-82SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIPennsylvaniaLowVisionLime:SolutionforLowVisionMusicianstoRead,Perform,Write,andPrintMusicNotationDancingDotsBrailleMusicTechnology,L.
P.
1754QuarryLane,P.
O.
Box927ValleyForge,PA19482info@dancingdots.
comwww.
dancingdots.
comPrincipalInvestigator:WilliamMcCannPublicContact:610/783-6692ProjectNumber:H133S070089StartDate:October01,2007Length:24monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY07$250,150;FY08$249,865Abstract:ThisprojectevaluatesanddefinestheLimenotationsoftware,aself-contained,musicreadingandwritingsystemthatallowslowvisionmusicianstoindependentlyaccomplishtypicaltasksimportanttoperformersandcomposerswithnormalvision.
Itenablesperformersandcomposerswithlowvisiontoread/performandwrite/revisenotation,includingaccessibleeditingandprinting.
Specifi-cally,thesystemallowsformagnificationthatisupto10timestheoriginalimage;displaysmagnifiednotationonaflat-panelmonitormountedonamusicstandusingacombinationofautomaticanduser-controlledscrolling;addsspecializedmagnificationofmusicnotation,acustomscrollingmode,usercontrolofcolorsandcontrast;integratesatouchtabletandstylusofmanualmarkup;andexpandstheimplementationofMusicXMLimport/exporttofacilitateexchangewithcommercialnotationsoftware.
Projectgoalsinclude:(1)refiningandcompletingcontinuousscrollingdisplayoptions;(2)completingLime'sintegratedscoreenlargementandlowvisionfeatureset;(3)finalizingconfigurationandscript-ingofthird-partymagnificationutilities;(4)measuringeffectivenessofnewfeatureswithaselectcross-sectionofmusicianswithlowvision;(5)developingmarkupoptionforhandwritingannotationsonscores;(6)expandingMusicXMLimport/exportcapability;and(7)measuringeffectivenesswithaselectcross-sectionofmusicianswithlowvision.
NIDRRProgramDirectoryFY2008-TechnologyforAccessandFunction3-83SmallBusinessInnovationResearch(SBIR),PhaseIISmallBusinessInnovationResearch(SBIR),PhaseIIUtahWirelessEMGPreampandImprovedMountingSystemMotionControl,Inc.
115NorthWrightBrothersDriveSaltLakeCity,UT84116harold@utaharm.
comwww.
utaharm.
comPrincipalInvestigator:HaroldSearsPublicContact:801/326-3434;Fax:801/978-0848ProjectNumber:H133S070084StartDate:October01,2007Length:24monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY07$257,065;FY08$242,935Abstract:Thisprojectdevelopsasmall,waterproof,WirelessEMGPreampsensorformyoelectricarmprostheses.
Thewaterproofsensortransmitsadigitalsignalviaawirelesslink,eliminatingmanyofthewiresandconnectorsassociatedwitharmprostheses,andallowingconnectiontomodernroll-ongeltypeliners(whichmaintainconsistentandintimatecontactwiththewearer'sskin).
TheWirelessEMGPreampsensorisdesignedforusewithpopularmountingtechniques,andimprovesthecontactofelectrodeswiththeskin,reducesthewiresthattheprosthetistmustinstallinsidethesocket,andthroughdigitalsignalprocessing,reducestheinterferencefromrapidly-growingcausesofEMGsignalproblems,thuscreatingabenefitforboththewearersandprosthetists.
TheWirelessEMGPreampsystemenhancesthepracticalityofmyoelectricarmfittingsbyreducingbreakdowns,andtherebyincreasingthereliabilityoftheday-to-daywearer'scontrolofthearmprosthesis.
ContentsRehabilitationResearchandTrainingCenters(RRTCs)3DisabilityandRehabilitationResearchProjects15FieldInitiatedProjects(FIPs)20SmallBusinessInnovationResearch(SBIR),PhaseI.
37ParticipationandCommunityLivingNIDRR'sfocusonparticipationfollowsthestatedpurposeofindependentlivingprogramstopromoteaphilosophyofindependentliving,includingaphilosophyofconsumercontrol,peersupport,self-help,self-determination,equalaccess,andindividualandsystemadvocacy,inordertomaximizetheleadership,empowerment,independence,andproductivityofindividualswithdisabilities,andtheintegrationandfullinclusionofindividualswithdisabilitiesintothemainstreamofAmericansociety.
NIDRRsponsorsresearchtoimproveknowledgeofindividual-andsocietal-levelfactorsthatmayserveasbarriersto,orfacilitatorsof,participationamongallpeoplewithdisabilities.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-3RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)CaliforniaRehabilitationResearchandTrainingCenteronPersonalAssistanceServicesUniversityofCalifornia,SanFranciscoDepartmentofSocialandBehavioralSciences3333CaliforniaStreet,Suite455SanFrancisco,CA94118-0612pas@ucsf.
eduwww.
pascenter.
orgPrincipalInvestigator:CharleneHarrington,PhD,RN415/476-4030PublicContact:866/727-9577;415/502-7190(V);415/502-5216(TTY);Fax:415/476-6552ProjectNumber:H133B031102StartDate:July01,2003Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY03$900,000;FY04$900,000;FY05$900,000;FY06$900,000;FY07$900,000;FY08(No-costextensionthrough6/30/2009)Abstract:Thisprojectprovidesresearch,training,dissemination,andtechnicalassistanceonissuesofpersonalassistanceservices(PAS)intheUnitedStates.
Centerprojectsfocuson:(1)therelationshipbetweenformalandinformalPASandcaregivingsupport,andtheroleofATincomplementingPAS;(2)policiesandprograms,barriers,andnewmodelsforPASinthehomeandcommunity;(3)workforcedevelopment,recruitment,retention,andbenefits;and(4)workplacePASmodelsthateliminatebarrierstoformalandinformalPASandATatwork.
TheCenterisbasedattheUniversityofCalifornia,SanFrancisco,andincludestheTopekaIndependentLivingResourceCenter,InfoUse,theParaprofessionalHealthcareInstitute,theInstitutefortheFutureofAgingServices,aswellasfacultymembersattheUniversityofMaryland,BaltimoreCountyPolicySciencesGraduateProgram,theWestVirginiaUniversityJobAccommodationNetwork,andtheUniversityofMichigan'sInstituteofGerontologyandtheDepartmentHealthManagementandPolicy.
ABlueRibbonAdvisoryCommit-teeofPASusers,disabilityadvocates,businessleaders,independentlivingcenterleaders,andacadem-icsprovidesguidancetotheproject.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-4RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)CaliforniaPersonalAssistanceServices(PAS)inthe21stCenturyUniversityofCalifornia,SanFrancisco3333CaliforniaStreet,Suite455SanFrancisco,CA94118-0612pas@ucsf.
eduwww.
pascenter.
orgPrincipalInvestigator:CharleneHarrington,PhD,RN415/476-4030PublicContact:866/727-9577;415/502-7190(V);415/502-5216(TTY);Fax:415/476-6552ProjectNumber:H133B080002StartDate:October01,2008Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY08$850,000Abstract:Thisrehabilitationresearchandtrainingcenterfocuseson:(1)improvingaccesstoPersonalAssistanceServices(PAS)byindividualswithdisabilities;(2)improvingtheworkforcetosupportindividualswithdisabilities;and(3)understandingthecomplexitiesoftheeconomicsofPAS.
Thisproject:(1)analyzestrendsinthemetandunmetneedsforPASintheUnitedStates,andthechangingdemographicsofthePASpopulation,andmakesnationalandstateprojectsofneed;(2)investigatestherelationshipbetweenneedandeconomicstatusforworkingageandoldergroups;(3)tracksandanalyzestrendsinPASparticipants,services,andexpendituresandfederalandstateOlmstead-relatedinitiativestoexpandPAS;(4)identifiesstatePASpoliciesandbarrierstomeetingtheneedforPAS;and(5)analyzesstatePASinterventionstrategiesandfactorswhichimpactthesuccessofexpandingPASservices.
Additionally,thisprojectdevelopshealthpromotionandeducationaltools,supports,andinterventionstoimprovethehealthofcaregiversandPASusers;addressestheneedsofchildrenandtheirfamilycaregiversthroughfocusedresearchontheimpactoffamilycaregivingonemployment;andexaminestheneedsandsupportsforagingminoritycaregiversandtheamountandtypeofcaregivingprovidedbyfamilyorfriends.
Moreover,thisprojectgathersandmakesavailableexistingstrategies,anddevelopsamodelapproachforemergencyPAS.
WhilemonitoringandanalyzingtrendsanddemographicsofpaidPASworkforce,thisprojectidentifiesandtracksstatestrategiestoimprovePASworkerwagesandbenefits;monitorsstatetrendsinthenumberanddiversityofPASworkers,theircompensation,turnover,andvacancies;andevaluatestheeffectivenessofstateefforts.
ThisprojectalsoidentifiesandmakesavailablecomprehensiveinformationaboutdevelopmentsinstatetrainingrequirementsforPASworkersandevaluationoftheseprograms;collectsandanalyzesprimarydataonworkplacePAS,AT,andemploymentsupports;andanalyzesbarrierstoemploymentamongMedicaidPASbeneficiariesandwhetherATlessenstheneedforPAS.
Finally,theRRTCanalyzestheroleoftaxlawsthataffectreimbursementforPAS.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-5RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)FloridaRehabilitationResearchandTrainingCenterforChildren'sMentalHealthUniversityofSouthFloridaFloridaMentalHealthInstitute13301BruceB.
DownsBoulevardMHC2335Tampa,FL33612-3807kutash@fmhi.
usf.
edurtckids.
fmhi.
usf.
eduPrincipalInvestigator:RobertFriedman,PhD813/974-4640PublicContact:KristaKutash,PhD813/974-4661(V);Fax:813/974-6257ProjectNumber:H133B040024StartDate:October01,2004Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY04$835,000;FY05$835,000;FY06$801,190;FY07$785,400;FY08$750,400Abstract:TheResearchandTrainingCenterChildren'sMentalHealthconductsanintegratedsetofresearchprojectsdesigned,intheshortrun,toenhanceknowledgeabouteffectiveimplementationofsystemsofcare,and,inthelongrun,tomakeitpossibleforchildrenwithseriousemotionaldistur-bancestolive,learn,work,andthriveintheirowncommunities.
TheCenterhasdevelopedatheoryoffactorsthatcontributetoeffectiveimplementation;withinthattheoryisastrongemphasisontheimportanceofunderstandingfromasystemicperspectivetheinterrelationshipbetweenthedifferentfactors,andtheirrelationshiptothecommunitycultureandcontextinwhichaservicedeliverysystemexists.
TheCenterhasasetofsixinterconnectedresearchprojectsthatusebothquantitativeandqualitativemethods,andareholisticintheirfocus,tofurthertestanddevelopitstheory.
TheCentertranslatesnewknowledgefromresearchintochangeinpolicyandpracticethroughatargetedprogramoftraining,consultation,technicalassistance,publication,anddissemination.
Tosupporttheseefforts,theCentermaintainsdisseminationpartnershipswitharangeoforganizationscommittedtohelppresentresearchfindingsinformatswell-suitedforkeyaudiencesofstateandlocalpolicymakers,familyorganizations,researchers,andrepresentativesofrelatedservicesectors.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-6RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)IllinoisRehabilitationResearchandTrainingCenterforHealthandFunctionAcrosstheLifespanofIndividualswithIntellectualandDevelopmentalDisabilitiesUniversityofIllinoisatChicagoDepartmentofDisabilityandHumanDevelopmentMC626CollegeofAppliedHealthSciences1640RooseveltRoadChicago,IL60608-6904rrtcamr@uic.
eduwww.
rrtcadd.
orgPrincipalInvestigator:TamarHeller,PhD312/413-1647PublicContact:AlanFactor,AssociateDirector800/996-8845(V);312/413-1520(V);312/413-0453(TTY);Fax:312/413-1630ProjectNumber:H133B080009StartDate:October01,2008Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$849,996Abstract:Thisprojectprovidesabeneficialimpactonthehealthandfunctionofadultswithintellec-tualanddevelopmentaldisabilities(I/DD)andtheirfamiliesovertheirlifespanthroughacoordinatedsetofresearch,training,technicalassistance,anddisseminationactivities.
Projectgoalsinclude:(1)improvinghealthandfunctionofadultswithI/DD;(2)enhancingconsumer-directedhomeandcom-munity-basedlong-termcare;(3)reducingenvironmentalbarrierstohealthandcommunityparticipa-tion;and(4)developinganimprovedinstrumenttomeasurehealthandfunctioninpersonswithI/DDtofacilitateassessmentofoutcomesinhealthpromotioninterventions.
Projectsrelatingtothepromo-tionofhealthandfunctioninclude:(1)examinationofriskfactorsandage-relatedchangesinhealthstatusforadultswithvaryingneuro-developmentalconditions;(2)cohortstudyofhealthbehaviorsonhealthandfunction,andinterventionstoimprovebalanceandpreventfallsforpeoplewithI/DD;and(3)innovativeapproachestocommunity-basedhealthpromotionforpeoplewithI/DD.
ThisRRTCenhancescaregivingsupportsandconsumerdirectionthroughresearchonhiringpracticesinconsumerdirection,interventionstoimproveconsumerdirectedservices,andfamilysupportinterventionstoimprovethehealthofminorityfamilies.
Additionally,thisprojectdevelopsandteststoolsusedinmeasuringtheeffectivenessandefficiencyofhome-basedsupportsandinmeasuringthecognitive,social,andphysicalaccessibilityofenvironmentsforpeoplewithI/DD.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-7RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)KansasRehabilitationResearchandTrainingCenteronPoliciesAffectingFamiliesofChildrenwithDisabilitiesUniversityofKansasCenterforResearch,Inc.
BeachCenteronDisabilityHaworthHall,Room31361200SunnysideAvenueLawrence,KS66045-7534turnbull@ku.
eduwww.
beachcenter.
orgPrincipalInvestigator:H.
R.
Turnbull,LLM;AnnTurnbull,EdDPublicContact:H.
R.
Turnbull,LLM785/864-7600;Fax:785/864-7605ProjectNumber:H133B031133StartDate:November01,2003Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY03$749,951;FY04$749,960;FY05$749,997;FY06$749,899;FY07$749,930;FY08(No-costextensionthrough1/31/2009)Abstract:Thiscenterconductseightresearchprojectsontheeffectsofthepoliciesofgovernments,systems,networks,andagenciesonthefamilyqualityoflifeandcommunityintegration(FQOL/FCI)offamilieswhohavechildrenwithdevelopmentaldisabilitiesandemotional-behavioraldisabilitiesorboth.
Researchersidentifyfourtargetpopulations:families,providers,policy-leaders,andnetworks(allatthefederal,state,andlocallevels).
Earlyinterventionandconsumercontroloffundingaretwopolicychallengesthroughwhichtheeffectsofpoliciesonfamiliescanbeunderstood.
Foreachpolicychallenge,researchersinquireintowhethertheapplicablefederalandstatepoliciesandpractices,andtheapplicablenetworkpolicies,advanceFQOL/FCI;whetherthepoliciesacrosseducation,socialservices,andhealthcarearemutuallyconsistentwitheachotherandadvanceFQOL/FCI;andwhetherthepracticesofagenciesinthosesystemsadvanceFQOL/FCI.
Thecenter'sanalyticalframeworkholdsthatthecoreconceptsshapepolicies,policiesshapeservices,policiesandservicesshouldbecoordinatedanddeliveredthroughpartnerships.
EnhancedFQOL/FCIoccurswhenthereiscoherenceamongcoreconcepts,coordinatedpoliciesdeliveredthroughpartnerships,andcoordinatedservicesdeliveredthroughpartnerships;andinfluencingfactorsmustinvariablybetakenintoaccount.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-8RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)KansasRehabilitationResearchandTrainingCenteronMeasurementandInterdependenceinCommunityLiving(RRTC/MICL)TheUniversityofKansasResearchandTrainingCenteronIndependentLiving1000SunnysideAvenueRoom4089DoleCenterLawrence,KS66045-7555rtcil@ku.
eduwww.
rtcil.
orgPrincipalInvestigator:GlenW.
White,PhD785/864-4095PublicContact:PamWilits785/864-4095(V);785/864-0706(TTY);Fax:785/864-5063ProjectNumber:H133B060018StartDate:October01,2006Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY06$649,839;FY07$649,908;FY08$649,686Abstract:Thegoalofthisprojectistoincreasetheindependenceandparticipationofpeoplewithdisabilitiesintheircommunitiesthroughthedevelopmentandimplementationofscientificallysound,theoreticallydriven,andevidence-basedinterventions.
Researchersaccomplishthisthroughsixcoreprojects.
Tworesearchprojects,oneoncommunityparticipationandasecondoneconomicutility,involvedevelopmentoftheory-drivenmeasurementtools.
Theremainingfourprojectsincludetheapplicationofthesemeasurementtoolsaspartoftheirmethodsandprocedures.
Twooftheseprojectsareinterventionsandtwodevelopmodelassessments.
Thefirstassessmentprojectusessecondaryanalysistodevelopandimplementamodelforassessingtheeconomicutilityandhealth-relatedout-comesofparticipantsenrolledinHomeandCommunity-BasedService(HCBS)waivers.
Thesecondassessmentprojectevaluatestheeffectsofdifferentindependentlivingadvocacy-servicemodelstodeterminethecomparativeeffectivenessofdifferentmodelsinincreasingcommunityparticipation.
Thefirstinterventionprojectexaminestheeffectivenessofpersonalassistanceservicesandenhancedtrainingtoincreaseconsumerparticipationinthecommunity.
Thesecondinterventionprojectisamultisitestudythatexaminestheeffectsofaconsumer-ledgrassrootsapproachinidentifyingandremovingbarrierstoincreasecommunityparticipation.
Together,theseprojectsrepresentacomprehen-sive,integrated,androbustsetofactivitiesthatrecognizethat"disability"isaninteractionbetweenthecharacteristicsofanindividualandhisorherenvironment.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-9RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)MassachusettsRehabilitationResearchandTrainingCenterforRecoveryandRecoveryOrientedPsychiatricRehabilitationforPersonswithLong-TermMentalIllnessBostonUniversityCenterforPsychiatricRehabilitation940CommonwealthAvenueWestBoston,MA02215-1203mfarkas@bu.
edu;erogers@bu.
eduwww.
bu.
edu/cpr/research/ongoing/rtc2009/index.
htmlPrincipalInvestigator:MarianneFarkas,ScD;E.
SallyRogers,ScD617/353-3549PublicContact:E.
SallyRogers,ScD617/353-3549;Fax:617/353-7700ProjectNumber:H133B040026StartDate:November01,2004Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY04$750,000;FY05$750,000;FY06$750,000;FY07$750,000;FY08$750,000Abstract:Thisprojectfocusesontheconceptsanddimensionsofrecoveryandthevariousfactorsthatinhibitandfacilitaterecoveryfromlong-termmentalillnessbyacomprehensiveandmeritorioussetofresearchprojectsandtraining,technicalassistance,anddisseminationactivities.
Theresearchandthetraining,dissemination,andtechnicalassistanceprogramsareorganizedintothefollowingthreeprogrammaticareasofinvestigationanddevelopment:conceptsanddimensionsofrecovery,factorsenhancingrecovery,andfactorsinhibitingrecovery.
Theresearchprojectsaredesignedtohaveanimpactonthefieldatmultiplelevels,includingthepersonnellevelaswellastheprogramandsystemlevels.
Researchprojectsuseaparticipatoryresearchprocesswithsignificantinputfromconsumersandotherstakeholders,andculminateindissemination,training,ortechnicalassistanceactivitiestomaximizetheinputoftheresearchprogram.
TheTraining,Dissemination,andTechnicalAssistance(TDTA)projectsaredesignedtoprovideexposure,experience,andexpertiselevelsofknowledgetransfer.
TheTDTAprogramproducesnewtechnologiesinrecoveryandpsychiatricrehabilitation,andincreasesthelikelihoodthatresearchers,serviceproviders,andothersusethecumulativeknowledgedevelopedbytheRRTC.
TheRRTCistiedtogetherbyitsprogrammaticfocusonthethreespecificcoreareas,strengthenedbytheuseofappropriateresearchstrategies,andassistedbyavigorousprogramoftraining,technicalassistance,anddisseminationactivitiesdesignedtomaximizetheimpactoftheRRTCatalllevelsinthefieldofpsychiatricrehabilitation.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-10RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)MassachusettsOpeningDoorsforChildrenwithDisabilitiesandSpecialHealthCareNeedsChildren'sHospitalInstituteforCommunityInclusion300LongwoodAvenueBoston,MA02115-5737www.
communityinclusion.
orgPrincipalInvestigator:JudithS.
Palfrey,MDPublicContact:617/355-4661;Fax:617/730-0633ProjectNumber:H133B060012StartDate:October01,2005Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY06$800,000;FY07$800,000;FY08$800,000Abstract:Thisrehabilitationresearchandtrainingcenteronchildrenwithdisabilitieswhohavespecialhealthcareneeds(CYDS)teststheeffectivenessoftwointensiveinterventions,integratedtransitionplanningandcommunityparticipationinrecreationandfitness,anddemonstratestheviabil-ityofascreeningtooltopromoteaccesstoservicesandsupportsfortraditionallyunderservedcommu-nities.
ResearchactivitiesincludetwointerventionprojectsthatuserandomizedcontrolleddesignstoimprovetheeducationalandrecreationalactivitiesofCYDSandademonstrationprojecttoimprovetheearlyidentificationofCYDSfromtraditionallyunderservedcommunities.
ResearchStudy1investigatestheuseofaregionalinteragencyteamthatintegratesinnovativepracticesineducation,socialservices,andmedicalsupportfortransitionagedstudents.
ResearchStudy2buildsoffofinno-vativepracticesinrecreationandvolunteertrainingtoexamineamodelthatintegratesCYDSintocommunityrecreationactivities.
ResearchStudy3modelstheintegrationofareliablescreeningmechanismintotheflowofactivityatabusy,urbanneighborhoodhealthcenter.
TheRRTCisacollaborationoftheMassachusettsConsortiumforChildrenwithSpecialHealthCareNeeds,theParentAdvocacyCoalitionforEducationalRights(PACER),andsixmulticulturalcommunity-basedorganizationsthatservetraditionallyunderrepresentedcommunities.
RRTCstaffandcollaboratorsincludenationallyandinternationallyknownexpertsinpediatrics,nursing,publicpolicy,education,familyadvocacy,rehabilitation,andcommunityorganizing.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-11RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)MinnesotaRehabilitationResearchandTrainingCenterforCommunityLivingandEmploymentforIndividualswithIntellectualandDevelopmentalDisabilitiesUniversityofMinnesotaTheInstituteonCommunityIntegration204PatteeHall,150PillsburyDrive,SEMinneapolis,MN55455lakin001@umn.
edurtc.
umn.
eduPrincipalInvestigator:CharlieLakin,PhD612/624-5005PublicContact:SherylLarson,PhD612/625-6024;Fax:612/625-6619ProjectNumber:H133B080005StartDate:October01,2008Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$850,000Abstract:TheRehabilitationResearchTrainingCenterforCommunityLiving(RRTC/CL)conductsinterventionandoutcomeresearchtogenerateandshareknowledgeaboutcommunityliving,employ-ment,andself-determination.
Throughcompressivestudyofindividualoutcomesofarandomsampleof10,300adultswithintellectualanddevelopmentaldisabilities(I/DD)from15geographicallyrepre-sentativestates,thisprojectstudiesinterventionprogramsinself-determination,relationshipbuilding,employment,anddirectsupportprofessionaltraining,andthefirstUSandlargestevertrialoftheactivesupportmodeloforganizationalandstaffsupportofpersonswithI/DD.
Additionally,thisstudyidentifiesandevaluatesexistinginstrumentationincommunitylivingoutcomestudies.
TheRRTC/CLconductsquantitativeintervention,outcomestudies,andresearchsynthesisonthestateofknowledgeandpracticeandcasestudiesoforganizationsexemplifyingtransformationsandpracticeneedsinordertoachievefullinclusion.
Throughtraining,conferences,andtechnicalassistancethisprojectprovidesanintegrated"intramural"trainingprogramthatdevelopsa"nextgeneration"ofskilleddisabilityresearchersandprofessionals.
ThisincludestheRRTC/CLCollegeofDirectSupport,anational,multimedia,interactive,Internet-basedtrainingprogram.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-12RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)OregonRehabilitationResearchandTrainingCenterforCommunityIntegrationforIndividualswithDisabilities,StrengtheningFamilyandYouthParticipationinChildandAdolescentMentalHealthServicesPortlandStateUniversityRegionalResearchInstituteSchoolofSocialWorkP.
O.
Box751Portland,OR97207-0751janetw@pdx.
eduwww.
rtc.
pdx.
eduPrincipalInvestigator:BarbaraFriesen,PhD503/725-4166PublicContact:DonnaFleming,CenterManager503/725-8313;Fax:503/725-4180ProjectNumber:H133B040038StartDate:October01,2004Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY04$835,000;FY05$835,000;FY06$801,190;FY07$785,400;FY08$750,400Abstract:Thisprojectconductsresearch,training,andtechnicalassistanceactivitiestostudyandpromoteeffective,community-based,culturallycompetent,family-centered,individualized,andstrength-basedservicesforchildrenandyouthwithemotionalorbehavioraldisordersandtheirfami-lies.
Projectsinclude:(1)"CommunityIntegration(CI)ofTransition-AgeYouth,"designedtogainunderstandingofCIandrelatedconceptsfromtheperspectivesoftransition-ageyouth,youngadults,andcaregivers;(2)"TransitiontoIndependence:OutcomesofSchool-BasedSupportforYouthwithMentalHealthandDevelopmentalDisabilities"isevaluatingapilotschool-basedprogramthatassistsparticipantsage18-21withmentalhealthanddevelopmentaldisabilitiestosuccessfullytransitiontoemploymentandappropriatelevelsofindependentlivinganduseofadultsocialservices;(3)"AchieveMyPlan(AMP)"[previouslyPartnershipsinIndividualizedPlanning]developsaninterventiontoincreaseyouthandfamilymemberparticipationintheindividualizedserviceplanningprocess,aconceptualframeworkforunderstandingrecoveryinchildren'smentalhealth,andwaystoreducestigma;(4)"Work-LifeIntegration"addressesCIforadultcaregiversofchildrenandyouthwithemotionaldisorders,specificallyaroundmaintainingemployment.
Itisdesignedtoinfluencehumanresourceprofessionals'practice,andaimstoreducestigmaandincreaseorganizations'familyfriendli-ness;(5)"TransformingTransitionstoKindergarten"focusesonthepreschool-kindergartentransitionforyoungchildrenwithchallengingbehaviors.
Itdevelopsandtestsaninterventionpromotingchildren'ssuccessfulschoolentrywhileempoweringcaregivers;(6)"Practice-BasedEvidence:Build-ingEffectivenessfromtheGroundUp,"conductsacasestudyinpartnershipwithaNativeAmericanyouthorganizationandtheNationalIndianChildWelfareAssociation,andaddressestheneedtostudypracticesthatarebelievedtobehelpful,butforwhichlittleevidenceexists.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-13RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)PennsylvaniaRehabilitationResearchandTrainingCenteronParticipationandCommunityLivingofIndividualswithPsychiatricDisabilitiesUniversityofPennsylvaniaCollaborativeonCommunityIntegration3535MarketStreet,3rdFloor-CMHPSRPhiladelphia,PA19104pennrrtc@mail.
med.
upenn.
eduwww.
upennrrtc.
orgPrincipalInvestigator:MarkSalzer,PhD215/349-8483PublicContact:KatyKaplan215/746-6713;Fax:215/349-8715ProjectNumber:H133B080029StartDate:October01,2008Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY08$850,000Abstract:Theresearchofthiscenterfocusesontwocoreareas:(1)Enhancingthecapacityofindi-vidualsandsystemstomaximizeparticipationandcommunitylivingthroughtheadvancementoftheory,measures,methods,andinterventionknowledge,withafocusonCentersforIndependentLiving,specific(education,parenting,mentalhealthcare)andbroadparticipationdomains,andeffortstoaddressdisparitiesinunderstudiedareas;and(2)increasedincorporationofmentalhealthresearchfindingsintopracticeandpolicythroughsystematicreviews,partneringwithmultiplestakeholderstoadvancetheuseofknowledge,andprovidingtraining,dissemination,andtechnicalassistancetochangebehaviorsandpracticesofkeystakeholders.
ThegoalofthisCenteristoensure,inthewakeoftheOlmsteaddecision,thatindividualswithpsychiatricdisabilitiesnotonlymovefrominstitutionalcaretomoreintegratedsettingsbutalsoarefreetochoosetoparticipateinawiderangeofrolesintheircommunities.
ThisCentercapitalizesuponlongstandingcollaborationsamongthreePhiladelphia-basedcentralpartners,experiencederivedfrompreviousresearch,andtrustingandmutualpartnershipswithmultiplestakeholders.
Theseguaranteetheproject'sabilitytoconductresearchthatadvancesknowledgethatmeetstheneedsofend-usersandeffectivelytranslatethisknowledgeintoinnovative,nextgenerationpoliciesandpractices.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-14RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)TexasRehabilitationandTrainingCenteronCommunityIntegrationofPersonswithTBITheInstituteforRehabilitationandResearch(TIRR)BrainInjuryResearchCenter2455SouthBraeswoodHouston,TX77030asander@bcm.
tmc.
edu;struchen@bcm.
tmc.
eduwww.
tbicommunity.
orgPrincipalInvestigator:AngelleM.
Sander,PhD;MargaretStruchen,PhD;PublicContact:713/383-5644(Sander);713/383-5645(Struchen)ProjectNumber:H133B031117StartDate:November01,2003Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY03$799,960;FY04$799,968;FY05$799,936;FY06$799,450;FY07$799,259;FY08(No-costextensionthrough10/31/2009)Abstract:Theresearchprogramofthisprojectincludes:developmentandevaluationofasocialnetworkmentoringprogram;aninvestigationofracial/ethnicdifferencesinacceptanceofdisability,communityintegrationneeds,barriers,andsupports;adistancelearningprogramtotrainfamilymem-bersinruralareasasparaprofessionals;arandomizedclinicaltrialtoassesstheeffectivenessofabriefsubstanceabuseintervention;aqualitativeexplorationofintimacyfollowingTBI;andastudyinvesti-gatingtheroleofsocialcommunicationabilitiesandenvironmentalfactorsonsocialintegration.
Trainingprojectsinclude:aNationalInformation,EducationalResources,Dissemination,andTechni-calAssistanceCenterfortheCommunityIntegrationofIndividualswithTBI;developmentofeduca-tionalmaterialsforincreasingcommunityawarenessofTBIandreducingattitudinalbarriers;adoptionofasocialactionnetworkprogramfromdisabilitystudiesforimprovingpositiveidentity;partneringwithartistsinthecommunitytoimplementaCenterforCreativeExpressionsforPersonswithTBI;trainingofcommunityhealthcareprofessionalsinthecommunityintegrationneedsofpersonswithTBI;arehabilitationfellowshipincommunityintegrationofpersonswithTBI;developmentofeduca-tionalmaterialstotrainstatevocationalcounselorsintheneedsofpersonswithTBI;andastate-of-the-scienceconferenceandbookoncommunityintegration.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-15DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsCaliforniaNationalCenterforParentswithDisabilitiesandTheirFamiliesThroughtheLookingGlass2198SixthStreet,Suite100Berkeley,CA94710-2204tlg@lookingglass.
orgwww.
lookingglass.
orgPrincipalInvestigator:MeganKirshbaum,PhD;PaulPreston,PhD;PublicContact:510/848-1112(V);Fax:510/848-4445ProjectNumber:H133A080034StartDate:October01,2008Length:36monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY08$500,000Abstract:TheNationalCenterforParentswithDisabilitiesandTheirFamiliestargetsthreenationalpopulations:parentswithdiversedisabilities,familymembers,andserviceprovidersandtraineeswhohaveaparticularlycriticalimpactonparents.
TheCenter'sactivitiestargetthemostcriticalissuesfacingparentswithdisabilitiesandtheirfamilies:custodyandparentalevaluations;familyrolesandpersonalassistance;paratransit;andinterventionwithparentswithcognitiveandintellectualdisabili-ties.
Theoverallgoalofthisprojectistoimprovethequalityoflifeamongparentswithdisabilitiesandtheirfamilies.
Theoverallgoalismetbyincorporatingtheproject'sresearch,development,training,andtechnicalassistanceanddisseminationactivitiesintofourprojectobjectives.
Thefourprojectobjectivesare:(1)increasethenationalavailabilityofaccessibleanddisabilityappropriateresourcesforparentswithdiversedisabilitiesandtheirfamilies;(2)increaseknowledgeofparentingwithadisabilityamongdiverseparents,familymembers,andproviders;(3)increaseinformedpracticeandinformeddecisionsregardingparentingwithadisabilityamongproviders;and(4)increasestateandlocallegislativeandpolicychangestodecreasediscriminationagainstparentswithdisabilitiesandtheirchildren.
TheCenterconductseightseparateresearchandeightnewdevelopmentprojects;providestechnicalassistancetoatleast8,000parentsandproviders;conductsfocusedtrainingsto12,000diverseparentsandproviders;andnationallydisseminatesatleast200,000projectmaterialsandproductsconsolidatedfromCenteractivitiesaswellasfromotherNIDRR-fundedprojects.
Centeractivitiesareguidedbythefollowingbasicprinciples:(1)utilitytoparents,familymembers,andserviceproviders;(2)socialchangetoimprovethelivesofparentswithdisabilitiesandtheirfamilies;(3)consumerinvolvementasintegraltoallactivities;(4)valueofconsumer-basedknowledge;(5)valueofdiverseperspectives;(6)useofmultipleandaccessibleformats;and(7)disseminationandutilizationasinteractiveandongoingprocesses.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-16DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsLouisianaEvacuationMethodologyandUnderstandingBehaviorofPersonswithDisabilitiesinDisasters:ABlueprintforEmergencyPlanningSolutionsLouisianaStateUniversityStephensonDisasterManagementInstitute1103PatrickF.
TaylorHallBatonRouge,LA70803bgerber@lsu.
eduwww.
bus.
lsu.
edu/students/news/stories/2008.
08.
25_evac_method.
aspdept=69PrincipalInvestigator:BrianJ.
Gerber,PhD225/578-0238PublicContact:225/578-0238;Fax:225/578-8741ProjectNumber:H133A080069StartDate:October01,2008Length:24monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY08$449,963Abstract:Thisprojectquantifiesandinterpretstheuniquechallengesofpersonswithdisabilitiesandotherspecialneedsduringemergency/disasterevacuationsinordertoimprovethemanagementofsuchevents.
Participatingresearchinstitutionsgathersdataonpersonswithdisabilities/specialneedswhohaveeitherrecentlypersonallyevacuatedfromanemergency/disastersituation,havebeeninorproxi-matetoarecentdisasterevacuation,orwhoresideinanareathathasnotexperiencedarecentevacua-tion,butmightfaceatypeofhazardthatcouldpromptanevacuationsometimeinthefuture.
Theprojectgathersdatainordertoevaluatethecurrentstateofevacuationpreparednessintheareaofspecial/functionalneedsbylocalgovernmentandkeynon-governmentalserviceprovidersacrosstheUnitedStates.
Theinvestigatorsintegratethesetwodatasourcestocreateguidelinesthatkeydecision-makers,bothgovernmentalandnongovernmental,canusetoimproveexistingevacuationplanstoaccountforthedisabilities/specialneedspublicbaseduponurban,suburban,andruralmodels.
Like-wise,theprojectalsoproducesguidelinesforincorporatingadisability/specialneedselementinemer-gencyevacuationtrainingandexercisesalongwithdelineatingfutureemergencypreparednesseduca-tionalneedswithintheindividualswithdisabilitiescommunity.
Resultsandproductsofthestudyaredisseminatedtoserviceproviders,emergencymanagers,firstresponders,otherplanners,andpolicymakersacrosstheUnitedStates.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-17DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsMassachusettsACenteronPostsecondaryEducationforStudentswithIntellectualDisabilitiesUniversityofMassachusettsBostonInstituteonCommunityInclusion100MorrisseyBoulevardBoston,MA02125www.
thinkcollege.
netPrincipalInvestigator:DebraHart,PhD;MegGrigal,PhD617/590-8082PublicContact:DebraHart,PhD617/590-8082ProjectNumber:H133A080042StartDate:October01,2008Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$500,000Abstract:Thiscenterconductsresearchanddisseminatesinformationonpromisingpracticesthatsupportindividualswithintellectualdisabilities(ID)toaccessinclusivepostsecondaryeducationresultinginimprovedlong-termindependentlivingandemploymentoutcomes.
Additionally,theCenteraddressesthegapsinknowledgeabouttheparticipationofindividualsage13-26withintellec-tualdisabilitiesinpostsecondaryeducationprogramsby:(1)conductinganationalsurveytocollectnewnationaldatafrompostsecondaryprogramsthatservestudentswithIDtoidentifykeycharacteris-tics(e.
g.
,recruitment,retention,collegecourseaccess,useofaccommodations)andpromisingprac-ticesofpostsecondaryeducationprogramsatcommunitycolleges,vocational-technicalschools,andfour-yearcollegesthatcurrentlyservestudentswithID,includingdualenrollmentprograms;(2)conductingasecondaryanalysisusingthreeexistingnationallongitudinaldatasetstodeterminewhethervariationsineducational,vocational,employment,andindependentlivingoutcomesforstudentswithIDareassociatedwithparticipationindifferenttypesofpostsecondaryeducationpro-grams;(3)compilingexistinganddevelopingnewtechnicalassistancematerials,includingreplicablepromisingpracticesforpostsecondaryeducationinstitutionsthataredevelopingneworexpandingexistingservicesandprogramsforstudentswithID;and(4)disseminatingbothnewandexistingtechnicalassistanceandinformationalmaterialsinpartnershipwithexistingtrainingandtechnicalassistanceproviders,includingtheNIDRRResearchandDisseminationCenters,toallkeystakehold-ersincludingstudentswithIDandtheirfamilies.
TheInstituteforCommunityInclusionworksincollaborationwithTransCen,Inc.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-18DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewYorkAssetAccumulationandEconomicSelf-Sufficiency(AAESS)SyracuseUniversityOfficeofSponsoredPrograms113BrowneHallSyracuse,NY13244PrincipalInvestigator:MichaelMorrisPublicContact:202/296-2046;Address:1667KSt.
,NW,Suite640,;Washington,DC20006;Fax:202/296-2046ProjectNumber:H133A080014StartDate:October01,2008Length:36monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY08$300,000Abstract:BuildinguponresearchconductedbytheAssetAccumulationandTaxPolicyProject(AATPP),thecurrent)projectprovidesunderstandingofeconomicstatusofworkingageadultswithdisabilities,andpolicyandsystembarrierstoassetaccumulationandcommunityparticipation.
Twointerventionstudiescontributeindividualandsystemlevelknowledgeimpactingassetaccumulation,economicself-sufficiency,andcommunityparticipationofpersonswithdisabilities.
InterventionOne:Resource,Employment,Assets,andLearning(REAL)opportunitystudy,isanexperimentaldesignbuildingonresearchintheIRSBenchmarkStudyofTaxpayerswithDisabilities(2006)andlongitudi-naloutcomeresearchfindingsinAATPP.
REALevaluatestheimpactofassetbuildingstrategiesoneconomicstatusandcommunityparticipationof360individualswithdisabilitiesduringtheprojectin2pilotsites.
InterventionTwo:BuildingEconomicSuccessTogether(BEST)Accountsstudy,offersacomprehensivemenuofaccessible,user-friendly,affordableproductsandservicesinresponsetoevidencefromAATPP.
BESTisofferedbycreditunionsin6culturallyandgeographicallydiverselocationsto1,800individualswithdiversedisabilitiesanddemographicssuchasage,gender,family,minoritystatus,andrecentservicedisability.
Dataanalysisisusedtoidentifyincreaseduseofassetbuildingstrategies,reduceddependenceonpaydayandpredatorylenders,reductionofdebt,changesineconomicstatus,andsavings.
Thematicanalysisoffocusgroupsandinterviewsproduceknowledgeonindividualandsystemfactorsthatdiminishorfacilitateopportunitiestoadvanceassetaccumulation,self-sufficiency,andcommunityparticipationmeasuresofsocial,civic,andeconomicactivities.
AAESScontinuescollaborationwiththeIRStodesignandconductanupdatedandextendedbench-markstudyin2009tofurtherresearchoneconomicstatusoftaxpayersdifferentiatedbydisabilityanddemographicstohelpdesignfutureresearch.
Theprojectincludescreationanddisseminationofassetdevelopmentandfinancialliteracycurriculatocomplementotherpoverty-alleviationstrategies.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-19DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsOregonSchoolTransition&re-EntryProgram(STEP):SystematicHospital-to-SchoolTransitionforStudentswithTraumaticBrainInjuryWesternOregonUniversityTheTeachingResearchInstitute99West10thAvenue,Suite370Eugene,OR97401glanga@wou.
eduwww.
tr.
wou.
edu/STEP/PrincipalInvestigator:AnnE.
Glang,PhDPublicContact:541/346-0594;Fax:541/346-0599ProjectNumber:H133A060075StartDate:October01,2006Length:60monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY06$300,000;FY07$300,000;FY08$300,000Abstract:Duetotheabsenceofeffectiveproceduresfortransitioningstudentsfromhospitaltoschool,manystudentswithtraumaticbraininjury(TBI)whoneedspecializedservicesarenotidentifiedforspecialeducation.
Thislackofidentificationcanleadtoinappropriateservices,andperpetuatesthelackofawarenessofTBIamongschoolprofessionals.
Thisprojectutilizesasystematicapproachtodeveloping,testing,anddisseminatingacomprehensivehospital-schooltransitionintervention,calledtheSchoolTransition&re-EntryProgram(STEP).
ResearchersevaluatetheeffectivenessoftheSTEPintervention,whichincludesreferraltoaschool-basedtransitionspecialist,long-termtrackingofstudentperformance,andparentadvocacytraining,inathree-phaseresearchplan.
FollowingthePhaseIdevelopmentperiodinvolvingfocusgroupsandinterviewswithparents,hospitalstaff,andschoolpersonnel,andayear-longpilottest(PhaseII),theprojectevaluatestheeffectivenessofthetransitioninterventioninamulti-siterandomizedcontroltrial(PhaseIII).
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-20FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)GeorgiaAssessingSafetyRiskafterTraumaticBrainInjuryShepherdCenter2020PeachtreeRoad,NWAtlanta,GA30309ron_seel@shepherd.
orgPrincipalInvestigator:RonaldT.
Seel,PhDPublicContact:404/387-5625;Fax:404/350-7596ProjectNumber:H133G080153StartDate:October01,2008Length:36monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY08$199,896Abstract:Thisprojectdevelopsastandardized,ecologicallyvalidmeasureofsafetyriskinpersonsaged16andolderwhohavesustainedmildcomplicated,moderate,orseveretraumaticbraininjury(TBI).
AnecologicallysensitiveitembankisdevelopedtoassessthewiderangeofpotentialsafetyissuesthatpersonswithTBIfaceineverydaylivingsituations.
FocusgroupsareconductedwithprimarystakeholdersincludingpersonswithTBI,familycaregivers,andserviceproviderstoestablishcontentvalidity.
ItemResponseTheory(IRT)methodologies,specificallyRaschanalysis,areusedtocalibrateitemsalongahierarchymatchingitemdifficultytothesafetyabilitiesofpersonswithTBI.
BasedonRaschanalyses,thesafetymeasureforpersonswithTBIgeneratessafetyriskprobabilityscoresonfourscalestheorizedtobecausativefactors:physicalcapacity,cognitivecapacity,perceivedsusceptibilitytoharm(judgment),andself-regulation(impulsivity).
EcologicalandprognosticvalidityisestablishedusingfamilyjournalsinwhichunsafebehaviorofpersonswithTBIisrecordedandrated.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-21FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)IllinoisPromotingHealth,Empowerment,andCommunityIntegrationAmongPeoplewithHIV/AIDS:TheMedicationAdherenceProgramStudy-II(MAPS-2)UniversityofIllinoisatChicago104SouthMichiganAvenue,Suite900Chicago,IL60603-5902razzano@psych.
uic.
eduwww.
psych.
uic.
edu/mhsrpPrincipalInvestigator:LisaA.
Razzano,PhDPublicContact:312/422-8180,ext.
20;Fax:312/422-0740ProjectNumber:H133G060224StartDate:November01,2006Length:36monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY06$147,341;FY07$145,861;FY08$146,908Abstract:TheCenteronMentalHealthServicesResearchandPolicyattheUniversityofIllinoisatChicago(UIC)iscollaboratingwiththeChicagoDepartmentofPublicHealth(CDPH)toassistpeoplewithHIV/AIDSlivehealthier,moreproductivelives.
ClientsatCDPHclinicsareofferedtheopportunitytoparticipateinaninnovativeprogramdesignedtoimproveadherencetomedicationandtreatmentregimens,promotephysicalhealthandwellness,cultivateconsumerempowerment,andfostercommunityintegration.
Thisprogramexaminestheeffectsofpeer-deliveredmedicationsupportservicescomparedtoservicesdeliveredbytraditionalmedicationspecialistsamongpeoplelivingwithHIV/AIDS.
TheadditionofthepeercomponentbuildsuponthesuccessoftheUICMedicationAdherenceProgramStudy-I(MAPS-1),athree-year,NIDRR-fundedinvestigationoftheimpactofspecializedmedicationadherenceservicesprovidedtopeoplelivingwithHIV/AIDS.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-22FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)KansasCombiningTechnologiestoMaximizeOutcomes:TelemedicineandOnlineTrainingProgramforParentsofChildrenwithAutismUniversityofKansasSchiefelbuschInstituteforLifeSpanStudiesJuniperGardensChildren'sProject650MinnesotaAvenue,2ndFloorKansasCity,KS66101lhpowell@ku.
eduwww.
jgcp.
ku.
eduPrincipalInvestigator:LindaS.
Heitzman-Powell,PhDPublicContact:913/321-3143;Fax:913/371-8522ProjectNumber:H133G060238StartDate:October01,2006Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY06$149,824;FY07$149,965;FY08$149,923Abstract:Thisprojectseekstoaddresschallengesfacedbygeographicallyremotefamiliesinaccess-ingeffectiveinterventionservicesfortheiryoungchildrendiagnosedwithanautismspectrumdisorder(ASD).
Inordertoaddressthischallenge,theprojectisdevelopingaprogramthatusesaresearch-to-practiceoutreachtrainingmodeltoteachparentsofchildrenwithanASDhowtoimplementempiri-cally-basedinterventionswiththeirchildren.
Thedevelopmentofthisprogramisproceedingacrossfourphases:(1)initialcontentandsystemdevelopmentandinformationalfocusgroups;(2)formativeevaluation;(3)quasi-experimentalassessmentandsystemrefinement;and(4)finalanalysisandprepa-rationfordissemination.
InPhase3,parentsofchildrenwithautismareusingonlinetutorialstolearngeneralinformationandconceptsrelatedtoaninterventionortreatmentprotocol,followedbyatelemedicineclinicinterventionsession.
Duringtheinterventionsessionparentspracticethetechniquesdiscussedinthatweek'sonlinetutorialswiththeirchildwhilereceivingguidanceandimmediatefeedbackfromtrainedinterventioncoaches.
Programeffectivenessisbeingevaluatedbasedonlevelofparentalknowledgeandskillfluency,childlevelofdisability(e.
g.
theICF)andbehavior,andreportedfamilyqualityoflife.
Inaddition,participantscompleteexitsurveysandinterviewstoelicitfeedbackregardinghowtheprogramcouldbeimprovedandanyproblemstheyexperienced.
Interventioncomponentsareintroducedtostudyfamiliesinamultiplebaselinedesign.
Inordertoassessthesustainabilityoftheproject,followingPhase3,sixadditionalfamiliesarerecruitedtoparticipateintheoutreachtelemedicineclinicfromacommunity-basedtelemedicinesite(Phase4).
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-23FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MassachusettsInstrumenttoMeasureRecovery-PromotingCompetenceAmongProvidersServingSpanishSpeakingMentalHealthConsumersBostonUniversitySargentCollegeofHealthandRehabilitationSciencesCenterforPsychiatricRehabilitation940CommonwealthAvenue,WestBoston,MA02215-1203erogers@bu.
eduPrincipalInvestigator:E.
SallyRogers,PhDPublicContact:617/353-3549;Fax:617/353-7700ProjectNumber:H133G060071StartDate:November01,2006Length:36monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY06$149,735;FY07$149,908;FY08$149,953Abstract:ThepurposeofthisprojectistoculturallyadapttheRecoveryPromotingRelationshipsScale(RPRS)foruseinfourSpanish-speakingcultures(thatis,individualsofMexican,PuertoRican,Cuban,andCentralandLatinAmericandescent).
Theresultingscaleisaninterventionblueprintdesignedtocutacrossspecificdisciplinesandservices,tospecifytheskillsandstrategiesneededtopromoterecovery,andtoimprovetheexpertiseofprovidersservingSpanish-speakingconsumers.
Thisprocesshelpsaddressthecriticalneedforrecovery-orientedmentalhealthservicesthatareresearchbased,culturallyinformed,andgroundedintheperspectivesofLatinoswithpsychiatricdisabilities.
Thus,thegoalsofthisprojectare:(1)toidentifyandrefinetherecovery-orientedcompetenciesre-quiredofprovidersservingmentalhealthconsumersoffourSpanishspeakingcultures;(2)toadapttheRPRStobeculturallyrelevanttomentalhealthconsumersoffourSpanish-speakingcultures;(3)topilottestthepsychometricpropertiesoftheRPRS;(4)totesttheclinicalutilityoftheRPRS;and(5)tosystematicallydevelopimplicationsforpractice,trainingofpractitioners,andpolicy,andbroadlydisseminatetheresults.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-24FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MassachusettsDevelopmentofMeasuresofParticipationandEnvironmentforChildrenwithDisabilitiesBostonUniversitySargentCollegeofHealthandRehabilitationSciences635CommonwealthAvenueBoston,MA02215wjcoster@bu.
eduwww.
bu.
edu/kidsworldPrincipalInvestigator:WendyJ.
Coster,PhD617/353-7518PublicContact:617/353-7518;Fax:617/353-2926ProjectNumber:H133G070140StartDate:October01,2007Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY07$195,233;FY08$195,360Abstract:Thisprojectdevelopsnewmeasuresofparticipationandenvironmentforchildrenandyouthwithdisabilitiesusinginputfromfamiliesandtheirchildrenwithdisabilities.
ThenewmeasuresaredevelopedusingItemResponseTheory(IRT)toensurethatthemeasuresdevelopedareinterpret-able,provideintervalleveldataforanalyses,andarevalidforthespecifiedpurposes.
Theprojecthasthreemajorphases.
ThefirstphaseisadevelopmentphasethatsynthesizesresultsfrompriorresearchonparticipationandenvironmentandanalysisoftheICFwithinformationderivedfromfocusgroupsofcaregiversandchildrenandyouthwithavarietyofdisabilitiestoidentifymeaningfuldomainsanditemcontentareasforthenewmeasures.
Initialitempoolsaredeveloped,subjectedtoexpertreviewandcognitivetesting,andthenfield-testedwithbothcaregiverandchildrespondentstoidentifyanysignificantproblemswithscalingorcontentcoverageusingIRTmethods.
Afterrevisionsbasedontheseresults,alargerfieldstudyisconductedusingbothpaperandweb-basedsurveyformatstoexaminethepropertiesofthereviseditempools.
Theultimateaimistodeveloplargepoolsofpartici-pationandenvironmentitemsthatcansupportsurveyandcomputer-adaptivetestingmeasuresthatarelinkedonacommonscale.
Thisapproachallowsflexibledevelopmentofalternativeformswhosederivedscorescanbecompareddirectlywithoneanother,e.
g.
sothatresultsfromdifferentstudiesaremoreeasilycompared.
Thepresentprojectdevelopsandtests(usingsimulationstudies)shortsurveyformsfromtheinitialpoolsforimmediateuse.
Theresearchisacollaborativeeffortbetweenexperi-encedinvestigatorsintheUnitedStatesandCanada.
Thiscollaborationfacilitatesdevelopmentofbroadlyapplicablemeasuresbytakingintoaccountpotentialdifferencesinenvironmentandparticipa-tionacrossverydifferenthealthcaredeliverysystems.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-25FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MichiganWorkEnvironmentandQualityofLifeOutcomes:AComparisonoftheExperiencesofFormalandInformalCaregiversofPersonswithSpinalCordInjuriesWayneStateUniversityRehabilitationInstituteofMichiganResearchDepartment261MackBoulevard,Room520Detroit,MI48201cduggan@dmc.
orgPrincipalInvestigator:ColetteDuggan,PhD;DanielaRistova-Trendov,MD;313/745-1070PublicContact:313/745-9735;Fax:313/745-1197ProjectNumber:H133G060267StartDate:December01,2006Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY06$149,989;FY07$149,950;FY08$149,994Abstract:Formanypersonswithaspinalcordinjury(SCI),assistancewithactivitiesofdailylivingandinstrumentalactivitiesofdailylivingiscrucialtotheirlong-termsurvival,independence,andproductivity.
ThegoalofthisqualitativeinvestigationistogainabetterunderstandingoftheworkenvironmentsofSCIcaregiversandthemicro-processesatworkthatproduceimpactsoncaregivers'appraisalsofburden,stress,physicalhealth,andpsychosocialwell-being.
Theobjectiveofthestudyistodocumentfromacontextuallifeperspective,thelinkagesbetweenthespecificdemandsofcaregivinganditshealthconsequences.
ThestudytargetsthreegroupsofSCIcaregivers:unpaid(family)caregivers,paidcaregivershireddirectlybytheconsumer,andpaidemployeesofhomehealthcareagencies.
Thespecificaimsofthestudyareto:(1)conductacomparativestudyofthesethreecaregivergroups;(2)analyzethisinformationwithspecificattentiontotheconnectionsbetweenaspectsoftheworkenvironment,stress,physicalhealth,andpsychosocialwell-being,and(3)dissemi-natethisinformationtoSCIconsumersandtheirfamilies,rehabilitationresearchers,andclinicians,andtoagencieschargedwiththeresponsibilityofestablishinghealthcarepolicies.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-26FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MontanaCIL-BasedAbuseEducationandSafetyPlanningProgramforWomenwithDisabilitiesUniversityofMontanaTheUniversityofMontanaRuralInstitute:ACenterforExcellenceinDisabilityResearch,EducationandServices52CorbinHallMissoula,MT59812-7056rhughes@ruralinstitute.
umt.
eduPrincipalInvestigator:RosemaryHughes,PhDPublicContact:406/243-2898;Fax:406/243-4730ProjectNumber:H133G070196StartDate:October01,2007Length:36monthsNIDRROfficer:JoyceY.
CaldwellNIDRRFunding:FY07$199,996;FY08$199,985Abstract:Thepurposeofthisprojectistodevelopandevaluateanaccessible,consumer-drivenabuseeducationandsafetyplanningprogramforwomenwithdisabilities.
Theconceptualmodelfortheprogramidentifiesknowledgeaboutsafetyplanning,self-efficacy,andsocialconnectednessasthreeprotectivefactorsthatinfluencesafetybehaviorsandsafetyitself.
Drawingonboththestrengthsoftraditional,community-baseddomesticviolenceandsexualassaultprogramsandthecumulativeresearchfindingsonthedynamicsandprevalenceofviolenceagainstwomenwithdisabilities,thisprogramoffersanintegratedapproachformeetingthegender-specificanddisability-sensitivepreven-tionneedsofwomenwithdisabilities.
Theinterventionisimplementedwithwomenwithdisabilitiesrecruitedfromthetencentersofindependentliving(CILs)andrandomlyassignedtoagroupthatwillparticipateineithertheon-goingCILservicesplustheabuseeducationandsafetyplanningprogram,ortoagroupreceivingtheon-goingCILservicesonly.
Theprogramconsistsofsix2.
5-hourweeklysessionsusingacurriculumthatincludestopicssuchasself-advocacy,natureofabuseandviolence,safetyplanningstrategies,andhealthyrelationships.
Allsessionsincludeself-efficacytraining,goal-setting,problem-solving,andinteractiveactivitiestoencouragemutualsupport.
ACILstaffmemberfromeachsiteparticipatesinacomprehensiveleadertrainingprogramconductedbytheprojectper-sonnel.
Thisisthefirstrandomized,controlledevaluationofaviolencepreventiongroupprogramdesignedtomeettheuniqueneedsofwomenwithdisabilities.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-27FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NewYorkControlledStudyofAffectRecognitionTrainingforIndividualswithTraumaticBrainInjuryUniversityatBuffaloTheStateUniversityofNewYorkDepartmentofPsychiatryG96FarberHall3435MainStreetBuffalo,NY14214PrincipalInvestigator:BarryS.
Willer,PhD;MachikoTomita,PhD;PublicContact:BarryS.
Willer,PhD716/829-2300;Fax:716/829-2300ProjectNumber:H133G080043StartDate:October01,2008Length:36monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY08$200,000Abstract:Thegoalofthisprojectistocomparetheeffectsoftwoinnovativetrainingprogramsonimprovingvariousaspectsofemotionrecognitioninpersonswithtraumaticbraininjury(TBI),througharandomizedcontrolledtrial.
IthasbeendemonstratedthatindividualswithTBIoftenhavedifficultyusingfacialexpressionsandsocialcontextstodeterminehowsomeoneisfeeling.
Itisapparentthatanimpairmentofthisnaturecouldconsiderablyinfluencethebehavioralandsocialoutcomesforindi-vidualswithTBI.
Inthisstudy,participantsarerandomlyassignedtooneofthreegroups:FacialAffectRecognitiontraining,StoriesofEmotionalInferencetraining,or(notreatment)ComputerTrainingGroup.
Trainingoccursthreetimesaweekforthreeweeks.
Specificoutcomemeasuresinclude:(1)facialaffectrecognition(staticphotos);(2)affectrecognitionandsocialinferencefromvideovignettes;(3)emotionalinferenceforhypotheticalsituations;(4)levelofempathy;and(5)socialbehavior.
Cognitiveperformanceandlevelofdepressionarecovariates.
Inaddition,vocalaffectrecognition(audiotape)andcommunityintegrationarealsoexplored.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-28FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NorthCarolinaDailyLivingandCommunitySkillsVideoGameforChildrenwithDevelopmentalDisabilitiesTheSandboxLearningCompany18801NauticalDrive,Suite206Cornelius,NC28031PrincipalInvestigator:AmyMaguirePublicContact:800/704-7815;Fax:877/562-2923ProjectNumber:H133G080151StartDate:October01,2008Length:36monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY08$199,175Abstract:Thisprojectdevelopsandevaluatesasimulationvideogametoteachchildrenwithdevelop-mentaldisabilities,includingautismandintellectualdisabilities,skillsforindependence.
Theprojectteacheschainedtasksinanengagingandeffectivegameformat.
Thissystemprovidesaninnovativeandinexpensivewaytoincreaseopportunitiesforinstructionwhileprovidingcorrectionprocedures,givingmultipleexemplars,monitoringprogress,andincludingclipsfromeachstudent'scommunity.
ThisprojectexpandsonthepreliminaryfindingsinaPhaseIstudytodevelopaneasytouse,eco-nomical,dailylivingskillsgamewhichbringsrealworldexperiencesandtreatmentintotheclassroomandhome.
Projectgoalsinclude:(1)toexpandonthesuccessfultechniquesdemonstratedinprelimi-narystudiestocreateafully-functionalgamewith24skills,(2)toverifythroughasinglesubjectdesign,specificallymultipleprobesacrossbehaviors,thatthesimulationvideogamealoneteachestheskillsto24childreninelementaryandmiddleschoolwithdevelopmentaldisabilities.
Ateamofeduca-tionalexperts,technologyexperts,andparentsofchildrenwithdisabilitiescollaborateontheprojecttoensuretheskillspresentedinthegamearetrulybeneficialtoindividualswithdevelopmentaldisabili-tiesandthetechnologyusedwillhavethegreatestreach.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-29FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NorthCarolinaImprovingRepresentativePayeeshipforPeoplewithPsychiatricDisabilitiesandtheirFamiliesDukeUniversitySchoolofMedicinePsychiatryandBehavioralSciencesDUMC3071Durham,NC27710eric.
elbogen@duke.
eduPrincipalInvestigator:EricElbogen,PhDPublicContact:919/682-8394ProjectNumber:H133G070058StartDate:October01,2007Length:36monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY07$198,669;FY08$199,187Abstract:Thisprojectevaluatesapilot-tested,stakeholder-informedinterventionthatisgroundedinprinciplesofpsychiatricrehabilitationandencouragesconsumerswithpsychiatricdisabilitiesandtheirfamilymemberstocollaboratewithintherepresentativepayeearrangement.
Representativepayees,mostlyfamilymembers,manageSocialSecurityAdministrationfundsformorethanonemillionpeoplewithpsychiatricdisabilities.
Althoughstudiesshowpayeeshipcanbeusedcoercively,fosterdependency,reduceworkincentives,andleadtofamilyconflictandevenviolence,therehasbeenlittlesystematicresearchonhowtolowerthesesignificantbarrierstocommunityintegration.
ThisprojectteststheCollaborativeRepresentativePayeeshipintervention,abrief,four-sessioninterventionthataimstofacilitateacooperativeconsumer-payeerelationship,increaseaccurateknowledgeaboutrepresentativepayeeship,promotecollaborativemoneymanagementandeffectivebudgeting,andpreparemutuallydevelopedplansforcarryingoutthepayeeshipinthefuture.
Thelong-termgoalistopromoterecoveryamongadultswithpsychiatricdisabilitieswhohavepayeesbyreducingdownsidesassociatedwithwhathasbeencalled"thenation'slargestguardianshipsystem.
"NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-30FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)OhioTeenOnlineProblemSolvingforPediatricBrainInjuryChildren'sHospitalMedicalCenterPediatricRehabilitation3333BurnetAvenue;MLC4009Cincinnati,OH45229-3039shari.
wade@cchmc.
orgPrincipalInvestigator:ShariL.
Wade,PhD513/636-7480PublicContact:Fax:513/636-7360ProjectNumber:H133G050239StartDate:October01,2005Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY05$149,629;FY06$148,735;FY07$149,569;FY08(No-costextensionthrough9/30/2009)Abstract:Traumaticbraininjury(TBI)inadolescentsisasignificantstressorforboththeteenandhisorherfamily.
Existinginterventionsarerareanddistanceandfinancescanrestrictaccesstotreatment.
ThecurrentprojectaddressestheseneedsbydevelopingandpilotinganinnovativeonlineinterventionforadolescentswithTBI:TeenOnlineProblemSolving(TOPS).
TheTOPSinterventionisadapted,basedoninputfromteenswithTBI,fromarecentlydevelopedonlineprogramforschool-agedchil-drenwithTBIandtheirfamilies.
TheprojectteststheTOPSinterventioninarandomizedtrialcompar-ingtheeffectsofusualcaretoTOPSonthefollowingoutcomes:(1)adolescentproblem-solvingandcommunicationskills;(2)adolescentemotional/behavioraladjustment;(3)parentburdenanddistress;and(4)parent-teenconflict.
TOPSmakesuseofemergingtechnologytoaddressthemultifacetedneedsofteensfollowingTBIwiththegoalofimprovingtheteen'ssocialandemotionalfunctioning,therebyenablinghimorhertobetternegotiatethecomplextransitiontoadulthoodandindependentfunctioning.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-31FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)OhioWebTherapytoImproveOutcomesAfterTraumaticBrainInjuryinYoungChildrenChildren'sHospitalMedicalCenterPediatricRehabilitation3333BurnetAvenue;MLC4009Cincinnati,OH45229-3039shari.
wade@cchmc.
orgPrincipalInvestigator:ShariL.
Wade,PhDPublicContact:513/636-7480;Fax:513/636-7360ProjectNumber:H133G060167StartDate:December01,2006Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY06$149,379;FY07$147,834;FY08$146,762Abstract:Thisprojectadaptsonlinefamilyproblemsolvingforfamiliesofyoungchildrenwithtraumaticbraininjury(TBI)(PositiveParentingPlusor3P)andcomparesittoanInternetresourcecomparisongroup(IRC)inarandomizedclinicaltrial.
Participantsincludefamiliesof40children,aged3-8years,whoexperiencedamoderatetosevereTBI1-12monthspriortostudyparticipation.
In3P,atrainedcounselorguidesfamiliesthroughasix-monthstructuredonlineparentingskills-buildingprogramviaawebsiteandone-on-onevideoconferencesessions.
TheIRCgroupreceivescomputers,high-speedInternetaccess,andlinkstobraininjuryinformationandresources,butnotthe3Pwebsitecontentorsynchronoussessions.
Primaryoutcomes,tobeassessedpre-andpost-treatment,includeparentingbehaviors(e.
g.
,warmth,responsiveness,andcriticism)andparent-childcommunication.
Secondaryoutcomesincludechildbehaviorproblemsandparentpsychologicaldistress.
Theoverarchinggoalofthisprojectistoreducetheriskoflong-termbehavioralproblemsanddisabilityinyoungchildrenfollowingTBIbyequippingparentswithincreasedcopingandparentingskillsinacosteffectivefashion.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-32FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)OhioDevelopingCollegeCampusesasTransitionSettingsforStudentswithSevereandMultipleDisabilitiesAged18-21KentStateUniversityCollegeandGraduateSchoolofEducation,Health&HumanServicesEducationalFoundationsandSpecialPrograms405WhiteHallKent,OH44242PrincipalInvestigator:RobertFlexer,PhDPublicContact:330/672-0584;Fax:330/672-2512ProjectNumber:H133G080158StartDate:October01,2008Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY08$199,973Abstract:Thisprojectisdesignedtoaddressneedforsustainable,community-basedprogramsforstudentswithsevereandmultipledisabilities(SMD)aged18-21byusingthecollegecampusasatransitionsetting.
ItalsoaddressestheneedforSMDtransitionprofessionalstoobtainskillsintheareasofperson-centeredplanning,communitypartnering,andinteragencycollaboration.
StudentswithSMDareenrolledinacollege-levelcontinuingeducationclassonlifeplanningprovidedbyKentState'sCareerServicesCenter.
Auniversityinstructordirectsthisclass,andcollaboratingSMDprofes-sionalsandKentStatestudentsreceiveservicelearningcreditsforprovidingperson-centeredplanningandindividualizedcampusactivitiesfortheparticipatingstudentswithSMD.
Theseplanningandcampusactivitiesarecoordinatedwithstudents'individualeducationandemploymentplans(IEPsandIPEs,respectively).
StudentswithSMDarealsoenrolledinatleastonecollege-levelclasseachsemes-tertoassurethattheyhaveaccesstoallofKentState'sservicesincludingcareerplanning,healthandwellness,studentemployment,extracurricularactivities,andlife-longlearningopportunities.
Toachievetheseoutcomes,projectstaffpursuefiveobjectives:(1)developcollegeclassesfor30studentswithSMDthatengagepracticingandprospectivetransitionprofessionalsintheirlifeandcareerplanning;(2)developandimplementdailycampusactivitiesfor30studentswithSMDbasedontheirlifeplans;(3)engagestudentswithSMD,theirteachers,universityfaculty,andothertransitionstake-holdersinevaluating,refining,andsupportingthismodel;(4)developmaterialsforreplicationofthismodel;and(5)disseminateandreplicatethisprojectatotheruniversities.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-33FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)OregonDevelopmentofaSafety-PlanningToolforMenwithDisabilitiesPortlandStateUniversityRegionalResearchInstitutePOBox751Portland,OR97201oschwald@pdx.
eduPrincipalInvestigator:MaryOschwald,PhDPublicContact:503/725-9602ProjectNumber:H133G070190StartDate:October01,2007Length:36monthsNIDRROfficer:JoyceY.
CaldwellNIDRRFunding:FY07$200,000;FY08$200,000Abstract:Inordertoplanforsafety,menwithdisabilities(MWD)needtobeawareofoptionsandhaveaccesstoresponsivecommunityresourcesthatsupporthealing,supportindependence,andassistwiththereportingofviolence.
Thepurposeofthisprojectistodevelopagender-appropriateAudioComputer-AssistedSelf-Interview(A-CASI)toensureMWDhavetheskillsnecessaryforeffectivesafetyplanning.
Themajorgoalsoftheprojectareto:(1)workcloselywithMWDtoidentifysafety-planningoptionsfordealingwithabuse;and(2)developandpilotanA-CASISafety-PlanningToolthatbuildsuponcurrentresearchfindingsontheabuseexperiencesofmenwithdisabilitiesandprevi-ousdevelopmentofasimilarA-CASIprogramforwomenwithdisabilities.
TheprojectisconductedbytheRegionalResearchInstituteatPortlandStateUniversityincollaborationwithTheRuralInsti-tuteatUniversityofMontana.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-34FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)OregonParent-InfantInteractionProject(PIIP)PortlandStateUniversityGraduateSchoolofEducation;SPEDP.
O.
Box751Portland,OR97207munsonl@pdx.
eduPrincipalInvestigator:LeslieJ.
Munson,PhD;RuthFalco,PhD;DavidAllen,PhDPublicContact:LeslieJ.
Munson,PhD503/725-4687;Fax:503/725-5599ProjectNumber:H133G080132StartDate:October01,2008Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY08$199,945Abstract:TheParent-InfantInteractionProject(PIIP)developsanevidence-basedcurriculumforimplementationbyparentswithintellectualdisabilitiesandtheirprofessionalorparaprofessionalcoachwithinnaturalenvironmentstoenhanceparent-infantinteractionandchilddevelopment.
GoalsofPIIPinclude:(1)developaresearch-basedcurriculum,coachingmodel,andtrainingmaterialsforusebyparentswithintellectualdisabilitiesandtheircoachesinacollaborativeprocesstoenhancetheparent-infantrelationshipandnurturechilddevelopment;(2)conductsinglesubjectstudiesoftheeffectsofPIIPcoachingmodel,curriculum,andtrainingmaterials,includingmultiple-baselinedesignstudiesacrossgoalsandthecollectionofadditionalqualitativedata;and(3)field-testandevaluatethecoach-ingmodel,curriculum,andtrainingmaterialsthroughamulti-methodstudyacrossthreedifferenttypesofearlychildhood/parentsupportprograms.
PartnersinPIIPincludeEarlyHeadStartandEarlyIntervention/EarlyChildhoodSpecialEducation,aswellasaprogramprovidingsupportsforparentswithintellectualdisabilities.
ThePIIPCoachingModelincorporatesinnovativestrategiesandappliestechnologythatisaccessibletoindividualswithintellectualdisabilities.
Innovativestrategiesincludeamodelforcoachingthatfocusesonself-determinationandempowermentofparentsasadvocatesanddecision-makersforthemselvesandtheirchild.
TheInfant-CaregiverInteractionScaleprovidesatooltoguidecollaborativeobservation,goal-setting,andcontinuousfeedbackforparentsandtheircoaches.
Theprojectdevelopsaccessibletechnology,includingaDVDofexamplesofinteractionactivitieswithvideo-modeling,foruseincoachingparentsastheylearnstrategiestoenhanceparent-infantinteractionwithindailyplayactivities.
Strategiesforplanningindividualizedaccommodations,suchaseasy-reading/pictureactivityschedulesandmenus,audioprompts,socialstories,andself-managementsystems,toaddressparent-childneedsareincludedinthecurriculum.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-35FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)TexasOutpatientSocialSkillsTrainingforDistressedAdolescentBurnSurvivorsUniversityofTexasMedicalBranch815MarketStreetGalveston,TX77550pblakene@utmb.
eduPrincipalInvestigator:JenniferL.
Perry409/770-6718PublicContact:409/770-6718;Fax:409/770-6718ProjectNumber:H133G050079StartDate:October01,2005Length:39monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY05$150,000;FY06$150,000;FY07$150,000;FY08(No-costextensionthrough12/31/2009)Abstract:Previousstudiessuggestthatasignificantnumberofsurvivorsofpediatricburninjurieshaveadiminishedqualityoflifeasyoungadults.
Basedonsociallearningtheoryandsupportedbyempiricaldata,socialskillsdeficitshavebeenidentifiedasamajorimpedimenttomaximumpsychoso-cialadjustmentformanywhohavesurvivedseriousburninjury;thisdeficitisaparticularhandicapasthechildprogressesthroughadolescence.
Apilotstudysuggeststhatafour-day,intensive,residentialsocialskillstrainingprogramwasofbenefittotroubledteenburnsurvivorsevenoneyearafterthetrainingprogramwascompleted.
Theresidentialformat,however,isexpensiveandimpractical.
Thisproject(1)cross-validatespreviousfindingsthatasocialskillstrainingprogramisbeneficial,i.
e.
resultsinimprovedsocialcompetenceand/ordiminishedbehavioralproblems,atone-yearpost-intervention;and(2)teststhehypothesisthatbeneficialeffectscanbemaintainedoramplifiedbymodifyingtheformatofthetrainingtoaschedulethatmorecloselyresemblestheusualoutpatientclinicalschedule.
Thegoalofthisprojectistodevelopandvalidateanefficientandrelativelyinexpensiveinterventionthatcanbeutilizednotonlybyburn-careteamsbutbyhealth-careprofessionalsinotherspecialtiesthatareconcernedwithassistingadolescentswhoarestigmatizedbymarredappearanceorfunctionalimpairmentrelatedtoamedicalcondition.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-36FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)TexasDevelopmentofanInternet-BasedSelf-EsteemInterventionforWomenwithDisabilitiesBaylorCollegeofMedicineCenterforResearchonWomenwithDisabilities1475WestGray,Suite165Houston,TX77019www.
bcm.
edu/crowd/PrincipalInvestigator:MargaretA.
Nosek,PhDPublicContact:713/523-0909;Fax:713/523-0466ProjectNumber:H133G080042StartDate:October01,2008Length:36monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY08$200,000Abstract:Thisprojectusesaninnovative,Internet-basedtechnologycalledSecondLife,a3-D,multi-uservirtualenvironment,todeliverself-esteemenhancementinterventionstowomenwithdisabilities.
Projectobjectivesinclude:(1)reviewingandrefiningpreviousself-esteemcurricula;(2)developingandtestingamethodologytoteachparticipantstonavigateSecondLife,andinteractwithotherindi-vidualsusingreal-timevoicedialogue;and(3)convertingtheself-esteemenhancementinterventionintoaformatthatusesreal-timevoicedialoguegroupinteractionsinSecondLife,supplementedwithon-screeninformationandillustrations.
ThisInternet-basedinterventionallowspeoplewithdisabilitiestoaccesssecuresystematiconlinehealthpromotionprogramsdesignedtoincreaseabilitytoself-managechronicconditionsanddisabilities,achieveimprovedhealthandmentalhealthoutcomes,andultimatelyachievefullparticipationintheircommunities.
NIDRRProgramDirectoryFY2008-ParticipationandCommunityLiving4-37SmallBusinessInnovationResearch(SBIR),PhaseISmallBusinessInnovationResearch(SBIR),PhaseIOregonContextAwareSelfManagementToolsforIndividualswithSignificantCognitiveDisabilitiesAssistechSystems,LLC99West10thAvenue,Suite397Eugene,OR97401tkeating@eugeneresearch.
orgPrincipalInvestigator:ThomasKeating,PhDPublicContact:541/342-3763;Fax:541/342-4310ProjectNumber:H133S080041StartDate:October01,2008Length:6monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY08$74,956Abstract:Thisprojecthastwogoals:(1)todevelopandevaluatethefeasibilityofintelligent,com-puter-basedself-managementandhouseholdmanagementapplicationsthatwouldimprovetheinde-pendentlivingcapacityofpersonswithcognitivedisabilities,and(2)toidentifyanagendaforfulldevelopmentofadeployablesysteminaPhase2project.
Intelligentmultimediacomputeragentsofferanuntappedresourcetoaugmentthefunctionalcognitiveabilityofindividualswithdisabilitiesincommunitylivingsettingswholackskillsforself-monitoringanddecision-makingandwhocannotusetext-basedsystemsorothercommercialpersonalmanagementsystemsduetotheircognitivecomplex-ity.
AssistechSystemsbuildsonpreviousworkinthedevelopmentofcognitivelyaccessiblelifeskillsapplicationsandrule-basedexpertsystemsforindependentlivingtodevelopalimitedfeatures,self-managementprototypeapplicationwithactivitymonitoringandtrackingtoolswithintegratedbehav-ioralrecognitioncapability.
Consumerswillnotonlybeabletotrackandactoninformationregardingpersonalcareandhouseholdmanagementactivitiessuchasbathingorgroceryshopping,butalsointeractwithintelligent,intuitive,graphicuserinterfaces.
Feasibilitytestingmethodsincludeamultiplebaselinestudyofthreepairsofconsumers/caregivers.
ContentsRehabilitationResearchandTrainingCenters(RRTCs)3FieldInitiatedProjects(FIPs)6DisabilityDemographicsTheultimategoalofNIDRR'sdisabilitydemographicseffortistogeneratenewinformationthatcanbeusedbyindividualswithdisabilities,serviceproviders,policymakers,andothersworkingtoidentifyandeliminatedisparitiesinemployment,participationandcommunityliving,andhealthandfunction.
NIDRRhaslongfundedstudiesthatminedatatoaddressthefullrangeofsocial,health,andeconomicfacetsofdisabilityandthatcomparefindingsacrossdatasources.
Therearesignificantcorrelateswithdisability,suchasaging;andthereareavarietyoflinksbetweendisabilityandotherfactors,includingculture,race,andethnicity.
NIDRRalsonurturesmethodologicalworkthataddressesidentifiedgapsindata,suchasthesparsemeasurementoftheinterfacebetweenindividualandenvironment.
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-3RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)IllinoisRehabilitationResearchandTrainingCenteronMeasuringRehabilitationOutcomesandEffectivenessFeinbergSchoolofMedicineNorthwesternUniversityCenterforRehabilitationOutcomesResearchRehabilitationInstituteofChicago345EastSuperiorStreetChicago,IL60611a-heinemann@northwestern.
eduwww.
ric.
org/research/outcomes/rrtc_projects.
phpPrincipalInvestigator:AllenW.
Heinemann,PhD312/238-2802PublicContact:TrudyMallinson,PhD312/238-1623;Fax:312/238-2383ProjectNumber:H133B040032StartDate:December01,2004Length:60monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY04$700,000;FY05$700,000;FY06$700,000;FY07$700,000;FY08$700,000Abstract:ThepurposeofthisRRTCistoprovidenationalleadershiponthefunctionalassessment,outcomes,andhealthpolicyissuesfacingthemedicalrehabilitationcommunityandthediversecon-sumersitseekstoserve.
TheCenterconductsresearch;hostsforumsfordiscussion;publishesinrehabilitation,healthpolicy,andconsumerliterature;trainsresearchersinrehabilitation-focusedhealthservicesresearch;anddisseminatesinformationtodiverseconsumer,provider,andacademicaudi-ences.
TheRRTC'sresearchseeksto(1)enablecomparisonoffunctionalstatusmeasuresacrosspost-acutesettingssoinformationcanbeprovidedtoconsumersandotherrehabilitationstakeholdersabouttheoutcomesandeffectivenessofvariouspost-acutecaresettings;(2)developaninnovativemeasureofcommunityparticipationinameaningful,reliable,andvalidmannerinordertobetterdescribethelong-termoutcomesofrehabilitationservices;(3)increasetheefficiencyofoutcomedatacollectionsomoreresourcescanbedirectedtopatientcare;and(4)examinehowformatandpresentationstyleinfluencespatientunderstandingofrehabilitationqualityoutcomeindicatorsinordertoprovideinfor-mationinwaysthatarehelpfulforconsumerswhenselectingrehabilitationservices.
Theprojectusesrecentdevelopmentsinitemresponsetheory,computeradaptivetesting,andstakeholderinputintestdevelopment,outcomesreporting,andqualityindicatorreporting.
Theexpectedoutcomesarearatio-nalbasisforprovisionofrehabilitationservicesinpost-acutecaresettings,increasedefficiencyofdatacollection,abettermeasureofcommunityparticipation,andoutcomereportingthatisresponsivetostakeholderneeds.
Disseminationactivitiesincludepost-graduateandpost-doctoraltrainingopportuni-ties,conferences,andawebsitethatprovidesinformationonmeasurementofrehabilitationoutcomesacrossthecontinuumofpost-acutesettings.
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-4RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)NewYorkRehabilitationResearchandTrainingCenteronDemographicsandStatisticsCornellUniversityIvesHall,Room331Ithaca,NY14853smb23@cornell.
eduwww.
disabilitystatistics.
orgPrincipalInvestigator:HarryKatz,PhD;SusanneBruyère,PhD;RichardBurkhauser,PhD;MelissaBjelland,PhD;607/255-9536PublicContact:SusanneBruyère,PhD607/255-9536(V);607/255-2891(TTY);Fax:607/255-3274ProjectNumber:H133B031111StartDate:December01,2003Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY03$750,000;FY04$750,000;FY05$750,000;FY06$750,000;FY07$750,000;FY08(No-costextensionthrough11/30/2009)Abstract:TheRRTConDemographicsandStatistics(CornellStatsRRTC)bridgesthedividebe-tweenthesourcesofdisabilitydataandtheusersofdisabilitystatistics.
Theprojectconductsresearchexploringthereliabilityofexistingdatasourcesandcollectionmethods,andstudiesthepotentialtoimprovecurrentandfuturedatacollectionefforts.
Inaddition,theprojectutilizesexistingdatasourcestoprovideacomprehensiveandreliablesetofstatistics,andincreaseaccesstoandunderstandingofhowstatisticscanbeusedeffectivelytosupportdecisionmaking.
CornellStatsRRTCworkswithkeyorganizationstodeterminetheirneedsandhelpsthemmaximizetheuseofdisabilitystatisticsintheirongoingeffortstoimprovethelivesofpeoplewithdisabilitiesandtheirfamilies.
AsmembersoftheCornellStatsRRTC,theAmericanAssociationofPeoplewithDisabilities,theCenterforanAcces-sibleSociety,andInfoUseprovidevitalexpertiseandresourcesneededtoreachtheusersofdisabilitydataandstatistics.
TheCornellStatsRRTCincludesresearchersfromCornellUniversity,MathematicaPolicyResearch,theUrbanInstitute,andtheInstituteforMatchingPeopleandTechnology,allofwhichbringextensiveexpertiseinworkingwithandcreatingsourcesofdisabilitydata.
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-5RehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)NewYorkRehabilitationResearchandTrainingCenteronDisabilityStatisticsandDemographicsSUNYResearchFoundation695ParkAvenueNewYork,NY10065joneil@hunter.
cuny.
eduPrincipalInvestigator:JohnO'Neill,PhDPublicContact:212/772-5188;Fax:212/772-5188ProjectNumber:H133B080012StartDate:October01,2008Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY08$850,000Abstract:TheRehabilitationResearchandTrainingCenteronDisabilityStatisticsandDemographics(StatsRRTC)facilitatesevidence-baseddecisionmakinginmanydifferentserviceandpolicyarenastobenefitpersonswithdisabilities,leadingtoimprovededucationandemploymentoutcomes.
StatsRRTCisacollaborativeeffortthatbringstogethertheleadinvestigatorsfromthreecurrentRRTCs:theStatsRRTC,EmploymentServiceSystemRRTC,andEmploymentPolicyRRTC;andpartnersthemwithleadersinthedisabilityadvocacycommunityfromtheAmericanAssociationofPeoplewithDisabilitiesandleadersinvocationalrehabilitationfromtheCouncilofStateAdministra-torsofVocationalRehabilitation.
Projectactivitiesinclude:(1)producingasetofguidestoandmeta-analysesofexistingsurveyandadministrativedatasources,(2)conductingexperimentstotestalterna-tivesurveymethods,(3)expandinganddistributingtheAnnualDisabilityStatusReports,(4)expandingandrevisingtheSourceGuideforSurveyingPeoplewithDisabilities,(5)providinganinformationandreferraltechnicalassistanceservice,(6)providingstylizedstatisticalestimatesandmethodologicalconsultingforkeystakeholdersasafollow-uptooutreachandtrainingactivities,and(7)conductingtrainingdesignedtobuildcapacityamongconsumersandwithinthevocationalreha-bilitationsystemandothersupportservicessystemsrelatedtodatacollectionandanalysis,secondarydataanalysis,andreportingprocesses.
Projectgoalsinclude:improvingtheknowledgeofandaccesstoexistingdata;generatingtheknowledgeneededtoimprovefuturedisabilitydatacollection;andstrengtheningconnectionsbetweenthedatafromandregardingrespondents,researchers,anddecisionmakers.
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-6FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)ColoradoPublicSpendingforDisabilityintheUnitedStates:AComparative,LongitudinalStudyUniversityofColoradoHealthSciencesCenter3825IrisAvenue,Suite200Boulder,CO80303braddock@cu.
eduPrincipalInvestigator:DavidL.
Braddock,PhDPublicContact:303/492-0639ProjectNumber:H133G070163StartDate:October01,2007Length:36monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY07$199,961;FY08$199,961Abstract:Thisprojectisacomprehensivelongitudinalstudyofthecharacteristics,trends,anddeter-minantsofpublicspendingfordisabilityprogramsintheUnitedStatesatthefederal,state,andlocallevel.
Datacollectionandanalysisutilizes28disabilityprogramsubcategoriesacross4majoractivitydomains:incomemaintenance,generalhealthcare,long-termcare,andspecialeducation.
Theproject'scomprehensivefocusincludesintellectual/developmentaldisabilities,mentalillness,andphysical/sensorydisability.
Theenvisionedstate-by-stateandnationwidedatabaseonpublicspendingandprogramparticipationwillbedevelopedacrossfiscalyears1997-2008.
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-7FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MinnesotaDevelopmentandUseofaMulti-StateDatabaseonIndividualOutcomesandtheirPredictorsforPersonswithIntellectualandDevelopmentalDisabilitiesintheUSUniversityofMinnesotaTheInstituteforCommunityIntegration204PatteeHall,150PillsburyDrive,SEMinneapolis,MN55455lakin001@tc.
umn.
eduPrincipalInvestigator:CharlieLakin,PhD612/624-5005PublicContact:SherylLarson,PhD612/625-6024;Fax:612/625-6619ProjectNumber:H133G080029StartDate:October01,2008Length:36monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY08$200,000Abstract:ThefocusofthisprojectistheNationalCoreIndicators(NCI)Program,themostwidelyusedprogramofoutcomesassessmentforpersonswithdisabilitiesintheUS.
Today24statespartici-pateinatleastbi-annualNCI-basedoutcomeresearchonaminimumof400randomlyselectedper-sonswithintellectualanddevelopmental(ID/DD)receivingpublicly-financedservices.
Participatingstatesreceivevalidated,psychometricallytestedinstrumentation,technicalassistancewithrandomselectionprocedures,standardizedtrainingofinterviewers,andacentralizedsystemofdataqualityreview,coding,andanalysis.
Thepurposeofthestudyis:(1)tomergeandanalyzethewhollycongru-entrecordsofmorethan10,000randomlysampledadultsfrom15purposelyselected,nationallydistributedstatestoexaminetheinteractionsamongindividualcharacteristics,servicedeliverymodelsandsettings,andindividualoutcomesandexperiences;and(2)tocarefullyevaluateandrefine,asneeded,themeasuresandmethodsoftheNCIprogramtoassuremaximumvalidityandutilityinassessingqualityofsupporttopersonswithID/DD.
Mergingthewhollycongruentstatedatasetsprovidesauniqueopportunitytouseandrefinearesearchdatasetofincomparablesize,flexibility,nationalrepresentation,andconsistencywithnationalgoalsforsupportstopersonswithID/DD.
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-8FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)NewYorkUsingtheU.
S.
EqualEmploymentOpportunityCommission(EEOC)EmploymentDiscriminationChargeDataSystemforResearchandDisseminationPurposesCornellUniversityEmploymentandDisabilityInstituteSchoolofIndustrialandLaborRelations201ILRExtensionBuildingIthaca,NY14853smb23@cornell.
eduwww.
ilr.
cornell.
edu/edi/p-eeoc.
cfmPrincipalInvestigator:SusanneBruyère,PhDPublicContact:607/255-9536(V);607/255-2891(TTY);Fax:607/255-2763ProjectNumber:H133G040265StartDate:October01,2004Length:36monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY04$150,000;FY05$150,000;FY06$150,000;FY07(No-costextensionthrough9/30/2008);FY08(No-costextensionthrough9/30/2009)Abstract:UsingdatafromtheEqualEmploymentOpportunityCommission(EEOC)ChargeDataSystem(CDS),thisprojectanalyzestrendsinemploymentdiscriminationchargesrelatedtotheADAandotherlaws.
TheCDScollectsdataonemploymentdiscriminationchargescoveredunderTitleIoftheADA,aswellasdataonchargesrelatedtootherlaws.
Itcontainsinformationon(a)thedemo-graphiccharacteristicsofchargingparties,suchasgender,racialandethnicstatus,age,location,andtypeofdisability;(b)typeofdiscriminatorybehavior,suchasrefusaltohire,failuretoprovidereason-ableaccommodation,unfairdischarge,harassment;and(c)chargeoutcomes,suchaswithdrawalwithbenefits,settlements,andothersuchoutcomes.
Theprojectusesthesedatatoexploretrendsovertimeandacrossthestates,andinvestigatewhetherthesetrendsarerelatedtochangesinthecompositionofthepopulationwithdisabilitiesandchangesinlabormarketconditions.
Usingregressionanalysis,theprojectexplorestherelationshipoftheADA-relatedchargeratestostate-leveleconomicconditions,governmentprogramparticipationbypeoplewithdisabilities,andotherstate-levelcharacteristics.
Theprojectalsoexaminesthechangesinthecompositionofchargesovertimewithrespecttothecharac-teristicsofchargingparty,thesizeandindustryoftheemployer,thetypeofallegeddiscriminatorytreatment,differencesbetweenclaimsintheEEOCandFEPAoffices;differencesintrendsandtypesofchargesbetweentheADAandotherstatutes(specificallytheADAandIDEA);andwhererelevant,thepotentialimpactofSupremeCourtdecisionswithintrendschangesinthesecompositionalchanges.
ToachieveabetterunderstandingofpatternsinADA-relatedcharges,theprojectseeksinputfromandworkswiththeEEOCandselecteddisabilityadvocacyorganizations,suchastheselectstateFairEmploymentProtectionAgencies(FEPAs),stateprotectionandadvocacyagencies,andasneededtheAmericanAssociationofRetiredPersons(AARP),theAmericanAssociationofPersonswithDisabilities(AAPD),theNationalDis-abilityRightsNetwork(NDRN;formerlycalledtheNationalAssociationofProtectionandAdvocacySystems),andthelawfirmofPowers,Pyles,Sutter,andVerville(PPSV).
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-9FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)TexasImpactofProspectivePaymentandRehabilitationOutcomesUniversityofTexasMedicalBranch301UniversityBoulevardGalveston,TX77555kottenba@utmb.
eduPrincipalInvestigator:KennethJ.
Ottenbacher,PhDPublicContact:409/747-1637;Fax:409/747-1638ProjectNumber:H133G080163StartDate:October01,2008Length:36monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY08$199,386Abstract:Thisprojectexaminesassociationsandtrendsinkeyrehabilitationoutcomesbeforeandaftertheintroductionofprospectivepayment(PPS).
Researchobjectivesinclude:(1)toexaminetheimpactofdifferencesinthescoringandrecordingmethodsusedtomeasurefunctionalstatuspre-PPS(FlMInstrument)andunderthePPS(InpatientRehabilitationFacility-PatientAssessmentInstrument);and(2)tocompareassociationsandtrendsinoutcomesforthreeyearspre-PPS(1999-2001)tothreeyearsunderthePPS(2002-2004).
Outcomesexaminedincludelengthofstay,functionalstatusatadmission,dischargeandfollow-up(3-6months),livingsettingpre-admission,incidenceofhospitalreadmission,andmortality.
Researchobjectivesareaddressedusingtwodatasets.
TheUniformDataSystemforMedicalRehabilitation(UDSMR)isusedtoexaminetheimpactofchangesinratingandcodingfunctionalassessmentdataintroducedwiththePPSin2002(Objective1).
AssociationandtrendsareexploredusingboththeUDSMRdatabaseandCentersforMedicareandMedicaidServices(CMS)files(Objective2).
TheCMSinformationincludestheInpatientRehabilitationFacilities-PatientAssessmentInstrumentfile,theMedicareProviderAnalysisandReviewfile,andtheMedicareDe-nominatorfile.
Theprojectexaminesdatafrommajorimpairmentgroupsincludingstroke,braindysfunction,spinalcordinjury,neurologicaldeficits,andorthopedicconditions.
Hierarchicallinearandquasi-likelihoodstatisticalmodelsareusedtoanalyzetrendsindatapriortoPPS(threeyears)andduringPPS(threeyears)adjustingforrelevantcovariates(age,gender,race/ethnicity,comorbidities,etc.
).
Finally,theprojectprovidestheinformationnecessaryformakingevidence-baseddecisionsrelatedtofuturechangesinrehabilitationpractice,payment,andpolicy.
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-10FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)VirginiaANationalAssessmentoftheRatesandCorrelatesofAlcoholandOtherDrugUsebyCollegeStudentswithDisabilitiesVirginiaCommonwealthUniversitySchoolofAlliedHealthProfessionsDepartmentofRehabilitationCounseling1112EastClayStreetRichmond,VA23298PrincipalInvestigator:StevenL.
West,PhD,CRCPublicContact:804/827-0921;Fax:804/828-1321ProjectNumber:H133G080123StartDate:October01,2008Length:36monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY08$199,999Abstract:Thisprojectstudiestheratesofsubstanceuseandabuse,thecorrelatesofsuchuse,andtheimpactofsuchuseoncollegestudentswithdisabilities.
Thesestudentsfaceanumberofchallengesthatmayinhibittheirperformanceandlimittheiracquisitionofcollegedegrees.
Thefailuretoperformtostandardortocompleteacollegedegreecanhavesevereandlonglastingconsequencesintermsoflifelongemployment,communityintegration,andtheoverallhealthandwellbeingofpersonswithdisabilities.
Althoughtherearemanybarrierstothesuccessfulacquisitionofacollegedegree,muchofthecurrentresearchinthefieldofhighereducationcentersonthenegativeeffectsofsubstanceuseandabuse.
Useofalcoholandotherdrugsbycollegestudents,regardlessofdisability,isassociatedwithanumberofnegativeoutcomes.
Notableamongtheseareschoolfailureanddrop-out,awidevarietyofhealthconcerns,andanumberoflegalissues.
Todate,littleisknownabouttheratesofsubstanceuseandabusebycollegestudentswithdisabilities.
Researchwithgeneralsamplesofpeoplewithdisabili-tiesnotethatsuchindividualsabusealcoholandotherdrugsatrates10to20timesthatofthegeneralpopulation;preliminarystudieswithstudentswithdisabilitiessuggestthattheyarealsoheavyusersofalcoholandotherdrugs.
Bydetailingthestateofaffairsnationally,thisstudyallowsforabroadunder-standingoftheratesofsubstanceusebycollegestudentswithdisabilities;detailstheimpactofsuchuseonacademicperformance,healthandwellbeing;allowsforthedeterminationoffactorsrelatedtobothsubstanceuseandabstinence;aidsinthedevelopmentofpreventionefforts;andprovidesaggres-sivedisseminationofinformationonsuchissuestoawideaudienceofconsumersandserviceprovid-ers.
NIDRRProgramDirectoryFY2008-DisabilityDemographics5-11FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)WashingtonAssessingtheImpactofMedicare-DonSSDIBeneficiariesWashingtonStateUniversityDepartmentofHealthPolicyandAdministrationPOBox1495Spokane,WA99210www.
spokane.
wsu.
edu/Academics/Health_Sciences/HPA/medicare/index.
aspPrincipalInvestigator:JamesJ.
Kennedy,PhDPublicContact:509/368-6971;Fax:509/358-7984ProjectNumber:H133G070055StartDate:October01,2007Length:36monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY07$199,955;FY08$199,706Abstract:Thisprojectemploysamulti-method,repeated-measuresdesigntoassesstheimpactofMedicare-Donyoungerbeneficiariesinfourdistinctbutinterrelatedstudies:(1)quantitativeanalysisofaccessandutilizationratesamongbeneficiariesunderage65,usingsuccessivepanelsoftheMedi-careCurrentBeneficiarySurvey;(2)qualitativeresearchontheimpactofMedicarebenefitsonem-ploymentandcontinuityofmedicalcare,basedonrepeatedfocusgroupsattwosites;(3)formularyanalysisofcoverageforcriticalmedicationsamongcompetingprivateMedicareAdvantageandPrescriptionDrugPlansinWashingtonState;and(4)ongoingpolicyanalysisoflegislativeandregula-torychangesinMedicareandSSDI.
Trackingtheimpactofthenewdrugbenefitisparticularlyimpor-tantforyoungeradultswithdisabilitieswhobecomeeligibleforMedicarethroughtheSocialSecurityDisabilityInsurance(SSDI)program.
Althoughyoungerbeneficiariescompriseonly14.
1percentofthetotalMedicarepopulation,theyaccountforabout17percent($71.
6billion)oftotalprogramexpenditures.
Despitetheireconomicandpoliticalimportance,youngerbeneficiarieswithdisabilitiesareroutinelyoverlookedinpublishedMedicareresearchandpolicyanalysis.
Throughdisseminationofresearchfindings,thisprojectenhancesawarenessintheresearchandpolicycommunityoftheuniqueMedicare-Dconcernsofyoungerbeneficiarieswithdisabilities,consistentwiththeultimategoalofimprovingaccesstoaffordablehealthservicesforpeoplewithdisabilities.
ContentsDisabilityandRehabilitationResearchProjects3FieldInitiatedProjects(FIPs)11UtilizationProjects12KnowledgeTranslationForNIDRR,knowledgetranslation(KT)encompassesthemultidimensional,activeprocessofensuringthatnewknowledgegainedthroughthecourseofresearchultimatelyimprovesthelivesofpeoplewithdisabilitiesandfurtherstheirparticipationinsociety.
KTinvolvesnotonlyknowledgevalidationanddisseminationbutalsothetransferoftechnology,particularlyproductsanddevices,fromtheresearchanddevelopmentsettingtothecommercialmarketplacetomakepossiblewidespreadutilizationoftheproductsordevices.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-3DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsAlabamaNationalSpinalCordInjuryStatisticalCenter(NSCISC)UniversityofAlabama/BirminghamSRC5151717SixthAvenue,SouthBirmingham,AL35249-7330nscisc@uab.
eduwww.
uab.
edu/nsciscPrincipalInvestigator:YuyingChen,MD,PhD205/934-3320PublicContact:VickiFarris205/934-5049;Fax:205/934-2709ProjectNumber:H133A060039StartDate:October01,2006Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY06$625,000;FY07$625,000;FY08$625,000Abstract:TheNationalSpinalCordInjuryStatisticalCenter(NSCISC)attheUniversityofAlabamaatBirminghamhasbeenthehomeoftheNationalSpinalCordInjuryModelSystems(SCIMS)DataCentersince1983.
TheNSCISCcontinuesandexpandsitscurrentactivitiesandimplementsinnova-tivenewtaskstoaccomplishthefollowinggoals:(1)maintenanceoftheSCIMSdatabase,(2)high-qualitydataintheSCIMSdatabase,(3)highqualitydatacollectedfromdatabaseparticipantsofallracial/ethnicbackgrounds,(4)rigorousSCIMSdatabaseresearchconductedbyallinvestigators,(5)enhancedcontinuityoftheSCIMSdatabase,and(6)improveddatabaseoperationsthroughcollabora-tion.
Inparticular,theprojecttakesadvantageofthelatestInternetandcentralizeddatabasetechnologytorewritethedatabasesoftwarefromitscurrentdistributedformattoacentralizedweb-basedsystem,whichwillsignificantlyimprovethecapabilitytomanagenewdatamoduleprojects,increasecost-efficiency,improvequalitycontrol,andenhancedatasecurity.
TopromotebestresearchpracticesacrosstheSCIMS,theCenterestablishesanannualonlinecomprehensivetrainingcurriculumforSCIMSdatacollectors,conductsevaluativesitevisits,publishesaguideregardingproperuseofthedatabase,andrefinesstandardsonculturallyappropriateSCIresearch.
Theprojectincludessubcon-tractswithformerlyfundedSCIMScenterstocontinuedatacollectionforpatientspreviouslyenrolledintheirresearch.
TheCentercontinuestobenefitfromtheactiveinvolvementofpersonswithSCIandproductivepartnershipswithotherNIDRR-fundedcentersinthedesign,implementation,andevalua-tionoftheseactivities.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-4DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsMassachusettsInnovativeKnowledgeDisseminationandUtilizationforDisabilityandProfessionalOrganizationsandStakeholdersBostonUniversityCenterforPsychiatricRehabilitation940CommonwealthAvenueWestBoston,MA02215-1203psyrehab@bu.
eduPrincipalInvestigator:MarianneFarkas,ScDPublicContact:617/353-3549;Fax:617/353-7700ProjectNumber:H133A050006StartDate:October01,2005Length:60monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY05$498,878;FY06$493,698;FY07$499,966;FY08$499,947Abstract:ThisprojectisworkingcollaborativelywiththeNIDRR,professionalandconsumerorgani-zations,andstakeholderstodevelop,test,andapplyaprocessofresearchstandardsdevelopment,implementation,andrelatedinformationdisseminationstrategiesthatallowsend-usersintherehabilita-tionfieldtomakeinformedchoicesbasedontheperceivedutilityoftheresearchavailable,andindoingso,promoteutilizationofrehabilitationresearch.
Theprojectuseswell-developedstandardstodeterminewhichrehabilitationresearchresultsareofsufficientrigortobeworthyofdissemination.
Thusestablishinganongoing,scientific,easilyaccessible,centralresourcetohelpprofessionalsutilizewhatworksinthedisabilityfield.
Theprojecthassixspecificgoals:(1)Producingqualitystandardsforratingrehabilitationresearchrigorandmeaning.
Abroadrangeofexpertsandvariousstakeholdersparticipateinconsensusbuildingregardingadaptingexistingstandardsforratingresearchrigor,andcreatestandardsformeaning(perceivedrelevance).
Inthisway,informationdisseminatedwillnotonlybeassessedastoitsscientificrigorbutalsowithrespecttoitsrelevanceandapplicabilitytovariousend-users,thuspromotingutilizationoftheresearch.
(2)Projectstaff,alongwithNIDRRstaff,profes-sionalandconstituentorganizations,andotherKnowledgeTranslationprojectsassistindevelopingstandardtopicselectioncriteriaandinselectingtopicalareasforinformationproducts.
(3)Producingrelevantinformationproductsdescribingthequalityandimplicationsofrehabilitationresearchstudiesbasedonthedevelopedstandards.
Constituentorganizationsparticipateindevelopingdisseminationplanstotranslateresearchsynthesesintheidentifiedtopicalareasintoinformationproductsrelevantforappropriateconstituencies.
(4)Creatingandtestingaprototypeinteractivewebsite,TheRighttoKnowClearinghouse,toimplementinnovativedisseminationstrategiesforkeygroups.
(5)Evaluatingtheoutput,perceivedutility,andoutcomesoftheKnowledgeTranslationprojectusingtheNIDRRlogicmodel.
Evaluatedoutcomesincludeanincreaseinawarenessofresearchamongconstituencygroups,anincreaseinunderstandingofresearchrigorandmeaningamongthosegroups,andanincreaseintheuseofresearchinformationbyend-users.
(6)Disseminatingtheprojectj:'sfindingstostakeholders.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-5DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewYorkCenterforInternationalRehabilitationResearchInformationandExchange(CIRRIE-2)UniversityatBuffaloTheStateUniversityofNewYorkCenterforAssistiveTechnology515KimballTowerBuffalo,NY14214ub-cirrie@buffalo.
educirrie.
buffalo.
eduPrincipalInvestigator:JohnStone,PhD716/829-3141,ext.
125PublicContact:MarciaE.
Daumen716/829-3900,ext.
146;Fax:716/829-2211ProjectNumber:H133A050008StartDate:November01,2005Length:60monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY05$500,000;FY06$500,000;FY07$500,000;FY08$500,000Abstract:TheCenterforInternationalResearchInformationandExchange(CIRRIE-2)offersacomprehensiveapproachtoaddresstheneedsofresearchers,practitioners,andconsumersforresearch-basedinformationfrominternationalsources.
CIRRIE-2objectivesinclude:ExpandingtheexistingDatabaseofInternationalRehabilitationResearch;developinganonline,multi-lingual,internationalencyclopediaofrehabilitationinEnglish,Spanish,andFrenchincollaborationwiththeQuebecInstituteforPhysicalRehabilitation;sponsoringaninternationalconferenceandworkshopsontheInternationalClassificationofFunctioning,Disability,andHealth(ICF);creatingaCommunityofPracticeontheICF;andcrossmappingICFtermstothethesaurusthatisusedtosearchbothCIRRIEandREHABDATAdatabases.
CIRRIE-2sponsorsworkshopsontheICFincooperationwiththeAmericanPsychologicalAssociationandtheWHONorthAmericanCollaboratingCenter(NACC),andplansaninternationalconferenceontheICFinYear2,incollaborationwiththeNACC.
Addition-ally,CIRRIEdevelopsnewpre-serviceinitiativesintheareaofculturalcompetencefordisabilityserviceproviders,including:Developingatextbookandtwonewmonographsonculturalcompetencefordisabilityserviceproviders;andconductinganinternationalconferenceonProvidingCulturallyCompetentDisabilityServicesincollaborationwithToronto-basedJointCentreofExcellenceonResearchandImmigrationandSettlement.
CIRRIE-2supportscollaborativeactivitiesbetweentheUSandothercountriesbyconductingfourtypesofinternationalexchangeprograms:(1)short-termexchangesofindividuals,(2)institutionallinkageexchanges,(3)aprogramforMinorityServingInstitutions,and(4)aprogramforinformationgatheringfordisseminationtoUSaudiences.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-6DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewYorkCenteronKnowledgeTranslationforTechnologyTransferUniversityatBuffaloTheStateUniversityofNewYorkCenterforAssistiveTechnology322KimballTowerBuffalo,NY14214cat.
buffalo.
edu/PrincipalInvestigator:JosephLane716/829-3266PublicContact:716/829-3141(V);800/628-2281(TTY);Fax:716/829-2420ProjectNumber:H133A080050StartDate:October01,2008Length:60monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY08$999,998Abstract:Theobjectiveofthisprojectistostudyandapplythetheoryandpracticeofknowledgetranslation(KT)totheknowledgeoutputsofNIDRRtechnologygrantees.
GoalsofthisprojectareimprovedunderstandingofbarrierstoaccomplishingKTfortechnologytransfer(TT)andcarrierstoovercomethem;advancedknowledgeofthebestmodels,methods,andmeasuresforaccomplishingKTforTT;andincreasedutilizationofthevalidatedbestpracticesforKTforTTbytheNIDRRgrantees.
ResearchProject1synthesizescurrentknowledgeaboutKTtheoryandpracticerelatedtoaccomplishingtechnologytransferoutcomes;establishesparallelmodelsofpracticesforbothknowl-edgetranslationandtechnologytransfer;andcreatesanoperationalframeworkfortheKnowledgeToAction(KTA)model,byapplyingthetechnologytransfermethodsandmeasurespromulgatedbytheProductDevelopmentManager'sAssociation(PDMA),tocreatecounterpartsinknowledgetransla-tion.
Project2establishesparametersfordefiningnewknowledgeasaninnovation,andestablishesGranteeInnovationProfilesforparticipatingRERCandSBIRgranteesinwheeledmobility,sensorydisability,andenvironmentalaccesstechnologyareas;andinterviewsrepresentativesforthesixcat-egoriesofknowledgeusers(i.
e.
,researchers,manufacturers,clinicians,policymakers,consumers,brokers),toestablishKnowledgeValueProfilesforeachusercategory.
ResearchProject3conductsaseriesofsixinterventionstudiesinthethreetechnologyareas.
Theycommunicateaseriesofrandomlyselectedinnovationstothesixusercategories,eitherthroughstandardknowledgedisseminationpractices,orthroughknowledgetranslationpracticesappliedthroughtheoperationalKTAmodel.
DevelopmentProject1conductsaseriesofatleastsixtechnologytransferdemonstrationprojects,workingincollaborationwithcorporatepartners,whileRERCand/orSBIRgranteesinteractasparticipantobservers.
DevelopmentProject2createsaknowledgebaseconsistingofadatabasestructurecustomizedforaccessbyeachcategoryofknowledgeuserbasedontheirrespectivevaluesystems,alongwithallDRRPtrainingmaterialspubliclyavailableinaccessibleandusableforms.
AUtilizationProjectencouragesNIDRRgranteestousetheDRRPnf:'smaterials,andimplementtheoperationalKTAmodel,throughcoordinateddissemination,training,andtechnicalassistanceprojects.
Thisprojectalsopromotesthediffusionandutilizationofinnovativeresearch-basedknowledgebytargetingeachofthesixcategoriesofknowledgeuserswithaparallelcoordinatedprogramofthesamemultiplemethods.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-7DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsTexasResearchUtilizationSupportandHelp(RUSH)ProjectSEDL4700MuellerBoulevardAustin,TX78723john.
westbrook@sedl.
orgwww.
researchutilization.
orgPrincipalInvestigator:JohnWestbrook,PhDPublicContact:800/761-7874(V/TTY);Fax:512/476-2286ProjectNumber:H133A031402StartDate:June01,2003Length:60monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY03$350,000;FY04$350,000;FY05$350,000;FY06$350,000;FY07$350,000;FY08(No-costextensionthrough5/31/2009)Abstract:TheRUSHprojectdevelopsandtestsmodelsforincreasingtheeffectiveuseofNIDRRresearchresults.
TheRUSHProjectintendstoassessutilizationsuccessesintermsofbenefitspro-ducedforintendeduseraudiencesincluding:peoplewithdisabilitiesandtheirfamilies,disabilityresearchers,anddisabilityserviceproviders,amongothers.
Thegoalistoexpandawareness,strate-gies,andevaluationofknowledgeutilizationoutcomesamongNIDRR-supportedresearchersinordertoincreaseaccessanduseofresearchresultsbythosewhocanbenefitthemostfromthem.
TheobjectivesfortheRUSHProjectare:(1)toassesstheuseofandobstaclestothedissemination/utiliza-tionofNIDRR-supporteddisabilityresearchbyawiderangeofpotentialtargetaudiences;(2)todevelopavarietyofstrategiesandapproachesdesignedtoaccommodatedifferingtopicsofdisabilityresearchinformationanddiversetargetaudiences;(3)todemonstrateavarietyofnewstrategiesandapproachestoimprove/achieveutilizationoutcomesofdisabilityresearchfindings;(4)todisseminateinformationaboutknowledgeutilizationmodelsandtheirassociatedeffectivenessbytopic,targetaudience,andlevelofknowledgetransferneededinordertoincreasetheuseofNIDRRgrantees'researchoutcomes;(5)toprovidenewandcurrentNIDRRresearcherswithinformationtheycanusetostrengthentheirdisseminationandutilizationapproaches;and(6)toprovidetechnicalassistancetoNIDRRresearcherstobuildunderstanding,skills,andresourcesindeveloping,implementing,andevaluatingknowledgeutilizationmodelswithinNIDRRprojectdesigns.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-8DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsTexasNationalCenterfortheDisseminationofDisabilityResearch(NCDDR)SEDL4700MuellerBoulevardAustin,TX78723lin.
harris@sedl.
orgwww.
ncddr.
orgPrincipalInvestigator:JohnWestbrook,PhDPublicContact:LinHarris,InformationSpecialist800/266-1832(V/TTY);Fax:512/476-2286ProjectNumber:H133A060028StartDate:January01,2006Length:60monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY06$750,000;FY07$750,000;FY08$750,000Abstract:ThegoaloftheNationalCenterfortheDisseminationofDisabilityResearch(NCDDR)istopromotetheutilizationofresearchresultsdevelopedthroughNIDRRgrants/contracts.
MajorareasofworkoftheNCDDRinclude:(1)Researchdesignedtocollectinformationthatassistsinidentifyingtheneedsandmostlikelystrategiesthatassistinmatchingdisseminationpracticeswithintendeduseraudiences.
Activitiesincludeconductingannualsurveys,focusgroups,surveys,andannualreportingofstate-of-the-artinformationaboutNIDRRgrantees'disseminationsuccesses.
(2)Demonstrationconductedtodeterminetheeffectivenessofnewstrategiesandapproachesinachievingintendeddisseminationandutilizationoutcomes.
Activitiesincludedevelopingandusinginnovativeweb-basedmechanisms,increasingcommonportalaccesstosubstantiveEnglishandSpanishlanguageresourcesofgrantees,anddevelopingoutreachstrategiesforunder-representedaudiences.
(3)DisseminationandUtilizationimplementednottosupportthesimpledistributionofmaterialsandotherresourcesbutrathertheuseofresearchoutcomesinmeaningfulwaysbythosethatcanmostbenefitfromtheiruse.
Activitiesincludeproductionofprintandweb-basedinformationalproducts,networkingofgranteestomaximizeoutreachimpact,anddevelopingnetworkswithavarietyofresearchstakeholdergroupsforinformationandstrategyexchanges.
(4)TechnicalAssistanceprovidedtoNIDRRgranteestobuildunderstanding,skills,andresourcesrelatedtothedisseminationandutilizationoftheirdisabilityresearchoutcomes.
Activitiesincludeprovidingonsiteandoffsiteassistanceinplanningeffectivedisseminationefforts,providingdirectassistancetogranteeswithtargeteddisseminationefforts,andassistingindesigningevaluationstrategiestomeasuredisseminationandutilizationoutcomes.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-9DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsVirginiaDisabilityandBusinessTechnicalAssistanceCenters:Coordination,Outreach,andResearchCenterVirginiaCommonwealthUniversityDepartmentofRehabilitationCounseling1112EastClayStreet;P.
O.
Box980330Richmond,VA23298-0330btmcmaho@vcu.
eduwww.
adata.
orgPrincipalInvestigator:BrianT.
McMahon,PhD804/827-0917PublicContact:CynthiaYoung804/828-3875;Fax:804/828-1321ProjectNumber:H133A060087StartDate:October01,2006Length:60monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY06$849,957;FY07$849,968;FY08$849,991Abstract:Thiscoordination,outreach,andresearchcenter(CORC)expandsandenhancestheactivi-tiesoftheregionalsystemofDisabilityandBusinessTechnicalAssistanceCenters(DBTACs),guidedbytheprinciplesofevidence-basedpracticeandknowledgetranslation,withadualemphasisoncommunitiesofpracticeanddemand-sidejobplacement.
TheCORCobjectivesareto:(1)improvepublicaccesstoADAinformationbycreatingadefinitiveADAwebsite,DBTAC-IN,whichincludesacompendiumofDBTACmaterials,databases,publications,products,tools,andactivities;(2)createaCORCResearchReviewBoardtocoordinate,support,andreviewnewevidence-basedproductsandpublications,includingoriginalCORCresearch,andassesstheireffectivenessandimpactonpolicyandpractice;(3)increasetheresearchcapacityoftheregionalDBTACsnetworktobothcon-ductandutilizequalityresearchbymodelingsuchbehaviorandbyprovidingdirectandmeaningfulconsultationtoregionalDBTACstofacilitatetheirsuccess;(4)coordinatedisseminationofregionalDBTACandCORCpublicationsandproductsinconcertwithappropriateNIDRRresearchanddisseminationcenters;(5)translateDBTACevidencereports,publications,andproductsintopracticeguidelines,qualityimprovementproducts,andtechnicalassistancetools;and(6)hostfiveplanningconferenceswithregionalDBTACs,andthreeresearchconferencesinProjectYearsIII,IV,andVinordertodemonstratetheaddedvalueofevidence-basedpracticeintheDBTACnetwork.
OriginalCORCresearchhasanemploymentemphasis.
CORCactivitiesinclude19originalresearchprojectsinvolvingtheNationalEEOCADAResearchProject,15trainingactivitiesincollaborationwiththeregions,disseminationandoutreachprojects,researchandconsultationwithRegionalDBDTACs,technicalassistanceprojects,andprogramevaluation.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-10DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsWashingtonModelSystemsKnowledgeTranslationCenter(MSKTC)UniversityofWashingtonCenterforHumanDevelopmentandDisabilityCenterforTechnologyandDisabilityStudies1959NEPacificStreet,HSBBB-919Box356490Seattle,WA98195msktc@u.
washington.
edumsktc.
washington.
eduPrincipalInvestigator:KurtJohnson,PhDPublicContact:206/543-3677;Fax:206/543-4779ProjectNumber:H133A060070StartDate:October01,2006Length:60monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY06$598,163;FY07$598,833;FY08$599,876Abstract:TheModelSystemsKnowledgeTranslationCenter(MSKTC)facilitatesthedisseminationofresearch-to-practiceandconsumereducationforthemodelsystemsprogramsintraumaticbraininjury(TBI),spinalcordinjury(SCI),andburninjury.
TheMSKTCknowledgetranslationanddisseminationeffortsfocusonresearchconductedbythemodelsystemsprograms,identifiedbestpractices,andclinicianandconsumereducationmaterialsdevelopedbythemodelsystems.
TheMSKTCalsoworkscollaborativelywithmembersoftheMSKTCResearchAdvisoryBoardandexpertsinTBI,SCI,andburninjurytoconductsystematicreviewsofkeyareasofrehabilitationresearchrelevanttothemodelsystemsprojects.
TheMSKTCishousedwithintheUniversityofWashington'sCenterforTechnologyandDisabilityStudiesintheCenterforHumanDevelopmentandDisabilityandbuildsonpreviouslyfundedNIDRRknowledgetranslationefforts.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-11FieldInitiatedProjects(FIPs)FieldInitiatedProjects(FIPs)MassachusettsEVIDAAC:ADatabaseofAppraisedEvidenceinAugmentativeandAlternativeCommunicationNortheasternUniversityDepartmentofSpeech,Language,Audiology,andPathology151BForsythBoston,MA02115-5000r.
schlosser@neu.
eduPrincipalInvestigator:RalfW.
Schlosser,PhDPublicContact:617/373-3785;Fax:617/373-8756ProjectNumber:H133G070150StartDate:October01,2007Length:36monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY07$195,525;FY08$199,910Abstract:ThisprojectdevelopsEVIDAAC,anaccessibleandusabledatabaseofappraisedresearchevidenceinaugmentativeandalternativecommunication(AAC)forpractitioners(speech-languagepathologists,occupationaltherapists,physicaltherapists,specialeducators,rehabilitationengineers,etc.
),individualsusingAAC,andtheirfamilies.
EVIDAACprovidesaccesstopre-filteredevidence-basedpracticebycriticallyappraisingstudies(randomizedcontroltrials[RCTs],non-RCTs,caseseries,single-subjectexperimentaldesigns)andsystematicreviews.
Thissavestimeandreducestheskill-burdenassociatedwithhavingtoappraiseevidence,adocumentedbarriertotheutilizationofEBP.
EVIDAACisdevelopedinaccordancewithpublishedqualitycriteriaforhealth-relatedwebsitesusingformativeandprocessevaluation.
Accessiblewebdesignprinciplesareintegratedintothedevelopmentofthedatabase,withregularassessmentusingWebAccessibilityInitiativeprinciplesandguidelines.
Itsusabilityistestedwithrigoroustechnologies,includingstructuredusabilitytasksincontrolledlaboratorysituationsandthedeterminationofutilizationpatternsinreal-lifecircumstancesviaweb-loganalysis.
Resultsgleanedfeedbackintoimprovingthedatabase.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-12UtilizationProjectsUtilizationProjectsMarylandNationalRehabilitationInformationCenter(NARIC)HeiTechServices,Inc.
8201CorporateDrive,Suite600Landover,MD20785naricinfo@heitechservices.
comwww.
naric.
comPrincipalInvestigator:MarkX.
OdumPublicContact:InformationSpecialists800/346-2742(V);301/459-5984(TTY);301/459-5900(V);Fax:301/459-4263ProjectNumber:ED-08-CO-0095StartDate:June30,2008Length:24monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY08$828,331Abstract:TheNationalRehabilitationInformationCenter(NARIC)maintainsaresearchlibraryofmorethan65,000documentsandrespondstoawiderangeofinformationrequests,providingfactsandreferral,databasesearches,anddocumentdelivery.
Throughtelephoneandonlineinformationreferral,NARICdisseminatesinformationgatheredfromNIDRR-fundedprojects,otherfederalprograms,andfromjournals,periodicals,newsletters,films,andvideotapes.
NARICmaintainsREHABDATA,abibliographicdatabaseonrehabilitationanddisabilityissues,bothin-houseandonline.
Usersareservedbytelephone,mail,electroniccommunications,orinperson.
NARICalsopreparesandpublishestheannualNIDRRProgramDirectory,availableindatabaseformatfromNARIC'swebsite.
NIDRRProgramDirectoryFY2008-KnowledgeTranslation7-13UtilizationProjectsUtilizationProjectsMarylandABLEDATAORCMacro8630FentonStreet,Suite930SilverSpring,MD20910abledata@macrointernational.
comwww.
abledata.
comPrincipalInvestigator:KatherineBelknap301/608-8998,ext.
105PublicContact:800/227-0216(V);301/608-8998(V);301/608-8912(TTY);Fax:301/608-8958ProjectNumber:ED-04-CO-0018/0007StartDate:October01,2008Length:60monthsNIDRROfficer:PimjaiSudsawad,ScDNIDRRFunding:FY08$779,573Abstract:ThisprojectmaintainsandexpandstheABLEDATAproductinformationdatabase,devel-opsinformationandreferralservicesthatareresponsivetothespecialtechnologyproductneedsofconsumersandprofessionals,andprovidesthedatatomajordisseminationpointstoensurewidedistributionandavailabilityoftheinformationtoallwhoneedit.
TheABLEDATAdatabasecontainsinformationonmorethan34,000commerciallyproducedandcustom-madeassistivedevices.
Requestsforinformationareansweredviatelephone,mail,electroniccommunications,orinperson.
ContentsADATechnicalAssistanceProjects1ADATechnicalAssistanceProgramsTheAmericanswithDisabilitiesAct(ADA)opensmoreopportunitiesforpersonswithdisabilities.
Italsoplacescertainresponsibilitiesonemployers,transitandcommunicationsystems,stateandlocalgovernments,andpublicaccommodations.
ToassistcoveredpartiestounderstandandcomplywiththeADA,NIDRRhasfundedanetworkofgranteestoprovideinformation,training,andtechnicalassistancetobusinessesandagencieswithdutiesandresponsibilitiesundertheADA.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-3ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionI-CT,ME,MA,NH,RI,andVTNewEnglandDisabilityandBusinessTechnicalAssistanceCenter-RegionIAdaptiveEnvironmentsCenter,Inc.
200PortlandStreet,FirstFloorBoston,MA02114adainfo@newenglandada.
orgadaptiveenvironments.
org/neada/site/homePrincipalInvestigator:OceHarrison,EdD,ProjectDirector617/695-1225,ext.
227PublicContact:800/949-4232(V/TTYinCT,ME,MA,NH,RI,andVT);617/695-1225(V/TTY);Fax:617/482-8099ProjectNumber:H133A060092StartDate:October01,2006Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY06$1,026,116;FY07$1,033,136;FY08$1,053,190Abstract:TheNewEnglandDBTACprovidestechnicalassistance,training,andinformationdissemi-nationforConnecticut,Maine,Massachusetts,NewHampshire,RhodeIsland,andVermont.
ThisDBTACcontinuesthesecoreservicesthatarethebedrockofvoluntaryADAcompliancebutalsorestructurestheprogramtobemoreresponsiveandrigorouswithanexpectationofimprovingemploy-mentoutcomesforpeoplewithdisabilities.
Asetofpartnershipsandcollaborations,ledbytheCenterforLaborMarketStudiesatNortheasternUniversity,conductsevidence-basedresearchwithcollabo-ratingorganizationstoimplementcomprehensiveinterventionanddescriptiveresearchstrategies.
ThetargetpopulationsforthisDBTACarestudentswithdisabilitiesandtheirdiversesupportservicesatinstitutionsofhighereducation,andemployersindemand-driven,highgrowthindustriesinNewEngland.
GoalsforthisDBTACareto:improveunderstandingofrightsandresponsibilitiesundertheADA;identifyinnovativeapproachesandtestedsolutionsthatincreaseemployment;produceanddisseminatea"GuidetoNewEnglandJobs"forindividualswithdisabilities;publishresultsoffindingsinrefereedjournals;andutilizenetworksofnewcollaboratorstodisseminateinformation,materials,andresearchfindings.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-4ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionII-NJ,NY,PR,andVIDisabilityandBusinessTechnicalAssistanceCenter-NortheastCornellUniversityEmploymentandDisabilityInstituteSchoolofIndustrialandLaborRelations201ILRExtensionBuildingIthaca,NY14853-3901northeastada@cornell.
eduwww.
northeastada.
orgPrincipalInvestigator:S.
AntonioRuiz-Quintanilla,ProjectDirector607/255-2132PublicContact:800/949-4232(V/TTY,inNJ,NY,PR,andVI);607/255-6686(V/TTY);Fax:607/255-2763ProjectNumber:H133A060088StartDate:October01,2006Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY06$1,105,000;FY07$1,105,000;FY08$1,105,000Abstract:TheDisabilityandBusinessTechnicalAssistanceCenter-Northeast(DBTAC-Northeast)servesRegionIItoensurethefullimplementationoftheAmericanswithDisabilitiesActof1990(ADA)throughitscoreactivities:technicalassistance,training,informationdissemination,andre-search.
TheDBTAC-Northeasttargetaudiencesincludeindividualswithdisabilitiesandtheircaregivers,employers,businesses,stateandlocalgovernmententities,andeducationalinstitutionsinFederalRegionII(NewYork,NewJersey,PuertoRico,andtheUSVirginIslands).
Informationdisseminationactivitiesincludeacomprehensivewebsite,anewsletter,technicalbulletins,andmateri-alsdisseminationthroughnetworksandregionalpartners.
Technicalassistanceactivitiesfocusonrespondingtorequestsforinformationreceivedviaan800phoneline,submittedviathewebsite,andreceivedthroughemail.
Trainingactivitiesarecomprehensiveinbothapproachanddelivery,designedtomeettheneedsofeducationalorganizations,employers,advocacyorganizations,businesses,TitleIIorganizations,individualswithdisabilities,caregivers,anddisabilityserviceorganizations.
TopicsincludeadvancedADAissuesrelatedtoemployment,physicalandprogrammaticaccess,stateandfederallawsandcodesandrelevantADAcourtdecisions,andaccessibletechnology.
Trainingisofferedthroughavarietyofopen-enrollmentprogramsatthestateandlocallevelsaswellasprovidedon-site.
Lastly,theDBTAC-Northeastteamconductstargeted,rigorousresearchandevaluationactivitiesdesignedtoinformanddevelopinnovativeandeffectiveapproachesaddressingcriticaldisabilityquestionstohelpensurethatservicesandinterventionsdeliveredbytheDBTAC-Northeastareeffectiveandrelevanttotheneedsoftheindividualsandcommunitiesitserves.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-5ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionIII-DC,DE,MD,PA,VA,andWVDBTAC:Mid-AtlanticADACenterTransCen,Inc.
451HungerfordDrive,Suite700Rockville,MD20850-4151adainfo@transcen.
orgwww.
adainfo.
orgPrincipalInvestigator:RichardG.
Luecking,PhD301/424-2002PublicContact:MarianS.
Vessels,ProjectDirector800/949-4232(V/TTY,inDC,DE,MD,PA,VA,andWV);301/217-0124(V/TTY);Fax:301/217-0754ProjectNumber:H133A060085StartDate:October01,2006Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY06$1,098,929;FY07$1,098,929;FY08$1,098,929Abstract:TheDBTAC:Mid-AtlanticADACenterprovidestechnicalassistance,training,andinfor-mationdisseminationforDelaware,theDistrictofColumbia,Maryland,Pennsylvania,Virginia,andWestVirginia.
ThemajorgoalsofthisDBTACareto:improvetheunderstandingbyindividualsandentitiesoftheirrightsandresponsibilitiesundertheADA;buildthecapacityoflocalandstateentitiestoprovidetechnicalassistanceandtrainingontheADAandrelatedtopics;improveemploymentoutcomesofpeoplewithdisabilities;andincreaseaccessbypeoplewithdisabilitiestolodgingandotherservicesfrom,aswellasemploymentopportunitieswithin,thehighgrowthhospitalityindustry.
Therearefourmajorareasofactivity:(1)training,technicalassistance,anddisseminationtogeneralADAconstituenciesonalltitlesoftheAct;(2)trainingandtechnicalassistancetoindividualstatewidecoalitionstoincreasethecapacityofotherorganizationstoprovidelocallyfocusedtechnicalassistanceonalltitlesoftheADA;(3)identificationofproblematicareaswhereresearchandinformationalcampaignsmightaidintheavoidanceoforsolutionstoproblemsassociatedwiththeADA,especiallyinthehighgrowthhospitalityindustry;and(4)researchonorganizationalandindividualfactorsthataffectdecisionstoprovidereasonableaccommodationsandtheresultingemploymentoutcomes.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-6ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionIV-AL,FL,GA,KY,MS,NC,SC,andTNDBTAC:SoutheastADACenter—RegionIVSyracuseUniversityBurtonBlattInstitute1419MaysonStreetAtlanta,GA30324sedbtacproject@law.
syr.
eduwww.
sedbtac.
orgPrincipalInvestigator:PeterBlanck,PhD,JD;ShelleyKaplan;315/443-9703(Blanck);404/541-9001(Kaplan)PublicContact:ShelleyKaplan,ProjectDirector800/949-4232(V/TTY,inAL,FL,GA,KY,MS,NC,SC,andTN);404/541-9001(V/TTY);Fax:404/541-9002ProjectNumber:H133A060094StartDate:October01,2006Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY06$1,105,000;FY07$1,105,000;FY08$1,105,000;FY09$1,105,000Abstract:TheDBTAC:SoutheastADACenter(SoutheastDBTAC)providestechnicalassistance,training,andinformationdisseminationforAlabama,Florida,Georgia,Kentucky,Mississippi,NorthCarolina,SouthCarolina,andTennessee.
SoutheastDBTACmeetsADA-relatedinformation,train-ing,andtechnicalassistanceneedsofmultiplepublicandprivatestakeholdersthroughtheprovisionoffivecoreservices:(1)informationdissemination,(2)educationandtraining,(3)technicalassistance,(4)informationreferral,and(5)publicawarenessevents.
TheSoutheastDBTAC'sresearchplanextendsthestateofknowledgeaboutemployercorporatecultureandbusinesspractices,andADAimpactoncivicactiontoreduceandeliminatebarrierstofullcivic,social,andeconomicparticipationforAmericanswithdisabilities.
TheSoutheastDBTACisleadbyaconsortiumthatincludesfournonprofitinstitutionsrecognizedfortheirknowledgeofcivilrightsprotectionsandimpactacrosscoveredenvironments,access,anduseofassistivetechnology(AT),employmentandindependentliving,andconsumerself-directionandadvocacy.
TheorganizationswithahistoryofcollaborativeactivityareBurtonBlattInstituteofSyracuseUniversity(BBI),CenterforAssistiveTechnologyandEnvironmentalAccess(CATEA)atGeorgiaInstituteofTechnology(GATech),LivingIndependenceforEveryone(LIFE)ofJackson,Mississippi,andPartnershipsinAssistiveTechnology(PAT)ofNorthCarolina.
Tocontinueresponsivenesstoemployers,largeandsmallwithintheregion,theSoutheastDBTACestablishedaBusinessLeadershipCouncil(BLC)withtenstakeholderswitharecordofhiringandadvancingworkerswithdisabilities.
TheBLCprovidesadviceandimportantlinkagestothebusinesscommunitythroughoutthesoutheasttoexchangeresearchfindingsandknowledgethatimprovesopportunitiesforemploymentforpersonswithdisabilities.
Halfofcorestaffarepersonswithdisabilitiesand/orrepresenthistoricallyunderrepresentedgroupsbecauseofrace,gender,nationalorigin,andage.
PeoplewithdisabilitiescontinuetodirectcorecomponentsoftheCenter'sactivitiesrelatedtotrainingandtechnicalassistanceandinformationdissemination.
TheSoutheastDBTAChasanextensivecollaborativenetworkofover99localaffiliatesinalleightstatesintheregionthatbuildsonthestrengthsandexperiencesofadiversecross-sectionofindividualswithandwithoutdisabilitiesrepresentingdisability,business,andgovernmentalentities.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-7ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionV-IL,IN,MI,MN,OH,andWIDBTAC:GreatLakesADACenterUniversityofIllinoisatChicagoDepartmentofDisabilityandHumanDevelopment1640WestRooseveltRoad,Room405Chicago,IL60608-6904gldbtac@uic.
eduwww.
adagreatlakes.
orgPrincipalInvestigator:RobinA.
Jones,ProjectDirector312/996-1059PublicContact:800/949-4232(V/TTY,inIL,IN,MI,MN,OH,andWI);312/413-1407(V/TTY);Fax:312/413-1856ProjectNumber:H133A060097StartDate:October01,2006Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY06$1,105,000;FY07$1,105,000;FY08$1,105,000Abstract:TheGreatLakesDisabilityandBusinessTechnicalAssistanceCenter(DBTAC)promotesawarenessoftheADAtotargetedaudiencesthroughprovisionoftechnicalassistance,training,andmaterialdisseminationregardingtheADA.
Inaddition,theCenterengagesinrigorous,research-relatedactivitiesthatcontributetoaresearchagendafocusedonbutnotlimitedto(1)theemploymentofpeoplewithdisabilities,and(2)theimpactthatindividualknowledgeandexperiencewiththeutilizationoftechnologyinpostsecondaryeducationhasontheemploymentoutcomesofindividualswithdisabilitiesastheytransitionfrompostsecondaryeducationtoemployment.
TheGreatLakesDBTACprovidestimely,responsive,andproactiveservicesutilizingacomprehensiveservicedeliverymodel.
Thetechnicalassistance,training,andinformationneedsoftheindividual,employers,specifi-callythoseinhighgrowthindustries,business,government,educationalentities,anddisabledveteransemploymentprogramsareapartofon-goingneedsassessment,andprogramsandactivitiesaretailoredaccordingly.
TheCentertracksemergingissueswhichareofinteresttoitstargetaudiencesanddevel-opsstrategiestoaddresstheirinformationalandtechnicalassistanceneeds.
Strategiesinclude:(1)operationofatoll-freenumberforrespondingtoquestionsorprovidingreferral;(2)enhancementoftheCenter'sexistingnetworkofindividualsandorganizationswhocanprovideon-siteconsultation,technicalassistance,andtrainingasneeded;(3)trainingeventsandactivitiesatthelocal,state,andregionallevelfocusedonraisingawarenessoftheADAanddisseminatingthefindingswhichresultfromtheCenteranditscollaborators'research-relatedactivities;(4)identificationanddisseminationofbestpracticesrelatedtotherecruitment,hiring,andretentionofqualifiedindividualswithdisabilitiesbyemployersandemploymenttrainingprograms;and(5)utilizationoftechnologytopromotetheexchangeofinformationincludingawebsite,listservs,e-newsletters,multifaceteddistancelearningstrategiesandtechniques,self-pacedlearning,andweb-basedassessmenttools.
CollaboratorsincludebutarenotlimitedtothenetworkofDBTACs,relevantNIDRR-fundedprojects,StateTechnologyActgrantees,andDepartmentofLaborgrantees(WIA,SmallBusinessDevelopmentCenters,JAN,etc.
),aswellasemployerandbusinessorganizationssuchastheBusinessLeadershipNetwork,NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-8SocietyofHumanResourceManagement,StateChambersofCommerce,andNationalFederationofIndependentBusinesschapters.
Inadditiontothesegroups,theCentercontinuestoactasacatalystforactivitiesthattakeplaceatthelocalandstatelevelthroughcollaborationbetweenthebusiness,govern-ment,anddisabilitycommunitiestopromoteawarenessandvoluntarycompliancewiththeADA.
Attheregionallevel,theCenterreliesheavilyontheguidanceofStateSteeringCommitteesandincorpo-ratesnewstructurestoinformanddirecttheCenter'sactivitiesincludingthenewlyestablishedRe-gionalBusinessAdvisoryCommittee.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-9ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionVI-AR,LA,NM,OK,andTXSouthwestDisabilityandBusinessTechnicalAssistanceCenter(SouthwestDBTAC-RegionVI)TheInstituteforRehabilitationandResearch(TIRR)IndependentLivingResearchUtilization(ILRU)2323SouthShepherdBoulevard,Suite1000Houston,TX77019-7024dlrp@ilru.
orgwww.
dlrp.
orgPrincipalInvestigator:WendyWilkinson,ProjectDirectorPublicContact:800/949-4232(V/TTY,inAR,LA,NM,OK,andTX);713/520-0232(V);713/520-5136(TTY);Fax:713/520-5785ProjectNumber:H133A060091StartDate:October01,2006Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY06$1,104,007;FY07$1,104,738;FY08$1,104,885Abstract:TheSouthwestDBTACprovidesacomprehensivearrayoftraining,technicalassistance,anddisseminationservicesontheADAandotherdisability-relatedlawsinthefivestatesofFederalRegionVI.
Thegoalsoftheseactivitiesaretoimprovetheemploymentoutcomesofindividualswithdisabilitiesandmaximizetheirfullinclusionintosociety.
Throughacollaborativestructureofpartners,theSouthwestDBTACprovidesanarrayofservicesincluding:(1)researchactivitiesthatidentifyimpedimentstocompliancewiththeADAandindividuals'accesstotechnology,postsecondaryeducation,andtheworkforce,aswellastestedsolutionsandinnovativeapproachestoeliminatetheseimpediments;(2)trainingactivitiesthatoffercomprehensive,accurate,andtimelyinformationontheADA'srequirements,developmentsincaselaw,policy,andimplementationtopromotecompliancewiththeADA;(3)disseminationactivitiesthatincreaseknowledgeabouttheADAandDBTACservicesthroughaneffective,coordinatedresourcenetworkforRegionVI;and(4)technicalassistanceactivitiesthatrespondtotheneedsofindividualsandentitiesontheADAandfosterthedevelopmentofnewandpromisingpracticesthatcanbesharedwithothers.
SEDBTAC'snetworkincludessuchorganizationsastheNewMexicoTechnologyAssistanceProject,theSouthwestEducationDevelop-mentLaboratory,ArkansasTechnologyandCurriculumAccessCenter,BureausofApprenticeshipTrainingorStateApprenticeshipCouncilsineachstate,ValleyAssociationofIndependentLiving,NorthHarrisCollege,andotherorganizationsandbusinessesthathavedemonstratedsuccessinimprovingthelivesofindividualswithdisabilities.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-10ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionVII-IA,KS,MO,andNEDBTAC-GreatPlainsADACenter—RegionVIIUniversityofMissouri/Columbia100CorporateLakeDriveColumbia,MO65203ada@missouri.
eduwww.
adaproject.
orgPrincipalInvestigator:JimdeJong,ProjectDirectorPublicContact:800/949-4232(V/TTY,inIA,KS,MO,andNE);573/882-3600(V/TTY);Fax:573/884-4925ProjectNumber:H133A060089StartDate:October01,2006Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY06$458,330;FY07$1,100,000;FY08$1,100,000Abstract:TheGreatPlainsDBTACprovidestechnicalassistance,training,andinformationdissemi-nationforIowa,Kansas,Missouri,andNebraska.
TheCenterprovidesthecoreservicesofmaterialdissemination,technicalassistanceandtraining,andawarenesstoitstargetpopulationsofpeoplewithdisabilities,disabilityorganizations,policymakers,publicrehabilitationproviders,employers,busi-nesses,stateandlocalgovernments,educators,designprofessionals,legalprofessionals,andthemedia.
Inaddition,theCenterincludesaresearchmodelthatcanmeasurechangesinemployment,commerce,andcommunityintermsofaccessibility,receptivity,andactiveparticipation.
ResearchconductedbytheWashingtonUniversitySchoolofMedicinefocusesoncommunityparticipationandemployment.
TheUniversityofKansascontinuallyreviewsemergingliteratureandresearchfindingstoimprovecoreservicesandresearchactivities.
Paraquad,aCenterforIndependentLiving,facilitatesinputfromconsumersatallstagesofserviceprovisionandresearch,andrepresentstheperspectiveoftheintendedbeneficiariesoftheproject,peoplewithdisabilities.
AdditionalqualityassuranceoftheresearchandcoreservicesisprovidedbyanAdvisoryCommitteerepresentingallpartsoftheregionandprofessionaldisciplinesinvolvedinthisproject.
GreatPlainsDBTACistheleadsponsoroftheADASymposium,THEAnnualNationalADATraininginSt.
Louis(www.
adasymposium.
org).
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-11ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionVIII-CO,MT,ND,SD,UT,andWYDBTACRockyMountainADACenter—RegionVIIIMeetingtheChallenge,Inc.
3630SintonRoad,Suite103ColoradoSprings,CO80907-5072rmdbtac@mtc-inc.
comwww.
adainformation.
orgPrincipalInvestigator:JanaCopeland,PhD,ProjectDirector719/444-0268PublicContact:800/949-4232(V/TTY,inCO,MT,ND,SD,UT,andWY);719/444-0268(V/TTY);Fax:719/444-0269ProjectNumber:H133A060079StartDate:October01,2006Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY06$1,105,000;FY07$1,105,000;FY08$1,105,000Abstract:ThismissionoftheDBTACRockyMountainADACenteristoprovideindividualsandorganizationsinColorado,Montana,NorthDakota,SouthDakota,Utah,andWyomingwithinforma-tionontheAmericanswithDisabilitiesAct(ADA).
MTChasdevelopedaprogramoftechnicalassistancebasedontheconceptofmasscustomizationtoaddressthespecificneedsoftargetgroupsacrosstheregion.
Trainingactivitiestakeadvantageoftechnologyandnewtheoriesoftrainingtoensuremaximumimpact.
Disseminationprovidestailoredmaterialsthatprovideactionableinformationforthespecificneedsoftargetgroups.
ThecapacityofthisDBTACisexpandedthroughanADALeadershipNetworkof30-35expertsfromacrosstheregion.
ToinformthetechnicalassistancedeliveredbytheDBTACandtoproduceevidence-basedreportsonADAimplementation,MTChasallocated15percentoftheDBTACprojectbudgettoacoherent,sustainedresearchagenda.
Researchisconductedbyateamofresearchorganizationsfromacrosstheregion,includingDr.
MartinBlairattheUtahStateUniversityCenterforPeoplewithDisabilities,Dr.
KathyLaurinattheUniversityofMontanaRuralInstitute,andPatriciaYeager,adoctoralcandidateattheUniversityofNorthernColo-rado.
TheteamisengagedinaninitialprogramofresearchthathasbeencoordinatedthroughtheDBTACCORC.
Thefocusoftheproject'sADAresearchagendaisimprovingemploymentoutcomesforpeoplewithdisabilities.
TheresultsoftheDBTACresearchprogramareusedtoinformtechnicalassistanceeffortsbyassessingtheefficacyoftheDBTAC'scorefunctionsandtranslatingnewre-searchresultsintothetechnicalassistanceprocess.
TheDBTACprogramincludesanextensiveplanofevaluationbasedonreviewingoperationalactivitiesmonthlyandperformancemetricsquarterlyandannually.
TheoutputandoutcomeevaluationisbasedontheDBTAClogicmodeldevelopedbyMTCoverthepastseveralyears.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-12ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionIX-AZ,CA,HI,NV,andthePacificBasinDisabilityandBusinessTechnicalAssistanceCenter(DBTAC)—PacificADACenterPublicHealthInstitute55512thStreet;Suite130Oakland,CA94607-4046adatech@adapacific.
comwww.
adapacific.
orgPrincipalInvestigator:EricaC.
Jones,ProjectDirector510/285-5600(V/TTY)PublicContact:800/949-4232(V/TTY,inAZ,CA,HI,NV,andthePacificBasin);510/285-5600(V/TTY);Fax:510/285-5614ProjectNumber:H133A060098StartDate:October01,2006Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY06$1,105,000;FY07$1,105,000;FY08$1,105,000Abstract:ThePacificDBTACprovidestechnicalassistance,training,andinformationdisseminationforArizona,California,Hawaii,Nevada,andthePacificBasin.
Theprogramplacesaspecialempha-sisonincreasingemployment,reasonableaccommodation,andretentionofpersonswithdisabilities-particularlythroughoutreachtohighgrowthindustries-andonenhancingparticipatory/communitylivingopportunitiesforpersonswithdisabilities.
Inadditiontoenhancementsinestablishedtraining,dissemination,andtechnicalassistanceservices,theprogramincludesaresearchprogramdesignedtoenhancecompliancewithADArulesandregulations,expandemploymentandcommunitylivingforpersonswithdisabilities,andmakesignificantcontributionstotheliteratureinthefield.
Theresearchprogramincludestworandomized,controlledtrialsoperatedbytheCenterincollaborationwiththeDBTACCoordination,Outreach,andResearchCenter;acollaborativeresearchinitiativeledbyCornellUniversitythatincludesapartnershipwiththreeadditionalDBTACsandtheSocietyforHumanResourceManagement(SHRM);andtwofive-yearspecialinitiativesoperatedinconjunctionwiththeCenter'strainingandtechnicalassistanceprograms-onetotesttheeffectivenessofselectedonlinedisability-relatedtrainingmodulesandtheothertodevelopinnovativeoutreachandtrainingapproachesdirectedtowardthehospitalityindustry.
NIDRRProgramDirectoryFY2008-ADATechnicalAssistancePrograms8-13ADATechnicalAssistanceProjectsADATechnicalAssistanceProjectsRegionX-AK,ID,OR,andWADisabilityandBusinessTechnicalAssistanceCenter(DBTAC)—NorthwestUniversityofWashingtonTheCenterforContinuingEducationinRehabilitation6912220thStreetSW,Suite105MountlakeTerrace,WA98043dbtacnw@u.
washington.
eduwww.
dbtacnorthwest.
org/PrincipalInvestigator:KatheMatrone,PhD425/771-7436PublicContact:800/949-4232(V/TTY,AK,ID,OR,andWA);425/248-2480(V);Fax:425/774-9303ProjectNumber:H133A070048StartDate:August01,2008Length:48monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY07$467,600;FY08$1,105,000Abstract:TheNorthwestDBTACprovidesinformation,training,andtechnicalassistanceontheADAtoeducationalorganizations,employers,advocacyorganizations,stateandlocalgovernments,disabilityserviceorganizations,parents,andindividualswithdisabilitiesinAlaska,Idaho,Oregon,andWashington.
Coreservicesinclude:technicalassistanceprovidedbyphone,Internet,email,andinperson;informationdisseminationinelectronicandprintformats,includingacomprehensivewebsite,quarterlynewsletter,etc.
;educationandtrainingonvariousaspectsoftheADAusingavarietyofmodalities,includingteleconferences,web-basedmultimediaevents,andface-to-face;andtargetedresearchoninterventionsandstrategiesofproblematicareasidentifiedthroughoutreachactivities,suchasbarrierstoemploymentandenhancingemploymentoutcomes.
ContentsRehabilitationResearchandTrainingCenters(RRTCs)3DisabilityandRehabilitationResearchProjects5Fellowships(Distinguished)13Fellowships(Merit)16AdvancedRehabilitationResearchTrainingProjects.
22CapacityBuildingforRehabilitationResearchandTrainingInthearenaofcapacitybuilding,NIDRRhasfocuseditseffortsonthepersonalandprofessionaldevelopmentofscientists,advocates,andpeoplewithdisabilities,andisexpandingthisapproachtoincludedevelopmentofthecapacityofinstitutionsandorganizations,especiallythosethataddresstheneedsofunderservedpopulations.
Attheindividuallevel,NIDRRfocusesoncapacitybuildingtoensureasourceofresearcherstocarryouttheresearchagenda.
Inaddition,NIDRRcapacitybuildingatthislevelenhancestheabilityofresearcherstogenerateusefulnewknowledge.
NIDRRhistoricallyhassoughttoincreasethenumberofindividualsfromunderrepresentedgroupsinthiseffort,particularlythosewithdisabilities.
Attheorganizationalorsystemslevel,NIDRRcapacitybuildingsupportstheframeworkforcarryingoutindividuallevelresearchwork.
Atthesystemslevel,allNIDRRprogramsmaybesaidtoinvolvecapacitybuilding,inthatNIDRRfundingisintendedtoincreasethecapacityofthefieldtoconducthighqualityresearchdirectedatitslong-termgoalsandobjectives.
9-3NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingRehabilitationResearchandTrainingCenters(RRTCs)RehabilitationResearchandTrainingCenters(RRTCs)IllinoisUniversityofIllinoisatChicagoNationalResearchandTrainingCenteronPsychiatricDisabilityUniversityofIllinoisatChicagoCenteronMentalHealthServicesResearchandPolicy1601WestTaylorStreet,4thFloor,M/C912Chicago,IL60612jonikas@psych.
uic.
eduwww.
psych.
uic.
edu/uicnrtcPrincipalInvestigator:JudithA.
Cook,PhD312/355-3921PublicContact:JessicaA.
Jonikas312/355-1696(V);312/422-0706(TTY);Fax:312/355-4189ProjectNumber:H133B050003StartDate:October01,2005Length:60monthsNIDRROfficer:DavidW.
KeerNIDRRFunding:FY05$500,000;FY06$500,000;FY07$500,000;FY08$1,300,000OtherFunding:FY05$800,000CentersforMentalHealthServices(CMHS);FY06$800,000CMHS;FY07$800,000CMHS;FY08$800,000CMHSAbstract:TheUniversityofIllinoisatChicagoNationalResearchandTrainingCenteronPsychiatricDisability(UIC-NRTC)promotesaccesstoeffectiveconsumer-centeredandcommunity-basedprac-ticesforadultswithseriousmentalillness.
TheCenterisconductingfiverigorousresearchprojectstoenhancethestateofevidence-basedpractice(EBP)inthisfield:Arandomizedcontrolledtrial(RCT)studyofWellnessRecoveryActionPlanning(WRAP)togatherevidenceregardingitseffectiveness;anRCTtoevaluatetheeffectivenessofBRIDGES,a10-weekpeer-lededucationcoursedesignedtoprovidementalhealthconsumerswithbasiceducationabouttheetiologyandtreatmentofmentalillness,self-helpskills,andrecoveryprinciples;anRCTofpeersupportservicesdeliveredbyGeorgia'sCertifiedPeerSpecialistsatconsumer-runPeerSupportCentersinordertodeterminetheoutcomesofservicerecipients;aself-directedcareprograminwhichadultswithseriousmentalill-nessesaregivencontroloffinancialresourcestoself-directtheirownrecovery;andaprojectusingdatafrom12clinicaltrialsstudiesofconsumer-operatedserviceprogramstocreateanationaldatarepositorytopromoteresearchanddevelopscholarshipinthisarea.
TheCenteralsoconductsstateofthearttraining,dissemination,andtechnicalassistanceprojectsdesignedtoenhancetheleadershipskillsofpeoplewithpsychiatricdisabilities,andevaluateaself-advocacyskillstrainingprogramdeliveredtoclientsofalargepsychosocialrehabilitationagency.
Additionalprojectsevaluateself-advocacyskillstrainingprogramsandimplementtrainingprogramstoprepareconsumerleadersintheStateofCaliforniatotakepartinsystemschangeintheirlocalcommunities.
UIC-NRTCisembarkingonanacademiccurriculumtransformationprojectstartingatUICinthemedical,social,andbehavioralsciencestoincorporateprinciplesofrecoveryandEBPforpeoplewithpsychiatricdisabilities.
TheUIC-NRTCisdesigningandadministeringano-costonlinecertificationprogram,providingcompre-hensiveintroductionofknowledgerequiredbypeerproviders.
Additionally,theUIC-NRTCisprovid-NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-4ingtraininganddevelopingprojectsandtoolstoassistindividualsinrecoverytogaintheskillsneces-saryforcommunityintegrationbyenhancingtheresearchcapacityofthreefederally-fundedconsumer-runTechnicalAssistanceCenters.
Finally,theUIC-NRTCisofferinganannualseriesofonlinework-shops;web-basedcontinuingeducationcourses;andastateofsciencenationalconference(2008)focusingonEBP,researchimplementation,consumer-centeredsystems,workforcedevelopment,andotheremergingtrends.
9-5NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingDisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsConnecticutBuildingResearchCapacityThroughCollaborationamongAmericanIndianTribesinConnecticutandRhodeIslandMashantucketPequotTribalNation1Matt'sPathMashantucket,CT06339fwilkins-turner@mptn-nsn.
govtribalvr.
org/research/PrincipalInvestigator:FeliciaWilkins-Turner,PhDPublicContact:860/396-2105;Fax:860/396-2282ProjectNumber:H133A031706StartDate:November01,2003Length:60monthsNIDRROfficer:DeloresWatkinsNIDRRFunding:FY03$294,057;FY04$336,824;FY05$349,984;FY06$329,797;FY07$347,274;FY08(No-costextensionthrough12/31/2008)Abstract:ThisprojectbuildscapacityamongfourAmericanIndiantribestoimprovethequalityofhealthanddisabilityserviceinformationavailablefortribesinConnecticutandRhodeIsland.
Fourobjectivesachievethisgoal:(1)toinvestigateaccessto,andacceptanceratesforVRservices,typesofservicesprovided,andVRcostsforAmericanIndianswithdisabilities;(2)toensuretheoptimalcollaborationofConnecticutandRhodeIslandIndiantribesandothersindisabilityandrehabilitationresearch,(3)tomaximizepotentialforrecruitmentofAmericanIndianresearchers;and(4)toinvesti-gateandevaluatetheparticipationofAmericanIndiansindisabilityandrehabilitationresearchactivi-tiesanddirectservicedelivery,anddeterminetowhatextentparticipationleadstoimprovedVRoutcomes.
AllstaffwastrainedintheParticipatoryActionResearchmodel,andculturallyappropriateresearchmethodologyutilizingtheexpertiseoftheAmericanIndianRehabilitationResearchandTrainingCenteratNorthernArizonaUniversity.
AnexperiencedseniorrehabilitationresearcherisusedasmentortotheResearchCoordinator,throughdevelopmentoftwosurveysfordatacollection.
TwograduatestudentsanalyzethedataandserveasmentorsfortheResearchTechnicians(tribalmembers)whoarehiredtocollectthedatawithintheirowncommunities.
Dataresultsaresharedwitheachofthefourparticipatingtribes(MashantucketPequot,EasternPequot,Schaghticoke,andNarragansett)andwiththeConnecticutBureauofRehabilitationServicesthroughtheAdvisoryCounciloftheMashantucketPequotVocationalRehabilitationProgram.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-6DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsIllinoisCenterforStrategicCapacityBuildingonMinoritieswithDisabilitiesResearchUniversityofIllinoisatChicagoDepartmentofDisabilityandHumanDevelopment(M/C626)1640WestRooseveltRoadChicago,IL60608www.
disabilityempowerment.
org/PrincipalInvestigator:FabricioE.
Balcazar,PhD312/413-1646PublicContact:312/413-1806(V);312/413-0453(TTY);Fax:312/413-1804ProjectNumber:H133A040007StartDate:October01,2004Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY04$600,000;FY05$600,000;FY06$600,000;FY07$600,000;FY08$600,000Abstract:TheCenterforCapacityBuildingonMinoritieswithDisabilitiesResearch(CBMDR)increasesthecapacityofcommunity-basedorganizations(CBOslikeCentersforIndependentLivingandotheragencies)andStateVocationalRehabilitation(VR)Agenciestodocumenttheimpactoftheirprogramsanddevelopculturallycompetentservices.
TheCBMDRutilizesparticipatoryresearchmethodologiestopromoteorganizationalchange.
TheCenter'smissionistopromotepositiverehabili-tationoutcomesforminorityindividualswithdisabilitiesatthenationallevel.
Centerstaffconductsparticipatoryresearchanddemonstrationprojectsincollaborationwithinterestedagencies,engagesinactivedisseminationefforts,andprovidesstate-of-thearttrainingandtechnicalassistanceonculturalcompetencetoprofessionalsandresearchersinthefield.
Presently,thereisalimitedunderstandingoftherelationshipbetweenminorityanddisabilitystatusandhowitaffectsanindividual'saccesstoqualityrehabilitation,technicaltraining,orindependentlivingservicesthatwillresultincompetitiveemploymentandincreasedindependence.
Inaddition,CBOsareunderincreasedpressurefromfunderstouseresearchmethodstoimprovethequalityoftheservicestheyprovide.
TheCenterutilizesaparticipatoryprogramevaluationmodelwhichactivelyinvolvesconsumersandagencystaffintheprocessofidentifyingserviceneeds,selectingprogramgoals,developingalogicmodelforsuccess,andimplementingandevaluatingchangeeffortstoaddresscriticalneedsandimproveservices.
Fromthisperspective,participatingagenciesdeveloptheircapacityforeffectivelyusingconsumerinputandprogramdatatoidentifyresearchquestionsandmethodstoimproveservices.
Inaddition,researchprojectsexaminevariousaspectsoftheory,methodology,measurement,anddisseminationofinforma-tioninvolvingthestudyofunderrepresentedminoritieswithdisabilities.
Specifically,theprojectstudiesissuesrelatedtoracialidentityandculturalmistrustinserviceprovisiontominoritypopulations;reviewstheculturalandlinguisticappropriatenessofcommonlyusedevaluationinstrumentsinVRcertification;developsstandardsforculturallycompetentandlinguisticallyappropriateresearchandservices;andidentifiespreferredstrategiesforthedisseminationofresearchfindingsandotherrelevant9-7NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraininginformationtoresearchersandserviceproviders.
Centerstaffisalsoinvestedinpromotingculturalcompetenceamongresearchersandpractitionersfromaroundthecountry.
Theresearchinitiativesincludebothquantitativeandqualitativemethodologies.
Partnershipswithuniversities,stateVRagencies,andCBOsmaximizetheoutreacheffortsandlong-lastingeffectofthecenter.
TheCenterdevelopsspecifictechniquesforensuringthattheinformationisdisseminatedinaccessibleformatstoallstakeholders.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-8DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewHampshireBuildingKnowledgeandCapacityintheRehabilitationandRecoveryofAfrican-AmericansSufferingfromSevereMentalIllness:TheDartmouth-HowardCollaboration.
DartmouthCollegeDartmouthPsychiatricResearchCenter2WhipplePlace,Suite202Lebanon,NH03766PrincipalInvestigator:RobWhitley,PhD;WilliamLawson,MD,PhDPublicContact:603/448-0263(Whitley);202/865-6611(Lawson);Fax:603/448-3976ProjectNumber:H133A080063StartDate:October01,2008Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY08$354,345Abstract:ThegoalofthethreeprojectsconductedbythiscenteristounderstandthebroadserviceexperienceofAfrican-Americansinpsychiatricrehabilitation.
Thefirstprojectassessestheinfluenceonrehabilitationoflivinginindependenthousingunitsinsmall,relationship-centeredbuildingsthataccommodateotherpeopleinrecoveryfrommentalillness.
Sevenofthesesmallcommunities,eachwithapproximately120apartments,arethefocusofthisproject.
ThesearelocatedinandaroundWashingtonDC,andarestudiedlongitudinallyforthreeyearsusingfocusgroups,interviews,andethnographytoassessinfluenceoflivinginsuchabuildingonrecoveryandcommunityintegration.
ThesecondprojectexaminestheprocessofrehabilitationforAfrican-Americanswithaco-occurringseverementalillnessandsubstanceusedisorder.
Participantsarethosewhoseprimarysubstanceuseisillegaldrugs,andwhoarereceivingeither(i)dualdiagnosiscasemanagement;(2)casemanagementplusgrouptherapy;or(3)casemanagementpluscontingencymanagement.
Participantsarefollowedquantitativelyandqualitativelyover18monthstoassesshowAfricanAmericansrespondtothesetreatments,aswellastheirsubjectiveperceptionoftreatmentdeliveryandimpact.
ThefinalprojectisastudyoftheserviceexperienceofAfrican-Americansinsupportedemployment.
Participantsinsixdifferentsupportedemploymentprogramsareassessedquantitatively,fordrop-outs,engagement,andmissedappointments,andqualitativelythroughinterviewsandparticipantobservationtounderstandthedynamicsofthepatient-providerinteraction.
Theaimofthisresearchistoassesstheculturalcompetenceofsuchprograms,withant:eyetobuildingimprovedmodelstailoredtoAfrican-Ameri-cans.
ThisresearchinvolvesacollaborationbetweenDartmouthPsychiatricResearchCenterandHowardUniversityCollegeofMedicine,DepartmentofPsychiatry.
9-9NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingDisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsNewYorkTowardEquity:Innovative,CollaborativeResearchonInterpreterTraining,DBT,andPsychologicalTestingUniversityofRochesterDepartmentofPsychiatryDeafWellnessCenter300CrittendenBoulevardRochester,NY14642robert_pollard@urmc.
rochester.
eduwww.
urmc.
rochester.
edu/dwc/scholarship/Equity.
htmPrincipalInvestigator:RobertPollard,PhDPublicContact:585/275-3544;Fax:585/273-1117ProjectNumber:H133A031105StartDate:July01,2003Length:60monthsNIDRROfficer:BonnieGracerNIDRRFunding:FY03$299,900;FY04$299,848;FY05$299,985;FY06$299,727;FY07$299,935;FY08(No-costextensionthrough12/1/2008)Abstract:Theresearchactivitiesofthisprojectfocusonthreethematiccategories:mentalhealthinterpreting,dialecticalbehaviortherapy,andpsychologicaltesting.
TheinterpretertrainingprojectbuildsupontheDeafWellnessCenter's(DWC)priorinnovationsininterpretertrainingandappliesthemtofourgeographicallydispersedurbansettings.
Ateamofexpertsinthementalhealthinterpret-ingfieldemploystheDWC'sdemand-controlschemaapproachandimplementsafive-monthprogramoftrainingandsupervisionwithalocalinterpreterpool.
Dialecticalbehaviortherapy(DBT)isahighlystructuredtreatmentapproachfocusingonemotionalregulationandbehavioralself-control.
Thethree-partDBTprojectadaptsDBTmaterialsandmethodstomaximizetreatmentaccessandefficacywiththreedeafconsumerpopulations:thosewithlanguageskills,thosewithlimitedlanguage,andthosewithcomorbidpsychiatricandsubstanceabuseproblems.
TheSignedPairedAssociatesTestandtheASLStoriesTestaretestsofverballearningandmemoryforsignlanguageusers.
TheextensivedatathatexistsattheDWCregardingthetests'psychometricpropertiesandclinicalutilityimplicationsareanalyzed.
Thisresearchhasimplicationsfortheassessmentofdementias,developmentaldisabilities,learningdisabilities,etc.
Asecondtestingprojectisthedevelopmentofapsychosissymptomratingscale.
Thegoalistoproduceatoolthatclinicianscanemploytoreliablyandvalidlyidentifythenatureandseverityofpsychoticsymptomatologyindeafindividuals.
Finally,theprojectincludesapsycho-logicaltestingcasebook,writtenbasedonreviewsofhundredsofDWCpsychologicaltestingcasefiles.
Mostofthestudiesaremulti-site,collaborativeventures.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-10DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsSouthCarolinaCenteronHealthOutcomesResearchandCapacityBuildingforUnderservedPopulationswithSCIandTBIMedicalUniversityofSouthCarolinaCollegeofHealthProfessionsDepartmentofRehabilitationSciences77PresidentStreet,Suite117POBox250700Charleston,SC29425cokerj@musc.
eduwww.
musc.
edu/chp/sciorg/PrincipalInvestigator:JamesS.
Krause,PhD843/792-1337PublicContact:JenniferCoker,MPH843/792-7051;Fax:843/792-5649ProjectNumber:H133A080064StartDate:October01,2008Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY08$353,133Abstract:Thisprojectbuildsthecapacityofinstitutionsthataddresstheneedsofunderservedpopula-tionsby:(a)conductingtwoinnovativestudiestogeneratenewknowledgeonthehealthofthreeunderservedracial-ethnicgroupswithtraumaticneurologicinjuries;(b)providingcapacitybuildingthroughcollaborationwithSouthCarolinaStateUniversity,ahistoricBlackuniversity,specializedinstructionofundergraduateandgraduatestudents,andwidespreadtrainingtoinstitutionsandorgani-zationsthatrepresentunderservedpopulations;and(c)providingtechnicalassistancetoawidearrayoftargetaudiencestoenhancethecapacitytomeettheneedsofunderservedpopulations.
InStudy1,researchersinterview500African-Americansfrompopulation-basedsurveillancesystemswithSCIorTBIandcomparetheirhealthbehaviors,accesstoservices,andtheprevalenceofchronicdiseaseswithAfrican-Americansinthegeneralpopulation(basedonCDCsurveillance).
Researchersthenidentifytheextenttowhichdisparitiesobservedinthegeneralpopulationaremagnifiedafterinjury.
Study2involvesinterviewswith836participantswithSCI,575ofwhomcomefromunderservedpopulations(African-Americans,Hispanics,andAmericanIndians)inordertoidentifypsychological,environmental,andbehavioralpredictorsofsecondaryhealthconditions.
Mediationalmodelsaretestedtoidentifytheriskandprotectivefactorsmoststronglyassociatedwithdisparitiesinhealthoutcomes(e.
g.
,pain,depression,pressureulcers)andtheextenttowhichdisparitiesdisappearwhenaccountingforthesefactors.
Researchersalsodeterminewhetherthepredictivemodelisinvariantacrossrace-ethnicity(i.
e.
,whetherthesignificantpredictorsarethesameacrossdifferentracial-ethnicgroups)and,ifnot,whichpredictorsaremostimportantforeach.
Capacitybuildingeffortsincludeworkshops,mentorshipofundergraduateandgraduatestudents,andtechnicalassistance.
9-11NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingDisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsTexasMinorityScholar/ChampionResearchTrainingProjectTexasSouthernUniversity3100CleburneAvenueHouston,TX77004www.
tsu.
edu/academics/continue/research/index.
aspPrincipalInvestigator:IrvineE.
Epps,EdD713/313-7224PublicContact:MarieA.
Henry713/313-7225;Fax:713/313-7579ProjectNumber:H133A031704StartDate:December01,2003Length:60monthsNIDRROfficer:ShelleyReevesNIDRRFunding:FY03$350,000;FY04$349,655;FY05$349,889;FY06$348,986;FY07$349,222;FY08(No-costextensionthrough11/30/2009)Abstract:TheMinorityScholars/ChampionsResearchTrainingProjectdevelops,implements,andevaluatestheeffectivenessofatrain-the-trainer"Scholar/Champion"modeltofacilitateincreasedandimprovedvocationalrehabilitation(VR)/disabilityresearchamongthetargetedHistoricallyBlackCollegesandUniversities(HBCUs).
Morespecifically,theprojectdevelopsaninnovativeresearchinfrastructureofinstitutional"cores"thatpartneranHBCU,TexasSouthernUniversity(TSU),withamajorityresearchinstitution,BaylorCollegeofMedicine(BCM).
Together,thesepartnerinstitutionscreateacollaborativeresearchinfrastructurethatincreasesresearchcapacityandhelpsbuildaninstitu-tionalresearchinfrastructureatfiveadditionalHBCUsinTexas.
These"cores"are:(1)theAdministra-tive,Planning,andEvaluationCoredirectstheCenter,selectsCenterparticipants,andsupervisesevaluationofallprojectactivities,budgets,andreports;(2)theTrainingCoreusesinnovativemethodsofonsiteandoff-sitetrainingtorecruit,support,andmentorminorityinvestigatorsintheareasofresearchdesign,development,andimplementation,includinganalysisofracialandculturalfactorsrelatedtoVR/disabilityresearch;(3)theCommunityCollaborationandDisseminationCorepartnerswithcommunitiesandVR/disabilityagenciestoengageindividualswithdisabilitiesinresearchandtraining,usingamodelofparticipatoryaction-orientedresearch,anddisseminatesculturally-sensitiveinformationrelatedtoVR/disabilityresearchtocommunitygroups,agencies,andVR/disabilityre-searchers;and(4)theResearchCoreworkswiththeHBCUScholar/ChampionstoconductinnovativeandrigorouspilotresearchprojectsaswellaswritefullydevelopedresearchproposalsthataddressracialdisparitiesinVR/disabilityresearch.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-12DisabilityandRehabilitationResearchProjectsDisabilityandRehabilitationResearchProjectsVirginiaEmpowerment:BuildingResearchInfrastructureCapacityVirginiaCommonwealthUniversityDepartmentofRehabilitationCounseling730EastBroadStreet,Room3070POBox980330Richmond,VA23298anlewis@vcu.
eduPrincipalInvestigator:AllenLewis,PhDPublicContact:804/827-0914;Fax:804/828-1321ProjectNumber:H133A080060StartDate:October01,2008Length:60monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY08$356,550Abstract:Thisprojectidentifiesandevaluatescurrentpracticeandmethodsintheconductofminoritydisabilityresearch,offersresearchfindings,andimprovesthecapacityofminorityinstitutionsandpersonswithdisabilitiestoeffectivelyconductanddisseminatesuchresearchtherebyadvancingthestateoftheartandcapacityinthisresearcharea.
Theprojectconductsthreeprimarystudies:(1)anationalsurveythatexaminestheexperiencesofAmericanswithdisabilitiesfromunderrepresentedracialandethnicminoritygroupstoilluminatethecurrentcapacityofthepublicrehabilitationanddisabilitysystem,andwhatresearchmethods,disseminationpractices,andstrategiesareneededtoadvanceculturallycompetentresearchinthefield;(2)alongitudinalstudyofpost-injuryunemploy-mentforminoritypersonswithtraumaticbrainandspinalcordinjuries;and(3)prevalenceandtrendsinemploymentdiscriminationduetodisabilityfordifferentethnicgroups.
Inadditiontothesethreestudies,theprojecthassevenobjectives:(1)establishmeaningfulcollaborationsandpartnershipswithhistoricallyblackuniversities;(2)conveneamajorThinkTankSummitinYear1thatbecomesanongoingMinorityDisabilityResearchConsortium;(3)createandimplementanongoinginteractivewebportal;(4)mentorinterestedminoritystudentsandfacultymembers;(5)infuseminoritydisabilityresearchbestpracticesintoresearchcourses;(6)teachgrantwritingandpublishingskills;and(7)conductaState-of-the-ScienceConference.
TheproceedingsfromsuchaconferenceandtheresultsfromthethreestudiesleadtoamajorprojectoutcomeofaHandbookonMinorityDisabilityResearch.
Otherprojectoutcomesincludebutarenotlimitedtopublishedpapersfromthethreestudies;ana-tionalnetworkofindividualswithdisabilitiesandminoritiesfromwhichtheefficacyofresearchanddisseminationpracticescanbeevaluatedinanongoingmanner;awebdatabaseofexemplaryresearchstudies,andtrainedminoritystudentsanduniversityfacultywhocanimplementminoritydisabilityresearchbestpracticesidentifiedbythiseffortandproducemoreresearch,includingfundedresearchviaNIDRRgrants,inthefuture.
9-13NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingFellowships(Distinguished)Fellowships(Distinguished)IllinoisMulti-Joint/DOFsDiagnosisandTreatmentofUpperLimbinPatientsPostStrokeUsinganExoskeletonRobotHyungSoonPark,PhD345E.
SuperiorStreet,Suite1406Chicago,IL60611h-park4@northwestern.
eduPrincipalInvestigator:HyungSoonPark,PhDPublicContact:312/238-1425;Fax:312/238-2208ProjectNumber:H133F080021StartDate:September01,2008Length:12monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$75,000Abstract:Thisprojectevaluatestheeffectivenessofupperlimbstrokerehabilitationusinganexoskel-etonrobottoprovideaccurateandquantitativemulti-joint/degreeoffreedom(DOF)diagnosisonpathologicalchangesandtreatment.
Theexoskeletonrobotenableseffectivestrokerehabilitationusinguniquediagnosticcapabilitiesforindividualpatientsto:(1)determinewhichjointsandwhichDOFshavesignificantchangesintheirneuro-mechanicalproperties,whichjointsloseindependentcontrol,whattheabnormalcouplingsare,andwhethertheproblemisduetochangesinpassivemuscleproper-tiesoractivecontrolcapabilities;(2)basedonthediagnosis,forcefullystretchthehypertonic/deformedjointsofthepost-strokepatientundermulti-jointintelligentcontrol,therebylooseningproblematicorstiffjointsandreducingabnormalcouplingsbetweenjoints/DOFs;and(3)encouragingpatientstopracticevoluntaryfunctionalmovementtoregain/improvetheirmotorcontrolcapability.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-14Fellowships(Distinguished)Fellowships(Distinguished)MarylandDemographicSoup:DisentanglingtheConceptual,Political,andMethodologicalDimensionsofDisabilityStatisticsBarbaraAltman14608MelindaLaneRockville,MD20853paul.
altman@verizon.
netPrincipalInvestigator:BarbaraAltmanPublicContact:301/460-5963ProjectNumber:H133F060011StartDate:December01,2006Length:12monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY06$75,000;FY07(No-costextensionthrough11/30/2008);FY08(No-costextensionthrough11/30/2009)Abstract:Therearevariancesindisabilityresearchincludinghowinformationisobtainedandcon-vertedintouseabledata.
Thisprojectbringstogether,inonedocument,theaccumulationofknowledgeonmeasuringdisabilityinsurveyandcensuscontexts.
Throughtheincorporationofseveralmethod-ologiesincludinghistoricalreview,analysisofpoliticalprocessesanddecision-making,andcompleteexaminationofthesource,placement,andevaluationofdisabilitymeasurescurrentlyinuse,thebookmanuscriptcontributestotheimprovementofdisabilitystatistics,servingasareferencedocumenttounderstandingthedatathatexists.
Thebookmanuscriptisdividedintofivesections:(1)examinationofthepoliticalandhistoricalcontext,whichincludeschaptersonthehistoryofdisabilitymeasurement;(2)examinationoftheconceptualizationanddefinitionofdisability,includingchaptersonthepoliticaldefinitionsforprogrammaticpurposesandtheoreticaldefinitions;(3)examinationofthescience,purpose,andrelationshipbetweenthecomponentsofmeasurement,andthespecificproblemswithmeasurementinrelationtospecialpopulations(i.
e.
children);(4)reviewsofsampleanalysisandtheuseofdataincludingsourcesofdata,researchquestions,andspecialfocusonmeasuresusedinspecialareasofresearch(i.
e.
agingandemployment);and(5)explorationofinternationalmeasurementofdisabilityandtheroleoftheUSinitsdevelopment.
Conclusionsincluderecommendationsforimprov-ingandstandardizingthemeasurementanddatacollectionprocess.
9-15NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingFellowships(Distinguished)Fellowships(Distinguished)MassachusettsAMixedMethodsStudyofParenting,Children,andRecoveryinMotherswithSeverePsychiatricDisabilitiesJoanneNicholson,PhDCMHSR/DepartmentofPsychiatryUniversityofMassachusettsMedicalSchool55LakeAvenueNorthWorcester,MA01655joanne.
nicholson@umassmed.
eduPrincipalInvestigator:JoanneNicholson,PhDPublicContact:508/856-8712;Fax:508/856-8700ProjectNumber:H133F080009StartDate:July01,2008Length:12monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY08$75,000Abstract:Thisprojectexplorestherelationshipbetweenparenting,children,andrecoveryformotherswithseverepsychiatricdisabilities.
Targetpopulationsinclude:(1)parentswithseverepsychiatricdisabilities,(2)theirfamilymembers,(3)providers,and(4)policymakers.
Atriangulation,mixedmethodsdesignemploysqualitativeandquantitativedataobtainedfrom70motherswithatleast1minorchildinthehomeatstudyenrollment,6-,and12-monthfollow-ups.
Qualitativedataisobtainedconcurrently,fromapproximately36oftheirchildrenbetweentheagesof8and17atthe3datacollectionpoints.
Thequalitativedatafrommothersandchildrenisthencross-tabulatedbyandinte-gratedwithquantitativedatafrommothers,exploringtheperson-centeredelementsofrecoverythrough:(1)themothers'parentingexperiences;(2)elaboratingontherelationshipbetweenchildren'swell-beingandcontributiontofamilylife;and(3)theirmothers'recoveryoverthe12-monthperiod.
Theprojectdevelopsamodeloftherelationshipsbetweenparenting,children,andrecoveryinadultswithpsychiatricdisabilities;andpresentstheopportunitiesandtargetsforinterventionsanddevelop-mentsinmentalhealthandchildwelfarepolicyandpractice.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-16Fellowships(Merit)Fellowships(Merit)IllinoisVirtualReality-BasedAssessmentToolforSpatialNeglectFollowingStrokeAssafY.
Dvorkin,PhD345EastSuperiorStreet,Suite1406Chicago,IL60611a-dvorkin@northwestern.
eduPrincipalInvestigator:AssafY.
Dvorkin,PhDPublicContact:312/238-5828;Fax:312/238-2208ProjectNumber:H133F080010StartDate:July01,2008Length:12monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY08$65,000Abstract:Thisprojectinvestigatesthepossibilitiesofroboticsandvirtualrealitytechnologyinspatialneglectfollowingstroke.
Ahaptic/graphicvirtualrealitysystem(VRROOM)isdevelopedandusedinassessingandquantifyingperceptualperformanceandoverallmovementquality.
Thedataprovidestherapistsandphysicianswithamoreprecisequantitativedescriptionofapatient'ssensoryandmotordeficitsindifferentspatialdimensionsandprovidesarationalbasisforimprovingcurrentneuropsycho-logicalassessmentmeasures.
9-17NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingFellowships(Merit)Fellowships(Merit)IllinoisDevelopmentofaNeural-MachineInterfaceforLower-LimbProsthesisControlHeHuang,PhDUniversityofRhodeIslandDepartmentofElectrical,Computer&BiomedicalEngineeringFourEastAlumniAvenueRoomA-116KelleyAnnexKingston,RI02881Helen-Huang@northwestern.
eduwww.
ric.
org/research/centers/necal/staff/Huang.
aspxPrincipalInvestigator:HeHuang,PhD312/238-2084PublicContact:Fax:312/238-2081ProjectNumber:H133F080006StartDate:September01,2008Length:12monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY08$65,000Abstract:Theprojectimprovesthefunctioningofartificiallegsbyintroducingvoluntaryprosthesiscontrolattheneurologicallevelthroughneural-machineinterfaces(NMI)suchaselectromyographypatternrecognitionandtargetedmusclereinnervationwitharmandlegprosthetics.
TheNMIdesignsimprovethefunctionofarmprosthesesandprovidepossibilitiesforimprovementwithlegprosthesesbasedonaninformation-fusionandphasedependentpatternrecognitionmodel.
Thismodelprovidesreliableandtimelyrecognitionofintendedusermovementsforvoluntaryprostheticlegcontrol,andpermitspeoplewithlower-limbamputationstoperformvariousactivitieseasilyandefficiently.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-18Fellowships(Merit)Fellowships(Merit)MassachusettsASurveyofPostsecondaryDisabilityServicesUsebyStudentswithPsychiatricDisabilitiesAnneP.
Sullivan-Soydan,ScD63WashingtonDriveActon,MA01720apsoydan@bu.
eduPrincipalInvestigator:AnneP.
Sullivan-Soydan,ScDPublicContact:978/266-9567ProjectNumber:H133F080030StartDate:August01,2008Length:12monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY08$65,000Abstract:Thisprojectinvestigatestheservicesprovidedbypostsecondarycampus-basedofficesofdisabilitysupportservices(DSS)acrosstheUnitedStatestostudentswithseriouspsychiatricdisabili-ties.
Therearethreeprojectobjectives:(1)documentuseofservicesprovidedbypostsecondarycampus-basedDSSofficestostudentswithseriouspsychiatricdisabilitiesacrossthetenRSAfederalregions;(2)explorefacultyperspectivesontheneedsandimpactofDSSstudentswithseriouspsychi-atricdisabilities;and(3)disseminatestudyfindingstothefieldsofmentalhealth,postsecondaryeducation,andrehabilitationcounseling,usingprint,web-based,andpresentationformats.
Aweb-basedsurveyisusedtogatheredinformationaboutthetypesofDSSoffered,providerexperienceandcredentials,thenumberofstudentswithpsychiatricdisabilitiesserved,frequencyofserviceuse,andstudentserviceandenrollmentoutcomes.
Telephoneinterviewsareconductedwithselectfacultydrawnfromtheparticipatingpostsecondaryeducationinstitutions.
9-19NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingFellowships(Merit)Fellowships(Merit)MichiganPsychometricEvaluationoftheFamilyQualityofLifeSurveyforMinorityFamiliesPreethySamuel,PhD4809WoodwardAvenue268LeonardSimonsBuildingDetroit,MI48202preethy@wayne.
eduPrincipalInvestigator:PreethySamuel,PhDPublicContact:313/577-8562;Fax:313/577-3770ProjectNumber:H133F080024StartDate:September01,2008Length:12monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY08$65,000Abstract:Thelong-termgoaloftheprojectistoevaluatethepotentialofempowermentfamilysup-portprojectsinimprovingthefamilyqualityoflife(FQOL)ofunderservedfamiliesusingaculturally-sensitiveandrigorousoutcomemeasure.
HencetheprojectevaluatesthepsychometricsoftheFamilyQualityofLifeSurvey(FQOLS)formeasuringtheFQOLoflow-income,innercity,minorityfamiliesraisingchildrenwithdevelopmentaldisabilities.
Therearefourprojectgoals:(1)toestablishtheconstructvalidityandreliabilityoftheFQOLSbyanalyzingthefactorialstructureofeachoftheninefamilialdomains;(2)toestablishthetest-retestreliabilityoftheFQOLS;(3)toestablishtheconvergentvalidityoftheFQOLSwiththeBeachCenterFQOLScaleandtheFamilyCommunityIntegrationSurvey;and(4)toanalyzethefactorsinfluencingtheFQOLoflow-incomeminorityfamiliesraisingchildrenwithdisabilities.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-20Fellowships(Merit)Fellowships(Merit)PennsylvaniaPhysicalandSocialEnvironmentalFactorsthatInfluenceHealthandParticipationOutcomesforChronically-IllAdultsJanetA.
Prvu-Bettger,ScDUniversityofPennsylvaniaSchoolofNursingNewCourtlandCenterforTransitionsandHealth3625ChestnutStreet,#334RalstonHousePhiladelphia,PA19104janetpr@nursing.
upenn.
eduPrincipalInvestigator:JanetA.
Prvu-Bettger,ScDPublicContact:617/901-0277ProjectNumber:H133F080014StartDate:July01,2008Length:12monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY08$65,000Abstract:Thisprojectexploresthefactorsofhealthandparticipationoutcomesamongolderadultswithchronicconditionswhoarelivinginthecommunitywithorwithoutdisabilities.
Consideringindividualfactorssuchasinformal,formal,andsocietalsupports,therearethreeresearchobjectives:(1)determiningthedirectandindirecteffectofsocialcapitalinacommunityonhealthandparticipa-tionoutcomes;(2)identifyingtherelationshipbetweenhealthandparticipationoutcomeswithmea-suresoftheneighborhood;and(3)assessingtherelationshipofthesubjectivemeasureofperceivedsocialcapitalandtheobjectivemeasuresoftheneighborhoodfortheircollectiveinfluenceonthehealthandcommunityparticipationofolderadultswithandwithoutdisabilities.
Theprojectdevelopsresearchaimedtoimprovecommunitypractice,policy,andthehealthsystemtoassistadultswithachievingindependence,allowingforgreaterparticipationandsocialinvolvement.
9-21NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingFellowships(Merit)Fellowships(Merit)PennsylvaniaSkinBloodFlowOscillationsandPressureUlcerRiskinOlderAdultswithDisabilitiesYih-KuenJan2310JaneStreet,Suite1300Pittsburgh,PA15203yij2@pitt.
eduPrincipalInvestigator:Yih-KuenJanPublicContact:412/586-6912;Fax:412/586-6910ProjectNumber:H133F060025StartDate:December01,2006Length:12monthsNIDRROfficer:A.
CateMiller,PhDNIDRRFunding:FY06$65,000;FY07(No-costextensionthrough11/30/2008)Abstract:Pressureulcerssignificantlyaffectthequalityoflifeandoverallhealthcarecostsforolderpeoplewithdisabilities.
CurrentclinicalpressureulcerpreventioninthispopulationisinadequateduetopreventioninterventionsdeterminedtobeatriskbytheBradenScaletool.
Thisprojectdevelopsalternativemethodsandtoolsfortheidentificationofolderpeopleatthehighestriskforpressureulcers.
Specificaimsinclude:(1)comparingmicrovascularvasodilatoryfunctionandbloodflowoscillationsbetweenolderpeopleathighandlowriskofpressureulcers;and(2)studyingtheage-relatedmicrovasculardysfunctioninolderpeople,correlatingtorisklevelsidentifiedbytheBradenScale,andtothephysicalcharacteristicsofolderpeople.
Fourhypothesizesaretestedincluding:(1)maximalskinbloodflowinresponse:toheatislowerinolderpeopleatriskforpressureulcersascomparedwitholderpeopleatlowrisk;(2)thepowerwithinthe0.
008-0.
02Hzfrequencyband(i.
e.
endothelialnitricoxidemediationcontrol)embeddedinskinbloodflowoscillationsislowerinolderpeopleathighriskascomparedwitholderpeopleatlowrisk;(3)thepowerwithinthe0.
008-0.
02Hzfrequencybandislowerinolderpeopleages75-85yearsascomparedwitholderpeopleages65-75years;and(4)physicalcharacteristicsmissedintheBradenScaleofolderpeopleshowacorrelationwiththedecreasedtotalskinbloodflowand/ordecreasedpowerwithinnitricoxidemediationvasodi-lation.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-22AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsIllinoisRehabilitationScienceforBasicScientistsandEngineers:AnAdvancedTrainingProgramNorthwesternUniversityRehabilitationInstituteofChicago345EastSuperior,Room1406Chicago,IL60611-4496r-millard@northwestern.
eduPrincipalInvestigator:W.
ZevRymer,MD,PhDPublicContact:RobinMillard312/238-6051;Fax:312/238-2208ProjectNumber:H133P040007StartDate:May01,2004Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY04$149,625;FY05$149,922;FY06$149,570;FY07$149,910;FY08$149,558Abstract:ThegoalofthisprogramistoincreasethenumberofPhDengineersandbasicscientiststrainedtoperformresearchaimedatsolvingproblemsofpeoplewithdisabilities.
Tomeetthisobjec-tive,theprojecttrainspostdoctoralscientistsinthreeareasofspecialexpertise:musculoskeletalbiome-chanics;neurorehabilitation;andprosthetics,orthotics,andbiomaterials.
Targetedtechnicaltrainingiscoordinatedwithintensiveclinicalinstructionandexperience.
Postdoctoraltrainees,includingscien-tistsandengineersfromminorityordisabilitygroups,arerecruitedbyregionalandnationaladvertisingandviatheInternet.
ManytrainingfacultyarebasedwithintheRehabilitationInstituteofChicago,providingaccesstoactiveclinicalrehabilitationprograms,andinteractionbothwithclinicalfacultyandpeoplewithdisabilities.
el:9-23NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsIllinoisAdvancedTraininginTranslationalandTransformationalResearchtoImproveVocationalOutcomesforPersonswithDisabilitiesUniversityofIllinoisatChicagoDepartmentofOccupationalTherapy1919WestTaylorStreetMC811Chicago,IL60612kielhfnr@uic.
eduPrincipalInvestigator:GaryKielhofner,PhDPublicContact:312/996-4973;Fax:312/413-0256ProjectNumber:H133P060003StartDate:September01,2006Length:60monthsNIDRROfficer:LeslieJ.
Caplan,PhDNIDRRFunding:FY06$150,000;FY07$150,000;FY08$150,000Abstract:Thisprojectprovidesanintensive,interdisciplinarypostdoctoraltrainingprogramthatactivelyengagesscholarsinresearchdesignedtoimproveemploymentforpersonswithdisabilities.
Thisadvancedtrainingprogramfocusesonsub-populationsofpeoplewithdisabilitieswhoarelikelytoencounterthegreatestnumberofbarrierstoaccessingemploymentandrelevantvocationalservices.
Moreover,thetrainingprogramemphasizespreparingscholarstoconductresearchthathasrealworldimpact(i.
e.
,guidingandchangingservices,programs,organizations,andpoliciesthatinfluenceemploymentofpersonswithdisabilities).
Assuchitemphasizes:(1)translationalscholarshipthatusesempiricalknowledgetodevelop,refine,andtestoptimalservicesandenvironmentalstrategiestosupportemployment;and(2)transformationalscholarshipemployingparticipatorymethodologiesthatinvolvestakeholdersintheresearchprocessanddirectlyimproveservices,programs,organizations,andpolicies.
Thetrainingisstronglyinformedbyconceptsfromdisabilitystudiesthathighlighttheimportanceofrelevantservicesthataddresstheperspectivesofpersonswithdisabilitiesandthataddressenvironmentalbarrierstoemployment.
Thepostdoctoraltrainingprogramrecruitsandenrollssevenhighlyqualifiedpostdoctoraltraineesfromavarietyofdisciplines.
Particulareffortsaremadetorecruitpostdoctoraltraineeswithdisabilitiesaswellasthosefromdiversebackgrounds.
Eachtraineecompletesanintensivetwo-yearadvancedtrainingprogramdesignedtoassureacquisitionofkeyskillscriticaltosuccessfulresearchcareers.
Thetrainingprogramincludes:(1)didacticpreparation,(2)closementoringbyhighlyqualifiedresearchers,(3)immersioninongoingresearch,and(4)fieldplacementincarefullyselectedprogramsororganizationswhereemploymentofpeoplewithdisabilitiesisbeingaddressed.
Traineesundergoastructuredandcloselysupervisedtrainingprocesswitharangeofopportunitiesfordidacticandexperientialtrainingandwithcommonexpectedmilestones.
Atthesametime,eachtrainee'sprogramisindividuallydesignedtoassurethatthetraineehasaccesstothemostrigorousandrelevantconceptsandresearchmethodologiesforhis/herchosenfocusforstudyingvocationalneeds,services,andoutcomes.
Theprojectmonitorsandassureshighqualitytraining,andsupportstraineestodevelopcapacitytoenterproductiveresearchcareersthatdirectlyimproveser-vices,programs,andpoliciesandthatremovebarrierstotheemploymentofpeoplewithdisabilities.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-24AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsIllinoisAdvancedRehabilitationResearchTrainingProjectinRehabilitationServicesResearchNorthwesternUniversityRehabilitationInstituteResearchCorporationCenterforRehabilitationOutcomesResearch345EastSuperiorStreetChicago,IL60611a-heinemann@northwestern.
eduwww.
ric.
org/research/fellowships.
phpPrincipalInvestigator:AllenW.
Heinemann,PhDPublicContact:312/238-2802;Fax:312/238-4572ProjectNumber:H133P080006StartDate:July01,2008Length:60monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY08$150,000Abstract:Thisprojectprovidestrainingtosevenpost-doctoralfellowsaspartoftheInstitute-ledhealthservicestrainingprogramatNorthwesternUniversity.
Thiswell-functioninginterdisciplinaryprograminvolvesasubstantialnumberofhealthservicesresearchfacultywhoworkcloselywithoneanothertodirectarigorousandrelevantinterdisciplinarycurriculumfortraininghealthservicesre-searchers.
Theprogramincludescarefullymatchedmentors,didacticcoursework,originalresearch,grantwriting,andscientificpublishingoveratwo-yearprogram.
Sevenfellowsdevelopnewskillstoenhancetheirprevioustraininginordertopursuearesearchcareerinrehabilitation-relatedhealthservicesresearch.
9-25NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsMassachusettsPost-DoctoralFellowshipinRehabilitationOutcomesandEffectiveResearchBostonUniversityMedicalCampusSchoolofPublicHealthHealthandDisabilityResearchInstitute580HarrisonAvenueBoston,MA02118rmonarch@bu.
eduwww.
bu.
edu/cre/trainingPrincipalInvestigator:AlanM.
Jette,PhD617/638-1985PublicContact:RoseanneMonarch617/638-1992;Fax:617/638-1992ProjectNumber:H133P050001StartDate:September01,2005Length:60monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY05$150,000;FY06$150,000;FY07$150,000;FY08$150,000Abstract:TheBUPost-DoctoralFellowshipPrograminOutcomesResearchprovidesaninterdiscipli-narytrainingandmentorshipexperience.
Thetargetgroupisdoctorally-preparedrehabilitationprofes-sionals.
Themajorfunctionistohelppost-doctoralfellowsdevelopandrefinetheskillstheywillneedtoconducthighquality,independent,fundedresearchontheoutcomesandeffectivenessofrehabilita-tioncare.
Innovativestrategiesinclude:Obtainingadvancedknowledgeinthefourcontentareasofresponsibleconductofresearch,advancedresearchdesign,advancedstatisticalmethods,andcontem-porarymeasurementmethodology;conceptualizingandassumingamajorroleinwritingscientificarticles;obtainingexperienceindevelopingandpresentingscientificpresentations;assumingamajorroleinwritingresearchgrantapplications;anddevelopingtheabilitytocontributeinameaningfulandconstructivefashioninplanningandimplementingscientificabstracts,grantapplications,andscientificmanuscriptsaspartofaresearchteam.
Themainoutcomeoftheprogramistocontributetothecre-ationofacadreofhighlyskilledresearchersequippedtoconductresearchtoimproverehabilitationoutcomesandevaluateexistingandnewrehabilitationinterventions.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-26AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsMassachusettsAdvancedResearchTrainingPrograminPsychiatricRehabilitationBostonUniversitySargentCollegeofHealthandRehabilitationSciences940CommonwealthAvenueBoston,MA02215-1303zlatka@bu.
eduwww.
bu.
edu/SARPSYCHPrincipalInvestigator:ZlatkaRussinova,PhD;E.
SallyRogers,ScD;PublicContact:617/353-3549;Fax:617/353-7700ProjectNumber:H133P070001StartDate:September01,2007Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY07$149,986;FY08$149,994Abstract:Thisprojectconductstwoconsecutivecyclesof2.
25yearpostdoctoralfellowshipinpsy-chiatricrehabilitationresearch,offeredtosixfellowsoverthecourseoftheproject.
Therecruitmenteffortstargetconsumers,withtheexpectationofselectingoneormoreconsumers.
Inordertooptimizethetrainingexperience,threefellowsareinresidenceduringeachcycle.
Whilethefellowshipisdesignedtoprovideabroad-basedintensivetraininginpsychiatricrehabilitationresearch,thesixfellowsdevelopaparticularexpertiseinconductingrecoveryorientedresearchgiventhecurrentresearchprofileoftheCenterforPsychiatricRehabilitationatBostonUniversity.
Throughavarietyoftrainingmodalitiesfellowsacquirecompetenciesinthefollowingareas:psychiatricrehabilitationandrecoveryframework;consumeradvocacyandself-help;researchdesign/methodology;statistics;computerliteracy;conductofappliedrehabilitationresearch;andgrantandprofessionalwriting.
Thegoalsofthisprojectareto:recruitsixindividualswithdoctoral-levelclinicaltrainingwhoarecommit-tedtopursuingacareerinpsychiatricrehabilitationresearch;providefellowswithintensivestate-of-the-artdidacticexperienceaswellasexposuretocollegialcollaborationrelevanttopsychiatricrehabili-tationresearch;providefellowswitharesearchpracticumconsistingofamentoredparticipationinanongoingprojectinpsychiatricrehabilitationorrecovery,developmentandimplementationofanoriginalpilotstudyandpreparationofagrantsubmissionandpublicationsrelevanttoeachfellow'sareaofresearchinterest;andevaluatetheoverallresearchtrainingprogram,includingrecruitment,didactictraining,andresearchpracticum.
9-27NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsMichiganTheUMHS/MSU/AACILRehabilitationResearchTrainingProgramUniversityofMichiganDepartmentofPhysicalMedicineandRehabilitationRehabilitationPsychology325EastEisenhower,Suite100AnnArbor,MI48108dgtate@umich.
eduwww.
med.
umich.
edu/pmr/arrtpPrincipalInvestigator:DeniseG.
Tate,PhD,ABPPPublicContact:734/936-7052;Fax:734/936-7048ProjectNumber:H133P030004StartDate:September01,2003Length:60monthsNIDRROfficer:PhillipBeatty,PhDNIDRRFunding:FY03$150,000;FY04$150,000;FY05$150,000;FY06$150,000;FY07$150,000;FY08(No-costextensionthrough08/31/2009)Abstract:TheUniversityofMichiganHealthSystem(UMHS),DepartmentofPhysicalMedicineandRehabilitation,andtheAnnArborCenterforIndependentLiving(AACIL)withconsultingfacultyfromMichiganStateUniversity(MSU)andWayneStateUniversity(WSU)havedevelopedatrainingprogramtotrainsixPhDandtenMDfellows.
TrainingopportunitiesincludetheexistingresearchprogramsfundedatUMHS,theacademicdoctorallevelrehabilitationcounselingprogramatMSU,themultidisciplinaryrehabilitationprogramatWSU,andopportunitiesforresearchtrainingatacommu-nity-basedagency,theAACIL.
Emphasizingtheconsumer-scientist-practitionermodel,thismultidisciplinaryresearchtrainingprogramutilizesfacultyandresourcesfrom3universitiesandfromtheAACILtotrain16newfellows.
Fellowsandresidenttraineesmayselectfromacurriculumthatfocusesonthreecontentareas:(1)healthrehabilitationoutcomes;(2)independentlivingandcommu-nityre-integration;and(3)social/environmentalaspectsofrehabilitation,includingassistivetechnol-ogy.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-28AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsMissouriHealthActivityRehabilitationResearchTrainingCenter(HARRTC)UniversityofMissouri/ColumbiaDepartmentofPhysicalMedicineandRehabilitationDC046.
00OneHospitalDriveColumbia,MO65212holtmeyerk@health.
missouri.
eduharrtc.
missouri.
eduPrincipalInvestigator:JerryC.
Parker,PhD573/884-0042PublicContact:KimHoltmeyer,GrantAdministrator573/884-1499;Fax:573/884-4540;573/884-3020ProjectNumber:H133P050005StartDate:September01,2005Length:60monthsNIDRROfficer:ScottBrown,PhDNIDRRFunding:FY05$150,000;FY06$150,000;FY07$150,000;FY08$150,000Abstract:ThespecificaimoftheHealthActivityRehabilitationResearchTrainingCenteristopreparepostdoctoraltraineeswithcomprehensive,collaborativeresearchskillsrequisiteforacareerinindependentrehabilitationresearch.
Akeyoutcomeofthisprojectisasustainable,replicabletrainingmodelthatenhancestheflowofbasicresearchfindingstoclinicalsettings,therebyenhancingrehabili-tationstrategiesforindividualswithdisabilities.
One-thirdofprojectfellowsareselectedfromunderrepresentedpopulations,includingindividualswithdisabilities.
Postdoctoralfellowsstudyarigorous,two-yearcorecurriculuminadvancedscientificmethodology,andengageinmultidisciplinarytrainingexperiencesthrough:(1)collaboratingagencies;(2)campusandcommunitysettings;(3)researchmentors(scientists)fromBiomedicalSciences,PhysiologyandPharmacology,NutritionSciences,andPhysicalTherapy;and(4)rehabilitationclinician-mentors.
Thetrainingpro-gramincorporatesdidactic,classroom,andhands-onlaboratorytraining.
Bytheconclusionoftraining,postdoctoralfellowswillhavecompletedasupervisedindependentresearchproject,preparedscientificmanuscripts,presentedtheirresearchfindingsatnationalmeetings,andsubmittedtheircapstoneproject,anextramuralgrantapplication.
Thisprogramoffersfellowsadualmodelofmentorship:aclinicalmentorandascientistresearchmentor.
Inaddition,agraduate-thesisresearchmodelprovidesfellowswithfirst-handresearchexperience.
9-29NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsNewJerseyAdvancedPsychiatricRehabilitationResearchonEmploymentandCommunityIntegrationUniversityofMedicineandDentistryofNewJerseySchoolofHealthRelatedProfession1776RaritanRoadScotchPlains,NJ07076-2997kgill@umdnj.
eduPrincipalInvestigator:KennethJ.
Gill,PhDPublicContact:908/889-2438ProjectNumber:H133P050006StartDate:September01,2005Length:60monthsNIDRROfficer:EdnaJohnson,PhDNIDRRFunding:FY05$149,999;FY06$149,999;FY07$150,000;FY08$150,000Abstract:Thisprojectoffersapostdoctoralresearchtrainingprogramintheareasofcommunityintegration,naturalsupportsincluding"circlesofsupport",andrehabilitationreadiness.
FellowsparticipateinavarietyofmentoringanddidacticexperiencesprovidedbyresearchmentorsfromUMDNJandtheUniversityofPennsylvania.
Fellowshavetheopportunitytocontinuetodeveloptheirownlong-termresearchprogramwhileparticipatingintheresearchactivitiesoftheirmentor.
Theyregularlypresentatdepartmentalcolloquia,andnationalandstateconferences.
Fellowsdevelopgrantproposalsandpreparearticlesforpublicationinpeer-reviewedjournals.
Bothdidacticandfieldtraininginpsychiatricrehabilitationresearchfocusonscientificmethodologyincludingexperimental,quasi-experimental,andcorrelationalandsurveymethods.
Fellowsparticipateinresearchinoneofthefollowingresearchareas:(1)comparingalternativejobretentionstrategiesincludingcircleofsupportapproachtoadiversityofstrategies;(2)thereliabilityandvalidityofrehabilitationreadinessmeasuresandindicatorsincludingtheirrelationshiptoemploymentoutcomes;and(3)avarietyofcommunityintegrationprojectsonthefactorsthatinfluencecommunityintegration,publicpolicyaffectingthecommunity,interventionsdesignedtopromotecommunityintegrationthroughcasemanagement,andInternet-basedself-helporsupportededucationprovidedbypeers.
PartnerinstitutionsincludetheUniversityofPennsylvaniaRRTConCommunityIntegration,UPennSchoolofSocialWork,IndianaUniversity-PurdueUniversitySchoolofPsychology,BostonUniversitySargentCollegeofHealth&RehabilitationandtheVeteransAffairsofNewJersey.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-30AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsNewJerseyAdvancedRehabilitationResearchTrainingCenteronNeuro-musculoskeletalRehabilitationUniversityofMedicineandDentistryofNewJersey/NewJerseyMedicalSchool(UMDNJ/NJMS)andKesslerMedicalRehabilitationResearchandEducationCenter(KMRREC)1199PleasantValleyWayWestOrange,NJ07052PrincipalInvestigator:SueAnnSisto,PT,PhDPublicContact:973/243-6888;Fax:973/243-6984ProjectNumber:H133P070007StartDate:September01,2007Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY07$149,559;FY08$149,847Abstract:Thispost-doctoralresearchinterdisciplinarytrainingprogramonneuro-musculoskeletalrehabilitationprovidespostdoctoralresearchopportunitiestoqualifiedindividualsinterestedinre-search,andacademiccareersrelatedtorehabilitationresearch.
Overthecourseoftheprogram,ninepostdoctoralfellowsplan,conduct,anddisseminateresearch,andmaychoosetoconductresearchinneuro-musculoskeletalrehabilitation.
EachARRTfellowconductsrehabilitationresearchforatwo-yearterm.
Anticipatedmeasurableoutcomesincludepublishedresearchstudies,presentationsatnationalscientificmeetings,submissionofgrantproposals,completionofresearchrelatedcourses,trainingintechniquesofdissemination,andthedevelopmentofinterdisciplinaryresearchnetworks.
Inadditiontoparticipationinresearchactivities,eachfellowcompletesaseriesofcorecoursesanddirectedstudyoninterdisciplinaryresearch,HIPAA,andtheethicsfortherecruitmentofhumansubjectsinrehabilitationresearch.
Theactivitiesofeachpostdoctoralfellowaredirectedandmonitoredbyafellowshipmentorwithademonstratedabilitytoimplement,conduct,anddisseminatetheresultsofresearchinvestigationscontributingtotheadvancementofrehabilitationscience.
Corefacultyinvolvedintheprogramrepresentdepartments/divisionsofphysicaltherapy,occupationaltherapy,rehabilitationscience,biomedicalengineering,biomechanics,computerscience,andmechanical-aerospaceengineering.
Thegoalofthisprojectistoprovideyounginvestigatorsastimulatingenviron-ment,withanatmosphereofenthusiasmtemperedbyrigorousmethodologythatinstillsthedesiretoimprovetheeverydaylivesofpersonswithdisabilities.
9-31NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsNewYorkAdvancedRehabilitationResearchTrainingProgramMountSinaiSchoolofMedicineDepartmentofRehabilitationMedicineOneGustaveL.
LevyPlaceBox1240NewYork,NY10029mary.
hibbard@mssm.
eduwww.
mssm.
edu/tbinetPrincipalInvestigator:MaryR.
Hibbard,PhD212/659-9374PublicContact:212/659-9374;Fax:212/348-5901ProjectNumber:H133P050004StartDate:September01,2005Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY05$149,999;FY06$149,999;FY07$149,999;FY08$149,999Abstract:ThisAdvancedRehabilitationResearchTrainingProgramincreasesresearchcapacitybytrainingtendoctorallevelprofessionalsinterestedinpursuingresearchcareersinrehabilitationofindividualswithtraumaticbraininjury(TBI)andspinalcordinjury(SCI).
Inadditiontoexpandingtheirresearchexpertise,fellowswillincreasetheirknowledgeofparticipatoryactionresearchandquantitativeandqualitativeresearchmethods,andactivelyparticipatewithaninterdisciplinaryteamofrehabilitationresearchers.
Fellowsaretaughtapproachestoperformancemanagementandmethodsofevidenced-basedpracticereview.
Researchcapacitybuildingofthefellowsisfacilitatedviamentoringonindependentresearchprojectsandclinicalsupervisionininterdisciplinaryresearchexperiences.
ToensuresensitivitytoissuesgermanetoindividualswithTBIandSCI,fellowsspendaportionoftheirtimeprovidingclinicalinterventionsorparticipatinginstructuredcommunityexperiences.
Performancemeasuresareutilizedtomonitorprogressoftheprogramanditsfellows,withoversightprovidedbyanexecutivecommitteeandanadvisoryboard.
Bycompletionoftraining,fellowsareexpectedtohavecompletedaminimumofoneindependentresearchproject,presentedtheresultsoftheirresearchtoprofessionalandconsumergroups,submittedtheirfindingsforpublicationinpeer-reviewedjournals,andparticipatedinwritingextramuralgrantproposals.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-32AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsNewYorkAdvancedRehabilitationResearchandDisabilityPolicyTrainingCenterSyracuseUniversitySchoolofEducation259HuntingtonHallSyracuse,NY13244jlbellin@syr.
eduPrincipalInvestigator:JamesL.
Bellini,PhDPublicContact:315/443-9655ProjectNumber:H133P070004StartDate:August01,2007Length:60monthsNIDRROfficer:DawnCarlson,PhD,MPHNIDRRFunding:FY07$149,986;FY08$149,994Abstract:Thisprojectprovidesadvancedtraininginrehabilitationresearchoutcomesanddisabilitypolicyresearchforseventraineesoverthelifeoftheproject.
Theprojectoffersanindividualizedtrainingprogramtoaccommodatetheneedsofvariouspostdoctoralresearchersandotherswithad-vanceddegreeswhoholdleadershippositionsinrehabilitationresearchandrelatedpolicyareas.
Participantscanpursueoneoftwotraineeships:full-time,two-year(fourtrainees)andfull-time,one-year(threetrainees).
Theprojectoffersasetofcoretrainingexperiences,including:advancedrehabili-tationresearchseminar;individualmentoringinresearchandgrantproposal-writing;apracticuminresearchethicsandhumansubjectsprotections;andapracticuminthepeer-reviewprocessandedito-rialdecision-making.
Traineesalsoselectadvancedtraininginoneoftwostrands:rehabilitationout-comesresearchanddisabilitypolicyresearch.
Eachstrandincludes9-15creditsofcourseworkinadvancedrehabilitationresearchordisabilitypolicyresearch(withaCertificateofAdvancedStudyinDisabilityStudies)andaninternshipatarehabilitationordisabilitypolicyresearchproject.
Traineecapstoneexperiencesincludethepreparationandsubmissionofpeer-reviewedarticles,conferencepapers,orgrantproposalsaswellasthepreparationofresearchtrainingpackagesfordisseminationthroughtheproject.
9-33NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsTexasInterdisciplinaryRehabilitationResearchTrainingProgramUniversityofTexasMedicalBranch301UniversityBoulevardGalveston,TX77555-1137kottenba@utmb.
eduwww.
sahs.
utmb.
edu/rehabPrincipalInvestigator:KennethJ.
Ottenbacher,PhDPublicContact:BethCammarn409/747-1637;Fax:409/747-1638ProjectNumber:H133P040003StartDate:July01,2004Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY04$145,686;FY05$145,686;FY06$145,686;FY07$145,686;FY08$148,023Abstract:ThisARRTprogramprovidespostdoctoralresearchopportunitiestoqualifiedindividualsinterestedinclinicalandacademiccareersrelatedtorehabilitationresearch.
Threepostdoctoralfellowsmustplan,conduct,anddisseminateresearchinoneofthefollowingareas:cognitive/neurologicalrehabilitation,appliedphysiology/biomechanicsofrehabilitation,orgeriatricrehabilitation.
Eachrehabilitationresearchfellowselectsoneofthethreeresearchareasandconductsclinicalinvestigationsforuptothreeyears.
Outcomesincludepublishedresearchstudies,presentationsatnationalscientificmeetings,submissionofgrantproposals,completionofresearchrelatedcourses,trainingintechniquesofdissemination,andthedevelopmentofinterdisciplinaryresearchnetworks.
Inadditiontoparticipat-inginclinicalresearchactivities,eachfellowcompletesaseriesofcorecoursesanddirectedstudyrelatedtointerdisciplinaryresearchandtheethicsassociatedwithscientificinquiryandtheuseofhumansubjectsinrehabilitationresearch.
Allfellowsparticipateinapracticumexperienceinvolvingpersonswithdisabilitiesandtheirfamilies/caregiversorganizedthroughtheTransitionalLearningCenter.
Theactivitiesofeachpostdoctoralfellowaredirectedandmonitoredbyafellowshipsupervi-sorwithademonstratedabilitytoimplement,conduct,anddisseminatetheresultsofresearchinvesti-gationscontributingtotheadvancementofrehabilitationscience.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-34AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsTexasAdvancedRehabilitationResearchTrainingBaylorCollegeofMedicineDepartmentofPhysicalMedicineandRehabilitationOneBaylorPlazaHouston,TX77030drintala@bcm.
tmc.
edupublic.
bcm.
tmc.
edu/pm&r/education/Fellowships/RehabResearch.
htmlPrincipalInvestigator:DianaH.
Rintala,PhD713/664-1996PublicContact:KarstenaOckelberry713/797-5940;Fax:713/797-5982ProjectNumber:H133P020003StartDate:October01,2002Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY02$150,000;FY03$150,000;FY04$150,000;FY05$150,000;FY06$150,000;FY07(No-costextensionthrough9/30/2008);FY08(No-costextensionthrough9/30/2009)Abstract:Thepurposeofthisprogramistotrainpost-doctoralfellowsintheskillsnecessarytobecomeindependentinvestigatorsinrehabilitation.
Thismeansthatthepersonmustbecompetentineachmajorfacetoftheresearchprocess:problemidentification,analysisofthecurrentstateofknowl-edge,hypothesisgenerationbasedonfamiliaritywithapplicabletheory,researchprojectdesign,masteryofrelevanttechniquesandinstrumentation,statisticalanalysis,interpretationoffindings,andpreparationoftechnicalreportsandpublications.
Throughthisprogram,fellowsdevelopresearchexpertiseinspinalcordinjury,stroke,Parkinson'sdisease,amputeerehabilitation,neuropsychologicalrehabilitation/cognitiveneuropsychology,andrehabilitationoutcomesandsocialpolicy.
Mentorsforthisprogramare12facultymemberswhohavesubstantialextramuralfundingforresearchandaredirectorsof,oraffiliatedwith,oneormoreoftheDepartment's8researchcenters.
Theirdisciplinesincludephysiatry,neuropsychology,socialpsychology,rehabilitationcounseling,nursing,rehabilita-tionengineering,andphysicalandoccupationaltherapy.
Mentorsdevelopanindividualizedtrainingplanforeachfellowthatincludes(1)participationinresearchprojectsoftheprimaryandsecondarymentors,(2)developmentandimplementationofanindependentresearchproject,and(3)requireddidacticcoursework.
Fellowsareexpectedtopresentandpublishtheirindependentresearchandpreparegrantapplications.
Theyalsoattend,andsubmitabstractsforpresentationatnationalprofes-sionalmeetingstobegintointegrateintothegreaterrehabilitationresearchcommunity.
Fellowsareevaluatedatleasteverysixmonths.
Sincetheinceptionofthefellowship,fivefellowshavebeenrecruitedwhohavecompletedtheirfellowshiptraining.
FundingforasixthfellowissharedwithafellowshipprogramsponsoredbyNIH.
Long-termfollow-uphasoccurredandwilloccurannuallyforatleastfiveyearsafterthefellowsleavetheprogramtodeterminewhetherthegoalofproducinghighlyqualified,productiverehabilitationinvestigatorshasbeenmet.
9-35NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsTexasAdvancedRehabilitationResearchTrainingBaylorCollegeofMedicineDepartmentofPhysicalMedicineandRehabilitationOneBaylorPlaza,Room600dHouston,TX77030PrincipalInvestigator:FayeC.
Tan,MDPublicContact:713/873-3875;Fax:713/873-3874ProjectNumber:H133P080007StartDate:July01,2008Length:60monthsNIDRROfficer:KennethD.
Wood,PhDNIDRRFunding:FY08$150,000Abstract:Thepurposeofthisprogramistotrainpost-doctoralfellowsintheskillsnecessarytobecomeindependentinvestigatorsinrehabilitation.
Fellowsmustbecompetentineachmajorfacetoftheresearchprocess—problemidentification,analysisofthecurrentstateofknowledge,hypothesisgenerationbasedonfamiliaritywithapplicabletheory,researchprojectdesign,masteryofrelevanttechniquesandinstrumentation,statisticalanalysis,interpretationoffindings,andpreparationoftechnicalreportsandpublications.
Throughthisprogram,fellowsdevelopresearchexpertiseinoneoftwopotentialtrainingtracts:(1)traumaticbraininjury/strokeor(2)spinalcordinjury.
Foreachtrack,theInternationalClassificationofFunctioning,DisabilityandHealth(ICF)cell-to-societymodelhasbeenappliedsothatthefellowcanselectfromanyportionofthespectrumforhis/herareaofresearchfocus.
Mentorsforthisprogramdevelopanindividualizedtrainingplanforeachfellowthatincludes(a)participationinresearchprojectsoftheprimaryandsecondarymentors,(b)developmentandimplementationofanindependentresearchproject,and(c)requireddidacticcourseworkdrawnfromtheBaylorCollegeofMedicineFundamentalsofClinicalInvestigationwithintheClinicalScientistTrainingProgram(K-30)andtheDepartmentofPhysicalMedicineandRehabilitation.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-36AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsVirginiaAdvancedResearchTrainingProgramVirginiaCommonwealthUniversityDepartmentofMedicineandRehabilitationBox980542Richmond,VA23298-0542www.
npy.
pmr.
vcu.
edu/arrt/overview.
htmPrincipalInvestigator:JeffreyKreutzer,PhD804/828-9055PublicContact:LeeLivingston804/828-3706;Fax:804/828-2378ProjectNumber:H133P040006StartDate:October01,2004Length:60monthsNIDRROfficer:RuthBrannonNIDRRFunding:FY04$150,000;FY05$150,000;FY06$150,000;FY07$150,000;FY08$150,000Abstract:Thisprojectisanadvancedrehabilitationresearchtraining(ARRT)programforindividualswithadvanceddegreeswhoarecommittedtoacareerinrehabilitationresearchwithafocusonneurobehavioralrecoveryandintervention.
Trainingandresearchactivitiesaddressbraininjury,aneurysms,braintumors,andotherneurologicaldisorders.
Individualizedresearchtrainingplansemphasizingscientificrigorguidefellows'choicesoftrainingactivities.
Outstandingmentors,didacticexperiences,andcollaborativeandindependentresearchactivitiesprovidethefoundationfortheVCUARRTprogram.
Mentorsincludeinternationallyandnationallyrenowned,distinguishedscientistsfromthefieldsofrehabilitationmedicine,neuropsychology,psychiatry,neurosurgery,andvocationalrehabilitation.
Corecoursesonethics,conductinscientificresearch,andgrantwritingarecomple-mentedbygrandroundsandgraduatecourses.
Allfellowsmustcompleteandsubmitagrantapplica-tionduringthesecondyearoftheirfellowship.
9-37NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsWashingtonUniversityofWashingtonAdvancedRehabilitationResearchTrainingUniversityofWashingtonDepartmentofRehabilitationMedicine1959NEPacificStreetBox356490Seattle,WA98195-6490PrincipalInvestigator:DeborahKartin,PTPhD;KurtJohnson,PhDPublicContact:TBA206/598-5338;Fax:206/685-3244ProjectNumber:H133P080008StartDate:July01,2008Length:60monthsNIDRROfficer:TheresaSanAgustin,MDNIDRRFunding:FY08$149,491Abstract:TheprimarygoaloftheUW-ARRTistoincreasethenumberofsuccessfulindependentrehabilitationresearcherswhonotonlyunderstandtheirownareaoffocus,butalsohaveaworkingknowledgeofotherrelatedRehabilitationSciencefieldsandhaveexperienceininteractingwithexpertswhoareknowledgeableintheseotherareas.
Tothatend,UW-ARRTprovidesadvancedrehabilitationresearchtrainingforfivetosixhighlyqualifiedpostdoctoraltraineestoenablethemtobecomesuccessfulrehabilitationresearchersandtoconductformativeandsummativeevaluationofthetraining.
UW-ARRTfocusesondevelopmentofrehabilitationresearcherswithemphasisondesignandimplementationofrehabilitationresearch,disseminationofresearch,andgrantwriting.
Thecom-prehensivetrainingprovides:(1)immersioninamentoredrehabilitationresearchexperiencebymatch-ingpostdoctoraltraineeswithhighlysuccessfulrehabilitationresearchersand(2)complementarydidactics(CoreandIndividualized)tosupporttrainees'developmentasrehabilitationresearchers.
CoreCurriculumisbuiltonanon-goingbimonthlyseminarspecificallydesignedto:(1)teachandenhancethecriticalskillsnecessaryforasuccessfulresearchcareer(ageneralresearchskillsseminartobeheldonce/month)and(2)provideforinteractionamongtraineesinterestedindevelopingsuccessfulre-searchcareersinRehabilitationSciencesandaninterdisciplinarycohortofmentors/advisorswhohaveactiveandsuccessfulRehabilitationSciencesresearchprograms.
TheIndividualizedDidacticCurricu-lumallowsapostdoctoraltraineetoenroll,asneeded,inadditionalcourseworkinresearchmethods,statisticalanalysis,andrehabilitationscience.
NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTraining9-38AdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsWisconsinClinicianResearchersandEngineers:AdvancedRehabilitationResearchTrainingMarquetteUniversityOrthopaedicandRehabilitationEngineeringCenter735North17thStreetP.
O.
Box1881Milwaukee,WI53201depps@mcw.
eduwww.
orec.
orgPrincipalInvestigator:GeraldF.
Harris,PhD414/288-0698PublicContact:DeborahEpps,ProjectAdministrator414/288-0696;Fax:414/288-0713ProjectNumber:H133P040008StartDate:September01,2004Length:60monthsNIDRROfficer:ThomasCorfmanNIDRRFunding:FY04$150,000;FY05$150,000;FY06$150,000;FY07$150,000;FY08$150,000Abstract:Thisprogramprovidesadvancededucationandtraininginrehabilitationresearchtoselectedengineersandclinicianresearchers.
Theoverallgoalistodevelopexpertise,enthusiasm,andproduc-tivityinrehabilitationresearchwhichresultsinanincreaseinthenumberofrehabilitation-trainedphysiciansandengineers.
Fellowsaretrainedtoconductindependent,transdisciplinaryresearchonproblemsrelatedtodisabilityandrehabilitation.
Thespecificgoalistoproduceproductivecareerresearchers.
Theprogramisspecificallydesignedtogivethepostdoctoraltraineestheskillsneededtobecomeindependentrehabilitationresearchers.
Thepostdoctoraltraineesexperienceaprogramde-signedtoprovideeachno:candidatewithauniquesetofcapabilitiestosucceedasarehabilitationresearcher.
Thecapstoneexperienceforthepostdoctoraltraineesisthesubmissionofanextramuralresearchproposal.
Threeresearchareashavebeenselectedthatprovideopportunitiestoparticipateinadvanced-levelresearch:motionanalysis,spasticity,andaccessiblemedicalinstrumentation.
Fourclinicalareasgiveparticipantsclinicalexperiencestolinktotheirresearchexperiences:spasticitymanagement,painmanagement,spinalcordinjury,andmotionanalysis.
Aspartoftheprofessionaldevelopmentofthepostdoctoraltraineesandtoincreasetheexposuretorehabilitationresearch,cross-disciplinaryteachingisencouraged.
Atthecompletionoftheprogram,alltraineeshavecompletedadirectedindependentresearchproject,writtenandsubmittedscientificmanuscripts,preparedacom-pleteextramuralgrantproposal,andgainedexperienceinmanagingafunctionalresearchteam.
9-39NIDRRProgramDirectoryFY2008-CapacityBuildingforRehabilitationResearchandTrainingAdvancedRehabilitationResearchTrainingProjectsAdvancedRehabilitationResearchTrainingProjectsWisconsinAdvancedRehabilitationResearchTraininginPediatricMobilityMarquetteUniversityOrthopaedicandRehabilitationEngineeringCenter735North17thStreetP.
O.
Box1881Milwaukee,WI53201depps@mcw.
eduwww.
orec.
orgPrincipalInvestigator:GeraldF.
Harris,PhD414/288-0698PublicContact:DeborahEpps,ProjectAdministrator414/288-0696;Fax:414/288-0713ProjectNumber:H133P080005StartDate:September01,2008Length:60monthsNIDRROfficer:WilliamV.
Schutz,PhD,MSW,MPHNIDRRFunding:FY08$150,000Abstract:Thegoalofthisprojectistodevelopin-depthexpertise,enthusiasm,andproductivityinrehabilitationresearchtoincreasethenumberofphysiciansandengineersqualifiedtoconductinde-pendent,transdisciplinaryresearchonproblemsrelatedtodisability,rehabilitation,andpediatricmobility.
Theprogramisspecificallydesignedtogivepostdoctoraltraineestheskillsneededtobecomeproductive,independentrehabilitationresearchers.
Theresearchcomponentofthetrainingprogramconsistsof3mentorshipteamscapableofprovidinga20-25percentsupporteffortonacontinuedbasis.
Qualifiedtraineesareenrolledintheresearchtrainingprogramfor24to36months.
Threeresearchareas(RAs)supportopportunitiesforcareerorientedcontributionstothefieldofpediatricmobility.
TheRAsareSkeletalandConnectiveTissueBiology,AssistiveDevices,andFootandAnkleMobility.
Fellowshipresearchrequirementsincludepilotstudycompletionandrefinement,multiplejournalarticlesubmissions,andcompletionofextramuralproposal(s).
Thecapstoneexperi-enceforthepostdoctoraltraineesisthecompletionofasponsoredworkshopintheirfieldofstudywithnationallyrecognizedleadersinattendance.
AteamofmentorswithqualificationsspecifictoeachoftheseRAssupportcandidatesenteringtheprogramtoenhancetheircurrentskillsandofferadditional,highleveltrainingandexperience.
SubjectIndexNosubjectindexwascreatedforthisversionoftheNIDRRProgramDirectory.
TheDirectoryre-mainsindatabaseformatatwww.
naric.
com/research/pd.
Thisformatisconsiderablymoreeffectiveforsubject-orientedorganizationofthematerialintheDirectory.
ForassistanceinsearchingtheProgramDirectorydatabase,contactthestaffatNARICat800/346-2742oremailjchaiken@heitechservices.
comGranteesGranteesB-3AbleLinkTechnologies,Inc.
H133S080007ColoradoSprings,CO3-59AbleLinkTechnologies,Inc.
H133S080008ColoradoSprings,CO3-60AbleLinkTechnologies,Inc.
H133S080014ColoradoSprings,CO3-62AbleLinkTechnologies,Inc.
H133S080042ColoradoSprings,CO3-61AbleLinkTechnologies,Inc.
H133S080044ColoradoSprings,CO3-58AbleLinkTechnologies,Inc.
H133S080066ColoradoSprings,CO3-72AdaptiveEnvironmentsCenter,Inc.
H133A060092Boston,MA8-3AdvancedMedicalElectronicsCorporationH133S080068MapleGrove,MN3-76AdvancedMedicalElectronicsCorporationH133S080032MapleGrove,MN3-65AlbertEinsteinHealthcareNetworkH133A070040ElkinsPark,PA2-38AlbertEinsteinHealthcareNetworkH133G050219ElkinsPark,PA2-85AlbertEinsteinHealthcareNetworkH133G060086Philadelphia,PA2-89AlbertEinsteinHealthcareNetworkH133G070143ElkinsPark,PA2-87AlbertEinsteinHealthcareNetworkH133G080066ElkinsPark,PA2-86AnneP.
Sullivan-Soydan,ScDH133F080030Acton,MA9-18AssafY.
Dvorkin,PhDH133F080010Chicago,IL9-16AssistechSystems,LLCH133S080041Eugene,OR4-37BarbaraAltmanH133F060011Rockville,MD9-14BaylorCollegeofMedicineH133G080042Houston,TX4-36BaylorCollegeofMedicineH133P020003Houston,TX9-34BaylorCollegeofMedicineH133P080007Houston,TX9-35BlueSkyDesigns,Inc.
H133S060096Minneapolis,MN3-77BostonUniversityH133A050006Boston,MA7-4BostonUniversityH133B040026Boston,MA4-9BostonUniversityH133G040201Boston,MA2-75BostonUniversityH133G060071Boston,MA4-23BostonUniversityH133G070140Boston,MA4-24BostonUniversityH133P070001Boston,MA9-26BostonUniversityMedicalCampusH133P050001Boston,MA9-25BostonUniversityMedicalCenterHospitalH133N060024Boston,MA2-55CarnegieMellonUniversityH133E080019Pittsburgh,PA3-23CarolinasHealthCareSystemH133A070042Charlotte,NC2-33CarolinasMedicalCenterH133A080035Charlotte,NC2-34Children'sHospitalH133B060012Boston,MA4-10Children'sHospitalMedicalCenterH133G050239Cincinnati,OH4-30Children'sHospitalMedicalCenterH133G060167Cincinnati,OH4-31ClarkeSchoolfortheDeafH133G060116Northampton,MA3-47CornellUniversityH133A060088Ithaca,NY8-4CornellUniversityH133B031111Ithaca,NY5-4CornellUniversityH133B040013Ithaca,NY1-6CornellUniversityH133G040255Ithaca,NY3-49CornellUniversityH133G040265Ithaca,NY5-8CraigHospitalH133A060038Englewood,CO2-19CraigHospitalH133A060103Englewood,CO2-18B-4GranteesCraigHospitalH133A070022Englewood,CO2-20CraigHospitalH133N060005Englewood,CO2-51CreateAbilityConcepts,Inc.
H133S080054Indianapolis,IN3-64CreateAbilityConcepts,Inc.
H133S080075Indianapolis,IN3-75CustomTechnologyLtd.
H133S080023Madison,WI3-71DancingDotsBrailleMusicTechnology,L.
P.
H133S070089ValleyForge,PA3-82DartmouthCollegeH133A080063Lebanon,NH9-8DartmouthCollegeH133G050230Concord,NH1-16DartmouthMedicalSchoolH133G050181Lebanon,NH1-17DrexelUniversityH133G060254Philadelphia,PA2-88DukeUniversityH133A060062Durham,NC3-30DukeUniversityH133E030018Durham,NC3-18DukeUniversityH133E080011Durham,NC3-19DukeUniversityH133G070058Durham,NC4-29FeinbergSchoolofMedicineH133B040032Chicago,IL5-3GallaudetUniversitiyH133E080006Washington,DC3-6GallaudetUniversityH133E030006Washington,DC3-5GallaudetUniversityH133G060065Washington,DC3-36GeorgeMasonUniversityH133A040016Fairfax,VA2-43GeorgiaInstituteofTechnologyH133E030035Atlanta,GA3-7GeorgiaInstituteofTechnologyH133E060061Atlanta,GA3-8GeorgiaInstituteofTechnologyH133E080003Atlanta,GA3-10GeorgiaInstituteofTechnologyCenterforAssistiveTechnologyandEnvironmentalAccess(CATEA)H133E070026Atlanta,GA3-9GeorgiaInstituteofTechnologyCenterforAssistiveTechnologyandEnvironmentalAccess(CATEA)H133G070063Atlanta,GA3-39GeorgiaTechResearchCorporationH133G040324Atlanta,GA3-38HeHuang,PhDH133F080006Kingston,RI9-17HeiTechServices,Inc.
ED-08-CO-0095Landover,MD7-12HunterCollegeofCUNYH133B040014NewYork,NY1-7HyungSoonPark,PhDH133F080021Chicago,IL9-13JanetA.
Prvu-Bettger,ScDH133F080014Philadelphia,PA9-20JFKJohnsonRehabilitationInstituteH133A031713Edison,NJ2-28JFKJohnsonRehabilitationInstituteH133A070030Edison,NJ2-29JoanneNicholson,PhDH133F080009Worcester,MA9-15JohnsHopkinsSchoolofMedicineH133A070045Baltimore,MD2-24KentStateUniversityH133G080158Kent,OH4-32KesslerMedicalRehabilitationResearchandEducationCenter(KMRREC)H133G080136WestOrange,NJ3-48KesslerMedicalRehabilitationResearchandEducationCorporation(KMRREC)H133A070037WestOrange,NJ2-30KesslerMedicalRehabilitationGranteesB-5ResearchandEducationCorporation(KMRREC)H133G070138WestOrange,NJ2-83KesslerMedicalRehabilitationResearchandEducationCorporation(KMRREC)H133N060022WestOrange,NJ2-57KnowledgeAthletes,Inc.
H133S080027Fairport,NY3-66LifeTechnologies,LLCH133S070096Eugene,OR3-79LifeTechnologies,LLCH133S080077Eugene,OR3-80LosAmigosResearch&EducationInstitute,Inc.
H133B031002Downey,CA2-4LouisianaStateUniversityH133A080069BatonRouge,LA4-16MadonnaRehabilitationHospitalH133G070209Lincoln,NE2-80MarquetteUniversityH133E020729Milwaukee,WI3-28MarquetteUniversityH133G060252Milwaukee,WI2-96MarquetteUniversityH133P040008Milwaukee,WI9-38MarquetteUniversityH133P080005Milwaukee,WI9-39MarshallElevatorCompanyH133S050136Pittsburgh,PA3-81MashantucketPequotTribalNationH133A031706Mashantucket,CT9-5MayoClinicH133A070013Rochester,MN2-27Medgraph,Inc.
H133S080013Rochester,NY3-68MedicalCollegeofWisconsinH133G060142Milwaukee,WI3-56MedicalCollegeofWisconsinH133G060155Milwaukee,WI3-57MedicalUniversityofSouthCarolinaH133A080064Charleston,SC9-10MedicalUniversityofSouthCarolinaH133G050165Charleston,SC2-90MedicalUniversityofSouthCarolinaH133G060126Charleston,SC2-91MeetingtheChallenge,Inc.
H133A060079ColoradoSprings,CO8-11MemorialHerman|TheInstituteforRehabilitationandResearch(TIRR)H133G070222Houston,TX2-92MetroHealthSystemH133N060017Cleveland,OH2-59MississippiStateUniversityH133A070001MississippiState,MS1-11MotionControl,Inc.
H133S070084SaltLakeCity,UT3-83MotionControl,Inc.
H133S080017SaltLakeCity,UT3-70MountSinaiSchoolofMedicineH133A070033NewYork,NY2-31MountSinaiSchoolofMedicineH133A080053NewYork,NY2-32MountSinaiSchoolofMedicineH133B040033NewYork,NY2-9MountSinaiSchoolofMedicineH133N060027NewYork,NY2-58MountSinaiSchoolofMedicineH133P050004NewYork,NY9-31NationalPublicRadioH133G060187Washington,DC3-35NationalPublicRadioH133G070093Washington,DC3-37NationalRehabilitationHospital/MedStarResearchInstituteH133N060028Washington,DC2-52NationalRehabilitationHospital/MedStarResearchInstituteH133B031114Washington,DC2-5NewJerseyInstituteofTechnologyH133E050011Newark,NJ3-15NorthCarolinaStateUniversityH133G070135Raleigh,NC3-50NortheasternUniversityH133G070150Boston,MA7-11NorthwesternUniversityH133E080009Chicago,IL3-13B-6GranteesNorthwesternUniversityH133G070089Chicago,IL3-41NorthwesternUniversityH133P040007Chicago,IL9-22NorthwesternUniversityH133P080006Chicago,IL9-24NorthwesternUniversityRehabilitationInstituteResearchCorporationH133A030807Chicago,IL2-21Obslap,Inc.
H133S070082Eugene,OR3-78OhioStateUniversityH133A080023Columbus,OH2-36OhioValleyCenterforBrainInjuryPreventionandRehabilitationH133A070029Columbus,OH2-35ORCMacroED-04-CO-0018/0007SilverSpring,MD7-13OregonHealthandScienceUniversityH133A080031Portland,OR2-37OregonHealthandScienceUniversityH133B040034Portland,OR2-10OregonHealthandScienceUniversityH133G070129Portland,OR3-52OregonHealthandScienceUniversityH133G070214Portland,OR2-84OregonHealthandScienceUniversityH133G080162Portland,OR3-53OregonStateUniversityH133E030009Corvallis,OR3-20PortlandStateUniversityH133B040038Portland,OR4-12PortlandStateUniversityH133G070190Portland,OR4-33PortlandStateUniversityH133G080132Portland,OR4-34PreethySamuel,PhDH133F080024Detroit,MI9-19PublicHealthInstituteH133A060098Oakland,CA8-12RAFModels&DisplaysH133G060284Winston-Salem,NC3-51RehabilitationInstituteofChicagoH133G060124Chicago,IL2-71RehabilitationInstituteofChicagoH133N060014Chicago,IL2-54RehabilitationInstituteResearchCorporationH133A080045Chicago,IL2-23RehabilitationInstituteResearchCorporationH133B031127Chicago,IL2-6RehabilitationInstituteResearchCorporationH133B080031Chicago,IL2-7RehabilitationInstituteResearchCorporationH133G060055Chicago,IL3-40RehabilitationInstituteResearchCorporationH133G060169Chicago,IL2-72RehabilitationInstituteResearchCorporationH133G070074Chicago,IL2-73RehabilitationInstituteResearchCorporationH133E070013Chicago,IL3-12RehabTek,LLCH133S080076Wilmette,IL3-74SantaClaraValleyMedicalCenter(SCVMC)H133A070038SanJose,CA2-16SantaClaraValleyMedicalCenter(SCVMC)H133G080165SanJose,CA2-66SantaClaraValleyMedicalCenter(SCVMC)H133G080168SanJose,CA2-65GranteesB-7SEDLH133A031402Austin,TX7-7SEDLH133A060028Austin,TX7-8SEDLH133A080007Austin,TX1-14SenderoGroup,LLCH133G060035Davis,CA3-33ShepherdCenterH133G070171Atlanta,GA2-69ShepherdCenter,Inc.
H133G080031Atlanta,GA2-70ShepherdCenter,Inc.
H133G080153Atlanta,GA4-20ShepherdCenter,Inc.
H133N060009Atlanta,GA2-53SUNYResearchFoundationH133B080012NewYork,NY5-5SyracuseUniversityH133A060033Syracuse,NY1-13SyracuseUniversityH133A060094Atlanta,GA8-6SyracuseUniversityH133A080014Syracuse,NY4-18SyracuseUniversityH133P070004Syracuse,NY9-32TexasSouthernUniversityH133A031704Houston,TX9-11TheInstituteforRehabilitationandResearch(TIRR)H133A060091Houston,TX8-9TheInstituteforRehabilitationandResearch(TIRR)H133A070043Houston,TX2-42TheInstituteforRehabilitationandResearch(TIRR)H133B031117Houston,TX4-14TheInstituteforRehabilitationandResearch(TIRR)H133N060003Houston,TX2-62TheSandboxLearningCompanyH133G080151Cornelius,NC4-28TheSandboxLearningCompanyH133S080021Cornelius,NC3-69TheSmith-KettlewellEyeResearchInstituteH133A060056SanFrancisco,CA3-29TheSmith-KettlewellEyeResearchInstituteH133E060001SanFrancisco,CA3-3TheUniversityofKansasH133B060018Lawrence,KS4-8TheUniversityofTexasSouthwesternMedicalCenterH133A070024Dallas,TX2-39TheUniversityofTexasSouthwesternMedicalCenterH133A070027Dallas,TX2-40ThomasJeffersonUniversityH133N060011Philadelphia,PA2-60ThroughtheLookingGlassH133A080034Berkeley,CA4-15TouchGraphics,Inc.
H133S080030NewYork,NY3-67TransCen,Inc.
H133A060085Rockville,MD8-5UMBCH133G050354Baltimore,MD3-43UniversityatBuffalo|TheStateUniversityofNewYork|H133A050008Buffalo,NY7-5UniversityatBuffalo|TheStateUniversityofNewYork|H133A080050Buffalo,NY7-6UniversityatBuffalo|TheStateUniversityofNewYork|H133E030025Buffalo,NY3-16UniversityatBuffalo|TheStateUniversityofNewYork|H133E050004Buffalo,NY3-17UniversityatBuffalo|TheStateB-8GranteesUniversityofNewYork|H133G080043Buffalo,NY4-27UniversityofAlabamaH133G050222Birmingham,AL2-64UniversityofAlabama/BirminghamH133A060039Birmingham,AL7-3UniversityofAlabama/BirminghamH133A070039Birmingham,AL2-15UniversityofAlabama/BirminghamH133N060021Birmingham,AL2-50UniversityofArkansasH133A060044LittleRock,AR1-10UniversityofCalifornia,DavisH133B031118Davis,CA2-3UniversityofCalifornia,SanFranciscoH133B031102SanFrancisco,CA4-3UniversityofCalifornia,SanFranciscoH133B080002SanFrancisco,CA4-4UniversityofColoradoH133E040019Denver,CO3-4UniversityofColoradoHealthSciencesCenterH133A070006Denver,CO2-17UniversityofColoradoHealthSciencesCenterH133G070163Boulder,CO5-6UniversityofDelawareH133G080047Newark,DE3-34UniversityofIllinoisatChicagoH133A040007Chicago,IL9-6UniversityofIllinoisatChicagoH133A060066Chicago,IL2-22UniversityofIllinoisatChicagoH133A060097Chicago,IL8-7UniversityofIllinoisatChicagoH133B050003Chicago,IL9-3UniversityofIllinoisatChicagoH133B080009Chicago,IL4-6UniversityofIllinoisatChicagoH133E070029Chicago,IL3-11UniversityofIllinoisatChicagoH133G060224Chicago,IL4-21UniversityofIllinoisatChicagoH133G070006Chicago,IL2-74UniversityofIllinoisatChicagoH133G080120Chicago,IL3-42UniversityofIllinoisatChicagoH133P060003Chicago,IL9-23UniversityofKansasH133B031133Lawrence,KS4-7UniversityofKansasH133G060238KansasCity,KS4-22UniversityofMassachusettsBostonH133A080042Boston,MA4-17UniversityofMassachusettsBostonH133B070001Boston,MA1-3UniversityofMedicineandDentistryofNewJerseyH133P050006ScotchPlains,NJ9-29UniversityofMedicineandDentistryofNewJersey/NewJerseyMedicalSchool(UMDNJ/NJMS)and|KesslerMedicalRehabilitationResearchandEducationCenter(KMRREC)H133P070007WestOrange,NJ9-30UniversityofMiamiH133G070119Miami,FL2-67UniversityofMiamiH133G080150Miami,FL2-68UniversityofMichiganH133E060064AnnArbor,MI3-14UniversityofMichiganH133G050151AnnArbor,MI2-76UniversityofMichiganH133G070020AnnArbor,MI2-78UniversityofMichiganH133G070044AnnArbor,MI2-77UniversityofMichiganH133N060032AnnArbor,MI2-56UniversityofMichiganH133P030004AnnArbor,MI9-27UniversityofMinnesotaH133A080049Minneapolis,MN2-26UniversityofMinnesotaH133B080005Minneapolis,MN4-11UniversityofMinnesotaH133G080029Minneapolis,MN5-7GranteesB-9UniversityofMissouriH133B031120Columbia,MO2-8UniversityofMissouri/ColumbiaH133A060089Columbia,MO8-10UniversityofMissouri/ColumbiaH133P050005Columbia,MO9-28UniversityofMontanaH133B030501Missoula,MT1-4UniversityofMontanaH133B080023Missoula,MT1-5UniversityofMontanaH133G070196Missoula,MT4-26UniversityofNebraskaatOmahaH133G040118Omaha,NE2-81UniversityofNebraskaatOmahaH133G080023Omaha,NE2-82UniversityofPennsylvaniaH133B080029Philadelphia,PA4-13UniversityofPittsburghH133A021916Pittsburgh,PA3-31UniversityofPittsburghH133E040012Pittsburgh,PA3-21UniversityofPittsburghH133E070024Pittsburgh,PA3-22UniversityofPittsburghH133N060019Pittsburgh,PA2-61UniversityofRochesterH133A031105Rochester,NY9-9UniversityofSouthFloridaH133B040024Tampa,FL4-5UniversityofSouthernCaliforniaH133E080024LosAngeles,CA2-14UniversityofTexasMedicalBranchH133A070026Galveston,TX2-41UniversityofTexasMedicalBranchH133G050079Galveston,TX4-35UniversityofTexasMedicalBranchH133G080163Galveston,TX5-9UniversityofTexasMedicalBranchH133P040003Galveston,TX9-33UniversityofWashingtonH133A020103Seattle,WA2-45UniversityofWashingtonH133A031739Seattle,WA3-32UniversityofWashingtonH133A040004Seattle,WA2-46UniversityofWashingtonH133A060070Seattle,WA7-10UniversityofWashingtonH133A060107Seattle,WA2-47UniversityofWashingtonH133A070032Seattle,WA2-49UniversityofWashingtonH133A070047Seattle,WA2-48UniversityofWashingtonH133A070048MountlakeTerrace,WA8-13UniversityofWashingtonH133B031129Seattle,WA2-11UniversityofWashingtonH133B080024Seattle,WA2-13UniversityofWashingtonH133B080025Seattle,WA2-12UniversityofWashingtonH133G050022Seattle,WA2-93UniversityofWashingtonH133G070016Seattle,WA2-94UniversityofWashingtonH133N060033Seattle,WA2-63UniversityofWashingtonH133P080008Seattle,WA9-37UniversityofWisconsin/MadisonH133E030012Madison,WI3-24UniversityofWisconsin/MadisonH133E040013Madison,WI3-25UniversityofWisconsin/MadisonH133E080022Madison,WI3-27UniversityofWisconsin/MilwaukeeH133G050340Milwaukee,WI3-55UniversityofWisconsin/MilwaukeeH133G060218Milwaukee,WI2-95VanderbiltUniversitySchoolofMedicineH133G060012Nashville,TN3-54Vcom3D,Inc.
H133S070088Orlando,FL3-73Vcom3D,Inc.
H133S080039Orlando,FL3-63VirginiaCommonwealthUniversityH133A060087Richmond,VA7-9VirginiaCommonwealthUniversityH133A070036Richmond,VA2-44VirginiaCommonwealthUniversityH133A080027Richmond,VA1-15B-10GranteesVirginiaCommonwealthUniversityH133A080060Richmond,VA9-13VirginiaCommonwealthUniversityH133B040011Richmond,VA1-9VirginiaCommonwealthUniversityH133G080123Richmond,VA5-10VirginiaCommonwealthUniversityH133P040006Richmond,VA9-36WashingtonStateUniversityH133G070055Spokane,WA5-11WayneStateUniversityH133A080044Detroit,MI2-25WayneStateUniversityH133G060267Detroit,MI4-25WayneStateUniversityH133G080064Detroit,MI2-79WesternOregonUniversityH133A060075Eugene,OR4-19WGBHEducationalFoundationH133G050278Boston,MA3-44WGBHEducationalFoundationH133G070122Boston,MA3-45WGBHEducationalFoundationH133G080093Boston,MA3-46WrightStateUniversityH133B040012Kettering,OH1-8ProjectsbyStateProjectsbyStateC-3AlabamaConstraint-InducedMovementTherapyModifiedforRehabilitatingArmFunctioninStrokeSurvivorswithPlegicHands.
2-64NationalSpinalCordInjuryStatisticalCenter(NSCISC)7-3UABModelSpinalCordInjuryCareSystem.
2-50UniversityofAlabamaatBirmingham(UAB)TraumaticBrainInjuryModelSystem(UABTBIMS)2-15ArkansasImprovetheEmploymentOutcomesfortheLowFunctioningDeaf(LFD)Population.
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1-10CaliforniaANewMeasureofSubjectiveFatigueinPersonswithTraumaticBrainInjury2-65AccessibleLocationInformationDeliveredviaGPSCellPhoneforPeoplewithVisualImpairments.
3-33EvaluatingDysphagiainIndividualswithSpinalCordInjury:AssessingIncidence,AssociatedFactors,andPreventableComplications2-66FundamentalIssuesinWayfindingTechnologies3-29NationalCenterforParentswithDisabilitiesandTheirFamilies.
4-15NorthernCaliforniaTraumaticBrainInjuryModelSystemofCare.
2-16PersonalAssistanceServices(PAS)inthe21stCentury4-4RehabilitationEngineeringResearchCenterforSuccessfulAgingwithDisability:OptimizingParticipationThroughTechnology(OPTT-RERC)2-14RehabilitationEngineeringResearchCenter:DevelopandEvaluateTechnologyforLowVision,Blindness,andMulti-SensoryLoss3-3RehabilitationResearchandTrainingCenterinNeuromuscularDiseases(RRTC/NMD)2-3RehabilitationResearchandTrainingCenteronAging-RelatedChangesinImpairmentforPersonsLivingwithPhysicalDisabilities2-4RehabilitationResearchandTrainingCenteronPersonalAssistanceServices4-3ColoradoATLAS:AnAccessibleTesting,Learning,andAssessmentSystemforIndividualswithIntellectualDisabilitiestoFacilitateInclusionandAccesstotheGeneralCurriculum3-72CollaborativeSpinalCordInjuryModelSystemsCentersProgram:ImprovingSpinalCordInjuryRehabilitationOutcomes2-18DBTACRockyMountainADACenter-RegionVIII8-11DevelopmentandEvaluationofaLocation-BasedMultimediaSystemforProvidingAccesstoInformationinCommunitySettings.
3-58DevelopmentandEvaluationofaUniversalDesignMultimediaApproachtoEnableAutonomousCompositionbyStudentsandAdultswithIntellectualDisabilities3-59DisabilityandBusinessTechnicalAssistanceCenter(DBTAC)—PacificADACenter8-12EvaluationofaUniversallyDesignedMultimediaApproachtoPromoteIndependentAccesstoInstantMessagingTechnologyforIndividualswithIntellectualDisabilities.
3-60MoneyCoach:AMoneyManagementSystemtoFacilitateIndependentLivingforIndividualswithIntellectualDisabilities.
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3-61PocketEmail:DevelopmentandEvaluationofanAccessiblePDA-BasedEmailProgramtoFacilitateRemoteCommunicationforIndividualswithIntellectualDisabilities3-62PublicSpendingforDisabilityintheUnitedStates:AComparative,LongitudinalStudy.
5-6RehabilitationEngineeringResearchCenterfortheAdvancementofCognitiveTechnologies(RERC-ACT)3-4ProjectsbyStateC-4TheNationalDataandStatisticalCenterfortheTraumaticBrainInjuryModelSystems2-19TheRockyMountainRegionalBrainInjurySystem(RMRBIS)2-20TheRockyMountainRegionalSpinalInjurySystem2-51UCHSCBurnModelSystemDataCoordinationCenter(BMS/DCC)2-17ConnecticutBuildingResearchCapacityThroughCollaborationamongAmericanIndianTribesinConnecticutandRhodeIsland.
9-5DelawareMultimodalAccesstoInformationGraphics3-34DistrictofColumbiaAccessibleDigitalRadioBroadcastServices3-35AnAutomaticFittingAlgorithmforCochlearImplant3-36NationalCapitalSpinalCordInjuryModelSystem.
2-52PersonalAudioInformationService3-37RehabilitationEngineeringResearchCenteronHearingEnhancement3-5RehabilitationEngineeringResearchCenteronHearingEnhancement3-6RehabilitationResearchandTrainingCenteronSpinalCordInjury:PromotingHealthandPreventingComplicationsthroughExercise2-5FloridaExerciseTreatmentofObesity-RelatedSecondaryConditionsinAdultswithParaplegia.
2-68InvestigatingtheEffectsofSnoezeleninChildrenRecoveringfromSevereBrainInjury.
2-67MobileLanguageReferenceforDeafandHard-of-HearingK-12Students3-73RehabilitationResearchandTrainingCenterforChildren'sMentalHealth4-5SigningSciencePictionaryforYoungLearnerswhoareDeaforHardofHearing3-63GeorgiaAssessingSafetyRiskafterTraumaticBrainInjury.
4-20BiopsychosocialFactorsthatPredictTBIPost-AcuteRehabilitationOutcomes.
2-69DBTAC:SoutheastADACenter-RegionIV8-6EvaluatingtheEffectsofActivity-BasedTherapyforIndividualswithChronicSpinalCordInjury.
2-70GeorgiaRegionalSpinalCordInjuryCareSystem.
2-53InclusiveIndoorPlay3-38RehabilitationEngineeringResearchCenterforWheeledMobilityinEverydayLife.
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3-10RehabilitationEngineeringResearchCenterforWirelessTechnologies3-8RehabilitationEngineeringResearchCenteronWheeledMobility.
3-7RehabilitationEngineeringResearchCenteronWorkplaceAccommodations3-9WorkplaceAccommodationWizard:AnAssessmentandAccommodationToolforEmployers3-39IllinoisALow-CostPortable/WearableDeviceforIntelligentStretchingandMovementTrainingofHypertonicForearminStrokewithOutcomeEvaluation.
3-74AdvancedRehabilitationResearchTrainingProjectinRehabilitationServicesResearch.
9-24AdvancedTraininginTranslationalandTransformationalResearchtoImproveVocationalOutcomesforPersonswithDisabilities.
9-23AugmentingLanguageTherapyforAphasia:ARandomizedDouble-BlindPlacebo-ControlledTrialofLevodopainCombinationwithSpeech-LanguageTherapy2-73ProjectsbyStateC-5CenterforStrategicCapacityBuildingonMinoritieswithDisabilitiesResearch9-6DevelopmentofaNeural-MachineInterfaceforLower-LimbProsthesisControl.
9-17DBTAC:GreatLakesADACenter8-7EffectivenessofaTeleconferenceFatigueManagementProgramforPeoplewithMultipleSclerosis2-74EnhancedMotorRecoveryUsingSerotonergicAgents2-71HealthServicesResearchDRRPonMedicalRehabilitation2-21MidwestRegionalSpinalCordInjuryCareSystem(MRSCIS)2-54MidwestRegionalTraumaticBrainInjuryModelSystem:InnovativeApproachestoImproveCognition,Function,andCommunityLiving2-23Multi-Joint/DOFsDiagnosisandTreatmentofUpperLimbinPatientsPostStrokeUsinganExoskeletonRobot.
9-13OvercomingGravityInducedArmandHandDysfunctiontoRestoreFunctionalReachingFollowingStroke.
3-41PromotingHealth,Empowerment,andCommunityIntegrationAmongPeoplewithHIV/AIDS:TheMedicationAdherenceProgramStudy-II(MAPS-2).
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4-21ReducingObesityandObesity-RelatedSecondaryConditionsinAdolescentswithDisabilities.
2-22RehabilitationEngineeringResearchCenteronProstheticsandOrthotics3-13RehabilitationEngineeringResearchCenteronRecreationalTechnologiesandExercisePhysiologyBenefitingPersonswithDisabilities(RERCRecTech)3-11RehabilitationofReachinginChronicStrokeUsinganAnti-GravityForceField.
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2-72RehabilitationResearchandTrainingCenterforHealthandFunctionAcrosstheLifespanofIndividualswithIntellectualandDevelopmentalDisabilities.
4-6RehabilitationResearchandTrainingCenteronEnhancingtheFunctionalandEmploymentOutcomesofIndividualsWhoExperienceaStroke2-7RehabilitationResearchandTrainingCenteronMeasuringRehabilitationOutcomesandEffectiveness5-3RehabilitationResearchandTrainingCenteronTechnologyPromotingIntegrationforStrokeSurvivors:OvercomingSocialBarriers.
2-6RehabilitationRoboticsandTelemanipulationMachinesAssistingRecoveryfromStrokeRehabilitationEngineeringResearchCenter(MARS-RERC)3-12RehabilitationScienceforBasicScientistsandEngineers:AnAdvancedTrainingProgram.
9-22UniversityofIllinoisatChicagoNationalResearchandTrainingCenteronPsychiatricDisability9-3VideoGamingTechnologytoPromoteHealthandFitnessAmongAdolescentswithDisabilities.
3-42VirtualReality-BasedAssessmentToolforSpatialNeglectFollowingStroke.
9-16Web-BasedTreatmentforAphasia.
3-40IndianaHearingCompanion:HandheldPortableSoundIdentificationandCriticalAlertingFunctionalityforPeopleWhoAreDeaforHaveHearingLoss3-75SoundCompass-AWearableSoundDirectionandMotionDetectorforPeoplewhoareDeaforHardofHearing3-64KansasCombiningTechnologiestoMaximizeOutcomes:TelemedicineandOnlineTrainingProgramforParentsofChildrenwithAutism.
4-22RehabilitationResearchandTrainingCenteronMeasurementandInterdependenceinCommunityLiving(RRTC/MICL)4-8RehabilitationResearchandTrainingCenteronPoliciesAffectingFamiliesofChildrenwithDisabilities.
4-7ProjectsbyStateC-6LouisianaEvacuationMethodologyandUnderstandingBehaviorofPersonswithDisabilitiesinDisasters:ABlueprintforEmergencyPlanningSolutions4-16MarylandABLEDATA.
7-13DBTAC:Mid-AtlanticADACenter8-5DemographicSoup:DisentanglingtheConceptual,Political,andMethodologicalDimensionsofDisabilityStatistics9-14JohnsHopkinsUniversityBurnInjuryRehabilitationModelSystem(JHU-BIRMS)2-24NationalRehabilitationInformationCenter(NARIC)7-12OptimizedHands-FreeSpeechRecognition3-43MassachusettsACenteronPostsecondaryEducationforStudentswithIntellectualDisabilities4-17AMixedMethodsStudyofParenting,Children,andRecoveryinMotherswithSeverePsychiatricDisabilities.
9-15ARandomizedTrialofRealignmentTherapyforTreatmentofMedialKneeOsteoarthritis2-75ASurveyofPostsecondaryDisabilityServicesUsebyStudentswithPsychiatricDisabilities.
9-18AccesstoLocallyTelevisedOn-ScreenInformation:AuditoryMessagingandCaptionsDuringEmergencyBroadcasts.
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3-44AdvancedResearchTrainingPrograminPsychiatricRehabilitation9-26CaptionAccuracyMetricsDevelopmentProject3-46CaptioningSolutionsforHandheldMediaandMobileDevicesDevelopment3-45DevelopmentofMeasuresofParticipationandEnvironmentforChildrenwithDisabilities.
4-24EVIDAAC:ADatabaseofAppraisedEvidenceinAugmentativeandAlternativeCommunication7-11InnovativeKnowledgeDisseminationandUtilizationforDisabilityandProfessionalOrganizationsandStakeholders7-4InstrumenttoMeasureRecovery-PromotingCompetenceAmongProvidersServingSpanishSpeakingMentalHealthConsumers4-23MinimalClassroomRequirementsforOptimalAcousticAccesstoSpeechbyChildrenwithandWithoutHearingLoss.
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3-47NewEnglandDisabilityandBusinessTechnicalAssistanceCenter-RegionI.
8-3TheNewEnglandRegionalSpinalCordInjuryCenter2-55OpeningDoorsforChildrenwithDisabilitiesandSpecialHealthCareNeeds4-10Post-DoctoralFellowshipinRehabilitationOutcomesandEffectiveResearch.
9-25RehabilitationResearchandTrainingCenterforRecoveryandRecoveryOrientedPsychiatricRehabilitationforPersonswithLong-TermMentalIllness4-9RehabilitationResearchandTrainingCenterforVocationalRehabilitationResearch.
1-3MichiganAdaptedAssessmentofSpeedofInformationProcessinginChildrenwithCerebralPalsy2-77MichiganTraumaticBrainInjuryModelSystem(SEMTBIS)2-25NeuroanatomicalCorrelatesofPositivePsychologyAmongPeoplewithTraumaticBrainInjury:ABiopsychosocialModel.
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2-79PathwaystoDepression:AnExaminationofVulnerabilityandStressinAdultswithSpinalCordInjury.
2-78PsychometricEvaluationoftheFamilyQualityofLifeSurveyforMinorityFamilies9-19RehabilitationEngineeringResearchCenteronWheelchairTransportationSafety3-14ProjectsbyStateC-7SensorimotorTrainingandAssessmentinAdultswithHemiplegicCerebralPalsy:TheULTrAProgram2-76TheUMHS/MSU/AACILRehabilitationResearchTrainingProgram9-27UniversityofMichiganModelSpinalCordInjuryCareSystem.
2-56WorkEnvironmentandQualityofLifeOut-comes:AComparisonoftheExperiencesofFormalandInformalCaregiversofPersonswithSpinalCordInjuries4-25MinnesotaConnectivitytoModernElectronicsfortheHearingDisabled3-65DevelopmentandUseofaMulti-StateDatabaseonIndividualOutcomesandtheirPredictorsforPersonswithIntellectualandDevelopmentalDisabilitiesintheUS.
5-7HealthCareCoordinationforIndividualswithPhysicalDisabilities:CriticalElementsandConsumerOutcomes2-26MayoClinicTraumaticBrainInjuryModelSystem.
2-27PoweredMountingandPositioningSystem.
3-77RehabilitationResearchandTrainingCenterforCommunityLivingandEmploymentforIndividualswithIntellectualandDevelopmentalDisabilities.
4-11WirelessWristDevicetoAlerttheDeafofSoundsandEventsinTheirEnvironment.
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3-76MississippiVocationalRehabilitation:TransitionServicesthatLeadtoCompetitiveEmploymentOutcomesforTransition-AgeIndividualswithBlindnessorOtherVisualImpairments.
1-11MissouriArthritisRehabilitationResearchandTrainingCenter(MARRTC)2-8DBTAC-GreatPlainsADACenter-RegionVII8-10HealthActivityRehabilitationResearchTrainingCenter(HARRTC)9-28MontanaCIL-BasedAbuseEducationandSafetyPlanningProgramforWomenwithDisabilities4-26RehabilitationResearchandTrainingCenteronDisabilityinRuralCommunities1-4RehabilitationResearchandTrainingCenteronDisabilityinRuralCommunities1-5NebraskaDevelopmentofanIntelligentlyControlledAssistiveRehabilitationElliptical(ICARE)TrainingSystemtoPromoteWalkingandFitnessinPersonswithPhysicalLimitations2-80InvestigationofInterventionsforSittingPosturalControlinYoungChildrenwithModeratetoSevereCerebralPalsy2-82InvestigationoftheDynamicsofDevelopmentofSittingPosturalControlinInfantswithCerebralPalsy2-81NewHampshireBuildingKnowledgeandCapacityinTheRehabilitationandRecoveryofAfrican-AmericansSufferingfromSevereMentalIllness:TheDartmouth-HowardCollaboration.
9-8CognitiveTrainingandSupportedEmploymentinSevereMentalIllness1-16Fifteen-yearCourseofCompetitiveEmploymentforPeoplewithSevereMentalIllness1-17NewJerseyAMulticenterProspectiveRandomizedCon-trolledTrialoftheEffectivenessofAmantadineHydrochlorideinPromotingRecoveryofFunctionFollowingSevereTraumaticBrainInjury2-28AdvancedPsychiatricRehabilitationResearchonEmploymentandCommunityIntegration9-29AdvancedRehabilitationResearchTrainingCenteronNeuro-musculoskeletalRehabilitation9-30ImprovedWeightBearingEvaluationofKneeOsteoarthritis.
3-48ProjectsbyStateC-8JFK-JohnsonRehabilitationInstituteTBIModelSystem2-29NorthernNewJerseySpinalCordInjurySystem.
2-57NorthernNewJerseyTraumaticBrainInjurySystem(NNJTBIS)2-30QualityofLifeinTraumaticBrainInjuryResearchandPractice:DevelopmentoftheTBI-QOL2-83RehabilitationEngineeringResearchCenteronChildrenwithOrthopedicDisabilities.
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3-15NewYorkAdvancedRehabilitationResearchandDisabilityPolicyTrainingCenter9-32AdvancedRehabilitationResearchTrainingProgram.
9-31AssetAccumulationandEconomicSelf-Sufficiency(AAESS)4-18CenterforInternationalRehabilitationResearchInformationandExchange(CIRRIE-2)7-5CenteronKnowledgeTranslationforTechnologyTransfer7-6ClassificationandMeasurementofMedicalRehabilitationInterventions.
2-32ControlledStudyofAffectRecognitionTrainingforIndividualswithTraumaticBrainInjury4-27CreatingAudio-TactileIllustratedDigitalTalkingBooksUsingaDigitalPen-BasedComputingPlatform3-67Demand-SideEmploymentPlacementModels1-13DiabetesMonitoringforCognitivelyImpairedAdults.
3-68DisabilityandBusinessTechnicalAssistanceCenter-Northeast8-4KnowledgeAthletesPlatform:CapitalizingonOnlineCommunicationtoIncreaseParticipationandLearningforAllStudents.
3-66MountSinaiSpinalCordInjuryModelSystem.
2-58NewYorkTraumaticBrainInjuryModelSystem(NYTBIMS)2-31RehabilitationEngineeringandResearchCenter(RERC)onUniversalDesignandtheBuiltEnvironmentatBuffalo3-17RehabilitationEngineeringResearchCenteronTechnologyTransfer(T2RERC)3-16RehabilitationResearchandTrainingCenteronDemographicsandStatistics.
5-4RehabilitationResearchandTrainingCenteronDisabilityStatisticsandDemographics.
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5-5RehabilitationResearchandTrainingCenteronEmploymentPolicyandIndividualswithDisabilities.
1-6RehabilitationResearchandTrainingCenteronEmploymentServiceSystems1-7RehabilitationResearchandTrainingCenteronTraumaticBrainInjuryInterventions.
2-9TowardEquity:Innovative,CollaborativeResearchonInterpreterTraining,DBT,andPsychologicalTesting.
9-9UsingtheU.
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EqualEmploymentOpportunityCommission(EEOC)EmploymentDiscriminationChargeDataSystemforResearchandDisseminationPurposes5-8Web-basedStudentProcessesatCommunityColleges–ToolsforEnsuringAccessibility3-49NorthCarolinaASocialNetworkingSystemforParentsandProfessionalsWorkingwithChildrenwithAutismSpectrumDisorders3-69CarolinasTraumaticBrainInjuryRehabilitationandResearchSystem(CTBIRRS)2-33ConsortiumforAssistiveTechnologyOutcomesResearch(CATOR)II3-30DailyLivingandCommunitySkillsVideoGameforChildrenwithDevelopmentalDisabilities.
4-28ImprovingRepresentativePayeeshipforPeoplewithPsychiatricDisabilitiesandtheirFamilies4-29MicromachinedBrailleReader.
3-50RehabilitationEngineeringResearchCenterforCommunicationEnhancement(AAC-RERC)3-19ProjectsbyStateC-9RehabilitationEngineeringResearchCenteronCommunicationEnhancement.
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3-18TBIModelSystemCollaborativeStudyofAmantadineforPostTBIIrritabilityandAggression2-34UniversalDesignofTactileExhibitswithTouchActivatedDescriptiveAudioforAquariums.
3-51OhioDevelopingCollegeCampusesasTransitionSettingsforStudentswithSevereandMultipleDisabilitiesAged18-214-32IndividualizedPlanningfortheFirstYearFollowingAcuteRehabilitationProject.
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2-36NortheastOhioRegionalSpinalCordInjurySystem.
2-59OhioRegionalTBIModelSystem.
2-35RehabilitationResearchandTrainingCenteronSubstanceAbuse,Disability,andEmployment1-8TeenOnlineProblemSolvingforPediatricBrainInjury4-30WebTherapytoImproveOutcomesAfterTraumaticBrainInjuryinYoungChildren.
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4-31OregonAMeansofExpression:OnlineCommunicationAssessmenttoImproveOut-comesforIndividualswithSevereDisabilities.
3-52ContextAwareSelfManagementToolsforIndividualswithSignificantCognitiveDisabilities.
4-37DevelopmentofaCognitiveBehavioralGroupTherapyInterventionforWomenwithPhysicalActivityDisabilitieswhoExperienceDepression.
2-84DevelopmentofaSafety-PlanningToolforMenwithDisabilities4-33HealthandHealthCareDisparitiesAmongIndividualswithDisabilities2-37MyScrivenerInnovativeTechnologytoEnhanceFineMotorFunction.
3-78NationalCenterforAccessiblePublicTransportation3-20Parent-InfantInteractionProject(PIIP)4-34RehabilitationResearchandTrainingCenterforCommunityIntegrationforIndividualswithDisabilities,StrengtheningFamilyandYouthParticipationinChildandAdolescentMentalHealthServices4-12RehabilitationResearchandTrainingCenteronHealthandWellnessinLongTermDisability2-10SchoolTransition&re-EntryProgram(STEP):SystematicHospital-to-SchoolTransitionforStudentswithTraumaticBrainInjury.
4-19SystematicStudyoftheEffectivenessofAACInterventiontoImproveConversationinIndividualswithDegenerativeLanguageDisorders3-53TelevisionAssistedPromotion(TAP):EnhancingRehabilitationOutcomeswithFamiliarTechnology3-80WhyGoItAloneTheUseofPublicResourcestoEnhanceComputerAccessibilityforIndividualswithIntellectualDisabilities.
3-79PennsylvaniaInformationTechnologyforIndependence:Community-BasedResearch3-31LowVisionLime:SolutionforLowVisionMusicianstoRead,Perform,Write,andPrintMusicNotation.
3-82PhysicalandSocialEnvironmentalFactorsthatInfluenceHealthandParticipationOutcomesforChronically-IllAdults9-20RegionalSpinalCordInjuryCenteroftheDelawareValley2-60RehabilitationEngineeringResearchCenteronAccessiblePublicTransportation3-23RehabilitationEngineeringResearchCenteronSpinalCordInjury.
3-22RehabilitationEngineeringResearchCenteronTelerehabilitation3-21RehabilitationResearchandTrainingCenteronParticipationandCommunityLivingofIndividualswithPsychiatricDisabilities.
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4-13TheMossTraumaticBrainInjuryModelSystem.
2-38ProjectsbyStateC-10TreatmentComponentsandActiveIngredientsinaScheduledTelephoneInterventionforTraumaticBrainInjury.
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2-87UnderstandingtheDeterminantsofMotorAbility,Self-Care,andPlayofYoungChildrenwithCerebralPalsy2-88UniversalAccesstoPassengerRail3-81UniversityofPittsburghModelCenteronSpinalCordInjury.
2-61UseofFunctionalNeuroimagingtoAssesstheStatusoftheAttentionNetworksFollowingTraumaticBrainInjury2-85VirtualRealityAssessmentandTreatmentofHemispatialNeglect2-89ZolpidemandRestorationofConsciousness:AnExplorationoftheMechanismofAction2-86SouthCarolinaALongitudinalStudyofRiskforHospitalization,PressureUlcers,andSubsequentInjuriesAfterSpinalCordInjury.
2-90CenteronHealthOutcomesResearchandCapacityBuildingforUnderservedPopulationswithSCIandTBI9-10Participation,SubjectiveWell-Being,Health,andSpinalCordInjury:A35-YearLongitudinalStudy.
2-91TennesseeAppropriateDirectionalHearingAidSwitchinginSchoolAgeChildren.
3-54TexasAdvancedRehabilitationResearchTraining9-34AdvancedRehabilitationResearchTraining9-35DevelopmentofanInternet-BasedSelf-EsteemInterventionforWomenwithDisabilities4-36EffectivenessofaGroupCognitive-BehavioralInterventionforDepressionafterTBIandFactorsthatAffectResponsetoTreatment2-92ImpactofProspectivePaymentandRehabilitationOutcomes5-9InterdisciplinaryRehabilitationResearchTrainingProgram9-33MinorityScholar/ChampionResearchTrainingProject9-11NationalCenterfortheDisseminationofDisabilityResearch(NCDDR)7-8NorthTexasBurnRehabilitationModelSystem(NTBRMS)2-39NorthTexasTraumaticBrainInjuryModelSystem(NT-TBIMS)2-40OutpatientSocialSkillsTrainingforDistressedAdolescentBurnSurvivors4-35PediatricBurnInjuryRehabilitationModelSystem.
2-41RehabilitationandTrainingCenteronCommunityIntegrationofPersonswithTBI4-14ResearchUtilizationSupportandHelp(RUSH)Project.
7-7SEDL'sVocationalRehabilitationServiceModelsforIndividualswithAutismSpectrumDisorders1-14SouthwestDisabilityandBusinessTechnicalAssistanceCenter(SouthwestDBTAC-RegionVI)8-9TexasModelSpinalCordInjurySystem.
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.
2-62TheTexasTraumaticBrainInjuryModelSystemofTIRR2-42UtahUtilityArmandUpperLimbProsthesis.
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.
3-70WirelessEMGPreampandImprovedMountingSystem3-83VirginiaANationalAssessmentoftheRatesandCorrelatesofAlcoholandOtherDrugUsebyCollegeStudentswithDisabilities5-10AdvancedResearchTrainingProgram.
9-36DisabilityandBusinessTechnicalAssistanceCenters:Coordination,Outreach,andResearchCenter7-9Empowerment:BuildingResearchInfrastructureCapacity9-13ProjectsbyStateC-11MedicaidQualityIndicatorsforIndividualswithDisabilities.
2-43RehabilitationResearchandTrainingCenteronWorkplaceSupportsandJobRetention1-9VirginiaCommonwealthTraumaticBrainInjuryModelSystem2-44VocationalRehabilitationServiceModelsforIndividualswithAutismSpectrumDisorders(VCUASCCareerLinks)1-15WashingtonACCESS:AssistedCognitioninCommunity,Employment,andSupportSettings.
3-32AssessingtheImpactofMedicare-DonSSDIBeneficiaries5-11ControlledTrialofVenlafaxineXRforDepressionAfterSCI:AMultisiteStudy.
.
.
2-47DisabilityandBusinessTechnicalAssistanceCenter(DBTAC)—Northwest.
8-13EfficacyofPressureGarmentTherapyAfterBurns2-93ModelSystemsKnowledgeTranslationCenter(MSKTC)7-10MultipleSclerosisRehabilitationResearchandTrainingCenter.
2-11MultipleSclerosisRehabilitationResearchandTrainingCenter.
2-12NorthwestRegionalSpinalCordInjurySystem.
2-63RehabilitationResearchandTrainingCenteronAgingwithaPhysicalDisability:ReducingSecondaryConditionsandEnhancingHealthandParticipation,IncludingEmployment2-13TelephoneandIn-PersonCognitiveBehavioralTherapyforDepressionAfterTraumaticBrainInjury2-94TheEffectofScheduledTelephoneInterventiononOutcomesAfterTraumaticBrainInjury(TBI)2-46UniversityofWashingtonAdvancedRehabilitationResearchTraining9-37UniversityofWashingtonBurnModelSystem.
2-45UniversityofWashingtonBurnModelSystem.
2-48UniversityofWashingtonTraumaticBrainInjuryModelSystem2-49WisconsinAdvancedRehabilitationResearchTraininginPediatricMobility9-39AdverseOutcomesFollowingInpatientRehabilitation:TrendsandReasons2-95PrincipalInvestigatorsPrincipalInvestigatorsD-3Abery,Brian,PhDUniversityofMinnesota612/625-55922-26Allen,David,PhDPortlandStateUniversity503/725-46874-34Altman,Barbara301/460-59639-14Apple,DavidF.
,Jr.
,MDShepherdCenter,Inc.
404/350-73532-53Bakke,MatthewH.
,PhDGallaudetUniversity202/651-5335(V/TTY)3-5,3-36Balcazar,FabricioE.
,PhDUniversityofIllinoisatChicago312/413-16469-6Barner,Kenneth,PhDUniversityofDelaware302/831-69373-34Barrance,Peter,PhDKesslerMedicalRehabilitationResearchandEducationCenter(KMRREC)973/324-35503-48Bauer,Steve,PhDUniversityatBuffalo;TheStateUniversityofNewYork716/829-67603-16Beer,RandallF.
,PhDRehabilitationInstituteResearchCorporation312/238-1556;312/238-3381.
2-72Belknap,KatherineORCMacro301/608-8998,ext.
1057-13Bell,KathleenR.
,MDUniversityofWashington206/685-09352-46,2-49Bellini,JamesL.
,PhDSyracuseUniversity315/443-96559-32Bertocci,Gina,PhDUniversityofMichigan734/936-11033-14Bjelland,Melissa,PhDCornellUniversity607/255-95365-4Blaedow,KarenCustomTechnologyLtd.
608/276-55163-71Blanck,PeterD.
,PhD,JDSyracuseUniversity315/443-97031-13,8-6Bodine,CathyUniversityofColorado303/315-12813-4Bogner,Jennifer,PhDOhioValleyCenterforBrainInjuryPreventionandRehabilitation614/293-38302-35Bombardier,CharlesH.
,PhDUniversityofWashington206/744-36652-47,2-63Boninger,MichaelL.
,MDUniversityofPittsburgh412/365-48612-61Brabyn,JohnA.
,PhDTheSmith-KettlewellEyeResearchInstitute415/345-21103-3,3-29Braddock,DavidL.
,PhDUniversityofColoradoHealthSciencesCenter303/492-06395-6PrincipalInvestigatorsD-4Brienza,DavidM.
,PhDUniversityofPittsburgh412/586-69073-21,3-22Brooks,MarciaWGBHEducationalFoundation617/300-34313-46Brown,AllenW.
,MDMayoClinic507/255-31162-27Brown,SusanH.
,PhDUniversityofMichigan734/763-67552-76Bruyère,Susanne,PhDCornellUniversity607/255-9536(V);607/255-2891(TTY)1-6,3-49,5-4,5-8Burkhauser,Richard,PhDCornellUniversity607/255-9536(V);607/255-2891(TTY)1-6,5-4Burnfield,Judith,PhD,PTMadonnaRehabilitationHospital402/483-96692-80Bushnik,Tamara,PhDSantaClaraValleyMedicalCenter(SCVMC)408/793-64462-16,2-65Buxbaum,Laurel,PsyDAlbertEinsteinHealthcareNetwork215/456-59532-89Cavenaugh,BrendaMississippiStateUniversity662/325-37281-11Charlifue,Susan,PhDCraigHospital303/789-82202-51Chen,David,MDRehabilitationInstituteofChicago312/238-07642-54Chen,Yuying,MD,PhDUniversityofAlabama/Birmingham205/934-33207-3Cherney,LeoraR.
,PhDRehabilitationInstituteResearchCorporation312/238-11172-73,3-40Chiarello,LisaA.
,PT,PhDDrexelUniversity215/762-88052-88Cicerone,KeithD.
,PhDJFKJohnsonRehabilitationInstitute732/906-26402-29Clark,Allison,PhDMemorialHerman;TheInstituteforRehabilitationandResearch(TIRR)713/630-05192-92Cook,JudithA.
,PhDUniversityofIllinoisatChicago312/355-39219-3Copeland,Jana,PhDMeetingtheChallenge,Inc.
719/444-02688-11Corrigan,JohnD.
,PhDOhioStateUniversity614/293-38302-35,2-36Coster,WendyJ.
,PhDBostonUniversity617/353-75184-24PrincipalInvestigatorsD-5Davies,DanielK.
AbleLinkTechnologies,Inc.
719/592-03473-61,3-62,3-72deJong,JimUniversityofMissouri/Columbia800/949-4232(V/TTY,inIA,KS,MO,andNE);573/882-3600(V/TTY)8-10DeRuyter,Frank,PhDDukeUniversity919/684-62713-18,3-19,3-30Dewald,Julius,PT,PhDNorthwesternUniversity312/908-67883-41Diaz-Arrastia,RamonR.
,MD,PhDTheUniversityofTexasSouthwesternMedicalCenter214/648-64092-40Dikjers,Marcel,PhDMountSinaiSchoolofMedicine212/659-85872-32Donovan,William,MDTheInstituteforRehabilitationandResearch(TIRR)713/797-50232-62Drake,RobertE.
MD,PhDDartmouthMedicalSchool603/448-02631-17Drum,Charles,PhDOregonHealthandScienceUniversity503/494-83642-10,2-37Duggan,Colette,PhDWayneStateUniversity313/745-10704-25Dvorkin,AssafY.
,PhD312/238-58289-16Elbogen,Eric,PhDDukeUniversity919/682-83944-29Elovic,ElieP.
,MDKesslerMedicalRehabilitationResearchandEducationCorporation(KMRREC)973/243-68152-30Engrav,LorenH.
,MDUniversityofWashington206/731-32092-45,2-48,2-93Epps,IrvineE.
,EdDTexasSouthernUniversity713/313-72249-11Esselman,PeterC.
,MDUniversityofWashington206/731-32092-48Falco,Ruth,PhDPortlandStateUniversity503/725-46874-34Fann,JesseR.
,MD,MPHUniversityofWashington206/685-42802-94Farkas,Marianne,ScDBostonUniversity617/353-35494-9,7-4Fatone,Stefania,PhD,BPONorthwesternUniversity312/238-65003-13Fauerbach,JamesA.
,PhDJohnsHopkinsSchoolofMedicine410/550-08942-24Finlayson,Marcia,PhDUniversityofIllinoisatChicago312/996-46032-74PrincipalInvestigatorsD-6Flexer,Robert,PhDKentStateUniversity330/672-05844-32Foulds,RichardA.
,PhDNewJerseyInstituteofTechnology973/596-33353-15Fox,LynnLifeTechnologies,LLC503/725-31883-79Franzon,PaulD.
NorthCarolinaStateUniversity919/515-73513-50Freed,GeoffWGBHEducationalFoundation617/300-37003-44,3-45Friedman,Robert,PhDUniversityofSouthFlorida813/974-46404-5Fried-Oken,Melanie,PhDOregonHealthandScienceUniversity503/494-75873-53Friesen,Barbara,PhDPortlandStateUniversity503/725-41664-12Fuller,RebeccaRAFModels&Displays336/722-42503-51Gard,Steven,PhDNorthwesternUniversity312/238-65003-13Gerber,BrianJ.
PhDLouisianaStateUniversity225/578-02384-16Giacino,JosephT.
,PhDJFKJohnsonRehabilitationInstitute732/205-14612-28Gill,KennethJ.
,PhDUniversityofMedicineandDentistryofNewJersey908/889-24389-29Glang,AnnE.
,PhDWesternOregonUniversity541/346-05944-19Goodwin,DianneBlueSkyDesigns,Inc.
888/724-7002;612/724-7002;3-77Gordon,WayneA.
,PhDMountSinaiSchoolofMedicine212/659-93722-9,2-31Graves,Daniel,PhDTheInstituteforRehabilitationandResearch(TIRR)713/797-50232-62Grigal,Meg,PhDUniversityofMassachusettsBoston617/590-80824-17Groah,SuzanneL.
,MDNationalRehabilitationHospital;MedStarResearchInstitute202/877-11962-5,2-52Halliday,JohnUniversityofMassachusettsBoston617/287-43361-3Hammond,FloraM.
,MDCarolinasHealthCareSystem704/355-43302-33,2-34Hanks,RobinA.
,PhDWayneStateUniversity313/745-97632-25,2-79Harbourne,ReginaT.
,PTUniversityofNebraskaatOmaha402/554-32472-81PrincipalInvestigatorsD-7Harkins,Judy,PhDUniversityofWisconsin/Madison202/561-5257(Gallaudet)3-25Harrington,Charlene,PhD,RNUniversityofCalifornia,SanFrancisco415/476-40304-3,4-4Harris,GeraldF.
,PhDMarquetteUniversity414/288-06989-38,9-39Harrison,Oce,EdDAdaptiveEnvironmentsCenter,Inc.
617/695-1225,ext.
2278-3Harrison-Felix,Cynthia,PhDCraigHospital303/789-85652-19Hart,Debra,PhDUniversityofMassachusettsBoston617/590-80824-17Hart,Tessa,PhDAlbertEinsteinHealthcareNetwork215/663-61532-38,2-87Hassouneh,Dena,PhDOregonHealthandScienceUniversity503/494-27142-84Havey,GaryAdvancedMedicalElectronicsCorporation763/463-4814,x1043-65Heinemann,AllenW.
,PhDNorthwesternUniversity;RehabilitationInstituteResearchCorporation312/238-28022-21,5-3,9-24Heitzman-Powell,LindaS.
,PhDUniversityofKansas913/321-31434-22Heller,Tamar,PhDUniversityofIllinoisatChicago312/413-16474-6Herndon,David,MDUniversityofTexasMedicalBranch409/770-67312-41Hibbard,MaryR.
,PhDMountSinaiSchoolofMedicine212/659-93749-31Hornby,T.
George,PhD,PTRehabilitationInstituteofChicago312/238-13972-71Hotz,GillianA.
,PhDUniversityofMiami305/243-40042-67Huang,He,PhD312/238-20849-17Hughes,Rosemary,PhDUniversityofMontana406/243-28984-26Hunter,DavidJ.
,MD,PhDBostonUniversity617/638-51802-75Hunter-Zaworski,Katharine,PhDOregonStateUniversity800/916-00993-20Hurdich,JasonVcom3D,Inc.
407/737-73103-63,3-73Iglehart,Frank,PhDClarkeSchoolfortheDeaf413/584-34503-47PrincipalInvestigatorsD-8Jackson,AmieB.
,MDUniversityofAlabama/Birmingham205/934-33302-50Jensen,MarkP.
PhDUniversityofWashington206/543-31852-13Jette,AlanM.
,PhDBostonUniversityMedicalCampus617/638-19859-25Johnson,KurtPhDUniversityofWashington206/543-36773-32,7-10,9-37Johnston,Mark,PhDUniversityofWisconsin/Milwaukee414/229-36162-95Jones,EricaC.
,MPHPublicHealthInstitute510/285-5600(V/TTY)8-12Jones,MichaelL.
,PhDShepherdCenter,Inc.
404/350-75952-70Jones,RobinA.
UniversityofIllinoisatChicago312/996-10598-7Kalpakjian,ClairePhDUniversityofMichigan734/763-09712-78Kaplan,ShelleySyracuseUniversity404/541-9001(Kaplan)8-6Karg,Patricia,MSUniversityofMichigan734/936-11033-14Kartin,Deborah,PTPhDUniversityofWashington206/598-53389-37Katz,Harry,PhDCornellUniversity607/255-95365-4Keating,Thomas,PhDAssistechSystems,LLC541/342-37634-37Kemp,BryanJ.
,PhDLosAmigosResearch&EducationInstitute,Inc.
562/401-74022-4Kennedy,JamesJ.
,PhDWashingtonStateUniversity509/368-69715-11Kielhofner,Gary,PhDUniversityofIllinoisatChicago312/996-49739-23Kirshbaum,Megan,PhDThroughtheLookingGlass510/848-1112(V)4-15Kowalske,KarenTheUniversityofTexasSouthwesternMedicalCenter214/648-22882-39Kraft,GeorgeH.
,MDUniversityofWashington206/543-72722-11,2-12Krause,JamesS.
,PhDMedicalUniversityofSouthCarolina843/792-13372-90,2-91,9-10Kreutzer,JeffreyS.
,PhDVirginiaCommonwealthUniversity804/828-90559-36,2-44PrincipalInvestigatorsD-9Lakin,Charlie,PhDUniversityofMinnesota612/624-50054-11,5-7Lammertse,DanielP.
,MDCraigHospital303/789-82202-51Landau,StevenTouchGraphics,Inc.
800/884-24403-67Lane,JosephUniversityatBuffalo;TheStateUniversityofNewYork716/829-32667-6Lawson,William,MD,PhDDartmouthCollege202/865-66119-8Lemoncello,RichardLifeTechnologies,LLC541/915-84723-80LesleyM.
HudsonShepherdCenter,Inc.
404/350-73532-53Lewis,Allen,PhDVirginiaCommonwealthUniversity804/827-09149-13Lezotte,DennisC.
,PhDUniversityofColoradoHealthSciencesCenter303/315-68732-17Liu,Xue-Cheng,PhDMedicalCollegeofWisconsin414/337-73233-56,3-57Lueking,RichardG.
,PhDTransCen,Inc.
301/424-20028-5Maguire,AmyTheSandboxLearningCompany800/704-78153-69,4-28Mahshie,JamesGallaudetUniversitiy202/651-53293-6Marino,Ralph,MDThomasJeffersonUniversity215/955-65792-60Matrone,Kathe,PhDUniversityofWashington425/771-74368-13May,MichaelSenderoGroup,LLC530/757-68003-33McCann,WilliamDancingDotsBrailleMusicTechnology,L.
P.
610/783-66923-82McDonald,Craig,MDUniversityofCalifornia,Davis530/752-34472-3McGurk,Susan,PhDDartmouthCollege603/271-57471-16McMahon.
BrianT.
PhDVirginiaCommonwealthUniversity804/827-09177-9Milchus,KarenGeorgiaInstituteofTechnology;CenterforAssistiveTechnologyandEnvironmentalAccess(CATEA)404/894-03933-9,3-39Miller,DaveKnowledgeAthletes,Inc.
585/330-30513-66PrincipalInvestigatorsD-10Mitchell,Helena,PhDGeorgiaInstituteofTechnology404/367-12883-8Moore,DennisC.
,EdDWrightStateUniversity937/775-1484(V/TTY)1-8Morris,MichaelSyracuseUniversity202/296-20464-18Mullick,AbirGeorgiaTechResearchCorporation404/385-72103-38Munson,LeslieJ.
,PhDPortlandStateUniversity503/725-46874-34Nash,MarkS.
,PhDUniversityofMiami305/243-36282-68Nemunaitis,GregoryA.
,MDMetroHealthSystem216/778-55142-59Nicholson,Joanne,PhDJoanneNicholson,PhD508/856-87129-15Nosek,MargaretA.
,PhDBaylorCollegeofMedicine713/523-09094-36Novack,ThomasA.
,PhDUniversityofAlabama/Birmingham205/934-32832-15Odum,MarkX.
HeiTechServices,Inc.
800/346-2742(V);301/459-5984(TTY);301/459-5900(V)7-12O'Neill,John,PhDHunterCollegeofCUNY212/772-51881-7,5-5Oschwald,Mary,PhDPortlandStateUniversity503/725-96024-33Ottenbacher,KennethJ.
,PhDUniversityofTexasMedicalBranch409/747-16375-9,9-33Palfrey,JudithS.
,MDChildren'sHospital617/355-46614-10Palsbo,SusanE.
,PhDGeorgeMasonUniversity541/505-75912-43Palsbo,SusanE.
PhDObslap,Inc.
541/505-75913-78Park,HyungSoon,PhDHyungSoonPark,PhD312/238-14259-13Parker,JerryC.
,PhDUniversityofMissouri/Columbia573/884-14992-8,9-28Parmanto,Bambang,PhDUniversityofPittsburgh412/383-66493-31Perry,JenniferL.
UniversityofTexasMedicalBranch409/770-67184-35Pollard,Robert,PhDUniversityofRochester585/275-35449-9Preston,Paul,PhDThroughtheLookingGlass510/848-1112(V)4-15Prvu-Bettger,JanetA.
,ScDJanetA.
Prvu-Bettger,ScD617/901-02779-20PrincipalInvestigatorsD-11Ragnarsson,KristianT.
,MDMountSinaiSchoolofMedicine212/659-85872-58Razzano,LisaA.
,PhDUniversityofIllinoisatChicago312/422-8180,ext.
204-21Ren,YupengRehabTek,LLC847/024-16593-74Requejo,Philip,PhDUniversityofSouthernCalifornia323/442-29032-14Ricketts,ToddA.
,PhDVanderbiltUniversitySchoolofMedicine615/936-52583-54Rimmer,JamesH.
,PhDUniversityofIllinoisatChicago312/413-96512-22,3-11Rintala,DianaH.
,PhDBaylorCollegeofMedicine713/664-19969-34Ristova-Trendov,Daniela,MDWayneStateUniversity313/745-10704-25Rogers,E.
Sally,PhDBostonUniversity617/353-35493-12,4-9,4-23,9-26Roth,ElliotJ.
,MDRehabilitationInstituteResearchCorporation312/238-46372-6,2-7,2-23Rowland,Charity,PhDOregonHealthandScienceUniversity503/494-22633-52Rowland,JenniferUniversityofIllinoisatChicago312/413-18503-42Ruiz-Quintanilla,S.
AntonioCornellUniversity607/255-21328-4Russinova,Zlatka,PhDBostonUniversity617/353-35493-12,9-26Rust,Kathy,MSUniversityofWisconsin/Milwaukee414/229-56253-55Rymer,W.
Zev,MD,PhDNorthwesternUniversity312/238-60519-22Salzer,Mark,PhDUniversityofPennsylvania215/349-84834-13Samuel,Preethy,PhD313/577-85629-19Sander,AngelleM.
,PhDTheInstituteforRehabilitationandResearch(TIRR)713/383-56444-14Schlosser,RalfW.
,PhDNortheasternUniversity617/373-37857-11Schluter,EdwardMedgraph,Inc.
585/453-94373-68Schneider,LawrenceW.
,PhDUniversityofMichigan734/936-11033-14Sears,Andrew,PhDUMBC410/455-38833-43PrincipalInvestigatorsD-12Sears,HaroldMotionControl,Inc.
801/326-34343-70,3-83Seekins,Tom,PhDUniversityofMontana406/243-26541-4,1-5Seel,RonaldT.
,PhDShepherdCenter404/367-12402-69,4-20Seifert,GregAdvancedMedicalElectronicsCorporation763/463-48143-76Sheffield,Ellyn,PhDNationalPublicRadio202/513-24843-37Shem,Kazuko,MDSantaClaraValleyMedicalCenter(SCVMC)408/885-70072-66Sherer,Mark,PhDTheInstituteforRehabilitationandResearch(TIRR)713/799-70072-42Sisto,SueAnn,PT,PhDUniversityofMedicineandDentistryofNewJersey/NewJerseyMedicalSchool(UMDNJ/NJMS)and;KesslerMedicalRehabilitationResearchandEducationCenter(KMRREC)973/243-68889-30Smith,PeterA,MDMarquetteUniversity414/288-06962-96Smith,RogerO.
,PhDUniversityofWisconsin/Milwaukee414/229-56253-55Sprigle,Stephen,PhD,PTGeorgiaInstituteofTechnology404/894-49603-7,3-10Stapleton,David,PhDCornellUniversity607/255-9536(V);607/255-2891(TTY)1-6Starling,MikeNationalPublicRadio202/513-24843-35,3-37Steinfeld,Aaron,PhDCarnegieMellonUniversity412/268-63463-23Steinfeld,Edward,ArchDUniversityatBuffalo;TheStateUniversityofNewYork716/829-34853-17Stergiou,NicholasUniversityofNebraskaatOmaha402/554-32472-81,2-82Stock,StevenE.
AbleLinkTechnologies,Inc.
719/592-03473-58,3-59,3-60Stone,John,PhDUniversityatBuffalo;TheStateUniversityofNewYork716/829-3141,ext.
1257-5Story,MollyFollette,PhDMarquetteUniversity707/578-3-28Struchen,Margaret,PhDMemorialHerman;TheInstituteforRehabilitationandResearch(TIRR)713/630-05152-92,4-14Stuberg,WayneA,PhD,PTUniversityofNebraskaatOmaha402/554-32472-81PrincipalInvestigatorsD-13Sullivan-Soydan,AnneP.
,ScDAnneP.
Sullivan-Soydan,ScD978/266-95679-18Sutter,StephenM.
CreateAbilityConcepts,Inc.
317/484-84003-64,3-75Tan,FayeC.
,MDBaylorCollegeofMedicine713/873-38759-35Tate,DeniseG.
,PhDUniversityofMichigan734/763-09712-56,9-27Tomita,Machiko,PhDUniversityatBuffalo;TheStateUniversityofNewYork716/829-23004-27Tulsky,DavidS.
,PhDKesslerMedicalRehabilitationResearchandEducationCorporation(KMRREC)973/243-6849;973/243-6916.
2-57,2-83Turnbull,Ann,EdDUniversityofKansas785/864-76004-7Turnbull,H.
R.
,LLMUniversityofKansas785/864-76004-7Uswatte,Gitendra,PhDUniversityofAlabama205/975-50892-64vanRoosmalen,Linda,PhDMarshallElevatorCompany412/431-13403-81Vanderheiden,GreggC.
,PhDUniversityofWisconsin/Madison608/263-57883-24,3-25,3-27Wade,ShariL.
,PhDChildren'sHospitalMedicalCenter513/636-74804-31,4-30Warschausky,SethA.
,PhDUniversityofMichigan734/936-70522-77Watson,Douglas,PhDUniversityofArkansas501/686-96911-10Wehman,Paul,PhDVirginiaCommonwealthUniversity804/828-1851(V);804/828-2494(TTY)1-9,1-15West,StevenL.
,PhD,CRCVirginiaCommonwealthUniversity804/827-09215-10Westbrook,John,PhDSEDL512/476-68611-14,7-7,7-8White,GlenW.
,PhDTheUniversityofKansas785/864-40954-8Whiteneck,GaleG.
,PhDCraigHospital303/789-82042-18,2-20Whitley,RobPhDDartmouthCollege603/448-02639-8ProjectsbyProgramTypeE-3ProjectsbyProgramTypeRehabilitationResearchandTrainingCentersMissouriArthritisRehabilitationResearchandTrainingCenter(MARRTC)(H133B031120)2-8MultipleSclerosisRehabilitationResearchandTrainingCenter(H133B031129)2-11MultipleSclerosisRehabilitationResearchandTrainingCenter(H133B080025)2-12OpeningDoorsforChildrenwithDisabilitiesandSpecialHealthCareNeeds(H133B060012)4-10PersonalAssistanceServices(PAS)inthe21stCentury(H133B080002)4-4RehabilitationandTrainingCenteronCommunityIntegrationofPersonswithTBI(H133B031117)4-14RehabilitationResearchandTrainingCenterforChildren'sMentalHealth(H133B040024)4-5RehabilitationResearchandTrainingCenterforCommunityIntegrationforIndividualswithDisabilities,StrengtheningFamilyandYouthParticipationinChildandAdolescentMentalHealthServices(H133B040038)4-12RehabilitationResearchandTrainingCenterforCommunityLivingandEmploymentforIndividualswithIntellectualandDevelopmentalDisabilities(H133B080005)4-11RehabilitationResearchandTrainingCenterforHealthandFunctionAcrosstheLifespanofIndividualswithIntellectualandDevelopmentalDisabilities(H133B080009)4-6RehabilitationResearchandTrainingCenterforRecoveryandRecoveryOrientedPsychiatricRehabilitationforPersonswithLong-TermMentalIllness(H133B040026).
4-9RehabilitationResearchandTrainingCenterforVocationalRehabilitationResearch(H133B070001)1-3RehabilitationResearchandTrainingCenterinNeuromuscularDiseases(RRTC/NMD)(H133B031118)2-3RehabilitationResearchandTrainingCenteronAgingwithaPhysicalDisability:ReducingSecondaryConditionsandEnhancingHealthandParticipation,IncludingEmployment(H133B080024).
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2-13RehabilitationResearchandTrainingCenteronAging-RelatedChangesinImpairmentforPersonsLivingwithPhysicalDisabilities(H133B031002)2-4RehabilitationResearchandTrainingCenteronDemographicsandStatistics(H133B031111)5-4RehabilitationResearchandTrainingCenteronDisabilityinRuralCommunities(H133B030501)1-4RehabilitationResearchandTrainingCenteronDisabilityinRuralCommunities(H133B080023)1-5RehabilitationResearchandTrainingCenteronDisabilityStatisticsandDemographics(H133B080012)5-5RehabilitationResearchandTrainingCenteronEmploymentPolicyandIndividualswithDisabilities(H133B040013)1-6RehabilitationResearchandTrainingCenteronEmploymentServiceSystems(H133B040014)1-7RehabilitationResearchandTrainingCenteronEnhancingtheFunctionalandEmploymentOutcomesofIndividualsWhoExperienceaStroke(H133B080031)2-7RehabilitationResearchandTrainingCenteronHealthandWellnessinLongTermDisability(H133B040034)2-10RehabilitationResearchandTrainingCenteronMeasurementandInterdependenceinCommunityLiving(RRTC/MICL)(H133B060018)4-8RehabilitationResearchandTrainingCenteronMeasuringRehabilitationOutcomesandEffectiveness(H133B040032)5-3RehabilitationResearchandTrainingCenteronParticipationandCommunityLivingofIndividualswithPsychiatricDisabilities(H133B080029)4-13RehabilitationResearchandTrainingCenteronPersonalAssistanceServices(H133B031102)4-3E-4ProjectsbyProgramTypeRehabilitationResearchandTrainingCenteronPoliciesAffectingFamiliesofChildrenwithDisabilities(H133B031133).
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4-7RehabilitationResearchandTrainingCenteronSpinalCordInjury:PromotingHealthandPreventingComplicationsthroughExercise(H133B031114)2-5RehabilitationResearchandTrainingCenteronSubstanceAbuse,Disability,andEmployment(H133B040012)1-8RehabilitationResearchandTrainingCenteronTechnologyPromotingIntegrationforStrokeSurvivors:OvercomingSocialBarriers(H133B031127)2-6RehabilitationResearchandTrainingCenteronTraumaticBrainInjuryInterventions(H133B040033)2-9RehabilitationResearchandTrainingCenteronWorkplaceSupportsandJobRetention(H133B040011)1-9UniversityofIllinoisatChicagoNationalResearchandTrainingCenteronPsychiatricDisability(H133B050003)9-3RehabilitationEngineeringResearchCenters(RERCs)NationalCenterforAccessiblePublicTransportation(H133E030009)3-20RehabilitationEngineeringandResearchCenter(RERC)onUniversalDesignandtheBuiltEnvironmentatBuffalo(H133E050004)3-17RehabilitationEngineeringResearchCenterforCommunicationEnhancement(AAC-RERC)(H133E080011)3-19RehabilitationEngineeringResearchCenterforSuccessfulAgingwithDisability:OptimizingParticipationThroughTechnology(OPTT-RERC)(H133E080024)2-14RehabilitationEngineeringResearchCenterfortheAdvancementofCognitiveTechnologies(RERC-ACT)(H133E040019)3-4RehabilitationEngineeringResearchCenterforUniversalInterfaceandInformationTechnologyAccess(H133E080022)3-27RehabilitationEngineeringResearchCenterforWheeledMobilityinEverydayLife(H133E080003)3-10RehabilitationEngineeringResearchCenterforWirelessTechnologies(H133E060061).
3-8RehabilitationEngineeringResearchCenteronAccessibleMedicalInstrumentation(H133E020729)3-28RehabilitationEngineeringResearchCenteronAccessiblePublicTransportation(H133E080019)3-23RehabilitationEngineeringResearchCenteronChildrenwithOrthopedicDisabilities(H133E050011)3-15RehabilitationEngineeringResearchCenteronCommunicationEnhancement(H133E030018)3-18RehabilitationEngineeringResearchCenteronHearingEnhancement(H133E030006)3-5RehabilitationEngineeringResearchCenteronHearingEnhancement(H133E080006)3-6RehabilitationEngineeringResearchCenteronProstheticsandOrthotics(H133E080009)3-13RehabilitationEngineeringResearchCenteronRecreationalTechnologiesandExercisePhysiologyBenefitingPersonswithDisabilities(RERCRecTech)(H133E070029)3-11RehabilitationEngineeringResearchCenteronSpinalCordInjury(H133E070024)3-22RehabilitationEngineeringResearchCenteronTechnologyTransfer(T2RERC)(H133E030025)3-16RehabilitationEngineeringResearchCenteronTelecommunicationAccess(H133E040013)3-25RehabilitationEngineeringResearchCenteronTelerehabilitation(H133E040012)3-21RehabilitationEngineeringResearchCenteronUniversalInterfaceandE-5ProjectsbyProgramTypeInformationTechnologyAccess(H133E030012)3-24RehabilitationEngineeringResearchCenteronWheelchairTransportationSafety(H133E060064)3-14RehabilitationEngineeringResearchCenteronWheeledMobility(H133E030035)3-7RehabilitationEngineeringResearchCenteronWorkplaceAccommodations(H133E070026)3-9RehabilitationEngineeringResearchCenter:DevelopandEvaluateTechnologyforLowVision,Blindness,andMulti-SensoryLoss(H133E060001)3-3RehabilitationRoboticsandTelemanipulationMachinesAssistingRecoveryfromStrokeRehabilitationEngineeringResearchCenter(MARS-RERC)(H133E070013)3-12DisabilityandRehabilitationResearchProjectsACCESS:AssistedCognitioninCommunity,Employment,andSupportSettings(H133A031739)3-32AssetAccumulationandEconomicSelf-Sufficiency(AAESS)(H133A080014).
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4-18BuildingKnowledgeandCapacityintheRehabilitationandRecoveryofAfrican-AmericansSufferingfromSevereMentalIllness:TheDartmouth-HowardCollaboration.
(H133A080063)9-8BuildingResearchCapacityThroughCollaborationamongAmericanIndianTribesinConnecticutandRhodeIsland(H133A031706)9-5CenterforInternationalRehabilitationResearchInformationandExchange(CIRRIE-2)(H133A050008)7-5CenterforStrategicCapacityBuildingonMinoritieswithDisabilitiesResearch(H133A040007)9-6CenteronHealthOutcomesResearchandCapacityBuildingforUnderservedPopulationswithSCIandTBI(H133A080064)9-10CenteronKnowledgeTranslationforTechnologyTransfer(H133A080050)7-6ACenteronPostsecondaryEducationforStudentswithIntellectualDisabilities(H133A080042)4-17ClassificationandMeasurementofMedicalRehabilitationInterventions(H133A080053)2-32CollaborativeSpinalCordInjuryModelSystemsCentersProgram:ImprovingSpinalCordInjuryRehabilitationOutcomes(H133A060103)2-18ConsortiumforAssistiveTechnologyOutcomesResearch(CATOR)II(H133A060062)3-30ControlledTrialofVenlafaxineXRforDepressionAfterSCI:AMultisiteStudy(H133A060107)2-47Demand-SideEmploymentPlacementModels(H133A060033)1-13DisabilityandBusinessTechnicalAssistanceCenters:Coordination,Outreach,andResearchCenter(H133A060087)7-9TheEffectofScheduledTelephoneInterventiononOutcomesAfterTraumaticBrainInjury(TBI)(H133A040004)2-46Empowerment:BuildingResearchInfrastructureCapacity(H133A080060).
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9-13EvacuationMethodologyandUnderstandingBehaviorofPersonswithDisabilitiesinDisasters:ABlueprintforEmergencyPlanningSolutions(H133A080069)4-16FundamentalIssuesinWayfindingTechnologies(H133A060056)3-29HealthandHealthCareDisparitiesAmongIndividualswithDisabilities(H133A080031)2-37HealthCareCoordinationforIndividualswithPhysicalDisabilities:CriticalElementsandConsumerOutcomes(H133A080049)2-26HealthServicesResearchDRRPonMedicalRehabilitation(H133A030807)2-21ImprovetheEmploymentOutcomesfortheLowFunctioningDeaf(LFD)PopulationE-6ProjectsbyProgramType(H133A060044)1-10IndividualizedPlanningfortheFirstYearFollowingAcuteRehabilitationProject(H133A080023)2-36InformationTechnologyforIndependence:Community-BasedResearch(H133A021916)3-31InnovativeKnowledgeDisseminationandUtilizationforDisabilityandProfessionalOrganizationsandStakeholders(H133A050006)7-4MedicaidQualityIndicatorsforIndividualswithDisabilities(H133A040016)2-43MinorityScholar/ChampionResearchTrainingProject(H133A031704)9-11ModelSystemsKnowledgeTranslationCenter(MSKTC)(H133A060070)7-10AMulticenterProspectiveRandomizedControlledTrialoftheEffectivenessofAmantadineHydrochlorideinPromotingRecoveryofFunctionFollowingSevereTraumaticBrainInjury(H133A031713).
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2-28NationalCenterforParentswithDisabilitiesandTheirFamilies(H133A080034)4-15NationalCenterfortheDisseminationofDisabilityResearch(NCDDR)(H133A060028)7-8NationalSpinalCordInjuryStatisticalCenter(NSCISC)(H133A060039)7-3ReducingObesityandObesity-RelatedSecondaryConditionsinAdolescentswithDisabilities(H133A060066)2-22ResearchUtilizationSupportandHelp(RUSH)Project(H133A031402)7-7SchoolTransition&re-EntryProgram(STEP):SystematicHospital-to-SchoolTransitionforStudentswithTraumaticBrainInjury(H133A060075)4-19SEDL'sVocationalRehabilitationServiceModelsforIndividualswithAutismSpectrumDisorders(H133A080007)1-14TowardEquity:Innovative,CollaborativeResearchonInterpreterTraining,DBT,andPsychologicalTesting(H133A031105)9-9VocationalRehabilitationServiceModelsforIndividualswithAutismSpectrumDisorders(VCUASCCareerLinks)(H133A080027)1-15VocationalRehabilitation:TransitionServicesthatLeadtoCompetitiveEmploymentOutcomesforTransition-AgeIndividualswithBlindnessorOtherVisualImpairments(H133A070001)1-11ModelBurnInjurySystemsJohnsHopkinsUniversityBurnInjuryRehabilitationModelSystem(JHU-BIRMS)(H133A070045)2-24NorthTexasBurnRehabilitationModelSystem(NTBRMS)(H133A070024)2-39PediatricBurnInjuryRehabilitationModelSystem(H133A070026)2-41UCHSCBurnModelSystemDataCoordinationCenter(BMS/DCC)(H133A070006)2-17UniversityofWashingtonBurnModelSystem(H133A020103)2-45UniversityofWashingtonBurnModelSystem(H133A070047)2-48ModelSpinalCordInjurySystemsGeorgiaRegionalSpinalCordInjuryCareSystem(H133N060009)2-53MidwestRegionalSpinalCordInjuryCareSystem(MRSCIS)(H133N060014)2-54MountSinaiSpinalCordInjuryModelSystem(H133N060027)2-58NationalCapitalSpinalCordInjuryModelSystem(H133N060028)2-52TheNewEnglandRegionalSpinalCordInjuryCenter(H133N060024)2-55NortheastOhioRegionalSpinalCordInjurySystem(H133N060017)2-59NorthernNewJerseySpinalCordInjurySystem(H133N060022)2-57NorthwestRegionalSpinalCordInjurySystem(H133N060033)2-63RegionalSpinalCordInjuryCenteroftheDelawareValley(H133N060011)2-60TexasModelSpinalCordInjurySystem(H133N060003)2-62TheRockyMountainRegionalSpinalInjurySystem(H133N060005)2-51UABModelSpinalCordInjuryCareSystem(H133N060021)2-50E-7ProjectsbyProgramTypeUniversityofMichiganModelSpinalCordInjuryCareSystem(H133N060032)2-56UniversityofPittsburghModelCenteronSpinalCordInjury(H133N060019)2-61ModelTraumaticBrainInjurySystemsCarolinasTraumaticBrainInjuryRehabilitationandResearchSystem(CTBIRRS)(H133A070042)2-33JFK-JohnsonRehabilitationInstituteTBIModelSystem(H133A070030)2-29MayoClinicTraumaticBrainInjuryModelSystem(H133A070013)2-27MichiganTraumaticBrainInjuryModelSystem(SEMTBIS)(H133A080044)2-25MidwestRegionalTraumaticBrainInjuryModelSystem:InnovativeApproachestoImproveCognition,Function,andCommunityLiving(H133A080045)2-23TheMossTraumaticBrainInjuryModelSystem(H133A070040)2-38TheNationalDataandStatisticalCenterfortheTraumaticBrainInjuryModelSystems(H133A060038)2-19NewYorkTraumaticBrainInjuryModelSystem(NYTBIMS)(H133A070033)2-31NorthTexasTraumaticBrainInjuryModelSystem(NT-TBIMS)(H133A070027)2-40NorthernCaliforniaTraumaticBrainInjuryModelSystemofCare(H133A070038).
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2-16NorthernNewJerseyTraumaticBrainInjurySystem(NNJTBIS)(H133A070037)2-30OhioRegionalTBIModelSystem(H133A070029)2-35TheRockyMountainRegionalBrainInjurySystem(RMRBIS)(H133A070022)2-20TBIModelSystemCollaborativeStudyofAmantadineforPostTBIIrritabilityandAggression(H133A080035)2-34TheTexasTraumaticBrainInjuryModelSystemofTIRR(H133A070043)2-42UniversityofAlabamaatBirmingham(UAB)TraumaticBrainInjuryModelSystem(UABTBIMS)(H133A070039).
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2-15UniversityofWashingtonTraumaticBrainInjuryModelSystem(H133A070032)2-49VirginiaCommonwealthTraumaticBrainInjuryModelSystem(H133A070036)2-44FieldInitiatedProjects(FIPs)AccesstoLocallyTelevisedOn-ScreenInformation:AuditoryMessagingandCaptionsDuringEmergencyBroadcasts(H133G050278)3-44AccessibleDigitalRadioBroadcastServices(H133G060187)3-35AccessibleLocationInformationDeliveredviaGPSCellPhoneforPeoplewithVisualImpairments(H133G060035)3-33AdaptedAssessmentofSpeedofInformationProcessinginChildrenwithCerebralPalsy(H133G070044)2-77AdverseOutcomesFollowingInpatientRehabilitation:TrendsandReasons(H133G060218)2-95AppropriateDirectionalHearingAidSwitchinginSchoolAgeChildren(H133G060012)3-54AssessingSafetyRiskafterTraumaticBrainInjury(H133G080153)4-20AssessingtheImpactofMedicare-DonSSDIBeneficiaries(H133G070055)5-11AugmentingLanguageTherapyforAphasia:ARandomizedDouble-BlindPlacebo-ControlledTrialofLevodopainCombinationwithSpeech-LanguageTherapy(H133G070074)2-73AnAutomaticFittingAlgorithmforCochlearImplant(H133G060065)3-36BiopsychosocialFactorsthatPredictTBIPost-AcuteRehabilitationOutcomes(H133G070171)2-69CaptionAccuracyMetricsDevelopmentProject(H133G080093)3-46CaptioningSolutionsforHandheldMediaandMobileDevicesDevelopment(H133G070122)3-45CIL-BasedAbuseEducationandSafetyPlanningProgramforWomenwithDisabilities(H133G070196)4-26ClinicalReliabilityandValidityofaFootModel:AssessingEfficacyandFunctionalE-8ProjectsbyProgramTypeOutcomewithOrthoticInterventioninChildrenwithCerebralPalsy(H133G060155)3-57CognitiveTrainingandSupportedEmploymentinSevereMentalIllness(H133G050230)1-16CombiningTechnologiestoMaximizeOutcomes:TelemedicineandOnlineTrainingProgramforParentsofChildrenwithAutism(H133G060238)4-22ConservativeandSurgicalClubfootTreatment:Multi-CenterStudy(H133G060252)2-96Constraint-InducedMovementTherapyModifiedforRehabilitatingArmFunctioninStrokeSurvivorswithPlegicHands(H133G050222)2-64ControlledStudyofAffectRecognitionTrainingforIndividualswithTraumaticBrainInjury(H133G080043)4-27DailyLivingandCommunitySkillsVideoGameforChildrenwithDevelopmentalDisabilities(H133G080151)4-28DevelopingCollegeCampusesasTransitionSettingsforStudentswithSevereandMultipleDisabilitiesAged18-21(H133G080158)4-32DevelopmentandUseofaMulti-StateDatabaseonIndividualOutcomesandtheirPredictorsforPersonswithIntellectualandDevelopmentalDisabilitiesintheUS(H133G080029)5-7DevelopmentofaCognitiveBehavioralGroupTherapyInterventionforWomenwithPhysicalActivityDisabilitieswhoExperienceDepression(H133G070214).
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2-84DevelopmentofaSafety-PlanningToolforMenwithDisabilities(H133G070190)4-33DevelopmentofanIntelligentlyControlledAssistiveRehabilitationElliptical(ICARE)TrainingSystemtoPromoteWalkingandFitnessinPersonswithPhysicalLimitations(H133G070209)2-80DevelopmentofanInternet-BasedSelf-EsteemInterventionforWomenwithDisabilities(H133G080042)4-36DevelopmentofDynamicPedorthosisforImprovingClubfootCorrection(H133G060142)3-56DevelopmentofMeasuresofParticipationandEnvironmentforChildrenwithDisabilities(H133G070140)4-24EffectivenessofaGroupCognitive-BehavioralInterventionforDepressionafterTBIandFactorsthatAffectResponsetoTreatment(H133G070222)2-92EffectivenessofaTeleconferenceFatigueManagementProgramforPeoplewithMultipleSclerosis(H133G070006)2-74EfficacyofPressureGarmentTherapyAfterBurns(H133G050022)2-93EnhancedMotorRecoveryUsingSerotonergicAgents(H133G060124)2-71EvaluatingDysphagiainIndividualswithSpinalCordInjury:AssessingIncidence,AssociatedFactors,andPreventableComplications(H133G080165)2-66EvaluatingtheEffectsofActivity-BasedTherapyforIndividualswithChronicSpinalCordInjury(H133G080031)2-70EVIDAAC:ADatabaseofAppraisedEvidenceinAugmentativeandAlternativeCommunication(H133G070150)7-11ExerciseTreatmentofObesity-RelatedSecondaryConditionsinAdultswithParaplegia(H133G080150)2-68Fifteen-yearCourseofCompetitiveEmploymentforPeoplewithSevereMentalIllness(H133G050181)1-17FunctionalEffectsofBifocalUse:ImplicationsforFallingInterventions(H133G050340)3-55ImpactofProspectivePaymentandRehabilitationOutcomes(H133G080163).
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5-9ImprovedWeightBearingEvaluationofKneeOsteoarthritis(H133G080136)3-48ImprovingRepresentativePayeeshipforPeoplewithPsychiatricDisabilitiesandtheirFamilies(H133G070058)4-29InclusiveIndoorPlay(H133G040324)3-38InstrumenttoMeasureRecovery-PromotingCompetenceAmongProvidersServingSpanishSpeakingMentalHealthConsumers(H133G060071)4-23E-9ProjectsbyProgramTypeInvestigatingtheEffectsofSnoezeleninChildrenRecoveringfromSevereBrainInjury(H133G070119)2-67InvestigationofInterventionsforSittingPosturalControlinYoungChildrenwithModeratetoSevereCerebralPalsy(H133G080023).
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2-82InvestigationoftheDynamicsofDevelopmentofSittingPosturalControlinInfantswithCerebralPalsy(H133G040118)2-81ALongitudinalStudyofRiskforHospitalization,PressureUlcers,andSubsequentInjuriesAfterSpinalCordInjury(H133G050165)2-90AMeansofExpression:OnlineCommunicationAssessmenttoImproveOutcomesforIndividualswithSevereDisabilities(H133G070129)3-52MicromachinedBrailleReader(H133G070135)3-50MinimalClassroomRequirementsforOptimalAcousticAccesstoSpeechbyChildrenwithandWithoutHearingLoss(H133G060116)3-47MultimodalAccesstoInformationGraphics(H133G080047)3-34ANationalAssessmentoftheRatesandCorrelatesofAlcoholandOtherDrugUsebyCollegeStudentswithDisabilities(H133G080123)5-10NeuroanatomicalCorrelatesofPositivePsychologyAmongPeoplewithTraumaticBrainInjury:ABiopsychosocialModel(H133G080064)2-79ANewMeasureofSubjectiveFatigueinPersonswithTraumaticBrainInjury(H133G080168)2-65OptimizedHands-FreeSpeechRecognition(H133G050354)3-43OutpatientSocialSkillsTrainingforDistressedAdolescentBurnSurvivors(H133G050079)4-35OvercomingGravityInducedArmandHandDysfunctiontoRestoreFunctionalReachingFollowingStroke(H133G070089)3-41Parent-InfantInteractionProject(PIIP)(H133G080132)4-34Participation,SubjectiveWell-Being,Health,andSpinalCordInjury:A35-YearLongitudinalStudy(H133G060126)2-91PathwaystoDepression:AnExaminationofVulnerabilityandStressinAdultswithSpinalCordInjury(H133G070020)2-78PersonalAudioInformationService(H133G070093)3-37PromotingHealth,Empowerment,andCommunityIntegrationAmongPeoplewithHIV/AIDS:TheMedicationAdherenceProgramStudy-II(MAPS-2)(H133G060224)4-21PublicSpendingforDisabilityintheUnitedStates:AComparative,LongitudinalStudy(H133G070163)5-6QualityofLifeinTraumaticBrainInjuryRe-searchandPractice:DevelopmentoftheTBI-QOL(H133G070138)2-83ARandomizedTrialofRealignmentTherapyforTreatmentofMedialKneeOsteoarthritis(H133G040201)2-75RehabilitationofReachinginChronicStrokeUsinganAnti-GravityForceField(H133G060169)2-72SensorimotorTrainingandAssessmentinAdultswithHemiplegicCerebralPalsy:TheULTrAProgram(H133G050151)2-76SystematicStudyoftheEffectivenessofAACInterventiontoImproveConversationinIndividualswithDegenerativeLanguageDisorders(H133G080162)3-53TeenOnlineProblemSolvingforPediatricBrainInjury(H133G050239)4-30TelephoneandIn-PersonCognitiveBehavioralTherapyforDepressionAfterTraumaticBrainInjury(H133G070016).
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2-94TreatmentComponentsandActiveIngredientsinaScheduledTelephoneInterventionforTraumaticBrainInjury(H133G070143)2-87UnderstandingtheDeterminantsofMotorAbility,Self-Care,andPlayofYoungE-10ProjectsbyProgramTypeChildrenwithCerebralPalsy(H133G060254)2-88UniversalDesignofTactileExhibitswithTouchActivatedDescriptiveAudioforAquariums(H133G060284)3-51UseofFunctionalNeuroimagingtoAssesstheStatusoftheAttentionNetworksFollowingTraumaticBrainInjury(H133G050219)2-85UsingtheU.
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EqualEmploymentOpportunityCommission(EEOC)EmploymentDiscriminationChargeDataSystemforResearchandDisseminationPurposes(H133G040265)5-8VideoGamingTechnologytoPromoteHealthandFitnessAmongAdolescentswithDisabilities(H133G080120)3-42VirtualRealityAssessmentandTreatmentofHemispatialNeglect(H133G060086).
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2-89WebTherapytoImproveOutcomesAfterTraumaticBrainInjuryinYoungChildren(H133G060167)4-31Web-basedStudentProcessesatCommunityColleges–ToolsforEnsuringAccessibility(H133G040255)3-49Web-BasedTreatmentforAphasia(H133G060055)3-40WorkEnvironmentandQualityofLifeOut-comes:AComparisonoftheExperiencesofFormalandInformalCaregiversofPersonswithSpinalCordInjuries(H133G060267)4-25WorkplaceAccommodationWizard:AnAssessmentandAccommodationToolforEmployers(H133G070063)3-39ZolpidemandRestorationofConsciousness:AnExplorationoftheMechanismofAction(H133G080066)2-86Fellowships(Distinguished)DemographicSoup:DisentanglingtheConceptual,Political,andMethodologicalDimensionsofDisabilityStatistics(H133F060011)9-14AMixedMethodsStudyofParenting,Children,andRecoveryinMotherswithSeverePsychiatricDisabilities(H133F080009)9-15Multi-Joint/DOFsDiagnosisandTreatmentofUpperLimbinPatientsPostStrokeUsinganExoskeletonRobot(H133F080021)9-13Fellowships(Merit)DevelopmentofaNeural-MachineInterfaceforLower-LimbProsthesisControl(H133F080006)9-17PhysicalandSocialEnvironmentalFactorsthatInfluenceHealthandParticipationOutcomesforChronically-IllAdults(H133F080014)9-20PsychometricEvaluationoftheFamilyQualityofLifeSurveyforMinorityFamilies(H133F080024)9-19ASurveyofPostsecondaryDisabilityServicesUsebyStudentswithPsychiatricDisabilities(H133F080030)9-18VirtualReality-BasedAssessmentToolforSpatialNeglectFollowingStroke(H133F080010)9-16AdvancedRehabilitationResearchTrainingProjectsAdvancedPsychiatricRehabilitationResearchonEmploymentandCommunityIntegration(H133P050006)9-29AdvancedRehabilitationResearchandDisabilityPolicyTrainingCenter(H133P070004)9-32AdvancedRehabilitationResearchTraining(H133P020003)9-34AdvancedRehabilitationResearchTraining(H133P080007)9-35AdvancedRehabilitationResearchTrainingCenteronNeuro-musculoskeletalRehabilitation(H133P070007)9-30AdvancedRehabilitationResearchTraininginPediatricMobility(H133P080005)9-39AdvancedRehabilitationResearchTrainingProgram(H133P050004)9-31AdvancedRehabilitationResearchTrainingProjectinRehabilitationServicesResearch(H133P080006)9-24E-11ProjectsbyProgramTypeAdvancedResearchTrainingProgram(H133P040006)9-36AdvancedResearchTrainingPrograminPsychiatricRehabilitation(H133P070001)9-26AdvancedTraininginTranslationalandTransformationalResearchtoImproveVocationalOutcomesforPersonswithDisabilities(H133P060003)9-23ClinicianResearchersandEngineers:AdvancedRehabilitationResearchTraining(H133P040008)9-38HealthActivityRehabilitationResearchTrainingCenter(HARRTC)(H133P050005)9-28InterdisciplinaryRehabilitationResearchTrainingProgram(H133P040003)9-33Post-DoctoralFellowshipinRehabilitationOutcomesandEffectiveResearch(H133P050001)9-25RehabilitationScienceforBasicScientistsandEngineers:AnAdvancedTrainingProgram(H133P040007)9-22TheUMHS/MSU/AACILRehabilitationResearchTrainingProgram(H133P030004)9-27UniversityofWashingtonAdvancedRehabilitationResearchTraining(H133P080008)9-37ADATechnicalAssistanceProjectsDBTAC-GreatPlainsADACenter-RegionVII(H133A060089)8-10DBTACRockyMountainADACenter-RegionVIII(H133A060079)8-11DBTAC:GreatLakesADACenter(H133A060097)8-7DBTAC:Mid-AtlanticADACenter(H133A060085)8-5DBTAC:SoutheastADACenter-RegionIV(H133A060094)8-6DisabilityandBusinessTechnicalAssistanceCenter-Northeast(H133A060088)8-4DisabilityandBusinessTechnicalAssistanceCenter(DBTAC)—Northwest(H133A070048)8-13DisabilityandBusinessTechnicalAssistanceCenter(DBTAC)—PacificADACenter(H133A060098)8-12NewEnglandDisabilityandBusinessTechnicalAssistanceCenter-RegionI(H133A060092)8-3SouthwestDisabilityandBusinessTechnicalAssistanceCenter(SouthwestDBTAC-RegionVI)(H133A060091)8-9SmallBusinessInnovationResearch(SBIR),PhaseIConnectivitytoModernElectronicsfortheHearingDisabled(H133S080032)3-65ContextAwareSelfManagementToolsforIndividualswithSignificantCognitiveDisabilities(H133S080041)4-37ConversationalComputerInterfaceforManagingPersonalInformation:JotChat(H133S080023)3-71CreatingAudio-TactileIllustratedDigitalTalkingBooksUsingaDigitalPen-BasedComputingPlatform(H133S080030)3-67DevelopmentandEvaluationofaLocation-BasedMultimediaSystemforProvidingAccesstoInformationinCommunitySettings(H133S080044)3-58DevelopmentandEvaluationofaUniversalDesignMultimediaApproachtoEnableAutonomousCompositionbyStudentsandAdultswithIntellectualDisabilities(H133S080007)3-59DiabetesMonitoringforCognitivelyImpairedAdults(H133S080013)3-68EvaluationofaUniversallyDesignedMultimediaApproachtoPromoteIndependentAccesstoInstantMessagingTechnologyforIndividualswithIntellectualDisabilities(H133S080008)3-60KnowledgeAthletesPlatform:CapitalizingonOnlineCommunicationtoIn-creaseParticipationandLearningforAllStudents(H133S080027)3-66MoneyCoach:AMoneyManagementSystemtoFacilitateIndependentLivingforIndividualswithIntellectualDisabilities(H133S080042)3-61E-12ProjectsbyProgramTypePocketEmail:DevelopmentandEvaluationofanAccessiblePDA-BasedEmailProgramtoFacilitateRemoteCommunicationforIndividualswithIntellectualDisabilities(H133S080014).
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3-62SigningSciencePictionaryforYoungLearnerswhoareDeaforHardofHearing(H133S080039)3-63ASocialNetworkingSystemforParentsandProfessionalsWorkingwithChildrenwithAutismSpectrumDisorders(H133S080021)3-69SoundCompass-AWearableSoundDirectionandMotionDetectorforPeoplewhoareDeaforHardofHearing(H133S080054)3-64UtilityArmandUpperLimbProsthesis(H133S080017)3-70SmallBusinessInnovationResearch(SBIR),PhaseIIATLAS:AnAccessibleTesting,Learning,andAssessmentSystemforIndividualswithIntellectualDisabilitiestoFacilitateInclusionandAccesstotheGeneralCurriculum(H133S080066)3-72HearingCompanion:HandheldPortableSoundIdentificationandCriticalAlertingFunctionalityforPeopleWhoAreDeaforHaveHearingLoss(H133S080075)3-75ALow-CostPortable/WearableDeviceforIntelligentStretchingandMovementTrainingofHypertonicForearminStrokewithOutcomeEvaluation(H133S080076)3-74LowVisionLime:SolutionforLowVisionMusicianstoRead,Perform,Write,andPrintMusicNotation(H133S070089)3-82MobileLanguageReferenceforDeafandHard-of-HearingK-12Students(H133S070088)3-73MyScrivenerInnovativeTechnologytoEnhanceFineMotorFunction(H133S070082)3-78PoweredMountingandPositioningSystem(H133S060096)3-77TelevisionAssistedPromotion(TAP):EnhancingRehabilitationOutcomeswithFamiliarTechnology(H133S080077)3-80UniversalAccesstoPassengerRail(H133S050136)3-81WhyGoItAloneTheUseofPublicResourcestoEnhanceComputerAccessibilityforIndividualswithIntellectualDisabilities(H133S070096).
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3-79WirelessEMGPreampandImprovedMountingSystem(H133S070084)3-83WirelessWristDevicetoAlerttheDeafofSoundsandEventsinTheirEnvironment(H133S080068)3-76UtilizationProjectsABLEDATA(ED-04-CO-0018/0007)7-13NationalRehabilitationInformationCenter(NARIC)(ED-08-CO-0095)7-12