Fishteddyfamily

2007PACERCenter,Inc.
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Minneapolis,MN55437|Phone(952)838-9000|MNToll-Free(800)537-2237PACER@PACER.
org|PACER.
orgPACERCENTERACTIONINFORMATIONSHEETSSiblingResources:ABibliographyofSelectedResourcesforSiblingsofChildrenwithDisabilitiesArticlesWrittenforAdultsBrothersandSistersofChildrenwithDisabilities:AnAnnotatedBibliography.
1990.
AvailablethroughPortlandStateUniversity,PublicationsCoordinator,ResearchandTrainingCenteronFamilySupportandChildren'sMentalHealth.
$5.
P.
O.
Box751,Portland,OR,92207-0751;(503)725-4040.
ChildrenwithDisabilities:UnderstandingSiblingIssues.
NICHCYNewsDigest,Number11,1988.
NationalInformationCenterforChildrenandYouthwithDisabilities.
Availableonlineonlyat:www.
nichcy.
org/pubs/outprint/nd11.
pdf.
SocialandEmotionalAdjustmentofSiblingsofChildrenwithAutism.
Pilowsky,T.
,Yirmiya,N.
,Doppelt,O.
,Gross-Tsur,V.
,Shalev,R.
S,.
JournalofChildPsychologyandPsychiatry.
2004,45(4):855-865.
BooksWrittenforAdultsBrothersandSisters–ASpecialPartofExceptionalFamilies.
2ndEd.
,Powell,Thomas;Gallagher,P.
Baltimore:PaulH.
BrooksPublishingCo.
(1993).
Exploresthenaturalaffinitiesamongsiblings,andgivesspecificstepsfamiliescantaketomeettheneedsofsiblingsofchildrenwithdisabilities.
BrothersandSistersTalkwithPACER.
Bloomington,MN:PACERCenter,1987.
PACERCenter,8161NormandaleBoulevard,Bloomington,MN55437-1044.
(952)838-9000,(800)537-2237.
Brothers,Sisters,andSpecialNeeds:InformationandActivitiesforHelpingYoungSiblingsofChildrenwithChronicIllnessandDevelopmentalDisabilities.
Lobato,DebraJ.
,Ph.
D.
Baltimore:PaulH.
BrookesPublishing,1995.
Writtenforprofessionals,parents,andsocialworkers,thiscurriculumisdesignedespeciallyforyoungchildren,ages3to8,whosesiblinghasadevelopmentaldisabilityorchronicillness.
CirclesofCare&Understanding:SupportProgramsforFathersofChildrenwithSpecialNeeds.
May,James.
AssociationfortheCareofChildren'sHealth,1992.
Amanualfordevelopingsupportgroupsforfathers.
ADifferenceintheFamily–LivingwithaDisabledChild.
Featherstone,Helen.
NewYork:PenguinBooks,1981.
DisabilityandtheFamily:AGuidetoDecisionsforAdulthood.
Turnbull,H.
R.
;Turnbull,A.
;Summers,J.
;Bronicki,G.
J.
Baltimore:PaulH.
Brookes,1990.
FamilySystemswithinEducationalContexts:UnderstandingatRiskandSpecialNeedsStudents.
2ndEd.
Lambie,Rosemary.
Denver:LovePublishingCompany,1999.
HelpingChildrenbyStrengtheningFamilies.
Allen,MaryLee;Brown,P.
;Finlay,F.
WashingtonD.
C.
:Children'sDefenseFund,1992.
LikeNormalPeople.
Meyers,Robert.
NewYork:SignetBooks,1980.
Bytellingthestoryoftwobrothers,thisbookspans25yearsanddepictsthechangesinattitudesandtheimprovementsinservicesforpersonswithdisabilities.
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org2LivingwithaBrotherorSisterwithSpecialNeeds.
Meyer,D.
J.
;VadasyP.
2ndEd.
Seattle:UniversityofWashingtonPress,1996.
PracticalConcernsaboutSiblings:BridgingtheResearch-PracticeGap.
Schachter,FrancesFuchs;StoneR.
K.
NewYork:HaworthPress,1988.
ProfilesoftheOtherChild:ASiblingGuideforParents.
McCaffrey,FrancesDwyer;Fish,T.
Columbus:OSUNisongerCenter,PublicationsDepartment,1989.
Abookletaboutparents'feelingsandexpectationsconcerningbrothersandsistersofchildrenwithspecialneeds.
OhioStateUniversity,1581DoddDr.
,Columbus,OH43210-1296;(614)292-0825.
RebuildingYourDream:FamilyLifewithaDisabledChild.
Krahl,Rhonda.
IowaCity:UniversityofIowa,PublicationsDepartment,1990.
Thisbookprovidessupportandhelpfulsuggestionsforlivingwithachildwithadisability.
ResourcesforSiblingGroups.
Amanualwithlessonplansforsiblinggroups,age4andup;alsoinformationtodevelopsuccessfulsiblingsprograms.
AvailableatFamilyResourcesAssociates,35HaddonAve.
,Shrewsbury,NJ07702;(732)747-5310.
Sibshops:WorkshopsforSiblingsofChildrenofSpecialNeeds.
Meyer,Donald;VadasyP.
Baltimore:PaulH.
BrookesPublishing,1995.
Ahandbookforimplementingworkshopsforsiblingsofchildrenwithspecialneeds.
P.
O.
Box1047,Arlington,TX76004;1-800-433-5255(voice),or1-800-855-1155(TDD).
SiblingsofChildrenwithAutism(TopicsinAutismSeries):AGuideforFamilies.
Harris,Sandra;GlasbergB.
2ndEd.
Bethesda:WoodbineHouse,2003.
Thisbooktakesanin-depthlookatwhatitislikeasasiblingofachildwithAutism.
Italsoaddressestheconcernsandresponsibilitiesofadultsiblings.
BooksforChildrenTheDevilHole.
Spence,Eleanor.
NewYork:Lothrop,Lee&Shepard,1977.
AnAustralianfamilydescribestheeffectandemotionalproblemsforparentsandsiblingsofanautisticboy.
Ages12-15.
ADifferentKindofSister.
Reynolds,Pamela.
NewYork:Lothrop,Lee&Shepard,1968.
Thirteen-year-oldSallyBarnes'sister,18-year-oldDebbie,hascomehometoliveafterfouryearsinaschoolforpeoplewithmentalretardation.
Ages9-14.
Don'tTakeTeddy.
Baastad-Friis,Babbis.
NewYork:ArchwayPocketBooks,1973.
A13-year-oldtriestosavehisolderbrotherwhoismentallyhandicappedfrompossibleimprisonment.
EagleEyes:AChilds'GuidetoPayingAttention.
Gehret,Jeanne.
NewYork:VerbalImagesPress,1991.
Astoryaboutan8-year-oldboywhohasattentiondeficitdisorder(ADD),andallthisentailsforhisfamily.
He'sMyBrother.
Lasker,Joe.
Chicago:AlbertWhitmanCo.
,1991.
Tellsthestoryofanolderbrother'saffectionforJamie,whohasalearningdisability.
Ages4-8.
HeIsYourBrother.
Parker,Richard.
NewYork:PenguinGroup,1976.
ThefamilyofayoungchildwithAutismlearnstogetthroughtohim.
Ages9-12.
IHaveaSister,MySisterisDeaf.
Whitehouse,Jean.
NewYork:HarperCollinsChildren'sBooks,1999.
Ayounggirltellsabouteverydayexperienceswithhersister.
Ages5-10.
I'mSomebody,Too.
Gehret,Jeanne.
NewYork:VerbalImagesPress,1996.
Exploresthefeelingsofthe12-year-oldsisterofthemaincharacterinEagleEyesandhowshestrugglestofindaplaceforherselfinherfamily.
LittleTime.
Baldwin,AnneNorris.
NewYork:VikingPress,1978.
Fromthepointofviewof10-year-oldSara,lifeinafamilywhichincludesa4-year-oldbrotherwithDownsyndromeisdescribed.
Ages8-12.
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org3LivingwithaBrotherorSisterwithSpecialNeeds:ABookforSibs.
Meyer,D.
J.
;Vadasy,P.
F.
;Fewell,R.
R.
Seattle:UniversityofWashingtonPress,1996.
Providesusefulinformationaboutspecifichandicappingconditionsandaperceptiveaccountoftheemotionsandconcernsexpressedbysiblingswhoseliveshavebeentouchedbythepresenceofachildwithspecialneedsinthefamily.
Foryoungreaders.
MeToo.
Cleaver,VeraandBill.
NewYork:NAL,1975.
Twelve-year-oldLydiaandLornieareidenticaltwinswithoneimportantdifference—Lorniehasmentalretardation.
Ages11-14.
MoreTimetoGrow.
Grollman,SharonHya.
Boston,BeaconPress,1977.
Storyofa9-year-oldgirlwhotriestounderstandher5-year-oldbrotherwhoismentallyretarded.
Includesaguideforparentsorteachers.
Ages5-12.
MyBrother,Matthew.
Thompson,Mary.
Bethesda:WoodbineHouse,1993.
Davidtellswhatit'sliketobetheolderbrotherofMatthew,whowasbornwithabraininjury.
MyBrotherStephenisRetarded.
Sobol,HarrierLangsam.
NewYork:MacMillanPress,1977.
An11-year-oldgirltellsaboutthemixedfeelingsshehasforherolderbrother.
Ages5-12.
MySister.
Hirsch,Karen.
Minneapolis:CarolrhodaBooks,LernerPublications,1977.
Ayoungboysharesthestoryoflifewithhisoldersisterwhohasmentalretardation.
Ages5-12.
MySisterIsDifferent.
Wright,Betty.
Milwaukee:RaintreeChildren'sBooks,1982.
CarollearnssomeimportanttruthsaboutallhisfeelingstowardhisoldersisterTerry,whoismentallyretarded,whenhelosesherinadepartmentstore.
Ages5-8.
MySister'sSilentWorld.
Arthur,Catherine.
Chicago:ScholasticLibraryPublishing,1979.
Theoldersisterofan8-year-oldwithahearingimpairmentdescribeswhataworldwithoutsoundmustbelike.
Ages5-9.
SiblingBibliography.
Shrewsbury:FamilyResourceAssociates.
Thisbibliographywaspreparedspecificallyforsiblingsofchildrenwithdisabilities.
Themajorityofthebookselectionsfocusinsomewayonsiblingrelationships.
Theyareusefulforsiblinggroupsandforparentsandchildrentosharetogether.
FamilyResourceAssociatesInc.
,35HaddonAvenue,Shrewsbury,NJ07702;(732)747-5310.
SometimesI'mMad,SometimesI'mGlad.
Heinemann,Janalee.
Sarasota:Prader-WilliAssociation,1982.
A7-year-oldgirldescribeswhatit'slikelivingwithherbrotherwhohasPrader-Willisyndrome.
Ages8-12.
SpecialKindofSister.
A.
Smith,LuciaB.
NewYork:HenryHolt&Co.
Inc.
,1979.
A7-year-oldgirldescribesthedemandsaswellastheopportunitiesherfamilyexperiencesbecauseher5-year-oldbrotherisviewedasdifferentbyothers.
Ages4-8.
SweetWhispers,BrotherRush.
Hamilton,Virginia.
NewYork:HarperCollinsPublishers,1983.
Thisstrange,contemporarytaleinvolvesghoststhatrevealthepastandhelp14-year-oldTreetounderstandthepresentandherolderbrotherDabwhoismentallyhandicapped.
Ages12-15.
TakeWing.
Little,Jean.
Boston:Little,BrownandCo.
,1968.
Althoughherparentshavenotyetacknowledgedhisretardation,Laurelknowsheryoungerbrotherisdifferentandexperiencesmixedfeelingstowardhimasshestrugglestomakefriendswithotherchildren.
Ages10-14.
ViewsfromourShoes:GrowingupwithaBrotherorSisterwithSpecialNeeds.
Meyer,Donald.
Bethesda:WoodbineHouse,1997.
Forty-fivesiblingssharetheirexperiencesaschildrenofsiblingswithdisabilities.
WelcomeHome,Jellybean.
Shyer,MarleneFanta.
PeterSmithPublishing,1996.
Twelve-year-oldNeilwritesofthedrasticchangesfacedbyafamilywhenhissisterwhohasspentnearlyallofherlifeininstitutionscomeshometolive.
Ages12-15.
WhatAboutMeRodowski,Colby.
NewYork:Farrar,Straus,&Giroux,1989.
Afrankaccountofthedifficultiesandproblemsof15-year-oldDorrie,whoseyoungerbrotherhasDownsyndrome,clearlydelineatesthenegativefeelingsthatsiblingsofachildwithretardationmayexperience.
Ages12-15.
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org4Where'sBuddyRoy,R.
Chicago:Scholastic,1986.
AboomthatillustratestheexperienceofBuddy,a7-year-oldboywithdiabetesandhisbrother,Mike.
Theauthoraddressesissuesconcerningfamilydynamicsandsiblinginteractionforyoungreaders.
NewslettersForSiblingsOnly.
Directedat4-9-year-olds,thisnewsletterincludesanoriginalstory,libraryresources,discussionoffeelingsandspecialdefinitions.
Publishedquarterly.
$12peryear.
FamilyResourceAssociates,35HaddonAvenue,Shrewsbury,NJ07702;(732)747-5310.
SiblingForum.
Forpre-teensandteenagers.
Includessectionsfocusingonfeelings,problemsandresources,libraryinformation,specialdefinitions,feedbackfromreaders,andwebresourceinformation.
$12peryear.
FamilyResourceAssociates,35HaddonAvenue,Shrewsbury,NJ07702;(732)747-5310.
VideosBrothersandSisters–GrowingUpwithaBlindSibling.
1992.
(11minutes)Eightbrothersandsistersofchildrenwhoareblindorvisuallyimpairedtalkabouthowitisforthemtogrowupinahomewhereasiblinghasadisability.
InstituteforFamiliesofBlindChildren,Mailstop111,P.
O.
Box54700,LosAngeles,CA90054-0700;(323)669-4649.
($10tocovershippingandhandling)JustCallHimMatthew!
(26minutes,1992)SixNewMexicochildrentalkhonestlyabouthowitfeelstohaveabrotherorsisterwithadevelopmentaldisability,suchasautism,cerebralpalsy,orDownsyndrome.
ThisvideowascreatedbyaparentfortheAutismSocietyofAmerica.
GayFinlayson,9118JamesPlaceNE,Albuquerque,NM87111;(505)291-9284.
($30)TheNextStep.
(20minutes)Discussionswithyoungadultsiblingsofchildrenwithdisabilities.
OhioStateUniversity,NisongerCenter,1581DoddDrive,Columbus,OH43210;(614)292-0825.
OrganizationsFamilyResourceAssociates,Inc.
Providessupportandresourcesforbrothersandsistersofchildrenwithdisabilities.
35HaddonAvenue,Shrewsbury,NJ07702;(732)747-5310.
FriendsofYale,NewHavenChildren'sHospital.
Providesaprogram,We'reSpecialToo!
(asiblingprogram),whichhelpssiblingsdealwiththeirfeelings,andhowthedisabilityorillnessofasiblingaffectsthemtoo.
P.
O.
Box208064,NewHaven,CT06520-8064,(203)688-2336,orvisitthewebsite:www.
thefriendsonline.
org/programs/werespecialtoo.
htmlParentAdvocacyCoalitionforEducationalRights.
PACER'Sprogramshelpparentsandchildrenbecomeinformedandparticipatingmembersinthelifeofachildwithdisabilities.
Inadditiontovideos,publicationsandnewsletters,PACERoffersmanyworkshopsinMinnesota.
8161NormandaleBoulevard,Minneapolis,MN55437-1044,(952)838-9000.
Formoreinformationvisitthewebsiteat:PACER.
orgTheSiblingSupportProjectofTheArcoftheUnitedStates.
CreatespeersupportandeducationalopportunitiesthroughSibshopsandonlinesibling-relatedlistservsforbrothersandsistersofchildrenwithspecialneeds.
DonaldMeyer,Director,651223rdAveNW,Suite213,Seattle,WA98117;(206)297-6368.
Formoreinformationvisittheirwebsiteat:www.
thearc.
org/siblingsupport