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FirstMeetingBERLIN3October20082ContactandAbstractbook1stSIOPPPOmeetingBerlin2008INTRODUCTIONDearcolleaguesandfriends,InJanuary2007theScientificBoardapprovedfortheinstallationofasub-committee,dedicatedtoPediatricPsycho-Oncology:SIOPPPO,anareaofresearchwhichwasnotintheSIOPprogramyet.
Inpediatriconcologysettings,pediatricpsychologists,withtheirsciencebasedknowledge,havebecomevitalmembersofmultidisciplinaryclinicalandresearchteams,addingspecialistknowledgetotreatmentandresearchofchildrenwithcancer.
Inpediatricpsycho-oncology,activeresearchisbeingconductedtoimprovetheunderstandingoftheimpactofchildhoodcanceronthepatients'wellbeingaswellasonthatoftheirfamilymembers,withinadevelopmentalperspective.
Inordertoincorporatethefindingsofpediatricpsycho-oncologyintoclinicalpractice,itisimportanttomakepsycho-oncologyanactivecomponentofcancertreatment,counsellingandrehabilitation.
Takenthisintoconsiderationpsycho-oncologyisofmajorimportancewithintheSIOP.
ThepurposeoftheSIOPPPOisto:1.
facilitatetheexchangeofresearchdataonpediatricpsycho-oncologyissues2.
tosupporttheintegrationofthesedatawithcurrentpsychologicalresearch,theory,andpractice3.
toencouragetheactiveincorporationofthispsychologicalknowledgeintoclinicalpediatriconcologypracticeDuringthemeetinginMumbai,thecommitteewaspresentedbutnospecialtimetoPediatricPsycho-Oncologycouldbededicatedyet.
Andnowduringthe40thSIOPmeetinghereinBerlin,weareproudtopresentPediatricPsycho-OncologyontheSIOPProgram.
Wehavebeengiventheopportunitytoputforwardapsycho-oncologysymposiumwhichwillbeheldonthetopic:InterventionsinpediatricpsychooncologywithinvitedspeakersfromtheUSA.
Furthermoretheyhavegivenustheopportunitytohavetimeandplaceforapre-meetingwhichwillbeheldonFriday3ndOctober.
Youhaverespondedtoourinvitationtosubmitabstractsandshowtheimportanceofpsycho-oncology.
Thisresultedinmorethan100submissionsonthepsychosocialtopic.
ItneedstobementionedthatSIOP-PPOrelatedabstractswerealsosubmittedinPalliativeCareandLateEffects.
Theresultisimportant:alargenumberofpostersandalsosomeinterestingoralpresentationthroughouttheprogram.
WethanktheBoardoftheSIOPthattheyhavegivenustheopportunitytogivepsycho-oncologyaplaceintheSociety.
Wearelookingforwardtoanexcitingmeetinginwhichresearchandexperienceswillbeexchangedandpossiblynewcollaborationswillbestarted.
WehopetocontinuetheSIOP-PPOactivitiesinthefuture.
LookingforwardtoseeyouinSanPaolo(2009)orBoston(2010).
MarthaGrootenhuis,alsoonbehalfofthesubcommittee:JohnSpinetta,JonathanHill,GabiCalaminusandEstherMeijer-vdBergh3ContactandAbstractbook1stSIOPPPOmeetingBerlin2008PRE-MEETINGPROGRAM&ABSTRACTS(inorderofappearance)3October20088.
30-17.
00ECCRoom54ContactandAbstractbook1stSIOPPPOmeetingBerlin2008PROGRAMPRE-MEETING8.
30-8.
45WelcomebyMarthaGrootenhuis(ChairSIOP-PPO)andGabiCalaminus(ChairSIOPScientificCommittee)8.
45-9.
45Familyfunctioning(Chair:AnneKazak,USA)1.
Impactofcaringforachildwithcanceronparent'squalityoflife.
(AnneKlassen,Canada)2.
Activelyprovidedcrisisinterventionduring1styearpost-diagnosisforparentsofchildrenwithcancer–arandomizedcontrolledtrial(KristerKBoman,Sweden)3.
Improvingparentalqualityoflifeandpatients'psychosocialadaptationbyfamily-orientedinpatientrehabilitationprograms.
(LutzGoldbeck,Germany).
9.
45-10.
15Coffeebreak10.
15-11.
30AbstractselectionsonInterventions(chair:MarthaGrootenhuis,theNetherlands)1.
Psychologicalinterventioninsiblingsofpediatriccancerpatients:asystematicreview(AlicePrchal,Switserland).
2.
AGroupSocialSkillsInterventionProgramforSurvivorsofChildhoodBrainTumors(FionaSchulte,Canada)3.
Coachingparentsofbraintumoursurvivors:Apilotstudy(AnnikaLindahlNorberg,Sweden)4.
Positiveeffectsofgrowthhormonetherapyonpsychologicalwell-beinginYoungadultssurvivorsofchildhoodacutelymphoblasticleukemia(JaapHuisman,theNetherlands)5.
Aspecificsiblingprogramonapediatrichematology-oncologyunit(TruiVercruysse,Belgium)6.
ComparingchildhoodleukemiatreatmentbeforeandafterintroductionofaparentaleducationprograminIndonesia(SaskiaMostert,theNetherlands)11.
30-13.
00LunchBreak:"meetandgreet"13.
00-14.
00Neuropsychology(Chair:RobertButler,USA)1.
Firstexperienceswithaneuropsychologicalassessmenttool(AndreasWiener,Germany)2.
Neurocognitive(dys)function20yearsaftercancertreatment(IlseSchuitema,theNetherlands)3.
Behaviouraleffectsofdexametazoneduringtheinductiontherapyforacutelymphoblasticleukaemia(FransescaNichelli,Italy)14.
00-15.
00Treatmentissues(Chair:EstherMeijer-vandenBergh,theNetherlands)1.
Follow-upcareafterchildhoodcancer:survivors'viewsofcurrentandalternativemodelsofcare(GiselaMichel,UK)2.
Clinicaltrials:informationandawarenessofunderagedpatients(LuisaMassimo,Italy)3.
Stressandburnoutinpediatriconcologystaff(SuzanneMukherjee,UK)15.
00-15.
30TeaBreak15.
30-16.
30OpenDiscussionchairedbyJohnSpinetta.
SIOP-PPO"assembly""meeting:discussionaboutimportanttopicsonfutureconferencesandcollaboration(feasibilityproblemsandpitfallswithinmulticentrestudies)16.
30Closing17.
00OpeningSymposiumSIOPconference5ContactandAbstractbook1stSIOPPPOmeetingBerlin2008ABSTRACTSPRE-MEETINGIMPACTOFCARINGFORACHILDWITHCANCERONPARENT'SQUALITYOFLIFEAnneKlassenD.
Phil,AssociateProfessor,DepartmentofPediatricsMcMasterUniversity,CanadaOurprogramofresearchconcernsunderstandingfactorsthatmayexplainwhysomeparentsofchildrenwithcancercopewellwiththestressesofchildhoodcancerandothersdonot.
Thisresearchinvolvesongoingandproposedstudies.
Firstly,411CanadianparentsofchildreninactivetreatmentforcancerfromfivepediatriconcologycentersinCanadabetweenNovember2004andFebruary2007completedacomprehensivesurveythatincludeditemsandscalestomeasurefactorsknowntobeimportanttounderstandingthecaregivingstressprocess.
Inthistalk,Iwillpresentresultsthatshowtheextenttowhichparentalqualityoflife(QOL)iscompromised,aswellasfactorsassociatedwithpoorQOL.
Iwillalsohighlighthowandinwhatareasthesubgroupofsingleparentsofchildrenwithcancerdifferedfromparentsintwo-parentfamilies.
Secondly,ourgroupiscurrentlyusingaqualitativestudydesign,withconstructivistgroundedtheoryastheguidingtheoreticalorientation,tounderstandthecaregivingexperiencesoffirstgenerationChineseandSouthAsianimmigrantparentsofchildrenwithcancer.
ImmigrantsmakeupanincreasingproportionofCanada'spopulation,yettheyhavebeenlargelyoverlookedincaregivingresearch.
Ouraimsinthisresearcharetounderstandhowimmigrantparentsofchildrenwithcancerdescribetheirexperiencesofcaregiving,toexplorespecialproblemsorchallengesthatimmigrantparentsmayfaceduetoissuesoflanguage,culturalbeliefs,literacy,andethnicity,andtodescribetheimplicationsoftheirexperiencesforpediatriconcologyservices,programs,andpolicy.
Iwilldescribeourstudymethodologyandpresentkeyfindingsbasedonthefirst26interviews.
6ContactandAbstractbook1stSIOPPPOmeetingBerlin2008IMPROVINGPARENTALQUALITYOFLIFEANDPATIENTS'PSYCHOSOCIALADAPTATIONBYFAMILY-ORIENTEDINPATIENTREHABILITATIONPROGRAMS.
LutzGoldbeck,GermanyObjectivePediatriccanceranditstreatmenthaveanimpactonthewholefamilysystemandareoftenassociatedwithimpairedparentalqualityoflifeandwithariskforpatients'maladaptation.
InGermany,completefamiliesmayparticipateincomprehensiveinpatientrehabilitationprogramsaftertheacutetreatmentphase.
Weevaluatedparentalqualityoflifeandpatients'psychosocialadaptationasendpointsoftheintervention.
Methods234mothersand160fathersparticipatedinamulti-modalinterventionprogramattherehabilitationclinicTannheim,includingcomprehensivemedicalandpsychosocialinterventions.
TheyfilledintheUlmQualityofLifeInventoryforParentsrepeatedlyatadmissiontotheprogram,atdischarge4weekslaterandat6-monthsfollow-up.
Thebehavioralandemotionalsymptomsof125cancerpatientswereassessedbyparentreportsusingtheStrengthsandDifficultiesQuestionnaire(SDQ).
ResultsParentalcaregiversimprovedsignificantlyinallfivequalityoflifedomainsbetweenpreandpostintervention:physicalanddailyfunctioning,satisfactionwiththefamilysituation,emotionalstability,self-development,andwell-being.
Improvementofself-developmentwasmostprominent.
ThetotaldifficultiesscoreoftheSDQimprovedsignificantlybetweenpre-andpost-interventionandreachedasimilarlevelasinahealthycomparisongroupofarecentGermanchildhealthsurveystudy.
Theinterventioneffectspersistedpartlyuntilthefollow-upassessment.
DiscussionFamily-orientedinpatientrehabilitationprogramsareapromisingstrategytoimproveparentalqualityoflifeandpatients'maladaptationaftertheterminationoftheacutetreatmentphaseofthechildwithcancer.
Differentendpointsindicatingre-adaptationofthefamilysystemsuchasparental,patients'andhealthysiblings'qualityoflife,oremotionalandbehavioralsymptomsofpatientsandoftheirhealthysiblingsarediscussedregardingtheirutilityforacomprehensiveevaluationoftheeffectivenessofinterventionsinpediatricpsycho-oncology.
7ContactandAbstractbook1stSIOPPPOmeetingBerlin2008ACTIVELYPROVIDEDCRISISINTERVENTIONDURING1STYEARPOST-DIAGNOSISFORPARENTSOFCHILDRENWITHCANCER–ARANDOMIZEDCONTROLLEDTRIALKristerKBoman,ChildhoodCancerResearchUnit,KarolinskaInstitutet,AstridLindgrenChildren'sHospital,Stockholm,SwedenBackgroundandaimImplementationofevidence-basedpsychologicalinterventionsforfamiliesremainsasignificantchallengeincomprehensivechildhoodcancermanagement.
Effortstodisseminateandimplementworkingpracticesareneededtoadvanceefficientfamilycare.
Wereportarandomisedcontrolledinterventiontrialimplementinganactivelyprovidedcrisisinterventionprogram(CIVP)forparents.
Methods171parentsofchildrenwithnewlydiagnosedcancerunderwentbaselineassessment(T1)ofillness-specificandgenericdistresssymptoms,andtraumaticstress.
ParticipantswererandomisedtotheCIVP,ortothenon-CIVP(standardcare/control)arm.
Follow-updistressassessmentwasdoneatendofCIVP(T2),andoncelateron(T3,notreportedhere).
Theinterventionwasstructuredandtime-limited,andcoveredamainseries,andfollow-upboostersessions.
Qualifiedtherapistsandaflexibleindividualisedmethodwerekeyelementsofthemodel.
Itcompliedwithgenericcrisis-interventiontheoryandtechniquesaddressingworkingthrough,andintegrationofapsychologicaltrauma.
ResultsOutcomedatafromT1andT2werereceivedfrom141parents.
ThemajorityofCIVPparticipantsrateditaseffectiveandhelpful.
AtT2,programparticipants(cases)demonstratedsignificantlyhigherself-esteem,anxiety,lesssleepdisturbances,andlessdepression.
Intervention-relateddistressreductionwassignificantlygreaterforcasesthancontrols,verifiedinachangeinself-esteem,depression,physicalandpsychologicaldistress,overallnegativefeelings,overalldistress,andtraumaticstressConclusionsEarlycrisisinterventioniseffectiveandpositivelyevaluatedbyparents.
Whenactivelyoffered,andprovidedbyqualifiedtherapistsclosetofirstinformationaboutdiagnosis,itreducesseverityofcancer-relateddistress.
Findingsevidencethevalueactivelyprovidedprofessionalcrisisinterventionaspartofstandardcareinpaediatriconcology.
8ContactandAbstractbook1stSIOPPPOmeetingBerlin2008PSYCHOLOGICALINTERVENTIONSINSIBLINGSOFPEDIATIRCCANCERPATIENTS:ASYSTEMATICREVIEWAlicePrchal,MSc,MarkusA.
Landolt,PhD,UniversityChildren'sHospitalZurich,SwitzerlandPurposeSiblingsofpediatriccancerpatientshavebeenshowntobeatriskfordevelopingemotional,behavioralandsocialproblems.
Thereisaneedforpsychologicalinterventionsforthispopulation.
Severalresearchershavepreviouslydocumentedandevaluatedtheirinterventionswithsiblings.
Thispaperaimedtoreviewtheexistingreportsofpsychologicalinterventionswithsiblingsofpediatriccancerpatientsandtooutlinefuturedirections.
MethodsResearchwasconductedonseveralonlinebibliographicdatabases.
Articleswereselectedonthebasisofpredefinedcriteria.
Ifpossible,effectsizeswerecalculated.
ResultsFifteenstudiesrepresentingelevendifferentsiblinginterventionsmetcriteriaforinclusion.
Thereviewedstudiesincludedtwelvepre-postevaluationsandthreerandomizedcontrolledtrials.
Interventionsettingsincludedthreecamps,sevengroupsandonesingleintervention.
Interventionobjectivesmainlyconcentratedonenhancementofsiblings'copingandimprovementofmedicalknowledge.
Intermsofoutcomemeasuresmoststudiesfocusedonvariablesofpsychosocialadjustment.
Outcomeevaluationsrevealedsignificantimprovementsinsiblings'depressionsymptomatology,medicalknowledgeandhealthrelatedqualityoflife.
Findingswithregardtoanxiety,behavioralproblems,socialadjustment,self-esteemandposttraumaticstresssymptomswereinconsistent.
Dependingonoutcomevariablessmalltolargeeffectsizeswerefound.
Satisfactionwiththeinterventionwasgenerallyhighinbothsiblingsandparents.
Thereviewedstudieshadseveralmethodologicalshortcomingsincludingsmallandheterogeneoussamples,lackofcontrolgroups,inadequatedescriptionofinterventions,andnottakingintoaccounttimesincediagnosis.
ConclusionThereistentativeevidencethatpsychologicalinterventionsinsiblingsofchildhoodcancerpatientscaneffectivelyreducepsychologicalmaladjustmentandimprovemedicalknowledgeaboutcancer.
However,thenumberofstudiesissmallandseveralmethodologicalshortcomingshavetobenoted.
Infuture,randomizedcontrolledtrialsneedtobeconductedinlargersamplestoextendtheevidencebase.
9ContactandAbstractbook1stSIOPPPOmeetingBerlin2008AGROUPSOCIALSKILLSINTERVENTIONPROGRAMFORSURVIVORSOFCHILDHOODBRAINTUMORSFionaSchulte,M.
A,Barrera,M.
,Ph.
D,C.
Psych,Toronto,CanadaPurposeToevaluatetheeffectsofasocialskillsgroupinterventionprogramforchildbraintumorsurvivorsandtoexaminerelatedfactors.
MethodsParticipantswere32survivors(14females)aged8to18years.
Medulloblastoma(28%)andastrocytoma(19%)werethemaindiagnoses.
Theinterventionconsistedof82hourweeklysessionsfocusedonsocialskillsincluding:friendshipmakingandconflictresolution.
Survivorsandparentscompletedmeasuresofsocialskills(SSRS),QualityofLife(PedsQL)andbehavior(CBCL/YSR),atbaseline,pre-andpost-interventionand6monthslater.
Childcharacteristicsandclinicalvariableswerealsoexamined.
ResultsBasedonparentreportssignificantimprovementafterinterventionfortheSSRSassertion,PedsQLtotalscoreandCBCLtotal,andinternalizingandsocialproblemssubscales.
IQ,genderandagewererelatedtointerventioneffects.
ConclusionsOutcomesbasedonparentalreportsprovidesomesupportfortheeffectivenessoftheinterventionprogram.
10ContactandAbstractbook1stSIOPPPOmeetingBerlin2008COACHINGPARENTSOFBRAINTUMOURSURVIVORS:APILOTSTUDY.
AnnikaLindahlNorbergPhD,Ingridvan'tHooft,ChildhoodCancerResearchUnit,AstridLindgrenChildren'sHospital,Stockholm,SwedenWehavepreviouslyobservedthatburnout,i.
e.
stress-relatedpsychologicalexhaustion,seemstobemoreprevalentinparentsofyoungbraintumoursurvivorsthaninparentsofchildrenwithnohistoryofchronicorseriousdisease.
Moreover,thisappearstoparticularlyconcernthemothers.
Inapilotstudyinvolvingthreechildrenwithacquiredbraininjuriesaftermedulloblastomawetriedoutastructuredcoachingprogrammeforparents,withinthescopeofatenweeks'cognitivetrainingprogrammeforthechildren.
Fortheparents'part,anaimofthecoachingwastoprovidetoolstoalleviateparentingstress.
Thechildren'straininginvolveddailypracticeofspecificattentionandmemorytechniquessupervisedbyateacher.
Duringthechild'strainingperiodeachparentcouplemettheircoach-alicensedpsychologist-atfiveoccasions.
Thecoachingwasbasedoncognitivebehaviourtherapy,andcontainedpsycho-educationregardingstressmechanisms,insightintothechildren'strainingexercises,andapplicationofthechild'snewskillsindailylife.
Viabilityofthecoachingwasexaminedthroughstructuredinterviewswiththeparentsandobservationsbythecoaches.
Beforeandaftertheinterventionweexaminedtheparents'self-ratedburnoutsymptomsusingtheShiromMelamedBurnoutQuestionnaire.
Accordingtointerviewsandobservations,thecombinationofchildtrainingandparentcoachingwaspracticable.
Initialsymptomsofburnoutwerepronouncedforthethreemothers,butfairlylowforthefathers.
Aftertrainingandcoaching,bothmothersandfathersreportedlowlevelsofburnoutsymptoms.
Ourfindingsencouragefullscalestudiesexaminingwhetheracombinedtrainingandcoachingprogrammecancontributetothealleviationoflong-termstressinparentsofchildrenwithbraininjuriesafterbraintumour.
11ContactandAbstractbook1stSIOPPPOmeetingBerlin2008POSITIVEEFFECTSOFGROWTHHORMONETHERAPYONPSYCHOLOGICALWELL-BEINGINYOUNGADULTSURVIVORSOFCHILDHOODACUTELYMPHOBLASTICLEUKAEMIAJaapHuisman,AukemaEJ,DeijenJB,CoeverdenSCCMvan,KaspersGJL,PalHJHvander,Delemarre-vandeWaalHAPurposeWithincreasingnumbersofsurvivorsofchildhoodacutelymphoblasticleukaemia(ALL)thelatesideeffectsofthediseaseanditstreatmentbecomemoreimportant.
Althoughresearchintopsychosocialfunctioningofadultsurvivorsislimited,anincreaseofdepressivesymptomsandsomaticdistresshasbeenreportedinthisgroup.
Asgrowthhormone(GH)deficiencyoranimpairedGHsecretionarefrequentlyfoundatlong-termfollow-upinpatientstreatedforchildhoodALL,andbecausesomestudiesinGHdeficientadultssuggestpositiveeffectsofGHtreatmentforpsychologicalfunctioningandqualityoflife,wehypothesizedimprovementofpsychosocialwell-beingasaneffectofGHtreatmentinagroupofyoungadultsurvivorsofALL.
MethodTwentyyoungadultsurvivorsofchildhoodALLwithreducedbonemarrowmineraldensityand/orlowIGF-1(2yearspost-treatmentcompletedquestionnairestoassessreasonsforattendingFU-care,clinical(e.
g.
detectrelapse)orsupportive(e.
g.
provideinformation),numberoflateeffectsandperceivedfuturevulnerability,qualityoflife(SF-12)andpreferredmodelofFU.
Medicalinformationwasextractedfromcasenotes.
Results109survivorswerereceivingregularconsultant-ledFU.
Survivorsratedclinicalreasonsmorehighlythansupportivereasons(t=10.
97;df=111;p12,correspondingto57%ofthetotalscore.
Informedconsentmustbeobtainedfromtheparents/tutorspriortotheinterview.
1DepartmentofPediatricHematologyandOncology,2EpidemiologyandBiostatisticsUnit,G.
GasliniChildren'sResearchHospital,Genova,Italy.
19ContactandAbstractbook1stSIOPPPOmeetingBerlin2008STRESSANDBURNOUTINPEDIATRICANDADOLESCENTONCOLOGYSTAFF:PAST,PRESENTANDFUTURERESEARCHSuzanneMukherjee,BryonyBeresford,PatriciaSloperandAdamGlaser,SocialPolicyResearchUnit,UniversityofYork,UnitedKingdomResearchonadultoncologystaffindicatesthattheyareatriskofexperiencingburnoutandpsychiatricmorbidity,withsomeevidenceofariseinrecentyears.
Thesefindingshaveimplicationsforsicknessabsence,jobretention,andqualityofcaretopatients.
Whetherornotthesefindingscanbegeneralisedtostaffworkinginpediatriconcologyisquestionablesincetheneedsofchildrenaredifferentfromadults,asaretheskillsrequiredbystaffwhocareforthem.
Inaddition,childrenexperiencedifferentmalignanciesandmoredose-intensivetherapies.
Arecentreviewoftheliteratureonstressandburnoutinpediatricandadolescentoncologystaffrevealedthattheresearchevidenceonthistopicisverylimited,consistingpredominantlyofexploratoryresearchonthestressorsexperiencedbynursingstaffandonestudyofpsychiatricmorbidityamongnurses.
Thereis,therefore,aneedforfurtherresearchonthistopicamongpediatriconcologystaff,andthisrequiresameasureofwork-relatedstressorssothatfactorswhichincreasetheriskforburnoutandpsychiatricdifficultiescanbeunderstood.
InJanuary2009,aresearchteamattheUniversityofYorkwillbeginaprojectfundedbyCancerResearchUKtodevelopameasureofwork-relatedstressorsexperiencedbystaffworkinginmulti-disciplinarypediatriconcologyteams(doctors,nurses,socialworkers,playspecialistsandyouthworkers).
Nosuchtoolcurrentlyexists.
Inadditiontobeingusefulforfutureresearchinvestigatingstressandburnoutinpediatriconcologystaff,suchameasurecouldbeusedtofacilitateearlyidentificationof,andinterventionsfor,staffatriskofburnoutandpsychiatricdifficulties.
Thepurposeofthispresentationistodiscusstheresearchevidenceonstressandburnout,thenewstudy,andthedirectionoffutureresearchinthisarea.
20ContactandAbstractbook1stSIOPPPOmeetingBerlin2008SYMPOSIUMPROGRAM&ABSTRACTS(inorderofappearance)5October200814.
00-15.
30HallD21ContactandAbstractbook1stSIOPPPOmeetingBerlin2008PROGRAMSYMPOSIUMS10:INTERVENTIONSINPEDIATRICPSYCHO-ONCOLOGYSundayOctober5,2008,from14.
00to15.
30.
Room:HallD.
Chair:Dr.
M.
A.
Grootenhuis,(SIOP-PPO)TimingSpeaker14.
00-14.
05ChairOpeningsymposium14.
05-14.
30AnneKazakEvidencebasedpsychosocialcareinpediatriconcology:Achievementsandchallenges14.
30-14.
55RobertButlerAClinicalTrialofCognitiveRemediationwithChildhoodCancerSurvivors14.
55-15.
10Louisevon-EssenTreatmentofposttraumaticstressamongparentsofchildrenwithcancerwithcognitivebehaviouraltherapyovertheInternet15.
10-15.
25BobLastAcognitive-behavioralbasedgroupinterventiontoempowerchildrenandteenagerstreatedforcancer15.
25-15.
30ChairClosingremarks22ContactandAbstractbook1stSIOPPPOmeetingBerlin2008ABSTRACTSEVIDENCE-BASEDPSYCHOSOCIALCAREINPEDIATRICONCOLOGY:ACHIEVEMENTSANDCHALLENGESAnneE.
Kazak,Ph.
D.
,ABPP,TheUniversityofPennsylvaniaandTheChildren'sHospitalofPhiladelphia,Philadelphia,PA.
PurposeEvidence-basedpracticeisrecognizedascriticaltothedeliveryofhighqualitycareinmedicineaswellasinpsychosocialassessmentandintervention.
Althoughpsychosocialcareisrecognizedasintegraltocomprehensivecareforyouthwithcancerandtheirfamiliesandevidence-basedapproachesareavailable,therearepersistentinconsistenciesinthedeliveryandevaluationofpsychosocialservicesinpediatriconcology.
MethodThispresentationwillprovideabackgroundsummaryofevidence-basedpsychosocialinterventioninpediatriconcology,addressingbroaderissuesrelatedtotheidentificationandimplementationofevidence-basedpractice.
Usingapublichealthmodel–ThePediatricPreventativePsychosocialModel(PPPHM)–threetiersofpsychosocialriskinthepediatriconcologysettingwillbeintroduced,alongwithrecognizedinterventionapproachesconsistentwitheachlevel.
ResultsAblueprintfortheprovisionofpsychosocialservices,acrosstimeandlevelsofriskwillbeoutlined.
SelectedassessmentandinterventionapproacheswillbehighlightedbasedonworkfromourlaboratoryandincludingthePsychosocialAssessmentTool(PAT)andaninterventionmodelthatintegratescognitivebehavioralandfamilytherapytreatmentapproaches–SurvivingCancerCompetentlyInterventionProgram(SCCIP).
ConclusionsConsistenciesinchallengesexperiencedworldwideindevelopingevidence-basedpsychosocialapproachesinpediatriconcologywillbediscussed.
Thepresentationwillconcludewithopportunitiesforfurthertranslatingpsychosocialresearchintopracticeanddevelopingmodelsofmultidisciplinarycollaborationtosupporttheirsustenance.
23ContactandAbstractbook1stSIOPPPOmeetingBerlin2008ACLINICALTRIALOFCOGNITIVEREMEDIATIONWITHCHILDHOODCANCERSURVIVORSRobertButler,OregonHealthSciencesUniversity,Oregon,UnitedStatesPurposeThenatureofneurocognitivedeficitsinsurvivorsofchildhoodcancerwhosemalignancyand/ortreatmentincludedtheCentralNervousSystemhasbeenwelldocumentedoverthepastthreedecades.
Themostcommonunderlyingneurocognitivedeficitsinthispopulationappeartoinvolveimpairmentinsustainedattention/concentration,decreasedinformationprocessingspeedandefficacy,anddifficultiesinworkingmemory.
Surprisinglylittleresearchandclinicalwork,however,hasbeendirectedtowardstreatmentsfortheseunderlyingneurocognitivedeficits.
OutpatientbraininjuryrehabilitationinNorthAmericahaslargelybecometheresponsibilityofthepubliceducationsystem;whereasinthepastitwaspredominantlydirectedbyhealthprofessionalssuchasphysiatrists,neurologists,andneuropsychologistinadditiontootherrelatedprofessionssuchasspeechpathology,occupationaltherapyandsocialwork.
Thispresentationwilldescribethedevelopmentofacognitiveremediationprogram(CRP)directedtowardsimprovingattention/concentration,processingspeed,memory,andothercognitiveandbehavioraldeficitsinthepediatricCNSmalignancy/treatmentpopulation.
MethodTheevolutionoftheCRPhasbeenprogressiveandprogrammatic,andisnowatripartitemodel.
Themodelinvolvesauniquecombinationofthreeintertwinedapproaches:(1)Traditionalbraininjuryrehabilitationtechniques,whichincludesinstructingchildrenandadolescentsinspecificmemorystrategiesdesignedtoimprovefunctioninginthisarea,andalsoeffortstoimproveinformationprocessingspeed;(2)Instructioninmetacognitivestrategies;and(3)Atherapeuticapproachthatinvolvescognitive-behavioralinterventions.
TheCRPhastwokeyaspects.
First,whileitisindividualizedtherapy,ateamapproachisadvocated.
Second,theinterventionisbothprogrammaticandindividualized.
Asetnumberoftreatmentsessionsareprescribed,andexpectedgoalsareidentifiedoverthecourseoftheCRP.
Whileprogrammatic,otherclinicalissuesthatmayariseoverthecourseoftreatmentbecomeafocusfortherapy.
FollowingabriefdescriptionoftheCRP,resultsofamulti-institutional,phaseIIIclinicaltrialcomparingtheCRPtoawaitlistcontrolconditionwillbepresented.
ThisclinicaltrialwasconductedatseveninstitutionsacrosstheUnitedStates,and161individualswereenrolledintothetrial.
ResultsChildren/adolescentswhowereofftreatmentforaCNSrelatedmalignancyanddemonstratedadeficitinattention/concentrationexperiencedahighlysignificantimprovementinacademicachievementwhencomparedtocontrolparticipants.
Theeffectsizeofthisimprovementwas0.
53.
ConclusionWearenowmodifyingtheinterventioninordertoincreaseitspotencyandeffectiveness.
Thisnewdirectioninvolvesprovidingcaregiverswithadirectintervention,andalsoincreasingtheirinvolvementintheactualdeliveryoftheCRP.
24ContactandAbstractbook1stSIOPPPOmeetingBerlin2008TREATMENTOFPOSTTRAUMATICSTRESSDISORDERAMONGPARENTSOFCHILDRENWITHCANCERWITHCOGNITIVEBEHAVIOURALTHERAPYOVERTHEINTERNETProf.
LouisevonEssen,Institutionenfrfolkhlso-ochvrdvetenskapEnhetenfrvrdvetenskapUppsalaUniversitet,SwedenPurposeLearningthatone'schildhasalife-threateningillnessis,accordingtotheDSM-IV(4thed),astressorthatcanprecipitateposttraumaticstressdisorder(PTSD).
Additionally,mostparentsofchildrenwithcancerareexposedtootherpotentiallytraumaticevents.
AfourthofSwedishparents(N=259)havereportedPTSDduringtheirchild'streatmentwhereas14%havereportedPTSDtwelvemonthsafterendoftreatmentasmeasuredwiththePCL-C.
ThefiguresshouldbecomparedtoalifetimePTSDprevalenceof6%(PCL-C)inthegeneralSwedishpopulation.
ASwedishstudyontreatmentofPTSDamongparentsofchildrenwithcancerwithcognitivebehaviouraltherapy(CBT)overtheInternetwillbepresentedatthe40thSIOPCongressinBerlin.
Theoverallaimisto,amongparentsofchildrenwithcancer,evaluatetheclinicalefficacyandcost-effectivenessofanInternet-basedCBTtreatmentforPTSD.
Anotheraimistoevaluatetheeffectofthetreatmentwheninitiatedsixweeksvs.
seventeenmonthsafterthechild'sdiagnosis.
MethodParentswill,fromJanuary2009,beincludedatallsixSwedishcentresforpediatriconcology.
OnehundredparentswhoscoreaspotentialcasesofPTSDonthePCL-C,butdonotsufferfromanypsychiatricdisorderinimmediateneedoftreatment,will,fiveweeksafterthechild'sdiagnosis,berandomlyassignedtoanInternet-basedCBTtreatmentinitiatedeithersixweeksorseventeenmonthsafterthechild'sdiagnosis.
Self-reportsofPTSD,generalanxiety,depression,health-relatedqualityoflifeandhealth-economicconsequenceswillbeprovidedovertheInternetshortlybefore,shortlyafterandtwelvemonthsaftereachtreatment.
Inconnectiontoeachassessmentaclinicalglobalimpressionoftheparentwillbemadeoverthetelephone.
Thetreatmentwillbeperformedbycognitivebehaviouraltherapists,lastapproximatelytenweeksandemployaweb-basedmanualwithweeklytherapistcontactbye-mail.
Itwillbedividedintotenmodulesandwillmainlyconsistofimaginalexposuremethods.
ThemoduleswillbeaccessibleviatheWorldWideWebusingencryptedhomepagesandanonymousencryptede-mail.
Eachmodulewillincludeinformation,exercises,andessayquestions.
ResultsThefirstresultswillbeavailablein2010.
ConclusionsThestudywillrevealwhetheritisclinicallyeffectiveandcost-effectivetotreatPTSDamongparentsofchildrenwithcancerwithCBTovertheInternet.
Thefindingswillalsorevealtheeffectivenessofstartingthistreatmentapproximatelysixweeksvs.
seventeenmonthsafterthechild'sdiagnosis.
Consideringthatthereisanassociationbetweenthedistressexperiencedbyparentsofchildrenwithcancerandthechildren'spsychologicaladjustmentthefindingsmaynotonlybeofimmediatebenefitfortheparentsbutalsoforthechildrenwithcanceraswellastheirsiblings.
25ContactandAbstractbook1stSIOPPPOmeetingBerlin2008ACOGNITIVE-BEHAVIORALBASEDGROUPINTERVENTIONTOEMPOWERCHILDRENANDTEENAGERSTREATEDFORCANCERProf.
Dr.
BobF.
Last,StamH.
,GrootenhuisMA.
EmmaChildren'sHospital,AmsterdamMedicalCenter,theNetherlandsPurposeGrowingupwithahistoryofchildhoodcancermeansforthechildandhisfamilytomanagevariousstressorsrelatedtouncertaintyanduncontrollabilityofthesituation,andpossiblyalsorestrictionoffreedomtoactduetoadversephysicalconsequencesofthedisease.
Childrenusedifferentcopingstrategiesfordealingwithstressorsinrelationtotheirillnessortreatment.
Dependentonthestressortheselectedcopingstrategywillbeeffectiveintermsofadjustment.
Consideringtheadverseeffectsofmanytreatments,theuncertaintyaboutthefurthercourseofthediseaseandotherpsychosocialimplicationsofchildhoodcancer,thereisneedforinterventionsaimedatempowermentforsurvivorsofchildhoodcancer.
Todeterminetheusefulnessofacognitive-behavioralgroupinterventionforchildrenwithcancertheeffectivenesswasstudied.
MethodBasedonprinciplesfromcognitivebehaviortherapyandinformationfrompreviousresearchaboutchildren'sexperienceswithcopingwithaseriouschronicdiseasewedevelopedaninterventionforchildrenandadolescentstreatedforcancer.
Withinthisprogram,calledOpKoers(OK),with6sessionsfordifferentagegroups,specificsub-programswerecomposedforchildrenaged8-12yearsandforteenagerswithcancerintheageof12-18years.
Participantsaretrainedininformationseekingandinformationgivingaboutthedisease.
Inasessionwithanoncologistquestionsaboutcancertreatmentandlateeffectsarediscussed.
Relaxationispractisedduringthesessionsaswellasathome.
Socialcompetenceisenhancedbyrole-playing(youngerchildren)andbygroupdiscussion(teenagers)withspecialattentiontofeelingsofbeingdifferentasaresultofthedisease.
Positivethinkingisencouragedthroughidentifyingandcorrectingnegativethoughtsanddiscouragenegativeself-talk.
Thegroupinterventionwasevaluatedintwostudies,usingstandardizedandresearcher-developedpsychologicalmeasures.
Instudy1(n=20,12-18yrs)outcomescores0-6weeks(T1)andhalfayear(T2)aftertheinterventionwerecomparedwithbaselineoutcomescoresbymeansofdependentsampleT-testsandWilcoxonsignedrankstests.
Instudy2(n=11,8-12yrs)scoresweredichotomisedinapositiveandnegativecategory.
SubsequentlywelabelledandcountedthechangesbetweenTOandT1.
ResultsInbothstudiesimprovementswerefoundinbehavioral-emotionaloutcomes,socialcompetence,informationseeking,relaxationandpositivethinking.
Additionally,thesessionsreceivedpositiveappraisals.
ConclusionTheprogramappearstohaveasignificantandpositiveimpactonchildrenwithcancer.
Furtherresearchisneededtoestablishtheeffectsoftheintervention.
26ContactandAbstractbook1stSIOPPPOmeetingBerlin2008SIOP-PPOGUIDEWheretofindPSYCHO-ONCOLOGYrelatedsubjectsontheSIOPconference27ContactandAbstractbook1stSIOPPPOmeetingBerlin2008SATURDAYOCTOBER4thFREEPAPERSLATEEFFECTS1:10.
30-12.
00(ECCHALLC)Chairs:P.
A.
Kurkure,India&T.
Lange,GermanyO.
033:PERSISTENTHEALTH-RELATEDANDFUNCTIONALLATEEFFECTSINADULTSURVIVORSAFTERCHILDHOODCNSTUMOURANDTREATMENT.
ANATION–WIDECOHORTSTUDY:KristerKBoman,EmmaHoven,MalinAnclair,BirgittaLannering,GranGustafsson,SwedenO.
034:PERCEPTIONSOFMEDICALPROBLEMS.
YOUNGADULTCHILDHOODCANCERSURVIVORSANDTHEIRHEALTHCAREPROVIDERS:LisaSchwartz,ClaireCarlson,JillGinsberg,WendyHobbie,JunMao,SueOgle,MaryRourke,BranlynWerba,AnneKazakUnitedStatesO.
035:PRIMARYCAREPROVIDERCONTINUITYAMONGSURVIVORSOFCHILDHOODCANCERINBRITISHCOLUMBIA,CANADA:HeddenLindsay,SamSheps,MariaLorenzi,Anne-MarieBroemeling,MaryMcBrideCanadaNURSESI.
CHILDANDFAMILYEXPERIENCESALONGTHECANCERJOURNEY:10.
30-12.
30(ECCHALLA)Chairs:F.
Gibson,U.
K.
&K.
Huerst,GermanyNO.
001:LIVINGWITHCHILDHOODCANCER-FAMILYMEMBERS'EXPERIENCESANDNEEDS:MariaBjrk,BeritNordstrm,ThomasWiebe,IngerHallstrmSwedenNO.
002:CANCERCHILDHOODS.
ANALYSISOFDATAFROMANETHNOGRAPHICSTUDYOFCHILDHOODCANCERINBRITISHBANGLADESHICHILDREN:PaulaKellyU.
K.
NO.
003:STRUGLINGON.
EXPERIENCESOFFOREIGN-BORNPARENTSINCHILDHOODCANCERCARE:PernillaPergert,SolvigEkblad,OlleBjrk,KarinEnskr,TomAndrewsSweden,IrelandNO.
004:THEEXPERIENCEOFFAMILIESWHO'SCHILDRECEIVEDANHEMATOPOIETICSTEMCELSTRANSPLANTATION:Marie-FranceVachon,IreneLeboeuf,MelissaLaroche,GenevieveMercier,FranceDupuis,MichelDuval,MartinA.
ChampagneNO.
005:THEPROCESSOFRELINQUISHING.
PARENTALSTRUGLEBETWEENLOSSANDPRESERVATIONOFTHEIRCHILDRECEIVINGPALLIATIVECARE:MarijkeKars,MiekeGrypdonck,RiaKorte-Verhoef,HansvanDeldenNO.
006:EVALUATIONOFSUPORTGROUPSFORBROTHERSANDSISTERSOFCHILDRENWITHCANCER:MargarethaNolbris,Anna-LenaHellstrm,KarinEnskr,JonasAbrahamsson,LisaOlofsson,SwedenFREEPAPERSLATEEFFECTS2:14.
00-15.
30(ESTRELLHALLB)Chairs:M.
Jankovich,Italy&L.
Hjorth,SwedenO.
053:EDUCATIONALLATEEFFECTSAMONGSURVIVORSOFCHILDHOODCANCERINBRITISHCOLUMBIA:ACAYACSSTUDY:MaryMcBride,AmyMcMillan,LindaSiegel,BrunoZumbo,MariaLorenzi,KarenGoddardCanadaO.
054:PROSPECTIVESTUDYOFCNS-TOXICITYANDHEALTHRELATEDQUALITYOFLIFEINALLPATIENTS:MariosPaulides,Jrn-DirkBeck,JoannaPeeters,ThorstenLangerGermanyO.
055:PSYCHOLOGICALDISTRESSINLONG-TERMSURVIVORSOFCHILDHOODCANCERINSWITZERLAND:GiselaMichel,CorneliaE.
Rebholz,NicolasX.
vonderWeid,EvaBergstraesser,ClaudiaE.
Kuehn,UnitedkingdomO.
056:LONGITUDINALASSESSMENTOFHEALTH-RELATEDQUALITYOFLIFEINCHILDRENWITHNON-CNSCANCERAFTERTHEENDOFSUCCESSFULTREATMENT:HeleenMaurice-Stam,BobLast,MarthaGrootenhuis,NetherlandsFREEPAPERSSUPPORTIVECARE1:17.
00-17.
30(ECCROOM5)Chairs:M.
vandeWetering,Netherlands&B.
Agarwal,IndiaO.
080:18.
15-18.
30QUALITYOFLIFEOFCHILDRENTREATEDFORCEREBELLARTUMOURSANDAHEALTHYCOMPARISONGROUP:REPORTONBEHALFOFTHECCLGOFTHEFIRSTASSESSMENT:ColinKennedy,KimBull,Unitedkingdom28ContactandAbstractbook1stSIOPPPOmeetingBerlin2008SUNDAYOCTOBER5thPlenarySessionS7:InfantBrainTumours:10.
30-12.
00(ECCHallD)S.
028Lateeffectsandqualityofsurvival:J.
GrillFrancePOSTERVIEWINGII:13-14HOURSPostersofDisciplines:Epidemiology:E001-E035SupportiveCare:G001-G028Imaging:I001-I005PODC:J001-J040Psychosocial:K001-K056LateEffects:L001-L042RadiationOncology:M001-M009PalliativeCare:Q001-Q008AdolescentandYoungAdultOncology:S001-S015Others:T001-T020S10:PLENAIRSESSION:INTERVENTIONSINPAEDIATRICPSYCHO-ONCOLOGY(ECCHALLD:14-15.
30)Chair:M.
Grootenhuis,NetherlandsS.
037EVIDENCE-BASEDPSYCHOSOCIALCAREINPEDIATRICONCOLOGY:ACHIEVEMENTSANDCHALLENGES:AnneKazak,UnitedStatesS.
038ACLINICALTRIALOFCOGNITIVEREMEDIATIONWITHCHILDHOODCANCERSURVIVORS:R.
Butler,UnitedStatesS.
039TREATMENTOFPOSTTRAUMATICSTRESSDISORDERAMONGPARENTSOFCHILDRENWITHCANCERWITHCOGNITIVEBEHAVIOURALTHERAPYOVERTHEINTERNET:LouiseVonEssen,SwedenS.
040ACOGNITIVE-BEHAVIORALBASEDGROUPINTERVENTIONTOEMPOWERCHILDRENANDTEENAGERSTREATEDFORCANCER:BobF.
Last,HeleenMaurice-Stam,MarthaGrootenhuis,NetherlandsMONDAYOCTOBER6thBESTPOSTERDISCUSSIONII(14-15.
30:HALLA+D)Chairs:K.
Matthay,U.
S.
&J.
Poole,SouthAfricaDiscussionofselectedpostersofdisciplines.
E–EpidemiologyG–SupportiveCareI–ImagingJ–PODCK–PsychosocialL–LateEffectsM–RadiationOncologyQ–PalliativeCareS–AdolescentandYoungAdultOncologyT–Others29ContactandAbstractbook1stSIOPPPOmeetingBerlin2008WHOISWHOINPEDIATRICPSYCHO-ONCOLOGY(inalphabeticalorder)30ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameAarsenFirstNameFemkeTitleMscDegreesMscContactinformationErasmusmc/SophiaChildren'sHospitalPObox20603000CBRotterdamTheNetherlandsEmailaddressf.
aarsen@erasmusmc.
nlProfessionPediatricNeuropsychologistFunctionClinicalNeuropsychlogistMainactivitiesPatientCare,ResearchandEducationFocusofresearchNeuropsychologyAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
CognitiveFunctionsandNF1(2005-2008)2.
CerebellarPilocyticAstrocytomaandCognitivefunctioning(2003-2010)3.
CognitiveFunctioninginsurvivorsofsepsis(2005-2008)4.
CognitiveFunctioninginMPSchildrentreatedwithenzymtherapy(2003-present)5.
CognitiveFunctioninginPompechildrentreatedwithenzymtherapy(2003-present)6.
CognitiveFunctioninginchildrenwithMS(2007-present)7.
CognitiveFunctioninginchildrenwithCSWS(2003-present)Keypublications(max5)Catsman-BerrevoetsCE,VanDongen,HR,AarsenFK,PaquierPP.
Transientcerebellareyeclosureandmutismaftercerebellartumorsurgery:long-termclinicalfollow-upofneurologicandbehavioraldisturbancesina14-year-oldgirl.
PediatrNeurosurg.
2003Mar;38(3):122-7.
AarsenFK,VanDongenHR,PaquierPP,VanMourikM,Catsman-BerrevoetsCE.
Long-termsequelaeinchildrenaftercerebellarastrocytomasurgery.
Neurology.
2004Apr27;62(8):1311-6.
AarsenFK,PaquierPP,ReddingiusRR,StrengIC,ArtsWFM,Evera-PreesmanM,Catsman-BerrevoetsCE.
Functionaloutcomeafterlow-gradeastrocytomatreatmentinchildhood.
Cancer.
2006Jan15;106(2):396-402.
AarsenFK,VandenAkkerEL,DropSL,Catman-BerrevoetsCE.
Effectoftopiramateoncognitioninobesechildren.
Neurology.
2006Oct10;67(7):1307-8.
KrabLC,AarsenFK,DeGoede-BolderA,Catsman-BerrevoetsCE,ArtsWFM,MollHA,ElgersmaY.
ImpactofNeurofibromatosisType1onSchoolPerformance.
JChildNeurol(inpress)31ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameAmblerFirstNameCherylTitleClinicalPsychologistspecializinginNeuropsychologyDegreesPh.
D.
Contactinformation20370TownCenterLane,Suite168CupertinoCaliforniaUSAEmailaddressCheryl@neat.
bzProfessionNeuropsychologicalAssessmentFunctionAssessment,Supportforchildrenwithcancer,siblings,parentsMainactivitiesAssessment;ResearchwithLucilePackardChildren'sHospitalatStanford,SometreatmentFocusofresearchLateeffectsofchildrenwithcancerAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
BeginningprojectswithEisairesearchonuseofAreceptwithchildrentreatedwithchemotherapyandradiation;2.
Children'sOncologyGroupNeuropsychological,Social,EmotionalandBehavioralOutcomesinChildrenwithCancerKeypublications(max5)None32ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameArmstrongFirstNameDanielTitleProfessor&AssociateChair,Dept.
ofPediatrics:Director,MailmanCenterforChildDevelopment;andDirector,UniversityofMiamiSickleCellCenter,UniversityofMiamiMillerSchoolofMedicine;andAssociateChiefofStaff,HoltzChildren'sHospitalatUM/JacksonMemorialMedicalCenterDegreesPh.
D.
ContactinformationP.
O.
Box016820(D-820),Miami,FL33101Emailaddressdarmstrong@miami.
eduProfessionAcademicMedicalCenterFaculty,PediatricPsychologistFunctionSeniorDepartment&HospitalLeadership;CenterDirector&ResearchProgramDirector/PIMainactivitiesPatientCare(5%);Research(70%),Training(5%)Administration(20%)FocusofresearchNeurodevelopmentallateeffects(outcomes,mechanisms,intervention)inchildhoodcancer,sicklecelldisease,andHIV;health-relatedqualityoflifeAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)FUNDEDPROJECTSONLY1.
PI:Kassam-Adams,N.
(Children'sHospitalofPhiladelphia),Armstrong,F.
D.
(UniversityofMiamiSitePI.
ValidatingachildacutestressmeasureinEnglishandSpanish.
4/1/07-3/31/112.
PI:Reaman,G.
(Armstrong,F.
D.
,Co-PI,NaomiWinick,Co-PI).
Children'sOncologyGroupChair'sGrant,MethotrexateSupplement.
1/1/06-12/31/11.
3.
PI:Armstrong,F.
D.
(2006).
NationalChildren'sCancerSociety.
Childhoodcancercognitivelateeffects:Just-in-timetrainingforteachers.
(6/06-10/08)4.
PI:Armstrong,F.
D,BrieryB,Co-Investigator.
"AssessingImplementationandEffectivenessofIEPsforChildrenwithCancer"AmericanCancerSociety).
1/1/03-12/31/08.
5.
PI:Armstrong,F.
D.
Preventionofneurocognitivedeficitsinchildrenwithchronicillness.
MicahBatchelorAwardforExcellenceinChildren'sHealthResearch.
FundingPeriod:11/1/05-10/31/010.
Keypublications(max5)Ris,M.
D.
,Beebe,D.
W.
,Armstrong,F.
D.
,Fontanesi,J.
,Mulhern,R.
K.
,Holmes,E.
,&Wisoff,J.
H.
(Inpress).
Cognitiveandadaptiveoutcomeinextracerebellarlowgradebraintumorsinchildrenfromanationalcollaborativestudy(CCG9891/POG9130):AreportfromtheChildren'sOncologyGroup.
JournalofClinicalOncology.
Nathan,P.
C.
,Patel,S.
,Dilley,K.
,Goldsby,R.
,Harvey,J.
,Jacobsen,C.
,Kadan-Lottick,N.
,McKinley,K.
,Millham,A.
K.
,Moore,I.
,Okcu,M.
F.
,Woodman,C.
L.
,Brouwers,P.
,&Armstrong,F.
D.
(2007).
NeurocognitiveandBehavioralProblemsinSurvivorsofChildhoodCancer:GuidelinesforIdentification,AdvocacyandIntervention.
ArchivesofPediatricsandAdolescentMedicine,161(8),798-806.
Armstrong,F.
D.
(2006).
Neurodevelopmentandchronicillness:Mechanismsofdiseaseandtreatment.
MentalRetardationandDevelopmentalDisabilitiesResearchReviews,12,168-173.
Beebe,D.
W.
,Ris,M.
D.
,Armstrong,F.
D.
,Fontanesi,J.
,Mulhern,R.
K.
,Holmes,E.
,&Wisoff(2005).
Cognitiveandadaptiveoutcomeinlow-gradepediatriccerebellarastrocytomas:Evidenceofincreasedriskinnationalcollaborativeresearchstudies(CCG9891/POG9130).
JournalofClinicalOncology,22,5198-5204.
Armstrong,F.
D.
&Reaman,G.
H.
(2005).
Psychologicalresearchinchildhoodcancer:TheChildren'sOncologyGroupperspective.
JournalofPediatricPsychology,30,89-97.
33ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameAukemaFirstNameElineJTitleMissDegreesMScContactinformationPsychosocialDepartment,G8-224EmmaChildren'sHospital/AcademicMedicalCenterMeibergdreef91105AZAmsterdamTheNetherlandsTelephone:0031-20-5665670Emailaddresse.
j.
aukema@amc.
uva.
nlProfessionPsychologistFunctionPh.
D.
StudentMainactivitiesClinicalpracticeandresearchFocusofresearchBraintumors;Lateeffects;Neurocognitiveconsequences;Qualityoflife;Survivorsandparents;InterventionsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
2006-2010:Lateconsequencesandneedsofyoungsurvivorsofabraintumorandtheirparents.
Keypublications(max5)Aukema,Last,Schouten-vanMeeterenandGrootenhuis.
Alertness,psycho-education,anticipationofschoolandsupportinsearchfortheappropriatecareisnecessarytomeettheneedsofbraintumorsurvivorsandtheirparents(submitted).
Aukema,Caan,Oudhuis,Majoie,Vos,Reneman,Last,GrootenhuisandSchouten-vanMeeteren.
WhitematterFractionalAnisotropyCorrelateswithSpeedofProcessingandMotorSpeedinYoungChildhoodCancerSurvivors.
IntJofRadiationOncologyBiologyPhysics(inpress)Huisman,Aukema,Deijen,Coeverdenvan,Kaspers,Palvanderand.
Delemarre-vandeWaal.
Theusefulnessofgrowthhormonetreatmentforpsychologicalstatusinyoungadultsurvivorsofchildhoodleukaemia:anopen-labelstudy.
BMCPediatrics2008.
34ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameVanBaalenFirstNameManitaTitleDegreesContactinformationErasmusMC-Sophia,LATERpolikamerSb1635,Postbus2060,3000CBRotterdamEmailaddressm.
vanbaalen@erasmusmc.
nlProfessionFunctionCoordinatorLateEffectsOutpatientclinicMainactivitiesPatientCareandResearchFocusofresearchLateEffectsafterchildhoodcancerAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)Keypublications(max5)35ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBarreraFirstNameMaru(Maria)TitleSeniorAssociateScientist,ResearchInstitute,SickKids,Toronto;AssociateProfessor,UniversityofToronto,Toronto,Ontario,CanadaDegreesMA,PhDContactinformationDept.
ofPsychologySickKidsTorontoOntarioCanadaEmailaddressMaru.
barrera@sickkids.
caProfessionpsychologistFunctionClinician,researcher,professorMainactivitiesPatientCare;Research,BothFocusofresearchPsychosocialandqualityoflifeoutcomesofpediatriccancertreatment,includingbonemarrowandstemcelltransplantation;psychosocialinterventionforsiblings,childrenwithbraintumorsandbereavedsiblingsandparents;parentalbereavement;psychosociallateeffectsofchildhoodcancerAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Friendship,familyadjustmentandgriefinsiblingsandparentsaftercancerdeath;sitePI,4of5yrs;2.
Friendshipandfamilyadjustmenttotreatmentofpediatricbraintumors;sitePI,lastof3years;3.
Socialskillsinterventionwithchildrentreatedforbraintumors;PI;firstofthreeyears;4.
Hope,thecomplexjourneyofparentsofchildrenwithcancer;co-PI,lastofthreeyears;5.
Groupinterventionforbereavedsiblings;applyingforadditionalfunding;6.
Groupinterventionforsiblingsofchildrenwithcancer;applyingforadditionalfunding;7.
Recentprojectsfinishedon:healthpromotionandlongitudinalpsychosocialoutcomesinchildrenwhoundergobonemarroworstemcelltransplantation;qualityoflifeandpsychosociallongtermoutcomesofsurvivorsofchildhoodbonecancerKeypublications(max5)Barrera,M.
,D'Agostino,N.
,Schneiderman,G.
,Tallett,S.
,andSpencer,L.
(2007).
ParentalBereavementaftertheLossofaChild.
Omega,55(2),149-171.
Barrera,M.
Andrews,G.
,Burnes,D.
&Atenafu,E.
(2008)Agedifferencesinperceivedsocialsupportbypediatrichematopoieticprogenitorcelltransplantpatients:Alongitudinalstudy.
Child:Care,Health&Development.
34(1),19-24.
Barrera,M.
Andrews,G.
,Saunders,F.
,&Atenafu,E.
(2008)Factorsrelatedtochangesincognitive,academicandvisualmotorintegrationinchildrenwhoundergohematopoieticprogenitorcelltransplant.
,JournalofPediatricPsychology.
33(5)536-546.
Barrera,M.
,Schulte,F.
,&Spiegler,B.
(2008)Factorsinfluencingdepressivesymptomsofchildrentreatedforabraintumor.
JournalofPsychosocialOncology,26(1),1-16.
D'Agostino,N.
Berlin-Romalis,D.
,Jovcevska,V.
&Barrera,M.
(2008)Bereavedparents'perspectivesontheirneeds,PalliativeandSupportiveCare,6,33-41.
Barrera,M&Atenafu,E.
(2008)Cognitive,educational,psychosocialadjustmentandQualityoflifeofchildrenwhosurvivehematopoieticstemcelltransplantandtheirsiblings.
JournalofBoneMarrowTransplant,Advanceonlineaccess,doi:101017/S1478951508000060.
36ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBeckFirstNameJoernD.
TitleProf.
Drmed.
DegreesPediatrichematooncology,SomatopsychotherapyContactinformationLESSstudycenterUniversityofErlangen,GermanyEmailaddressjdbeck@web.
deProfessionPediatrichematooncologist,SomatopsychotherapistFunctionSenioradvisorfortheLESSstudycenterMainactivitiesLateeffectsaftercancertherapy,LESSFocusofresearchLateeffectsaftercancertherapyAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Lateeffectsaftercancertherapy,LESSKeypublications(max5)Beck,J.
D,WinklerK,NiethammerD,BrandisM,Hertzberg,H,vonderHardtK,GreilJ,RossiR,Lamprechts-DinnesenA,BrmswigJ,KaatschP,MichaelisJ,MeierW,HausdorfG,BielackS,DrrHG,.
:DieNachsorgedervoneinerKrebserkrankunggeheiltenKindernundjugendlichenErwachsenen.
ErsteEmpfehlungenderArbeitsgemeinschaftSptfolgenKlin.
Pdiatr.
207:186-192(1995)berall,M.
Wenzel,D,Hertzberg,H.
,Langer,T.
,Meier,W.
,Dopfer,R.
,Skalej,M.
,Lackner,H.
,Bode,U.
,Janssen,G.
,Zintl,F.
,Beck,J.
D.
:NeurophysiologicalfindingsinlongtermsurvivorsofacutelymphoblasticleukemiainchildhoodtreatedwiththeBFMprotocol81SR-A/BEur.
J.
Pediatr.
156:727-733(1997)Langer,T.
,Henze,G.
,Beck,J.
D.
:Basicmethodsandthedevelopingstructureofalateeffectssurveillancesystem(LESS)inGermany.
FortheGermanLateEffectsStudyGroupintheSocietyofPediatricOncologyandHematologyMedPediatrOncol34:348-351.
2000Sthr,W.
,Paulides,M.
,Bielack,S.
,Jürgens,H.
,Treuner,J.
,Rossi,R.
,Langer,T.
,Beck,J.
,D.
:Ifosfamide–inducednephrotoxicityin593sarcomapatients:AreportfromtheLateEffectsSurveillanceSystem.
PediatrBloodCanc48:447-452,2007Paulides,M,Drr,HG.
,SthrW,BielackS,KoscielniakE,KlingebielT,JürgensH,BllingT,SchuckA,WillichN,SauerR,LangerT,BeckJD,:Thyroidfunctioninpediatricandyoungadultpatientsaftersarcomatherapy:AreportfromtheLateEffectsSurveillanceSystemClinicalEndocrinology66:727-731,200737ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBenArushFirstNameMyriamWeylTitleAssociateProfessorDegreesM.
DContactinformationMeyerChildren'sHospitalRambamHealthCareCampusAssociateProfessorinPediatricsTechnionFacultyofMedicineHaifa31096,IsraelEmailaddressM_benarush@rambam.
health.
gov.
ilProfessionPediatriconcologistFunctionHeadofthePediatricHematologyOncologydepartment,ChairmanoftheIsraelSocietyofPediatricHematologyOncologyMainactivitiesBraintumors,sarcomas,longtermsurvivors.
ResearchinangiogenesisFocusofresearchPalliativecare,longtermsurvivors,Makingdecision,communication,ethics,informedconsentAttendingSIOPBerlin2008Yes,butfrom4thResearchprojects(durationandstartdate)1.
Qualityoflifeofchildrenreceivingchemotherapyandtheirsiblingsatthesametime.
Keypublications(max5)PostovskyS,MoaedB,KrivoyE,OfirR,BenArushMW.
Practiceofpalliativesedationinchildrenwithbraintumorsandsarcomasattheendoflife.
PediatrHematolOncol.
2007Sep;24(6):409-15PostovskyS,LevenzonA,OfirR,BenArushMW.
"Donotresuscitate"ordersamongchildrenwithsolidtumorsattheendoflife.
PediatrHematolOncol.
2004Oct-Nov;21(7):661-8.
JankovicM,SpinettaJJ,MartinsAG,PessionA,SullivanM,D'AngioGJ,EdenT,BenArushMW,XS,PunkkoLR,EpelmanC,MaseraG;SIOPWorkingCommitteeonPsychosocialIssuesinPediatricOncology.
Non-conventionaltherapiesinchildhoodcancer:guidelinesfordistinguishingnon-harmfulfromharmfultherapies:areportoftheSIOPWorkingCommitteeonPsychosocialIssuesinPediatricOncology.
PediatrBloodCancer.
2004Jan;42(1):106-8.
PostovskyS,BenArushMW.
Careofachilddyingofcancer:theroleofthepalliativecareteaminpediatriconcology.
PediatrHematolOncol.
2004Jan-Feb;21(1):67-76HaimiM,PeretzNahumM,BenArushMW.
Delayindiagnosisofchildrenwithcancer:aretrospectivestudyof315children.
PediatrHematolOncol.
2004Jan-Feb;21(1):37-4838ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBeekFirstNameLauraTitleDrsDegreesPsychologyContactinformationEmailaddressl.
r.
beek@umcutrecht.
nlProfessionPsychologistFunctionPsychologistatWilhelminaChildren'sHospital(UMCUNetherlands)MainactivitiesPatientcareandresearchFocusofresearchQualityoflifeoffamiliesandtheirchildrenwithabraintumorAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Inpreparation2009-2013Keypublications(max5)39ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBenkoFirstNameMartaTitleProfessorofpsychologyDegreesProfessorofpsychologyContactinformationChildren'shospitalZagreb,OncologydepartmentKlaiceva1610000ZagrebCroatia+385914600117Emailaddressmbenko@ffzg.
hr,martabenko@yahoo.
comProfessionPsychologistFunctionMaster'sdegreestudentMainactivitiesPatientCareandResearchFocusofresearchChildren,adolescentsandparents–healthandclinicalpsychology(interventions,stressevents,qualityoflife,anxiety,postoperativeoutcomes,neurocognitive,etc.
)AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)Keypublications(max5)Benko,M.
,Horvat,M.
&Bago-Blecic,M.
(2004).
PostoperativeBehavioralOutcomesinChildrenUndergoingTonsillectomy:EffectsofSedativePremedication.
ActaAnaesthesiologicaCroatica,1:7,24-25.
40ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBen-GalFirstNameYaelTitleHeadNurseofHemato-OncologypatientcardepartmentDegreesM.
A.
ContactinformationSchneiderChildren'sMedicalCenterofIsraelTelAvivUniversityPetachTikvaIsraelEmailaddressyaelbengal1@gmail.
comProfessionheadnurseFunctionprojectleaderMainactivitiesinchargedandworkinpatientcareandalsoresearch.
Focusofresearchadolescent'sparents'palliativecare.
AttendingSIOPBerlin2008yes.
Researchprojects(durationandstartdate)1.
Newfamilies-needsandexpectationandstaffintervention.
2.
Endoflifepatient'steem-preparethepatient,thefamilyandthestaff–actionandintervention,3.
Futureproject–sexualityinadolescentswithcancer-whatarethenurses'opinionKeypublications(max5)41ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBernabeuFirstNameJordiTitleDegreesProfessor,PsydContactinformationPediatricOncologyUnitLaFeHospitalCampanar2146009ValenciaSpainEmailaddressJordi.
Bernabeu@uv.
esProfessionPediatricNeuropsychologistFunctionNeuropsychologicalassessmentandrehabilitationMainactivitiesPatientCare;Research,BothFocusofresearchLong-termsequelaeofoncologicaltreatmentsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Incidenceofpediatricbraininjury.
Institutions:SpanishFederationofacquiredbraininjuriesandUniversityHospitalLaFe.
Duration:2007-2009,IP:JordiBernabeuVerdu2.
NeuropsychologicalrehabilitationprograminchildandadolescentsurvivorsofCNSneoplasmandleukemia.
Institutions:FMAP–MapfreFundation.
Duration:2005-2006,IP:AdelaCaete3.
NeurocognitiverehabilitationInstitution:Euroworld(EuropeanFederalBank).
Duration:2003-2005,IP:Castel,V4.
Neuropsychologicalassessmentinchildrenwithintracranialtumorsandleukemia:designofeducationalinterventions.
Institution:IVAQEValencianInstituteofeducationalassessmentandqualityDuration:2004-2004,IP:JordiBernabeuKeypublications(max5)JordiBernabeu,ConcepciónFournier,AdelaCaete.
Chapter:Evaluciónyrehabilitaciónneuropsicológicaenoncología.
Book:Manualdepsicooncología.
Editorial:Síntesis.
2008OrellanaC.
,BernabeuJ.
,MonfortS.
,RosellóM.
,OltraS.
,FerrerI.
,QuirogaR.
,Martínez-GarayI.
,MartínezF.
DuplicationoftheWilliams-Beurencriticalregion:casereportandfurtherdelineationofthephenotypicspectrum.
JournalofMedicalGenetics.
Vol45(3)187-189,2008PatriciaYi,PilarBarreto,CarmenSoler,MiguelFombuena,VictoriaEspinar,LorenzoPascual,RamónNavarro,RemedioGonzález,JordiBernabeu,JesúsSuárez.
GriefsupportprovidedtocaregiversofpalliativecarepatientsinSpain.
PalliativeMedicine.
Vol20521-531,2006Bernabeu,J;López-Luengo,B;Fournier,C;Caete,A;Suárez,J.
M;Castel,V.
AplicacióndelAPT(AttentionProcessTraining)dentrodeunproyectodeintervenciónenprocesosatencionalesenniosconcancer.
RevistadeNeurologia.
Vol38(5)482-486,2004Bernabeu,J;Caete,A;Fournier,C;Lopez-Luengo,B;Barahona,A;Grau-Rubio,C;Tortola,A;Badal,MD;Alvarez-Garijo,JA;Suarez,JM;Castel,V.
Evaluaciónyrehabilitaciónneuropsicológicaenoncologíapediátrica.
revistadepsicooncologia.
Vol0(1)117-134,200342ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBomanFirstNameKristerKTitleAssocprofessorDegreesPhDContactinformationChildhoodCancerResearchUnit,KarolinskaInstitutet,DepartmentofWomanandChildHealth.
AstridLindgrenChildren'sHospital,17176Stockholm,SwedenEmailaddressKrister.
Boman@ki.
seProfessionResearchpsychologistFunctionSeniorresearcher,projectleaderMainactivitiesResearchFocusofresearchPatientandfamilypsychologicaladjustmentinchildhoodcancer.
Supportivecrisisinterventionforparentsofchildrenwithcancer.
Tumourandtreatmentrelatedpsychologicalandfunctionaladverselat-effectsinpatienttreatedforpediatricCNStumours.
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Parentalpsychosocialconsequencesafterachild'scancer;started1998;ongoinglongitudinalfollow-up.
2.
Crisisinterventionforparentsofchildrenwithnewlydiagnosedcancer,started2003,inphaseofreporting(interventionresearch).
3.
Adverselong-termlate-effectsofillnessandtreatmentinpediatricCNStumourpatients;longitudinalfollow-up,started2006,ongoinglongitudinalseveral-years'projectKeypublications(max5)BomanKK,BodegrdG.
Lifeaftercancerinchildhood:Socialadjustmentandeducationalandvocationalstatusofyoung-adultsurvivors.
JPediatrHematolOncol,2004.
26(6):p.
354-362.
BomanKK,VikstenJ,KognerP,SamuelssonU.
Seriousillnessinchildhood:Thedifferentthreatsofcanceranddiabetesfromaparentperspective.
JPediatr2004;145:373-9.
BomanK,KognerP,BjrkO.
Psychologicalsupportiveinterventionforparentsinpediatriconcology.
In:S.
Malhotra(Ed.
),MentalHealthandDisordersinChildrenandAdolescents.
NeedandStrategiesforIntervention(pp.
207-214).
2005.
NewDelhi:CBSPublishers.
LindahlNorbergA,BomanKK.
Parentdistressinchildhoodcancer:Acomparativeevaluationofposttraumaticstress,depressionandanxiety.
ActaOncol,2008.
47(2):p.
267-274.
HjernA.
,LindbladF,BomanKK.
Disabilityinadultsurvivorsofchildhoodcancer-aSwedishnationalcohortstudy.
JClinOncol,2007.
25(33):p.
5262-6.
43ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBomansFirstNameAnTitlePsychologistDegreesUniversityContactinformationUZGent1K5DePintelaan1859000GentBelgiumEmailaddressan.
bomans@ugent.
beProfessionPsychologistFunctionclinicalpsychologistMainactivitiesPatientCareFocusofresearchAdolescents;children,parents;siblings,palliativeandpostpalliativecareAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)Keypublications(max5)44ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBrouwersFirstNamePimTitleAssociateDirector,Infant,Child,&AdolescentResearchProgramsDegreesDrs,PhDContactinformationNationalInstituteofMentalHealthBethesdaMarylandUSAEmailaddressPb56u@nih.
govProfessionPediatricNeuropsychologistFunctionSupervisor,projectleaderMainactivitiesResearchFocusofresearchNeurobehaviorallateeffectsAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Geneticfactorsthatdetermineriskforlateneurobehavioraleffects(ongoing;start2000)Keypublications(max5)BrouwersP,RiccardiR,PoplackD,&Fedio,P.
:Attentionaldeficitsinlong-termsurvivorsofchildhoodacutelymphoblasticleukemia(ALL).
JournalofClinicalNeuropsychology6:325-336,1984JankovicM,BrouwersP,ValsecchiMG,vVeldhuizenA,HuismanJ,KamphuisR,KingmaA,MorW,vanDongen-MelmanJ,FerronatoL,ManciniMA,SpinettaJJ.
Negativelateeffectsof1800cGycranialirradiationonintellectualfunctioninchildrenwithacutelymphoblasticleukemia:AmulticenterEuropeanstudy.
Lancet,1994,344:224-227BrouwersP.
StudyoftheNeurobehavioralConsequencesofChildhoodCancer;EnteringtheGenomicEraJournalofPediatricPsychology,2005,30:79-84.
NathanPC,WhitcombT,WoltersPM,SteinbergSM,BalisFM,BrouwersP,HunsbergerS,BleyerWA,FeusnerJ,SatherH,MiserJ,OdomLF,PoplackDG,ReamanG.
Veryhigh-dosemethotrexate(33.
6g/m2)asCNSpreventivetherapyforchildhoodALL:ResultsofcollaborativeNationalCancerInstitute/Children'sCancerGrouptrialsCCG-191P,CCG-134P,andCCG-144P.
Leukemia&Lymphoma,2006,47:2488-2504.
KrullKR,BrouwersP,JainN,ZhangL,BomgaarsL,DreyerZ,MahoneyD,BottomleyS,OkcuMF:FolatePathwayGeneticPolymorphismsareRelatedtoAttentionDisordersinChildhoodLeukemiaSurvivors.
JournalofPediatrics.
2008,152(1):101-105.
45ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBonnerFirstNameMelanieTitleAssociateProfessorDegreesPhDContactinformationBox3527,DUMCDurhamNC27710USAEmailaddressBonne002@mc.
duke.
eduProfessionClinicalPsychology(PediatricPsychology)FunctionProfessor,Researcher,ClinicianMainactivitiesBothFocusofresearchSurvivorship;cognitivefunctioning;caregiverissuesAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
DeficitsinFacialExpressionRecognitioninChildhoodCancerSurvivors.
Toquantifyandprofilechildhoodcancersurvivors'facialrecognitiondeficitsusingobjectivestandardizedmethodology(ResponsiveVirtualHumanTechnology).
1R03CA128472-01(Bonner),07/01/07–06/30/09,NIH/NCI2.
TRICCS:TargetingInattentioninChildhoodCancerSurvivors.
Toevaluatethefeasibilityandacceptabilityofahome-based,computerizedworkingmemorytrainingprogramforchildhoodcancersurvivors.
1R03CA132570-01(Hardy/Bonner),09/30/07–08/31/09,NIH/NCI,Role:Co-InvestigatorKeypublications(max5)Bonner,M.
J.
,Hardy,K.
K.
,Willard,V.
W.
,Anthony,K.
K.
,Hood,M.
A.
,&Gururangan,S.
(inpress).
Socialfunctioningandfacialexpressionrecognitioninsurvivorsofpediatricbraintumors.
JournalofPediatricPsychology.
Hardy,K.
K.
,Bonner,M.
J.
,Willard,V.
W.
,Watral,M.
A.
,&Gururangan,S.
(inpress).
BriefReport:Hydrocephalusasapossibleadditionalcontributortocognitiveoutcomeinsurvivorsofpediatricmedulloblastoma.
Psycho-Oncology.
Hutchinson,K.
C.
,Willard,V.
W.
,Hardy,K.
K.
,&Bonner,M.
J.
(inpress).
Adjustmentofcaregiversofpediatricpatientswithbraintumors:Across-sectionalanalysis.
Psycho-Oncology.
Bonner,M.
J.
,Hardy,K.
K.
,Willard,V.
W.
,&GururanganS.
(inpress).
AdditionalevidenceofaNonverbalLearningDisability(NLD)insurvivorsofpediatricbraintumors.
Children'sHealthCare.
Bonner,M.
J.
,Hardy,K.
K.
,Willard,V.
W.
,&Hutchinson,K.
C.
(2007).
BriefReport:Psychosocialfunctioningoffathersasprimarycaregiversofpediatriconcologypatients.
JournalofPediatricPsychology,32,851-856.
46ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBuizerFirstNameAnnemiekeTitleDr.
DegreesMDPhDContactinformationDeptRehabilitation,VUUniversityMedicalCenter,POBox7057,1007MBAmsterdam,TheNetherlandsEmailaddressai.
buizer@vumc.
nlProfessionPhysicianFunctionResidentrehabilitationmedicineMainactivitiesPatientCareandResearchFocusofresearchNeurocognitiveoutcomeafterchildhoodcancerAttendingSIOPBerlin2008Yes1.
Researchprojects(durationandstartdate)2.
Neurotoxicityofcancertreatment:neurocognitive3.
dysfunctionandunderlyingmechanisms(Start2006)Keypublications(max5)BuizerAI,DeSonnevilleLM,vandenHeuvel-EibrinkMM,NjiokiktjienC,VeermanAJ.
Visuomotorcontrolinsurvivorsofchildhoodacutelymphoblasticleukaemiatreatedwithchemotherapyonly.
JIntNeuropsycholSoc.
11,nr5,2005,pp554-65.
BuizerAI,deSonnevilleLM,vandenHeuvel-EibrinkMM,VeermanAJ.
Chemotherapyandattentionaldysfunctioninsurvivorsofchildhoodacutelymphoblasticleukemia:effectoftreatmentintensity.
PediatrBloodCancer.
45,nr3,2005,pp281-90.
BuizerAI,deSonnevilleLM,vandenHeuvel-EibrinkMM,VeermanAJ.
BehavioralandeducationallimitationsafterchemotherapyforchildhoodacutelymphoblasticleukemiaorWilmstumor.
Cancer106,nr9,2006,pp2067-2075.
47ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameBullFirstNameKimTitleMrsDegreesBSc(Hons),MScContactinformationDept.
UniversityChildHealth,MP803G,CentreBlock,Glevel,SouthamptonGeneralHospital,Southampton,SO166YD,UnitedKingdomEmailaddressk.
s.
bull@southampton.
ac.
ukProfessionPsychologyFunctionSeniorResearchAssistantandPhDstudentMainactivitiesResearchFocusofresearchQualityoflifeofchildrentreatedforbraintumoursAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
PNET4Outcomestudy-fromabout2000untilatleast2010.
2.
Indepthstudyoffactorsaffectingqualityoflifeaftertreatmentofposteriorfossabraintumour2005-2010.
3.
Inpreparation.
Singleoutcomestudyforallchildrenenrolledinbraintumourstudies.
Keypublications(max5)Bull,K.
andKennedy,C.
(2008).
Alongitudinalstudyofthequalityoflifeofchildrentreatedforamedulloblastomaoralow-gradecerebellarastrocytomacomparedwithhealthycontrols:Reportofcross-sectionaldataatthefirstassessment.
Neuro-Oncology,10,474-474.
Bull,K.
S.
,Spoudeas,H.
,Yadegarfar,G.
andKennedy,C.
R.
(2007).
Reductionofhealthstatussevenyearsafteradditionofchemotherapytocranio-spinalirradiationformedulloblastoma:follow-upstudyofSIOPPNET3trialsurvivorsonbehalfoftheCCLG(formerlyUKCCSG).
TheJournalofClinicalOncology,25,4239-4245.
Bull,K.
,Kennedy,C.
andtheUnitedKingdomChildren'sCancerStudyGroup(2006).
Effectofneo-adjuvantchemotherapyonlong-termneurologicalfunction,healthstate,behaviour,andqualityoflifeinthePNET3randomizedcontrolledtrialoftreatmentforprimitiveneuro-ectodermaltumour.
DevelopmentalmedicineandChildNeurology,48,37-37.
Kennedy,C.
,Bull,K.
andtheUnitedKingdomChildren'sCancerStudyGroup(2004).
Effectofneo-adjuvantchemotherapyonlong-termhealthstateandbehaviourinthePNET3RCToftreatmentforprimitiveneuroectodermaltumour(PNET).
Neuro-Oncology,6,460-460.
48ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameButlerFirstNameRobertTitleAssociateProfessorDegreesPhDContactinformationDepartmentofPediatricsDivisionofPediatricHematology/Oncology(CDRCP)OregonHealth&ScienceUniversity3181SWSamJacksonParkRd.
Portland,OR97239-3098(503)494-4033Emailaddressbutlerr@ohsu.
eduProfessionAssociateprofessorinPediatrics,NeurologyandPsychiatryFunctionAssociateprofessorinPediatrics,NeurologyandPsychiatryMainactivitiesClinicalneuropsychologyFocusofresearchBraininjuryrehabilitation,psychologicaladjustment,neurocognitiveassessmentAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)NumerousintheaboveareasKeypublications(max5)1.
Butler,R.
W.
&Copeland,D.
R.
(2002).
Attentionalprocessesandtheirremediationinchildrentreatedforcancer:Aliteraturereviewandthedevelopmentofatherapeuticapproach.
JournaloftheInternationalNeuropsychologicalSociety,8,115-124.
2.
Mulhern,R.
K.
&Butler,R.
W.
(2004).
Neurocognitivesequelaeofchildhoodcancersandtheirtreatment.
PediatricRehabilitation,7,1-14.
3.
Butler,R.
W.
&Mulhern,R.
K.
(2005).
Neurocognitiveinterventionsforchildrenandadolescentssurvivingcancer.
JournalofPediatricPsychology,30,65-78.
4.
Sahler,O.
J.
,Fairclough,D.
L.
,Phipps,S.
,Mulhern,R.
K.
,Dolgin,M.
J.
,Noll,R.
B.
,Katz,E.
R.
,Varni,J.
W.
,Copeland,D.
R.
,&Butler,R.
W.
(2005).
Usingproblem-solvingskillstrainingtoreducenegativeaffectivityinmothersofchildrenwithnewlydiagnosedcancer:reportofamulti-siterandomizedtrial.
JournalofConsultingandClinicalPsychology,73,272-283.
5.
Butler,R.
W.
,Copeland,D.
R.
,Fairclough,D.
R.
,Mulhern,R.
K.
,Katz,E.
,Kazak,A.
E.
,Noll,R.
,Patel,S.
,Sahler,O.
J.
(inpress).
AMulti-Center,Randomized,ClinicalTrialofaCognitiveRemediationProgramForChildhoodSurvivorsofaPediatricMalignancy.
JournalofConsultingandClinicalPsychology.
49ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameCalaminusFirstNameGabrieleTitleMDDegreesContactinformationUniversityChildren'sHospital,Münster,Dep.
ofPed.
HematologyandOncology,Emailaddressgabriele.
calaminus@ukmuenster.
deProfessionPediatricHematologist,-Onologist,NeurooncologyFunctionChairQoLUnitMünster,ChairofGermanPediatricOncologyGermCellTumortrials,ChairSCCommitteeSIOPMainactivitiesPatientCare;Research,BothFocusofresearchQoL,QoSinbraintumorsandothersolidtumors,psychooncologicalaspectsinadolescentsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
About20researchprojectsonQol/QoSindifferentpediatriconcologicaldiseasegroups,2BMBFnetworkactivitiesKeypublications(max5)CalaminusG,BarrR.
Economicevaluationandhealth-relatedqualityoflife.
PediatrBloodCancer.
2008May;50(5Suppl):1112-5.
Review.
HauptR,SpinettaJJ,BanI,BarrRD,BeckJD,ByrneJ,CalaminusG,CoenenE,CheslerM,D'AngioGJ,EiserC,FeldgesA,GibsonF,LacknerH,MaseraG,MassimoL,MagyarosyE,OttenJ,ReamanG,ValsecchiMG,VeermanAJ,PennA,ThorvildsenA,vandenBosC,JankovicM;InternationalBerlin-Frankfurt-MünsterStudyGroupEarlyandLateToxicityEducationalCommittee(I-BFM-SGELTEC).
Longtermsurvivorsofchildhoodcancer:cureandcare.
TheEricestatement.
EurJCancer.
2007Aug;43(12):1778-80.
CalaminusG,KaatschP.
[PositionpaperoftheSocietyofPediatricOncologyandHematology(GPOH)on(long-term)surveillance,(long-term)follow-upandlateeffectevaluationinpediatriconcologypatients]KlinPadiatr.
2007May-Jun;219(3):173-8.
German.
CalaminusG,WeinspachS,TeskeC,GbelU.
Qualityofsurvivalinchildrenandadolescentsaftertreatmentforchildhoodcancer:theinfluenceofreportedlateeffectsonhealthrelatedqualityoflife.
KlinPadiatr.
2007May-Jun;219(3):152-7.
MüllerHL,AlbaneseA,CalaminusG,HargraveD,GarréML,GebhardtF,SaranF,SrensenN,.
SpoudeasHAConsensusandPerspectivesonTreatmentStrategiesinChildhoodCraniopharyngioma:ResultsofaMeetingoftheCraniopharyngeomaStudyGroup(SIOP),Genova,2004;JPEM2006;Vol19Supplement1:453-45450ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameCaeteFirstNameAdelaTitleMDDegreesMD,PhDContactinformationUnidaddeOncologiaPediatricaHospitalInfantillaFeAvdacampanar2146009ValenciaSpainEmailaddresscanyete_ade@gva.
esProfessionPhysicianFunctionAttendingPhysicianinapediatriconcologyunitMainactivitiesPatientCare;Research,BothFocusofresearchCNStumors,neuropsychologicalsequelaeandrehabilitation,survivors,neuroblastomaAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Healthstatusinpediatriccancersurvivors:studyoncardiovascularrisk,neuropsychologicalsequelaeandsecondcancers.
Threeyears.
2008.
Keypublications(max5)CaeteA,NavarroS,BermudezJetal:"Angiogenesisinneuroblastoma:relationshiptosurvivalandotherprognosticfactorsinacohortofneuroblastomapatients".
JClinOncol2000;18(1):27-34.
CastelV,CaeteAetal:"ResultsoftheCooperativeProtocol(N-III-95)formetastaticrelapsesandrefractoryneuroblastoma".
MedPedOncol2000;35(6):724-726.
CastelV,CaeteA,NavarroSycols.
:"Outcomeofhigh-riskneuroblastomausingadose-intensityapproach:improvementininitialbutnotinlong-termresults".
MedPediatrOncol2001;37:537-542.
NogueraR,CaeteA,PellinA,RuizA,TassoM,NavarroS,CastelV,Llombart-BoschA.
MycNgainandMycNamplificationinastage4sneuroblastoma.
CancerGeneticsandCytogenetics2003;140:157-161.
CaeteA,GerrardM,RubieHycols.
:"PoorSurvivalforInfantsWithMYCN-AmplifiedMetastaticNeuroblastomaDespiteIntensifiedTreatment:TheInternationalSocietyofPediatricOncologyEuropeanNeuroblastomaExperience".
JClinOncol26(19),2008(inpress).
51ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameCatsman-BerrevoetsFirstNameCorieneTitleDr.
DegreesMd.
PhDContactinformationDeptPediatricNeurologyErasmusMC/SophiaChildrenHospitalDrMolewaterplein603015GJRotterdamTheNetherlandsEmailaddressc.
catsman@erasmusmc.
nlProfessionPediatricneurologistFunctionidemMainactivitiesPatientCare;Research,BothFocusofresearchCognitiveandneurologicalcomplicationsofbraintumortreatmentinchildrenandyoungadultsAttendingSIOPBerlin2008Yes/Researchprojects(durationandstartdate)1.
PosteriorFossasyndromeaftercerebellartumorsurgery2.
Cognitivesequelaeofbraintumortreatment3.
QualityoflifeafterbraintumortreatmentKeypublications(max5)PaquierPF,VanMourikM,VanDongenH,Catsman-BerrevoetsCE.
Lemutismecérébelleuxavecdysarthriesubséquente.
InLesDysarthries,AuzouP,Rolland-MonnouryV,PintoS,zsancakC,eds.
Solal2007.
AarsenFK,PaquierPh.
F,ReddingiusRE,StrengIC,ArtsWFM,Evera-Preesman,Catsman-BerrevoetsCE.
Functionaloutcomeafterlow-gradeastrocytomatreamentinchildhood.
Cancer2006;106:396-402.
AarsenFK,vanDongenHR,PaquierPF,vanMourikM,Catsman-BerrevoetsCELongtermsequelaeinchildrenaftercerebellarastrocytomasurgery.
Neurology2004;62:1311-16.
Catsman-BerrevoetsCE,VanDongenHR,MulderPGH,PazyGeuzeD,PaquierPF,LequinMH.
Tumourtypeandsizearehighriskfactorsforthesyndromeof"cerebellar"mutismandsubsequentdysarthria.
J.
Neurol.
Neurosurg.
Psychiat.
1999;67:755-7.
Catsman-BerrevoetsCE,VanDongenHR,MulderPGH.
Incidenceandriskfactorsforthesyndromeof'cerebellar'mutismandsubsequentdysarthria.
Aprospectivestudy.
BrainDev.
1998;20:344.
52ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameColteFirstNamePaulTitlePediatricandChildClinicalPsychologistDegreesPsy.
D.
ContactinformationPrimaryChildren'sMedicalCenterDivisionofPediatricHematology/Oncology/BoneMarrowTransplant100NorthMarioCapecchiDriveSaltLakeCity,Utah84113EmailaddressPaul.
colte@imail.
org(801)662-4552ProfessionPsychologistFunctionAttendingPsychologist-Neuropsychassessmentandconsultationliaison.
MainactivitiesPatientCareandgeneratedataforCOGprotocols.
FocusofresearchGeneratedataforCOGprotocols.
AttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)NoneKeypublications(max5)None53ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameDarlingtonFirstNameAnne-SophieTitleDrDegreesPhDinpsychologyContactinformationDepartmentofMedicalPsychologyandPsychotherapyErasmusMCDr.
Molewaterplein503015GERotterdamTheNetherlandsEmailaddressa.
darlington@erasmusmc.
nlProfessionPsychologistFunctionSeniorresearcher,projectleaderMainactivitiesResearchFocusofresearchIntervention,parents,palliativecare,siblings,qualityoflifeAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
TrainingforParentsofChildrenwithNewlyDiagnosedCancer:aRandomisedControlledTrial,2005-20112.
Palliativecareforchildrenwithcancer:qualityofcareandlong-termoutcomesofbereavedparents.
2007-20083.
Qualityoflife,psychosocialadjustmentandhealthoutcomesafterlosingasiblingtochildhoodcancer:theforgottenbereaved.
Submitted4.
Qualityoflifeofchildrenwithcancerinthepalliativefase:instrumentdevelopmentandlongitudinalassessment.
InpreparationKeypublications(max5)DarlingtonAS,vandenHeuvel-EibrinkMM,PasschierJ.
Ethicalconsiderationsofresearchonchildreninpediatricpalliativecare.
Lancet2008;371:2169.
GuttelingJJ,DarlingtonAS,JanssenHL,DuivenvoordenHJ,BusschbachJJ,deManRA.
Effectivenessofhealth-relatedquality-of-lifemeasurementinclinicalpractice:aprospective,randomizedcontrolledtrialinpatientswithchronicliverdiseaseandtheirphysicians.
QualityofLifeResearch200817:195-205.
TillmannV,DarlingtonAS,EiserC,BishopNJ,DaviesHA.
Malesexandlowphysicalactivityareassociatedwithreducedspinebonemineraldensityinsurvivorsofchildhoodacutelymphoblasticleukemia.
JournalofBoneandMineralResearch2002;17:1073-80.
CEiser,ASEDarlington,CBStrideandRJGrimer,Qualityoflifeimplicationsasaconsequenceofsurgery:limbsalvage,primaryandsecondaryamputation.
Sarcoma2001;5:189–195.
54ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameDessensFirstNameArianneTitleDr.
DegreesPhD,Clinicalpsychologist,behavioraltherapistContactinformationP.
o.
Box2060,roomSp3435NL-3000CBRotterdamEmailaddressa.
b.
dessens@erasmusmc.
nlProfessionClinicalpsychologistFunctionClinicalpsychologistMainactivitiesPatientCare70%;Research30%FocusofresearchChildrenandadolescents,behavioralandemotionalsequelaeafterdiagnosisandtreatmentforbraintumors(neuro-oncology),qualityoflifeAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
EmotionalandbehaviouralproblemsinchildrenandadolescentstreatedforbraintumorsKeypublicationsBehaviouralandemotionalsequelaeinchildrenafterdiagnosisandtreatmentforbraintumors(abstractSIOP).
Nootherpublicationsonpediatriconcology55ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameDrotarFirstNameDennisTitleProfessor,DirectorofCenterforTreatmentAdherenceDegreesPh.
D.
ContactinformationDepartmentofPediatricsCincinnatiChildren'sHospitalMedicalCenter3333BurnetAvenueCincinnati,OH45229-3039Phone513.
636-3936Fax513.
803.
0415EmailaddressDennis.
Drotar@cchmc.
orgProfessionPsychologistFunctionResearcherMainactivitiesBothFocusofresearchAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)1.
Problemsolvinginterventiontopromoteadherencetotreatmentinadolescentswithleukemia6/1/07–5/31/12Keypublications(max5)Kodish,E.
,Eder,M.
,Ruccione,K.
,Lange,B.
,Angiolillo,A.
,Pentz,R.
,Zyzanski,S.
,Siminoff,L.
,&Drotar,D.
(2004).
Communicationofrandomizationinchildhoodleukemiatrials.
JournaloftheAmericanMedicalAssociation,291,470-75.
Drotar,D.
,Miller,V.
,Willard,V.
,Anthony,K.
,&Kodish,E.
(2004).
Correlatesofparentalparticipationduringinformedconsentforrandomizedclinicaltrialsinthetreatmentofchildhoodleukemia.
EthicsandBehavior,14,1-15.
3.
Schwartz,L.
,&Drotar,D.
(2006).
Posttraumaticstressandrelatedimpairmentinsurvivorsofchildhoodcancerinearlyadulthoodcomparedtohealthypeers.
JournalofPediatricPsychology,31,356-366.
Peterson,C.
C.
,&Drotar,D.
(2006).
Familyimpactofneurodevelopmentallateeffectsinsurvivorsofpediatriccancer:Reviewofresearch,clinicalevidence,andfuturedirections.
ClinicalChildPsychologyandPsychiatry,11,349-366.
Pai,A.
L.
H.
,Drotar,D.
,Zebracki,K.
,Moore,M.
,&Youngstrom,E.
(2006).
Ameta-analysisoftheeffectsofpsychologicalinterventionsinpediatriconcologyonoutcomesofpsychologicaldistressandadjustment.
JournalofPediatricPsychology,31,978-988.
56ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameDijk,vanFirstNameElisabethM.
(Alice)TitleMADegreesMAContactinformationVUUniversityMedicalCenterDept.
ofMedicalPsychologyP.
O.
Box70571007MBAmsterdamTheNetherlandsTel.
+31204440861Fax+31204440851Emailaddressem.
vandijk@vumc.
nlProfessionclinicalpsychologist/psychotherapistFunctionpediatricpsychologist/Ph.
D.
studentMainactivitiesBothpatientcareandresearchFocusofresearchInterventions,lateeffects,psychosexualfunctioning,qualityoflife,children,adolescentsandsurvivorsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Psychosexualfunctioningofchildhoodcancersurvivors2004-2007;futureresearchinthisareaisinpreparation.
2.
Acombinedphysicalexerciseandpsychosocialtrainingprogramtoimprovephysicalfitnessinchildrenwithcancer.
Submitted,estimatedstartfall2008.
Keypublications(max5)VanDijk,EM,Huisman,J,VanDulmen-denBroeder,E,VanDamEWCM,KaspersGJL.
Psychosexualdevelopmentofsurvivorsofchildhoodcancer(abstract).
PediatricBloodandCancer47(4):397-398,2006VanDijk,EM,VanDulmen-DenBroeder,E,Kaspers,GJL,VanDam,EWCM,Braam,KI,HuismanJ.
Psychosexualfunctioningofchildhoodcancersurvivors.
Psycho-oncology17(5):506-511,2008.
VanDijk,EM,VanDulmen-DenBroeder,E,Braam,KI,Kramer,MHH,Kaspers,GJL,Huisman,J.
Survivingchildhoodcancer,butwhataboutpsychosexualfunctioningPosterpresentationattheInternationalConferenceLong-TermComplicationsofTreatmentofChildrenandAdolescentsforCancer,Niagara-on-the-Lake,Canada,2008.
VanDijk,EM,VanDulmen-DenBroeder,E,Veening,MA,Kaspers,GJL,Huisman,J.
Routinepsychologicalcareisusefulforsurvivorsofchildhoodcancer(abstract).
SubmittedandacceptedforposterpresentationatSIOP2008.
57ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameDijk,vanFirstNameJenniferTitleMrsDegreesMSc.
ContactinformationDepartmentofMedicalPsychologyandDepartmentofOphthalmologyVUUniversityMedicalCenterP.
O.
Box70571007MBAmsterdam,theNetherlandsTel:+31204440861,Fax:+31204440851.
Emailaddressjennifer.
vandijk@vumc.
nlProfessionPsychologistFunctionPhDstudentMainactivitiesPatientcareandresearch(thesis)Focusofresearchretinoblastoma;children;adults;parents;qualityoflife;lateeffects;psychosocialfunctioning;coping.
AttendingSIOPBerlin2008yesResearchprojects(durationandstartdate)1.
QualityoflifeandpsychosocialfunctioningofretinoblastomasurvivorsintheNetherlands:2004-2008.
Keypublications(max5)VanDijkJ,ImhofSM,MollAC,RingensPJ,Cohen-KettenisPT,RijmenF,HuismanJ.
QualityoflifeofadultretinoblastomasurvivorsintheNetherlands.
HealthQualLifeOutcomes.
2007Jun4;5:30.
VanDijkJ,HuismanJ,MollAC,Schouten-vanMeeterenAYN,BezemerPD,RingensPJ,Cohen-KettenisPT,ImhofSM.
Health-relatedqualityoflifeofchildandadolescentretinoblastomasurvivorsintheNetherlands.
HealthQualLifeOutcomes.
2007Dec3;5:65.
VanDijkJ,OostromKJ,ImhofSM,MollAC,Schouten-vanMeeterenAYN,BezemerPG,HuismanJ.
Behaviouralfunctioningofretinoblastomasurvivors.
Psychooncology2008Jul9,inpressVanDijkJ,GrootenhuisMA,ImhofSM,Cohen-KettenisPT,MollAC,HuismanJ.
Copingstrategiesofretinoblastomasurvivorsinrelationtobehaviouralproblems.
Submitted.
VanDijkJ,OostromKJ,HuismanJ,MollAC,Cohen-KettenisPT,RingensPJ,ImhofSM.
Restrictionsindailylifeafterretinoblastomafromtheperspectiveofthesurvivors.
Submitted58ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameEdenFirstNameTimTitleProfessorDegreesMBBS,(Obst)RCOG,MRCP(UK),FRCP(Edin),FRCP(London),FRCPath(ByPublications),FRCPCH(FoundingMember),FRCR(ByPublications)ContactinformationTCTYoungOncologyUnit,ChristieHospitalWilmslowRoadWithingtonManchesterM204BXUnitedKinkgdomEmailaddressTim.
eden@manchester.
ac.
ukProfessionPediatricandAdolescentOncologistFunctionProfessorMainactivitiesPatientCare;Research,BothFocusofresearchAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Treatmentnonadherenceinteenagersandyoungadultcancerpatients:retrospectiveandprospectivestudy2007–2009.
2.
Delaysindiagnosisandalongthepathwayinteenagersandyoungadultswithcancer:AnobjectiveanalysisofsymptomintervalintheNorthWestregionoftheUK2005onwardsaspartoftheTCTChairProgramme.
3.
QualitativestudyofpatientpathwayexperiencesLeadresearchersFaithGibson,SusiePierce,DannyKelly4centrestudySouthampton,London,Leeds,Manchester.
PIforManchesterTEden.
4.
Clinicaltrialcoordinationandmanagementspecificallyacutelymphoblasticleukaemiatrialssince1979includingimpactofdexamethasoneonlongtermfunctioning.
5.
Geneenvironmentinteractionsincausationandresponsetotherapyforchildhoodandadolescentoncology.
AlocalandnationalcollaborationonepidemiologicalandaetiologicalfactorsnowfocusingonmolecularandepidemiologystudiesincludingDNAdamagerecognitionandrepairwithparticularfocusonadolescentpatients.
CollaboratorsBirch,Taylor,Meyer,Moran,Geraci,Alston,Greaves,Roman,ShahandMcNally6.
RAPPORTstudyPIsBridgetYoung,PeterSalmon,JonathanHill,TimEden.
Focussingonparent/carerinteractions,relationshipsandprocessesbetweenparentsanddoctorsregardingchildrenwithleukaemia2007–2009.
7.
Alleviatingemotionaldistressinadolescentsurvivorsofcancerinvolvinginvestigationofthemaintenanceofemotionaldistressfollowingmedicaltreatmentandtoadaptbettercognitivetherapytoalleviatesuchdistress.
PIsFisher,Eden,Young,Salmon.
8.
EvidencebasedCochranereviewstudiesparticularlyrelatedtooralcareresultingintheproductionofevidencebasednationalguidelines.
Keypublications(max5)specificallyrelatedtoPPO.
EdenOB,BlackI,EmeryAEH,Theuseoftapedparentalinterviewstoimprovecommunicationwithchildhoodcancerfamilies.
PediatrichematologyandOncology1993Vol10:pp157–162.
EdenOB,BlackI,MacKinleyGA,EmeryAEH.
Communicationwithparentsofchildrenwithcancer.
PalliativeMedicine1994Vol8:pp105–114.
EdenT,PuiCH,SchrapperM,TognoniG,MaseraG.
Allchildrenhavetherighttofullaccesstotreatmentforcancer.
TheLancetSeptember25th20041121–1122.
HillJ,KondrynH,MackieE,McNallyR,EdenT.
Adultpsychosocialfunctioningfollowingchildhoodcancer:thedifferentrolesofsons'anddaughters'relationshipswiththeirfathersandmothers.
JournalofChildPsychology/Psychiatry2003Vol44:Issue5:pp752–762JankovicMD,SpinettaJJ,MaseraG,BarrR,D'AngioGJ,EpelmanC,EvansA,KosmidisHV,EdenT.
Communicatingwiththedyingchild:Aninvitationtolistening–AreportoftheSIOPworkingcommitteeonpsychosocialissuesinpediatriconcology,PediatricBlood&Cancer2008;50:1087–1088.
59ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameEdwardsFirstNameLesleyTitleDrDegreesBSc,MSc,CertificatefamilyMaritalTherapy,PsychDContactinformationPsychologicalMedicineRoyalMarsdenNHSTrustDownsRoadSutton,SurreySM25PTUKEmailaddresslesley.
edwards@rmh.
nhs.
ukProfessionConsultantClinicalPsychologistFunctionTeamleaderpediatricpsychologyteamRoyalMarsdenHospital.
MainactivitiesBothFocusofresearch-Academicachievementsfollowingtreatmentforachildhoodbraintumour-Socialfunctioningfollowingtreatmentforchildhoodcancer.
-Druginterventionforchildrenwithattentionandconcentrationproblemsfollowingtreatment.
-Obesityfollowingtreatmentforchildhoodcancer.
-ThepsychologicalneedsofchildrenofadultcancerpatientsAttendingSIOPBerlin2008Yes/NOnotsureyet,dependingonfunding.
Researchprojects(durationandstartdate)1.
Druginterventionstudyforsurvivorsofchildhoodbraintumourswithimpairmentofattentionandconcentration(tostartOct2008,18months).
2.
Academicachievementandspecialeducationalsupportwithregardstosurvivorsofchildhoodbraintumours(startedJune2008,duration1year)3.
Obesitymulti-disciplinaryinterventionstudyforsurvivorsofchildhoodcancer(Abouttogothroughethics,18monthstudy)4.
Developmentofeducationalguidelines:informationforschoolswhenapupilhascancer.
Keypublications(max5)EdwardsL&PalmerJ(2007)FacingthedeathofyourchildCCLG/RoyalMarsdenpublicationEdwardsL(2005)PrimaryschoolPrimaDonnas:Howtohelpthemmanagehavingcancer.
TheChildhoodCancerUnitParentsAssociationnewsletter(CCUPA)summer2005EdwardsL(2005)Toddlermadness:howonearthcanyoucopeTheChildhoodCancerUnitparentsAssociationnewsletter(CCUPA)Spring2005EdwardsL,WatsonM,STJames–RobertsI,AshleyS,TilneyC,OsbornT,BaldusC&RomerG(2008)Adolescent'sstressresponsesandpsychologicalfunctioningwhenaparenthasearlybreastcancer.
Psycho-Oncology,5Mar2008Watson,M.
StJames-Roberts,I.
,Ashley,S.
,Tilney,C.
,Brougham,L.
,Edwards,L.
,Baldus,C.
andRomer,G.
(2006)Factorsassociatedwithemotionalandbehaviouralproblemsamongschoolagechildrenofbreastcancerpatients.
BritishJournalofCancer,94,43-50.
60ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameEiserFirstNameChristineTitleProfessorDegreesBscphdContactinformationDept.
Ofpsychology,universityofsheffield,westernbank,sheffield.
S102tp,ukEmailaddressC.
eiser@sheffield.
ac.
ukProfessionPsychologistFunctionMainactivitiesResearch,TeachingFocusofresearchSurvivorship,qualityoflifeAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
NovoNordisk,SeronoandPfizerpharmaceuticalsQualityoflifeaftergrowthhormonetreatment.
EiserC&ButlerG.
2006-20082.
WestonParkHospitalAppealLong-termcancersurvivalRRoss,DrH.
DaviesandDrDGreenfield)2004-20093.
MRCQualityoflifeduringtreatmentforchildhoodleukaemiaEiserC,JenneyM(Cardiff)VoraAJ.
2004-20094.
LisaThaxterTrust.
PalliativecareinchildrenwithbrainEiserC&Brook,L.
Liverpool)2007-20095.
MyelomaUKMyelomaLivingwithadvancemyeloma:Astudytoidentifythepreventableandmanageablelateeffectsofmodernclinicalmanagement.
SnowdenJ,EiserC,GreenfiledD&AhmedzaiS.
2008-20106.
CancerResearch-UKImmediateandlongertermconsequencesformenwhobankspermpriortocancerdiagnosisEiserC&PaceyA.
7.
WestonParkCancerAppealSmokingandqualityoflifeaftercancerdiagnosisCollaborativestudywithSheffieldMedicalSchool(DansonS,EiserCWollP,WadsleyJ).
Keypublications(max5)EiserC,MorseRAreviewofmeasuresofqualityoflifeforchildrenwithchronicillnessArchDisChild84,3,205-211,2001.
EiserC,Nopain,nogainIntegratingQoLassessmentinpediatricsArchDisChild2007;5:379-380ClarkeSA,SkinnerR&EiserC.
Health-relatedqualityoflifeinsurvivorsofbonemarrowtransplantationforpediatricmalignancy:Asystematicreviewoftheliterature.
BoneMarrowTransplantation,inpressEiserC,AbsolomK,GreenfieldD,SnowdenJ,ColemanR,HancockB,DaviesH.
Follow-upcareforyoungadultsurvivorsofcancer:lessonsfrompediatrics.
JournalofCancerSurvivors,2007;1:75-86WallaceWHB,BlacklayA,EiserC,etal.
Developingstrategiesforlongtermfollowupofsurvivorsofchildhoodcancer,BritishMedicalJournal323,7307,271-274,2001.
61ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameElkinFirstNameDavidTitleAssociateProfessorDegreesPh.
D.
ContactinformationUniversityofMississippiMedicalCenterDepartmentofPsychiatry2500N.
StateStreetJackson,MS39216-4505USAEmailaddressdelkin@psychiatry.
umsmed.
eduProfessionPsychologistFunctionPsychologyTrainingDirector,Supervisor,ProjectLeaderMainactivitiesBothpatientCareandresearchFocusofresearchAdolescents,familyfunctioning,lateeffects,copingAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
ContactpsychologistforCOGprotocolsinvolvingneuropsychorpsychcomponents2.
Familyfunctioninginchildrenwithcancer(start:5May2008,recruiting)3.
Cytokinesanddepressioninchildrenwithcancer(start:1October2008,inpreparation)4.
Interventionstoremediateosteoporosisinchildrentreatedforcancer(start:1July,approved,startingthissummer).
Keypublications(max5)Elkin,T.
D.
,Jensen,S.
A.
,McNeil,L.
,Gilbert,M.
E.
,Pullen,J.
,&McComb,L.
(2007).
Religiosityandcopinginmothersofchildrendiagnosedwithcancer:Anexploratoryanalysis.
JournalofPediatricOncologyNursing,24(5),274-278.
Taylor,L.
,Simpson,K.
,Bushardt,R.
,Reeves,C.
,Elkin,T.
D.
,Fortson,B.
,Boll,T.
J.
,andPatel,S.
(2006).
Insurancebarriersamongchildhoodsurvivorsofpediatricbraintumors:Thecaseforneurocognitiveevaluations.
JournalofPediatricNeurosurgery,42(4),223-227.
Stoppelbein,L.
,Greening,L.
,Elkin,T.
D.
(2006).
RiskofPost-traumaticStressSymptoms:AComparisonofPediatricCancerSurvivorsandBereavedFamilies.
JournalofPediatricPsychology,31(4),367-376.
Fuemmeler,B.
F.
,Elkin,T.
D.
&Mullins,L.
L.
(2002).
Survivorsofchildhoodbraintumors:Behavioral,emotional,andsocialadjustment.
ClinicalPsychologyReview,22,547-585.
62ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameEngelenFirstNameVivianTitleDegreesMScContactinformation+31-(0)20-5668225Emailaddressv.
engelen@amc.
uva.
nlProfessionPedagogue(pediatricpsychology)FunctionPhDStudent,juniorresearcherMainactivitiesResearchFocusofresearchPsychosocialoncologyAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
QLIC-ONstudy.
Duration:4-5years.
Startdate:September2005.
AimistodeterminewhetherprovidingPatientReportedOutcome(PRO)onHealthRelatedQualityofLife(HRQOL)helppediatriconcologiststoidentifyanddiscussHRQOLproblemsinchildrenwithcancer.
Keypublications(max5)QLIC-ONPROfile:developmentofaninterventionforpediatriconcologiststhatfacilitatescommunicationaboutHRQOLproblemsinchildrenwithcancer(posterSIOP2008;paperinpreparation)Communicationaboutpsychosocialfunctioninginpediatriconcologypractice:thepediatriconcologists'perspective(posterSIOP2008)PsychometricpropertiesofthePediatricQualityofLifeInventory(PedsQL)intheNetherlands(paperinpreparation)63ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameEssen,vonFirstNameLouiseTitleProfessorDegreesPhDContactinformationInstitutionenfrfolkhlso-ochvrdvetenskapEnhetenfrvrdvetenskapUppsalauniversitetUppsalascienceparkS-75183UppsalaSwedentel:018-4713484,070-4250714EmailaddressLouise-von.
essen@pubcare.
uu.
seProfessionProfessor,psychologistFunctionMainactivitiesResearchFocusofresearchPsychosocialpediatriconcologyAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Cancerduringadolescence.
Psychosocialandhealtheconomicconsequences(start2000,continuing)2.
Posttraumaticstressdisorderamongparentsofchildrenwithcancer(start2002,continuing)3.
Treatmentofposttraumaticstressdisorderamongparentsofchildrenwithcancer(start2008)Keypublications(max5)vonEssen,L.
,Sjdén,P.
O.
&Mattsson,E.
(2004).
Swedishmothersandfathersofachilddiagnosedwithcancer–alookattheirqualityoflife.
ActaOncologica,43,474-479.
Hedstrm,M.
,Ljungman,G.
&vonEssen,L.
(2005).
Perceptionsofdistressamongadolescentsrecentlydiagnosedwithcancer.
JournalofPediatricHematology/Oncology,27,15-22.
Hedstrm,M.
,Kreuger,A.
,Ljungman,G.
,Nygren,P.
&vonEssen,L.
(2006).
Accuracyofassessmentofdistress,anxietyanddepressionbyphysiciansandnursesinpeadiatriconcologycare.
PediatricBlood&Cancer,46,773-779.
Jrngrden,A.
,Mattsson,E.
&vonEssen,L.
(2007).
Health-relatedqualityoflife,anxiety,anddepressionamongSwedishadolescentsandyoungadultswithcancer.
EuropeanJournalofCancer,43,1952-1958.
Pder,U.
,Ljungman,G.
&vonEssen,L.
(2008).
Posttraumaticstressdisorderamongparentsofchildrenoncancertreatment:alongitudinalstudy.
Psycho-Oncology,17,430-437.
64ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameFrugéFirstNameErnestTitleAssociateProfesssor,DirectorPsychosocialProgramsDegreesPh.
D.
ContactinformationDepartmentsofPediatricsandFamily&CommunityMedicineTexasChildren'sCancerCenter&HematologyServiceHouston,TexasUSAEmailaddressEfruge@bcm.
tmc.
eduProfessionPsychologistFunctionSeebelowMainactivitiesOrganizationalConsultation,Education,Research,ClinicalConsultationFocusofresearchPhysicianeducation,longtermsurvivorshipAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
VocationalandEmploymentExperiencesofLong-TermSurvivorsofChildhoodCancer.
(StartDate:July,2007).
2.
PromotingPhysician'sCulturalCompetenceThroughReflectivePractice.
(StartDate:July,2006)3.
LearningforLeadership:TrainingforReflectivePracticeinPediatricHematology/OncologyandBeyond.
(StartDate:July,2003)Keypublications(max5)Whitney,S.
N.
,McCullough,L.
B.
,Frugé,E.
,McGuire,A.
L.
&Volk,R.
J.
BeyondBreakingBadNews:TheRolesofHopeandHopefulness.
Cancer,InPress.
Whitney,S.
N.
,Ethier,A.
M.
,Frugé,E.
,Berg,S.
,McCullough,L.
&Hockenberry,M.
DecisionMakinginPediatricOncology–WhoShouldTaketheLeadTheDecisionalPriorityinPediatricOncologyModel.
JournalofClinicalOncology,2006,24,No.
1:pp.
160-165.
Frugé,E.
&Horowitz,M.
Leadershipdimensionsofthephysician'srole:AtransitionalapproachtotraininginPediatricHematology/Oncology.
InG.
Amado&L.
Vansina(Eds.
)TheTransitionalApproachinAction:TheHaroldBridgerTransitionalSeries.
Vol.
II,London:Karnac,2004.
Frugé,E.
&Adams,C.
…andthenthemissionariesbecamecannibals…:ResuscitationofEmpathyinaPediatricOncologyNursingServiceandthePrinciplesandPracticeofApplicationintheGroupRelationsTradition.
InS.
Cytrynbaum&D.
Noumair(Eds.
)GroupDynamics,OrganizationalIrrationality,andSocialComplexity:GroupRelationsReaderIII.
Washington,D.
C.
:A.
K.
RiceInstitute2004.
Bray,J.
H.
&Frugé,E.
AssessmentandevaluationoffamilieswithHIV/AIDS:Applicationtopreventionandcare.
InW.
Pequegnat&J.
Szapocznik(Eds.
)WorkingWithFamiliesintheEraofHIV/AIDS.
ThousandOaks,CA:SAGEPublications,Inc.
,2000.
65ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameGazendam-DonofrioFirstNameStaceyTitleDegreesMScContactinformationWenckebachInstituteUniversityMedicalCenterGroningenPOBox300019700RBGroningentheNetherlandsEmailaddresss.
m.
donofrio@psb.
umcg.
nlProfessionpsychologistFunctionresearcherMainactivitiesResearchFocusofresearchQualityoflife,shortandlongtermadaptation,familyfunctioning,ptss,children,parents,interventionsAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)1.
Childrens'functioningfollowingparentalcancer;enddate:2010Keypublications(max5)Gazendam-Donofrio,S.
M.
,Hoekstra,H.
J.
,Graaf,W.
T.
A.
vander,Wiel,H.
B.
M.
vande,Visser,A.
,Huizinga,G.
A.
,Hoekstra-Weebers,J.
E.
H.
M.
(2007).
Familyfunctioningandadolescents'well-beingwhenaparenthascancer.
AnnalsofOncology,18,1951-1956.
Gazendam-Donofrio,S.
M.
,Hoekstra,H.
J.
,Graaf,W.
T.
A.
vander,Pras,E.
,Visser,A.
,Huizinga,G.
A.
,Hoekstra-Weebers,J.
E.
H.
M.
(2008).
Qualityoflifeofparentswithchildrenlivingathome:whenoneparenthascancer.
SupportiveCareinCancer,16,133-141.
TuinmanMA,Gazendam-DonofrioSM,Hoekstra-WeebersJEHM.
(2008).
Screeningandreferralforpsychosocialdistressinoncologicpractice:useoftheDistressThermometer.
Cancer,113,870-878.
66ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameGerhardtFirstNameCynthiaTitleAssistantProfessorofPediatricsandPsychologyDegreesPh.
D.
ContactinformationTheResearchInstituteatNationwideChildren'sHospital700Children'sDriveColumbus,OH43206USAEmailaddressCynthia.
gerhardt@nationwidechildrens.
orgProfessionPsychologistFunctionMainactivitiesResearch,TeachingFocusofresearchIndividualandfamilyadjustmenttochildhoodcancerfromdiagnosistosurvivorshiptoend-of-lifeAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)1.
PsychosocialOutcomesforPediatricBrainTumorSurvivors(Site-PI),07/01/03-06/30/08,ACS2.
SiblingandParentBereavementfromChildhoodCancer(PI),06/01/05-05/31/10,NIH/NCI3.
SocialOutcomesinPediatricTraumaticBrainInjury(CI),04/01/06-03/31/11,NIH/NICHD4.
Parent-ChildCommunicationaboutCancer(Site-PI),04/01/07-03/31/12,NIH/NCI5.
QualityofLifeamongFamiliesinPediatricPalliativeCare,(PI)01/01/08-12/31/08,TheResearchInstituteatNationwideChildren'sHospitalKeypublications(max5)Gerhardt,C.
A.
,Vannatta,K.
,Valerius,K.
S.
,Correll,J.
,&Noll,R.
B.
(2007).
Socialandromanticoutcomesinemergingadulthoodamongsurvivorsofchildhoodcancer.
JournalofAdolescentHealth,40,462.
e9-462.
e15.
Gerhardt,C.
A.
,Gutzwiller,J.
,Huiet,K.
A.
,Vannatta,K.
,Fischer,S.
,&Noll,R.
B.
(2007).
Parentaladjustmenttochildhoodcancer:Areplicationstudy.
JournalofFamilies,Systems,andHealth,25,263-275.
Robinson,K.
E.
,Gerhardt,C.
A.
,Vannatta,K.
,&Noll,R.
B.
(2007).
Parentandfamilyfactorsassociatedwithchildadjustmenttopediatriccancer.
JournalofPediatricPsychology,32,400-410.
Gerhardt,C.
A.
,Dixon,M.
,Miller,K.
,Vannatta,K.
,Valerius,K.
S.
,Correll,J.
,&Noll,R.
B.
(2007).
Educationalandoccupationaloutcomesinemergingadulthoodamongsurvivorsofchildhoodcancer.
JournalofDevelopmentalandBehavioralPediatrics,28,448-455.
Vannatta,K.
,Gerhardt,C.
A.
,Wells,R.
,&Noll,R.
B.
(2007).
IntensityofCNStreatmentforpediatriccancer:Predictionofsocialoutcomesinsurvivors.
PediatricBlood&Cancer,49,716-722.
67ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameGoldbeckFirstNameLutzTitleProf.
DegreesPh.
D.
ContactinformationUniversityHospitalUlmDptm.
Child&AdolescentPsychiatry/PsychotherapySteinhoevelstr.
5D-89075UlmGERMANYEmailaddresslutz.
goldbeck@uniklinik-ulm.
deProfessionPediatricPsychologistFunctionHeadofoutpatientmentalhealthclinicforchildrenandadolescents;Seniorresearcher/projectleaderMainactivitiesBothPatientCareandResearchFocusofresearchPsychiatriccomorbidity;coping;(parental)qualityoflife;psychosociallateeffectsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Psychosocialadaptationoflong-termsurvivorsaftercancerduringadolescence(October2007–September2009)2.
Effectivenessoffamily-orientedinpatientrehabilitation(July2007–June2008)3.
Prevalenceofemotionalandbehavioralsymptomsinchildrenwithcancerandtheirhealthysiblings(inpreparation)Keypublications(max5)GoldbeckL.
(2001)Parentalcopingwiththediagnosisofchildhoodcancer:Gendereffects,dissimilaritywithincouples,andqualityoflife.
Psycho-Oncology10:325-335Goldbeck,L.
(2006)Theimpactofnewlydiagnosedchronicpediatricconditionsonparentalqualityoflife.
QualLifeRes15:1121-31.
Goldbeck,L.
&Melches,J.
(2006).
Theimpactoftheseverityofdiseaseandsocialdisadvantageonqualityoflifeinfamilieswithcongenitalcardiacdisease.
CardiolYoung16:67-75.
Goldbeck,L.
,Koffmane,K.
,Lecheler,J.
,Thiessen,K.
,&Fegert,J.
M.
(2007)Diseaseseverity,mentalhealth,andqualityoflifeofchildrenandadolescentswithasthma.
PediatricPulmonology42:15-22.
Alderfer,M.
,Fiese,B.
,Gold,J.
,Holmbeck,G.
,Goldbeck,L.
,Chambers,C.
,Abad,M.
,Spetter,D.
&PattersonJ.
(2007):Evidence-basedAssessmentinPediatricPsychology.
FamilyMeasures.
JPediatrPsychol.
2007Sep28;[Epubaheadofprint]68ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameGrayFirstNameChristineTitlePediatricPsychologistDegreesPh.
D.
ContactinformationChildren'sHospitalCentralCaliforniaBehavioralHealthServices,MB089300ValleyChildren'sPlaceMadera,CA93636-8762(559)353-6735Emailaddresscgray@childrenscentralcal.
orgProfessionPediatricPsychologistFunctionClinical(providingdirectpsychologicalservicestooncologypatients)MainactivitiesPatientCareFocusofresearchN/A–Potentialinterestinbeingadatacollectionsiteifourinstitutioniswillingtosupportthisactivity.
AttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)1.
CurrentlyadatacollectionsiteforALL0331-HRQOLstudy.
Keypublications(max5)Gray,C.
C.
&Rodrigue,J.
R.
(2001).
BriefReport:Perceptionsofyoungadolescentstowardahypotheticalnewpeerwithcancer:Ananalogstudy.
JournalofPediatricPsychology,26,247-252.
69ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameGriessmeierFirstNameBarbaraTitleDegreesDiplom-Musiktherapeutin(FH)ContactinformationPsychoSozialerDienstKinder-undJugendlichenpsychotherapeutinUniversittsklinikFrankfurtZentrumderKinderheilkundeundJugendmedizinKlinikIII-pdiatrischeOnkolologieundHmatologieTheodor-Stern-Kai760590Frankfurttel069/63014751,fax069/63016056Emailaddressbarbara.
griessmeier@kgu.
deProfessionMusicTherapist,ChildPsychotherapistFunctionmemberofpsychosocialcareteamMainactivitiesPatientCareandResearchFocusofresearchDevelopmentofguidelinesAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Developmentofclinicalpracticeguidelinesinpaediatriconcologysince1997Keypublications(max5)Griemeier,B.
,Bossinger,W.
(1994a):MusiktherapiemitkrebskrankenKindern,Gustav-Fischer-Verlag,StuttgartGriemeier,B.
(1995b):DiepsychosozialenDiensteinderpdiatrischenOnkologie.
ErgebnisseeinerbundesweitenUmfrage.
In:Klin.
Pdiatrie(1995)207,S.
174-180Griemeier,B.
(1996):ZumProblemderStandardisierungpsychosozialerTtigkeiteninderpdiatrischenOnkologieSchreiber-Gollwitzer,B.
,Schrder,H.
,Griemeier,B,Labouvie,H.
,.
Lilienthal,S.
(2003b):QuantitativeundqualitativeErfassungpatientenbezogenerpsychosozialerTtigkeiteninderpdiatrischenOnkologieundHmatologie–einemultizentrischeUmfrageimAuftragderPSAPOHIn:KlinischePdiatrie(2003),215,S.
171–176Schrder,H.
,Lilienthal,S.
,Schreiber-Gollwitzer,B.
M.
,Griemeier,B(2008):PsychosozialeVersorgunginderpdiatrischenOnkologieIn:DeutscheKrebsgesellschaft:KurgefassteinterdisziplinreLeitlinien2008,Zuckschwerdt-Verlag70ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameGrootenhuisFirstNameMarthaTitleDr.
DegreesPhD,registredhealthpsychologistContactinformationEmmaChildren'sHospitalAcademicMedicalCenterPsychosocialPediatricDepartment,G8-224Meibergdreef91105AZAmsterdamTheNetherlandsEmailaddressm.
a.
grootenhuis@amc.
nlProfessionPediatricPsychologistFunctionHeadPsychosocialResearchdept.
;projectleaderMainactivitiesMainlyresearchFocusofresearchQualityoflife;courseoflife;interventions;neuropsychologicaloutcome;pediatricpsychologyAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
VOLG-project:Courseoflife,qualityoflifeandcopingofsurvivorsofchildhoodcancer.
(ended2007:seeHeleenMaurice-Stam)2.
CAREproject:Emotional,financialandsocialconsequencesforparentsofchildrenwithachronicdisease(2005-2008)3.
QLIC-Onproject:HealthRelatedQualityofLifeassessmentindailypediatriconcologypractice(2006-2011:seeVivianEngelen)4.
Lateconsequencesandneedsofyoungsurvivorsofabraintumorandtheirparents(2006-2010:seeElineAukema)5.
Neuropsychologicalfunctioningofchildrenwithsicklecelldisease(2007-2010)6.
Psycho-educationalcourseprogramforchildrenwithcancerOpKoersonline:www.
opkoersonline.
nl(2008-2010)7.
Theefficacyofneurofeedbacktoimproveattentionandmemoryfunctioninginchildhoodcancersurvivors:arandomisedcontrolledtrial(2008-2012)inprogress:1.
ACTION:ACtivatingTransitionandAutonomy.
Bothpatients,parentsandhealthcareprofessionalswillbemaderesponsibleforstepsintheprocessofgrowingupandlivingwithcancer(inpreparation)2.
Measuringsurvivor-specificQoL(translationoftheBenefitScale(Phipss)andImpactofCancerScale(Zebrack)3.
Effectofambientexperienceonpainandfearinpediatriconcology4.
Useofserious-gamingtoimprovehealthbehaviourinpediatriconcologyKeypublications(max5)HatzmannJ,Ferrer-CarbonellA,vanPraagBMS,HeymansHSA,GrootenhuisMA.
TheCareproject:Hiddenconsequencesofsuccessinpediatrics,parentalHealthRelatedQualityofLife(Pediatricsinpress)vanderLeeJH,MokkinkLB,GrootenhuisMA,HeymansHS,OffringaM.
Definitionsandmeasurementofchronichealthconditionsinchildhood:asystematicreview.
JAMA.
2007Jun27;297(24):2741-51.
Review.
Maurice-StamH,SilberbuschLM,LastBF,GrootenhuisMA.
Evaluationofapsycho-educationalgroupinterventionforchildrenwithcancer:apilotstudy.
(Psycho-oncology,inpress)GrootenhuisMA,KoopmanHM,VerripsEG,VogelsAG,LastBF.
Health-relatedqualityoflifeproblemsofchildrenaged8-11yearswithachronicdisease.
DevNeurorehabil.
2007Jan-Mar;10(1):27-33.
KlassenA.
,Maurice-StamH,SonyaStrohm,GrootenhuisMA.
SystematicReviewOfPediatricOncology-SpecificQualityOfLifeQuestionnaires(submitted)71ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameHaaseFirstNameJoanTitleHolmquistProfessorinPediatricOncologyNursingDegreesPhDContactinformationIndianaUniversitySchoolofNursing,Indianapolis,IN46202USAEmailaddressJohaase@iupui.
eduProfessionNursingFunctionFacultyMainactivitiesResearchFocusofresearchResilienceandQualityofLifeinAdolescents/YoungAdultsw/CancerCommunicationaboutEnd-of-LifeAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
MusicVideoandAdolescentResilienceDuringTransplantNIH/NINR/NCI1R01NR008583-012005-092.
PalliativeCareandEnd-of-LifeCommunicationExperiencesofPediatricOncologyNurses,OncologyNursingFoundationandAlex'sLemonadeStandFoundationforChildhoodCancer2008-10Keypublications(max5)Haase,J.
E.
(1987).
Thecomponentsofcourageinchronicallyilladolescents,AdvancesinNursingScience,9(2),64-80.
Haase,J.
E.
,Heiney,S.
,Ruccione,K.
,&Stutzer,C.
(1999)Researchtriangulationtoderivemeaning-basedquality-of-lifetheory:Adolescentresiliencemodelandinstrumentdevelopment.
InternationalJournalofCancer,Supp.
12,125-131.
Haase,J.
E.
(2004).
Theadolescentresiliencemodelasaguidetointerventions.
SpecialSection:Proceedingsfromthe5thAnnualStateoftheScienceWorkshoponResilienceandQualityofLifeinAdolescents.
JournalofPediatricOncologyNursing.
21(5),289-299.
Decker,C.
L.
,Haase,J.
E.
,&Bell,C.
J.
(2007).
Uncertaintyinadolescentsandyoungadultswithcancer.
OncologyNursingForum,34(3),681-688.
Phillips-Salimi,C.
R.
,Haase,J.
E.
,Kintner,E.
K.
,Monahan,P.
,&Azzouz,F.
(2007).
PsychometricpropertiesoftheHerthHopeIndexinadolescentsandyoungadultswithcancer.
JournalofNursingMeasurement,15(1),3-23.
72ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameHedderlyFirstNameTammyTitledrDegreesMbbsbsc(hons)mrcpchContactinformationTammy.
Hedderly@kch.
nhs.
ukEmailaddressProfessionConsultantpediatricneurologistFunctionPaedbraintumoursclinicalMainactivitiesPatientCare;Research,BothFocusofresearchLateeffectsbraintumourspaedAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)Keypublications(max5)73ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameHegerFirstNameBirgitTitleMag.
rer.
nat.
DegreesMagisterContactinformationLandes-Frauen-undKinderklinikLinzKrankenhausstrasse26A-4020Linzphone:+4350554/63-25205Emailaddressbirgit.
heger@gespag.
atProfessionclinicalpsychologyFunctionclinicalpsychologyMainactivitiesPatientCareFocusofresearchAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)Keypublications(max5)74ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameHernandeznúez-poloFirstNameMercedesTitlePsychologistDegreesFellowinclinicalpediatricpsychologyContactinformationHospitalInfantilUniversitarioNioJesús,Madrid,SpainEmailaddresspsicooncohnjs@gmail.
comProfessionPsychologistFunctionPsychologistinoncohematologyunitMainactivitiesPatientCare;Research,BothFocusofresearchPsychosocialProtocolinBoneMarrowTransplantAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Qualityoflifeandbehaviouraldisordersinbonemarrowtransplantationforchildhoodcancer2007-2008(inprocessforpublications)2.
Speakingaboutdeathattheendoflife.
2007;oneyear;inprocessforpublicationKeypublications(max5)50ReuniónNacionaldelaAsociaciónEspaoladeHematologíayHemoterápia.
AEHHElnioantelaenfermedadoncohematológica.
Murcia,(Espaa),2008(Oralpresentation)40thCongressoftheInternationalSocietyofPediatricOncology(SIOP)Prospectiveevaluationofqualityoflifeandbehaviouraldisordersinbonemarrowtransplantationforchildhoodcancerandinheritedmetabolicdiseases.
(Poster).
Berlin,Germany200810thWorldCongressofPsycho-OncologyChild,immigrant,cancer:"Culturalshock".
Abridgetodevelopingcountriestwiningcancerprograms.
(Oralpresentation)Madrid,Spain20087thNationalCongressofthePalliativeCareSociety(SECPAL)Hablardelamuertealfinaldelavida:elnioconcáncer.
(Oralpresentation)Salamanca.
Spain20088thContinentalMeeting,InternationalSocietyofPediatricOncologyinAfrica(SIOP-Africa)Bonemarrowtransplant:qualityoflifeandbehaviouraldisordersinpediatricpatients.
prospectivestudy(Oralpresentation)Tunis,Tunisia200875ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastnameHobinFirstnameDaveTitleDrDegreesBscmbchbContactinformationEmailaddressDavid.
hobin@bch.
nhs.
ukProfessionConsultantpediatriconcologistFunctionMainactivitiesFocusofresearchSupportforprofessionalworkingwithinpediatriconcology/bioethicsAttendingsiopberlin2008YesResearchprojects(durationandstartdate)Keypublications(max5)76ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameHoekstra-WeebersFirstNameJosetteTitleDegreesPhDContactinformationWenckebachInstituteUniversityMedicalCenterGroningenPOBox300019700RBGroningentheNetherlandsEmailaddressj.
hoekstra-weebers@psb.
umcg.
nlProfessionsociologistFunctionSeniorresearcherMainactivitiesResearchFocusofresearchQualityoflife,shortandlongtermadaptation,familyfunctioning,ptss,children,parents,interventionsAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)1.
Long-termparent'sadjustmenttopediatriccancer;enddate:20102.
Childrens'functioningfollowingparentalcancer;enddate:2010Keypublications(max5)Wijnberg-Williams,B.
J.
,Klip,E.
C.
,Kamps,W.
A.
,Hoekstra-Weebers,J.
E.
H.
M.
(2006).
Psychologicaladjustmentofparentsofpediatriccancerpatientsrevisited:fiveyearslater.
Psycho-Oncology,15,1-8.
Wijnberg-Williams,B.
J.
,Kamps,W.
A.
,Klip,E.
C.
,Hoekstra-Weebers,J.
E.
H.
M.
(2006).
Psychologicaldistressandtheimpactofsocialsupportonfathersandmothersofpediatriccancerpatients:long-termprospectiveresults.
JournalofPediatricPsychology,31,785-792.
Visser,A.
,Huizinga,G.
A.
,Hoekstra,H.
J.
,Graaf,W.
T.
A.
vander.
,Gazendam-Donofrio,S.
M.
,Hoekstra-Weebers,J.
E.
H.
M.
(2007).
Emotionalandbehaviouralproblemsinchildrenofparentsrecentlydiagnosedwithcancer:alongitudinalstudy.
ActaOncologica,46,67-76.
Visser,A.
,Huizinga,G.
A.
,Hoekstra,H.
J.
,Graaf,W.
T.
A.
vander,Hoekstra-Weebers,J.
E.
H.
M.
(2007).
Temperamentasapredictorofinternalisingandexternalisingproblemsinadolescentchildrenofparentsdiagnosedwithcancer.
SupportiveCareinCancer,15,395-403.
Gazendam-Donofrio,S.
M.
,Hoekstra,H.
J.
,Graaf,W.
T.
A.
vander,Wiel,H.
B.
M.
vande,Visser,A.
,Huizinga,G.
A.
,Hoekstra-Weebers,J.
E.
H.
M.
(2007).
Familyfunctioningandadolescents'well-beingwhenaparenthascancer.
AnnalsofOncology,18,1951-1956.
77ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameHondaFirstNameNamiTitleM.
DDegreesStudent:adoctoralcourseContactinformationDepartmentofPsychiatry,TohokuUniversityGraduateSchoolofMedicine1-1Seiryo-machi,Aoba-ku,Sendai,980-8574,JapanPhone:+81-22-717-7262Fax:+81-22-717-7266Emailaddressnamihonda@mail.
tains.
tohoku.
ac.
jpProfessionPsychiatrist,LogotherapistFunctionStudent:adoctoralcourseMainactivitiesPatientCare&ResearchFocusofresearchChild&adolescents,family;post-traumaticstress,Psychotherapy(Logotherapy)AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Organizationpsychosocialsupportsystemforchild&familywithpediatricsurgerydisease.
FromSep,2008toAug2009.
Keypublications(max5)Psychosocialliaison-consultationforthechildrenwhohaveundergonerepairofimperforateanusandHirschsprung'sdisease.
JPediatrSurg40:1156-1162(2005)PsychosocialStatusofLong-TermSurvivorswithChildhoodMalignantSolidTumors:MeaningofCancerandLogotherapy(SIOPabstract)78ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameHovénFirstNameEmmaTitleDegreesBScinPsychologyContactinformationChildhoodCancerResearchUnit,Q6:05AstridLindgrenChildren'sHospitalS-17176StockholmSWEDENPhone:+46851772949Emailaddressemma.
hoven@ki.
seProfessionPh.
D.
studentFunctionPh.
D.
studentMainactivitiesResearchFocusofresearchAdultsurvivorsofchildhoodCNStumours;Health-relatedlateeffects;Persistentcareneeds;Evaluationofcare;Impactofillnessonfamily.
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Patientsandparentsafterchildhoodcentralnervoussystemtumourtreatment:Persistentlateeffects,andevaluationofcareandfollow-up.
Start:2007,duration:~3years(projectleaderBoman,K.
K.
).
Keypublications(max5)Hovén,E.
,AnclairM.
,Samuelsson,U.
,Kogner,P.
&BomanK.
K.
(inpress).
Theinfluenceofpediatriccancerdiagnosisandillnesscomplicationfactorsonparentaldistress.
JournalofPediatricHematology/Oncology.
Anclair,M.
,Hovén,E.
,Lannering,B.
&Boman,K.
K.
(inpress).
Parentalfearsafterachild'sbraintumordiagnosisandtreatment.
JournalofPediatricOncologyNursing.
Conferenceabstracts:Hovén,E.
&BomanK.
K.
AdultsurvivorsofchildhoodCNStumours:Persistenthealthcareneedsandlong-termimpactonfamily.
Abstractnumber:473BomanK.
K.
,Hovén,E.
,Anclair,M.
,Lannering,B.
&Gustavsson,G.
PersistenthealthandfunctionallateeffectsinadultsurvivorsafterchildhoodCNStumourandtreatment:Anation-widecohortstudy.
Abstractnumber:56779ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameHuismanFirstNameJaapTitleDrDegreesPhDContactinformationVUuniversitymedicalcenterDptMedicalPsychologyP.
O.
Box70571007MBAmsterdamTheNetherlandsTel+31(0)204440861Emailaddressdrj.
huisman@vumc.
nlProfessionPsychologistFunctionHeadPediatricPsychologyMainactivitiesBothPatientCareandResearchFocusofresearchLateeffects,QualityofLife,PsychosocialinterventionAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)*inchildoncology1.
PsychosocialfunctioningandqualityoflifeinretinoblastomasurvivorsandparentsintheNetherlands(2004-2008)2.
TheALL-10treatmentprotocolinchildrenwithacutelymphoblasticleukaemia:astudyassessingadjustmentandqualityoflifeanditsdeterminants(2006-2012)3.
Acombinedphysicalexerciseandpsychosocialtrainingprogramtoimprovephysicalfitnessinchildrenwithcancer(2008-2012).
Keypublications*inchildoncologyJansenNC,KingmaA,SchuitemaA,BoumaA,HuismanJ,VeermanAJ,KampsWA.
Post-treatmentintellectualfunctioninginchildrentreatedforacutelymphoblasticleukaemia(ALL)withchemotherapy-only:aprospective,sibling-controlledstudy.
EurJCancer2006;42:2765-72.
DijkJvan,HuismanJ,MollAC,Schouten-vanMeeterenAYN,BezemerPD,RingensPJ,Cohen-KettenisPT,ImhofSM.
Health-relatedqualityoflifeofchildandadolescentretinoblastomasurvivorsintheNetherlands.
HealthandQualityofLifeOutcomes2007,5:65.
DijkvanEM,Dulmen-denBroedervanE,KaspersGJL,DamvanEWCM,BraamKI,HuismanJ.
Psychosexualfunctioningofchildhoodcancersurvivors.
Psycho-Oncology2008,17(5):506-11.
HuismanJ,AukemaEJ,DeijenJB,CoeverdenSCCMvan,KaspersGJL,PalHJHvander,Delemarre-vandeWaalHA.
Theusefulnessofgrowthhormonetreatmentforpsychologicalstatusinyoungadultsurvivorsofchildhoodleukaemia:anopen-labelstudy.
BMCPediatrics2008,8:25.
DOI:10.
1186/1471-2431-8-25.
DijkJvan,OostromKJ,ImhofSM,MollAC,Schouten-vanMeeterenAYN,BezemerPD,HuismanJ.
Behaviouralfunctioningofretinoblastomasurvivors.
Psycho-Oncology2008.
DOI:10.
1002/pon.
1381.
80ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameIndekeuFirstNameAstridTitleMrsDegreesmasterinclinicalpsychologyContactinformationU.
Z.
LeuvenHerestraat493000LeuvenEmailaddressastrid.
indekeu@uz.
kuleuven.
ac.
beProfessionclinicalpsychologistFunctionclinicalpsychologistMainactivitiesPatientCareandResearchFocusofresearchsiblings,longtermfollow-upAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Qualityoflifeofsiblingsofsevereandchronicillchildren(cysticfibrosis/diabetes/heartdisease/cancer),jointprojectoftheclinicalpsychologistsworkingonthepediatricunitsinUZLeuven,startedtwoyearsagowiththecysticfibrosisgroup,sincethebeginningof2008theothergroupsareincluded.
Projectinthephaseofgatheringthedata.
2.
ParticipatingintheE2020-333&334studyofEISAIandQuintiles:clinicalstudyofanewdrugforchildrenwithcognitivedeficitsattributedtothecancerorcancertreatment.
Thestudyisacombinationofamedicalandneuropsychologicalinvestigation,inthephaseofpre-screeningtheeligiblechildren.
3.
ParticipatinginEuramosI,trialvandeEuropeanandAmericanosteosarcomastudygroup,overallsurvivalentoxicity,QOL.
Keypublications(max5)Indekeu,A.
,Vercruysse,T.
,Bracke,I.
,Uyttebroeck,A.
,Renard,M;(2008).
Eenkindmetkankerindeklas:hernieuwingvandeonderwijskoffers.
InTeveel…of…teweinig,Trop…ou…troppeu.
Congresboekvanhet36stejaarlijkscongresvandeBelgischeVerenigingvoorKindergeneeskunde.
(p.
185).
Vercruysse,G.
,Indekeu,A.
,Uyttebroeck,A.
,Renard,M.
(2008).
Denoodaaneengoeduitgebouwdebrussenwerkingopeenkinderhemato-oncologischeafdeling.
InTeveel…of…teweinig,Trop…ou…troppeu.
Congresboekvanhet36stejaarlijkscongresvandeBelgischeVerenigingvoorKindergeneeskunde.
(p.
177-178).
81ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameJansenFirstNameNathalieTitleMScDegreesContactinformationWilhelminaChildren'sHospitalPediatricPsychology@SocialWorkKA.
00.
004.
0P.
O.
Box850903508ABUtrecht,TheNetherlandsEmailaddressn.
c.
a.
jansen@umcutrecht.
nlProfessionPsychologistFunctionPhDstudentMainactivitiesBothFocusofresearchNeurocognitive,qualitiyoflifeAttendingSIOPBerlin2008Ihopeso.
Researchprojects(durationandstartdate)1.
CognitivefunctioninginchildrentreatedforALL.
Mythesiswillbefinishedsoon.
Keypublications(max5)JansenNC,KingmaA,SchuitemaA,etal.
Satisfactoryneuropsychologicaloutcomeinchemotherapy-onlytreatedchildrenwithacutelymphoblasticleukemia(ALL),butsubgroupatriskformildspecificimpairment.
JClinOncol,inpressJansenNC,KingmaA,SchuitemaA,etal.
Post-treatmentintellectualfunctioninginchildrentreatedforacutelymphoblasticleukaemia(ALL)withchemotherapyonly:aprospective,sibling-controlledstudy.
EurJCancer2006;42(16):2765-72JansenNC,KingmaA,TellegenP,etal.
Feasibilityofneuropsychologicalassessmentinleukaemiapatientsshortlyafterdiagnosis:directionsforfutureprospectiveresearch.
ArchDisChild2005;90(3):301-482ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameKarsFirstNameMarijkeTitlePh.
DDegreesContactinformationUMCUtrecht,STR3.
130POBox850603508ABUtrechtTel++31887568092EmailaddressM.
C.
Kars@umcutrecht.
nlProfessionNurseresearcher,PediatricNurseFunctionResearcherMainactivitiesResearchFocusofresearchPediatricPalliativeCare,PediatricCancer,FamilyfunctioningespeciallytheroleofparentsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
2004-2009:PRESENCEstudy:identificationofparentalstress,needsandcopingstrategieswhencaringfortheirchildwithcancerathomeduringthepalliativephaseKeypublications(max5)Kars,M.
C.
,Duijnstee,M.
S.
H.
,Pool,A.
,Delden,J.
J.
M.
&Grypdonck,M.
H.
F.
(2008).
Beingthere.
ParentingthechildwithAcuteLymphoblasticLeukaemia.
JournalofClinicalNursing17(12),1543-155283ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameKazakFirstNameAnneTitleDirector,DepartmentofPsychology,Children'sHospitalofPhiladelphiaDegreesPh.
D.
,ABPPContactinformationChildren'sHospitalofPhiladelphia34thSt.
andCivicCenterBlvd.
,Room1486CHOPNorthPhiladelphiaPA.
19104Emailaddresskazak@email.
chop.
eduProfessionPsychologistFunctionMainactivitiesPatientCare;Research,BothFocusofresearchChildandfamilyadjustmenttochildhoodcancer;Evidencebasedassessmentandintervention;Survivorship;BereavementAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Integratingcognitivebehavioralandfamilytherapyapproachesininterventionsforchildrenwithcancerandtheirfamilies;2.
PsychosocialAssessmentTool-identifyingriskinnewlydiagnosedpatientsandtheirfamilies;3.
Medicaltraumaticstress;4.
Mentoringbehavioralresearchersinpediatriccancer.
Keypublications(max5)Kazak,A.
,Alderfer,M.
,Streisand,R.
,Simms,S.
,Rourke,M.
,Barakat,L.
,Gallagher,P.
&Cnaan,A.
(2004).
Treatmentofposttraumaticstresssymptomsinadolescentsurvivorsofchildhoodcancerandtheirfamilies:Arandomizedclinicaltrial.
JournalofFamilyPsychology,18,493-504.
Kazak,A.
,Rourke,M.
,Alderfer,M.
,Pai,A.
,Reilly,A.
&Meadows,A.
(2007).
Evidence-basedassessment,interventionandpsychosocialcareinpediatriconcology:Ablueprintforcomprehensiveservicesacrosstreatment.
JournalofPediatricPsychology,32,1099-1110.
Pai,A.
,Patino-Fernandez,A.
M.
,McSherry,M.
,Beele,D.
,Alderfer,M.
,Reilly,A.
,Hwang,W.
T.
,&Kazak,A.
(2008).
ThePsychosocialAssessmentTool(PAT2.
0):Psychometricpropertiesofascreenerforpsychosocialdistressinfamiliesofchildrennewlydiagnosedwithcancer.
JournalofPediatricPsychology,33,50-62.
Power,T.
,DuPaul,G.
,Shapiro,E.
&Kazak,A.
(2003).
PromotingChildren'sHealth:IntegratingSchool,FamilyandCommunity.
NewYork:GuilfordPress.
Spirito,A.
&Kazak,A.
(2006).
EffectiveandEmergingTreatmentsinPediatricPsychology.
NewYork:OxfordUniversityPress.
84ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameKennedyFirstNameColinTitleProfessorDegreesMBBSMDContactinformationMailpoint21SouthamptonGeneralHospital,Southampton,SO166YD,UnitedKingdomEmailaddresscrk1@southampton.
ac.
ukProfessionMedicineFunctionConsultantpediatricneurologistandprofessorinneurologyandpediatrics.
Projectleader.
MainactivitiesBothPatientCareandalsoClinicalResearch.
Chairof'QualityofSurvival'workinggroupsofa)CNSDivisionofCCLGandb)BrainTumourCommitteeofSIOP-EFocusofresearchQualityofsurvivalespeciallya)afterchildhoodbraintumour.
B)afterearlyinterventionandlanguageacquisitioninpermanentchildhoodhearingimpairmentAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
PNET4Outcomestudy-fromabout2000untilatleast2010.
Indepthstudyoffactorsaffectingqualityoflifeaftertreatmentofposteriorfossabraintumour2005-2010.
2.
Inpreparation.
Singleoutcomestudyforallchildrenenrolledinbraintumourstudies.
Keypublications(max5)GlaserA,KennedyC,PuntJ,WalkerD.
Standardizedquantitativeassessmentofbraintumoursurvivorstreatedwithinclinicaltrials.
InternationalJournalofCancer,1999,S12,77-82.
KennedyCR,LeylandK.
Comparisonofscreeninginstrumentsfordisabilityandemotional/behaviouraldisorderswithagenericmeasureofhealth-relatedqualityoflifeinsurvivorsofchildhoodbraintumours.
InternationalJournalofCancer,1999,S12,106-11.
WilneSH,FerrisR,NathwaniA,KennedyCR.
Thepresentingfeaturesofbraintumours:areviewof200cases.
ArchivesofDiseaseinChildhood,2006,91:502-06.
KennedyCR,McCannD,CampbellMJ,LawC,MulleeM,PetrouS,WatkinP,WorsfoldS,YuenHM,StevensonJ.
Earlylifedetectionofpermanenthearinglossandsubsequentlanguage.
TheNewEnglandJournalofMedicine,2006,354:2131-41.
BullKS,SpoudeasH,YadegarfarG,KennedyCR.
Reductionofhealthstatussevenyearsafteradditionofchemotherapytocranio-spinalirradiationformedulloblastoma:follow-upstudyofSIOPPNET3trialsurvivorsonbehalfoftheCCLG(formerlyUKCCSG).
TheJournalofClinicalOncology,2007,25:4239-4245.
85ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameKingmaFirstNameAnnetteTitlePhDDegreesRegisteredHealthPsychologist(GZ-BIGregistratie);PediatricPsychologist-specialistNIP(Kinder-enjeugdpsycholoog-specialistNIP);ClinicalPsychologist-specialistNIP(Klinischpsycholoog-specialistNIP)Contactinformationtel.
+31(0)50-364213Emailaddressa.
kingma@bkk.
umcg.
nlProfessionPediatricNeuropsychologist(Kinderneuropsycholoog)FunctionPatientcareinpediatriconcology,UniversitylecturerandPost-docresearchandprojectleaderMainactivitiesSeeaboveFocusofresearchNeuropsychologicallate-effectsAttendingSIOPBerlin2008ProbablynotResearchprojects(durationandstartdate)1.
Continuinglongitudinalresearchonneuropsychologicallate-effectsinchildrenwithleukemiaorbraintumor;incollaborationwithPhDstudentsKeypublications(max5)JansenNC,KingmaA,SchuitemaA,BoumaA,VeermanAJ,KampsWA.
Neuropsychologicaloutcomeinchemotherapy-only-treatedchildrenwithacutelymphoblasticleukemia.
JClinOncol.
2008Jun20;26(18):3025-30.
KingmaA,VanDommelenRI,MooyaartEL,WilminkJT,DeelmanBG,KampsWA.
Nomajorcognitiveimpairmentinyoungchildrenwithacutelymphoblasticleukemiausingchemotherapyonly:aprospectivelongitudinalstudy.
JPediatrHematolOncol.
2002Feb;24(2):106-14.
KingmaA,vanDommelenRI,MooyaartEL,WilminkJT,DeelmanBG,KampsWA.
Slightcognitiveimpairmentandmagneticresonanceimagingabnormalitiesbutnormalschoollevelsinchildrentreatedforacutelymphoblasticleukemiawithchemotherapyonly.
JPediatr.
2001Sep;139(3):413-20.
NeuropsychologicalEffectsofCancerTherapy:CerebralPathology,CognitiveImpairment,andSchoolRe-Entry.
In:PochedlyC,ed.
NeoplasticDiseasesofChildhood.
Vol.
2.
Switzerland:HarwoodAcademicPublishers;1994:1497-152086ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameKlassenFirstNameAnneTitleAssociateProfessorDegreesD.
PhilContactinformationDepartmentofPediatricsMcMasterUniversity3AHSC1200MainStreetWHamilton,ONCanadaL8N3Z5Emailaddressaklass@mcmaster.
caProfessionAcademicResearcherFunctionProjectLeaderandCollaboratorMainactivitiesPatientCare;Research,BothFocusofresearchQualityofLife;Psychometrics;Parents;ChildrenAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
KlassenA,GreenbergC,BarrR,GreenbergM,ChanY.
DevelopingaFrameworkandIndicatorsforPediatricOncologyServices,CanadianInstitutesofHealthResearch&OntarioMinistryofHealthandLongtermCare&PediatricOncologyGroupofOntario,$150,000,2008JUN–2010APR2.
KlassenA,DixD,PritchardS,SungL,RainaP,PoureslamiI,ShawN.
Immigrantfamilies'experienceofcarefortheirchildwithcancer.
C17ResearchNetwork-$92,536,2007APR–2009MAR3.
KlassenA,SouthAsianimmigrantfamilies'experiencesofcarefortheirchildwithcancer.
NationalCancerInstituteofCanadaResearchGrant-$139,067,2007JUL–2009JUN4.
KlassenA,O'DonnellM,RainaP,DixD,PrichardS,TuckerL.
ParentsofchildrenwithcancerinBC:astudyoffactorsrelatedtotheirpsychologicalwellbeing–OperatingGrant.
NationalCancerInstituteofCanada.
-$226,842,2004JUL–2008JUNKeypublications(max5)KlassenA,RainaP,ReinekingS,DixD,PritchardS,O'DonnellM.
Developingaliteraturebasetounderstandthecaregivingexperienceofparentsofchildrenwithcancer:asystematicreviewoffactorsrelatedtoparentalhealthandwell-being.
SupportiveCareinCancer2007;15:807-818.
KlassenA,KlaassenR,DixD,PritchardS,O'DonnellM,ScottA,SungL.
Impactofcaringforachildwithcanceronparent'squalityoflife.
JournalofClinicalOncology.
InpressKlassenA,DixD,CanoSJ,PapsdorfM,SungL,KlaassenRJ.
EvaluatingFamily-CenteredServiceinPediatricOncologywiththeMeasureofProcessesofCare(MPOC-20).
Child,CareHealthandDevelopment.
Inpress.
KlassenA,StrohmSJ,Maurice-StamH,GrootenhuisM.
Qualityoflifequestionnairesforchildrenandchildhoodcancersurvivors:acomparisonofavailablemeasures.
SubmittedtoPsycho-oncology.
KlassenA,DixD,YanofskyR,KlaassenR,SungL.
Howdosingleparentfamiliesofchildrenwithcancerdifferfromtwo-parentfamiliesSubmittedtoPediatrics87ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameKorzeniewskaFirstNameJustynaTitlePhDDegreesDoctorContactinformationTheChildren'sMemorialHealthInstituteOncologyDepartmentAl.
DzieciPolskich2004-736WarsawPoland,tel.
+4822815-75-86.
Emailaddressjustczd@yahoo.
co.
inProfessionPsychologistFunctionpsychologistinoncologydepartmentandresearcherMainactivitiesPatientcareandresearchFocusofresearchneurocognitive;qualityoflife;lateeffects,Neurofibromatosistype1,NijmegenBreakageSyndrome(NBS).
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Since2002"EvaluationofHealthandPsychologicalStatusinSurvivorsofChildhoodCNSTumors".
2.
Since2003"SpecificBehavioralPhenotypeofPatientswithNeurofibromatosisType1(vonRecklinghausenDisease)".
3.
Since2004"DynamicofMentalDevelopmentofPatientswithNijmegenBreakageSyndrome–longitudinalstudy".
Keypublications(max5)J.
Korzeniewska,M.
Perek–Polnik,B.
Dembowska–Babioska,M.
Drogosiewicz,D.
PerekVisionLoss(LegalBlindness)asaConsequenceofBrainTumors:FunctionalAssessmentandAnalysis".
In:PediatricBlood&Cancer",2008,Vol.
10,Issue3,pp.
496.
B.
Dembowska–Bagioska,D.
Perek,A.
Broyna,M.
Drogosiewicz,M.
Perek–Polnik,O.
Rutynowska,J.
KorzeniewskaEvaluationofHealthStatusInSurvivorsofChildhoodCNSTumorsUsingCommonTerminologyCriteriaforAdverseEventsV3.
0(CTCAE)".
In:PediatricBlood&Cancer",2008,Vol.
10,Issue3,pp.
492.
J.
Korzeniewska,M.
Perek–Polnik,B.
Dembowska–Babioska,M.
Drogosiewicz,D.
PerekSpecificBehavioralPhenotypeofPatientswithNeurofibromatosisType1(vonRecklinghausenDisease".
In:PediatricBlood&Cancer",2008,Vol.
10,Issue3,pp.
464.
B.
Dembowska–Bagioska,A.
Broyna,M.
Drogosiewicz,M.
Perek–Polnik,O.
Rytynowska,I.
Filipek,J.
Korzeniewska,D.
PerekLateEffectsofChildhoodCentralNervousSystem(CNS)Tumors–EvaluationUsingCommonTerminologyCriteriaAdverseEventsV3.
0(CTCAE)".
In:PediatricBlood&Cancer",2007,Vol.
49,Issue4,pp.
549.
J.
Korzeniewska,M.
Drogosiewicz,B.
Dembowska–Bagioska,D.
Perek"PsychologicalFunctioninSurvivorsofChildhoodCNSGerminoma".
In"PediatricBlood&Cancer",Vol.
47,Issue4,2006,pp.
493.
88ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameKrivoyFirstNameElenaAvigailTitleClinicalandMedicalPsychologistDegreesMasterContactinformationChildrenHospital,RambamHealthCareCampus,Haifa,IsraelEmailaddressE_Krivoy@rambam.
health.
gov.
ilProfessionClinicalandMedicalPsychologistFunctionChiefPsychologistDepartmentofPediatricHemato-OncologyMainactivitiesPatientCare&Research,FocusofresearchChildren;adolescents;siblings;parents;qualityoflife;palliativecare;familyfunctioning;lateeffect;caregiversburnout.
AttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Qualityoflifeinchildrengettingchemotherapytheirsiblingsandparents.
March2008.
2.
CaregiversburnoutinaPediatricHemato-OncologyServices.
January2009.
Keypublications(max5)PostovskyS,MoaedB,KrivoyE,OfirR,BenArushMW.
Practiceofpalliativesedationinchildrenwithbraintumorsandsarcomasattheendoflife.
PediatrHematolOncol.
2007Sep;24(6):409-15PeretzM,GoldbergH,KutenA,MellerI,KrivoyE,etal.
LongTermSurvivorsinchildrensufferingfromcancer.
Harefuah2003;140:95-100.
PsychosocialAspectsofPediatricOncologyEditors:S.
Kreitler,M.
WeylBenArush(2004).
"PsychologicalInterventionwiththeDyingChild"(S.
KreitlerandE.
Krivoy)89ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameKrullFirstNameKevinTitleAssociateProfessorDegreesPh.
D.
ContactinformationSt.
JudeChildren'sResearchHospital332N.
LauderdaleSt.
MS735Memphis,TN38105-2794Emailaddresskevin.
krull@stjude.
orgProfessionNeuropsychologistFunctionFacultyresearcher,supervisor,projectleaderMainactivitiesResearchwithlimitedpatientcareFocusofresearchNeurocognitiveoutcomesofpediatricALL,geneticmediators/moderatesoflate-effects,neuroscience.
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
RiskofNeurocognitiveimpairmentlong-termsurvivorsofpediatricALL.
01Jan2008topresent.
2.
Neurocognitivefunctionsinlong-termsurvivorsofALLexposedtocorticosteroids.
01Oct2007topresent.
3.
Remoteneurocognitiveassessmentinadultsurvivorsofchildhoodcancer.
01Apr20088topresent.
4.
Long-termNeurological,Neurocognitive,andCerebrovascularOutcomesafterCNSRadiationforAcuteLymphoblasticLeukemia.
01Jul2007topresent.
Keypublications(max5)KrullKR,OkcuMF,PotterB,JainN,DreyerZ,KamdarK.
BrouwersP.
Screeningforneurocognitivedivergenceinpediatriccancerlong-termsurvivors.
JournalofClinicalOncology.
Inpress.
KrullKR,BrouwersP,JainN,ZhangL,BomgaarsL,DreyerZ,MahoneyD,BottomleyS,OkcuMF.
Folatepathwaygeneticpolymorphismsarerelatedtoattentiondisordersinchildhoodleukemiasurvivors.
JournalofPediatrics.
2008;152(1):101-5.
JainN,KrullKR,BrouwersP,ChintagumpalaMM,WooSY.
Neuropsychologicaloutcomefollowingintensity-modulatedradiationtherapyforpediatricmedulloblastoma.
PediatricBloodandCancer.
2008Apr17.
Epub.
MooreIM,MiketovaP,HockenberryM,KrullKR,PasvogelA,CareyM,Kaemingk,K.
Methotrexate-inducedalterationsinBeta-oxidationcorrelatewithcognitiveabilitiesinchildrenwithacutelymphoblasticleukemia.
BiologicalResearchforNursing.
2008;9(4):311-9.
HockenberryM,KrullKR,MooreIM,GregurichM,CaseyME,KaemingkK.
Longitudinalevaluationoffinemotorskillsinchildrenwithleukemia.
JournalofPediatricHematology&Oncology.
2007;29(8):535-9.
90ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameLastFirstNameBobF.
TitleProf.
Dr.
DegreesPhDContactinformationAcademicMedicalCenterMeibergdreef9AmsterdamtheNetherlandsEmailaddressb.
f.
last@amc.
uva.
nlProfessionClinicalPsychologistFunctionDirectorofPediatricPsychosocialDepartmentMainactivitiesPatientCare;Research,BothFocusofresearchCoping;Familydynamics;EffectivenessofinterventionsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Effectivenessofacognitive-behaviouralgroupinterventioninchildrenandadolescentstreatedforcancer(ongoing)Keypublications(max5)LastBF&GrootenhuisMA(1998).
Emotions,coping,andtheneedforsupportinfamiliesofchildrenwithcancer:amodelforpsychosocialcare.
PatientEducCounsel,33,169-179.
Houtzager,B.
A.
,Grootenhuis,M.
A.
,Caron,H.
N.
,Last,B.
F.
(2004).
Qualityoflifeandpsychologicaladaptationinsiblingsofpediatriccancerpatients,twoyearsafterdiagnosisPsycho-Oncology,13,499-511.
Last,BF,Grootenhuis,MA,&Eiser,C(2005).
Internationalcomparisonofcontributionstopsychosocialresearchonsurvivorsofchildhoodcancer:pastandfutureconsiderations.
JofPediatricPsychology.
Jan-Feb;30(1):99-113.
Maurice-StamH,OortFJ,LastBF,BronsPPT,CaronHN,GrootenhuisMA.
Longitudinalassessmentofhealth-relatedqualityoflifeinpreschoolchildrenwithnon-CNScanceraftertheendofsuccessfultreatment.
PediatricBlood&Cancer.
May2008,Volume:50Issue:5Pages:1047-1051LastBF,StamH,Onland-vanNieuwenhuizenAM,GrootenhuisM.
Positiveeffectsofapsycho-educationalgroupinterventionforchildrenwithachronicdisease:Firstresults.
PatientEducCouns.
2007Jan;65(1):101-12.
91ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameLindahlNorbergFirstNameAnnikaTitleDegreesPhDContactinformationChildhoodCancerResearchUnitQ6:05AstridLindgrenChildren'sHospitalSE-17176StockholmSwedenphone:+46851771950EmailaddressAnnika.
Lindahl.
Norberg@ki.
seProfessionPsychologist;CBT-therapist(basic)FunctionPost-docresearcher,projectleaderMainactivitiesResearch;somepatientcareFocusofresearchParents;Braintumoursurvivors;Chronicstrainandstress;TraumaticstressAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Chronicstressandburnoutinparents:start20052.
Post-treatmentlifeofparentsofbraintumoursurvivors:start20053.
Braintumoursurvivors–Childcognitivetraining&parentalcoaching(togetherwithI.
van'tHooft)start20074.
Neuropsychologicandpsychosocialsequelaeinbraintumoursurvivors(togetherwithI.
van'tHooft)start2007Currentinvolvementinotherprojects:5.
Childhoodcancer–psychologicalconsequencesforparents(projectleaderK.
K.
Boman)start19986.
Posttraumaticstressinparents(projectleaderL.
vonEssen)start2002Keypublications(max5)LindahlNorberg,A.
&Steneby,S.
(inpress)Parentsofchildrensurvivingbraintumour:Ahappyendingandaroughbeginning.
EuropeanJournalofCancerCareLindahlNorberg,A.
&Boman,K.
K.
(2008)Parentdistressinchildhoodcancer:Acomparativeevaluationofposttraumaticstress,depressionandanxiety.
ActaOncologica47(2),267-274LindahlNorberg,A.
(2007)Burnoutinparentsofchildrensurvivingbraintumour.
JournalofClinicalPsychologyinMedicalSettings,June14(2),130-137LindahlNorberg,A.
&Boman,K.
K.
(2007)Parents'perceptionsofsupportwhenachildhascancer:alongitudinalperspective.
CancerNursing,30(4),294-301LindahlNorberg,A.
,Lindblad,F.
,&Boman,K.
K.
(2005).
Copingstrategiesinparentsofchildrenwithcancer.
SocialScienceandMedicine,60(5),965-975.
92ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameLuca,deFirstNameCinziaTitleMsDegreesMasters/PhD(ClinicalNeuropsychology)ContactinformationRoyalChildren'sHospitalPsychologyDepartment1stfloor,SouthEastBuildingFlemingtonRoad,Parkville3052Melbourne,VICAUSTRALIIA(+6103)93455867Emailaddresscinzia.
deluca@rch.
org.
auProfessionNeuropsychologistFunctionNeuropsychologicalassessmentofchildrenundergoingtreatmentforchildhoodcancer.
MainactivitiesPatientassessments.
Research.
FocusofresearchNeurocognitivesequelaeofchildhoodcancer.
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Attentiondysfunctioninchildrenwithcancer.
(Jan2008).
2.
Monitoringcognitionovertime,andexploringthecontributionofdevelopmentalandpsychosocialfactorstooutcome.
(July2008).
Keypublications(max5)Bookchapter:NeuropsychologicalImpactofTreatmentofBrainTumors(inpress).
93ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMaedaFirstNameMihoTitleProfessorDegreesMD,PhDContactinformationEmailaddressmaeda@nms.
ac.
jpProfessionPediatricOncologistFunctionMD,PhDMainactivitiesBothFocusofresearchLateEffectsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Establishmentofnationalfollow-upsystemforchildhoodcancersurvivorsinJapanKeypublications(max5)KaizuK,MaedaM,FukunagaY.
Factorsaffectingfinalheightandgrowthhormoneprovocationtestsinsurvivorsofchildhoodacutelymphoblasticleukemiawhounderwentcranialirradiation.
JpnJPediatrHematol22(2):119-125,2008MihoMaeda,AkioTsuda,ShingoYamanishi,YokoUchikoba,YoshitakaFukunaga,HajimeOkita,Jun-ichiHata.
EwingSarcoma/PrimitiveNeuroectodermalTumorofthekidneyinaChild.
PediatrBloodCancer50:180-183,2008UedaT,ItoT,MaedaM,FukunafaY.
Massiveperiostealreactionapresentingfeatureofacutemegakaryocyticleukemia.
PediatrInternational49:1015-1017、2007AkiraKikuchi,MihoMaeda,etal.
Moyamoyasyndromefollowingchildhoodacutelymphoblasticleukemia.
PediatrBloodCancer48(3):268-272,2007HamadaH,OhkuboT,MaedaM,OgawaS.
Evaluationofcardiacreservedfunctionbyhigh-dosedobutamine-stressechocardiographyinasymptomaticanthracycline-treatedsurvivorsofchildhoodcancer.
PediatrInt.
48:313-20,2006.
94ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMakhoul-khouryFirstNameSiwarTitleMrs.
DegreesM.
S.
W.
ContactinformationPediatrichematology-oncologydepartmentMeyerChildren'sHospitalRambamHealthCareCampusEmailaddressS_makhoul@rambam.
health.
gov.
ilProfessionSocialworkerFunctionMainactivitiesPatientCare&ResearchFocusofresearchAdolescents,copingstrategies,parenthood,QualityoflifeAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)Keypublications(max5)Parentalstyle,preservedsupportandadjustmentofJewishandArabadolescentrecoveringfromchildhoodcancer(Siop2008)95ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMartiniukFirstNameAlexandraLCTitleDrDegreesMScPhDContactinformationTheGeorgeInstituteForInternationalHealthatUniversityofSydneyEmailaddressamartiniuk@george.
org.
aualexmartiniuk@tricolour.
queensu.
caProfessionEpidemiologist(previouslypsychological/clinic&communitysupport)FunctionSeniorResearchFellow,AssistantProfessorFacultyofMedicineMainactivitiesCurrentlyresearch(previouslypatientandfamilysupport)FocusofresearchGlobalhealth(adolescenthealth)AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
AtSIOPtorepresentCOCA-I(Children'sOncologyCampingAssociationInternational)Keypublications(max5)MartiniukAL,SpeechleyKN,SeccoM,CampbellMK,DonnerA.
EvaluationofanepilepsyeducationprogramforGrade5students:aclusterrandomizedtrial.
EpilepsyBehav.
2007Jun;10(4):604-10.
Epub2007Apr20.
MartiniukAL,SpeechleyKN,SeccoM,KarenCampbellM.
DevelopmentandpsychometricpropertiesoftheThinkingaboutEpilepsyquestionnaireassessingchildren'sknowledgeandattitudesaboutepilepsy.
EpilepsyBehav.
2007Jun;10(4):595-603.
Epub2007Mar7.
MartiniukAL.
Campingprogramsforchildrenwithcancerandtheirfamilies.
SupportCareCancer.
2003Dec;11(12):749-57.
Epub2003Oct1.
Review.
MartiniukAL,O'ConnorKS,KingWD.
AclusterrandomizedtrialofasexeducationprogrammeinBelize,CentralAmerica.
IntJEpidemiol.
2003Feb;32(1):131-6.
MartiniukAL,LeeCM,LawesCM,UeshimaH,SuhI,LamTH,GuD,FeiginV,JamrozikK,OhkuboT,WoodwardM;Asia-PacificCohortStudiesCollaboration.
Hypertension:itsprevalenceandpopulation-attributablefractionformortalityfromcardiovasculardiseaseintheAsia-Pacificregion.
JHypertens.
2007Jan;25(1):73-9.
96ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMassimoFirstNameLuisaM.
TitleProf.
Dr.
DegreesDirectorEmeritusContactinformationmyselfEmailaddressluisamassimo@ospedale-gaslini.
ge.
itProfessionProfessorEmeritusFunctionDirectorEmeritusMainactivitiesPatientCare;Research,Both,ExpertofEUandINTASFocusofresearchPsycho-Oncology,PsychosociologyAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Theimmigrantsickchildinhospital:theexperienceofmothers(2years);Needsandexpectationsofadolescentswithcancer(2years).
Keypublications(max5)MassimoLM,WileyTJ,CaprinoD:Healthemigration:achallengeinpediatriconcology.
JChildHealthCare.
2008;12:106-15.
MassimoLM,WileyTJ:Youngsiblingsofchildrenwithcancerdeservecareandapersonalizedapproach.
PediatrBloodCancer.
2008;50:708-710.
MassimoLM,ZarriDA:Drawings:anarrativeapproachforchildrenwithcancer.
AnnNYAcadSci.
2006;1089:xvi-xxiii.
CaprinoD,WileyTJ,MassimoLM:Childhoodcancersurvivorsinthedark.
JClinOncol.
2004,22:2748-2750.
97ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMaurice-StamFirstNameHeleenTitledrDegreesPhDContactinformationEmmaChildren'sHospitalAcademicMedicalCenterPsychosocialPediatricDepartment,G8-224Meibergdreef91105AZAmsterdamTheNetherlandsEmailaddressh.
stam@amc.
uva.
nlProfessionhealthscientistFunctionpost-docresearcherMainactivitiesresearchFocusofresearchQoL,psychosociallateeffects,courseoflife/developmentalmilestones,interventionsChildhoodcancersurvivors(childrenandyoungadults)AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Effectofpsycho-educationalinterventionsforchildhoodcancersurvivorsinprogress:2.
psychosociallateeffectsinchildhoodcancersurvivors3.
measuringsurvivor-specificQoL4.
effectofambientexperienceonpainandfearinpediatriconcology5.
useofseriousgamingtoimprovehealthbehaviourinpediatriconcologyKeypublications(max5)StamH,GrootenhuisMA,LastBF.
Thecourseoflifeofsurvivorsofchildhoodcancer.
Psycho-oncology2005;14:227-238.
Maurice-StamH,OortFJ,LastBF,BronsPPT,CaronHN,GrootenhuisMA.
LongitudinalassessmentofHRQoLinpreschoolchildrenwithnon-CNScanceraftertheendofsuccessfultreatment.
PediatricBlood&Cancer2008;50(5):1047-1051.
Maurice-StamH,OortFJ,LastBF,BronsPPT,CaronHN,GrootenhuisMA.
School-agedchildrenaftertheendofsuccessfultreatmentofnon-CNScancer:LongitudinalassessmentofHealth-RelatedQualityofLife,anxietyandcoping.
EuropeanJournalofCancerCare,inpressMaurice-StamH,OortFJ,LastBF,GrootenhuisMA.
Emotionalfunctioningofparentsofchildrenwithcancer:thefirstfiveyearsofcontinuousremissionaftertheendoftreatment.
Psycho-Oncology2008;17:448-450.
Maurice-StamH,OortFJ,GrootenhuisMA,LastBF.
ApredictivemodelofHealth-relatedQualityofLifeinyoungadultsurvivorsofchildhoodcancer.
EuropeanJournalofCancerCare,inpress98ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMedinFirstNameGabrielaTitleMrsDegreesPhdstudentContactinformationHospitalGeneralUniversitarioGregorioMaraónHemato-oncologyUnitMadridSpainEmailaddressGabriela.
medin@gmail.
comProfessionPsychologistFunctionResearcherandpatientcareMainactivitiesBothFocusofresearchadolescents;qualityoflife;post-traumaticstressorgrowth;interventions;lateeffects.
PalliativecareAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
ALLsurvivorspsychosociallongtermeffects.
Qualitativestudy.
Finished2004Thesisdisertationinprocess.
2.
Adolescentssurvivorsandqualityoflife.
Crosssectionalstudy.
Finishingdataanalysis.
3.
Psychosocialissuesinsicklecelldisease.
Longitudinalstudy.
Collectingdata.
2007Keypublications(max5)"Medidasnofarmacológicasdecontroldeldoloryotrossíntomasencancerpediátrico".
Mendez,T,Medin,GEnCuidadosPaliativosenninosEditadoporDrMarcosGomezSancho.
Gafos.
Canarias.
Espaa.
2007.
"PediatricIssues:paliativecareinthedevelopingWord.
Principlesandpractice"DusselV,MedinGEnBruera,Delimaetal"PalliativeCareinthedevelopingworld.
Principlesandpractice".
InternacionalAssociationforHospiceandPaliativeCareconauspiciodelaOPS.
2004Proceduralpaininchildren.
Oralpresentation.
XXXVIIISIOPmeetingPediatricBloodandcancerVolIssue2006.
Adolescentssurvivorsofchildhoodcancer.
PsychosocialevaluationandQualityoflife.
MedinG,BelendezC,CelaE,GalarónP,BravoR,CantalejoMA.
XXXVIIISIOPmeetingPediatricBloodandcancerVolIssue200699ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMeijer-vandenBerghFirstNameEstherTitleMADegreesMAContactinformationRadboudUniversityMedicalCenter,Dept.
MedicalPsychology818ChildPsychologyPObox91016500HBNijmegen0031-24-3613947Emailaddresse.
meijer@cukz.
umcn.
nlProfessionClinicalpsychologist/psychotherapistFunctionCoordinatorpsycho-socialcareMainactivitiesPatientCare,ResearchFocusofresearchAdjustment,coping,CBT,palliativecareAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
ALL-10treatmentforchildrenwithacutelymfoblasticleukemia:astudyonadjustmentandqualityoflifeandit'sdeterminants.
Dutchmulticenterstudy(UMCN/VUMC),DCOGapproved.
0kt2006-okt20092.
ParticipatinginQLIC-ONstudyAMC.
Duration:4-5years.
Startdate:September2005.
AimistodeterminewhetherprovidingPatientReportedOutcome(PRO)onHealthRelatedQualityofLife(HRQOL)helppediatriconcologiststoidentifyanddiscussHRQOLproblemsinchildrenwithcancer.
Keypublications(max5):Parentalcognitionsregardingtheoncologicaldiseaseoftheirchild:theillnesscognitionquestionnaire-parentversion(icq-p).
EMMMeijer-vandenBergh,PMHoogerbrugge,AWMEvers,CMVerhaak,posterabstractSIOPconferenceGeneva,2006Psychosocialadjusmentofchildrenatthestartoftheirall-10treatment;preliminairyresultsofadutchmulticentrestudy.
EMMMeijer-vandenBergh,PMHoogerbrugge,CMVerhaak,posterabstractSIOPconferenceMumbai,2007Mavinkurve-GroothuisA,Meijer-vdBerghE,BrouwerH,EnkG:Patintdelayduetoembarrassmentandfearintwoadolescentswithamalignanttumor.
PediatricBloodandCancer,vol50,5,may2008,p1083.
100ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMichelFirstNameGiselaTitlePhDDegreesMScinClinicalandsocialpsychology,philosophyPhDinClinicalpsychologyContactinformationDeptofPsychologyUniversityofSheffieldWesternBankSheffield,S102TPUKEmailaddressmichel@ispm.
unibe.
chProfessionPsychologistFunctionPost-docMainactivitiesResearchFocusofresearchFollow-upcareinchildhoodcancersurvivorsLateeffectsinchildhoodcancersurvivorsQualityoflifeinchildhoodcancersurvivorsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Follow-upcareinchildhoodandyoungadultcancersurvivors:Perspectivesofsurvivors,oncologistsandgeneralpractitioners(09/2007-12/2008)2.
LateoutcomeinchildhoodcancersurvivorsinSwitzerland(01/2006-12/2008)Keypublications(max5)Michel,G.
,vonderWeid,N.
X.
,Zwahlen,M.
,Strippoli,M.
-P.
F.
,Redmond,S.
&Kuehni,C.
(2008).
IncidenceofchildhoodcancerinSwitzerland:theSwissChildhoodCancerRegistry.
PediatricBloodandCancer,50(1),46-51.
Michel,G.
,vonderWeid,N.
X.
,Zwahlen,M.
,Adam,M.
,RebholzC.
E.
&Kuehni,C.
(2007).
TheSwissChildhoodCancerRegistry:rationale,organisationandresultsfortheyears2001-2005.
SwissMedicalWeekly.
137(35-36),502-509.
101ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMostertFirstNameSaskiaTitleDegreesContactinformationPediatricHematologyOncologyDivision,DepartmentofPediatrics,VUUniversityMedicalCenter,Amsterdam,theNetherlandsEmailaddresss.
mostert@vumc.
nlProfessionMedicaldoctorFunctionPhDresearcherMainactivitiesResearchFocusofresearchChildhoodacutelymphoblasticleukemiatreatment;developingcountry;children,parents,health-careproviders.
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
CompliancewithchildhoodacutelymphoblasticleukemiatreatmentinIndonesia.
Startdate:2002Keypublications(max5)MostertS,SitaresmiMN,GundyCM,Sutaryo,VeermanAJP.
InfluenceofSocioeconomicStatusonChildhoodAcuteLymphoblasticLeukemiaTreatmentinIndonesia.
Pediatrics2006;118:1600-1606.
MostertS,SitaresmiMN,GundyCM,Sutaryo,VeermanAJP.
Attitudeofhealth-careproviderstowardchildhoodleukemiapatientswithdifferentsocio-economicstatusPediatricBlood&Cancer2008;50:1001-1005.
MostertS,SitaresmiMN,GundyCM,Sutaryo,VeermanAJP.
DoesaidreachthepoorExperiencesofachildhoodleukaemiaoutreachprogramme.
EuropeanJournalofCancer2008;Inpress.
MostertS,SitaresmiMN,GundyCM,Sutaryo,VeermanAJP.
ParentalExperiencesofChildhoodLeukemiaTreatmentinIndonesia.
JournalofPediatricHematology/Oncology2008;Inpress.
SitaresmiMN,MostertS,GundyCM,Sutaryo,VeermanAJP.
Health-careproviders'compliancewithchildhoodacutelymphoblasticleukemiaprotocolinIndonesia.
PediatricBlood&Cancer2008;Inpress.
102ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameMukherjeeFirstNameSuzanneTitleDrDegreesPhDHealthSciences,MScChildDevelopment,BSc(Hons)PsychologyContactinformationSocialPolicyResearchUnit,UniversityofYork,Heslington,York,UnitedKingdom,Y0266JG.
Tel+44(0)1904321950-Fax+44(0)1904321953-Text/voice(0)1904321951EmailaddressSkmw1@york.
ac.
ukProfessionPsychologistFunctionPost-docresearcherMainactivitiesResearchFocusofresearchStressandburnoutinpediatricandadolescentoncologystaff;theservicesupportneedsofchildren,youngpeopleandparents.
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
'Developmentandvalidationofameasureofwork-relatedstressorsforpediatricandadolescentoncologystaff'.
January2009-March2010.
2.
'Evaluatingmodelsofcareclosertohomeforchildrenandyoungpeoplewhoareill'.
April2007-September2009.
Keypublications(max5)MukherjeeS.
,BeresfordB.
,SloperP.
,andGlaserA.
(Submitted)Stressandburnoutinpediatriconcologystaff:Areviewoftheliterature.
MukherjeeS.
,SloperP.
,BeresfordB.
,LundP.
andGrecoV.
(2006)AResourcePack:Developingakeyworkerserviceforfamilieswithadisabledchild',2ndEdition,CCNUK.
MukherjeeS.
,SloperP.
andLewinR.
(2002)Themeaningofparentalillnesstochildren:Thecaseofinflammatoryboweldisease.
Child:Care,HealthandDevelopment,28(6):479-485.
MukherjeeS.
,SloperP.
,andTurnbullA.
(2002)Aninsightintotheexperiencesofparentswithinflammatoryboweldisease.
JournalofAdvancedNursing,37(4):355-363.
MukherjeeS.
,LightfootJ.
,andSloperP.
(2002)Communicatingaboutpupilsinmainstreamschoolwithspecialhealthneeds:theNHSperspective.
Child:Care,HealthandDevelopment,28(1):21-27.
103ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameNichelliFirstNameFrancescaTitleDegreesContactinformationOspedaleS.
Gerardo,MonzaEmailaddressfrancynichy@gmail.
comProfessionPsychologistFunctionClinicalpsychologistMainactivitiesPatientCare;ResearchFocusofresearchNeuropsychology,qualityoflife,sibilingsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
BehaviouraleffectsofdexametazoneduringtheinductiontherapyforALL(3years,startedin2004);longtermqualityoflifeinsibilingsofchildrenwithALL(inpreparation)Keypublications(max5)ISPACC(InternationalStudyGrouponPsychosocialAspectsofChildhoodCancer.
)NeurocognitivefunctioninalongitudinalstudyinchildrenaffectedbyALL:aninternationalstudy(inpublication).
RivaD,AggioF,VagoC,NichelliF,AndreucciE,ParutaN,D'ArrigoS,PantaleoniC,BulgheroniS.
Cognitiveandbehaviouraleffectsofmigraineinchildhoodandadolescence.
Cephalalgia.
2006May;26(5):596-603.
NichelliF,ScalaG,VagoC,RivaD,BulgheroniS.
Age-relatedtrendsinStroopandconflictingmotorresponsetaskfindings.
ChildNeuropsychol.
2005Oct;11(5):431-43.
RivaD,AvanziniG,FranceschettiS,NichelliF,SalettiV,VagoC,PantaleoniC,D'ArrigoS,AndreucciE,AggioF,ParutaN,BulgheroniS.
Unilateralfrontallobeepilepsyaffectsexecutivefunctionsinchildren.
NeurolSci.
2005Oct;26(4):263-70.
BulgheroniS,NichelliF,ErbettaA,BagnascoIRivaD.
Verbaldichoticlisteningandmanualperformanceinchildrenwithcongenitalunilateralbrainlesions.
Neuropsychology.
2004Oct;18(4):748-55.
RivaD,SalettiV,NichelliF,BulgheroniS.
Neuropsychologiceffectsoffrontallobeepilepsyinchildren.
JChildNeurol.
2002Sep;17(9):661-7.
104ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameNolfFirstNameNathalieTitleDegreesContactinformationDept.
Ped.
Haemato-OncologyUniv.
HospitalGhentDePintelaan1859000GentBelgium+32(0)9332.
24.
63EmailaddressNathalie.
Nolf@Ugent.
beProfessionPsychologist–BehaviourTherapistFunctionMainactivitiesPatientCare;FocusofresearchAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)Keypublications(max5)105ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameOkcuFirstNameFatihTitleAssistantProfessorDegreesMD,MPHContactinformation6621FanninStreet,CC1510.
00,HoustonTX77030Tel:832-822-1511,Fax:832-825-1503Emailaddressmfokcu@txccc.
orgProfessionPediatricHematology/Oncology,PhysicianScientistFunctionMainactivitiesPatientCareandResearchFocusofresearchAssociationbetweengeneticpolymorphismsandneuropsychologicaloutcomesAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Neuropsychologicalimpairmentinleukemiasurvivorsandfolatepathwaypolymorphisms.
StartDate:20042.
Neuropsychologicalimpairmentinmedulloblastomasurvivorsandfreeradicalscavengingpolymorphisms.
StartDate:2004Keypublications(max5)KrullKR,BrouwersP,JainN,ZhangL,BomgaarsL,DreyerZ,MahoneyD,BottomleyS,OkcuMF.
Folatepathwaygeneticpolymorphismsarerelatedtoattentiondisordersinchildhoodleukemiasurvivors.
JPediatr.
2008;152:101-105.
NarahmaniN,CarpentieriS,LiXN,WangT,CaoY,HoweL,KilburnL,ChintagumpalaM,LauC,OkcuMF.
GlutathioneS-TransferaseM1andT1PolymorphismsMayPredictAdverseEffectsAfterTherapyinChildrenwithMedulloblastoma(inpressNeuro-Oncology)106ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameOlthofFirstNameAnitaTitleMrs.
DegreesBachelorofArtsTherapiesContactinformationHeemsteedseDreef1682102KSHeemstedeTheNetherlandsEmailaddressanita.
olthof@planet.
nlProfessionArttherapistFunctionFreelanceMainactivitiesPatientCareFocusofresearchEmotionregulationAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)InpreparationKeypublications(max5)107ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameOppenheimFirstNameDanielTitleMD,PhDDegreesSeniorpsychiatristContactinformationDeptofpediatriconcologyInstitutGustaveRoussy94805VillejuifFranceEmailaddressoppenheim@igr.
frProfessionPsychiatristandpsychoanalystFunctionMainactivitiesBothFocusofresearchAlltheaspectsofthechild'sandparents'experienceofcancer.
AttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Socio-culturalandfamilyhistorydiversityamongthefamiliesofchildrentreatedforacancer,andtheirconsequences.
2.
TheexperienceofgoingthroughphaseI-IItrialsbythechildrenandtheparents.
3.
EthicalaspectsofpediatriconcologyKeypublications(max5)OppenheimD.
Thechild'ssubjectiveexperienceofcancerandtherelationshipwithparentsandcaregivers.
InPsychosocialaspectsofpediatriconcology.
S.
KreitlerandMWeylBenArusheds.
Wiley,ChichesterUK2004,111-138;OppenheimD,PittoloV,GericotC,GrillJ,HartmannO,DauchyS.
Awritingworkshopforchildrenwithcancer.
ArchDisChild2008;93:708-709;OppenheimD,BrugièresL,CorradiniN,VivantF,HartmannO.
Anethicsdilemna:whenparentsanddoctorsdisagreeonthebesttreatmentforachild.
BullCancer2004;91:735-738;Oppenheim,D.
,Brugières,L.
,Chompret,A.
,andHartmann,O.
ThepsychologicalburdeninflictedbymultiplecancersinLi-Fraumenifamilies:fivecasestudies.
JGenetCounseling,10:169-183,2001;OppenheimD,ValteauCouanetD,VasselonS,HartmannO.
Howdoparentsperceivehigh-dosechemotherapyandautologousstemcelltransplantationfortheirchildren.
BoneMarrowTransplantation,2002,30(1);35-39108ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameOttensmeierFirstNameHolgerTitleDr.
rer.
nat.
DegreesContactinformationChildrensUniversityHospital,WürzburgJosef-SchneiderStrasse297080WRZBURGTel.
093120127755Fax.
093120127772Emailaddressottensmeie_h@klinik.
uni-wuerzburg.
deProfessionNeuropsychologist/PsychotherapistFunctionMainactivitiesPatientCare;Research,BothFocusofresearchLateeffectsinbraintumorsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Twoprojects2007–2009Keypublications(max5)Shortversionofintelligencetestingofchildren,Ottensmeier,H.
,Galley,N.
,Rutkowsky,S.
,Kuehl,J.
(2006)KindheitundEntwicklung,15(2),100-106TreatmentofEarlyChildhoodMedulloblastomabyPostoperativeChemotherapyAlone,StefanRutkowski,M.
D.
,UdoBode,M.
D.
,FrankDeinlein,M.
D.
,HolgerOttensmeier,Ph.
D.
etal.
(2005)NewEnglandJournalofMedicine,352,978-986109ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNamePatenaudeFirstNameAndreaFarkasTitleDirector,Psycho-OncologyResearchintheDepartmentofPediatricOncology,Dana-FarberCancerInstitute,AssociateProfessor,HarvardMedicalSchoolDegreesPh.
D.
ContactinformationDana-FarberCancerInstitute44BinneyStreetBostonMA02445USAEmailaddressandrea_patenaude@dfci.
harvard.
eduProfessionPsychologistFunctionProjectleaderMainactivitiesResearchFocusofresearchPsychosocialimpactofcancergenetictesting;survivorshipAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Attitudestowardsgenetictestingandgenomicresearchamongadultsurvivorsofpediatriccancer–2006-2009;2.
Parentcommunicationtominorchildrenregardingmother'sBRCA1/2testresult:2008-2011;3.
Socialfunctioningofchildrenwithbraintumors–2004-2008.
Keypublications(max5)PatenaudeAF.
GeneticTestingforCancer:PsychologicalApproachestoHelpingPatientsandFamilies.
ForwardbyFrancisCollins,M.
D.
,Ph.
D.
AmericanPsychologicalAssociationBooks,2005.
WeinerL,PaoM,KazakAE,KupstMJ,PatenaudeAF,andHollandJC.
QuickReferenceforPediatricOncologyClinicians:ThePsychiatricandPsychologicalDimensionsofPediatricCancerSymptomManagement.
AmericanPsycho-OncologySociety,inpress.
PatenaudeAF&KupstMJ(2005).
Psychosocialfunctioninginpediatriccancer.
JournalofPediatricPsychology,30,9-29.
PatenaudeAF.
(2003)Pediatricpsychologytrainingandgenetics:Whatwill21stcenturypediatricpsychologistsneedtoknowJPedPsych.
28,135-145.
PatenaudeAF,GuttmacherAE,&CollinsFS.
(2002)Cancergenetictestingandpsychology:Newroles,newresponsibilities.
AmerPsychol,57,271-282.
110ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameParedesGuerraFirstNameAnaMariaGloriaTitleDegreesContactinformationRebagliatiHospitalESSALUDLimaPeruEmailaddressgloriaparedes2000@yahoo.
comProfessionOncologyPediatricianFunctionMainactivitiesPatientCare;FocusofresearchAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
HistoriesforchildrenProjectleader:ParedesguerragloriaProject:buildingonehostellingforcancerchildrenpatientswiththesellingofthehistories.
Istartedthisprojectin1july2007,Icreated20histories,the5firsthistoriesIamsellingonthebookstore,mypatientshelpsmetosellaroundofmycountry,becausethebuildingofhostellingisveryimportantforqualityofliveduringtheirtreatment.
Keypublications(max5)111ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNamePalmerFirstNameShawnaTitleResearchPsychologistDegreesPh.
D.
ContactinformationDeptofBehavioralMedicine,St.
JudeChildren'sResearchHospitalEmailaddressshawna.
palmer@stjude.
orgProfessionPsychologistFunctionCo-Investigator;SectionCoordinator,CancerControlMainactivitiesResearchFocusofresearchNeurocognitive,familyfunctioning,lateeffects,interventionsAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Treatmentofpatientswithnewlydiagnosedmedulloblastoma,surpratentorialprimitiveneuroectodermaltumor,oratypicalteratoidrhabdoidtumor(2003;6years).
Includesrandomizedinterventionstudyforremediationofreadingdecodingandunderlyingcognitiveskills.
Keypublications(max5)PalmerSL&LeighLD.
Adolescentandyoungadultsurvivorsofpediatricbraintumors:Risk-basedmanagementofoutcomesandintervention.
EuropeanJournalofOncologyNursing,inpress.
PalmerSL,ReddickWE,&GajjarA.
Understandingthecognitiveimpactonchildrenwhoaretreatedformedulloblastoma.
JournalofPediatricPsychology,32(9):1040-9,2007.
MulhernRK,PalmerSL,MerchantTE,Wallace-JonesD,KocakM,KunLE,BrouwersP,KrullK,ChintagumpalaM,StargattR,AshleyDM,TycVL,GajjarA.
Neurocognitiveconsequencesofrisk-adaptedtherapyforchildhoodmedulloblastoma.
JournalofClinicalOncology,23:5511-5519,2005.
PalmerSL,GajjarA,ReddickWE,GlassJO,KunLE,WuS,XiongX,MulhernRK.
Predictingintellectualoutcomeamongchildrentreatedwith35-40Gycraniospinalirradiationformedulloblastoma.
Neuropsychology,17(4):548-555,2003.
PalmerSL,ReddickWE,GlassJO,GoloubevaO,GajjarA,MulhernRK.
Declineincorpuscallosumvolumeamongpediatricpatientswithmedulloblastoma:AlongitudinalMRimagestudy.
AmericanJournalofNeuroradiology,23:1088-1094,2002.
MulhernRK,PalmerSL,ReddickWE,GlassJO,KunLE,TaylorJ,LangstonJ,GajjarA.
Risksofyoungageforselectedneurocognitivedeficitsinmedulloblastomaareassociatedwithwhitematterloss.
JournalofClinicalOncology,19:472-479,2001.
112ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNamePatelFirstNameSunitaTitleAssistantProfessorofPediatrics;Director,BehavioralResearchinPedsDegreesPh.
DContactinformationCityofHopeNationalMedicalCenterBuilding#173,1500E.
DuarteRoadDuarte,CA.
91010-3000Tel626-301-8426Fax626-301-8985Emailaddressspatel@coh.
orgProfessionClinicalNeuropsychologistFunctionMainactivitiesPatientCare;Research,BothFocusofresearchNeurocognitiveandqualityoflifeoutcomesandinterventionsAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
RO3CA130731-01(PI:S.
Patel)04/01/08–03/30/10NIH-NCINationalCancerInstitute.
Abehavioraltrialforparentsofchildhoodcancersurvivorswithneurobehaviorallateeffects.
Thestudypilotsarandomizedcontrolledbehavioraltrialtoempiricallyevaluatetheimpactofaparentinterventionfortheprimarypurposeofimprovingoutcomesinchildrenwithneurobehaviorallateeffectsfollowingcancerdiagnosisandtreatment.
2.
RO1CA119196-01(PI:Parsons)6/01/07–5/30/11NIH-NCIHSCT-CHESStoEnhanceHematopoieticTransplantRecoveryMajorgoalsaretodevelopaninteractive,web-based,healthinformationandsupportsystemforHSCTpatientsandfamilies.
Thiswillbeatransportable,transplantspecificmoduleofthewell-establishedComprehensiveHealthEnhancementSupportSystem(HSCT-CHESS).
Projectwillconductarandomizedcontrolledtrialof190parentsat4cancercenterstoevaluatetheimpactofHSCT-CHESSonHRQOL,comparingittostandardcareoverasix-monthinterventionperiodwithinthefirstyearofHSCT.
Role:Co-investigatorandsitePI3.
P20CA118775(Kane–Patel&Dennis)10/1/08-9/31/10NCIParentingbehaviorsinLatinochildhoodcancersurvivorsatriskforneurobehaviorallateeffects.
Keypublications(max5)PatelS,K.
,Carlson-GreenB:Commentary:Towardsgreaterintegrationandspecificityinconceptualmodelsofneurocognitivefunctioninginchildhoodcancersurvivors.
JournalofPediatricPsychology,specialissue:SurvivingPediatricCancer:ResearchGainsandGoals,30(1),85-89,2005.
Meeske,K.
,Patel,S.
K.
,Palmer,S.
,Nelson,M.
,Parow,A.
Factorsassociatedwithhealthrelatedqualityoflifeinpediatriccancersurvivors,PediatricBloodandCancer.
49(3),298-305,2007.
Patel,S.
K.
,Lai-Yates,J.
,Anderson,J.
,Katz,E.
Attentiondysfunctionandparentreportinginchildrenwithbraintumors.
PediatricBloodandCancer.
49(7),970-975,2007.
Nathan,P.
,Patel,S.
,Dilley,K.
,Goldsby,R.
,Harvey,J.
,Jacobsen,C.
,Kadan-Lottick,N.
,McKinley,K.
,Millhan,A.
,Moore,I.
,Okcu,M.
F.
,Woodman,C.
,Brouwers,P.
,Armstrong,D.
GuidelinesforIdentificationof,Advocacyfor,andInterventionof,NeurocognitiveProblemsinSurvivorsofChildhoodCancer:AReportfromtheChildren'sOncologyGroup.
ArchivesofPediatricandAdolescentMedicine.
161(8),798-806,2007.
Butler,R.
,Copeland,D.
,Fairclough,D.
,Mulhern,R.
,Katz,E.
,Kazak,A.
,Noll,R.
,Patel,S.
,Sahler,O.
AMulticenter,RandomizedClinicalTrialofaCognitiveRemediationProgramDirectedTowardsChildhoodSurvivorsofaPediatricMalignancy,JournalofConsultingandClinicalPsychology,76(3),367-378,2008.
113ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNamePaulidesFirstNameMariosTitleDr.
med.
DegreesDr.
med.
ContactinformationUniversityHospitalforChildrenandAdolescentsLoschgestr.
1591054ErlangenEmailaddressmarios.
paulides@uk-erlangen.
deProfessionPhysicianFunctionPost-docresearcherMainactivitiesPatientcareandresearchFocusofresearchLateeffectsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
LateEffectsSurveillanceSystemKeypublications(max5)KrappmannP,PaulidesM,SthrW,IttnerE,PlattigB,NickelP,LacknerH,SchrappeM,JankaG,BeckJD,LangerT:AlmostnormalcognitivefunctioninpatientsduringtherapyforchildhoodacutelymphoblasticleukemiawithoutcranialirradiationaccordingtoALL-BFM95andCOALL06-97protocols:resultsofanAustrian-Germanmulticenterlongitudinalstudyandimplicationsforfollow-up.
PediatrHematolOncol24:101-9,2007114ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNamePitillasFirstNameCarlosTitleMr.
DegreesM.
A.
DegreeinPsychoanalyticPsychotherapyContactinformationHospitalMadrid-MontepríncipeMadridSpain.
Emailaddresscarlospitillas@gmail.
comProfessionPsychologistFunctionPh.
D.
StudentMainactivitiesBothPatientCareandResearch,FocusofresearchPosttraumaticstress;Useofchildpsychotherapytechniques(playtherapy,etc.
);Identityinsurvivorship.
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Assessmentofposttraumaticstress(startsafterJuly,2008).
Subjectiveexperienceofchildrenaffectedbycancer(bymeansofcomprehensiveofplaytherapyandpsychotherapytechniques)(startedDecember2007).
Keypublications(max5)115ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNamePletschkoFirstNameThomasTitleMag.
BakkDegreesContactinformationUniv.
ClinicforpediatricandadolescentmedicineMedicalUniversityofViennaWhringerGürtel18-20A-1090WienAustriaEmailaddressthomas.
pletschko@meduniwien.
ac.
atProfessionclinicalpsychologistFunctionPhD-studentMainactivitiesPatientCare&Research(Both)FocusofresearchNeurocognitiveperformanceafterneuro-oncologicdiseasesAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
DevelopmentofanICF-basedneuropsychologicalassessmentstrategyfortheassessmentofexecutivefunctionsinpediatricpatientswithmedulloblastoma(duration:3years,start:Sept.
2007)Keypublications(max5)Rupp,Pletschko,Leiss,Formann&Slavc(2008).
DowestillneedIQScoresMisleadinginterpretationsofneurocognitiveoutcomeinpediatricpatientswithmedulloblastoma.
SubmittedAbstract(SIOP2008)Leeb,Gmoser,Pletschko,Leiss,Arendasy&Slavc(inprep.
).
HowdochildrenafterneurooncologicdiseasescopeschoolAratingofparentsonanICF-basedscale.
Gmoser,Leeb,Leiss,Pletschko,Arendasy&Slavc(inprep.
).
HowdochildrenafterneurooncologicdiseasescopeschoolAratingofafflictedchildrenonanICF-basedscale.
Schieber,Pletschko,Leiss,Arendasy&Slavc(inprep.
).
ExecutiveFunctionsinchildrenwithneurooncologicdiseases:Howwelldotestresultspredictbehavioralproblems116ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNamePderFirstNameUlrikaTitleMrsDegreesPhDContactinformationinformationDeptofPublicHealthandCaringSciencesUppsalaScienceParkUppsalaUniversitySE-75183UppsalaSwedenEmailaddressPoder@pubcare.
uu.
seProfessionRegisterednurse,specializedinintensivecare/neurosurgicalcareFunctionLecturer(Assistantprofessor)atUppsalaUniversity,Sweden:Nursing/CaringSciencesMainactivitiesResearchFocusofresearchParents,post-traumaticstressAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
"OccurrenceanddevelopmentofposttraumaticstressdisorderamongSwedishparentsofchildrenwithcancer",projectleaderProf.
LouisevonEssen.
Startdate:2002-ongoingKeypublications(max5)PderU.
,LjungmanG.
,vonEssenL.
Posttraumaticstressdisorderamongparentsofchildrenoncancertreatment:alongitudinalstudy.
Psycho-Oncology.
2008;17:430-437PderU.
,vonEssenL.
PerceptionsofsupportamongSwedishparentsofchildrenoncancertreatment:aprospective,longitudinalstudy.
Inpress:EuropeanJournalofCancerCarePderU.
,LjungmanG.
,vonEssenL.
e.
g.
Parents'perceptionsoftheirchildren'ssymptoms:aprospective,longitudinalstudywithinpediatriccare.
SubmittedBerglundT.
,PderU.
,LorenzS.
,vonEssenL.
,HaglundK.
Experiencesofhavingandcaringforachildwithcancer.
InpreparationNorbergAL.
,PderU.
,vonEssenL.
DoesavoidancepredictposttraumaticstressdisorderamongparentsofchildrenwithcancerInpreparation117ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNamePrchalFirstNameAliceTitleDegreesMScContactinformationUniversityChildren'sHospitalSteinwiesstrasse75CH-8032ZurichSwitzerlandEmailaddressalice.
prchal@kispi.
uzh.
chProfessionPsychologistFunctionPh.
D.
studentMainactivitiesBoth(patientcarenotwithoncologypatients)FocusofresearchSiblingsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Psychologicalinterventionsinsiblingsofpediatriccancerpatients(2006-2010)Keypublications(max5)118ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameRaadtdeFirstNameBobTitle-DegreesSocialWork–VO–Ouderbegeleiding/InteractieAcademieAntwerpenContactinformationErasmusMC-SophiaSk22.
54Postbus20603000CBRotterdamTheNetherlandsEmailaddressb.
deraadt@erasmusmc.
nlProfessionMedicalsocialworkerFunctionSocialwork/parentalcoachingMainactivitiesPatientCare/coaching/educationFocusofresearchEmpoweringparents/socialworkAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)Keypublications(max5)Raadt,B.
de&C.
Hoogervorst(2006)–Hetrechtvanoudersopeenrechterug;in:TijdschriftOuderschap&Ouderbegeleiding–jaargang9;maart2006;nr.
1;pag.
12-18-Amsterdam:Uitg.
SWP.
>overgenomenin:TijdschriftKinderverpleegkunde,12ejaargang,nov.
2006,nr.
4;pag.
8-11.
Raadt,B.
de(2006)–Levensbeschouwing,veerkrachtenidentiteit.
Ouderschapineenmedischestroomversnelling.
Systeemtheoretischeaspectenbijouderbegeleidingineenacademischkinderziekenhuis.
–Rotterdam:ErasmusMC/DienstPsychosocialeZorg–MedischMaatschappelijkWerk.
EindwerkstukvoorInteractie-AcademieAntwerpen;opleidingontwikkelingsondersteuning(incl.
ouderbegeleidingenopvoedingsondersteuning).
ISBN–10:90-77712-32-1;ISBN-13:978-90-77712-32-0>Uitg.
StichtingDeVasteBurcht(St.
DVB),Alblasserdam.
Raadt,B.
de,J.
Rijkschroeff,M.
Speksnijder(2007)–Ouderbegeleidinginhetkinderziekenhuis.
Thema'slevensbeschouwingenveerkracht;in:TijdschriftKinderverpleegkunde,13ejaargang,juni2007,nr.
2,pag.
10-11Streng,Drs.
I.
C.
,C.
Janse,B.
deRaadt(2004)–Kinderenmetkankerenhunouders,in:IKRBulletin,jaargang28,dec.
,pag.
9-13.
119ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameReimersFirstNameTonnySolveigTitlePsychologistDegreesMA.
LicensedPsychologist.
SpecialistinHealth-PsychologyandinClinicalChild-Neuropsychology.
ContactinformationRigshospitalet,CopenhagenUniversityHospitalTheJulianeMarieCenter9Blegdamsvej,section4073DK-2100CopenhagenDenmark.
Emailaddresstonny.
reimers@rh.
regionh.
dkProfessionPsychologistFunctionClinicalpsychologistonthePediatricOncologyWard,Rigshospitalet(andresearcherasfaraspossible).
MainactivitiesPatientCare(andResearch)FocusofresearchChildhoodbraintumors(neurocognitive;qualityoflife)AttendingSIOPBerlin2008No.
(Maybeifpossible).
Researchprojects(durationandstartdate)1.
PsychosocialandNeuropsychologicalLateEffectstoRadiotherapyandChemotherapyinChildhood:CognitiveandSocialAspects.
(DatacollectionandevaluationsbetweenDecember1997andSeptember1999.
Arestillworkingontheproject).
2.
Inpreparation:SocialFunctioninginLong-TermSurvivorsofCraniopharyngiomas.
Keypublications(max5)ReimersTS,EhrenfelsS,MortensenEL,etal:CognitiveDeficitsinLong-TermSurvivorsofChildhoodBrainTumors:IdentificationofPredictiveFactors.
MedPediatrOncol2003;40:26-34.
ReimersTS,MortensenEL,SchmiegelowK.
MemoryDeficitsinLong-TermSurvivorsofChildhoodBrainTumorsMayPrimarilyReflectGeneralCognitiveDysfunctions.
PediatrBloodCancer2007;48:205-212.
ReimersTS,MortensenEL,NysomK,SchmiegelowK.
Health-RelatedQualityofLifeinLong-TermSurvivorsofChildhoodBrainTumors.
PediatrBloodCancer2007;49,Issue4,October1,PL.
012.
120ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameReinfjellFirstNameTrudeTitleAssociateprof.
,ClinicalpsychologistDegreesPhDContactinformationEmailaddresstrude.
reinfjell@ntnu.
noProfessionClinicalpsychologistFunctionprojectleader,supervisorMainactivitiesResearch,teachingandclinicalpracticeFocusofresearchchildren,adolescentsandyoungadults,qualityoflife,mentalhealthandneurocognitivefunctioningAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Qualityoflife,mentalhealthandcognitiveoutcomeinchildreninremissionfromAcuteLymphoblasticLeukaemia.
2009-2011Keypublications(max5)ReinfjellT.
,DisethTH.
,VeenstraM.
,VikanA.
(2006).
Measuringhealth-relatedqualityoflifeinyoungadolescents:ReliabilityandvalidityintheNorwegianversionofthePediatricQualityofLifeinventory(PedsQLTM)4.
0.
HealthandQualityofLifeOutcomes,4:61ReinfjellT,LofstadGE,VeenstraM,VikanA,DisethTH(2007).
Health-RelatedQualityofLifeandintellectualfunctioninginchildreninremissionfromAcuteLymphoblasticLeukemia.
ActaPaediatrica,96(9):1280-5.
ReinfjellT,LofstadGE,NordahlH,VikanA,DisethTH.
ChildreninremissionfromAcuteLymphoblasticLeukemia:Mentalhealthandfamilyfunctioning.
EuropeanJournalofCancerCare.
Inpress.
LofstadGE,ReinfjellT,HestadK,DisethTH.
Cognitiveoutcomeinchildrenandadolescentstreatedforacutelymphoblasticleukaemiawithchemotherapyonly.
ActaPaediatrica.
Inpress.
121ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameRichardsonFirstNameGlennTitleDrDegreesB.
A.
;B.
A.
Hons(Psychology);M.
A.
;DLittetPhil(Psychology)ContactinformationChildren'sOncologyLateEffectsPediatricDepartmentChristchurchHospitalPrivateBag4710ChristchurchNewZealand6433640640Ext88980Emailaddressglenn.
richardson@cdhb.
govt.
nzProfessionClinicalPsychologistFunctionClinicianMainactivitiesPatientCareFocusofresearchChildren&adolescents,parenting,lateeffectsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)NilKeypublications(max5)Nil122ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameRobertFirstNameRhondaTitleAssociateProfessorDegreesPh.
D.
ContactinformationChildren'sCancerHospital,U.
T.
M.
D.
AndersonCancerCenterEmailaddressrrobert@mdanderson.
orgProfessionClinicalpsychologyFunctionClinicalpsychologyservicesMainactivitiesBothFocusofresearchQualityofLife;palliativecare;treatmentoutcomeresearchAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Co-Investigator,LimbSalvageVersusAmputationinOsteosarcoma,fundedbyAstros'Long-TermSurvivorFund,PrincipalInvestigator:WinstonHuh.
2.
PrincipalInvestigator,PsychologicalAdjustmentoftheMinorDonorSibling,fundedbytheTheBobTallmanFund.
3.
PrincipalInvestigator,PalliativeCareandSymptomManagementforthePediatricOncologyPatient,fundedbytheChildren'sArtProject.
Keypublications(max5)Robert,R.
,Meyer,W.
J.
,III,Bishop,S.
,Rosenberg,L.
,Murphy,L.
,Blakeney,P.
Disfiguringburnscarsandadolescentself-esteem.
Burns,25(7),581-585,1999.
Robert,R.
,Blakeney,P.
,Villarreal,C.
,Rosenberg,L.
,&Meyer,III,W.
J.
Imipraminetreatmentinpediatricburnpatientswithsymptomsofacutestressdisorder:Apilotstudy.
JournaloftheAmericanAcademyofChildandAdolescentPsychiatry,38(7),873-882,1999.
Robert,R.
,Blakeney,P.
,Villarreal,C.
,&Meyer,III,W.
J.
Anxiety:Currentpracticesinassessmentandtreatment.
Burns,26(6),549-552,2000.
Robert,R.
,Brack,A.
,Blakeney,P.
,Villarreal,C.
,Rosenberg,L.
,Thomas,C.
,Meyer,W.
J.
III.
ADouble-BlindStudyoftheAnalgesicEfficacyofOralTransmucosalFentanylCitrateandOralMorphineinPediatricPatientsUndergoingBurnDressingChangeandTubbing.
JournalofBurnCareandRehabilitation,24(6),351-355,2003.
Robert,R.
,Tcheung,W.
J.
,Rosenberg,L.
,Rosenberg,M.
,Mitchell,C.
,Villarreal,C.
,Thomas,C.
,Holzer,C.
,Meyer,W.
J.
,III.
TreatingThermallyInjuredChildrenSufferingSymptomsofAcuteStresswithImipramineandFluoxetine:ARandomized,DoubleBlindStudy.
Burns,2008(inpress).
123ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameRossellFirstNameNuriaTitleBachelorofArtsDegreesBachelorofArtsContactinformationHospitaldeNiosBenjaminBloom.
OncologyDepartment.
SanSalvador,ElSalvador.
CentralAmerica.
Tel/Fax(503)2226-7313Emailaddressnrossell@gmail.
comProfessionPsychologistFunctionI'mthePsychologiststeamcoordinatoratthemultidisciplinarystaffoftheNationalPediatricOncologyProgramMainactivitiesPatientCareandResearchFocusofresearchSocio-culturalissuesonsickness,treatment,death,familycommunicationetc.
Abandonmentoftreatment.
Survivors'conceptionsofnormallife.
AttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Illnessthoughtsafterendoftreatment(interviewsandgroupdiscussionsstartingatendof2008)Keypublications(max5)"TheNationalPediatricCancerProgramandschooladaptationofchildrenwithcancerinElSalvador.
"Flacso.
AportesMagazineNo.
13.
2001.
SanSalvador,ElSalvador.
"HealthrelatedqualityoflifeinchildrenwithacutelymphoblasticleukemiainElSalvador".
PediatricBloodandCancer.
Vol.
47,Issue4,page485.
October1st2006.
"Childrenwithcancer:beliefsamongparentsinElSalvadorconcerningnutritionandphysicalactivityduringtreatment".
PresentedatSIOP2008.
"PrevalenceandPredictorsofAbandonmentamongPediatricOncologyPatientsinElSalvador,aLow-IncomeCountry".
PresentedatSIOP2008.
124ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSandsFirstNameStephenTitlePediatricNeuropsychologistDegreesPsy.
D.
ChildPsychology,NeuropsychologyFellowshipContactinformationColumbiaUniversity161FortWashingtonAve(IP-7)NewYork,NY10032USAEmailaddressss2341@columbia.
eduProfessionPediatricNeuropsychologist,ChildPsychologistFunctionMainactivitiesBothPatientCareandResearchFocusofresearchLateEffectsofPediatricCancer,QoLAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)1.
FacilitatingParentAdaptationtoPediatricHSCT:TheP-SCIPTrial(July2008-June2012).
2.
Neuropsychological,Social,Emotional,andBehavioralOutcomesinChildrenwithCancer(September2008-).
3.
HematopoieticStemCellTransplantandQualityofLifeinPediatricRecipientsforCancerandBloodDisorders(2002-current).
4.
NeuropsychologicalandQoLLateEffectsfromtheTreatmentofPediatricBrainTumors:HeadStartIII(2006–present)Keypublications(max5)SandsS,etal.
Follow-upofqualityoflife,neuropsychologicalandmedicalfunctioningofchildrentreatedforhigh-gradegliomas(inpreparation).
SandsS,etal.
,LateEffectsofTreatmentforPediatricBrainTumorsontheHeadStartIIprotocol(inpreparation).
SandsS,GiarraffaP,JacobsonCandAxelrodF.
FamilialDysautonomia'simpactonqualityoflifeinchildhood,adolescenceandadulthood.
ActaPediatrica95:457-462,2006.
SandsS,MilnerJ,GoldbergJ,MukhiV,MoliternoJ,MaxfieldC.
andWisoffJ.
QualityofLifeandbehavioralfollow-upstudyofpediatriccraniopharyngiomasurvivors.
JournalofNeurosurgery:Pediatrics103:302-311,2005.
SandsS,PietanzaM,KellieS,DiezB,VillablancaJ,BalmacedaCandFinlayJ.
Long-termFollow-upofaChemotherapy-onlyRegimenforNewly-diagnosedCNSGermCellTumors:Thefirstinternationalcooperativetrial.
Neuro-Oncology:174-183,2001.
125ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSavageFirstNameAmyTitleDrDegreesBScAppliedPsychology,D.
Clin.
Psychol.
ContactinformationChildPsychologyService,Mailpoint133,Block8,SouthamptonGeneralHospital,TremonaRoad,Southampton,SO166YD(UK)Emailaddressamy.
savage@suht.
swest.
nhs.
ukProfessionClinicalPsychologistFunctionChildClinicalPsychologist(Paediatrics)–spendabout20%workingforPaediatricOncologyServiceMainactivitiesBothalthoughmainlyfocusedonpatientcareatpresentduetolimitedfundingofmypostFocusofresearchInterestedintherapeuticgroupsforsiblingsAttendingSIOPBerlin2008NO(sadly,limitedtimeforoncologyandfundingissues)Researchprojects(durationandstartdate)Keypublications(max5)126ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSchouten-vanMeeterenFirstNameAntoinetteY.
N.
TitleDrDegreesMDPhDContactinformationEmmaChildren'sHospitalAMCPedoncologyAmsterdamEmailaddressa.
y.
n.
schouten@amc.
uva.
nlProfessionPediatriconcologistFunctionMainactivitiesPatientcareandresearchbothFocusofresearchBraintumorsegneurocognitive,palliativecareAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)incollaborationwiththepsychosocialunit!
1.
Retinoblastomapsychosocialfunctioning2004-2008(VUMCRBgroup)2.
Whitematterimagingandneuropsychologicaloutcome2006-2008EKZ3.
Optimizeendoflifecareinpediatriconcologyunitfrom2007onwards4.
NeurofeedbackinneurocognitivedysfunctioninCCSfrom2008Keypublications(max5)AukemaEJ,CaanMWA,OudhuisN,Majoie,CBLM,VosFM,RenemanL,LastBF,GrootenhuisMA,Schouten-vanMeeterenAYN.
Whitematterfractionalanisotropycorrelateswithspeedofprocessingandmotorspeedinyoungchildhoodcancersurvivors.
IntJRadOncBioPhysinpressvanDijkJ,HuismanJ,MollAC,Schouten-vanMeeterenAY,BezemerPD,RingensPJ,Cohen-KettenisPT,ImhofSM.
Health-relatedqualityoflifeofchildandadolescentretinoblastomasurvivorsintheNetherlands.
HealthQualLifeOutcomes.
2007Dec3;5:65.
vanDijkJ,OostromKJ,ImhofSM,MollAC,Schouten-vanMeeterenAY,BezemerPD,HuismanJ.
Behaviouralfunctioningofretinoblastomasurvivors.
Psychooncology.
2008Jul9.
127ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSchroederFirstNameHildegardMagdaleneTitleDegreesContactinformationUniversityHospital,LübeckDepartmentofPediatricOncologyandHematologyRatzeburgerAllee160,D-23538LuebeckTel:+49(451)500-6235EmailaddressSchroeder@paedia.
ukl.
mu-luebeck.
deProfessionDipl.
-Paed.
,Family-PsychotherapistFunctionPsychosocialServicePaediatricOncology,TeamleaderProjectcoordinatorandEditorforthedevelopmentofGuidelinesforPsychosocialCareinPediatricOncologyandHematology(PSAPOH/GPOH)MainactivitiesPatientCareandResearchFocusofresearchLateeffects,qualityoflife,developingconceptsoftreatmentAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
SchoolintegrationofchildrenandadolescentswithBrainTumors(Publicationin2009)Keypublications(max5)SchrderH.
M.
HirntumorerkrankungenimKindes-undJugendalter–EineinterdisziplinreHerausforderung.
Abstr.
#MonatsschriftKinderheilkunde2002zumVortragaufder60.
HalbjahrestagungderGPOHinBerlinam22.
11.
2002Schreiber-GollwitzerB.
M.
,SchrderH.
M.
,NiethammerD.
PsychosozialeBegleitungvonKindernundJugendlichenmitmalignenErkrankungen,MonatsschriftKinderheilkunde2002,8:150:954-965Schreiber-GollwitzerB.
M.
,SchrderH.
M.
,GriessmeierB.
,LabouvieH.
,LilienthalS.
QuantitativeundqualitativeErfassungpsychosozialerTtigkeiteninderpdiatrischenOnkologieundHmatologie–EinemultizentrischeUntersuchungimAuftragderPSAPOHKlinischePdiatrie2003,215:171-176SchrderH.
M.
,LilienthalS.
,Schreiber-GollwitzerB.
M.
,GriessmeierB.
:PsychosozialeVersorgunginderPdiatrischenOnkologieundHmatologie.
In:KurzgefassteinterdisziplinreLeitlinien2008.
EmpfehlungenzurDiagnostikundTherapiemalignerErkrankungen.
Hrsg.
:DeutscheKrebsgesellschafte.
V.
,Zuckschwerdt-Verlag,München,203-220SchrderH.
M.
,LilienthalS.
,Schreiber-GollwitzerB.
M.
,GriessmeierB.
:LeitliniePsychosozialeVersorgunginderPdiatrischenOnkologieundHmatologie",AWMFStufe3.
www.
uni-duesseldorf.
de/AWMF/ll/ll/025.
htm128ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSchuitemaFirstNameIlseTitleDegreesM.
Sc.
Contactinformation+31629058118Emailaddressi.
schuitema@vumc.
nlProfessionneuropsychologistFunctionPhDstudentMainactivitiesResearchFocusofresearchlateeffects(>20years),neurocognitive,qualityoflifeAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Neurotoxicityofcancertreatment:neurocognitivedysfunctionandunderlyingmechanisms(2007-2011)Keypublications(max5)129ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSchulteFirstNameFionaTitleMs.
DegreesBAH,MAContactinformationDepartmentofPsychology,SickKidsEmailaddressfiona.
schulte@sickkids.
caProfessionStudentinHealthandBehavioralScienceFunctionPh.
D.
CandidateMainactivitiesResearchFocusofresearchChildandAdolescentCancerSurvivors;SocialDevelopment;QualityofLife;InterventionsAttendingSIOPBerlin2008YESResearchprojects(durationandstartdate)1.
AGroupSocialSkillsInterventionforSurvivorsofBrainTumorsKeypublications(max5)Barrera,M,Schulte,F,&Spiegler,B.
(2008).
Factorsinfluencingdepressivesymptomsofchildrentreatedforabraintumor.
JournalofPsycho-Oncology,26,1-16.
:Barrera,M.
&Schulte,F.
Agroupsocialskillsinterventionprogramforsurvivorsofchildhoodbraintumors.
JournalofPediatricPsychology(submitted)Schulte,F.
&Barrera,M.
BehavioralOutcomesandAssociatedFactorsfromanInterventionProgramforSurvivorsofChildhoodBrainTumours.
PresentedattheInternationalSymposiumforPediatricNeuro-Oncology,Chicago,Illinois,June,2008.
ConferenceAbstractSchulte,F.
&Barrera,M.
QualityofLifeOutcomesfromanInterventionProgramforSurvivorsofChildhoodBrainTumours.
PresentedattheCanadianAssociationofPsychosocialOncologyAnnualConference,Halifax,May,2008.
Schulte,F.
&Barrera,M.
BodyMassIndex,BehaviorProblemsandSocialSkillsinSurvivorsofChildhoodBrainTumors.
InPreparation130ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSchwartzFirstNameLisaTitlePsychologistDegreesPhDContactinformationTheChildren'sHospitalofPhiladelphia34thandCivicCenterBlvdCHOPNorth#1487Philadelphia,PA19103267-426-0355Emailaddressschwartzl@email.
chop.
eduProfessionPsychologistFunctionPsychologistforCancerSurvivorshipProgram,ResearchMainactivitiesMostlyresearchwithsomeclinicalcareFocusofresearchQualityoflife,healthpromotion,andtransitiontoadultcareforadolescentsandyoungadultswithchronicillness(focusisononcology,withsomeworkinsicklecelldisease)AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
TheAdverseEffectofHealthonPersonalGoalPursuitofAdolescentswithCancer(NIHR03CA126337).
9/18/06-8/31/08,PI:LisaA.
Schwartz,Ph.
D.
2.
PredictorsofAttendanceatFollow-UpAppointmentsofYoungAdultCancerSurvivors.
AflacYoungInvestigatorAwardinAdolescent/YoungAdultOncology(ThroughNationalChildhoodCancerFoundation).
2/29/08-2/28/10,PI:LisaA.
Schwartz,Ph.
D.
3.
PsychologicalOutcomeinChildhoodCancerSurvivors(NIHRO1CA106928),8/1/04-7/30/09,PI:AnneKazak,Ph.
D.
,ABPP,Role:Co-Investigator.
Keypublications(max5)Schwartz,L.
A.
,&Drotar,D.
(underreview).
Health-relatedhindranceofpersonalgoalpursuitandwell-beingofyoungadultswithcysticfibrosis,pediatriccancersurvivors,andphysicallyhealthypeers.
Schwartz,L.
A.
,Radcliffe,J.
,&Barakat,L.
P.
(2007).
ThedevelopmentofaculturallysensitivepediatricpainmanagementinterventionforAfrican-Americanadolescentswithsicklecelldisease.
Children'sHealthCare,36,267-284.
Rourke,M.
T.
,Hobbie,W.
L.
,Schwartz,L.
A.
,&Kazak,A.
E.
(2007).
Posttraumaticstressdisorder(PTSD)inyoungadultsurvivorsofchildhoodcancer.
PediatricBloodandCancer,49.
177-182.
Schwartz,L.
,&Drotar,D.
(2006).
Posttraumaticstressandrelatedimpairmentinsurvivorsofchildhoodcancerinearlyadulthoodcomparedtohealthypeers.
JournalofPediatricPsychology,31,356-366.
Schwartz,L.
,&Drotar,D.
(2004).
Theeffectsofwrittenemotionaldisclosureoncaregiversofchildrenandadolescentswithchronicillness.
JournalofPediatricPsychology,29,105-118.
131ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSeloveFirstNameRebeccaTitleClinicalPsychologist,AssistantProfessorDegreesPh.
D.
,M.
P.
H.
ContactinformationChildren'sNationalMedicalCenter,Washington,DC;202-476-2243Emailaddressrselove@cnmc.
orgProfessionClinicalPsychologyFunctionClinicalservicesforoncology&hematologypediatricpatients&families,clinicalsupervisionforpsychologists-in-training,teachingandconsultationwithmedicalandnursingstaff,involvementinDCareaadvocacyforourpatientsMainactivitiesPatientCare;Research,Advocacy,TeachingFocusofresearchImprovingsystemsofcareforpediatriccancersurvivors&theirfamiliesAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
Family-centeredpalliativecareimprovementproject.
Specificaim:Toobtaininformationfrombereavedparentsforimprovingfamily-centeredcareforseriouslyillchildren,Oct.
2006–Dec.
20062.
Psychosocialservicesofferedduringthefirst30daysafterdiagnosis:Aweb-basedsurveyofCOGinstitutions,Oct.
2007–Oct.
20093.
AssessingeducationalresourcesandsupportforpediatriccancersurvivorsintheDistrictofColumbia,Sept.
2008-Aug.
2009Keypublications(max5)Selove,R.
(2007October).
Psychosocialservicesinthefirst30days:AsurveyofChildrens'OncologyGroupinstitutions.
PresentedattheCOGAnnualMeeting,Denver,CO.
Selove,R.
(2008).
Family-centeredpalliativecareimprovementproject:Recommendationsfrombereavedparents.
PosterpresentationattheAmericanPsychologicalAssociationAnnualMeeting,Boston,MA.
132ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSegoviaFirstNameLeanneTitleAssistantProfessorDegreesPhDContactinformationUTHSCSAPediatricHematology/Oncology333N.
SantaRosaSt.
–8thfloorSanAntonio,TX78207EmailaddressSegoviaL@uthscsa.
eduProfessionPsychologistFunctionHealthcareproviderMainactivitiesBoth(patientcareandresearch)FocusofresearchAdolescentsandyoungadults;cognitivelateeffectsAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)1.
StudyChairofChildren'sOncologyGroupprotocolentitledNeuropsychological,Social,Emotional,andBehavioralOutcomesinChildrenwithCancer(scheduledtoopenwithinCOGon9/15/08)2.
OngoingstudyentitledTheImpactofCancerforOlderAdolescentsandYoungAdults:MeasuringOutcomesandEnhancingCareKeypublications(max5)133ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSharmaFirstNameShantanuTitleDr.
AssistantprofessorDegreesMdradiationoncologyContactinformation51shrirampuracolonycivillinesJaipurIndiaEmailaddressdocshantanusharma@yahoo.
co.
inProfessionAssistantprofessor,smsmedicalcollegeandattachedhospitalsjaipur,indiaFunctionPatientcare,postgraduateteaching,researchMainactivitiesPatientcareandresearchFocusofresearchQualityoflife,painmanagementandpalliativecareAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Procedingforuicc,icrettfelowshipmdandersonhospitalonpainmanagementandpalliativecareKeypublications(max5)134ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSharpFirstNameLisaTitleAssistantProfessorDegreesBSN,MA,PhDContactinformationEmailaddresssharpl@uic.
eduProfessionClinicalhealthpsychologistFunctionMainactivitiesResearchFocusofresearchChildhoodcancersurvivors:follow-up,psychosocialadj,dr-ptcomm.
AttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
ChildhoodCancerSurvivors'ProgramtoEmpowerActioninCarefundedbyNCIstarts6/01/2008Keypublications(max5)KinahanKE,SharpLK,ArnstonP,GalvinK,GrillL,DidwaniaA.
AdultSurvivorsofChildhoodCancerandtheirParents:ExperienceswithSurvivorshipandLong-TermFollow-Up.
InPress.
JournalofPediatricHematologyandOncology.
SharpLK,KinahanKE,DidwaniaA,StolleyM.
Qualityoflifeinadultssurvivorsofchildhoodcancer.
JournalofPediatricOncologyNursing.
2007;24:220-226.
135ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameSidhuFirstNameRanitaTitleMsDegreesBScOT,MScOTContactinformationChildandAdolescentOncologyTotalCareUnitPrincessMargaretHospitalSubiacoPerthWesternAustralia6008EmailaddressRanita.
sidhu@health.
wa.
gov.
auProfessionOccupationalTherapistFunctionClinician,Supervisor,ManagerMainactivitiesPatientCare;Research,BothFocusofresearchSiblingsofChildrenwithCancer,BereavementAttendingSIOPBerlin2008Tryingto!
Sorryunabletocomethisyearbutpleaseletmeknowofnextyearsprogram.
Researchprojects(durationandstartdate)1.
ChiefInvestigator-Developingandevaluatingapeersupportcampprogramforsiblingsofchildrenwithcancer[completedin2005]ManualandPublicationsavailable.
2.
Co-researcher-Theexperiencesandpsychosocialneedsofyoungchildrenwhohaveamotherlivingwithcancer-aqualitativestudy[2008-current]3.
PainResearchSpecialInterestGroup-PointPrevalencestudy[2007-current]4.
PsychosocialOncologyResearchGroup-ProposedTrialof"ComfortFirst"ProgramatPMH2008Keypublications(max5)Sidhu,R.
J.
,Passmore,A.
andBaker,D.
(2005)PediatricBloodandCancer.
TheeffectivenessofaPeerSupportCampforsiblingsofchildrenwithCancer.
Sidhu,R.
J.
,Passmore,A.
andBaker,D,JournalofPediatricOncologyNursing(2005)AnInvestigationintoParentPerceptionsoftheneedsofsiblingsofchildrenwithcancer.
Sidhu,R.
J.
,Passmore,A.
andBaker,D(InPress)BritishJournalofOccupationalTherapy.
DeCinque,N.
,Monterosso,L.
Dadd,G.
,Sidhu,R.
Macpherson,R.
,andAoun,S.
(2006)BereavementSupportforFamiliesfollowingthedeathofachildfromcancer.
ExperienceofBereavedParents.
JournalofPyschosocialOncology.
24,2DeCinque,N.
,Monterosso,L.
Dadd,G.
,Sidhu,R.
Macpherson,R.
,andAoun,S.
BereavementSupportforFamiliesfollowingthedeathofachildfromcancer.
ReportfromaSurveyofAustralianandNewZealandPediatricOncologyUnits136ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameStammFirstNameWaltherD.
TitleDegreesDipl.
-Psych.
ContactinformationKlinikfürKinderundJugendlicheStenglinstr.
286156AugsburgGermany+49/821/400-3403Emailaddresswalther.
stamm@klinikum-augsburg.
deProfessionPsychologistFunctionDirectorofthepediatricpsycho-socialserviceMainactivitiesPatientCareFocusofresearchAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)Keypublications(max5)137ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameStrengFirstNameIsabelleTitleCharteredClinicalPsychologistDegreesDrsContactinformationErasmusMC-SophiaRotterdamTheNetherlandsEmailaddressi.
streng@erasmusmc.
nlProfessionClinicalPsychologistFunctionClinicalPsychologistPediatricOncologyMainactivitiesPatientCareFocusofresearchAttendingSIOPBerlin2008NOmaybeResearchprojects(durationandstartdate)Keypublications(max5)138ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameReinhardJ.
FirstNameTopfTitleDr.
philDegreesContactinformationSt.
Anna-Kinderspital,,Kinderspitalgasse6A-1090ViennaEmailaddressreinhard.
topf@stanna.
atProfessionPsychologist,psychotherapistFunctionHeadofthepsychosocialgroup,chiefpsychologistundpsychotherapistMainactivitiesPatientCare,ResearchFocusofresearchQualityofliferesearch,psychosocialproblemsofparentsandchildren,neurocognitive,lateeffectsAttendingSIOPBerlin2008noResearchprojects(durationandstartdate)1.
Healthcarestatusofviennesechildren,starttimeinautumn20092.
Gen-Au-Child3:Subprojet-Informationneedsofpaediatriccancerpatientsandtheirparentsinthelightofincreasing.
PlaningstatusKeypublications(max5)GlucocorticoidsintheTreatmentofChildrenwithAcuteLymphoblasticLeukemiaandHodgkin'sDisease:APilotStudyontheAdversePsychologicalReactionsandPossibleAssociationswithNeurobiological,Endocrine,andGeneticMarkers.
RosemarieFelder-Puig,ChristianeScherzer,MichaelaBaumgartner,MagdalenaOrtner,ClaudiaAschenbrenner,ChristianBieglmayer,TillVoigtlander,E.
RenatePanzer-Grumayer,WimJ.
E.
Tissing,JanW.
Koper,KarlSteinberger,ChristianNasel,HelmutGadner,ReinhardTopf,MichaelDworzak.
ClinicalCancerResearch;13:7093-7100,2007.
Topf,R.
:MedizinischeKrebsaufklrungalspsychosozialeNotwendigkeit-TiefenpsychologischeAspekteindermedizinischenBehandlungkrebskrankerKinder.
Kinderanalyse5/3,285-311,199Topf,R.
;Trimmel,J.
;Vachalek,L.
;Felsberger,C.
;Gadner,H.
DasPsychosozialeBetreuungskonzeptderpdiatrischenOnkologiedesSt.
Anna-Kinderspitals,Wien.
Nachdruck.
Psychologieinsterreich,19/2/1999,89-100.
Topf,R.
,Bergstrer,E.
:PalliativeBetreuungundBehandlung.
IN:PdiatrischeHmatologieundOnkologie.
1112-1123.
2006.
Springer-Verlag.
HeidelbergTopf,R.
:DieMutteralsLeibrztin:DasKind,dieKrankheitundderTod.
BeitragangenommeninderZeitschrift"PSYCHE",geplanteErscheinungFrühjahr2009.
139ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameVanegasFirstNameTeresaTitleHematooncologyUnitChiefDegreesPediatricOncologyContactinformationUnidadHematooncologiaPediatrica.
HospitalUniversitarioDr.
AngelLarraldeTelf.
005824171104390058.
416-6410227Emailaddressteresavanegas@gmail.
com–oncohual@yahoo.
esProfessionMDPediatricOncologyFunctionHematooncologyUnitChiefMainactivitiesPatientCare;Research,BothFocusofresearchfamilyfunctioning,lateeffectsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
familyfunctioningenero07-diciembre09,2.
lateeffects:BoneDensimetryposttreatmentstartJanuary06-January09Keypublications(max5)Surveillanceofthepediatricianoftheeffectslateofthetreatmentinthechildren'swithCancer.
LIVNationalCongressofPediatrics.
September2,2008ProgramofPsychopedagogicalAttentionthechildren'sandteenagerswithcanceranditsFamiliar:IntegratedCongressofOncology,MastologyandRadiotherapy.
IslaMargarita13tothe16October2004PaininthePediatriconcologypatient.
IIMeetingRegionalDra.
LadyCasanovadeEscalona".
Valencia30-31Mayand01June2002ChemotherapyanditsEffectsCollaterals.
Concepts-Complications.
EducationalcoordinationofNurseryoftheHospitalCollegestudentJulio211995.
EducationandUpdatingworkshopinPediatricOncologyworkshoptoHealthCare.
EmployeefromDr.
AngelLarraldeUniversityHospital.
Valencia,17/07/96-21/07140ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameVercruysseFirstNameGertrui(nickname:Trui)TitleMrs.
DegreesmasterinclinicalchildpsychologyContactinformationUZLeuvenHerestraat493000LeuvenBelgiumEmailaddresstrui.
vercruysse@psy.
kuleuven.
beProfessionclinicalpsychologistFunctionclinicalpsychologistMainactivitiesPatientCareandResearchFocusofresearchlongtermfollow-up(neuropsychological/QOL),siblingsAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
MemberoftheISPACcstudygroup:longtermneuropsychologicalfollow-upofchildrenwithleukemia,internationalproject,projectinthephaseofwritingthefinalarticle,dataaregatheredandanalysed.
2.
Qualityoflifeofsiblingsofsevereandchronicillchildren(cysticfibrosis/diabetes/heartdisease/cancer),jointprojectoftheclinicalpsychologistsworkingonthepediatricunitsinUZLeuven,startedtwoyearsagowiththecysticfibrosisgroup,sincethebeginningof2008theothergroupsareincluded.
Projectinthephaseofgatheringthedata.
3.
ParticipatingintheE2020-333&334studyofEISAIandQuintiles:clinicalstudyofanewdrugforchildrenwithcognitivedeficitsattributedtothecancerorcancertreatment.
Thestudyisacombinationofamedicalandneuropsychologicalinvestigation,inthephaseofpre-screeningtheeligiblechildren.
4.
ParticipatinginEuramosI,trialvandeEuropeanandAmericanosteosarcomastudygroup,overallsurvivalentoxicity,QOL.
Keypublications(max5)Vercruysse,T.
,Schoubben,E.
,Govaerts,L.
,Renard,M.
,Uyttebroeck,A.
(2006).
Reintegrationinschoolaftertreatmentforcancer.
PediatricBloodandCancer,47,4,490.
Mennes,M.
,Stiers,P.
,Vandenbussche,E.
,Vercruysse,G.
,Uyttebroeck,A.
,DeMeyer,G.
,VanGool,SW.
(2005).
Attentionandinformationprocessinginsurvivorsofchildhoodacutelymphoblasticleukaemiatreatedwithchemotherapyonly.
PediatricBloodandCancer,44,479-486.
Bijttebier,P.
,Vercruysse,T.
,Vertommen,H.
,VanGool,S.
,Uyttebroeck,A.
,&Brock,P.
(2001).
NewevidenceonthereliabilityandvalidityofthePediatricOncologyQualityofLifeScale.
PsychologyandHealth,16,461-469.
Acke-Havermans,L.
,Gerard,F.
,Theunis,M.
,VanderMarcke,M.
,Vercruysse,T.
,Witvrouw,J.
(1994).
DepsychosocialebegeleidingvankinderenmetkankerinBelgi.
Brussel:Verenigingvoorkankerbestrijding.
Vercruysse,T.
(1994).
Heteffectvandeleukemiebehandelingopdecognitievefunctiesbijkinderen.
InAcke-Havermans,L.
,Gerard,F.
,Theunis,M.
,VanderMarcke,M.
,Vercruysse,T.
,Witvrouw,J.
DepsychosocialebegeleidingvankinderenmetkankerinBelgi.
Brussel:Verenigingvoorkankerbestrijding.
141ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameVrijmoet-WiersmaFirstNameJantien(C.
M.
J.
)TitleMScDegreesDevelopmentalPsychologyContactinformationLeidenUniversityMedicalCenterPediatricDepartment,J6-174POBox96002300RCLeidenTheNetherlands+31715262494Emailaddressc.
m.
j.
vrijmoet-wiersma@lumc.
nlProfessionChildPsychologistFunctionChildPsychologistattheCancerWard,BoneMarrowTransplantationUnitandNeonatologyFollow-upCareMainactivitiesBothpatientcareandresearchFocusofresearchParentalstressinpediatriccancerandSCT,HRQoLofchildrenwithcancer,childrenwithLCHandchildrenundergoingSCT.
AttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Jan2006-now:PediatricSCT:HRQoLandparentalstress,afollowupstudy.
2.
Jan2008-Aug2008:Parentalstressinparentsofchildrenwithcongenitalheartdisease.
3.
Jan2008-Aug2008:Follow-upstudyofchildrenhavingundergoneSCT,5and10yearsago,andtheirparents.
4.
Oct-2008-HRQoLofpediatricpatientswithGVDHreceivingMSC's,internationalstudywiththreeothermedicalcentersinItalyandSweden.
5.
Jan2009:InterventionstudyinvolvingparentsofpediatricSCTpatients.
Keypublications(max5)Vrijmoet-Wiersma,C.
M.
J.
,vanKlink,J.
M.
M.
,Kolk,A.
M.
,Koopman,H.
M.
,Ball,L.
M.
,&Egeler,R.
M.
(2008).
Assessmentofparentalstressinpediatriccancer:areview.
JournalofPediatricPsychology,aug,(33)694-706.
Vrijmoet-Wiersma,C.
M.
J.
,KooloosV.
M.
,Koopman,H.
M.
,KolkA.
M.
,vanderLaan,I.
,Grootenhuis,M.
A.
,Egeler,R.
M.
(2008).
Health-relatedqualityoflife,cognitivefunctioningandbehaviourproblemsinchildrenwithLangerhanscellhystiocytosis.
PediatricBloodandCancer(inpress).
Vrijmoet-Wiersma,C.
M.
J.
,Hoekstra-Weebers,J.
E.
H.
M.
,dePeinderW.
M.
G,Koopman,H.
M.
,Tissing,W.
J.
E.
,Treffers,Ph.
D.
A.
,Bierings,M.
B.
,Jansen,N.
C.
A.
,Grootenhuis,M.
A.
,Egeler,R.
M.
PsychometricqualitiesoftheDutchversionofthePediatricInventoryforParents(PIP):amulti-centerstudy.
(SubmittedtoPsychooncology)142ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameWishFirstNameJoelTitleDirectorofHealthPsychologyDegreesPhDContactinformationUniv.
ofWisconsinHospital,RoomE3/252600HighlandAveMadisonWI53792USAEmailaddressJr.
wish@hosp.
wisc.
eduProfessionPsychologistFunctionMainactivitiesPatientcare,administrationFocusofresearchAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)Keypublications(max5)143ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameWalkerFirstNameDavidATitleProfessorDegreesBMedSciBMBSFRCPFRCPCHContactinformationChildHealthQMCNottinghamNG72UHUnitedKingdomEmailaddressDavid.
walker@nottingham.
ac.
ukProfessionPaedNeuro-OncologistFunctionMainactivitiesBothFocusofresearchNeuro-oncology,TYAtrialsaccessAttendingSIOPBerlin2008Yes/NOuncertainatpresentResearchprojects(durationandstartdate)1.
BiobankLowGradeGlioma2007-20112.
LowgradeGliomatrial2006-20103.
Barretstownevaluationprogramme2007-84.
PathwaysotCNStumourdiagnosis2005-8Keypublications(max5)144ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameWenningerFirstNameKerstinTitleDr.
DegreesPhDinPsychology,UniversityofGttingen,GermanyContactinformationUniversittsklinikumFreiburgZentrumfürKinder-undJugendmedizinOnkologisch-hmatologischeAmbulanzMathildenstr.
179106FreiburgGermanyEmailaddresskerstin.
wenninger@uniklinik-freiburg.
deProfessionPsychologistFunctionPsychosocialservices,oncol.
-haematol.
OutpatientclinicMainactivitiesPatientcare;someresearchFocusofresearchYoungadults,psychosocialadaptation,copingAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Vocationalandpsychosocialadjustmentafterchildhoodcancer–theroleofcoping(inpreparation)Keypublications(max5):Focusofpreviousresearch:Psychosocialadjustmentofpatientswithachronicillness/developmentofassessmentinstrumentsAugustin,M.
,Wenninger,K.
,Amon,U.
,Schroth,M.
J.
,Kuster,W.
,Chren,M.
,Kupfer,J.
&Gieler,U.
(2004).
GermanadaptationoftheSkindex-29questionnaireonqualityoflifeindermatology:validationandclinicalresults.
Dermatology,209,14-20.
Augustin,M.
,Lange,S.
,Wenninger,K.
,Seidenglanz,K.
,Amon,U.
&Zschocke,I.
(2004).
ValidationofacomprehensiveFreiburgerLifeQualityAssessment(FLQA)corequestionnaireanddevelopmentofathreshholdsystem.
EuropeanJournalofDermatology,14,107-113.
Wenninger,K.
,Weiss,C.
,Wahn,U.
&Staab,D.
(2003).
Bodyimageincysticfibrosis-developmentofabriefdiagnosticscale.
JournalofBehavioralMedicine,26,81-94.
Wenninger,K.
,Aussage,P.
,Wahn,U.
,Staab,D.
&dieDeutscheCFQ-Arbeitsgruppe(2003).
TherevisedGermanCysticFibrosisQuestionnaire:Validationofadisease-specifichealth-relatedqualityoflifeinstrument.
QualityofLifeResearch,12,77-85.
Staab,D.
,Wenninger,K.
,Gebert,N.
,Rupprath,K.
,Bisson,S.
,Trettin,M.
,Paul,K.
D.
,Keller,K.
M.
&Wahn,U.
(1998).
Qualityoflifeinpatientswithcysticfibrosisandtheirparents:whatisimportantbesidesdiseaseseverityThorax,53,727-731.
145ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameWicksFirstNameLynleyAnneTitleDegreesMSc/PGDipClinPsycContactinformationPediatricDepartmentWellingtonHospitalWellingtonNewZealandEmailaddresslynley.
wicks@ccdhb.
org.
nzProfessionClinicalPsychologistFunctionClinicianworkingwithchildrenandadolescentswithcancerandResearcherMainactivitiesBothFocusofresearchAdolescents,qualityoflife,lateeffectsAttendingSIOPBerlin2008NOResearchprojects(durationandstartdate)1.
TheAdolescentCancerExperience–ongoingsinceJune2006Keypublications(max5)2publicationssubmitted146ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameWienerFirstNameAndreasTitleDegreesDipl.
-Psych.
ContactinformationUniversityHospitalofMünsterPediatricandAdolescentMedicine–PediatricHematologyandOncologyQoL-TrialOffice48129Münsterphone:+4925183-52424fax:+4925183-57874EmailaddressAndreas.
Wiener@ukmuenster.
deProfessionPsychologistFunction-StudycoordinatorofGPOHQoLworkinggroup-Attendingpsychologist(BMtransplant.
&BTpatients)MainactivitiesBothFocusofresearch-Neurocognitivelateeffects-QoLAttendingSIOPBerlin2008YesResearchprojects(durationandstartdate)1.
Healthrelatedqualityoflife(QoL)andlateeffectsinchildrenandadolescentstreatedforALLorbraintumour;2000-2008(BMBFfunded)2.
InvestigationsofQoLwithintheEURAMOS1trialoftheEuropeanandAmericanOsteosarcomaStudyGroup;2005-2009(partlyfundedbyDFG)3.
QoLevaluationwithintheGPOH(SIOP)treatmentoptimisationprotocolCRANIOPHARYNGIOMA2007;2007-ongoing4.
QoLevaluationwithintheGPOH(SIOP)treatmentoptimisationprotocolforhighgradegliomas,diffuseintrinsicpontineglioma,andgliomatosiscerebri;inpreparation5.
QoLevaluationwithintheSIOPtreatmentoptimisationprotocolforCNSGCT;inpreparationKeypublications(max5)Ottensmeier,H.
,Wiener,A.
,Calaminus,G.
,Rutkowski,S.
(2008).
Cattell-Horn-Carroll(CHC)Theorybasedneuropsychological-basic-diagnosticsforpediatricbraintumourpatients:acommonassessmentwithintrialsoftheGermanHIT-BTnetwork.
PosterSIOPBerlinOct.
2008.
CalaminusG,NeubauerM,WeinspachS,WienerA,BeckJD.
Definingatooltoaccesstheneuropsychologicalprofile(NP)andqualityoflife(QoL)inchildrenwithbraintumours:AnalysisoftheGermanBMBF-projectonlateeffectsandQoLinpediatriconcology.
InternationalSymposium&Annual.
1stmeetingoftheNeuro-Oncologyworkinggroup(NOA)oftheGermanCancerSociety,Düsseldorf,16.
–17.
09.
2004.
JNeuro-Oncol200470:100CalaminusG,NeubauerM,TeskeC,WienerA,IttnerE,LangerT,BeckJD.
ProspectiveEvaluationoflateeffectsandQualityofLife(QoL)inALLandbraintumoursinGermany.
SIOPPorto,18.
–21.
09.
2002.
MedPediatOncolol200239:4P271.
147ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameWijnberg-WilliamsFirstNameBarbaraTitleDegreesMScContactinformationWenckebachInstitute,UniversityMedicalCenterGroningen,POBox30001,9700RBGroningen,theNetherlandsEmailaddressb.
j.
wijnberg@psb.
umcg.
nlProfessionPsychologistFunctionPsychologistMainactivitiesBothFocusofresearchQualityoflife,shortandlongtermadaptation,familyfunctioning,ptss,children,parents,interventionsAttendingSIOPBerlin2008NoResearchprojects(durationandstartdate)1.
Long-termparent'sadjustmenttopediatriccancer;enddate:2010Keypublications(max5)Wijnberg-Williams,B.
J.
,Klip,E.
C.
,Kamps,W.
A.
,Hoekstra-Weebers,J.
E.
H.
M.
(2006).
Psychologicaladjustmentofparentsofpediatriccancerpatientsrevisited:fiveyearslater.
Psycho-Oncology,15,1-8.
Wijnberg-Williams,B.
J.
,Kamps,W.
A.
,Klip,E.
C.
,Hoekstra-Weebers,J.
E.
H.
M.
(2006).
Psychologicaldistressandtheimpactofsocialsupportonfathersandmothersofpediatriccancerpatients:long-termprospectiveresults.
JournalofPediatricPsychology,31,785-792.
148ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameYoungFirstNameBridgetTitleDrDegreesBAPhDContactinformationDivisionofClinicalPsychology,SchoolofPopulationCommunityandBehaviouralSciences,UniversityofLiverpool,WhelanBuilding,BrownlowHill,Liverpool,L693GBUK01517945525(Direct);01517945485(Secretary)EmailaddressByoung@liv.
ac.
ukProfessionPsychologistFunctionProjectleaderMainactivitiesResearchFocusofresearchParentsandchildrenAttendingSIOPBerlin2008Yes/NOResearchprojects(durationandstartdate)1.
Investigators:YoungB,HillJW,EdenT,SalmonP.
Title:Relationshipsbetweenparentsandpractitionersregardingchildrenwithleukaemia:theRapportstudy(October2006for34months)Funding:CRUK2.
Investigators:FisherP,YoungB,SalmonP,EdenT.
Title:Alleviatingemotionaldistressinadolescentsurvivorsofcancer(January2009for18months).
Funding:CLICSargent,Keypublications(max5)SalmonP,YoungB.
(2005)Coreassumptionsandresearchopportunitiesinclinicalcommunication.
PatientEducationandCounselling.
58,225-234.
Dixon-WoodsM,YoungB,HeneyD.
(2005)RethinkingExperiencesofChildhoodCancer.
MiltonKeynes:OpenUniversityPress.
YoungB,Dixon-WoodsM,WindridgeK,HeneyD.
(2003)Managingcommunicationwithyoungpeoplewhohaveapotentiallylife-threateningchronicillness:qualitativestudyofpatientsandparents.
BritishMedicalJournal326,305-8.
YoungB,Dixon-WoodsM,FindlayM,Heney,D.
(2002)Parentinginacrisis:conceptualisingmothersofchildrenwithcancer.
SocialScienceandMedicine,55,1835-1847.
Dixon-WoodsM,FindlayM,YoungB,CoxH,HeneyD.
(2001).
Parents'accountsofobtainingadiagnosisofchildhoodcancer.
TheLancet,357,670-674.
149ContactandAbstractbook1stSIOPPPOmeetingBerlin2008LastNameZebrackFirstNameBradTitleAssociateProfessorDegreesPhD,MSW,MPHContactinformationUniversityofMichiganSchoolofSocialWork1080S.
University,Room2778AnnArborMichigan48109-1106USAEmailaddresszebrack@umich.
eduProfessionUniversityProfessorFunctionResearch,Teaching,ServiceMainactivitiesResearchFocusofresearchQualityofLifeAttendingSIOPBerlin2008UnfortunatelyNoResearchprojects(durationandstartdate)1.
QualityofLifeinYoungAdultSurvivorsofChildhoodCancer,5years,2003-20082.
Theimpactofcancerforolderadolescentsandyoungadults:measuringoutcomesandenhancingcare3.
"TheImpactofCancerforOlderAdolescentsandYoungAdults:MeasuringOutcomesandEnhancingCare,"HopeLab,PaloAlto,CA,2007-20104.
"Qualityoflifeassessmentinchildhoodcancersurvivors,"USDepartmentofHealthandHumanServices,NationalInstitutesofHealth,NationalCancerInstitute(5K07CA100380),2003-20095.
"FamiliesofChildhoodCancerSurvivors,"USDepartmentofHealthandHumanServices,NationalInstitutesofHealth,NationalCancerInstitute(R03CA113145-01A1),2005-2007Keypublications(max5)Zebrack,B.
J.
(2008).
Informationandserviceneedsforyoungadultcancersurvivors,SupportiveCareinCancer,DOI10.
1007/s00520-008-0469-2.
Zebrack,B.
J.
(2008).
Informationandserviceneedsforyoungadultcancerpatients,SupportiveCareinCancer,DOI10.
1007/s00520-008-0435-z.
Zebrack,B.
J.
,Zevon,M.
A.
,Turk,N.
,Nagarajan,R.
,Whitton,J.
,Robison,L.
L.
,&Zeltzer,L.
K.
(2007).
Psychologicaldistressinlong-termsurvivorsofsolidtumorsdiagnosedinchildhood:AreportfromtheChildhoodCancerSurvivorStudy.
PediatricBloodandCancer,49,(1),47-51.
Zebrack,B.
,Oeffinger,K.
,Hou,P.
,&Kaplan,S.
(2006).
Advocacyskillstrainingforyoungadultcancersurvivors:TheYoungAdultSurvivorsConference(YASC)atCampMāk-a-Dream.
SupportiveCareinCancer,14,779-782.
Zebrack,B.
&Chesler,M.
(2005).
Toachieve(e)qualityhealthcareforchildhoodcancersurvivors.
Cancer,104(12),2647-2649.